Jo Platt
Labour (Co-op) - Leigh and Atherton
8,881 (21.6%) majority - 2024 General ElectionFirst elected: 4th July 2024
5 APPG memberships (as of 2 Jan 2025)
Greater Manchester, Inclusion and Nurture in Education, Long Covid, Myalgic Encephalomyelitis (ME), Women's Health2 Former APPG memberships
Attention Deficit Hyperactive Disorder, Post-Brexit Funding for Nations, Regions and Local AreasDivision Voting information
Debates during the 2024 Parliament
Speeches made during Parliamentary debates are recorded in Hansard. For ease of browsing we have grouped debates into individual, departmental and legislative categories.
Sparring Partners
Lord President of the Council and Leader of the House of Commons
(8 debate interactions)
Department Debates
(5 debate contributions)
(4 debate contributions)
(3 debate contributions)
(3 debate contributions)
Legislation Debates
Jo Platt has not made any spoken contributions to legislative debateLeigh and Atherton Petitions
e-Petitions are administered by Parliament and allow members of the public to express support for a particular issue.
If an e-petition reaches 10,000 signatures the Government will issue a written response.
If an e-petition reaches 100,000 signatures the petition becomes eligible for a Parliamentary debate (usually Monday 4.30pm in Westminster Hall).
of 59,097 signatures (0.26%)
of 45,782 signatures (0.26%)
of 39,278 signatures (0.26%)
of 155,003 signatures (0.25%)
of 210,005 signatures (0.25%)
of 210,005 signatures (0.25%)
of 155,003 signatures (0.25%)
of 59,097 signatures (0.26%)
of 85,394 signatures (0.17%)
Latest EDMs signed by Jo Platt
PROVIDING FINANCIAL RESTITUTION TO 1950s WOMEN
Tabled by: Anna McMorrin (Labour - Cardiff North)That this House welcomes the positive interventions from many hon. Members from across the House on behalf of women born in the 1950s who have lost their pensions; welcomes the equalisation of retirement ages between women and men; recalls that women born in the 1950s were subject to discriminatory employment …
(Most recent: 8 Oct 2019)
Signatures by party:
Labour: 131
Conservative: 24
Scottish National Party: 22
Independent: 15
Liberal Democrat: 15
Democratic Unionist Party: 9
Plaid Cymru: 3
Non-affiliated: 3
Crossbench: 2
The Independent Group for Change: 2
Green Party: 1
RATES OF PAY FOR SECURITY STAFF ON THE PARLIAMENTARY ESTATE
Tabled by: Caroline Lucas (Green Party - Brighton, Pavilion)That this House notes the valuable work done by security staff on the parliamentary estate; further notes the current dispute between security staff represented by the PCS union and the House authorities concerning overtime rates; believes that security staff recruited in summer 2016 should be paid in line with the …
(Most recent: 18 Mar 2019)
Signatures by party:
Labour: 64
Scottish National Party: 13
Independent: 8
Plaid Cymru: 3
Conservative: 3
Democratic Unionist Party: 2
Green Party: 1
Commons initiatives
These initiatives were driven by Jo Platt, and are more likely to reflect personal policy preferences.
MPs who are act as Ministers or Shadow Ministers are generally restricted from performing Commons initiatives other than Urgent Questions.
Jo Platt has not been granted any Urgent Questions
Jo Platt has not been granted any Adjournment Debates
Jo Platt has not introduced any legislation before Parliament
8 Bills co-sponsored by Jo Platt
Off-road Bikes (Police Powers) Bill 2024-26
Sponsor - Luke Akehurst (Lab)
Debt Relief (Developing Countries) Bill 2024-26
Sponsor - Bambos Charalambous (Lab)
Freehold Properties (Management Charges) Bill 2017-19
Sponsor - Preet Kaur Gill (LAB)
Packaging (Extended Producer Responsibility) Bill 2017-19
Sponsor - Anna McMorrin (Lab)
National Health Service Bill 2017-19
Sponsor - Eleanor Smith (Lab)
Bus Drivers (Working Hours on Local Routes) Bill 2017-19
Sponsor - Matt Western (Lab)
Terminal Illness (Provision of Palliative Care and Support for Carers) Bill 2017-19
Sponsor - Bambos Charalambous (Lab)
Assaults on Retail Workers (Offences) Bill 2017-19
Sponsor - Alex Norris (LAB)
Latest 40 Written Questions
(View all written questions)2 Other Department Questions
We are committed to delivering better life chances for all - breaking the link between background and success. At the Budget, the Chancellor announced increases to both the National Minimum Wage (16.3% for those aged 18-20) and the National Living Wage (6.7% for those 21 and over), as well as a £240 million Get Britain Working package to improve support for people who are economically inactive, unemployed or want to develop their careers. Through our Mission-driven Government, we will build the skills people need for opportunity and growth.
This Government will also, at last, commence the socio-economic duty in section 1 of the Equality Act 2010. The duty will require public bodies, when making strategic decisions, to actively consider how their decisions might help to reduce the inequalities associated with socio-economic disadvantage. We will be updating Parliament on this in due course.
Minister of State (Foreign, Commonwealth and Development Office)
We are committed to delivering better life chances for all - breaking the link between background and success. At the Budget, the Chancellor announced increases to both the National Minimum Wage (16.3% for those aged 18-20) and the National Living Wage (6.7% for those 21 and over), as well as a £240 million Get Britain Working package to improve support for people who are economically inactive, unemployed or want to develop their careers. Through our Mission-driven Government, we will build the skills people need for opportunity and growth.
This Government will also, at last, commence the socio-economic duty in section 1 of the Equality Act 2010. The duty will require public bodies, when making strategic decisions, to actively consider how their decisions might help to reduce the inequalities associated with socio-economic disadvantage. We will be updating Parliament on this in due course.
Minister of State (Foreign, Commonwealth and Development Office)
We are committed to delivering better life chances for all - breaking the link between background and success.
The National Minimum Wage has been one of the most successful economic policy interventions over the last quarter of a century. In 2024, the percentage of employees in low-hourly paid jobs was 3.4% - a record low, and compared to 21.9% in 1999, when the National Minimum Wage was introduced.
In April 2025, over 3 million workers are expected to receive a pay rise due to the increase to the National Minimum Wage and National Living Wage.
Parliamentary Under Secretary of State (Department for Business and Trade)
On 1 January the pro-competition regime for digital markets entered into force. The Competition and Markets Authority (CMA) will operate the regime, as the UK’s principal independent competition regulator.
The Government has designed and implemented the regime, which provides the CMA with powers to make effective interventions. These include powers to investigate and to impose remedies that are specifically designed for the markets and firms involved, as well as requirements to carry out in-depth investigations and consult relevant stakeholders before intervening. This tailored, participative and evidence-based approach will ensure that interventions are proportionate and effective.
Parliamentary Under Secretary of State (Department for Business and Trade)
The Government published a consultation on Copyright and AI in December 2024.
This consultation proposes a new regulatory model for text and data mining, and seeks views on creating an effective rights reservation system.
The implementation of any text and data mining exception is contingent upon having workable technical solutions in place for rights reservation. Some standards already exist and more are in development. If there is a role for Government to play, it is to ensure that standards work for right holders as well as developers, and to facilitate convergence on a manageable set of standards.
Parliamentary Under Secretary of State (Department for Science, Innovation and Technology)
The Government published a consultation on Copyright and AI in December 2024.
This consultation is seeking views on how to promote growth and investment in both the creative industries and AI sector - both of which are essential parts of the Government’s Industrial Strategy.
This will help the Government develop an approach which will accelerate growth in the UK for both sectors.
The consultation closes on 25 February.
Parliamentary Under Secretary of State (Department for Science, Innovation and Technology)
The Government published a consultation on Copyright and AI in December 2024.
This consultation is seeking views on a similar approach to the EU’s, which many AI firms and right holders are already familiar with. However, we recognise that there is more work to do on technical standards and transparency before a rights reservation model can be considered workable for right holders and AI developers alike. We will use responses to the consultation to inform work on this detail and bring forward firm proposals.
The consultation closes on 25 February
Parliamentary Under Secretary of State (Department for Science, Innovation and Technology)
The Government published a consultation on Copyright and AI in December 2024.
This consultation seeks views on a number of issues relating to copyright and AI. It sets a clear objective of achieving proportionate transparency from AI developers over the creative content that is used to train their models.
The consultation closes on 25 February.
Parliamentary Under Secretary of State (Department for Science, Innovation and Technology)
The Government published the consultation on Copyright and AI in December 2024.
Prior to its publication, the Government considered a range of approaches to clarify copyright law and meet its objectives for AI innovators and the creative industries. Further detail of the Government’s assessment of options can be found in the summary assessment (external link) published alongside the consultation.
The consultation closes on 25 February.
Parliamentary Under Secretary of State (Department for Science, Innovation and Technology)
DSIT is considering how Engineering Biology could play a role in driving sustainable growth through the Industrial Strategy, which will be published in Spring 2025 by HMT and DBT. Regional growth is a key objective of the Industrial Strategy, and DSIT will engage with a range of local authorities through that process to consider opportunities across the UK.
Parliamentary Under Secretary of State (Department for Science, Innovation and Technology)
Although DSIT acts as the ICO’s sponsor within government, it is an independent regulator and accountable to Parliament. It is not appropriate for Government to comment on how it exercises its regulatory duties.
The ICO publishes details of its enforcement activity and an annual report across its operations on its website.
The Data (Use and Access) Bill introduces a new governance structure for the ICO – including a new statutory board - to bring it into line with regulatory best practice. The Bill also introduces new reporting requirements on the ICO, including annual metrics on its investigations, their outcomes and use of its powers. This will bring greater transparency and accountability.
Minister of State (Department for Culture, Media and Sport)
When processing personal data organisations, including publishers, must comply with the UK General Data Protection Regulation and the Data Protection Act 2018. If publishers are providing online services, then they may also be required to comply with requirements of the Privacy and Electronic Communications Regulations 2003 (PECR). The Data (Use and Access) Bill introduces a new exception to PECR that would permit online publishers to use cookies and similar technologies to collect statistical data to enable them to improve their online services, subject to certain safeguards being met.
Minister of State (Department for Culture, Media and Sport)
The government is focused on implementing the Online Safety Act as quickly as possible, so children benefit from its wide-ranging protections. The Act will ensure that companies take steps to protect their child users from harm on their platforms, including protecting children with special educational needs and disabilities.
Ofcom has consulted on its draft codes of practice for protecting children which set out the steps companies must take to protect children on their platforms under the Online Safety Act. We expect the child safety codes will be finalised and in effect by summer 2025.
Parliamentary Under Secretary of State (Department for Science, Innovation and Technology)
The department conducted a call for evidence from 18 May to 20 July 2023 on ‘Improving support for children missing education’, to understand the sector’s current approach to identifying and supporting children missing education (CME). The department’s response was published in December 2024 and noted inconsistency in the application of the existing definition. We are cautious about adding further complication or making changes that would confuse clear obligations towards CME and children with SEND. The department therefore has no current plans to expand the definition of CME to include children with special educational needs and disabilities (SEND) not receiving adequate education.
The department recognises that barriers to attendance are wide and complex, and this is particularly true for pupils with SEND. Addressing these barriers requires a support-first approach and strong relationships between families, schools, local authorities and other relevant local services.
This is why the department has published the ’Working together to improve school attendance’ guidance, which became statutory in August 2024. The guidance promotes a 'support-first' approach and provides detail on additional support for pupils with SEND. Where a pupil is not attending due to unmet or additional needs, this guidance sets out clear expectations on how schools, local authorities and wider services work together to access and provide the right support to improve attendance.
The department is working closely with schools and local authorities to ensure that education settings are able to meet the needs of children and young people with SEND including announcing £1 billion investment in high needs at the Autumn Budget 2024, to help ensure all children can access the high quality education that should be their right.
Parliamentary Under-Secretary (Department for Education)
The department recognises that barriers to attendance are wide and complex, and this is particularly true for pupils with special educational needs and disabilities (SEND). Addressing these requires a support-first approach and strong relationships between families, schools, local authorities and other relevant local services.
The department has published the ’Working together to improve school attendance’ guidance, which is statutory for both schools and local authorities. The guidance promotes a 'support-first' approach and sets out attendance expectations for schools, local authorities and parents. The guidance also provides detail on additional support for pupils with SEND. Where a pupil is not attending due to unmet or additional needs, it requires schools, local authorities and wider services to work together to access and provide the right support to improve attendance.
For pupils registered at a special school, the School Attendance (Pupil Registration) (England) Regulations 2024 outline that schools must not delete the names of children from the school roll unless they receive approval from the local authority who made the initial arrangements for their education.
The department has also published statutory guidance for local authorities on children missing education (CME). This guidance sets out key principles to enable local authorities in England to implement their legal duty to identify CME, as far as it is possible to do so, and get them back into education. The guidance outlines that local authorities should consider the reasons why children go missing from education, and the circumstances that can lead to this happening, when developing policies and procedures. Moreover, the guidance highlights that schools do have a safeguarding duty in respect of their pupils, and as part of this, should investigate any unexplained absences.
Parliamentary Under-Secretary (Department for Education)
Information on the primary and secondary need of pupils in school with both an education, health and care (EHC) plan and who have special educational needs (SEN) support is collected via the school census.
The school census is a statutory return and collects information on school characteristics and pupil records three times a year. This includes information on the pupil’s SEN provision, whether they have an EHC plan or SEN support without an EHC plan and also what their primary and secondary need is.
This information is published each year as part of the statistical release ‘Special education needs in England’, which can be found here: https://explore-education-statistics.service.gov.uk/find-statistics/special-educational-needs-in-england/2023-24.
Information is also collected from local authorities for all EHC plans maintained by the local authority, including those educated other than at school. SEN2 is also a statutory return and includes information on: requests for assessment for an EHC plan made to each local authority and the outcome of that request, the assessments for an EHC plan made by each local authority, and the outcome of that assessment as well as information on the EHC plans maintained by the authority.
This includes information on the primary and secondary SEN need for each child and young person with an EHC plan. This individual level SEN2 collection was introduced in 2022 and the department is currently developing the publication to include primary needs in 2025.
Minister of State (Education)
The government has a central mission to break down barriers to opportunity and boost life chances for every child. The within-school and college factor that makes the biggest difference to a young person’s education is high-quality teaching, but this government inherited years of rising teacher vacancies and low recruitment resulting in shortages of qualified teachers across the country. This is why this government is committed to recruiting an additional 6,500 new expert teachers across our schools, both mainstream and specialist, and our colleges over the course of this parliament.
This government has already made good early progress towards this key pledge by ensuring teaching is once again an attractive and respected profession. We have accepted in full the School Teachers’ Review Body’s recommendation of a 5.5% pay award for teachers and leaders in maintained schools, which is effective from September. The department has expanded its school teacher recruitment campaign, ‘Every Lesson Shapes a Life’ and the further education teacher recruitment campaign ‘Share your Skills’. The government has also reformed the school inspection system to remove Ofsted’s single headline grades.
This government has recently announced the Initial Teacher Training financial incentives package for the 2025/26 recruitment cycle, which is worth up to £233 million, a £37 million increase on the last cycle. This includes a range of measures, including bursaries worth £29,000 tax-free and scholarships worth £31,000 tax-free, to encourage talented trainees into key subjects such as mathematics, physics, chemistry and computing.
This government wants to support retention alongside recruitment so that teachers stay and thrive in the profession. As of 14 October, eligible early career teachers in priority science, technology, engineering and mathematics (STEM) and technical subjects can claim targeted retention incentive payments worth up to £6,000 after tax, with payments made available to college teachers in key STEM and technical subjects for the first time.
In addition, the department is supporting teachers to improve their workload and wellbeing and have a made a range of resources available to support teachers including the ‘Improve workload and wellbeing for school staff’ service and the ‘education staff wellbeing charter’. The department is also working with schools to increase opportunities for greater flexible working, for example we have clarified that teachers can undertake their planning, preparation and assessment time remotely.
Minister of State (Education)
The department recognises the important role that kinship carers play in caring for some of the most vulnerable children and the role of local authorities to support them.
The government has recently announced a £40 million package to trial a new kinship allowance in up to ten local authorities to test whether paying an allowance to cover certain costs, such as covering day to day costs, supporting them to settle into a new home with relatives, or affording activities to support their wellbeing, can help increase the number of children taken in by family members and friends. This trial will help us make decisions about future national rollout.
The government recently published the updated guidance for local authorities, the kinship care statutory guidance. This guidance outlines the framework for the provision of support for kinship children and kinship families.
The government also appointed the first National Kinship Ambassador who will work alongside local authorities to help improve their kinship practice and local policies, and ensure they are following national guidance. As well as providing bespoke support to some local authority teams, they will share learning nationally so that more local authorities can benefit from evidence of best practice. In turn, this will help to improve outcomes for children and families.
Parliamentary Under-Secretary (Department for Education)
2 Department for Environment, Food and Rural Affairs Questions
(View all Jo Platt's Defra questions)Delivery of a Chemicals Strategy was a commitment set by the previous Government and is being considered as part of our rapid review of the Environmental Improvement Plan.
Parliamentary Under-Secretary (Department for Environment, Food and Rural Affairs)
The Wildlife and Countryside Act 1981 prohibits the setting of snares in England where they are likely to catch non-target species such as companion animals. Anyone using snares also has a responsibility under the Animal Welfare Act 2006 to ensure that their activities do not cause any unnecessary suffering. Defra is aware however that snares can capture a wide range of non-target species including companion animals such as pet cats and pet dogs. Many instances have been reported by the RSPCA for example.
The Government is to introduce the most ambitious programme for animal welfare in a generation and as outlined in our manifesto, we will bring an end to the use of snare traps. We are considering the most effective way to deliver this commitment and will be setting out next steps in due course.
Minister of State (Department for Environment, Food and Rural Affairs)
Unpaid carers play a vital role in supporting elderly or disabled relatives or friends. Sometimes unpaid carers will need to turn to the benefit system for financial support, so it is right that we keep Carer’s Allowance under review, to see if it is meeting its objectives, and giving unpaid carers the help and support they need and deserve.
Unpaid carers may be able to receive financial and/or employment support from the department depending on their circumstances. Carer’s Allowance provides a measure of financial support and recognition for people who are not able to work full time due to their caring responsibilities. The rate of Carer’s Allowance is £81.90 a week in 2024/25, and from April 2025 this will increase by 1.7% to £83.30 a week.
In addition to Carer’s Allowance, carers on low incomes can claim income-related benefits, such as Universal Credit and Pension Credit. These benefits can be paid to carers at a higher rate than those without caring responsibilities through the carer element and the additional amount for carers respectively. Currently, the Universal Credit carer element is £198.31 per monthly assessment period. The additional amount for a carer in Pension Credit is £45.60 a week. These additional amounts are worth around £2400 a year.
Minister of State (Department for Work and Pensions)
Local Authorities have the discretion to design their own local schemes within the parameters of the guidance and grant determination that the Department for Work and Pensions have set out for the fund. This is because they have the ties and the knowledge to best determine how support should be provided in their local communities. We encourage Local Authorities to consider how they may support a wide range of low-income households in need, including unpaid carers and other financially vulnerable households.
Management information, including details of how the fund has been spent on households with children, pensioners, disabled people, and other vulnerable households, including but not limited to only financially vulnerable households, is available here: Household Support Fund management information - GOV.UK.
The Department for Work and Pensions is currently conducting an evaluation of the Household Support Fund that ran from April 2023 to March 2024, to understand the benefits of the awards made across England during this period. This will be published in due course.
Minister of State (Department for Work and Pensions)
The Child Maintenance Service is committed to delivering the best possible service to all customers within our growing caseload. We continuously monitor telephony performance and through this we fully recognise that call waiting times are, at times, longer than we would like. To address this, we are working to improve the efficiency of our customer interactions through both telephone and digital channels.
In September, we introduced the Digital Assist Telephony Service, which has been a significant step forward in our mission to support and encourage customers to use our online services. In October, we restructured our call routing to make more caseworkers available to answer telephone calls. By promoting self-service options online and efficient call routing, we have freed up valuable resources to deliver a more responsive service and allow caseworkers more time to better assist customers who need to reach out to us via telephone.
Additionally, we have extended the hours of the telephony service to 6pm on weekdays in order to meet demand, and our online services are available to all customers 24/7. This has been extremely successful with just over 1 million customers logging on to their online My Child Maintenance Case account in November. As a result, we have seen a reduction in call volumes, as well as improved customer service delivery through the combination of telephone and digital channels.
We will continue to review, evaluate, and enhance our telephony service to meet demand and deliver a quality customer service.
Parliamentary Under-Secretary (Department for Work and Pensions)
Pathological Demand Avoidance (PDA) is most often understood as a characteristic of, or observed in, some autistic people, but professional consensus on its status is still required. PDA is not a recognised and stand-alone diagnosis within the Diagnostic and Statistical Manual of Mental Disorders or the International Classification of Disease.
It is the responsibility of integrated care boards (ICBs) to make available appropriate provision to meet the health and care needs of their local population, including assessment services for autistic people, in line with National Institute for Health and Care Excellence (NICE) guidelines.
The NICE guideline, Autism spectrum disorder in under 19s: recognition, referral and diagnosis, recommends that as part of autism assessments, healthcare workers should consider PDA, and carry out appropriate referrals.
Minister of State (Department of Health and Social Care)
Commissioning of post-COVID-19 services is the responsibility of local integrated care boards.
At a national level, NHS England is currently undertaking a stocktake, commissioned in September 2024 and due to complete at the end of this month, that will provide a more accurate, in-depth overview of the position of post-COVID-19 services throughout England.
The stocktake will inform NHS England’s strategic recommendations, with clear responsibilities and accountability across the organisation, supporting matrix working to ensure these challenges are met with improvements.
Parliamentary Under-Secretary (Department of Health and Social Care)
We know that vapes and other nicotine products are being deliberately branded and advertised to appeal to children. This must be stopped to protect future generations from being hooked on nicotine. The Tobacco and Vapes Bill has been introduced to Parliament, and bans vapes and nicotine products from being deliberately promoted and advertised to children to stop the next generation from becoming hooked on nicotine. The bill will ban all forms of advertising of vaping and other nicotine products, including in local vape shops, as well as sponsorship agreements which promote them.
We must also reduce the visibility and accessibility of vapes to protect children and non-smokers from getting hooked on nicotine. The Tobacco and Vapes Bill will provide powers to introduce future regulations on where and how vapes and other nicotine products can be displayed, including in the windows and inside local vape shops.
Parliamentary Under-Secretary (Department of Health and Social Care)
The Government is committed to ensuring that families have the support that they need. We want to ensure that people who care for family and friends are better able to look after their own health and wellbeing.
We have already taken action to support unpaid carers. From April 2025 we will increase the Carer's Allowance weekly earnings limit from £151 a week to £196, the equivalent of 16 hours at the National Living Wage. This means carers can earn up to £10,000 a year whilst still retaining Carer's Allowance, which is approximately an additional £2,000 a year.
Lord Darzi’s independent review of the National Health Service is clear that a fresh approach to supporting and involving unpaid carers is required to improve outcomes for carers, people needing care, and the NHS.
We are carefully considering these findings as part of our 10-year plan for reforming and modernising the NHS, and as we develop plans to reform adult social care, including through the National Care Service.
All unpaid carers can have their say on the future of the NHS to ensure their voice is heard by sharing their views at the following link:
Minister of State (Department of Health and Social Care)
To enable local authorities to support key services such as adult social care, the Government will make up to £3.7 billion of additional funding available for social care authorities in 2025/26, which includes an £880 million increase in the Social Care Grant.
The Government is also committed to ensuring that families have the support that they need. To support unpaid carers, from April 2025 the Government will increase the Carer's Allowance weekly earnings limit from £151 a week to £196. This means carers can earn up to £10,000 a year whilst still retaining Carer's Allowance, which is approximately an additional £2,000 a year.
Minister of State (Department of Health and Social Care)
No assessment has been made on the adequacy of the implementation of National Institute for Health and Care Excellence (NICE) guidance NG206 on myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). NICE guidelines are not mandatory, but the Government does expect healthcare commissioners to take the guidelines fully into account in designing services to meet the needs of their local population, and to work towards their implementation over time.
There are steps that the Government is taking to improve care for patients with ME/CFS. It is a priority for the Department to publish the final ME/CFS delivery plan. We cannot comment on the exact content of the final delivery plan at this time, but it will be shaped by the consultation responses, along with continued close engagement with stakeholders, with three broad themes of attitudes and education, research, and living with ME/CFS. We aim to publish it at the end of March 2025.
The Department is also currently working with NHS England to develop an e-learning course on ME/CFS for healthcare professionals, with the aim of supporting staff to be able to provide better care and improve patient outcomes.
Additionally, the Government funds research into ME/CFS through the National Institute for Health and Care Research (NIHR) and the Medical Research Council (MRC), through UK Research and Innovation. In 2020, the NIHR and the MRC came together to fund the world’s largest genome-wide association study of ME/CFS. This £3.2 million study, termed DecodeME, will analyse samples from 25,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or an increased risk of developing the condition. Further details of the study are available at the following link:
Parliamentary Under-Secretary (Department of Health and Social Care)
No assessment has been made on the adequacy of the implementation of National Institute for Health and Care Excellence (NICE) guidance NG206 on myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). NICE guidelines are not mandatory, but the Government does expect healthcare commissioners to take the guidelines fully into account in designing services to meet the needs of their local population, and to work towards their implementation over time.
There are steps that the Government is taking to improve care for patients with ME/CFS. It is a priority for the Department to publish the final ME/CFS delivery plan. We cannot comment on the exact content of the final delivery plan at this time, but it will be shaped by the consultation responses, along with continued close engagement with stakeholders, with three broad themes of attitudes and education, research, and living with ME/CFS. We aim to publish it at the end of March 2025.
The Department is also currently working with NHS England to develop an e-learning course on ME/CFS for healthcare professionals, with the aim of supporting staff to be able to provide better care and improve patient outcomes.
Additionally, the Government funds research into ME/CFS through the National Institute for Health and Care Research (NIHR) and the Medical Research Council (MRC), through UK Research and Innovation. In 2020, the NIHR and the MRC came together to fund the world’s largest genome-wide association study of ME/CFS. This £3.2 million study, termed DecodeME, will analyse samples from 25,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or an increased risk of developing the condition. Further details of the study are available at the following link:
Parliamentary Under-Secretary (Department of Health and Social Care)
The Department is currently considering next steps to improve diagnostic assessment and support for autistic people. It is the responsibility of integrated care boards (ICBs) to make available appropriate provision to meet the health and care needs of their local population, including autism assessment and support services, in line with National Institute for Health and Care Excellence guidelines.
On 5 April 2023, NHS England published a national framework and operational guidance to deliver improved outcomes in all-age autism assessment pathways. This guidance will help ICBs and the National Health Service to deliver improved outcomes for children, young people, and adults referred to an autism assessment service. The guidance also sets out what support should be available before an assessment, and what support should follow a recent diagnosis of autism based on the available evidence. In 2024/25, £4.3 million is available nationally to improve services for autistic children and young people, including autism assessment services.
Minister of State (Department of Health and Social Care)
On 17 July 2024, the King’s Speech set out the Government’s commitment to modernise the Mental Health Act. Department officials are now working to prepare the Mental Health Bill for introduction when parliamentary time allows.
As part of the Department’s preparations, plans are underway for stakeholder engagement once the bill is introduced. This will involve engaging with autism charities, including the National Autistic Society, on a range of related issues.
Minister of State (Department of Health and Social Care)
NHS England published updated policy and guidance on Dynamic Support Registers (DSRs) and Care (Education) and Treatment Reviews (C(E)TRs) on 25 January 2023, for implementation from 1 May 2023. The purpose of the updated policy and guidance is to help ensure that people with a learning disability and autistic people get the right support in their communities, and to prevent hospital admission.
NHS England produced the updated policy and guidance following a process of reviewing the learning since the inception of DSRs and C(E)TRs, including consultation and engagement with people with lived experience. This process included drawing on the findings of the Norfolk Safeguarding Adults Board’s review of the deaths of Joanna, Jon, and Ben at Cawston Park in Norfolk and the subsequent safe and wellbeing reviews for all people with a learning disability and autistic people in mental health hospitals, to ensure they are an effective provision.
Minister of State (Department of Health and Social Care)
The Department has been working hard with industry and NHS England to help resolve supply issues with some attention deficit hyperactivity disorder (ADHD) medicines, which are affecting the United Kingdom and other countries around the world. As a result of intensive work, some issues have been resolved and all strengths of lisdexamfetamine, atomoxetine capsules, and guanfacine prolonged-release tablets are now available.
We are continuing to work to resolve supply issues, where they remain, for methylphenidate prolonged-release tablets. Although no further roundtables have been held since April 2024, we have continued extensive engagement with all suppliers of methylphenidate prolonged-release tablets to assess the challenges faced and their actions to address them. We are also directing suppliers to secure additional stocks, expedite deliveries where possible, and review plans to further build capacity to support continued growth in demand for the short and long-term. We anticipate intermittent regional supply disruptions to continue, and we expect supply to improve in the UK from October 2024 onwards.
In parallel, the Department has worked with specialist clinicians, including those within the National Health Service, to develop management advice for NHS clinicians to consider prescribing available alternative brands of methylphenidate prolonged release tablets or available alternative ADHD medicines. We would expect ADHD service providers and specialists to follow our guidance, which includes offering rapid response to primary care teams seeking urgent advice or opinions for the management of patients, including those known to be at a higher risk of adverse impact because of these shortages.
To aid ADHD service providers and prescribers further we have widely disseminated our communications and continually update a list of currently available and unavailable ADHD products on the Specialist Pharmacy Service website, helping ensure that those involved in the prescribing and dispensing of ADHD medications can make informed decisions with patients.
Minister of State (Department of Health and Social Care)
The Department monitors and manages medicine supply at a national level so that stocks remain available to meet regional and local demand. Information is not collected on a local level.
The Department has been working hard with industry and NHS England to help resolve supply issues with some attention deficit hyperactivity disorder (ADHD) medicines, which are affecting the United Kingdom and other countries around the world. As a result of intensive work, some issues have been resolved and all strengths of lisdexamfetamine, atomoxetine capsules, and guanfacine prolonged-release tablets are now available.
We are continuing to work to resolve supply issues where they remain, for methylphenidate prolonged-release tablets. We are engaging with all suppliers of methylphenidate prolonged-release tablets to assess the challenges faced and their actions to address them. We are also directing suppliers to secure additional stocks, expedite deliveries where possible, and review plans to further build capacity to support continued growth in demand for the short and long-term. We anticipate intermittent regional supply disruptions to continue, and we expect supply to improve in the UK from October 2024.
In parallel, the Department has worked with specialist clinicians, including those within the National Health Service, to develop management advice for NHS clinicians to consider prescribing available alternative brands of methylphenidate prolonged release tablets or available alternative ADHD medicines. We would expect ADHD service providers and specialists to follow our guidance, which includes offering rapid response to primary care teams seeking urgent advice or opinion for the management of patients, including those known to be at a higher risk of adverse impact because of these shortages.
To aid ADHD service providers and prescribers further we have widely disseminated our communications, and continually update a list of currently available and unavailable ADHD products on the Specialist Pharmacy Service website, helping ensure that those involved in the prescribing and dispensing of ADHD medications can make informed decisions with patients.
Minister of State (Department of Health and Social Care)
The Department monitors and manages medicine supply at a national level so that stocks remain available to meet regional and local demand. Information is not collected on a local level.
The Department has been working hard with industry and NHS England to help resolve supply issues with some attention deficit hyperactivity disorder (ADHD) medicines, which are affecting the United Kingdom and other countries around the world. As a result of intensive work, some issues have been resolved and all strengths of lisdexamfetamine, atomoxetine capsules, and guanfacine prolonged-release tablets are now available.
We are continuing to work to resolve supply issues where they remain, for methylphenidate prolonged-release tablets. We are engaging with all suppliers of methylphenidate prolonged-release tablets to assess the challenges faced and their actions to address them. We are also directing suppliers to secure additional stocks, expedite deliveries where possible, and review plans to further build capacity to support continued growth in demand for the short and long-term. We anticipate intermittent regional supply disruptions to continue, and we expect supply to improve in the UK from October 2024.
In parallel, the Department has worked with specialist clinicians, including those within the National Health Service, to develop management advice for NHS clinicians to consider prescribing available alternative brands of methylphenidate prolonged release tablets or available alternative ADHD medicines. We would expect ADHD service providers and specialists to follow our guidance, which includes offering rapid response to primary care teams seeking urgent advice or opinion for the management of patients, including those known to be at a higher risk of adverse impact because of these shortages.
To aid ADHD service providers and prescribers further we have widely disseminated our communications, and continually update a list of currently available and unavailable ADHD products on the Specialist Pharmacy Service website, helping ensure that those involved in the prescribing and dispensing of ADHD medications can make informed decisions with patients.
Minister of State (Department of Health and Social Care)
The Department monitors and manages medicine supply at a national level so that stocks remain available to meet regional and local demand. Information is not collected on a local level.
The Department has been working hard with industry and NHS England to help resolve supply issues with some attention deficit hyperactivity disorder (ADHD) medicines, which are affecting the United Kingdom and other countries around the world. As a result of intensive work, some issues have been resolved and all strengths of lisdexamfetamine, atomoxetine capsules, and guanfacine prolonged-release tablets are now available.
We are continuing to work to resolve supply issues where they remain, for methylphenidate prolonged-release tablets. We are engaging with all suppliers of methylphenidate prolonged-release tablets to assess the challenges faced and their actions to address them. We are also directing suppliers to secure additional stocks, expedite deliveries where possible, and review plans to further build capacity to support continued growth in demand for the short and long-term. We anticipate intermittent regional supply disruptions to continue, and we expect supply to improve in the UK from October 2024.
In parallel, the Department has worked with specialist clinicians, including those within the National Health Service, to develop management advice for NHS clinicians to consider prescribing available alternative brands of methylphenidate prolonged release tablets or available alternative ADHD medicines. We would expect ADHD service providers and specialists to follow our guidance, which includes offering rapid response to primary care teams seeking urgent advice or opinion for the management of patients, including those known to be at a higher risk of adverse impact because of these shortages.
To aid ADHD service providers and prescribers further we have widely disseminated our communications, and continually update a list of currently available and unavailable ADHD products on the Specialist Pharmacy Service website, helping ensure that those involved in the prescribing and dispensing of ADHD medications can make informed decisions with patients.
Minister of State (Department of Health and Social Care)