22q11 Syndrome APPG

First Registered: 30/07/2015 • Last updated on: 15/06/2022

To increase recognition and understanding of the Syndrome across policy makers and the medical profession. Eventually aiming for, once diagnosed, life-long health strategy for sufferers.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
View Official Register Entry


Reticulating Splines
APPG Supplied Content

APPGs can register with Parallel Parliament and submit files and articles to be placed here.

Parallel Parliament offers the facility for APPGs to submit written content and files, which are made available through this page.

Submitters can draft and edit publications, and either release them on demand, or schedule release for a future date.

Both text content and attached files submitted through this facility is indexed by our website, and made available through both the search function and relevant e-mail alerts. Any of our users registered for an alert which matches your content, will receive a link making them aware of its publication.

If you wish to register as an authorised representative of the 22q11 Syndrome APPG and use this facility, click below

5 Current APPG Officers
Suzanne Webb Portrait
Suzanne Webb
Chair & Registered Contact
Conservative - Stourbridge
Joined: 24th February 2020
Lord Farmer Portrait
Lord Farmer
Officer
Conservative - Life peer
Joined: 24th February 2020
Contact Details

Registered Contact:

Suzanne Webb MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 3000.

Email: suzanne.webb.mp@parliament.uk

Public Enquiry Point:

Julie Wootton, Max Appeal 15 Meriden Avenue, Stourbridge, West Midlands DY8 4QN. Tel: 0300 999 2211

Email: julie@maxappeal.org.uk

Secretariat:

Max Appeal acts as the group's secretariat. http://www.maxappeal.org.uk/

Group's Website:

http://maxappeal.org.uk/awareness/appg_-_all_party_parliamentary_group

Date
15 Jan 2022
Source
Max Appeal
Description
Secretariat   From : 15/01/2022 To : 14/01/2023
Value
£1,501
Date
15 Jan 2021
Source
Max Appeal
Description
Secretariat   From : 15/01/2021 To : 14/01/2022
Value
£1,501
Date
15 Jan 2020
Source
Max Appeal
Description
Secretariat   From : 15/01/2020 To : 14/01/2021
Value
£1,501
Date
13 Sep 2018
Source
Max Appeal
Description
Secretariat   From : 13/09/2018 To : 12/09/2019
Value
£1,501
Date
13 Sep 2017
Source
Max Appeal
Description
Secretariat   From : 13/09/2017 To : 12/09/2018
Value
£1,501
Date
23 Jun 2016
Source
Max Appeal
Description
Secretariat   From : 23/06/2016 To : 22/06/2017
Value
£12,001
Date
23 Jun 2015
Source
Max Appeal
Description
Secretariat   From : 23/06/2015 To : 22/06/2016
Value
£1,501

No direct financial benefits are on record for the 22q11 Syndrome APPG

Former APPG Officers
Lisa Cameron Portrait
Lisa Cameron
Officer
Scottish National Party - East Kilbride, Strathaven and Lesmahagow
Joined: 24th February 2020
Departed: 4th May 2022
Craig Tracey Portrait
Craig Tracey
Officer
Conservative - North Warwickshire
Joined: 24th February 2020
Departed: 4th May 2022
Baroness Eaton Portrait
Baroness Eaton
Officer
Conservative - Life peer
Joined: 24th February 2020
Departed: 4th May 2022
None Portrait
Jack Dromey
Officer
Joined: 2nd June 2021
Departed: 29th December 2021
Heidi Allen Portrait
Heidi Allen
Secretary
Liberal Democrat - Former Member for South Cambridgeshire
Joined: 28th September 2017
Departed: 5th November 2019
No other APPG Memberships
Melanie Onn Portrait
Melanie Onn
Vice Chair
Labour - Former Member for Great Grimsby
Joined: 28th September 2017
Departed: 5th November 2019
No other APPG Memberships
Andrea Jenkyns Portrait
Andrea Jenkyns
Vice Chair
Conservative - Morley and Outwood
Joined: 24th November 2016
Departed: 2nd May 2017
No other APPG Memberships
Alistair Burt Portrait
Alistair Burt
Vice Chair
Conservative - Former Member for North East Bedfordshire
Joined: 24th November 2016
Departed: 2nd May 2017
No other APPG Memberships
Baroness Stuart of Edgbaston Portrait
Baroness Stuart of Edgbaston
Officer
Crossbench - Life peer
Joined: 24th November 2016
Departed: 2nd May 2017
1 APPG Membership
Wilton Park
Lindsay Hoyle Portrait
Lindsay Hoyle
President
Speaker - Chorley
Joined: 30th July 2015
Departed: 12th October 2016
2 APPG Memberships
Gibraltar , Rugby League
Robert Neill Portrait
Robert Neill
Secretary
Conservative - Bromley and Chislehurst
Joined: 30th July 2015
Departed: 12th October 2016
Baroness Butler-Sloss Portrait
Baroness Butler-Sloss
Vice Chair
Crossbench - Life peer
Joined: 30th July 2015
Departed: 12th October 2016
Lord Chidgey Portrait
Lord Chidgey
Vice Chair
Liberal Democrat - Life peer
Joined: 30th July 2015
Departed: 12th October 2016
No other APPG Memberships
David Crausby Portrait
David Crausby
Vice Chair
Labour - Former Member for Bolton North East
Joined: 30th July 2015
Departed: 12th October 2016
No other APPG Memberships
Lord Hoyle Portrait
Lord Hoyle
Treasurer
Labour - Life peer
Joined: 30th July 2015
Departed: 12th October 2016
1 APPG Membership
Gibraltar