22q11 Syndrome APPG

First Registered: 30/07/2015 • Last updated on: 30/05/2024

Note: This APPG was last registered on 30th May 2024. The APPG was not registered in the latest release of the 7th May 2025 and may be defunct. Perhaps you are looking for the Down Syndrome APPG?

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To increase recognition and understanding of the Syndrome across policy makers and the medical profession. Eventually aiming for, once diagnosed, life-long health strategy for sufferers.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
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Former Officers - Contact Details - Benefits in Kind - Financial Benefits
Reticulating Splines
Former APPG Officers
Baroness Eaton Portrait
Baroness Eaton
Officer
Conservative - Life peer
Joined: 24th February 2020
Departed: 30th May 2024
2 APPG Officer Positions
Men and Boys' Issues , Pro-Life

No other APPG Memberships

Lord Farmer Portrait
Lord Farmer
Officer
Conservative - Life peer
Joined: 24th February 2020
Departed: 30th May 2024
2 APPG Officer Positions
Family Hubs , Men and Boys' Issues

No other APPG Memberships

Alex Sobel Portrait
Alex Sobel
Officer
Labour (Co-op) - Leeds Central and Headingley
Joined: 24th February 2020
Departed: 30th May 2024
6 APPG Officer Positions
Fair Elections , Music , Net Zero , Students , Ukraine , West Papua

No other APPG Memberships

David Duguid Portrait
David Duguid
Chair & Registered Contact
Conservative - Former Member for Banff and Buchan
Joined: 28th September 2017
Departed: 30th May 2024
No other APPG Officer Positions

No other APPG Memberships

Jack Lopresti Portrait
Jack Lopresti
Officer
Conservative - Former Member for Filton and Bradley Stoke
Joined: 30th July 2015
Departed: 24th January 2024
No other APPG Officer Positions

No other APPG Memberships

Suzanne Webb Portrait
Suzanne Webb
Chair & Registered Contact
Conservative - Former Member for Stourbridge
Joined: 24th February 2020
Departed: 5th April 2023
No other APPG Officer Positions

No other APPG Memberships

Craig Tracey Portrait
Craig Tracey
Officer
Conservative - Former Member for North Warwickshire
Joined: 24th February 2020
Departed: 4th May 2022
No other APPG Officer Positions

No other APPG Memberships

Robert Goodwill Portrait
Robert Goodwill
Officer
Conservative - Former Member for Scarborough and Whitby
Joined: 9th February 2022
Departed: 4th May 2022
No other APPG Officer Positions

No other APPG Memberships

Lisa Cameron Portrait
Lisa Cameron
Officer
Conservative - Former Member for East Kilbride, Strathaven and Lesmahagow
Joined: 24th February 2020
Departed: 4th May 2022
No other APPG Officer Positions

No other APPG Memberships

None Portrait
Jack Dromey
Officer
 Joined: 2nd June 2021
Departed: 29th December 2021
No other APPG Officer Positions

No other APPG Memberships

Robert Goodwill Portrait
Robert Goodwill
Officer
Conservative - Former Member for Scarborough and Whitby
Joined: 24th February 2020
Departed: 29th December 2021
No other APPG Officer Positions

No other APPG Memberships

Heidi Allen Portrait
Heidi Allen
Secretary
Liberal Democrat - Former Member for South Cambridgeshire
Joined: 28th September 2017
Departed: 5th November 2019
No other APPG Officer Positions

No other APPG Memberships

Melanie Onn Portrait
Melanie Onn
Vice Chair
Labour - Great Grimsby and Cleethorpes
Joined: 28th September 2017
Departed: 5th November 2019
2 APPG Officer Positions
Fisheries , Kinship Care

No other APPG Memberships

Angus Brendan MacNeil Portrait
Angus Brendan MacNeil
Vice Chair
Independent - Former Member for Na h-Eileanan an Iar
Joined: 30th July 2015
Departed: 10th October 2018
No other APPG Officer Positions

No other APPG Memberships

Baroness Stuart of Edgbaston Portrait
Baroness Stuart of Edgbaston
Officer
Crossbench - Life peer
Joined: 24th November 2016
Departed: 2nd May 2017
No other APPG Officer Positions

No other APPG Memberships

Alistair Burt Portrait
Alistair Burt
Vice Chair
Conservative - Former Member for North East Bedfordshire
Joined: 24th November 2016
Departed: 2nd May 2017
No other APPG Officer Positions

No other APPG Memberships

Andrea Jenkyns Portrait
Andrea Jenkyns
Vice Chair
Conservative - Former Member for Morley and Outwood
Joined: 24th November 2016
Departed: 2nd May 2017
No other APPG Officer Positions

No other APPG Memberships

Lindsay Hoyle Portrait
Lindsay Hoyle
President
Speaker - Chorley
Joined: 30th July 2015
Departed: 12th October 2016
No other APPG Officer Positions

No other APPG Memberships

Lord Hoyle Portrait
Lord Hoyle
Treasurer
Labour - Life peer
Joined: 30th July 2015
Departed: 12th October 2016
No other APPG Officer Positions

No other APPG Memberships

Andrew Rosindell Portrait
Andrew Rosindell
Vice Chair
Conservative - Romford
Joined: 30th July 2015
Departed: 12th October 2016
6 APPG Officer Positions
Australia and New Zealand (ANZAC) and the Pacific Islands , British Heritage , Commonwealth , Crown Dependencies and British Overseas Territories , San Marino , Switzerland and Liechtenstein

No other APPG Memberships

Ian Paisley Portrait
Ian Paisley
Vice Chair
Democratic Unionist Party - Former Member for North Antrim
Joined: 30th July 2015
Departed: 12th October 2016
No other APPG Officer Positions

No other APPG Memberships

David Crausby Portrait
David Crausby
Vice Chair
Labour - Former Member for Bolton North East
Joined: 30th July 2015
Departed: 12th October 2016
No other APPG Officer Positions

No other APPG Memberships

Lord Chidgey Portrait
Lord Chidgey
Vice Chair
Liberal Democrat - Life peer
Joined: 30th July 2015
Departed: 12th October 2016
No other APPG Officer Positions

No other APPG Memberships

Baroness Butler-Sloss Portrait
Baroness Butler-Sloss
Vice Chair
Crossbench - Life peer
Joined: 30th July 2015
Departed: 12th October 2016
1 APPG Officer Position
Human Trafficking and Modern Slavery

No other APPG Memberships

Robert Neill Portrait
Robert Neill
Secretary
Conservative - Former Member for Bromley and Chislehurst
Joined: 30th July 2015
Departed: 12th October 2016
No other APPG Officer Positions

No other APPG Memberships

Contact Details

Registered Contact:

David Duguid MP,

Email: No email supplied

Public Enquiry Point:

Julie Wootton, Max Appeal 15 Meriden Avenue, Stourbridge, West Midlands DY8 4QN. Tel: 0300 999 2211

Email: julie@maxappeal.org.uk

Secretariat:

Max Appeal acts as the group's secretariat. http://www.maxappeal.org.uk/

Group's Website:

http://maxappeal.org.uk/awareness/appg_-_all_party_parliamentary_group

Benefits in Kind
Date
15 Jan 2022
Source
Max Appeal
Description
Secretariat   From : 15/01/2022 To : 14/01/2023
Value
£1,501
Date
15 Jan 2021
Source
Max Appeal
Description
Secretariat   From : 15/01/2021 To : 14/01/2022
Value
£1,501
Date
15 Jan 2020
Source
Max Appeal
Description
Secretariat   From : 15/01/2020 To : 14/01/2021
Value
£1,501
Date
13 Sep 2018
Source
Max Appeal
Description
Secretariat   From : 13/09/2018 To : 12/09/2019
Value
£1,501
Date
13 Sep 2017
Source
Max Appeal
Description
Secretariat   From : 13/09/2017 To : 12/09/2018
Value
£1,501
Date
23 Jun 2016
Source
Max Appeal
Description
Secretariat   From : 23/06/2016 To : 22/06/2017
Value
£12,001
Date
23 Jun 2015
Source
Max Appeal
Description
Secretariat   From : 23/06/2015 To : 22/06/2016
Value
£1,501
Financial Benefits Received
Date
9 Jan 2024
Source
Natera
Value
£11,858