Motor Neurone Disease APPG

First Registered: 30/07/2015 • Last updated on: 06/10/2021

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To raise awareness of Motor Neurone Disease (MND) and to provide a forum for discussion of the issues facing people with MND and their families.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.


This content was generated for your convenience by Parallel Parliament and does not form part of the official record.
Recent Documents related to Motor Neurone Disease

1. Spennylympics event 2021
22/07/2021 - Early Day Motions

Found: that the Spennylympics are doing with the Motor Neurone Disease Association (MNDA) in memory of Stuart’s

2. Have Kevin Sinfield MBE and Rob Burrow recognised in the New Year Honours list
06/12/2020 - Petitions

Found: their charity work to raise awareness for Motor Neurone Disease (MND)

3. Issue Blue Badges, for degenerative disease, with open end date
01/07/2021 - Petitions

Found: conditions ie: Multiple Sclerosis, Parkinson’s, Motor Neurone Disease, Muscular Dystrophy to name just a few,

4. UK Government Financial benefits scheme for Motor Neurone Disease Suffers (MND).
07/09/2021 - Petitions

Found: Government Financial Support program for Motor Neurone Disease Suffers (MND). A financial benefit scheme

5. Increase funding for urgent research into devastating motor neurone disease
21/12/2020 - Petitions

Found: increase targeted research funding for motor neurone disease (MND). A new investment of £50m over

Latest Documents
Recent Speeches related to Motor Neurone Disease

1. Motor Neurone Disease (Research)
12/07/2021 - Westminster Hall

1: to research into motor neurone disease.Motor neurone disease is a rare disease that is sadly all - Speech Link

2. Welfare (Terminal Illness)
22/07/2020 - Commons Chamber

1: consequences of terminal illnesses such as motor neurone disease, terminal cancers, advanced lung and heart - Speech Link

3. ESA: People with Motor Neurone Disease
11/07/2018 - Westminster Hall

1: employment support allowance for people with motor neurone disease.It is a great pleasure to serve under - Speech Link
2: systems just are not suitable for people with motor neurone disease. Will he join me in congratulating those - Speech Link
3: local voice is absolutely crucial.Motor neurone disease is the umbrella term for several neurodegenerative - Speech Link

4. Access to Welfare (Terminal Illness Definition)
18/07/2018 - Commons Chamber

1: on motor neurone disease. My husband, my brother-in-law and my mother-in-law all died from motor neurone - Speech Link

5. Terminal Illnesses: Continuing Healthcare
13/06/2018 - Westminster Hall

1: for the all-party parliamentary group on motor neurone disease, in which I have worked closely with the - Speech Link
2: in action, I ask them to go along to a Motor Neurone Disease Association meeting. What strikes me is - Speech Link
3: on the all-party parliamentary group on motor neurone disease. I also pay tribute, like him, not only - Speech Link

Latest Speeches
Recent Questions related to Motor Neurone Disease
1. Motor Neurone Disease
asked by: Henry Smith
27/05/2021
... what steps his Department is taking to support targeted research on motor neurone disease.

2. Motor Neurone Disease
asked by: Kerry McCarthy
05/07/2021
... what discussions he has had with the Chancellor of the Exchequer on the future funding of motor neurone disease (a) research and (b) treatment ahead of the 2021 Spending Review.

3. Motor Neurone Disease
asked by: Kerry McCarthy
28/06/2021
... whether he plans to increase funding for motor neurone disease research and treatment over the next five years.

4. Motor Neurone Disease
asked by: Gregory Campbell
20/02/2019
... when the next planned review date is for the assessment and management of motor neurone disease.

5. Motor Neurone Disease
asked by: Lord Austin of Dudley
02/07/2018
... what recent assessment he has made of the adequacy of funding available for research into motor neurone disease research.

Latest Questions
APPG Supplied Content

APPGs can register with Parallel Parliament and submit files and articles to be placed here.

Parallel Parliament offers the facility for APPGs to submit written content and files, which are made available through this page.

Submitters can draft and edit publications, and either release them on demand, or schedule release for a future date.

Both text content and attached files submitted through this facility is indexed by our website, and made available through both the search function and relevant e-mail alerts. Any of our users registered for an alert which matches your content, will receive a link making them aware of its publication.

If you wish to register as an authorised representative of the Motor Neurone Disease APPG and use this facility, click below

9 Current APPG Officers
Brendan Clarke-Smith Portrait
Brendan Clarke-Smith
Vice Chair
Conservative - Bassetlaw
Joined: 20th May 2020
Contact Details

Registered Contact:

Andrew Lewer MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 3870.

Email: andrew.lewer.mp@parliament.uk

Public Enquiry Point:

Lana Ghafoor, Motor Neurone Disease Association, Francis Crick House, 6 Summerhouse Road, Moulton Park, Norhtampton NN3 6BJ. Tel: 0203 875 8911

Email: lana.ghafoor@mndassociation.org

Secretariat:

Motor Neurone Disease Association acts as the group's secretariat. https://www.mndassociation.org/

Group's Website:

https://www.mndassociation.org/get-involved/campaigning-influencing/all-party-parliamentary-group-appg-on-mnd/

Benefits in Kind
Date
12 Feb 2021
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2021 To : 11/02/2022
Value
£1,501
Date
12 Feb 2020
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2020 To : 12/02/2021
Value
£1,501
Date
12 Jul 2019
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2019 To : 11/07/2020
Value
£1,501
Date
12 Jul 2018
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2018 To : 11/07/2019
Value
£1,501
Date
17 Oct 2017
Source
MND Association
Description
Design and printing of a report
Value
£3,001
Date
17 Oct 2017
Source
MND Association
Description
Reception
Value
£1,501
Date
12 Jul 2017
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2017 To : 11/07/2018
Value
£1,501

No direct financial benefits are on record for the Motor Neurone Disease APPG

Former APPG Officers
Madeleine Moon Portrait
Madeleine Moon
Chair & Registered Contact
Labour - Former Member for Bridgend
Joined: 30th July 2015
Departed: 5th November 2019
No other APPG Memberships
Paul Blomfield Portrait
Paul Blomfield
Vice Chair
Labour - Sheffield Central
Joined: 30th July 2015
Departed: 18th July 2018
James Gray Portrait
James Gray
Treasurer
Conservative - North Wiltshire
Joined: 30th July 2015
Departed: 3rd June 2016
Karl McCartney Portrait
Karl McCartney
Secretary
Conservative - Lincoln
Joined: 30th July 2015
Departed: 3rd June 2016