Motor Neurone Disease APPG

First Registered: 30/07/2015 • Last updated on: 21/04/2021

Official Page
Twitter

To raise awareness of Motor Neurone Disease (MND) and to provide a forum for discussion of the issues facing people with MND and their families.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.


This content was generated for your convenience by Parallel Parliament and does not form part of the official record.
Recent Documents related to Motor Neurone Disease

1. Increase funding for urgent research into devastating motor neurone disease
21/12/2020 - Petitions

Found: increase targeted research funding for motor neurone disease (MND). A new investment of £50m over

2. Neurodegenerative disease in professional sportspersons
10/03/2020 - Industrial Injuries Advisory Council (IIAC)
- View source

Found: func tion, Alzheimer™s disease, Parkinson™s disease and motor neurone disease. The Council is seeking

3. Madeleine Moon MP - written evidence
17/01/2018 - Inquiry: PIP and ESA Assessments - Work and Pensions Committee
- View source

Found: Independence Payment (PIP)for people with motor neurone disease (MND). The All-Party Parliamentary Group

4. FERNANDO RICKSEN
25/09/2019 - Early Day Motions

Found: life shortening nerve and brain illness Motor Neurone Disease; recognises his huge contribution to football

5. MOTOR NEURONE DISEASE AWARENESS WEEK 2018
19/06/2018 - Early Day Motions

Found: Support Group, for supporting those with motor neurone disease (MND) and their families; and supports MND

Latest Documents
Recent Speeches related to Motor Neurone Disease

1. Welfare (Terminal Illness)
22/07/2020 - Commons Chamber

1: consequences of terminal illnesses such as motor neurone disease, terminal cancers, advanced lung and heart - Speech Link

2. ESA: People with Motor Neurone Disease
11/07/2018 - Westminster Hall

1: employment support allowance for people with motor neurone disease.It is a great pleasure to serve under - Speech Link
2: systems just are not suitable for people with motor neurone disease. Will he join me in congratulating those - Speech Link
3: local voice is absolutely crucial.Motor neurone disease is the umbrella term for several neurodegenerative - Speech Link

3. Access to Welfare (Terminal Illness Definition)
18/07/2018 - Commons Chamber

1: on motor neurone disease. My husband, my brother-in-law and my mother-in-law all died from motor neurone - Speech Link

4. Terminal Illnesses: Continuing Healthcare
13/06/2018 - Westminster Hall

1: for the all-party parliamentary group on motor neurone disease, in which I have worked closely with the - Speech Link
2: in action, I ask them to go along to a Motor Neurone Disease Association meeting. What strikes me is - Speech Link
3: on the all-party parliamentary group on motor neurone disease. I also pay tribute, like him, not only - Speech Link

5. Covid-19: Vaccination Prioritisation
25/11/2020 - Lords Chamber

1: with the noble Baroness, Lady Campbell. Motor neurone disease is an example of a fatal illness with a - Speech Link
2: improve population health by reducing serious disease and to protect the NHS and the social care system - Speech Link

Latest Speeches
Recent Questions related to Motor Neurone Disease
1. Motor Neurone Disease
asked by: Gregory Campbell
20/02/2019
... when the next planned review date is for the assessment and management of motor neurone disease.

2. Motor Neurone Disease
asked by: Lord Austin of Dudley
02/07/2018
... what recent assessment he has made of the adequacy of funding available for research into motor neurone disease research.

3. Motor Neurone Disease
asked by: Tom Brake
19/04/2018
... which projects received that £52 million investment; and which 24 clinical trials are being recruited to.

4. Motor Neurone Disease: Research
asked by: Jessica Morden
14/01/2021
... if he will name the projects that received funding in 2019-20 from the (a) Medical Research Council and (b) National Institute for Health Research.

5. Motor Neurone Disease: Research
asked by: Jessica Morden
11/01/2021
... which Motor Neurone Disease-related projects were funded by the (a) Medical Research Council and (b) National Institute for Health Research in (i) 2018-19 and (ii) 2019-20.

Latest Questions
8 Current APPG Officers
Brendan Clarke-Smith Portrait
Brendan Clarke-Smith
Vice Chair
Conservative - Bassetlaw
Joined: 20th May 2020
Mark Tami Portrait
Mark Tami
Vice Chair
Labour - Alyn and Deeside
Joined: 20th May 2020
Contact Details

Registered Contact:

Andrew Lewer MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 3870.

Email: andrew.lewer.mp@parliament.uk

Public Enquiry Point:

Alison Railton, Motor Neurone Disease Association, Francis Crick House, 6 Summerhouse Road, Moulton Park, Norhtampton NN3 6BJ. Tel: 07760 788 611

Email: alison.railton@mndassociation.org

Secretariat:

Motor Neurone Disease Association acts as the group's secretariat. https://www.mndassociation.org/

Group's Website:

https://www.mndassociation.org/get-involved/campaigning-influencing/all-party-parliamentary-group-appg-on-mnd/

Benefits in Kind
Date
12 Feb 2021
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2021 To : 11/02/2022
Value
£1,501
Date
12 Feb 2020
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2020 To : 12/02/2021
Value
£1,501
Date
12 Jul 2019
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2019 To : 11/07/2020
Value
£1,501
Date
12 Jul 2018
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2018 To : 11/07/2019
Value
£1,501
Date
17 Oct 2017
Source
MND Association
Description
Design and printing of a report
Value
£3,001
Date
17 Oct 2017
Source
MND Association
Description
Reception
Value
£1,501
Date
12 Jul 2017
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2017 To : 11/07/2018
Value
£1,501

No direct financial benefits are on record for the Motor Neurone Disease APPG

Former APPG Officers
Madeleine Moon Portrait
Madeleine Moon
Chair & Registered Contact
Labour - Former Member for Bridgend
Joined: 30th July 2015
Departed: 5th November 2019
No other APPG Memberships
Mary Robinson Portrait
Mary Robinson
Vice Chair
Conservative - Cheadle
Joined: 21st July 2016
Departed: 18th July 2018
Paul Blomfield Portrait
Paul Blomfield
Vice Chair
Labour - Sheffield Central
Joined: 30th July 2015
Departed: 18th July 2018
James Gray Portrait
James Gray
Treasurer
Conservative - North Wiltshire
Joined: 30th July 2015
Departed: 3rd June 2016
5 APPG Memberships
Armed Forces , Armenia , Chile , Polar Regions , Polo
Karl McCartney Portrait
Karl McCartney
Secretary
Conservative - Lincoln
Joined: 30th July 2015
Departed: 3rd June 2016