Motor Neurone Disease APPG

First Registered: 30/07/2015 • Last updated on: 02/01/2025

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To increase awareness and understanding of motor neurone disease (MND) amongst parliamentarians, to provide a forum for discussion of the challenges facing people living with and affected by MND and to campaign for better access to high quality services for people affected by MND..

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
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Current Members - Contact Details - Benefits in Kind - Financial Benefits - Former Members
Reticulating Splines
APPG Supplied Content

APPGs can register with Parallel Parliament and submit files and articles to be placed here.

Parallel Parliament offers the facility for APPGs to submit written content and files, which are made available through this page.

Submitters can draft and edit publications, and either release them on demand, or schedule release for a future date.

Both text content and attached files submitted through this facility is indexed by our website, and made available through both the search function and relevant e-mail alerts. Any of our users registered for an alert which matches your content, will receive a link making them aware of its publication.

If you wish to register as an authorised representative of the Motor Neurone Disease APPG and use this facility, click below

4 Current APPG Officers
Ian Byrne Portrait
Ian Byrne
Chair & Registered Contact
Independent - Liverpool West Derby
Joined: 17th May 2023
1 APPG Membership
Holy See
Michael Payne Portrait
Michael Payne
Vice Chair
Labour - Gedling
Joined: 2nd January 2025
1 APPG Membership
HIV, AIDS and Sexual Health
Olly Glover Portrait
Olly Glover
Vice Chair
Liberal Democrat - Didcot and Wantage
Joined: 2nd January 2025
1 APPG Membership
Cycling and Walking
Aphra Brandreth Portrait
Aphra Brandreth
Vice Chair
Conservative - Chester South and Eddisbury
Joined: 2nd January 2025
1 APPG Membership
Women and Enterprise
Contact Details

Registered Contact:

Ian Byrne MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 3000.

Email: ian.byrne.mp@parliament.uk

Public Enquiry Point:

Sian Guest, Motor Neurone Disease Association. Tel: 02922 404709

Email: mndappg@mndassociation.org

Secretariat:

Motor Neurone Disease Association acts as the group's secretariat. https://www.mndassociation.org/

Group's Website:

https://www.mndassociation.org/get-involved/campaigning/all-party-parliamentary-group-appg-on-mnd

Benefits in Kind
Date
12 Feb 2023
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2023 To : 11/02/2024
Value
£1,501
Date
12 Feb 2022
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2022 To : 11/02/2023
Value
£1,501
Date
12 Feb 2021
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2021 To : 11/02/2022
Value
£1,501
Date
12 Feb 2020
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2020 To : 12/02/2021
Value
£1,501
Date
12 Jul 2019
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2019 To : 11/07/2020
Value
£1,501
Date
12 Jul 2018
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2018 To : 11/07/2019
Value
£1,501
Date
17 Oct 2017
Source
MND Association
Description
Design and printing of a report
Value
£3,001
Date
17 Oct 2017
Source
MND Association
Description
Reception
Value
£1,501
Date
12 Jul 2017
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2017 To : 11/07/2018
Value
£1,501

No direct financial benefits are on record for the Motor Neurone Disease APPG

Former APPG Officers
Brendan Clarke-Smith Portrait
Brendan Clarke-Smith
Vice Chair
Conservative - Former Member for Bassetlaw
Joined: 20th May 2020
Departed: 30th May 2024
No other APPG Memberships
Mary Robinson Portrait
Mary Robinson
Vice Chair
Conservative - Former Member for Cheadle
Joined: 21st July 2016
Departed: 30th May 2024
No other APPG Memberships
Andrew Lewer Portrait
Andrew Lewer
Chair & Registered Contact
Conservative - Former Member for Northampton South
Joined: 29th August 2018
Departed: 30th May 2024
No other APPG Memberships
Jessica Morden Portrait
Jessica Morden
Vice Chair
Labour - Newport East
Joined: 6th October 2021
Departed: 6th March 2024
2 APPG Memberships
Armenia , Georgia
John Hayes Portrait
John Hayes
Vice Chair
Conservative - South Holland and The Deepings
Joined: 23rd March 2022
Departed: 6th March 2024
4 APPG Memberships
Craft , Lebanon , Skills, Careers and Employment , UK Fresh Produce Network
Mark Tami Portrait
Mark Tami
Vice Chair
Labour - Alyn and Deeside
Joined: 20th May 2020
Departed: 6th March 2024
No other APPG Memberships
Louie French Portrait
Louie French
Vice Chair
Conservative - Old Bexley and Sidcup
Joined: 17th May 2023
Departed: 6th March 2024
No other APPG Memberships
Christina Rees Portrait
Christina Rees
Vice Chair
Labour (Co-op) - Former Member for Neath
Joined: 21st April 2021
Departed: 6th March 2024
No other APPG Memberships
Christine Jardine Portrait
Christine Jardine
Vice Chair
Liberal Democrat - Edinburgh West
Joined: 29th August 2018
Departed: 6th March 2024
5 APPG Memberships
Antisemitism , Aviation, Travel and Aerospace , Choice at the End of Life , Portugal , Switzerland and Liechtenstein
Baroness Keeley Portrait
Baroness Keeley
Vice Chair
Labour - Life peer
Joined: 21st April 2021
Departed: 6th March 2024
5 APPG Memberships
Classical Music , Film and Broader Screen , Music Education , Ticket Abuse , Young Carers and Young Adult Carers
Rosie Duffield Portrait
Rosie Duffield
Treasurer
Independent - Canterbury
Joined: 20th May 2020
Departed: 5th April 2023
1 APPG Membership
Dog Advisory Welfare
Steve Baker Portrait
Steve Baker
Vice Chair
Conservative - Former Member for Wycombe
Joined: 23rd March 2022
Departed: 5th April 2023
No other APPG Memberships
Chris Evans Portrait
Chris Evans
Vice Chair
Labour (Co-op) - Caerphilly
Joined: 30th July 2015
Departed: 5th April 2023
2 APPG Memberships
Archives and History , Writers
Madeleine Moon Portrait
Madeleine Moon
Chair & Registered Contact
Labour - Former Member for Bridgend
Joined: 30th July 2015
Departed: 5th November 2019
No other APPG Memberships
Paul Blomfield Portrait
Paul Blomfield
Vice Chair
Labour - Former Member for Sheffield Central
Joined: 30th July 2015
Departed: 18th July 2018
No other APPG Memberships
James Gray Portrait
James Gray
Treasurer
Conservative - Former Member for North Wiltshire
Joined: 30th July 2015
Departed: 3rd June 2016
No other APPG Memberships
Karl McCartney Portrait
Karl McCartney
Secretary
Conservative - Former Member for Lincoln
Joined: 30th July 2015
Departed: 3rd June 2016
No other APPG Memberships