Motor Neurone Disease APPG

First Registered: 30/07/2015 • Last updated on: 30/05/2024

Note: This APPG was last registered on 30th May 2024. The APPG was not registered in the latest release of the 20th November 2024 and may be defunct.

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To raise awareness of Motor Neurone Disease (MND) and to provide a forum for discussion of the issues facing people with MND and their families.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
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Former Members - Contact Details - Benefits in Kind - Financial Benefits
Reticulating Splines
Former APPG Members
Brendan Clarke-Smith Portrait
Brendan Clarke-Smith
Vice Chair
Conservative - Former Member for Bassetlaw
Joined: 20th May 2020
Departed: 30th May 2024
No other APPG Memberships
Mary Robinson Portrait
Mary Robinson
Vice Chair
Conservative - Former Member for Cheadle
Joined: 21st July 2016
Departed: 30th May 2024
No other APPG Memberships
Ian Byrne Portrait
Ian Byrne
Vice Chair
Independent - Liverpool West Derby
Joined: 17th May 2023
Departed: 30th May 2024
No other APPG Memberships
Andrew Lewer Portrait
Andrew Lewer
Chair & Registered Contact
Conservative - Former Member for Northampton South
Joined: 29th August 2018
Departed: 30th May 2024
No other APPG Memberships
Christine Jardine Portrait
Christine Jardine
Vice Chair
Liberal Democrat - Edinburgh West
Joined: 29th August 2018
Departed: 6th March 2024
5 APPG Memberships
Antisemitism , Aviation, Travel and Aerospace , Choice at the End of Life , Portugal , Switzerland and Liechtenstein
John Hayes Portrait
John Hayes
Vice Chair
Conservative - South Holland and The Deepings
Joined: 23rd March 2022
Departed: 6th March 2024
3 APPG Memberships
Craft , Lebanon , Skills, Careers and Employment
Mark Tami Portrait
Mark Tami
Vice Chair
Labour - Alyn and Deeside
Joined: 20th May 2020
Departed: 6th March 2024
No other APPG Memberships
Louie French Portrait
Louie French
Vice Chair
Conservative - Old Bexley and Sidcup
Joined: 17th May 2023
Departed: 6th March 2024
No other APPG Memberships
Christina Rees Portrait
Christina Rees
Vice Chair
Labour (Co-op) - Former Member for Neath
Joined: 21st April 2021
Departed: 6th March 2024
No other APPG Memberships
Jessica Morden Portrait
Jessica Morden
Vice Chair
Labour - Newport East
Joined: 6th October 2021
Departed: 6th March 2024
2 APPG Memberships
Armenia , Georgia
Baroness Keeley Portrait
Baroness Keeley
Vice Chair
Labour - Life peer
Joined: 21st April 2021
Departed: 6th March 2024
4 APPG Memberships
Film and Broader Screen , Music Education , Ticket Abuse , Young Carers and Young Adult Carers
Rosie Duffield Portrait
Rosie Duffield
Treasurer
Independent - Canterbury
Joined: 20th May 2020
Departed: 5th April 2023
1 APPG Membership
Dog Advisory Welfare
Steve Baker Portrait
Steve Baker
Vice Chair
Conservative - Former Member for Wycombe
Joined: 23rd March 2022
Departed: 5th April 2023
No other APPG Memberships
Chris Evans Portrait
Chris Evans
Vice Chair
Labour (Co-op) - Caerphilly
Joined: 30th July 2015
Departed: 5th April 2023
1 APPG Membership
Writers
Madeleine Moon Portrait
Madeleine Moon
Chair & Registered Contact
Labour - Former Member for Bridgend
Joined: 30th July 2015
Departed: 5th November 2019
No other APPG Memberships
Paul Blomfield Portrait
Paul Blomfield
Vice Chair
Labour - Former Member for Sheffield Central
Joined: 30th July 2015
Departed: 18th July 2018
No other APPG Memberships
James Gray Portrait
James Gray
Treasurer
Conservative - Former Member for North Wiltshire
Joined: 30th July 2015
Departed: 3rd June 2016
No other APPG Memberships
Karl McCartney Portrait
Karl McCartney
Secretary
Conservative - Former Member for Lincoln
Joined: 30th July 2015
Departed: 3rd June 2016
No other APPG Memberships
Contact Details

Registered Contact:

Andrew Lewer MP,

Email: No email supplied

Public Enquiry Point:

Sian Guest, Motor Neurone Disease Association, Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton NN3 6BJ

Email: sian.guest@mndassociation.org

Group's Website:

https://www.mndassociation.org/get-involved/campaigning-influencing/all-party-parliamentary-group-appg-on-mnd/

Benefits in Kind
Date
12 Feb 2023
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2023 To : 11/02/2024
Value
£1,501
Date
12 Feb 2022
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2022 To : 11/02/2023
Value
£1,501
Date
12 Feb 2021
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2021 To : 11/02/2022
Value
£1,501
Date
12 Feb 2020
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/02/2020 To : 12/02/2021
Value
£1,501
Date
12 Jul 2019
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2019 To : 11/07/2020
Value
£1,501
Date
12 Jul 2018
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2018 To : 11/07/2019
Value
£1,501
Date
17 Oct 2017
Source
MND Association
Description
Design and printing of a report
Value
£3,001
Date
17 Oct 2017
Source
MND Association
Description
Reception
Value
£1,501
Date
12 Jul 2017
Source
Motor Neurone Disease Association
Description
Secretariat   From : 12/07/2017 To : 11/07/2018
Value
£1,501

No direct financial benefits are on record for the Motor Neurone Disease APPG