Genetic Haemochromatosis APPG

First Registered: 13/02/2019 • Last updated on: 18/06/2025

The groups' mission is to (a) raise parliamentary awareness and public understanding of Genetic Haemochromatosis (GH), its prevalence and implications; (b) drive policy change to improve the welfare of GH patients across the UK; (c) influence ministers, parliamentarians, government bodies, policy-makers and NHS representatives to improve patient pathways through the UK healthcare and support systems.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.

View Official Register Entry

4 Current Officers - 1 Current Members - Contact Details - Benefits in Kind - Financial Benefits

Reticulating Splines

4 Current APPG Officers

Show/Hide

John Hayes

Chair & Registered Contact

Conservative - South Holland and The Deepings

Joined: 24th February 2020

5 APPG Officer Positions
Acquired Brain Injury , Craft , Lebanon , Skills, Careers and Employment , UK Fresh Produce Network
6 APPG Memberships
Adoption and Permanence , Freight and Logistics , Listed Properties , Manufacturing , Parks and Green Spaces , Publishing

James Wild

Vice Chair

Conservative - North West Norfolk

Joined: 28th March 2025

4 APPG Officer Positions
Dark Skies , Parkrun , Shakespeare , Shellfish Aquaculture
5 APPG Memberships
Beer , Defence Technology , Furniture Industry , Parks and Green Spaces , Tidy Britain

Torcuil Crichton

Officer

Labour - Na h-Eileanan an Iar

Joined: 28th March 2025

5 APPG Officer Positions
Isle of Man (Manx) , Marine Energy , Media , Shellfish Aquaculture , Volunteer Rescue Services
3 APPG Memberships
Afghan Women and Girls , Prostate Cancer , Theatre

Baroness Evans of Bowes Park

Officer

Conservative - Life peer

Joined: 28th March 2025

2 APPG Officer Positions
Industrial Strategy , Sustainable Finance

No other APPG Memberships

1 Current APPG Members

Show/Hide

Ben Lake

Member

Plaid Cymru - Ceredigion Preseli

4 APPG Officer Positions
Forestry and Timber Security , France , Industrial Hemp , Netherlands
21 APPG Memberships
Armenia , Beer , Climate Change , ClimateTech , Dark Skies , Fair Banking , Financial Education for Young People , Gaps in Covid-19 Financial Support , Grief Support and the Impact of Death on Society , Heritage Rail , International Conservation , International Students , Investment Fraud and Fairer Financial Services , Miscarriages of Justice , Music , Mutuals , Performing Arts Education and Training , Prostate Cancer , Social Science and Policy , Water Pollution , Youth Affairs

Contact Details

Show/Hide

Registered Contact:

Sir John Hayes MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 1389.

Email: hayesj@parliament.uk

Public Enquiry Point:

Neil McClements, Haemochromatosis UK. Tel: 03030 401 101

Email: appg.secretariat@huk.org.uk

Secretariat:

Haemochromatosis UK acts as the group's secretariat. https://www.haemochromatosis.org.uk

Group's Website:

https://www.haemochromatosis.org.uk/appg

Benefits in Kind

Show/Hide

Date
11 Feb 2025

Source
Haemochromatosis UK

Description
Secretariat From : 11/02/2025 To : 10/02/2026

Value
£3,001

Date
6 Feb 2023

Source
Haemochromatosis UK

Description
Secretariat From : 06/02/2023 To : 05/02/2024

Value
£4,501

Date
6 Feb 2022

Source
Haemochromatosis UK

Description
Secretariat From : 06/02/2022 To : 05/02/2023

Value
£1,501

Date
16 Jan 2019

Source
Haemochromatosis UK

Description
Secretariat From : 16/01/2019 To : 15/01/2020

Value
£3,001

No direct financial benefits are on record for the Genetic Haemochromatosis APPG

Former APPG Officers