The groups' mission is to (a) raise parliamentary awareness and public understanding of Genetic Haemochromatosis (GH), its prevalence and implications; (b) drive policy change to improve the welfare of GH patients across the UK; (c) influence ministers, parliamentarians, government bodies, policy-makers and NHS representatives to improve patient pathways through the UK healthcare and support systems.
Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
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Reticulating Splines
4 Current APPG Officers
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5 APPG Officer Positions
Isle of Man (Manx) , Marine Energy , Media , Shellfish Aquaculture , Volunteer Rescue Services
3 APPG Memberships
Afghan Women and Girls , Prostate Cancer , Theatre
Isle of Man (Manx) , Marine Energy , Media , Shellfish Aquaculture , Volunteer Rescue Services
3 APPG Memberships
Afghan Women and Girls , Prostate Cancer , Theatre
5 APPG Officer Positions
Acquired Brain Injury , Craft , Lebanon , Manufacturing , Skills, Careers and Employment
10 APPG Memberships
Adoption and Permanence , Baby Loss , Boxing , Emerging Drugs and Online Behavioural Trends , Freight and Logistics , Listed Properties , Multiple Sclerosis , Parks and Green Spaces , Pro-Life , Publishing
Acquired Brain Injury , Craft , Lebanon , Manufacturing , Skills, Careers and Employment
10 APPG Memberships
Adoption and Permanence , Baby Loss , Boxing , Emerging Drugs and Online Behavioural Trends , Freight and Logistics , Listed Properties , Multiple Sclerosis , Parks and Green Spaces , Pro-Life , Publishing
5 APPG Officer Positions
Dark Skies , Fairgrounds and Circuses , Mongolia , Shakespeare , Shellfish Aquaculture
7 APPG Memberships
Beer , Defence Technology , Furniture Industry , Parkrun , Parks and Green Spaces , Sepsis , Tidy Britain
Dark Skies , Fairgrounds and Circuses , Mongolia , Shakespeare , Shellfish Aquaculture
7 APPG Memberships
Beer , Defence Technology , Furniture Industry , Parkrun , Parks and Green Spaces , Sepsis , Tidy Britain
3 APPG Officer Positions
Outdoor Recreation and Access to Nature , Responsible Credit , Sustainable Finance
1 APPG Membership
Shakespeare
Outdoor Recreation and Access to Nature , Responsible Credit , Sustainable Finance
1 APPG Membership
Shakespeare
1 Current APPG Members
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5 APPG Officer Positions
Bioeconomy , Forestry and Timber Security , France , Investment Fraud and Fairer Financial Services , Netherlands
21 APPG Memberships
Armenia , Beer , Climate Change , ClimateTech , Dark Skies , Fair Banking , Fair Elections , Financial Education for Young People , Gaps in Covid-19 Financial Support , Grief Support and the Impact of Death on Society , Heritage Rail , International Conservation , International Students , Miscarriages of Justice , Music , Mutuals , Performing Arts Education and Training , Prostate Cancer , Social Science and Policy , Water Pollution , Youth Affairs
Bioeconomy , Forestry and Timber Security , France , Investment Fraud and Fairer Financial Services , Netherlands
21 APPG Memberships
Armenia , Beer , Climate Change , ClimateTech , Dark Skies , Fair Banking , Fair Elections , Financial Education for Young People , Gaps in Covid-19 Financial Support , Grief Support and the Impact of Death on Society , Heritage Rail , International Conservation , International Students , Miscarriages of Justice , Music , Mutuals , Performing Arts Education and Training , Prostate Cancer , Social Science and Policy , Water Pollution , Youth Affairs
Contact Details
Show/HideRegistered Contact:
Torcuil Crichton MP, House of Commons, London, SW1A 0AA.
Email: [email protected]
Public Enquiry Point:
Jonathan Jelley, Haemochromatosis UK. Tel: 03030 401 101
Email: [email protected]
Secretariat:
Haemochromatosis UK acts as the group's secretariat. https://www.haemochromatosis.org.uk
Group's Website:
Benefits in Kind
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Date
11 Feb 2025
11 Feb 2025
Source
Haemochromatosis UK
Haemochromatosis UK
Description
Secretariat From : 11/02/2025 To : 10/02/2026
Secretariat From : 11/02/2025 To : 10/02/2026
Value
£3,001
£3,001
Date
11 Feb 2025
11 Feb 2025
Source
Haemochromatosis UK
Haemochromatosis UK
Description
Secretariat From: 11/02/2025 To: 10/02/2026
Secretariat From: 11/02/2025 To: 10/02/2026
Value
£3,001
£3,001
Date
6 Feb 2023
6 Feb 2023
Source
Haemochromatosis UK
Haemochromatosis UK
Description
Secretariat From : 06/02/2023 To : 05/02/2024
Secretariat From : 06/02/2023 To : 05/02/2024
Value
£4,501
£4,501
Date
6 Feb 2022
6 Feb 2022
Source
Haemochromatosis UK
Haemochromatosis UK
Description
Secretariat From : 06/02/2022 To : 05/02/2023
Secretariat From : 06/02/2022 To : 05/02/2023
Value
£1,501
£1,501
Date
16 Jan 2019
16 Jan 2019
Source
Haemochromatosis UK
Haemochromatosis UK
Description
Secretariat From : 16/01/2019 To : 15/01/2020
Secretariat From : 16/01/2019 To : 15/01/2020
Value
£3,001
£3,001
No direct financial benefits are on record for the Genetic Haemochromatosis APPG
Former APPG Officers
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Ben Lake
Vice Chair
Plaid Cymru - Ceredigion Preseli
Joined: 13th February 2019Departed: 30th May 2024
5 APPG Officer Positions
Bioeconomy , Forestry and Timber Security , France , Investment Fraud and Fairer Financial Services , Netherlands
Bioeconomy , Forestry and Timber Security , France , Investment Fraud and Fairer Financial Services , Netherlands
No other APPG Memberships
Angus Brendan MacNeil
Officer
Independent - Former Member for Na h-Eileanan an Iar
Joined: 24th February 2020Departed: 30th May 2024
No other APPG Officer Positions
No other APPG Memberships
4 APPG Officer Positions
Grid Networks , Non-Profit Making Members Clubs , Respiratory Health , Suicide and Self-Harm Prevention
Grid Networks , Non-Profit Making Members Clubs , Respiratory Health , Suicide and Self-Harm Prevention
No other APPG Memberships
Rupa Huq
Officer
Labour - Ealing Central and Acton
Joined: 24th February 2020Departed: 5th April 2023
6 APPG Officer Positions
Ethnic Minority Business Owners , Fairtrade , Poland , Single-Parent Families , University , Water, Sanitation and Hygiene
Ethnic Minority Business Owners , Fairtrade , Poland , Single-Parent Families , University , Water, Sanitation and Hygiene
No other APPG Memberships
Liz Saville Roberts
Vice Chair
Plaid Cymru - Dwyfor Meirionnydd
Joined: 14th July 2021Departed: 9th February 2022
6 APPG Officer Positions
Greenland , Heritage Rail , Miscarriages of Justice , Nuclear Energy , Perpetrators of Domestic Abuse , Women affected by the Criminal Justice System
Greenland , Heritage Rail , Miscarriages of Justice , Nuclear Energy , Perpetrators of Domestic Abuse , Women affected by the Criminal Justice System
No other APPG Memberships
Mark Pawsey
Chair & Registered Contact
Conservative - Former Member for Rugby
Joined: 13th February 2019Departed: 5th November 2019
No other APPG Officer Positions
No other APPG Memberships
Baroness Elliott of Whitburn Bay
Vice Chair
Labour - Life peer
Joined: 13th February 2019Departed: 5th November 2019
Cheryl Gillan
Vice Chair
Conservative - Former Member for Chesham and Amersham
Joined: 13th February 2019Departed: 5th November 2019
No other APPG Officer Positions
No other APPG Memberships
Lord Maude of Horsham
Vice Chair
Conservative - Life peer
Joined: 13th February 2019Departed: 5th November 2019
No other APPG Officer Positions
No other APPG Memberships
Alex Norris
Vice Chair
Labour (Co-op) - Nottingham North and Kimberley
Joined: 13th February 2019Departed: 5th November 2019
No other APPG Officer Positions
No other APPG Memberships