Genetic Haemochromatosis APPG

First Registered: 13/02/2019 • Last updated on: 07/05/2025

Share

The groups' mission is to (a) raise parliamentary awareness and public understanding of Genetic Haemochromatosis (GH), its prevalence and implications; (b) drive policy change to improve the welfare of GH patients across the UK; (c) influence ministers, parliamentarians, government bodies, policy-makers and NHS representatives to improve patient pathways through the UK healthcare and support systems.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
View Official Register Entry
Current Members - Contact Details - Benefits in Kind - Financial Benefits - Former Members
Reticulating Splines
APPG Supplied Content

APPGs can register with Parallel Parliament and submit files and articles to be placed here.

Parallel Parliament offers the facility for APPGs to submit written content and files, which are made available through this page.

Submitters can draft and edit publications, and either release them on demand, or schedule release for a future date.

Both text content and attached files submitted through this facility is indexed by our website, and made available through both the search function and relevant e-mail alerts. Any of our users registered for an alert which matches your content, will receive a link making them aware of its publication.

If you wish to register as an authorised representative of the Genetic Haemochromatosis APPG and use this facility, click below

4 Current APPG Officers
John Hayes Portrait
John Hayes
Chair & Registered Contact
Conservative - South Holland and The Deepings
Joined: 24th February 2020
5 APPG Memberships
Acquired Brain Injury , Craft , Lebanon , Skills, Careers and Employment , UK Fresh Produce Network
James Wild Portrait
James Wild
Vice Chair
Conservative - North West Norfolk
Joined: 28th March 2025
4 APPG Memberships
Dark Skies , Parkrun , Shakespeare , Shellfish Aquaculture
Torcuil Crichton Portrait
Torcuil Crichton
Officer
Labour - Na h-Eileanan an Iar
Joined: 28th March 2025
4 APPG Memberships
Isle of Man (Manx) , Marine Energy , Media , Shellfish Aquaculture
Baroness Evans of Bowes Park Portrait
Baroness Evans of Bowes Park
Officer
Conservative - Life peer
Joined: 28th March 2025
2 APPG Memberships
Industrial Strategy , Sustainable Finance
Contact Details

Registered Contact:

Sir John Hayes MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 1389.

Email: hayesj@parliament.uk

Public Enquiry Point:

Neil McClements, Haemochromatosis UK. Tel: 03030 401 101

Email: appg.secretariat@huk.org.uk

Secretariat:

Haemochromatosis UK acts as the group's secretariat. https://www.haemochromatosis.org.uk

Group's Website:

https://www.haemochromatosis.org.uk/appg

Benefits in Kind
Date
11 Feb 2025
Source
Haemochromatosis UK
Description
Secretariat   From : 11/02/2025 To : 10/02/2026
Value
£3,001
Date
6 Feb 2023
Source
Haemochromatosis UK
Description
Secretariat   From : 06/02/2023 To : 05/02/2024
Value
£4,501
Date
6 Feb 2022
Source
Haemochromatosis UK
Description
Secretariat   From : 06/02/2022 To : 05/02/2023
Value
£1,501
Date
16 Jan 2019
Source
Haemochromatosis UK
Description
Secretariat   From : 16/01/2019 To : 15/01/2020
Value
£3,001

No direct financial benefits are on record for the Genetic Haemochromatosis APPG

Former APPG Officers
Ben Lake Portrait
Ben Lake
Vice Chair
Plaid Cymru - Ceredigion Preseli
Joined: 13th February 2019
Departed: 30th May 2024
4 APPG Memberships
Forestry and Timber Security , France , Industrial Hemp , Netherlands
Angus Brendan MacNeil Portrait
Angus Brendan MacNeil
Officer
Independent - Former Member for Na h-Eileanan an Iar
Joined: 24th February 2020
Departed: 30th May 2024
No other APPG Memberships
Liz Twist Portrait
Liz Twist
Officer
Labour - Blaydon and Consett
Joined: 14th July 2021
Departed: 30th May 2024
2 APPG Memberships
Respiratory Health , Suicide and Self-Harm Prevention
Rupa Huq Portrait
Rupa Huq
Officer
Labour - Ealing Central and Acton
Joined: 24th February 2020
Departed: 5th April 2023
6 APPG Memberships
British Sikhs , Ethnic Minority Business Owners , Fairtrade , Sexual and Reproductive Health in the UK , Single-Parent Families , Water, Sanitation and Hygiene
Liz Saville Roberts Portrait
Liz Saville Roberts
Vice Chair
Plaid Cymru - Dwyfor Meirionnydd
Joined: 14th July 2021
Departed: 9th February 2022
5 APPG Memberships
Heritage Rail , Miscarriages of Justice , Nuclear Energy , Perpetrators of Domestic Abuse , Women affected by the Criminal Justice System
Mark Pawsey Portrait
Mark Pawsey
Chair & Registered Contact
Conservative - Former Member for Rugby
Joined: 13th February 2019
Departed: 5th November 2019
No other APPG Memberships
Baroness Elliott of Whitburn Bay Portrait
Baroness Elliott of Whitburn Bay
Vice Chair
Labour - Life peer
Joined: 13th February 2019
Departed: 5th November 2019
No other APPG Memberships
Cheryl Gillan Portrait
Cheryl Gillan
Vice Chair
Conservative - Former Member for Chesham and Amersham
Joined: 13th February 2019
Departed: 5th November 2019
No other APPG Memberships
Lord Maude of Horsham Portrait
Lord Maude of Horsham
Vice Chair
Conservative - Life peer
Joined: 13th February 2019
Departed: 5th November 2019
No other APPG Memberships
Alex Norris Portrait
Alex Norris
Vice Chair
Labour (Co-op) - Nottingham North and Kimberley
Joined: 13th February 2019
Departed: 5th November 2019
No other APPG Memberships