The groups' mission is to (a) raise parliamentary awareness and public understanding of Genetic Haemochromatosis (GH), its prevalence and implications; (b) drive policy change to improve the welfare of GH patients across the UK; (c) influence ministers, parliamentarians, government bodies, policy-makers and NHS representatives to improve patient pathways through the UK healthcare and support systems.
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Reticulating Splines
APPG Supplied Content
APPGs can register with Parallel Parliament and submit files and articles to be placed here.
Parallel Parliament offers the facility for APPGs to submit written content and files, which are made available through this page.
Submitters can draft and edit publications, and either release them on demand, or schedule release for a future date.
Both text content and attached files submitted through this facility is indexed by our website, and made available through both the search function and relevant e-mail alerts. Any of our users registered for an alert which matches your content, will receive a link making them aware of its publication.
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4 Current APPG Officers
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John Hayes
Chair & Registered Contact
Conservative - South Holland and The Deepings
Joined: 24th February 2020Acquired Brain Injury , Craft , Lebanon , Skills, Careers and Employment , UK Fresh Produce Network
Contact Details
Show/HideRegistered Contact:
Sir John Hayes MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 1389.
Email: hayesj@parliament.uk
Public Enquiry Point:
Neil McClements, Haemochromatosis UK. Tel: 03030 401 101
Email: appg.secretariat@huk.org.uk
Secretariat:
Haemochromatosis UK acts as the group's secretariat. https://www.haemochromatosis.org.uk
Group's Website:
Benefits in Kind
Show/Hide11 Feb 2025
Haemochromatosis UK
Secretariat From : 11/02/2025 To : 10/02/2026
£3,001
6 Feb 2023
Haemochromatosis UK
Secretariat From : 06/02/2023 To : 05/02/2024
£4,501
6 Feb 2022
Haemochromatosis UK
Secretariat From : 06/02/2022 To : 05/02/2023
£1,501
16 Jan 2019
Haemochromatosis UK
Secretariat From : 16/01/2019 To : 15/01/2020
£3,001
No direct financial benefits are on record for the Genetic Haemochromatosis APPG
Former APPG Officers
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Ben Lake
Vice Chair
Plaid Cymru - Ceredigion Preseli
Joined: 13th February 2019Departed: 30th May 2024
Angus Brendan MacNeil
Officer
Independent - Former Member for Na h-Eileanan an Iar
Joined: 24th February 2020Departed: 30th May 2024
Rupa Huq
Officer
Labour - Ealing Central and Acton
Joined: 24th February 2020Departed: 5th April 2023
Liz Saville Roberts
Vice Chair
Plaid Cymru - Dwyfor Meirionnydd
Joined: 14th July 2021Departed: 9th February 2022
Mark Pawsey
Chair & Registered Contact
Conservative - Former Member for Rugby
Joined: 13th February 2019Departed: 5th November 2019
Baroness Elliott of Whitburn Bay
Vice Chair
Labour - Life peer
Joined: 13th February 2019Departed: 5th November 2019
Cheryl Gillan
Vice Chair
Conservative - Former Member for Chesham and Amersham
Joined: 13th February 2019Departed: 5th November 2019
Lord Maude of Horsham
Vice Chair
Conservative - Life peer
Joined: 13th February 2019Departed: 5th November 2019
Alex Norris
Vice Chair
Labour (Co-op) - Nottingham North and Kimberley
Joined: 13th February 2019Departed: 5th November 2019