First Registered: 13/02/2019 • Last updated on: 10/03/2021
To raise awareness about Haemochromatosis (Iron Overload)
1. Genetic Haemochromatosis
03/07/2019 - Westminster Hall
2. Hansard_Speeches object (231120)
03/07/2019 - Speeches
Found:
3. Hansard_Speeches object (231121)
03/07/2019 - Speeches
Found:
4. Hansard_Speeches object (231122)
03/07/2019 - Speeches
Found:
5. Hansard_Speeches object (231123)
03/07/2019 - Speeches
Found:
1. Genetic Haemochromatosis
03/07/2019 - Westminster Hall
1: debate on genetic haemochromatosis. I chair the all-party parliamentary group for genetic haemochromatosis - Speech Link
2: on to some of the debilitating consequences of genetic haemochromatosis, which include arthritis, joint - Speech Link
3: Celtic origin leads to some people referring to genetic haemochromatosis as the Celtic curse, a term that - Speech Link
2. Gene Editing
30/01/2020 - Lords Chamber
1: for a start is an issue raised by two charities, Genetic Alliance UK and the Progress Educational Trust - Speech Link
2: embedded devices and more accurate information from genetic testing, their predisposition to disease—whether - Speech Link
3: secret, a taboo subject. However, as life-changing genetic medicine has developed, remarkable progress has - Speech Link
3. Insurance and Genetic Conditions
08/01/2018 - Commons Chamber
1: that both individuals currently suffering from genetic conditions and those with a high likelihood of - Speech Link
2: As the number of those with rare diseases and genetic conditions continues to increase and insurance - Speech Link
3: be able to access affordable insurance.Genetic testing will be one of the ways in which insurance - Speech Link
4. Genetically Modified Food
08/02/2021 - Lords Chamber
1: Minister has disagreed with the EU’s stance on genetic editing. I also note that the US has approved some - Speech Link
2: Does the Minister accept that gene editing and genetic modification are different technologies and that - Speech Link
3: gene editing and the distinction drawn between genetic modification and gene editing. Can the Minister - Speech Link
5. UK Rare Diseases Framework
24/03/2021 - Westminster Hall
1: conditions begin in childhood and are lifelong. Genetic Alliance UK estimates that rare diseases are responsible - Speech Link
2: best outcomes for people living with rare and genetic conditions in Wales.That should involve - Speech Link
3: regular genetic testing services. As a result, more families have been able to get the right genetic test - Speech Link
Registered Contact:
Sir John Hayes MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 1389.
Email: hayesj@parliament.uk
Public Enquiry Point:
Vicki Lunn, Haemochromatosis UK, Henrith Business Centre, 3 Enterprise Way, Spalding PE11 3YR. Tel: 03030 401 101
Email: vicki@huk.org.uk
No direct financial benefits are on record for the Genetic Haemochromatosis APPG