Genetic Haemochromatosis APPG

First Registered: 13/02/2019 • Last updated on: 08/04/2024

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To raise awareness about Haemochromatosis (Iron Overload)

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
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Current Members - Contact Details - Benefits in Kind - Financial Benefits - Former Members
Reticulating Splines
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4 Current APPG Officers
John Hayes Portrait
John Hayes
Chair & Registered Contact
Conservative - South Holland and The Deepings
Joined: 24th February 2020
6 APPG Memberships
Acquired Brain Injury , Almshouses , Baby Loss , Craft , Lebanon , Skills, Careers and Employment
Ben Lake Portrait
Ben Lake
Vice Chair
Plaid Cymru - Ceredigion
Joined: 13th February 2019
3 APPG Memberships
Bowel Cancer , Community Energy , Fuel Poverty and Energy Efficiency
Angus Brendan MacNeil Portrait
Angus Brendan MacNeil
Officer
Independent - Na h-Eileanan an Iar
Joined: 24th February 2020
No other APPG Memberships
Liz Twist Portrait
Liz Twist
Officer
Labour - Blaydon
Joined: 14th July 2021
9 APPG Memberships
Acquired Brain Injury , Carbon Monoxide , Child Contact Centres and Services , Deafness , Muscular Dystrophy , Respiratory Health , Sleep , Suicide and Self-Harm Prevention , Water
Contact Details

Registered Contact:

Sir John Hayes MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 1389.

Email: hayesj@parliament.uk

Secretariat:

Haemochromatosis UK acts as the group's secretariat. https://www.haemochromatosis.org.uk

Benefits in Kind
Date
6 Feb 2023
Source
Haemochromatosis UK
Description
Secretariat   From : 06/02/2023 To : 05/02/2024
Value
£4,501
Date
6 Feb 2022
Source
Haemochromatosis UK
Description
Secretariat   From : 06/02/2022 To : 05/02/2023
Value
£1,501
Date
16 Jan 2019
Source
Haemochromatosis UK
Description
Secretariat   From : 16/01/2019 To : 15/01/2020
Value
£3,001

No direct financial benefits are on record for the Genetic Haemochromatosis APPG

Former APPG Officers
Rupa Huq Portrait
Rupa Huq
Officer
Labour - Ealing Central and Acton
Joined: 24th February 2020
Departed: 5th April 2023
9 APPG Memberships
Art, Craft and Design in Education , Bangladesh , Burma , Children , Environmental, Social, and Governance , Equality, Diversity and Inclusivity Professionals , Ethics and Sustainability in Fashion and Hairdressing , Rohingya , Single Parent Families
Liz Saville Roberts Portrait
Liz Saville Roberts
Vice Chair
Plaid Cymru - Dwyfor Meirionnydd
Joined: 14th July 2021
Departed: 9th February 2022
2 APPG Memberships
Heritage Rail , Hospitality, Events and Major Food and Drink Businesses in Wales
Mark Pawsey Portrait
Mark Pawsey
Chair & Registered Contact
Conservative - Rugby
Joined: 13th February 2019
Departed: 5th November 2019
3 APPG Memberships
Manufacturing , Packaging Manufacturing Industry , Rugby Union Football Club
Julie Elliott Portrait
Julie Elliott
Vice Chair
Labour - Sunderland Central
Joined: 13th February 2019
Departed: 5th November 2019
6 APPG Memberships
Children's Media and the Arts , Digital Inclusion , ITV , Jordan , Kidney , Palestine
Cheryl Gillan Portrait
Cheryl Gillan
Vice Chair
Conservative - Former Member for Chesham and Amersham
Joined: 13th February 2019
Departed: 5th November 2019
No other APPG Memberships
Lord Maude of Horsham Portrait
Lord Maude of Horsham
Vice Chair
Conservative - Life peer
Joined: 13th February 2019
Departed: 5th November 2019
No other APPG Memberships
Alex Norris Portrait
Alex Norris
Vice Chair
Labour (Co-op) - Nottingham North
Joined: 13th February 2019
Departed: 5th November 2019
2 APPG Memberships
Bingo , Child Contact Centres and Services