Terminal Illness APPG

First Registered: 18/07/2018 • Last updated on: 27/01/2021

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Raises awareness of issues around terminal illness in parliament. Promotes links between parliament, individuals and families affected, charities, scientists, health professionals and decision makers. Includes MPs from across the political spectrum who are keen to discuss, improve and share knowledge of end of life care.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.


This content was generated for your convenience by Parallel Parliament and does not form part of the official record.
Recent Documents related to Terminal Illness

1. Marie Curie Northern Ireland - written evidence
05/06/2019 - Inquiry: Welfare policy in Northern Ireland - Work and Pensions Committee
- View source

Found: in the provision of care to people with a terminal illness in Northern Ireland. We provide a range of

2. Marie Curie - written evidence
09/09/2019 - Inquiry: Welfare policy in Scotland - Scottish Affairs Committee
- View source

Found: Attendance Allowance. People living with a terminal illness can access these benefits under a system of

3. Together for Short Lives - written evidence
09/09/2019 - Inquiry: Welfare policy in Scotland - Scottish Affairs Committee
- View source

Found: that the misalignment between definitions of terminal illness, for the sake of ‘fast-track’ access to certain

4. Motor Neurone Disease Association - written evidence
31/10/2018 - Inquiry: Universal Credit - Work and Pensions Committee
- View source

Found: including loss of income.[1]  As a progressive, terminal illness, people living with MND must inevitably leave

5. Bill 253 2017-19 (as introduced)
16/11/2018 - Bill Documents

Found: Bill 253 57/1Access to Welfare (Terminal Illness Definition) BillCONTENTS1Amendment of the Welfare Reform

Latest Documents
Recent Speeches related to Terminal Illness

1. Employment: Terminal Illness
17/12/2018 - Grand Committee

1: she informed her employer of her diagnosis of terminal breast cancer. Ms Woodcock is not alone, and therefore - Speech Link
2: accommodation they occupy by virtue of their office. A terminal illness for one of those clergy, as for anybody else - Speech Link

2. Terminally Ill People: Access to Benefits
22/02/2021 - Commons Chamber

1: forward my ten-minute rule Bill, the Welfare (Terminal Illness) Bill, last summer. I also thank individual - Speech Link
2: their review, more people are diagnosed with a terminal illness and risk being unable to get fast-track support - Speech Link

3. Access to Welfare (Terminal Illness Definition)
18/07/2018 - Commons Chamber

1: bring in a Bill to amend the definition of terminal illness in the Welfare Reform Act 2012; and for connected - Speech Link

4. Welfare (Terminal Illness)
22/07/2020 - Commons Chamber

1: address the failures of the special rules for terminal illness, which do not fast-track some terminally ill - Speech Link

5. Universal Credit and Terminal Illness
09/05/2018 - Commons Chamber

1: acutely aware of every second as it passes. Terminal illness deeply affects families in our communities - Speech Link
2: universal credit is having on people with terminal illness, I ask the Minister not to follow the same - Speech Link

6. Terminal Illness (Provision of Palliative Care and Support for Carers)
23/05/2018 - Commons Chamber

1: of comprehensive palliative care to those with terminal illnesses, including adults over the age of 60; - Speech Link

7. Universal Credit: Terminally Ill People
29/11/2017 - Commons Chamber

1: and 12 for the enhanced rate. The rules on terminal illness suggested that if the probability was that - Speech Link
2: ESA, “special rules” means someone who has a terminal illness with a prognosis of less than six months. - Speech Link

8. Assisted Dying
04/07/2019 - Commons Chamber

1: prospect of great suffering at the end of a terminal illness—suffering that cannot be alleviated by our - Speech Link
2: lives and die naturally—even through a horrific illness with horrific symptoms—are given every support - Speech Link
3: law for people in the final six months of a terminal illness, and well over 50% of people who declare that - Speech Link
4: dying at their own hand because they have a terminal illness that they do not want to live with. How can - Speech Link
5: question of whether, in the final six months of a terminal illness, a narrow assisted dying law, with legal and - Speech Link
6: his mind to take his life soon after receiving a terminal diagnosis of inoperable lung cancer. But he still - Speech Link

9. Coronavirus Regulations: Assisted Deaths Abroad
05/11/2020 - Commons Chamber

1: suffered the pain of watching a loved one battle a terminal degenerative condition, and I share a deep respect - Speech Link
2: travel restrictions. As a frontline NHS worker with terminal breast cancer, she did not want to run the risk - Speech Link
3: draws a distinction between those who have a terminal illness and the broader issue of suicide, which is - Speech Link
4: of faith leaders, the public and those who face terminal disease, as Parliament debates this subject. - Speech Link
5: abroad to end their lives when they have a terminal illness—I find that dreadfully sad. I ask my right - Speech Link
6: acceptance—after they have been given a diagnosis of terminal illness? We are failing so many people right across - Speech Link

10. Universal Credit (Transitional Provisions) (Claimants previously entitled to a severe disability premium) Amendment Regulations 2021
11/02/2021 - Lords Chamber

1: briefing, points out the impact on people with terminal illnesses or life-limiting conditions. It says - Speech Link
2: The disabled, carers and those with a long-term illness are in the poorest 10% of the population. Quite - Speech Link
3: the move to universal credit for people with terminal illness who live alone without a carer, and the impact - Speech Link
4: benefits are disabled, carers or have a long-term illness. The majority of these fall within the poorest - Speech Link
5: rules for people with terminal illnesses. We take the issue of terminal illness very seriously and treat - Speech Link

Latest Speeches
Recent Questions related to Terminal Illness
1. Personal Independence Payment: Terminal Illnesses
asked by: Andrea Jenkyns
27/03/2019
... what illnesses are considered terminal under Special Rules for Terminal Illness.

2. Personal Independence Payment: Terminal Illnesses
asked by: Andrea Jenkyns
27/03/2019
... how many people access disability benefits through Special Rules for Terminal Illness by each terminal illness.

3. Personal Independence Payment: Terminal Illnesses
asked by: John Lamont
21/02/2019
... if she will extend the Special Rules for Terminal Illness process for personal independence payments to include people with unpredictable terminal illnesses such as Motor Neurone Disease.

4. Social Security Benefits: Terminal Illnesses
asked by: Preet Kaur Gill
17/07/2018
... what assessment she has made of appropriateness of the special rules for terminal illness for unpredictable terminal illnesses such as motor neurone disease.

5. Universal Credit: Terminal Illnesses
asked by: Andrew Gwynne
20/07/2020
... whether there has been a reduction in Special Rules for Terminal Illness claims for universal credit as a result of her Department's change to the online application question on terminal illness in May 2019; and if she will make a statement.

Latest Questions
11 Current APPG Officers
Drew Hendry Portrait
Drew Hendry
Chair & Registered Contact
Scottish National Party - Inverness, Nairn, Badenoch and Strathspey
Joined: 18th July 2018
Valerie Vaz Portrait
Valerie Vaz
Vice Chair
Labour - Walsall South
Joined: 20th May 2020
4 APPG Memberships
Archaeology , Epilepsy , Music , Portugal
Owen Thompson Portrait
Owen Thompson
Vice Chair
Scottish National Party - Midlothian
Joined: 20th May 2020
Lord Dykes Portrait
Lord Dykes
Vice Chair
Crossbench - Life peer
Joined: 20th May 2020
Tom Tugendhat Portrait
Tom Tugendhat
Officer
Conservative - Tonbridge and Malling
Joined: 18th July 2018
Greg Clark Portrait
Greg Clark
Officer
Conservative - Tunbridge Wells
Joined: 20th May 2020
4 APPG Memberships
Chemical Industry , Colombia , Italy , Motor
Nia Griffith Portrait
Nia Griffith
Officer
Labour - Llanelli
Joined: 20th May 2020
Contact Details

Registered Contact:

Drew Hendry MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 6118.

Email: drew.hendry.mp@parliament.uk

Public Enquiry Point:

Marine Paclet, Marie Curie, 89 Albert Embankment, London SE1 7TP. Tel: 020 7599 7256

Email: marine.paclet@mariecurie.org.uk

Secretariat:

Marie Curie acts as the group's secretariat. https://www.mariecurie.org.uk/

Group's Website:

https://www.mariecurie.org.uk/policy/appg-for-terminal-illness

Benefits in Kind
Date
11 Feb 2020
Source
Marie Curie
Description
Secretariat   From : 11/02/2020 To : 10/02/2021
Value
£3,001
Date
28 Feb 2019
Source
Marie Curie
Description
Secretariat   From : 28/02/2019 To : 27/02/2020
Value
£1,501
Date
28 Feb 2018
Source
Marie Curie
Description
Secretariat   From : 28/02/2018 To : 27/02/2019
Value
£1,501

No direct financial benefits are on record for the Terminal Illness APPG

Former APPG Officers
John Hayes Portrait
John Hayes
Officer
Conservative - South Holland and The Deepings
Joined: 27th March 2019
Departed: 5th November 2019
Marion Fellows Portrait
Marion Fellows
Officer
Scottish National Party - Motherwell and Wishaw
Joined: 27th March 2019
Departed: 5th November 2019
Christine Jardine Portrait
Christine Jardine
Vice Chair
Liberal Democrat - Edinburgh West
Joined: 18th July 2018
Departed: 5th November 2019
Hugh Gaffney Portrait
Hugh Gaffney
Vice Chair
Labour - Former Member for Coatbridge, Chryston and Bellshill
Joined: 18th July 2018
Departed: 5th November 2019
No other APPG Memberships
Chris Law Portrait
Chris Law
Vice Chair
Scottish National Party - Dundee West
Joined: 18th July 2018
Departed: 13th February 2019
Gavin Newlands Portrait
Gavin Newlands
Vice Chair
Scottish National Party - Paisley and Renfrewshire North
Joined: 18th July 2018
Departed: 13th February 2019