Increase funding for research into Endometriosis and PCOS.

Endometriosis and PCOS are two gynaecological conditions which both affect 10% of women worldwide, but both are, in terms of research and funding, incredibly under prioritised. This petition is calling for more funding, to enable for new, extensive and thorough research into female health issues.

This petition closed on 29 Jan 2021 with 101,909 signatures

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Recent Documents related to Increase funding for research into Endometriosis and PCOS.

1. Written Evidence: Joint submission from 29 VAWG (violence against women and girls) sector organisations (DAB32) (PDF)
16/06/2020 - Bill Documents

Found: evidence submitted by 29 VAWG (violence against women and girls) sector organisation s on the Domestic

2. Faculty of Sexual and Reproductive Healthcare (FSRH) - written evidence
06/11/2018 - Inquiry: Sexual health - Health and Social Care Committee
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Found: respond to the HSC Committee inquiry into sexual health. FSRH is the largest UK multi-disciplinary professional

3. Pakistan: country policy and information notes
25/11/2019 - UK Visas and Immigration (UKVI)
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Found: Human Rights (ECHR) because of an ongoing health condition. It is not intended to be an exhaustive

4. Sustrans - written evidence
22/10/2018 - Inquiry: Active travel - Transport Committee
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Found: Ambition Cities;6)              The adequacy of funding associated with CWIS and any concerns around a

5. 3rd Special Report - Prison provision in Wales: Government Response to the Committee’s Fourth Report
24/07/2019 - Inquiry: Prison provision in Wales - Welsh Affairs Committee
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Latest Documents
Recent Speeches related to Increase funding for research into Endometriosis and PCOS.

1. Endometriosis Workplace Support
29/10/2019 - Westminster Hall

1: move,That this House has considered endometriosis workplace support.It is a pleasure to - Speech Link
2: Friend on securing this incredibly important debate. I am sure millions of women around the country will - Speech Link

2. Women’s Mental Health
03/10/2019 - Commons Chamber

1: ill health among women, with one in five now experiencing common mental disorders and young women the - Speech Link
2: ill health among women, with one in five now experiencing common mental disorders and young women the - Speech Link

3. NHS: Hysteroscopies
11/12/2018 - Westminster Hall

1: excruciating pain and humiliation because some of the women who need them are not treated with the dignity, - Speech Link
2: am interested in all health issues, but particularly in this one, so I commend the hon. Lady for securing - Speech Link

4. Business of the House
22/02/2018 - Commons Chamber

1: This has also been a week of important firsts for women. Congratulations to the first Lady Usher of the - Speech Link
2: century, yet we are still celebrating firsts for women. That must change.It is helpful to have next - Speech Link
3: importance of resolving the nation’s mental health issues. On Tuesday evening, I had the great pleasure - Speech Link

5. Oral Answers to Questions
17/10/2019 - Commons Chamber

1: become more transparent. We also need to deal with issues such as state-owned enterprises, forced technology - Speech Link
2: of the WTO have lodged against the UK’s proposed new bound tariff and quota schedules, and of what provisional - Speech Link
3: said.Of course we will work through the issues on the goods schedules at the WTO, and we are doing - Speech Link
4: deals by one minute after midnight on 31 March, two Brexit extensions ago, have they carried out any - Speech Link
5: Government and officials have made to make this incredibly successful transition. These deals account for - Speech Link
6: leave the European Union and we can strike out with new, comprehensive free trade agreements around the world - Speech Link
7: will carry over those vital provisions into the new trade Bill, so that elected Members of this Parliament - Speech Link

6. Cervical Cancer Smear Tests
28/01/2019 - Westminster Hall

1: to move,That this House has considered e-petition 225767 relating to lowering the age for smear - Speech Link

7. World Menopause Day
18/10/2018 - Commons Chamber

1: Menopause Society, in collaboration with the World Health Organisation, has designated for a focus on the - Speech Link

8. Oral Answers to Questions
06/06/2019 - Commons Chamber

1: capacity is up four times since 2010; and there will be £10 billion in annual support by 2021. Expertise is being - Speech Link
2: the hon. Gentleman knows well, the UK has extensive funding for climate change mitigation and for sustainability - Speech Link
3: strengthen UK trading relations with Israel in medical research and development; and if he will make a statement - Speech Link
4: UK-Israel trade, and there is extensive collaboration on medical research between the UK and Israel. The - Speech Link
5: collaboration in or outside the European Union. To enable us to shine a light on the excellence that my hon - Speech Link
6: say that global trade can take place only in conditions of peace. Will he back the small group of MPs - Speech Link

9. Easter Adjournment
29/03/2018 - Commons Chamber

1: ordinarily promote the Daily Mail, but its online petition opposing this decision now has more than 200,000 - Speech Link
2: delighted to welcome the Secretary of State for Health to our first-class hospital in Southend earlier - Speech Link

10. International Women’s Day
07/03/2019 - Lords Chamber

1: together, to celebrate the remarkable achievements of women and to commemorate the great progress we have made - Speech Link

Latest Speeches
Recent Questions related to Increase funding for research into Endometriosis and PCOS.
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Many women seldom get the medical attention they require, or frequently have their symptoms miscalculated.

Due to personal experience, we are aware that the average time taken for a full diagnosis for endometriosis is 7 1/2 years in the UK.

A cure for these conditions has not yet been found.
It is important to us to start a conversation, to hopefully achieve funding to eventually find a cure for these conditions, or find more legitimate ways of treating symptoms.

Government Response

The Government recognises the importance of research into endometriosis and polycystic ovary syndrome. The Government is funding a broad range of research through its funding organisations.

The Government is aware of and sympathises with the hardships faced by women who experience severe symptoms from conditions such as endometriosis and polycystic ovary syndrome. While treatment is available, NHS England highlight that symptoms for both conditions vary widely, including in terms of severity. It is therefore important to seek clinical advice if women notice symptoms about which they have concern.

The Government funds medical research through the National Institute for Health Research (NIHR) and UK Research Innovation (UKRI). In the last five financial years to 2019-20, the NIHR and UKRI have awarded £8.52m for research into endometriosis and £6.60m for research into polycystic ovary syndrome. This includes a wide range of projects from basic science through to applied health research into diagnosis, treatment and service delivery.

Examples of research includes: a project, hosted by the NIHR School for Primary Care Research, examining what happens in primary care when women consult with endometriosis-like symptoms in order to start addressing delays in diagnosis and treatment and lead to improvement in care for women; and a randomised controlled trial exploring the use of two different treatment options for women with polycystic ovary syndrome whose eggs do not release from their ovaries to determine the most effect effective drug, or combination of drugs, needed to ensure women are offered the best available care with minimum side effects and spared the need for more invasive and costly fertility treatments. Other Government-funded research includes studies to investigate new therapeutics, the genetic basis for polycystic ovary syndrome, clinical prediction models of whether surgery will be successful for endometriosis, pain management trials and research to improve reproductive outcomes for women with these conditions.

The NIHR engages and involves patients, carers and the public in all the processes by which research is identified, prioritised, designed, conducted, evaluated and disseminated to improve the reach, quality and impact of the funded research. Women with endometriosis and polycystic ovary syndrome play a vital role in the research identified above.

The NIHR welcomes funding applications for research into any aspect of human health, including endometriosis and polycystic ovary syndrome; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.

To support women with endometriosis, all obstetricians and gynaecologists have been trained in the diagnosis, investigation and management of the condition, which is specifically listed as a topic in the core curriculum for obstetrics and gynaecology.

NHS England expects providers to adhere to NICE guidance regarding the diagnosis, management and treatment of endometriosis available at NHS England also recommends the European Society of Human Reproduction and Embryology (ESHRE) guidelines on the management of women with endometriosis The guidance offers best practice advice on the diagnosis and treatment of women with suspected endometriosis as well as the effectiveness of medically assisted reproduction for endometriosis-associated infertility. It also provides information on the management of patients in whom endometriosis is found incidentally (without pain or infertility).

Polycystic ovary syndrome is a multifaceted, polygenic condition that often starts in adolescence and may have lifelong effects - through reproductive years to post-menopause. While there is currently no “cure”, there are several options for treatment and ways that individuals can alter lifestyle to ameliorate symptoms. Those who are overweight tend to have worse symptoms and long-term consequences and are less likely to respond to treatment.

There are many effective treatments and a large body of research looking at evidence-based therapy - whether for symptoms of hyperandrogenism, menstrual cycle disturbance or infertility. There are a number of consensus papers outlining the best approach for investigation and management.

NHS England advise that the UK patient support organisation Verity provides resources for patients as does the Women’s Network pages of the Royal College of Obstetricians and Gynaecologists’ website.

Department of Health and Social Care