(6 days, 8 hours ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
It is a pleasure to serve under your chairship, Dame Siobhain. I congratulate the right hon. Member for South Holland and The Deepings (Sir John Hayes) on securing this important debate on an issue that touches many thousands of lives across the country. I acknowledge and thank all hon. Members for the stories of their constituents that they have shared today.
I begin by paying tribute to the right hon. Gentleman and the all-party parliamentary group for acquired brain injury for shining a light on what has too often been an invisible issue. Through its recent report, “Right to Rehab: The Cost of Acquired Brain Injury to the UK Economy”, the all-party group, ably supported by the UK Acquired Brain Injury Forum, has demonstrated both the human and the economic imperative for action. That report reveals the staggering £43 billion annual cost of ABI to our economy. It makes a compelling case for improved rehabilitation, cross-Government co-ordination and investment in specialist services. That work has helped to drive vital conversations across health, justice, education and beyond to ensure that people living with ABI are no longer overlooked.
Recently, I was delighted to be able to attend and speak at the UKABIF annual ABI summit last month, where I met key stakeholders, including people with lived experience, for a panel discussion on the stage and at a separate meeting afterwards. I have taken away some important calls for action from those discussions. The Government have also listened to the calls of the all-party group and others for a dedicated plan. I reassure the right hon. Member for South Holland and The Deepings and others that we remain committed to delivering on that promise.
In the coming months, in the first half of next year, I confirm that we will publish the acquired brain injury action plan, a landmark step in delivering the joined-up approach that people with ABI deserve. I also confirm that when we publish it, that plan will draw on a wide range of evidence, including the evidence that was submitted in the 2022 call for evidence. The plan will set out clear priorities across health, social care, education, justice and beyond in a bid to move towards rehabilitation and long-term support being better embedded throughout public services. It will reflect continuing engagement with clinicians, charities and people with lived experience. It will provide the blueprint for improving outcomes, reducing inequalities and supporting independence.
All the Minister has said so far is incredibly welcome. On ministerial engagement, given what she said about the cross-departmental working, which I called for earlier, is she engaged with the Ministers in those Departments in drawing up the plan and, if so, how?
I am just coming to that, so the right hon. Member’s intervention was very timely. As has been highlighted, the plan matters, because ABI is not just a health issue; it touches education, employment, justice, work, benefits, housing, homelessness and many other areas of life. Without co-ordinated action, too many people will continue to fall through the gaps.
In the first instance, therefore, I have started conversations with ministerial colleagues who have responsibility for education at the DFE, for the criminal justice system at the MOJ, for housing and homelessness at the Ministry of Housing, Communities and Local Government, and for work and benefits at the Department for Work and Pensions. The Department also reached out to those working on transport, sport and defence, among others, asking them to commit to tangible actions in the ABI plan. I note the suggestion of my hon. Friend the Member for Bury North (Mr Frith)—he is no longer in his place—and we will give that consideration.
The plan will build on already excellent work that is going on across Whitehall, helping to tackle the impacts of ABI directly or indirectly. That includes the Ministry of Justice’s update to its new neurodiversity action plan; working with the Department for Transport on its road safety strategy; the Department for Education’s planned consultation on an updated version of supporting pupils with medical conditions at school; and the Home Office-led work to tackle domestic abuse.
I also confirm, as was raised by the hon. Member for Bath (Wera Hobhouse), that the Government are committed to advancing research into ABI in sport. We recognise the significant impact of sports-related head injuries on long-term health outcomes. Through the National Institute for Health and Care Research, we are co-funding a major initiative, the UK traumatic brain injury platform. In addition, the Department for Culture, Media and Sport established the concussion in sport research forum, in which we are working alongside them.
We recognise that developing the plan is taking slightly longer than we had originally wished, but I reassure right hon. and hon. Members that that is not because of a lack of commitment; it is because we want to get it right. We want to take ABI stakeholders with us and to set the plan against the new health and social care landscape described in this summer’s 10-year health plan. In Manchester last month, I had the opportunity, as I said, to hear directly about potential solutions and opportunities from those at the coalface.
ABI affects every facet of life, and creating a plan that truly delivers requires co-ordination across multiple Departments and extensive stakeholder engagement, as well as alignment with wider reforms and developments such as the 10-year health plan, neighbourhood health services, new NICE guidance on rehabilitation and NHS England’s recently refreshed service specification for adult neurology services. That will mean that, although the report may be slightly delayed, it will have a comprehensive cross-Government approach to drive real change by improving rehabilitation, reducing inequalities and supporting people with ABI to live independent and fulfilling lives.
I know that the all-party group, the right hon. Member for South Holland and The Deepings, my hon. Friend the Member for Hartlepool (Mr Brash), and the Lib Dem spokesperson, the hon. Member for Mid Sussex (Alison Bennett), all recognise that rehabilitation is the cornerstone of recovery and independence. Reports from the APPG and UKABIF have made it clear that timely, specialist rehabilitation can transform lives. Rehabilitation is what turns survival into quality of life, enabling people to return to work, education and their communities. The APPG has consistently championed a statutory right to rehabilitation because it knows that too many people face fragmented services and missed opportunities, and as a result their health deteriorates once they are back in the community.
What the final action plan will say on community rehabilitation will be worked through carefully with stakeholders and with NHS England to ensure that we get it right. We must ensure that our proposals are feasible and viable. However, at the absolute minimum, it will highlight the new NICE guidelines on rehabilitation, setting the expectation that the NHS should take these into account, as well as showcasing the best practice that already exists.
Many hon. and right hon. Members raised data sharing. I am keen to pursue better data sharing on ABI across Departments and the NHS to ensure that our response is joined up and that it improves patient identification, care and support. Rehabilitation is a central focus of our 10-year health plan, which recognises that timely, high-quality rehabilitation reduces long-term disability, improves quality of life and saves significant costs for both health and social care. By embedding rehabilitation into integrated care pathways, expanding community-based services and investing in specialist multidisciplinary teams, the 10-year health plan will ensure that support is available when and where it is needed, including for people who have experienced ABI. That commitment reflects a shift towards person-centred care, helping people to regain skills, to return to work or education, and to live fulfilling lives after serious illness or injury.
Through the 10-year health plan, we are introducing neighbourhood health centres and deploying multi- disciplinary teams to provide holistic support to people with conditions like ABI. We know that every ABI journey is different, and recovery depends on care that reflects individual needs, goals and circumstances. That is why the plan promises to expand personalised care approaches, giving people a say in their care. We commit, therefore, to providing 95% of people with complex needs with a personalised care plan by 2027. That means that people with ABI will benefit from structured and co-ordinated support that is tailored to their needs. The expansion of personal health budgets outlined in the health plan will give people greater flexibility, choice and control over their care.
Our digital transformation commitments will make a real difference too. By improving data sharing between health, social care and rehabilitation services, we can ensure continuity of care and avoid delays. Digital care plans will allow patients and professionals to track progress and adjust goals in real time. Those innovations mean more personalised and co-ordinated care. I am really keen to explore better data collection and sharing between the NHS, patient groups, researchers and those with lived experience across my long-term conditions portfolio, which includes ABI. There are ongoing discussions within the Department on how we might be able to improve the quality of, and access to, health data. I know that there is some great data out there, but too often access to it is too restricted.
The Government will publish the 10-year workforce plan in spring 2026. This will set out action to create a workforce that is ready to deliver the transformed service set out in the 10-year health plan.
My hon. Friend the Member for Blaydon and Consett (Liz Twist) mentioned mental health. NHS talking therapies have a specific pathway for people with long-term physical health conditions, including ABI, and all ICBs are expected to expand services locally by commissioning NHS talking therapies services integrated into physical healthcare pathways, including those for ABI.
Together with the ABI action plan, the 10-year health plan and the 10-year workforce plan will represent a step change in how we support people with ABI. The action plan will deliver a joined-up approach across health, social care, education, justice and beyond, ensuring that rehabilitation and long-term support are no longer fragmented. The 10-year health plan complements this by embedding personalised care planning, expanding community rehabilitation and harnessing digital innovation. These commitments will mean better access to timely, tailored services, improved continuity of care, and a focus on independence and quality of life. By working collaboratively across Government, the NHS and stakeholders will turn these plans into action and deliver the outcomes that people with ABI deserve.
I have covered as many issues as possible. There are some that I do not have immediate information about, but I will write after the debate to the shadow Minister, the hon. Member for Sleaford and North Hykeham (Dr Johnson), about her question on mechanical thrombectomy. By working together right across Government and making sure we have joined-up data and joined-up thinking, we will bring forward the action plan on ABI in the first half of 2026 to deliver the outcomes that people with ABI deserve and need.
(1 week, 2 days ago)
Written StatementsI am pleased to announce to the House that today the Government will publish its HIV action plan, setting out how we will achieve our ambition to end HIV transmissions within England by 2030.
We are at a pivotal moment in the fight against HIV.
Over the past two decades in England, the epidemic has been transformed, and in the last five years we have made major progress in prevention, testing, PrEP use and treatment.
However, progress is slowing. New diagnoses fell by 2% from 2023 to 2024, with progress not benefiting all groups equally. For example, in white gay, bisexual and other men who have sex with men (GBMSM), diagnoses fell by 11% from 2020 to 2024, but among ethnic minority GBMSM, they increased by 50% over the same time period.
The epidemic we face today is broader and more complex, requiring an equitable, evidence-driven response.
As set out in our 10-year health plan ending HIV transmission is a national priority for this Government, supporting the three major shifts our health system needs: from hospital to community, from treatment to prevention, and from analogue to digital.
The plan I am announcing today has been developed by my Department, in partnership with the UK Health Security Agency and NHS England, and informed through extensive engagement with other Government Departments, local government, voluntary and community sector partners, sexual health stakeholders and—crucially—with people with lived experience.
Our plan sets out a clear framework for action, backed by over £170 million in funding over the next three years.
It focuses on five core themes: prevent, test, treat, thrive and collaborate.
Through these themes, the plan commits to:
Prevent HIV transmission through equitable access to HIV prevention services.
Scale up testing to reduce transmission and protect people’s health.
Rapidly linking and retain people living with HIV in care, ensuring individuals can live healthy lives and cannot pass it on
Address stigma and improve the quality of life for people living with HIV.
Strengthen the healthcare system to improve HIV and wider sexual health.
Importantly, this plan sets out the national, regional and local actions required to accelerate progress and deliver.
It will enable Government, the NHS, UKHSA, local government, academia, industry, the voluntary and community sector, and people living with HIV to work together to engage everyone in prevention, testing and treatment, and to tackle stigma.
I would like to thank the many individuals and organisations who have supported the development of this plan, including community partners and those with lived experience. Their insights have been invaluable in shaping actions that will meet real needs and address health inequalities.
I too am very grateful for the cross-party support that has helped shape this plan and for the foundations we have built this on. Working together in this spirit will be essential to tackling HIV going forward and to reach our ambitions. I urge all members to lend their backing to this plan so we can deliver meaningful change across the country.
[HCWS1107]
(1 month ago)
Written StatementsExercise Pegasus, the Tier T pandemic preparedness exercise led by the Department of Health and Social Care with the UK Health Security Agency, will conclude live participation on 5 November 2025.
Exercise Pegasus has been the largest simulation of a pandemic in UK history, involving every Government Department, the devolved governments, representation from arm’s length bodies, local resilience fora, and the engagement of businesses, academics, and external stakeholders.
Across three core exercise days, held on 18 September, 9 October and 30 October, participants were challenged to respond across the key phases of a pandemic—emergence, containment and mitigation.
Exercise Pegasus was based on a novel enterovirus originating from a fictional island. Enteroviruses are a group of viruses that usually cause mild illnesses but can lead to serious conditions such as meningitis or acute flaccid paralysis. While the exercise used a single disease to drive the scenario, learning will be applicable across a range of diseases and modes of transmission. The Government continue to plan and prepare for a range of pandemic and emerging infectious disease scenarios.
Although live participation in Exercise Pegasus has now concluded, critical work continues. A fourth phase—recovery—is planned to be exercised in 2026. Findings will be published as part of the Government’s commitment to transparency.
[HCWS1015]
(1 month, 1 week ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
It is a pleasure to serve under your chairship, Ms Jardine. I thank my hon. Friend the Member for Isle of Wight West (Mr Quigley) for this important debate and all hon. Members who have contributed. I thank my hon. Friend the Member for Neath and Swansea East (Carolyn Harris) for raising the report by the APPG for beauty and wellbeing; I look forward to considering it in the new year. I thank the shadow Minister, the hon. Member for Sleaford and North Hykeham (Dr Johnson), for raising the issues of sun damage and sunbeds. I am exploring options with respect to those issues and will report to Parliament as necessary.
Let me say how sorry I was to hear about the heartbreaking circumstances of Zoe’s story. My sympathies are with her family. I was honoured to meet them and hear their story at first hand earlier this month, and I am glad to see some of them in the Public Gallery today. I commend their campaigning in Zoe’s name.
I would also like to take a moment to acknowledge the personal experience of my hon. Friend the Member for South Norfolk (Ben Goldsborough) with stage 2C malignant melanoma. I commend his courageous efforts to share Zoe’s story alongside his own. From awareness-raising, better regulation and improved diagnostics, all the way through to fundamentally reforming the NHS, we will seize every opportunity to learn from preventable and unnecessary tragedies like Zoe’s, to help to save the lives of others.
The last time that I checked, the petition for Zoe’s law had received almost 40,000 signatures and many more people will have seen Zoe’s story in the news. Just a couple of weeks ago, my right hon. Friend the Prime Minister paid tribute to Zoe’s family for their work. I commend all those who have raised awareness of skin cancers through Zoe’s story, because the faster and earlier that people are diagnosed with skin cancer, the faster they can begin treatment and the more effective that treatment can be.
The Government are taking steps to promote awareness of signs and symptoms through the NHS’s “Help Us Help You” campaigns, which aim to increase knowledge of cancer symptoms and encourage body awareness, helping people to spot symptoms earlier. Let me also take this opportunity to further promote the NHS’s clear and accessible information about how to check moles. That guidance is available to everyone on the NHS website and makes it easier for people to recognise when they should seek medical advice.
Most importantly, however, Zoe’s story demonstrates that even when someone does the right thing and raises concerns with their GP, accurate referrals to cancer services need to be in place. Let me stress that every patient should receive the thorough, compassionate and safe care that they deserve. Our GPs also need support to catch potentially deadly illnesses, including skin cancer, sooner. That is why, as a number of hon. Members mentioned, we recently introduced Jess’s rule, a new patient safety initiative designed to support GPs in making timely diagnoses. In practice, it means that if a patient returns to their GP three times with symptoms that are either worsening or still undiagnosed satisfactorily, GPs are asked to reflect, review and rethink. The aim is to make sure that no warning sign is missed and that every patient receives the attention they deserve.
I want to reassure hon. Members and others that the Government are committed to ensuring the highest standard of patient care by equipping healthcare professionals with the latest best practice clinical guidance. The National Institute for Health and Care Excellence provides evidence-based guidance for the NHS on best practice. NICE has published several guidelines that include recommendations related to the diagnosis, assessment and treatment of skin cancer, including a guideline on referrals for suspected cancer, which was updated in May.
Our commitment to best practice means that histological testing on excised moles is already routine practice in the NHS. There is not NICE guidance for the cosmetic industry, because it is not NHS-funded, but I know that the safety of the cosmetic sector is of significant interest to colleagues. Many Members will no doubt be all too aware of the devastating consequences of a wide range of unsafe cosmetic practices. Since I met Zoe’s family, my office has written to colleagues at the Department for Business and Trade to get a better sense of practice and to explore what it is possible for us to do in this space.
My Department will also consider whether Zoe’s story can be incorporated into action that we are taking to improve the safety of the cosmetic sector as a whole. We are prioritising developing legal restrictions on high-risk cosmetic procedures, to ensure that they can be performed only by suitably qualified and regulated healthcare professionals who are working for providers registered with the Care Quality Commission. Additionally, we will introduce a local authority licensing scheme in England for lower-risk cosmetic procedures. Licensing will enable us to embed rigorous safety training and insurance standards in the sector, and enable action to be taken against practitioners who fail to comply with the requirements. These measures will allow people to be confident that the practitioner they choose to perform their procedure has the skills to do so safely.
It is important to note that for the majority of skin cancer patients, diagnosis and treatment occur in a timely manner. To ensure that we continue to improve our strong performance and survival rates, we are spending £600 million of capital funding this year on diagnostics. That sum includes, for the first time, funding for the automation of histopathology laboratories to improve productivity. Thanks to the hard work of NHS staff, we exceeded the faster diagnosis standard for skin cancer in August, when more than 80% of patients received an all-clear or a cancer diagnosis within 28 days. The 62-day cancer waiting time for skin cancer was 84.9%—the standard is 85%, so it was just shy—and the five-year survival rate for melanoma is now around 92%.
However, we know there is more to be done. In the longer term, as part of our 10-year health plan, we are ensuring that the NHS is able to harness the power of technological innovation to improve the prevention, diagnosis and treatment of all cancers, including skin cancer. By using innovative technologies such as teledermatology, in which a high-resolution photograph is taken of the skin and sent directly to a dermatologist, we are increasing diagnostic productivity and reducing waiting times for skin cancer patients. We will ensure that no one waits longer than they should.
I called for teledermatology on another occasion because it absolutely works. Does the Minister have any figures on how many GPs are using that as the basis of their diagnosis? My husband recently went to our GP and he was still referred to the hospital, so I am not confident that a lot of GPs are making use of it.
The majority of those services are provided through community diagnostic centres. I do not have any figures to hand but I am more than happy to write to the hon. Member with whatever figures we have available.
Within those services, we have recently begun testing AI-based platforms to triage patients following referral from primary care. I have seen at first hand how useful AI can be in flagging potentially risky images so that the consultant can prioritise and explore them. I know that my hon. Friend the Member for South Norfolk takes a keen interest in those developments. Further roll-out of AI in the NHS for this purpose will be subject to assessments of clinical effectiveness and cost-effectiveness, which are ongoing, but I can say from first-hand experience that it offers a very exciting opportunity and falls distinctly within our ambition for the shift from analogue to digital.
Although immediate action is essential, we recognise that bold reform is needed if we are to rise to the growing challenge that cancers of all types present. We will publish the national cancer plan in the new year to reduce the number of lives lost to cancer over the next 10 years. We have received over 11,000 responses to our call for evidence from individuals, professionals and organisations, and we are reviewing the submissions from skin cancer partners. Publication has been delayed by about six weeks to ensure that all the responses are properly considered in the plan. Our expansive engagement will allow the national cancer plan to have patients at its heart. The plan will cover the entirety of the cancer pathway, from referral and diagnosis to treatment and ongoing care.
I thank my hon. Friend the Member for Isle of Wight West again for bringing this important matter to the House, and I thank all Members who have contributed. I am pleased to assure them that we are undertaking immediate actions to learn from Zoe’s story. Combined with our bold reforms to create a health service that is fit for the future, we will reduce the number of lives lost to the biggest killers, including skin cancer.
(1 month, 2 weeks ago)
Commons Chamber
Mr Peter Bedford (Mid Leicestershire) (Con)
I reiterate my deepest sympathies to all those who have experienced harm following vaccination and to their families. I recognise many of the concerns that campaigners have raised regarding the vaccine damage payment scheme. Their input will shape our ongoing consideration of reforms to the scheme and I will keep Parliament updated as appropriate.
Mr Bedford
My constituent Kelly Hatfield sadly lost her father Ken Purnell as a result of the covid-19 vaccination. The family received a vaccine damage payment, yet the sum, which has not increased since 2007, falls short of the loss, trauma and long-term financial impact on these families. Will the Minister explain why that one-off payment has not been inflation-adjusted and will she commit to reviewing its adequacy and fairness?
The vaccine damage payment scheme is not a compensation scheme but a one-off payment. It is important to state that. As I have said, we recognise that there are concerns, which campaigners have raised, and their input is shaping our ongoing consideration of reforms to the scheme. All vaccines in the UK are authorised by the Medicines and Healthcare products Regulatory Agency, which is an independent body recognised globally for its high safety standards. This Labour Government base our decisions on scientific fact, unlike Reform, which has still not apologised for platforming dangerous anti-vax conspiracy theories. I can only assume that it is less interested in protecting people than it is in alarming folk for political advantage.
Shaun Davies (Telford) (Lab)
Dr Lauren Sullivan (Gravesham) (Lab)
This Government are investing an extra £26 billion in the NHS, opening up community diagnostic centres at evenings and weekends and delivering 5 million more appointments to catch cancer earlier. We are making progress: 135,000 more patients have already had cancer diagnosed or ruled out within the 28-day target compared with the previous year—a lot done, and a lot more to do.
Dr Sullivan
A local teacher went to her GP with clear symptoms of a facial tumour but was told it was simply the effects of age. It took almost two years to receive a confirmed diagnosis, including eight months lost in the system after an urgent referral. Does the Minister agree that reducing times for cancer diagnosis must start with strengthening systems to support early recognition and follow-up, so that no one is left waiting? I wish the Minister well with her own cancer battle and thank her for bravely sharing her experience of living with cancer.
I thank my hon. Friend for her question and her well wishes. We are taking cancer detection seriously in general practice, and there is work to do. It is why we have recently launched Jess’s rule, which is a patient safety initiative that means when patients return three times with worsening or undiagnosed symptoms, GPs must reflect, review and rethink. That could include a second opinion, episodic continuity of care or ordering additional tests. I wish her constituent the very best and offer her my sympathies in her diagnosis.
The Government claim that they wish to reduce NHS waiting times, but I have written confirmation from the Government that they have slashed funding for community diagnostic centres. The consequences of Labour’s funding cuts mean that brand new facilities, such as those at Queen Mary’s hospital in Sidcup, for which I secured £9.6 million of funding from the last Conservative Government, can now open only two days per week. Will the Minister urgently review that funding cut, so that more patients in Bexley and across the UK can get their diagnostics quicker?
I thank the hon. Gentleman for his question, but I think he might be mistaken. We are opening more CDCs than ever before—I have lost count of the amount of CDCs we have been invited to open—and we are making sure that people have access to diagnostics in their community, from hospital to community, with the most access that there has been for some years.
Katie Lam (Weald of Kent) (Con)
This Government are committed to improving survival for blood cancers, including acute myeloid leukaemia. We are raising awareness, delivering more research, and improving early diagnosis. Blood cancer is the third biggest cancer killer, and the fifth most common cancer in the UK. That is why we are committed to developing a national cancer plan, with patients at its heart, covering the cancer plan from referral and diagnosis to treatment and ongoing care. Having consulted with key stakeholders and patient groups, I confirm that that plan will be published early in the new year.
I thank the Minister for her response. My constituent Ruth Wake, who lives in Brewood, was tragically diagnosed with acute myeloid leukaemia in January last year. She has gone through chemotherapy and a stem cell transplant, and while she has made good process and is in remission, sadly the stem cell transplant has failed after nine and a half months. Under the current rules, if it fails in under a year she cannot have a second stem cell transplant. I know the pressures that the Minister is under in terms of her time, but my constituent has so little time. Could she look at this particular case, and also look at guidelines from the National Institute for Health and Care Excellence, which were written over 12 years ago? Science and treatment have moved so rapidly, and I wonder if the Minister could look at both those points.
I thank the right hon. Gentleman for his question and offer my best wishes to his constituent Ruth in her treatment. I thank him for bringing her story to my attention. I really do appreciate—perhaps more than most—the urgency of the matter. Although I am unable to comment on individual cases, I understand that one of my ministerial colleagues will be writing to the right hon. Gentleman directly on this matter in the very near future.
Peter Prinsley (Bury St Edmunds and Stowmarket) (Lab)
This week we learned about the incredible results of the Galleri trials, which allow the early identification of many tumours by looking at DNA circulating in the blood. Indeed, I was a volunteer in this trial. Will the Secretary of State join me in recognising the central importance of medical research?
Absolutely. The new progress, particularly around circulating tumour DNA, is really interesting, and we are moving forward with more investment in research so that we can bring forward more such treatment.
Adam Thompson (Erewash) (Lab)
As a migraine sufferer, I am afflicted about once a week by debilitating symptoms, which always include partial blindness, and sometimes include numbness in my fingers, nausea, brain fog, sensitivity to light and sound, a pounding headache and even an inability to speak—heartbreaking for a politician. I am very lucky, though, that my migraines generally only last half an hour; other people’s can be much worse and last days. What steps is the Minister taking to improve support for migraine sufferers like me?
At national level, a number of initiatives support service improvement and better care for patients with migraine. The Getting It Right First Time neurology programme published a national specialty report that made several recommendations to improve recognition and diagnosis of migraine by GPs. Additionally, the RightCare toolkit sets out key priorities for improving care for patients with migraine, including correct identification and diagnosis, and NHS England has established a multi-year, clinically led neurology transformation programme—so, lots.
Several hon. Members rose—
Helena Dollimore (Hastings and Rye) (Lab/Co-op)
Jules Fielder is a young woman from Hastings who has tragically been diagnosed with terminal lung cancer after doctors repeatedly missed the early symptoms. Jules is now channelling her personal tragedy into action and campaigning to raise awareness of early symptoms, and she wants shops like Boots and Superdrug to use their shelf space to raise awareness. Will the Minister join me in paying tribute to Jules’s amazing campaigning work?
I thank my hon. Friend for raising this issue, and I offer my sympathy and best wishes to Jules and her family. Of course, I commend her awareness-raising work, which is really important. Her experience is one of the reasons why we are rolling out targeted lung screening and starting to use artificial intelligence to detect discrepancies in screening.
Children in Runnymede and Weybridge are waiting on average two years to get a diagnosis of autism or attention deficit hyperactivity disorder from Surrey and Borders Partnership NHS foundation trust. The trust is deviating from national guidance on new developmental pathways, and waiting times are even greater if children need medication. Does the Secretary of State share my concerns, and will he investigate the trust and make sure that children and families get the support that they need?
(1 month, 3 weeks ago)
Written StatementsThe Committee on Mutagenicity of Chemicals in Food, Consumer Products and the Environment is an advisory non-departmental public body sponsored by the Department of Health and Social Care.
COM’s members serve on a voluntary basis and are not remunerated. Their highly valuable independent expert advice informs policy decisions across Government on appropriate safeguards on health risks from mutagenic compounds in consumer products, for example restrictions or regulations on contaminants in food packaging.
Earlier this year, the Cabinet Office undertook a review of arm’s length bodies in line with the aims of the plan for change as set out by the Government. As part of the outputs of this review, COM will be reclassified as a departmental expert committee.
COM will continue to maintain the current remit, secretariat and membership to allow the continuity of its work and secure its critical functions with no disruption to its operations or expert advice.
[HCWS963]
(1 month, 3 weeks ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
It is a pleasure, as always, to serve under your chairmanship, Sir Desmond. I congratulate my hon. Friend the Member for Lancaster and Wyre (Cat Smith) for bringing forward this important issue.
This place is vastly enriched by our experiences, and it is nothing short of inspiring how my hon. Friend’s diagnosis has led her to become a passionate advocate for the PoTS community, raising awareness and holding the Government to account. I thank her for sharing her story and Elise’s case with me. I assure my hon. Friend and Elise that tackling health inequalities is my No. 1 priority as the Minister for Public Health and Prevention.
I also thank many hon. Members for their interventions and for sharing their constituents’ stories. Given this short debate, there is not time to respond to each intervention—I will not even attempt to do so—but I assure hon. Members that their points have been noted and that their presence today is testament to the importance of the issue for hon. Members on both sides of the House. I recognise that people with PoTS wake up and confront every day through sheer willpower, and that showering, cooking and walking to the corner shop each become small expeditions that need endless rest and planning. We are determined to help improve their lives.
Postural tachycardia syndrome, more commonly known as PoTS, is not a rare condition. It affects around 120,000 people in the UK. It is a debilitating, multi-system disorder that can significantly impact someone’s quality of life. As my hon. Friend the Member for Lancaster and Wyre points out, the path to a PoTS diagnosis is often a long and arduous one, filled with frustration and misdiagnosis as patients fight to be heard. Even after a diagnosis is made, patients may struggle to access the services that they need due to a lack of specialist care and limited understanding among health professionals. That results in long delays in treatment, often leaving those affected unable to work or live their lives.
I turn to the specific issues raised by my hon. Friend, starting with guidance. For too long, patients have faced systemic barriers to care and an unacceptable postcode lottery for support. It cannot be right that in modern Britain, where someone happens to be born determines the care that they receive. She rightly points out that that inequality is rooted in the lack of clear national guidance for healthcare professionals. Without guidance from bodies such as NICE, clinicians often lack the confidence and know-how to identify and manage this complex condition effectively.
There are some reasons for the difficulty in providing such guidance, including the amount of available evidence, the fact that PoTS is often managed with lifestyle changes, and the overlap with other conditions such as long covid and myalgic encephalomyelitis/chronic fatigue syndrome, which can bring similar debilitating symptoms. All those issues can make the development of clearcut guidelines challenging. However, in its clinical knowledge summary on blackouts and syncope, NICE sets out in black and white a clear definition of PoTS with the right tests to diagnose it, and symptom-based management. NICE has also published guidance that mentions PoTS in relation to other conditions, such as its guideline on ME/CFS, which acknowledges the overlap between these syndromes. Several other organisations, including PoTS UK and the international Heart Rhythm Society, provide information too.
Services for long-term conditions such as PoTS are commissioned locally through integrated care boards. That approach gives local clinicians the flexibility that they need to tailor services to the specific needs of their communities. Providing a PoTS specialist service is a fundamental part of the ICBs’ statutory role in planning and delivering health to the people they serve, and when an ICB fails to meet its statutory functions, NHS England has a range of proportionate enforcement powers. Let me be clear: we expect NHS England to hold ICBs to account by demanding that they provide clear assurance on how they are meeting their responsibilities, and where they are failing people with PoTS—let me say this very clearly, publicly, now—we expect them to rectify it.
I thank my hon. Friend for her intervention. As we know, guidelines are only as strong as the evidence and research that they are based on. We need systematic, robust data to determine which treatments and interventions are most effective.
While we are backing our life sciences sector to come up with tomorrow’s treatments for long-term conditions, we are also directly funding research through the National Institute for Health and Care Research. The NIHR is currently backing a study, known as the LOCOMOTION study, with more than £3 million to examine the connection between long covid and autonomic nervous system disorders, especially PoTS. The NIHR funds research proposals through open competition, based on their scientific quality, value for money and impact on patients. The NIHR welcomes research proposals, and I appeal to any researchers to apply with proposals for PoTS-related research that this Government could fund. We want to see proposals and fund those that can be brought forward. Those researchers’ work could be life-changing for thousands of people across our country.
Locally developed care pathways are clearly important for supporting people with PoTS, because they help to address the condition’s unique challenges.
There are very few PoTS specialists across the country. Will the Minister meet those specialists to hear why they are facing barriers, and work with them to ensure that they can practise the medicine they know works?
The hon. Member pre-empts the end of my speech, where I was going to say that I would be more than happy to meet specialists in this area to discuss how we can move forward. It is important that today’s debate is the beginning of our conversation, not the end of it.
The Government are focused on standardising and co-ordinating care across different settings so that local pathways can address systemic challenges, especially the inconsistent referrals that many people with PoTS face, as has been raised today.
Cameron Thomas
Between young people unable to finish education and adults unable to cope with the strains of the workplace, the economic impact of PoTS is undeniable. The Minister speaks clearly about the pressure her Department will put on NHS England, but will she also put pressure on the Treasury with regards to its economic obligations?
As the hon. Member is probably aware, the Government are working hard to develop policies to support people, particularly people with health conditions, into work. These issues are being raised through the “Get Britain Working” plan, which my right hon. and hon. Friends in the Department for Work and Pensions are bringing forward. Working to support people with any long-term health condition, including PoTS, is a crucial part of the Government’s effort to improve the economy and get Britain working. The hon. Member’s comments are noted.
We are determined to improve patient outcomes and ensure more tailored and efficient care that acknowledges the complexity of PoTS, beyond just a single specialty. The Government’s 10-year plan for health not only deals with prevention, but offers potential for people with PoTS through the increased focus on community-based rather than hospital care, through the better integration of services, and through our analogue to digital shift and improvement of digital tools. Given that PoTS is frequently co-morbid with ME/CFS, the final delivery plan for ME/CFS, which the Government published this summer, will have a positive impact for many PoTS patients too.
I again thank my hon. Friend the Member for Lancaster and Wyre for securing the debate. As I said, I hope that this is the beginning of our conversation, and that we can continue to discuss how we can ensure we are delivering for people with PoTS as we work towards building an NHS that is fit for the future.
Question put and agreed to.
(2 months, 3 weeks ago)
Written StatementsI am today confirming that, on 18 September, Exercise Pegasus, the national tier 1 pandemic preparedness exercise set to assess the UK’s ability to respond to a pandemic, will commence.
A pandemic remains the top risk of the UK’s national risk register, and experts are clear that it is a case of when, not if, the UK will experience another pandemic. We cannot be prepared if we do not actively look for opportunities to test the country’s capabilities, plans, protocols and procedures in the event of another major pandemic. Exercise Pegasus is a prime opportunity to do just that.
Exercise Pegasus will be the largest ever simulation of a pandemic in UK history and will involve participation from every Department, the devolved Governments and representation from arm’s length bodies and local resilience fora.
The exercise is due to take place from September to November 2025, led by the Department of Health and Social Care and delivered with the UK Health Security Agency. Core exercise days have been confirmed for 18 September, 9 October and 30 October, simulating the first phases of a pandemic: emergence, containment, and mitigation. A fourth phase—recovery—is also planned for 2026. The UK Government have committed to communicating the findings and lessons of the exercise as recommended by the covid-19 inquiry and a post-exercise report will be delivered in due course.
[HCWS926]
(3 months ago)
Written StatementsThis Government have set a bold ambition to raise the healthiest generation of children ever, and that includes tackling the childhood obesity crisis. As part of this, we committed in our manifesto to implementing advertising restrictions for less healthy food and drink on TV and online.
I updated the House on 16 July, when launching a consultation on the draft regulations to provide an explicit exemption for brand advertising from the advertising restrictions. The consultation, which closed on 6 August 2025, reconfirmed the Government’s policy position that brand advertising that does not identify a less healthy food or drink product is out of scope of the restrictions. This was set out in my previous statements to the House and was understood by Parliament during the passage of the primary legislation—the Health and Care Act 2022, which amended the Communications Act 2003. The consultation sought views on the drafting of the regulations to ensure that they are clear and fit for purpose in achieving this.
We have carefully considered the responses, many of which were submitted on behalf of organisations from a range of sectors. The Department of Health and Social Care and the Department for Culture, Media and Sport also engaged with stakeholders throughout the consultation period to understand a broad range of views.
I am delighted to inform the House that the Government are today laying before Parliament the Advertising (Less Healthy Food and Drink) (Brand Advertising Exemption) Regulations 2025, and an explanatory memorandum. The Government will also be publishing our response to the consultation on gov.uk.
We have been careful to protect the primary policy objective by ensuring that the regulations set robust and objective criteria to permit only brand advertising that does not identify specific less healthy food or drink products. This means we are being tough on junk food advertising but not pigeon-holing brands as “less healthy”; instead, we are incentivising them to reformulate and promote their healthier products. The regulations will enable the regulators to provide clear guidance on how they will enforce the restrictions. They will also allow industry to invest in advertising campaigns with confidence that they will be compliant.
Laying this legislation today demonstrates our rapid progress towards implementing the advertising restrictions, which will take legal effect on 5 January 2026. As I set out in my previous written ministerial statement—[Official Report, 22 May 2025; Vol. 767, c. 51WS.]—we have secured a unique commitment from advertisers and broadcasters, with the support of online platforms, to voluntarily comply with the restrictions from 1 October 2025. We welcome this co-operation.
We will now work closely with Ofcom and the Advertising Standards Authority as they finalise their implementation guidance. I am delighted that, in taking this action, we are tackling childhood obesity head-on by removing up to 7.2 billion calories from UK children’s diets each year.
[HCWS917]
(3 months, 1 week ago)
Written StatementsThe Government committed in the King’s Speech to banning the sale of high-caffeine energy drinks to children in England. This action will help raise the healthiest generation of children ever, providing them with a better and more prosperous future. It is a key part of the Government plan for change to break down barriers to opportunity and shift the NHS from sickness to prevention.
I am pleased to update the House that today, the Department of Health and Social Care published a consultation on proposals to ban the sale of high-caffeine energy drinks to children under the age of 16 years.
Public health research has found that these drinks have little to no nutritional benefit. There is clear and increasing evidence that consuming high-caffeine energy drinks is associated with a range of negative outcomes for children’s physical and mental health. These include reduced sleep quality, increased headaches and emotional difficulties such as stress, anxiety and depression. Research also suggests possible impacts on children’s educational outcomes and increased likelihood of engagement with other harmful behaviours, such as smoking and vaping, and alcohol and other substance abuse.
In addition to being high in caffeine, these drinks can contain high levels of sugar, which is known to be linked with obesity and dental decay. Based on our estimates, detailed in our impact assessment published alongside the consultation, the proposed ban could reduce childhood obesity rates by the equivalent of about 40,000 children, and, over future years, deliver health benefits worth £7.7 billion through improved health outcomes, as well as NHS savings and increased economic productivity.
We estimate that around 100,000 children consume high-caffeine energy drinks at least daily in England. Of particular concern is the fact that research highlights that children living in more deprived areas and households are more likely to consume these drinks. This means the possible negative outcomes on health and education are likely to be felt unequally across society.
The consultation has been published on gov.uk and asks the public, professionals and organisations for their views on our proposals, including:
the minimum age of sale
the products and businesses in scope of the ban
how the ban will apply to vending machines
the length of time that businesses and local authorities need to implement the ban.
In addition, we ask local enforcement authorities and retailers for their views on our proposals for enforcing the ban.
The consultation will be open for 12 weeks. We encourage all interested stakeholders and members of the public to respond. An impact assessment has been published alongside the consultation, with further detail.
Following the consultation, we will review the next steps required to protect children in England from the reported harms of high-caffeine energy drinks.
I will update Parliament following the consultation.
[HCWS906]