Thalassaemia APPG

First Registered: 19/06/2019 • Last updated on: 06/10/2021

Official Page

To raise awareness of the blood disorder known as thalassaemia and to encourage policy changes that will support patients with this condition.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.

Current Members - Contact Details - Benefits in Kind - Financial Benefits - Former Members

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Recent Documents related to Thalassaemia

1. Sickle cell and thalassaemia screening: information for fathers
10/01/2020 - Public Health England (PHE)
- View source

Found: Guidance Sickle cell and thalassaemia screening: information for fathers Leaflet

2. Baby at risk of having thalassaemia: description in brief
12/01/2021 - Public Health England (PHE)
- View source

Found: Guidance Baby at risk of having thalassaemia: description in brief This information

3. Delta beta thalassaemia carrier: description in brief
02/10/2020 - Public Health England (PHE)
- View source

Found: Guidance Delta beta thalassaemia carrier: description in brief Information

4. Beta thalassaemia carrier: description in brief
02/10/2020 - Public Health England (PHE)
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Found: Guidance Beta thalassaemia carrier: description in brief Information to help

5. Alpha zero thalassaemia carrier: description in brief
22/02/2021 - Public Health England (PHE)
- View source

Found: Guidance Alpha zero thalassaemia carrier: description in brief Information

Latest Documents
Recent Speeches related to Thalassaemia

1. UK Rare Diseases Framework
24/03/2021 - Westminster Hall

1: cell and thalassaemia, I know that this subject is of great interest to people with thalassaemia. I will - Speech Link
2: Member for Thirsk and Malton (Kevin Hollinrake); thalassaemia, raised by my hon. Friend the Member for Enfield - Speech Link
3: mentioned—motor neurone disease, muscular dystrophy, PKU, thalassaemia, neurofibromatosis and Batten disease —are all - Speech Link

2. Sickle Cell Anaemia
10/12/2014 - Westminster Hall

1: constituency lies. The associated condition, thalassaemia, affects around 1,000 people, although hundreds - Speech Link
2: all-party parliamentary group on sickle cell and thalassaemia, chaired by the hon. Member for Hackney North - Speech Link

3. BAME Blood, Stem Cell and Organ Donation
27/06/2018 - Westminster Hall

4. NHS Long-Term Plan: Implementation
01/07/2019 - Commons Chamber

1: all-party parliamentary group on sickle cell and thalassaemia. Sickle cell is very much a hidden disability - Speech Link

5. Oral Answers to Questions
15/01/2013 - Commons Chamber

1: but patients suffering from sickle cell and thalassaemia in my constituency and elsewhere cause hospitals - Speech Link
2: as heart disease and possibly sickle cell and thalassaemia, may be year-of-care tariffs, which we are looking - Speech Link

Latest Speeches
Recent Questions related to Thalassaemia
Latest Questions
APPG Supplied Content

APPGs can register with Parallel Parliament and submit files and articles to be placed here.

Parallel Parliament offers the facility for APPGs to submit written content and files, which are made available through this page.

Submitters can draft and edit publications, and either release them on demand, or schedule release for a future date.

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9 Current APPG Officers
Bambos Charalambous Portrait
Bambos Charalambous
Chair & Registered Contact
Labour - Enfield, Southgate
Joined: 19th June 2019
Fabian Hamilton Portrait
Fabian Hamilton
Vice Chair
Labour - Leeds North East
Joined: 4th November 2020
Barry Gardiner Portrait
Barry Gardiner
Vice Chair
Labour - Brent North
Joined: 4th November 2020
Taiwo Owatemi Portrait
Taiwo Owatemi
Vice Chair
Labour - Coventry North West
Joined: 4th November 2020
Contact Details

Registered Contact:

Bambos Charalambous MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 3460.

Email: bambos.charalambous.mp@parliament.uk

Public Enquiry Point:

Romaine Maharaj, United Kingdom Thalassaemia Society, 19 The Broadway, London N14 6PH. Tel: 020 8882 0011

Email: info@ukts.org

No benefits in kind are on record for the Thalassaemia APPG

No direct financial benefits are on record for the Thalassaemia APPG

Former APPG Officers
Alberto Costa Portrait
Alberto Costa
Vice Chair
Conservative - South Leicestershire
Joined: 4th November 2020
Departed: 25th August 2021
Eleanor Smith Portrait
Eleanor Smith
Officer
Labour - Former Member for Wolverhampton South West
Joined: 19th June 2019
Departed: 5th November 2019
No other APPG Memberships
Cat Smith Portrait
Cat Smith
Officer
Labour - Lancaster and Fleetwood
Joined: 19th June 2019
Departed: 5th November 2019
Preet Kaur Gill Portrait
Preet Kaur Gill
Officer
Labour (Co-op) - Birmingham, Edgbaston
Joined: 19th June 2019
Departed: 5th November 2019