Dementia Care

Cameron Thomas Excerpts

Tuesday 3rd June 2025 Commons Chamber

[Cameron Thomas (Tewkesbury) (LD)]

I thank my hon. Friend the Member for South Devon (Caroline Voaden) for bringing this debate to the House. I would also like to give credit to the hon. Member for Hartlepool (Mr Brash), whose touching tribute to their father reminded me of the grandfather who I knew and loved, before dementia slowly stripped me of that man.

Dementia is a particularly cruel terminal illness and the leading cause of death in the UK. We each know somebody who is watching or who has watched somebody they love slowly fade from dementia. One day, some of our own children will slowly be robbed of us—perhaps, in time, my daughter will slowly suffer my own withdrawal. The very foundations of our characters are the memories of lives lived, and friends and families loved. Dementia steals away those memories, and with each memory lost, so too is a little more of that person. Children and grandchildren, once a source of joy and warmth, become strangers as the void left by lost memories is filled with confusion and fear. Confusion chips away at confidence while fear eats away at empathy. Once only a shadow of the person we love remains, dementia takes their independence. It comes for their speech, their ability to walk and even their ability to eat.

For those who shoulder the burden of care, the impact is profound, provoking competing feelings of sadness, anger and pride. Many do not realise that they are carers and soldier on in their duty to their loved ones without external support. Young carers, such as those I met recently in Twigworth, shoulder their additional responsibility through the most challenging period of their own development. Many do not know that they are carers, and too many are not identified as such by their schools or their authorities.

The financial burden of dementia on the UK economy is £42 billion per year, and £26 billion of that is borne by informal carers. Patients and carers alike are failed by dual crises in social care and the NHS, and the stresses imposed on patients only hasten their decline. Liberal Democrats have consistently called on this Government to address the growing social care crisis with a long-term plan, and I reiterate that we cannot adequately support the NHS without addressing social care.

Other Members have spoken at length about measures that the Government can take. I will not repeat those, but I will say that one area in which the Government can move quickly is dementia care skills, through tailored training for our health and care workers to better understand the needs of dementia patients. Too often, care is not adequately tailored for dementia. In Tewkesbury constituency, I am proud to have Gloucestershire’s sole dementia-only nursing home, Wentworth Court. I will be visiting it this week to listen to its needs and learn from its experience, and I will follow up by writing to the Secretary of State.

Parkinson’s Disease

Cameron Thomas Excerpts

Wednesday 21st May 2025 Westminster Hall

[Paul Davies]

I absolutely agree. This is not a case of placing people with Parkinson’s in the corner and providing them with medication; this is about helping them to lead full lives, improving their quality of life and aiding them to do what they want to do. I know from people I have met in the Parkinson’s community that that is exactly what they want to do, so I absolutely agree with my hon. Friend.

Early intervention can make a profound difference in how patients manage their condition and maintain their independence. For people with Parkinson’s, receiving medication on time—within 30 minutes of the prescribed schedule—is not a convenience; it is a necessity. Delays can lead to severe symptoms, including immobility, pain and, in extreme cases, life-threatening complications. However, more than half of hospitalised patients report problems receiving their medication on time.

[Cameron Thomas (Tewkesbury) (LD)]

A constituent of mine was diagnosed with Parkinson’s at the age of 61. Individual sufferers can experience the symptoms to varying degrees day by day, which brings into question the effectiveness of PIP assessments, the results of which can vary depending on when they are carried out. With medical assistance hard to come by, charities such as Parkinson’s UK and Cure Parkinson’s are vital to sufferers. Will the hon. Gentleman join me in thanking them and similar organisations for their support to these thousands of people across the country.

[Paul Davies]

I absolutely agree—the role they play is vital in terms of supporting this community. To be truthful, the people I have met in those groups are inspirational, as is the work they do, so I thank them for that.

NHS England’s medicine safety improvement programme, running from 2024 to 2027, is a welcome step. It aims to ensure that time-critical medications are administered promptly in hospitals, but we must ensure that the programme is fully implemented and that its findings are acted upon across all NHS trusts. Timely medication is a basic right for Parkinson’s patients, and we must treat it as such. In England, people with Parkinson’s still face prescription charges, unlike in Wales, Scotland and Northern Ireland. These charges can be a significant burden, especially for working-age patients, who may already face reduced income due to their condition. Research shows that eliminating these charges could reduce hospital admissions and save the NHS money, but Parkinson’s remains absent from the list of conditions exempt from charges—a list that has not been meaningfully updated in more than 60 years. It is time for a review. We must ensure that no one is forced to choose between their health and their finances.

New treatments such as Produodopa, which was approved for NHS use in 2024, offer hope for those with severe symptoms. This medication could be life-changing for patients whose symptoms are not well managed by the existing treatments. However, due to staffing and funding constraints, many hospitals are unable to offer it. We must ensure that all patients who need innovative treatments, such as Produodopa, can access them, and that the NHS is equipped to adopt new therapies quickly and equitably. Innovation must not be a postcode lottery.

I will now turn briefly to my constituency. Since being elected, I have had the privilege of meeting Dr Chris Ryan and Mrs Liz Ryan MBE. Over a cup of tea in February, they shared their experiences and highlighted the urgent need for better Parkinson’s care in Kirklees. Liz, who received an MBE for her services to education, continues to be a pillar of our community despite her diagnosis. Together they have organised local events, including a Parkinson’s choir that brings joy and support to many.

Following our meeting, I wrote to Kirklees council and Calderdale and Huddersfield NHS foundation trust to ask what more can be done. I also contacted the Department of Health and Social Care regarding regular consultations and better medication management, and the Minister informed me that the neurology service specification is being updated, and will be published later this year. Although remote consultations are helpful they are not always suitable for Parkinson’s patients, who require regular, holistic in-person care. I urge the Government to consult with Parkinson’s UK during this review.

I also had the pleasure of attending the Big Sing for Parkinson’s on World Parkinson’s Day. The event was organised by the “Movers & Shakers” podcast, and it was a celebration of community, resilience and hope. As I said earlier, it was absolutely inspirational; to witness that community, and the strength of community spirit and determination to drive through with their lives, was incredible. The group also published the Parky charter, outlining five key needs for people with Parkinson’s—needs that are still unmet. This year, two Big Sings were held: the one I attended in Huddersfield, and the other in London. They brought together people in solidarity and song.

As we move forward, let us remember that Parkinson’s Awareness Month is not just about raising awareness, but taking meaningful action. It is about listening to those with lived experience, supporting families and carers, and ensuring that our health system is equipped to meet the needs of every person living with Parkinson’s.

Parkinson’s is a condition that demands our attention, compassion and action. By addressing workforce shortages, supporting patients from diagnosis, ensuring timely medication, removing financial barriers, and embracing innovation, we can dramatically improve the lives of those living with Parkinson’s.

--- Later in debate ---

[Jim Shannon (Strangford) (DUP)]

I thank the hon. Member for Colne Valley (Paul Davies) for raising this issue. As Members are well aware, I have been a vocal opponent of the changes to PIP, and I will concentrate specifically on PIP issues, how they affect people with Parkinson’s, and why it is important that the Government are careful about what they do with the PIP benefit and money in relation to those who have this disease. When we consider the care that is needed for those who suffer from Parkinson’s, it is a perfect example of those who might well miss out on the care that they need the most.

The hon. Gentleman set the scene well in relation to the problems that come with Parkinson’s, and others who have spoken also referred to them. We can all rightly understand how the personal independence payment costs may overstretch local authorities and providers—the NHS on the mainland and our underfunded trusts in Northern Ireland. The entire purpose of PIP, of course, is not to compensate for the illness in some way; it is to help someone live with the practicalities of the illness. That is the purpose of PIP and why I support it. I am really concerned about what might happen.

PIP is not a supplement to keep people off work. It can help people in work, which is part of what the Government say the purpose is. PIP exists to help offset the cost of being sick or disabled and, as such, is an effective health intervention. A recent freedom of information request, however, found that 36% of people with neurological disorders were at very high risk of losing out on PIP. That could be even higher for people with Parkinson’s, as even if someone has scored four points previously in a “daily living” category, the rapidly fluctuating nature of the condition means that it is not guaranteed that that will be scored again.

We need to understand what Parkinson’s is, what it delivers and the importance of it. Without the financial support needed to help with the additional costs of sickness and disability, and with many households losing passported carer’s allowance, unmet need will likely transfer to local authorities, as part of their statutory obligations. I am concerned about the scenario the Government could find themselves in if they remove or reduce personal independence payments, and take away the carer’s allowance. The leader of the Liberal Democrats, the right hon. Member for Kingston and Surbiton (Ed Davey), said during Prime Minister’s questions today that a family could lose £12,000 a year; other calculations that indicate it could be £10,000 a year. The financial impact will be ginormous.

[Cameron Thomas]

I am glad that the hon. Member has brought this point up. Hon. Members have mentioned that there are 153,000 sufferers in the UK, 10% of whom rely on PIP. It is vital for them to live and work independently. I share the hon. Member’s concern that any reduction in sufferers’ access to PIP will not only have serious financial consequences but lead to a diminishment of their independence.

[Jim Shannon]

That sums up the thrust of my comments. I am really concerned by what the Government are pursuing and the impacts that it will have. This is coming from the people on the frontline—I would call them the people on the coal quay—who understand exactly what it means.

Equally, if people with Parkinson’s are no longer able to afford the extra heating needed to help with their debilitating muscle spasms, they are more likely to have a fall. That will increase hospital admissions and stays, as well as social care support for fractures and joint replacements that could have been prevented by making sure that people retain their moneys and do not see corners cut in their care. It is not just individual health outcomes that will be affected. With a quarter of councils in England saying that they are on the brink of bankruptcy and other providers across the UK being stretched, this policy could have devastating impacts on local services.

I will conclude with this point, because I want to keep to time, Chair. When we think about care for Parkinson’s patients, we must think of the effect of removing PIP from those people. I know that it is not the Minister’s responsibility, but I ask that he convey the concern that has been expressed in the debate to the relevant Minister in DWP and fight the fight to ensure that these people have the care that they need in the most cost-effective way possible.

Oral Answers to Questions

Cameron Thomas Excerpts

Tuesday 25th March 2025 Commons Chamber

[Stephen Kinnock]

That is a vital issue. The Casey commission will look at how best to create a fair and affordable adult social care system, and at which structural reforms will be needed where health and social care meet, because reform must always be married with investment.

[Cameron Thomas (Tewkesbury) (LD)]

General practitioners in my constituency have consistently restructured over 10 years of constant systemic and economic pressures. How will the Minister convince the Treasury to exempt GPs from the increase to national insurance contributions, and show my GPs that he has their back?

[Wes Streeting]

It was thanks to the decisions taken by the Chancellor in the Budget that we were able to award £889 million for general practice. That is why the Minister for Care was able to get the GP contract agreed for the first time since the pandemic. Opposition Members cannot continue to welcome the investment and oppose the means. They have to spell out where they would cut services or raise taxes instead.

Women’s Health Strategy

Cameron Thomas Excerpts

Thursday 30th January 2025 Commons Chamber

[Karin Smyth]

The hon. Gentleman can tell his women constituents what I hope everyone across the House will be able to tell their constituents: this Government inherited 600,000 women on those waiting lists, and we are committed—as said in our elective reform plan, which highlighted gynaecology in particular—to getting those waiting lists down from 18 months to 18 weeks in the lifetime of this Parliament.

[Cameron Thomas (Tewkesbury) (LD)]

I represent almost 40,000 women, and they and the men who love them would invite the Minister to state explicitly that the Government will not draw down their access to women’s health hubs or remove their women’s health targets.

[Karin Smyth]

I have made that commitment several times from this Dispatch Box. We think the women’s health hubs are working across the country—I do not know exactly how the hon. Gentleman’s hub is working at the moment. Only three areas do not have a women’s health hub, and we expect them to get on with that and have one. We will ensure we have the learning from them across the country.

Hospice and Palliative Care

Cameron Thomas Excerpts

Monday 13th January 2025 Commons Chamber

[Vikki Slade (Mid Dorset and North Poole) (LD)]

I shall be as fast as I can, Madam Deputy Speaker. There is no doubt that there is massive support for the hospice movement in this place. While the new funding is welcome, Clare Gallie, the chief executive of the Lewis-Manning hospice in Poole said:

“There is simply no point in having fully fitted and beautiful buildings if we cannot afford the staff to run them!”

When someone has a terminal diagnosis, their world turns upside down. It may have come out of the blue, or it may be after years of intensive treatment, when they are already at breaking point and sick. Families have to come to terms with losing the person they love, and learn to cope with managing distressing symptoms, processing their own emotions, and managing money worries and potentially their own health issues. People will be coming in and out of the house at a time when they just want to be left alone. They will also be terrified of being left alone and something awful happening. They are more likely to call their GP on a Friday afternoon, worried that no one will be around at the weekend; more likely to witness a distressing symptom and ring for an ambulance, creating an emergency dash to the hospital and a lengthy stay on a trolley; and more likely to be subjected to blood tests and interventions that will not alter the path of their disease.

I went on that journey when my mum, Lin Foster, died of ovarian cancer aged just 59, but we were lucky: we had the support of district nurses and palliative care teams through Forest Holme. For the last eight weeks of her life, when she did not leave her bed, those people came in and out of her house with no need to knock. They knew where the kettle was, and they knew when we needed our own time. They managed her every need, including supporting her as she planned her own funeral. She did not want to go to hospital. She wanted to end her days in the thatched cottage that had been her lifelong dream. That is what most people say they want, but only 37% of cancer patients are at home at the time of their death.

Junior doctors tell us that palliative patients are spending months in general medical wards, frequently dying there. I was told:

“It is not right, it is not humane because general wards lack the skills”.

It also does not save the NHS money. I have written to the Minister about the Lewis-Manning anticipatory care model, which I also raised with the all-party parliamentary group on hospice and end of life care. That programme seeks involvement at the point of diagnosis. Lewis-Manning ran a pilot from April 2024 to this month that saved NHS Dorset £765,000 across Poole and Purbeck.

[Cameron Thomas (Tewkesbury) (LD)]

I am grateful to my hon. Friend, and to the hon. Member for Spen Valley (Kim Leadbeater) for her Terminally Ill Adults (End of Life) Bill, which has done so much to bring this debate into the national consciousness. Does my hon. Friend agree with the Liberal Democrat policy that the Government should exempt hospices from the NIC rise?

[Vikki Slade]

I completely agree, but what is really ridiculous is that, according to the Department of Health and Social Care, over 10 million hospital days followed an emergency admission in the last year of life, and 10% of people who died of cancer had three or more emergency admissions in the last three months of their life. The anticipatory care model can prevent some of those admissions and reduce the trauma. Further to my letter, sent in November, I urge the Minister to meet me and Clare Gallie to talk about a transformative approach.

I was deeply concerned when Marie Curie emailed me to say that Dorset integrated care board will stop commissioning specialist end of life care from March. The rationale is that personal care commissioning will go via council frameworks, but they do not require expertise in the provision of end of life care. I urge the Minister to insist that the specialists are listened to in the framework and to ensure that Lewis-Manning and Marie Curie are heard. Those organisations are looking to make redundancies and close services at a time when hospital beds are at a premium—

Maternity Services: Gloucestershire

Cameron Thomas Excerpts

Wednesday 9th October 2024 Westminster Hall

[Cameron Thomas (Tewkesbury) (LD)]

It is an honour to serve under your chairmanship, Sir Christopher. In 2021, my daughter was delivered by caesarean section following a complicated pregnancy. Thanks to the diligence of the delivery team, which included English, Indian, Italian, South African and Spanish experts, we were spared the trauma that too many parents endure, and took our daughter home 24 hours later. I cannot thank those professionals enough for their care and application of expertise. The midwifery profession and those who join it should be celebrated in this House, as they should across the country.

I would like to provide some national context to the issue of midwifery in Gloucestershire, as my hon. Friend the Member for Cheltenham (Max Wilkinson) did. Against significant budgetary constraints in the last decade, the NHS workforce has increased by 34%, while full-time midwife posts have risen by only 7%. In that same decade, caesarean section deliveries such as ours have increased by 10% to 23%, meaning that mothers and babies stay longer in hospital, and require additional care by midwives.

As my hon. Friend mentioned, a Royal College of Midwives survey in March 2024 recorded that nationally, midwives and maternity support workers carried out 120,000 hours of unpaid work in a single week. As my ex-colleagues across the Royal Air Force will confirm, when more is continually expected of a diminishing workforce, both the workload and the mental load will increase on those who remain until ultimately they leave or they break. Mistakes become more commonplace. Let us acknowledge the unique emotional load carried by our midwives, while they also carry the workload of 2,500 others due to our national shortage.

The inspection of Gloucestershire maternity services in April 2022 makes for concerning yet predictable reading. Like the hon. Member for Gloucester (Alex McIntyre), however, I am pleased to have received assurances from the chief executive of Gloucestershire hospitals NHS foundation trust that improvements have been and continue to be made. I look forward to a full debrief on the report that will follow the external investigation into Gloucestershire maternity care; the report must be transparent, and retrospective action must take place accordingly. That backdrop creates additional pressure for Gloucestershire maternity care as we look to attract newly qualified midwives to our beautiful county. My call to graduating midwives, as to those already in post, is, “Help us get this right and be a part of the success story.”

The outcome of our efforts must be the permanent reopening of birthing units at Cheltenham and Stroud. Local efforts will take us only so far. Page 99 of Labour’s 2024 manifesto pledged to train “thousands more midwives”—a drive that will, I am sure, enjoy cross-party support. I invite the Minister to press the Chancellor to include a funded plan to train thousands more midwives in the autumn Budget.