Parkinson’s Disease

Jim Shannon Excerpts

Wednesday 21st May 2025 Westminster Hall

[Jim Shannon (Strangford) (DUP)]

I thank the hon. Member for Colne Valley (Paul Davies) for raising this issue. As Members are well aware, I have been a vocal opponent of the changes to PIP, and I will concentrate specifically on PIP issues, how they affect people with Parkinson’s, and why it is important that the Government are careful about what they do with the PIP benefit and money in relation to those who have this disease. When we consider the care that is needed for those who suffer from Parkinson’s, it is a perfect example of those who might well miss out on the care that they need the most.

The hon. Gentleman set the scene well in relation to the problems that come with Parkinson’s, and others who have spoken also referred to them. We can all rightly understand how the personal independence payment costs may overstretch local authorities and providers—the NHS on the mainland and our underfunded trusts in Northern Ireland. The entire purpose of PIP, of course, is not to compensate for the illness in some way; it is to help someone live with the practicalities of the illness. That is the purpose of PIP and why I support it. I am really concerned about what might happen.

PIP is not a supplement to keep people off work. It can help people in work, which is part of what the Government say the purpose is. PIP exists to help offset the cost of being sick or disabled and, as such, is an effective health intervention. A recent freedom of information request, however, found that 36% of people with neurological disorders were at very high risk of losing out on PIP. That could be even higher for people with Parkinson’s, as even if someone has scored four points previously in a “daily living” category, the rapidly fluctuating nature of the condition means that it is not guaranteed that that will be scored again.

We need to understand what Parkinson’s is, what it delivers and the importance of it. Without the financial support needed to help with the additional costs of sickness and disability, and with many households losing passported carer’s allowance, unmet need will likely transfer to local authorities, as part of their statutory obligations. I am concerned about the scenario the Government could find themselves in if they remove or reduce personal independence payments, and take away the carer’s allowance. The leader of the Liberal Democrats, the right hon. Member for Kingston and Surbiton (Ed Davey), said during Prime Minister’s questions today that a family could lose £12,000 a year; other calculations that indicate it could be £10,000 a year. The financial impact will be ginormous.

[Cameron Thomas]

I am glad that the hon. Member has brought this point up. Hon. Members have mentioned that there are 153,000 sufferers in the UK, 10% of whom rely on PIP. It is vital for them to live and work independently. I share the hon. Member’s concern that any reduction in sufferers’ access to PIP will not only have serious financial consequences but lead to a diminishment of their independence.

[Jim Shannon]

That sums up the thrust of my comments. I am really concerned by what the Government are pursuing and the impacts that it will have. This is coming from the people on the frontline—I would call them the people on the coal quay—who understand exactly what it means.

Equally, if people with Parkinson’s are no longer able to afford the extra heating needed to help with their debilitating muscle spasms, they are more likely to have a fall. That will increase hospital admissions and stays, as well as social care support for fractures and joint replacements that could have been prevented by making sure that people retain their moneys and do not see corners cut in their care. It is not just individual health outcomes that will be affected. With a quarter of councils in England saying that they are on the brink of bankruptcy and other providers across the UK being stretched, this policy could have devastating impacts on local services.

I will conclude with this point, because I want to keep to time, Chair. When we think about care for Parkinson’s patients, we must think of the effect of removing PIP from those people. I know that it is not the Minister’s responsibility, but I ask that he convey the concern that has been expressed in the debate to the relevant Minister in DWP and fight the fight to ensure that these people have the care that they need in the most cost-effective way possible.