Transgender People: Provision of Healthcare

Jim Shannon Excerpts

Tuesday 16th December 2025 Westminster Hall

[Jim Shannon (Strangford) (DUP)]

Will the hon. Member give way?

[Rachel Taylor]

I will make some progress, if I may. I am part-way through something that a trans person said, so it is not an appropriate time to intervene. They went on to say:

“I have personally used alcohol, cannabis, cocaine and self-harm to survive the last year and a half since referral and I have now been told I will have to wait several more months because of the backlog.”

[Jim Shannon]

I am reminded of last year when a mother came to me back home. Her son wanted to transition. The mother was under real pressure, as was the young boy. We tried to help as much as we could through the health system back in Northern Ireland. Does the hon. Lady agree that there is a journey not only for the young person who wants to transition, but for their parents? Everyone needs support to get them through that difficult transition.

[Rachel Taylor]

I thank the hon. Gentleman for his helpful contribution. Of course, parents need help and support through this process.

In 2022, a coroner ruled that a 20-year-old trans woman had died in part because of delays in accessing gender-affirming care after two and a half years on a waiting list. Trans people also struggle disproportionately with general healthcare. A third of trans and non-binary people, rising to almost half among people of colour, received no NHS or private support during pregnancy, compared with just 2.4% of cis women. Nearly one in three trans and non-binary birthing parents said that they were not treated with dignity and respect in labour, compared with just 2% of cis women.

According to TransActual, 60% of trans people surveyed had been refused care because they were trans. Hundreds reported that their GP refused to prescribe hormones, even when they had been recommended by NHS gender clinics. Participation in cervical screening is also significantly lower, with trans and non-binary people estimated to be up to 37% less likely to be up to date with appointments. This Labour Government are the right Government at the right time to tackle these issues.

I congratulate the Minister and the Secretary of State on the HIV action plan that was announced this month. I remember vividly the stigma and shame of an HIV diagnosis in the ’80s and ’90s, which often led to suicide, as the alternative was a death sentence and a life spent facing discrimination and abuse. This HIV strategy is groundbreaking and sets us on the right path to end new HIV transmissions. I applaud its commitment to ensuring that all prevention efforts target underserved populations, including trans people.

The Government pledged in their manifesto to ensure that trans people receive the healthcare and support they need. I welcome the review being led by Dr David Levy into adult gender services, and I hope it will bring forward strong recommendations to cut waiting lists, expand access and deliver timely, appropriate and sensitive care. I know that trans people and LGBT organisations have been awaiting its publication, so I ask the Minister: when can we expect Dr Levy’s review to be published?

In April 2025, the Secretary of State also commissioned NHS England to undertake an LGBT+ health evidence review. That review seeks to identify the barriers to healthcare for all LGBT+ people, from examining the poor treatment of lesbian couples seeking IVF treatment to looking at insufficient mental health support for LGBT+ people. The review is highly anticipated by the whole community. Therefore, I ask the Minister: is Dr Brady’s review still due to conclude in January 2026, and when can the public and parliamentarians expect to see it?

Although I applaud the Government’s work to improve healthcare for transgender adults, I know that reviews alone will not fix the problem. We need to know that these reviews will be followed by action. I know that getting this right matters to the Government, so I ask the Minister: what steps will the Government take to reduce discrimination and transphobia in healthcare settings?

Will the Minister commit to mandatory training for clinicians on the respectful and appropriate treatment of trans patients? Will the Government commit to significant sustained investment in trans healthcare, with reducing waiting lists and expanding local provision as urgent priorities? We must build a healthcare system rooted in science, not stigma, and in compassion, not fear. We must decide whether we want to be a society that listens to people, supports them and gives them the tools to thrive.

There is one final point I would like to make. Those who know me will know that I first got involved in politics in the 1980s when Thatcher was introducing section 28. That policy was intended to make people like me feel shame about who we were, and to reverse the progress that previous generations had fought for. I got into politics to fight that cruel law and everything that it represented.

I am a gay woman who grew up in the ’80s, so I know what it feels like to be told, “It’s just a phase. Maybe you’ll grow out of it. Maybe it’s not really who you are. Maybe there’s just something wrong with you,” so believe me when I say that I have heard it all before. LGBT people have heard this all before. We know what bigotry is when we see it, and we know that bigotry is back. Let us make no mistake: the people who are organising against trans people now are no different from the people who campaigned for section 28. They want to present parts of our movement as a danger to society and push them to the margins. I will never let that happen.

To all those in this room and in this House who are totally convinced that trans people are not real, that they are making it up, that it is TikTok, Reddit or foreign TV that has turned them trans, that somehow this is some kind of new phenomenon, let me assure you all that I have had trans friends for as long as I have been out. Trans people have always and will always exist.

To all those in this room who used to say warm things about trans people back when it was popular to do so but who decided when the wind changed that they would blow in the other direction, and to the Conservatives who in 2018 introduced an LGBT action plan promising trans equality but who now are quite happy to laugh along with cruel mocking jokes about trans people in front of the mother of a murdered trans teenager, we see you, and much like history condemns section 28, history will condemn you too. Meet trans people, talk to them, understand what they are going through and believe them, then we can all stop fighting our toxic culture wars and get back to doing what we as lawmakers are elected to do: make things better for every single one of our constituents—not some of them, all of them.

NHS: Winter Preparedness

Jim Shannon Excerpts

Monday 15th December 2025 Commons Chamber

[Wes Streeting]

There are many examples of great community-based vaccination initiatives. Many of those initiatives are supported by faith-based organisations, which is really important given the vaccine hesitancy in some of those groups. I do not believe that people are hard to reach; I believe that public services often do not try hard enough, and our approach is to do so. We will reflect on our success this year and seek to build on it for future years.

[Jim Shannon (Strangford) (DUP)]

I thank the Secretary of State very much for his answers—the BMA is losing public support, and clearly the Secretary of State is gaining it. I wish him well in his role.

Official figures show that flu cases in Northern Ireland nearly doubled to 954 in recent weeks, and flu-related admissions also doubled, with hundreds being treated in hospitals. There are issues with the supply of the flu vaccine, to the extent that people are unable to get their jabs in pharmacies and GPs are only offering them to select groups. I know that the Secretary of State is in regular contact with the Minister in Northern Ireland, Mike Nesbitt. What discussions have taken place to increase the supply of the flu vaccine and ensure it is accessible to those who need it?

[Wes Streeting]

I thank the hon. Gentleman for his question. Given that politicians are somewhere below traffic wardens and estate agents in terms of public popularity at the moment, it is quite an achievement for the BMA to have found itself even less popular with the public, but I think it has made very clear through its actions and rhetoric this week that it does not care about public opinion. In fact, the BMA does not seem to care much about the public at all.

The hon. Gentleman is quite right that we need to make sure we have a good supply of vaccine available across the whole of the United Kingdom. We work closely with the devolved Administrations, and I speak regularly with my Northern Ireland counterpart. Should the Northern Ireland Executive ever need support or assistance, we are always willing to provide it wherever we can.

Sudden Cardiac Death in Young People

Jim Shannon Excerpts

Monday 15th December 2025 Commons Chamber

[Chris Vince]

I do agree with my hon. Friend. Clarissa was a young girl who was very involved in sport. There is no reason why young people with these conditions cannot continue to take part in sport, as long as they are aware of their condition and able to take the necessary precautions.

Hilary said that her daughter

“put everything into her studies, the friends she made here and the staff that supported her along the way including while she was on her year abroad. We are grateful for the happy times she clearly took away with her to the next life.”

When I applied for and secured this Adjournment debate, what really struck me was the number of people who came up to me and shared their personal experiences. In fact, only this morning, two Doorkeepers shared their experiences of this condition. I pay tribute to one of those Doorkeepers, Kieron, whose son Connor—who was born on 13 January 1994—died in 1995 at only 14 months old. When the post-mortem was conducted, it was found that he died of sudden cardiac death through a thickening of a heart muscle. That was over 30 years ago, but I know from talking to Kieron the huge impact it has had on his life; he will always carry that loss with him. It is important that we recognise how long we have been aware of these issues, and that it is time to talk about what action we can take.

This morning, I was in my constituency of Harlow, talking to one of our headteachers, Vic Goddard, who is the head of the Passmores co-operative learning community. He spoke about a young boy dying of cardiac arrest during his time as a PE teacher, and feeling so strongly that every school he works in should have a defibrillator. Again, having spoken to some of the staff in this place, I want to emphasise the huge difference that access to a defib can make to survival chances.

[Jim Shannon (Strangford) (DUP)]

I commend the hon. Gentleman for securing this debate. In the time he has been in this House, he has proven himself to be assiduous, committed and a hard-working constituency MP; I think every one of us is impressed by his efforts in this Chamber and in Westminster Hall, and we thank him for that. Today, he has done his constituents proud, and his constituents should be proud of him, including for how he has presented his case. Well done him.

The British Heart Foundation in Northern Ireland and similar groups have noted that undetected and inherited heart conditions can lead to sudden deaths in young people. That charity has estimated that one person aged under 35 dies every month in Northern Ireland from an undiagnosed heart condition. Does the hon. Member agree that there must be early intervention through screening for heart conditions that could be inherited genetically, to ensure they can be detected and treated earlier? The reason I am supporting the hon. Gentleman is that a young constituent of mine died in the same way he has described. For them and for Strangford, I put forward their case.

[Chris Vince]

I thank the hon. Gentleman for his intervention and his kind words. He has intervened at the perfect time, because I was just going to go through some of the statistics. Twelve people aged between 14 and 35 die each week in the UK—which obviously includes Northern Ireland—from an undiagnosed heart condition, and as my hon. Friend the Member for Putney (Fleur Anderson) mentioned, 80% of those people show no symptoms, meaning that the first sign is often sudden cardiac arrest. Elite athletes are screened by mandate, but amateur and grassroots athletes are not, despite their facing some of the same exercise-related risks. The NHS currently screens families only after a sudden cardiac death, so Hilary and her family were screened for the condition that took away her daughter’s life, but obviously that is too late for prevention.

--- Later in debate ---

[Amanda Hack]

I thank my hon. Friend for that important intervention. Defibs talk to you; there is no need to be mystified by their use. They are clever bits of kit, and a 999 emergency responder will talk people through the process. I ask everyone please to go and be trained, because this is really important stuff.

[Jim Shannon]

I thank the hon. Lady for making that point, and I thank the hon. Member for Leeds South West and Morley (Mark Sewards) for his intervention. Throughout my constituency and indeed Northern Ireland, defibrillators have been supplied to every school and community centre. The communities in Ards, Ballynahinch and the Ards peninsula have defibrillators in their city and village centres. We have an organisation called Ards Peninsula First Responders, which provides speedy training every month for those who want to learn how to use a defibrillator. On our defibrillators in Newtownards and elsewhere is a small diagram—an ABC for how to use them. I have not had to do this, but I have been told by First Responders, “If you follow these three directions, you will be able to use a defibrillator as well as anyone else.” Does the hon. Lady have the same opinion?

Resident Doctors: Industrial Action

Jim Shannon Excerpts

Wednesday 10th December 2025 Commons Chamber

[Wes Streeting]

My hon. Friend has so much expertise on health and on employment rights and trade union law, and he is right. That is why this Government have chosen a different approach. We want to work with all our trade unions, we want to work with the BMA, and we can still do so if we hit the reset button and each of us commits to building a more constructive relationship.

[Jim Shannon (Strangford) (DUP)]

I congratulate the Secretary of State and I fully support his stance on the resident doctors’ strike action. “Stand firm” is the message that I send to him, and I ask that God bless him and his team.

This will be the 14th strike since March 2023 and it is expected to cause major disruption. With the recent influx of flu, some wards have 70% occupancy. That could put the healthcare system under extreme pressure. Accident and emergency in the Ulster hospital, Belfast city hospital and the Royal Victoria hospital are under intense pressure. If they did not have the doctors from India and Africa, we would be under real pressure. What discussions has the Secretary of State had with the BMA about the impact this strike will have on emergency care and, ultimately, on getting patients back home before Christmas?

[Wes Streeting]

I am grateful to the hon. Gentleman for his support. He is right to raise concerns about the impact on urgent emergency care. We will do our best to keep the show on the road, but I cannot make guarantees in the way that I would want to about the quality or timeliness of care. I place on record my thanks to my counterpart in Northern Ireland, Mike Nesbitt, as well as to my counterparts in Wales and Scotland, for the constructive approach that they have taken in making this possible.

Mental Health Bill [Lords]

Jim Shannon Excerpts

Consideration of Lords message
Monday 8th December 2025 Commons Chamber

[The Minister for Care (Stephen Kinnock)]

I beg to move, That this House agrees with Lords amendments 19B and 19C.

It is a privilege to return to the Mental Health Bill in this House for what I hope will be the final time in its passage. Thanks to the constructive and collaborative approach from Members across this House and noble Lords in the other place, we have been able to reach an amended and improved version of the Bill so that we can begin our vital work on the code of practice. In particular, I pay tribute to my ministerial colleague, Baroness Merron, for her outstanding work on this Bill.

The Bill sits alongside the 10-year plan, which sets out our ambitious reform agenda to transform the NHS and make it fit for the future. We know that there is much more to do to improve outcomes, to tackle unacceptable waiting times for care and to fully meet the needs of the population in a tailored, personalised and timely way. We will overhaul how mental health support is delivered in England to drive down waits and improve the quality of care, backed by a whole-of-society approach to preventing mental illness and to intervening early.

Last week, we announced the launch of an independent review into prevalence and support for mental health conditions, attention deficit hyperactivity disorder and autism. We are launching this review to understand the rises in prevalence and demand on services, to ensure that people receive the right support at the right time and in the right place. People who need it will access high-quality and compassionate mental health support at an earlier stage, and more people will recover or live well with mental illness.

We will go further to improve the quality and transparency of care, working with experts and people with lived experience. We will publish a new modern service framework for severe mental illness, setting consistency in clinical standards across the country so that patients and families get the best-quality, evidence-based treatment and support.

[Jim Shannon (Strangford) (DUP)]

First, I welcome what is coming forward. I ask for clarification on something that has been brought to my attention. I seek the Minister’s advice and support. Lords amendment 19B relates to the appointment of a nominated person where no local authority holds parental responsibility for the patient. Does the Minister agree that there must be more emphasis on the voice of the child in the legislation, and that the child should have some preference when it comes to representation?

Children of Alcoholics

Jim Shannon Excerpts

Wednesday 26th November 2025 Westminster Hall

[George Freeman (Mid Norfolk) (Con)]

I beg to move,

That this House has considered the children of alcoholics.

It is a great pleasure to serve under your chairmanship, Mrs Harris, particularly on this day, when there are other events going on in Parliament. I am grateful to colleagues from all parties who have come to support this debate, and to the Minister on what I know is a very busy day for his Department.

Today is a chance to speak on behalf of the children of alcoholics. They are the children who suffer in silence around our country, and sadly there are now many of them; nearly 2.5 million children live with one or both parents suffering from serious alcohol dependency or abuse. It is my great privilege, standing here today as chairman-elect of the all-party parliamentary group on children of alcoholics, to introduce this debate and formally launch our campaign across both Houses and all parties for this Parliament to take forward the work of the National Association for Children of Alcoholics.

The APPG has been brilliantly and ably led by my colleagues Jon Ashworth and the right hon. Member for Birmingham Hodge Hill and Solihull North (Liam Byrne), who have passed the baton to me now that I am no longer in government. As a freelancer, and the deputy chair of the Science, Innovation and Technology Committee, I am free to speak without fear or favour. [Interruption.] I can hear the hon. Member for Strangford (Jim Shannon) saying that I have always spoken without fear or favour.

I start by saying that there are many children of alcohol in this great Parliament. For many children, it is a terrible trauma of silent suffering from which they never really escape. It also drives into many children an extraordinary ability to take on responsibilities too young, as well as tasks and duties that should really fall only to adults, and it often engenders a drive to make a difference. We see 11, 10, nine or eight-year-olds face things that nobody should have to cope with, let alone a lonely child carer. It is perhaps not surprising that much of the drive that lies behind many people in this Parliament comes from some of those experiences, whether of alcohol or other addictions.

[Jim Shannon (Strangford) (DUP)]

I commend the hon. Gentleman; we spoke about people who have lived with this before the debate, which he might refer to, and I was very moved by what he told me. Across Northern Ireland, there are some 40,000 children living with parental alcoholism, and there has been a rise specifically in alcohol deaths. Does the hon. Gentleman agree that there must be more focus, and that antenatal and health visitors should routinely screen parents who are dependent on alcohol to not only support the parents but ensure that the children are protected in the home? I have a friend who grew up with this, and I always remember their story—it has stuck in my mind all my life.

[George Freeman]

I agree with the hon. Gentleman. I want to reassure the Minister that I am not here to hit him with 20 demands—that will come in due course. Today is really a chance to raise the flag of the all-party parliamentary group. The hon. Gentleman has mentioned one of the things in our manifesto for change, and I am grateful to him for raising it.

Clive Treacey Safety Checklist

Jim Shannon Excerpts

Monday 17th November 2025 Commons Chamber

[Dave Robertson (Lichfield) (Lab)]

It is an honour and a privilege to lead this debate on Government support for the Clive Treacey safety checklist. I secured this debate in Clive’s name, and I want to start by telling the House a little bit about him. I did not have the pleasure of meeting Clive, so I am drawing here on the words of his family, who knew him best. Clive’s sister, and his father Michael, are in the Public Gallery this evening, and I am really glad that they are able to see proceedings. They have been tireless advocates for Clive, making sure that his voice is heard, and I hope that I can do their efforts justice tonight.

Clive was born in Lichfield, in my constituency, in 1969. He was soon diagnosed with a learning difficulty, and, between the ages of 8 and 10, with epilepsy. I will cover both those factors today. Sadly, they are important to understanding Clive’s death and the failures in care throughout his life, but they do not define what Clive’s life was. I want to ensure that the House hears who Clive was. Clive was a talented artist and gardener, gifted with a brush and able to make plants spring seemingly from nothing. He loved music, especially Elvis Presley, and was often singing and dancing—his family remember him as the life of the party. He wanted to work in a garden centre, helping to raise plants; to have his own home, close to family; to own a cat; to learn to drive; and to go on holiday to Blackpool and Somerset. Clive was as devoted to his family as they were to him. He was known as the family calendar, never forgetting a card for a birthday, Christmas, Easter or any other reason. Clive’s sister Elaine says that her brother was

“engaging, humorous, gentle, and loving”.

His parents, Pauline and Michael, have said his heart “knew no bounds”, and describe their son’s “magical qualities” throughout his life. In all the accounts of Clive, his love and optimism shine through.

Clive passed away in 2017 at just 47 years of age, after a seizure caused by his epilepsy brought on cardiac arrest. This is known as SUDEP—sudden unexpected death in epilepsy. Clive had been living in residential placements for years up until that point, moving often. Before he died, Clive’s family had become worried about his deteriorating health—and, tragically, so had Clive. He left a message on his dad’s phone, which was not received until some days after his death, saying that he was dying and needed an ambulance. Clive was not listened to, and his family were not listened to, and the consequences were devastating.

After that terrible event, Clive’s family had to fight hard for answers. They had to fight to secure an inquest into his death, and later to secure an independent review. When that review was completed in 2021, four years after Clive died, it confirmed what they had suspected all along: the independent review found that Clive’s care fell far short of what should be expected for somebody with drug-resistant epilepsy, and it identified multiple system-wide failures in delivering his care and treatment, which put him at greater risk. It found that his death was potentially avoidable, and that he had been failed both in life and in death.

What did that mean in practice? It meant that the management of Clive’s epilepsy was fragmented, and the link between his epilepsy and the sometimes challenging behaviours that he could exhibit when stressed, such as not taking his medication, withdrawing to his room, or not communicating, were often overstated. Those behaviours disproportionately impacted the generally held view that Clive required a hospital setting, and despite the fact that he had long expressed a wish to live in his own home, care in the community was discussed with him and his family only towards the end of his life. That is where Clive’s life was, and if we move on past his death, it is important to pay tribute to Clive’s family. Throughout all the suffering, they have been relentless in their focus on ensuring that other families do not go through what they had to. That is why we are here today, and for me, that is entirely what this debate is about.

[Jim Shannon (Strangford) (DUP)]

I congratulate and thank the hon. Gentleman for securing this debate. His choice of words, his tone, and the compassion in his voice are a real tribute to Clive Treacey, and to his family in the Gallery. The hon. Gentleman has paid a wonderful tribute to Clive, and it is right to put that on the record. I am an Elvis Presley fan as well; he could probably sing better than I can, but that is by the way. Does the hon. Gentleman agree that although nothing can bring back the life of this young man, his legacy can be life-changing for so many others? This checklist, rather than being best practice, must be rolled out as a recommended tool to each trust and area of this United Kingdom of Great Britain and Northern Ireland, as a tribute to Clive Treacey.

[Dave Robertson]

I thank the hon. Gentleman. That is my first intervention from him. He raises an important point, and when he asked that question, I thought back to a couple of weeks ago, when I was asked at a community event, “What gives you hope, Dave?”. I thought for a while. So often, we hear in this place stories of people who have gone through unimaginable hardship, but who somehow find the strength within themselves not to turn that into anger. They do not turn inwards; they turn outwards, and campaign to make sure that the same does not happen to other people. That is an example of what we have here. It is the very best testament to the human spirit that we see so many people who are able to do that.

Like a quarter of people with a learning disability, Clive had epilepsy. By contrast, one in 100 of the general population has epilepsy. Coupled with that, epilepsy is the second most frequently reported preventable cause of death for people with a learning disability, so not only are people with a learning disability more likely to have epilepsy, but the risks they face from their epilepsy are higher. The risk of SUDEP—that is what killed Clive—is more than three times higher for those with epilepsy and a learning disability than for those with epilepsy and no learning disability.

Tragically, Clive’s case is not an isolated example of these failures; this is a story that is far too common across the country, but there are things that we can do to change the story. Research suggests that annual health checks can significantly reduce the chance of premature death in people with a learning disability and autism who have epilepsy. Indeed, the chances of death were reduced by 84% for people with a learning disability and epilepsy who had a review of their epilepsy in the past 12 months.

That brings me to the Clive Treacey safety checklist. The checklist is a tool developed after Clive’s death, and an important part of his legacy. I place on record my thanks to Professor Mike Kerr and Professor Rohit Shankar for their work on the checklist, alongside the charity SUDEP Action, NHS England Midlands, and the Cornwall partnership NHS foundation trust.



The checklist was designed for commissioners and service providers, whether the care is provided in a specialist hospital setting or out in the community, and it outlines the steps that should be gone through annually, as well as whenever a patient moves between services or has a big change in their care, such as a new team looking after them. It recommends up-to-date health plans, genuine consultation with parents and families—not box ticking, but genuine consultation—and proper epilepsy training for staff. The Clive Treacey safety checklist is not a document that should be put in a drawer somewhere in an integrated care board, left alone and looked at once every so often when someone asks a question about it. It is a practical tool and the accompanying guidance, at just 24 pages long— for the NHS, a short story at best—is packed with information, and it is a document that can save lives.

Since Clive’s death, a number of NHS regions have reviewed the way that they care for patients with learning disabilities and epilepsy using the checklist. That includes the NHS in the midlands, where 11 integrated care systems carried out a detailed appraisal using the self-assessment tool developed by the charity Epilepsy Action, based on the work of Professor Shankar, to find the weaknesses in their services and take concrete steps to improve them. More recently, six integrated care boards in the north-west, north-east and North Yorkshire have done the same. It is detailed work, bringing health and care services together, and using joined-up thinking, which we do not hear enough about in Whitehall, to tackle the problem and normalise best practice. That best practice, like the Clive Treacey safety checklist, should be more widespread. I again pay tribute to Elaine and to Clive’s family more broadly for the work that they have done to drive this entire piece of work forward.

The problem is that we still have a postcode lottery. Different parts of the country do and do not follow the checklist; different parts of the country have and have not gone through that detailed work to update their practices. In this House, we cannot tolerate a situation where local outcomes are so varied, so I hope that we hear from the Minister what more we can do, both here in this place and through the Department of Health and Social Care, to ensure that people with learning disabilities are not dying of preventable causes, and to see the very best practice, as set out in the Clive Treacey safety checklist, adopted up and down the country, so that we can end this perverse postcode lottery.

Cross-border Healthcare

Jim Shannon Excerpts

Tuesday 4th November 2025 Westminster Hall

[Jim Shannon (Strangford) (DUP)]

It is a real pleasure to serve under your chairship, Mr Dowd, as always. On behalf of us all, I look forward to your deliberations. I thank the hon. Member for Brecon, Radnor and Cwm Tawe (David Chadwick)—I think I pronounced that right—for securing this debate. [Interruption.] Did I get it wrong? My apologies; the Northern Ireland accent gives it away nearly every time. While we are one United Kingdom, it is always important to remember the differences that we have in devolved matters, and in healthcare specifically—especially in Northern Ireland, where we have witnessed major disparities. It is a pleasure to make a contribution on that.

I want to talk about a cross-border health scheme that was used in Northern Ireland some years ago before our official exit from the European Union—although it appears that we never exited—and when we were all in the United Kingdom. The scheme meant that patients in Northern Ireland who had been on health and social care waiting lists for two years or more could apply to receive private treatment in the Republic of Ireland and claim reimbursement from the Northern Ireland Department of Health. When I was a member of the Northern Ireland Assembly and in my early years here at Westminster, I saw numerous examples of hip replacements, knee replacements and cataract operations being done down south because the patients had waited two years. The payment for the scheme then came from us in Northern Ireland. There are systems that work.

I thank the hon. Member for South Antrim (Robin Swann) for his contribution. He will probably be embarrassed by this, but I want to put on record that he was a great Health Minister when he was in the Northern Ireland Assembly, and I thank him for that. I never heard anyone say a bad word about him—and I talk to plenty of people, by the way—so I would say that he is an example of a Minister who really worked hard.

I know of a couple of constituents who availed themselves of the scheme and to say that their surgery was life-changing is an understatement. The hon. Member for South Antrim referred to his son. One of my constituents had a hip replacement and one had knee surgery. They could have been waiting up to 10 years for that surgery in Northern Ireland if they had not been able to avail themselves of the scheme with the Republic of Ireland. Those are some examples of how strategies like these work; I listened to hon. Members’ examples of similar processes in their constituencies.

I want to talk briefly about the importance of medical records. I spoke to the Minister about that beforehand, and others have referred to it. Through working closely with universities, I have witnessed a few examples where a young person lives in Northern Ireland and goes to Scotland or England for university. When they come back to Northern Ireland three or four years later, healthcare professionals cannot access their information as there is no shared provision for medical records. I hope that the Minister will forgive me, but it seems illogical not to have a system that takes that on board.

One of my staff members who went to Chester to study was in that exact scenario around 10 years ago. She had to travel back to England and pay £50 for a printout of her records to take to her GP back home. We must not forget that £50 was a lot of money for a student 10 years ago. It might be expected that the cost has now gone way beyond that.

This debate is really important, so I want to make sure that other hon. Members get their five minutes as well. There are clear examples of where cross-border health initiatives work and are beneficial to supporting people who are faced with extensive waiting lists and serious conditions that alter their day-to-day life. I look to the Minister—as I always do, because she answers us and listens to our requests—for a commitment to ensuring that our constituents have access to the care that they need, whether it be cross-border or within our healthcare systems in England, Scotland, Wales and Northern Ireland. Furthermore, hon. Members have shared experiences of the medical records issue within our constituencies. When so many people travel to different parts of this nation to study, more must be done to ensure that their records can flow smoothly and without hassle. My goodness, Mr Dowd, a life without hassle—it would be a miracle.

Moles: Histological Testing

Jim Shannon Excerpts

Thursday 30th October 2025 Westminster Hall

[Dr Danny Chambers (Winchester) (LD)]

It is an honour to serve under your chairpersonship, Ms Jardine. I congratulate the hon. Members for South Norfolk (Ben Goldsborough) and for Isle of Wight West (Mr Quigley) on securing this debate. I wish the hon. Member for South Norfolk all the best in his treatment. I have to say, it was hugely brave of him and emotive to hear him talk about the journey he is going through at the moment, and to hear him paying such tributes to all the staff involved in his care. I also thank Zoe’s family for coming here today, because it cannot be easy to hear people talk about this disease after everything they have been through.

Many of us will know, some from personal experience, how frightening it can be to face a possible or actual cancer diagnosis. When words such as “biopsy” or “diagnostic tests” enter the conversation, that provokes deep concern, and yet those tests, as everyone has been reiterating, are absolutely vital. Early diagnosis is the single most important factor in improving survival rates. The sooner any type of cancer is identified, the sooner treatment can begin, and the more likely the outcome will be favourable. The tests are very important for people’s mental health, because sometimes the test is clear: a person knows that, and knows there is no need to worry unnecessarily.

In an ideal world, someone who notices a suspicious mole or mark would call their GP; be seen within two weeks, as set out in the National Institute for Health and Care Excellence guidelines; if necessary, a biopsy would be taken; and, if cancer was confirmed, treatment would begin within 62 days. In an ideal world, that treatment would be available to everyone, regardless of their postcode.

We know that is not the reality for everyone, either in Winchester or the rest of the country. We know GP access is a growing concern. In Winchester, I regularly hear from my constituents that they are waiting weeks for appointments, which means we are falling at the first hurdle. The second hurdle—treatment within 62 days—is just as worrying. In Winchester, in July 2025, only 73.6% of cancer treatments began within 62 days, well below the operational standard of 85%.

The truth is that, at almost every stage of the process—from initial concern to diagnosis and treatment—we are letting too many people down. It is one of the reasons that the Liberal Democrats have been calling for a two-month cancer treatment guarantee for a long time now: a new target so that 100% of patients will start treatment within 62 days. We must also replace ageing radiotherapy machines and expand provision so no communities are left in what have rightly been called radiotherapy deserts. We do not want anyone to have to travel hours and miles when they are feeling ill for lifesaving care.

The last Government’s decision to close the National Cancer Research Institute, which had co-ordinated cancer research since 2001, was a grave mistake. One oncology professor compared this to

“turning off air traffic control and hoping the planes will be fine”.

We owe it to patients and their families to build confidence in the system, and that means faster access to GPs, earlier diagnosis, better treatment, proper investment in research and a comprehensive long-term plan to boost survival rates. I really welcome all the comments about regulating the private medical sector to ensure they are taking biopsies, as well as the regulation of sunbeds.

[Jim Shannon (Strangford) (DUP)]

I wanted to be here at the beginning, but unfortunately I could not because I had other things to do in the Chamber. I declare an interest—like the hon. Member for South Norfolk (Ben Goldsborough), I am going to get one of mine done very shortly, but in Northern Ireland the wait list is 56 weeks. If it is red-flagged, it is five weeks. There is anxiety and stress for everyone—not for me, but for all the others—because it is not about me but everyone else. Does he agree that the NHS, wherever it may be in this great United Kingdom of Great Britain and Northern Ireland, needs to ensure that those who have melanoma and a biopsy get the urgency that is absolutely critical? The Minister is in her place—there is no better person to answer these questions than her—and I look forward very much to what she says. Does the hon. Member for Winchester (Dr Chambers) agree that a concerted campaign across this great United Kingdom of Great Britain and Northern Ireland to address those issues might be a way forward?

[Dr Chambers]

I totally agree with those comments.

I will finish by paying tribute to one of my friends from vet school, Polly Birch. She was diagnosed with a melanoma in 2016 and had it removed, but in 2017, a few months after giving birth to her baby girl, Ada, she discovered it was metastatic, and she passed away. Her final post on social media was beautiful and moving. A couple of days before she passed away, she said:

“Appreciate the people around you, adventure with them, buy less stuff and go out and experience the world…and look after the bees.”

Finally, and perhaps most poignantly, I will quote Mary Schmich:

“If I could offer you only one tip for the future, sunscreen would be it.”

Ageing and End-of-life Care

Jim Shannon Excerpts

Thursday 30th October 2025 Commons Chamber

[Jim Shannon (Strangford) (DUP)]

I beg to move,

That this House has considered the ageing community and end of life care.

I thank the Backbench Business Committee for selecting this subject for debate. I declare an interest as the son of Mona Shannon, who is 94 years young and resides in a nursing home near Killyleagh in my constituency. Along with most other middle-aged sons or daughters—in my case, maybe a wee bit more than middle-aged—I am acutely aware that time is marching on and so are my mum’s needs.

The wee five-foot-nothing lady who kept three six-foot sons under control is no longer to live alone, but she is as sharp as a tack and I am thankful for the wisdom she gives me when I visit her twice weekly. Indeed, I suspect that every Friday and every Sunday I get a wee bit of wisdom—and maybe a wee bit of a telling off. She always likes to know what happens in this House and I am able to tell her that, but she will also give me her opinion, which I never ignore—indeed, I probably keep to it as much as I can.

Those visits to the nursing home, coupled with the focus on assisted dying, have highlighted to me with greater effect the changes that are needed in how we handle our older generation and their needs. I have spoken with representatives of both Sue Ryder and Marie Curie not simply to highlight the difficulties that most of us will be aware of, but to offer some ways that we can improve.

I am pleased to see the Under-Secretary of State for Health and Social Care, the hon. Member for Glasgow South West (Dr Ahmed), in his place. He and I are becoming a bit of a tag team, because on three days this week he has been the Minister responding to the debates that I have been involved in. The shadow Minister, the hon. Member for Hinckley and Bosworth (Dr Evans), has been there as well, so he should not be left out.

According to Marie Curie, in the next 25 years in Northern Ireland—I know it is not the Minister’s responsibility, but I want to give the stats, because they are important— there will be 20,500 people requiring this type of care, which is a rise of 32%. That includes a doubling of need by those aged over 85. It is also projected that the number of deaths in the community in Northern Ireland could rise by 74% during that time. Approximately 60% of the cost of care delivered through the independent hospice sector in Northern Ireland is reliant on charity. That is unsustainable. A new palliative care strategy for Northern Ireland that takes account of demographic changes and associated requirements for service transformation and investment is urgently needed.

That is what is happening in Northern Ireland, and in the mainland, things are very similar. Marie Curie has highlighted that as the population ages, more people will be living with and dying with multiple complex conditions. Every week in my office, when it comes to assisting those of my mum’s generation—and perhaps some of my own—with benefits, I see people with multiple complex needs more than ever. It is not just one thing that people are suffering from, but a multitude of things.

By 2050, the number of people in need of palliative and end-of-life care in the UK will rise by 147,000 to over 745,000 every year, and that increase will be driven by a growth in the number of people dying over the age of 85. These are really important stats, and we cannot ignore them; indeed, I believe the Minister will be focusing on them. Around 90% of the people who die each year need palliative care, but one in four of them is missing out. Older people, and particularly those with a non-cancer diagnosis, are at risk of missing out on the palliative care they need at the end of life. Research indicates that most people want to receive care at the end of their life and die at home. Elderly people tell me that all the time—they want to be at home.

[Sir Julian Lewis]

I am grateful to the hon. Member for giving way; I know he is pressed for time. The charity Together for Short Lives points out that where children’s palliative care is concerned, there is wide variation across different regions in the country. Is he afraid that this applies to the ageing population as well—that there is no consistency in the amount of palliative care available?

[Jim Shannon]

I thank the right hon. Member for his intervention and for the wisdom that he brings to all the debates he participates in. The Minister is listening, and he is a good Minister, so I know he will come back with the response we hope to have.

How often have we listened to family members who are past themselves with exhaustion and guilt about how they are caring for their loved one and who feel unprepared and yet unwilling to let them go into nursing care? With more support, their lives would be easier and their loved one’s life happier. This knowledge is why I was not surprised to learn that almost £12 billion of public funds was spent on healthcare for people in their last year of life, 81% of which was spent in hospital, with only 11% spent on primary and community care.

Access to a 24/7 palliative care advice and support telephone line has been recommended as a minimum service requirement for nearly two decades, but research shows that very little has happened, which underlines the issue that the right hon. Member for New Forest East (Sir Julian Lewis) raised. Only seven of the 42 integrated care boards in England said they have a dedicated 24/7 single point of access to palliative and end-of-life care advice, guidance and onward referral to other services, when needed—those are all important factors.

Despite the introduction of a new legal duty for ICBs to commission palliative care services in the Health and Care Act 2022, the urgency and importance of ensuring that everyone has the best possible care and support at the end of life has yet to be recognised as a national priority. I hope the Minister will be able to provide assurance on this, because that is what Marie Curie wants, it is what Sue Ryder wants, and it is what every mum, dad and family member wants as well.

[Lee Pitcher (Doncaster East and the Isle of Axholme) (Lab)]

The day I get to intervene on such an amazing Member is a remarkable day. I live in a very rural area where there are places with real socioeconomic deprivation. I know for a fact that there is huge inequality in those kinds of areas when it comes to palliative care. Does he agree that the Minister and the Government need to look at how to reduce that inequality over the next 10 years?

--- Later in debate ---

[Jim Shannon]

The hon. Member is absolutely right. Politics aside, I want the Minister and the Government to do the job. It does not matter who the politician or the political party is; let us just give our people some hope. That is what I wish to see come out of this.

What assessment have the Government made of the need for a national strategy for palliative and end-of-life care? How will the Government ensure that palliative care specialists are included in neighbourhood health centres? What progress are the Government making on ensuring that every person with palliative care needs in the UK has access to a 24/7 support and advice line?

I believe that we can find a route towards an acceptable standard of life not simply for those who can afford private healthcare, but for all in our ageing communities. I understand that the Minister has a copy of my notes, and my seven points will be in there. To realise the 10-year plan objectives, which I have clearly said I support and want to see happen as soon as possible, palliative and end-of-life care must be recognised as a vital part of our health and social care system. Without making palliative and end-of-life care a priority for health reform, the Government will not achieve their bold ambition to provide more care in the community. I want the Government to achieve that ambition.

[Ms Julie Minns (Carlisle) (Lab)]

I spoke earlier to the hon. Gentleman to ask if he would take an intervention. When earlier this year my mum was placed on end-of-life care—she was put into the local hospital to receive that care—I had to repeatedly ask hospital staff to transfer her to our local, excellent Eden Valley hospice. It took three days for that request to be actioned. Does the hon. Gentleman agree that one change we could make is that, when someone in our hospitals is placed on end-of-life care, their families could be immediately apprised of the alternative provision that exists in our communities?

[Jim Shannon]

The hon. Lady is absolutely right—by the way, that is one of my seven points. We have spoken, but not exactly about that. The debate brings us together with our requests for the Minister and the Government; we are thankful for that.

Only 38% of those who died aged 85 or older received care from palliative care specialists, compared with 51.5% of those aged 65 to 84 and 59.3% of those aged 18 to 64. To the point made by the right hon. Member for New Forest East, most aged 18 to 64 spent most of their final months in a private home, but fewer than 50% of those aged 65 or older did so. One in seven people—15%—who died in hospital had been in there for less than 24 hours. When someone is coming to their last days, many complex needs are involved—there are also the problems for the family—but they will have to deal with two things in particular: pain, and probably breathlessness.

Almost two thirds of unpaid carers felt anxious most or all the time about the dying person’s illness or treatment. Shifting care from the hospital to the community would benefit older people, support the shift from hospital to community—analogue to digital—and prevent avoidable emergency care admissions. Those are all things that the Government must develop in a national strategy for palliative and end-of-life care.

The strategy must deliver on these seven points. First, an integrated whole-system approach is needed enabling patients at the end of life to move seamlessly through services as their health changes. Secondly, the Government must place palliative care at the centre of plans for neighbourhood health centres and ensure the inclusion of palliative care specialists. A key benefit of including palliative and end-of-life care in neighbourhood health centres will be the earlier identification of palliative care need and greater uptake of advance care planning.

Thirdly, the Government implement models of emergency and urgent care that can minimise avoidable accident and emergency visits. That would provide financial savings for the NHS as well as giving better care in a better system. That also comes to the input of the families, which is the very thing we all wish to see.

Fourthly, the Government need to strengthen the statutory guidance on the legal duty to commission palliative care services in the Health and Care Act 2022. Holding integrated care boards to account for the delivery of this duty must be part of that. Fifthly, we must introduce national quality standards for palliative and end-of-life care that must be met in all health and care settings. That would strengthen accountability while catalysing the 10-year health plan’s targeted shift from hospital to community for patients at the end of life. They must also support more equitable implementation of the vision set out in the ambitious national framework for local action.

Sixthly, there must be access to 24/7 support—the very thing being asked for—by creating a universal gateway to 24/7 specialist palliative and end-of-life care advice, guidance and support through NHS 111. In my constituency, we would say “yin, yin, yin.”

Seventhly, there must be a long-term, sustainable funding solution for palliative and end-of-life care that can reduce reliance on charitable fundraising and ensure parity of esteem for the NHS and non-NHS palliative care workforce. A transformation fund must also be created to invest in innovative and integrated models of care to meet different community needs. The Minister is probably saying, “My goodness, is it just seven points?”, but yes, I will stop at those seven, although I would like to comment on Sue Ryder if I may.

All of these stats can become figures on a page, but when I read them I think of the wee mummy lying on her bathroom floor after a fall, all night in tears; I think of my constituents who sob in my office, begging for help with their dying parent; I think of carers who are run ragged and know that a 15-minute call with that elderly person cannot possibly cater to their hygiene needs as well as feeding them; I think of district nurses who are late home because they would not leave their elderly patient upset after a wound change, and who made them a wee cup of tea and stayed for that comforting chat that time had not been allocated for.

Professor Jugdeep Dhesi, president of the British Geriatrics Society, said:

“Everyone should have access to high quality care until the end of their life, including palliative and end of life care when they need it. Sadly, this is not the case for many older people across the United Kingdom.”

Sue Ryder also asked me to highlight some issues. It is working to create a new ecosystem around palliative and end-of-life care, and to unlock hospital productivity through swiftly shifting care to the community in a progressive way that is sensitive to the resources available across the wider system, and focused on genuine collaboration at a local, place, and system level. The envisaged ecosystem would absorb patients from across the acute setting and increase referrals to community settings, helping our wonderful NHS to use its bed capacity more effectively, and relieving strain on the discharge system. The Sue Ryder model will shift care into the community by increasing hospice-at-home services and virtual wards, funded in line with national currencies and fast-track CHC reform. It is believed that this new approach to hospital care will develop dedicated care, alongside suites on NHS sites to provide compassionate, tailored care for those approaching the end of life, and to relieve pressure on hospital teams.

We must increase support for people in their own homes—that is what I want, what the hon. Member for Carlisle (Ms Minns) wants, and probably what we are all seeking. It is about expanding care in the community through partnerships, virtual wards, and increased hospice-at-home services to help more people die at home and reduce emergency admissions. We must aim to make full use of hospices’ expertise and space to support people with complex multi-morbidities and those in the last 1,000 days of life, preventing emergency admissions and helping people to live well.

I will keep to your timescale, Madam Deputy Speaker; I am coming to the end. The end of life is not a happy topic, but I believe it is a necessary conversation. We must open that conversation to ensure that people feel able to record their wishes for the end of life, so that more of their needs are met by the people involved in their care. We must ensure that there is information, and above all funding to deal with the growing pressure—the family issue that the hon. Member for Carlisle referred to—because how we treat the most vulnerable in our society is the measure that we will all be judged by.

I am no better than anybody else, but as elected representatives you and I, Madam Deputy Speaker, and everyone in the Chamber want to do the best for our people. Today we ask for the best for our people. I work alongside my mum to ensure that her last time on earth is the best we can make it, and I know I can safely say that it is the desire of this House and the Minister to provide that for every person in the United Kingdom of Great Britain and Northern Ireland. But we cannot do it without Government buy-in, or without help from the Minister, and from the Labour Government and those in power. The hospice sector is looking for a way to do things better, so I ask the Minister to join those who know this issue inside out, and find a route to help our ageing community and those in end-of-life care. That is also from Marie Curie, Sue Ryder and Professor Dhesi—all those people, and all of us as MPs on behalf our constituents.

Thank you for your time, Minister, and I look forward to your response.

[Several hon. Members rose—]

--- Later in debate ---

[Jim Shannon]

I thank all Members who have taken part in the debate, including the right hon. Member for New Forest East (Sir Julian Lewis), and the hon. Members for Carlisle (Ms Minns) and for Doncaster East and the Isle of Axholme (Lee Pitcher). The hon. Member for Shipley (Anna Dixon) brought her knowledge to the Chamber, as did the hon. Member for Weston-super-Mare (Dan Aldridge) and I thank him for that.

It is good news that we are living longer, but there is a cost factor and we understand that. The hon. Member for Weston-super-Mare referred to hospices holding the community together, and he is absolutely right. They are always there and always available, and it is good to have that. The hon. Member for Epsom and Ewell (Helen Maguire) reminded us that there is better care in our latter days, and that is what we all need to see.

I am very pleased, as always, to see the shadow Minister, the hon. Member for Hinckley and Bosworth (Dr Evans), in his place. I always look forward to the contributions he makes in debates and enjoy his company. He spoke about cuts across all hospice services and the impact of that, which cannot be ignored. He made a comment about how end-of-life care is provided in Japan. There are lessons we can learn from other countries, which is an important point that I had not thought of.

I thank the Minister for his positive, heartfelt and honest response. He referred to moneys in his speech—some £100 million for hospices and some £26 million for children’s hospices, which the right hon. Member for New Forest East also mentioned. We are seeing palliative care and end-of-life care being central to the Government’s 10-year plan. Not one of us in this Chamber will not welcome that plan; if it brings forward what our people want, it is the right plan. With that in mind, I thank the Minister and I thank you, Madam Deputy Speaker, for your patience.

Question put and agreed to.

Resolved,

That this House has considered the ageing community and end of life care.