Postural Tachycardia Syndrome

Ashley Dalton Excerpts

Tuesday 14th October 2025 Westminster Hall

[The Parliamentary Under-Secretary of State for Health and Social Care (Ashley Dalton)]

It is a pleasure, as always, to serve under your chairmanship, Sir Desmond. I congratulate my hon. Friend the Member for Lancaster and Wyre (Cat Smith) for bringing forward this important issue.

This place is vastly enriched by our experiences, and it is nothing short of inspiring how my hon. Friend’s diagnosis has led her to become a passionate advocate for the PoTS community, raising awareness and holding the Government to account. I thank her for sharing her story and Elise’s case with me. I assure my hon. Friend and Elise that tackling health inequalities is my No. 1 priority as the Minister for Public Health and Prevention.

I also thank many hon. Members for their interventions and for sharing their constituents’ stories. Given this short debate, there is not time to respond to each intervention—I will not even attempt to do so—but I assure hon. Members that their points have been noted and that their presence today is testament to the importance of the issue for hon. Members on both sides of the House. I recognise that people with PoTS wake up and confront every day through sheer willpower, and that showering, cooking and walking to the corner shop each become small expeditions that need endless rest and planning. We are determined to help improve their lives.

Postural tachycardia syndrome, more commonly known as PoTS, is not a rare condition. It affects around 120,000 people in the UK. It is a debilitating, multi-system disorder that can significantly impact someone’s quality of life. As my hon. Friend the Member for Lancaster and Wyre points out, the path to a PoTS diagnosis is often a long and arduous one, filled with frustration and misdiagnosis as patients fight to be heard. Even after a diagnosis is made, patients may struggle to access the services that they need due to a lack of specialist care and limited understanding among health professionals. That results in long delays in treatment, often leaving those affected unable to work or live their lives.

I turn to the specific issues raised by my hon. Friend, starting with guidance. For too long, patients have faced systemic barriers to care and an unacceptable postcode lottery for support. It cannot be right that in modern Britain, where someone happens to be born determines the care that they receive. She rightly points out that that inequality is rooted in the lack of clear national guidance for healthcare professionals. Without guidance from bodies such as NICE, clinicians often lack the confidence and know-how to identify and manage this complex condition effectively.

There are some reasons for the difficulty in providing such guidance, including the amount of available evidence, the fact that PoTS is often managed with lifestyle changes, and the overlap with other conditions such as long covid and myalgic encephalomyelitis/chronic fatigue syndrome, which can bring similar debilitating symptoms. All those issues can make the development of clearcut guidelines challenging. However, in its clinical knowledge summary on blackouts and syncope, NICE sets out in black and white a clear definition of PoTS with the right tests to diagnose it, and symptom-based management. NICE has also published guidance that mentions PoTS in relation to other conditions, such as its guideline on ME/CFS, which acknowledges the overlap between these syndromes. Several other organisations, including PoTS UK and the international Heart Rhythm Society, provide information too.

Services for long-term conditions such as PoTS are commissioned locally through integrated care boards. That approach gives local clinicians the flexibility that they need to tailor services to the specific needs of their communities. Providing a PoTS specialist service is a fundamental part of the ICBs’ statutory role in planning and delivering health to the people they serve, and when an ICB fails to meet its statutory functions, NHS England has a range of proportionate enforcement powers. Let me be clear: we expect NHS England to hold ICBs to account by demanding that they provide clear assurance on how they are meeting their responsibilities, and where they are failing people with PoTS—let me say this very clearly, publicly, now—we expect them to rectify it.

[Cat Smith]

On the point about ICBs, many have zero options in terms of pathways. What steps will the Minister take to ensure that they are forced to do that by NHS England? I thank her for her comments.

[Ashley Dalton]

I thank my hon. Friend for her intervention. As we know, guidelines are only as strong as the evidence and research that they are based on. We need systematic, robust data to determine which treatments and interventions are most effective.

While we are backing our life sciences sector to come up with tomorrow’s treatments for long-term conditions, we are also directly funding research through the National Institute for Health and Care Research. The NIHR is currently backing a study, known as the LOCOMOTION study, with more than £3 million to examine the connection between long covid and autonomic nervous system disorders, especially PoTS. The NIHR funds research proposals through open competition, based on their scientific quality, value for money and impact on patients. The NIHR welcomes research proposals, and I appeal to any researchers to apply with proposals for PoTS-related research that this Government could fund. We want to see proposals and fund those that can be brought forward. Those researchers’ work could be life-changing for thousands of people across our country.

Locally developed care pathways are clearly important for supporting people with PoTS, because they help to address the condition’s unique challenges.

[Rachael Maskell]

There are very few PoTS specialists across the country. Will the Minister meet those specialists to hear why they are facing barriers, and work with them to ensure that they can practise the medicine they know works?

[Ashley Dalton]

The hon. Member pre-empts the end of my speech, where I was going to say that I would be more than happy to meet specialists in this area to discuss how we can move forward. It is important that today’s debate is the beginning of our conversation, not the end of it.

The Government are focused on standardising and co-ordinating care across different settings so that local pathways can address systemic challenges, especially the inconsistent referrals that many people with PoTS face, as has been raised today.

[Cameron Thomas]

Between young people unable to finish education and adults unable to cope with the strains of the workplace, the economic impact of PoTS is undeniable. The Minister speaks clearly about the pressure her Department will put on NHS England, but will she also put pressure on the Treasury with regards to its economic obligations?

[Ashley Dalton]

As the hon. Member is probably aware, the Government are working hard to develop policies to support people, particularly people with health conditions, into work. These issues are being raised through the “Get Britain Working” plan, which my right hon. and hon. Friends in the Department for Work and Pensions are bringing forward. Working to support people with any long-term health condition, including PoTS, is a crucial part of the Government’s effort to improve the economy and get Britain working. The hon. Member’s comments are noted.

We are determined to improve patient outcomes and ensure more tailored and efficient care that acknowledges the complexity of PoTS, beyond just a single specialty. The Government’s 10-year plan for health not only deals with prevention, but offers potential for people with PoTS through the increased focus on community-based rather than hospital care, through the better integration of services, and through our analogue to digital shift and improvement of digital tools. Given that PoTS is frequently co-morbid with ME/CFS, the final delivery plan for ME/CFS, which the Government published this summer, will have a positive impact for many PoTS patients too.

I again thank my hon. Friend the Member for Lancaster and Wyre for securing the debate. As I said, I hope that this is the beginning of our conversation, and that we can continue to discuss how we can ensure we are delivering for people with PoTS as we work towards building an NHS that is fit for the future.

Question put and agreed to.