First Registered: 28/09/2017 • Last updated on: 10/03/2021
To reduce the inequalities faced by sickle cell and thalassaemia patients in the UK. To improve standards of care and address other critical issues, as recommended by the key stakeholders.
1. Sickle cell and thalassaemia screening: information for fathers
10/01/2020 - Public Health England (PHE)
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Found:
Guidance
Sickle cell and thalassaemia screening: information for fathers
Leaflet
2. Sickle cell and thalassaemia screening: care pathway
29/03/2021 - Public Health England (PHE)
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Found: Sickle cell and thalassaemia screening: care pathway
This document describes the sickle cell
3. Sickle cell and thalassaemia screening: data report 2017 to 2018
02/03/2020 - Public Health England (PHE)
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Found: Sickle cell and thalassaemia screening: data report 2017 to 2018
Data for the NHS sickle cell
4. Baby at risk of having sickle cell disease: description in brief
12/01/2021 - Public Health England (PHE)
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Found: Guidance
Baby at risk of having sickle cell disease: description in brief
Information
5. Family origin questionnaire: sickle cell and thalassaemia screening
01/10/2019 - Public Health England (PHE)
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Found:
Family origin questionnaire: sickle cell and thalassaemia screening - GOV.UK
1. BAME Blood, Stem Cell and Organ Donation
27/06/2018 - Westminster Hall
1: That this House has considered BAME blood, stem cell and organ donation.It is a pleasure to serve - Speech Link
2: chair of the all-party parliamentary group on stem cell transplantation. My hon. Friend makes a point that - Speech Link
3: ethnic backgrounds make up just 15% of the stem cell register, but campaigns such as Cure Kaiya, which - Speech Link
2. Sickle Cell Anaemia
10/12/2014 - Westminster Hall
1: this matter under your chairmanship, Mr Owen. Sickle cell anaemia affects an estimated 12,000 to 15,000 - Speech Link
2: thereabouts, but life expectancy for those with sickle cell anaemia is 40 to 50, which is better than it - Speech Link
3: past seven years or so with the Wolverhampton sickle cell care group. It provides hugely needed and valuable - Speech Link
3. UK Rare Diseases Framework
24/03/2021 - Westminster Hall
1: the all-party parliamentary group on sickle cell and thalassaemia, I know that this subject is of great - Speech Link
2: Member for Thirsk and Malton (Kevin Hollinrake); thalassaemia, raised by my hon. Friend the Member for Enfield - Speech Link
3: mentioned—motor neurone disease, muscular dystrophy, PKU, thalassaemia, neurofibromatosis and Batten disease —are all - Speech Link
4. NHS Long-Term Plan: Implementation
01/07/2019 - Commons Chamber
1: all-party parliamentary group on sickle cell and thalassaemia. Sickle cell is very much a hidden disability - Speech Link
2: crew, we attended a patient who suffered from sickle cell, and it was horrific to see the degree of pain - Speech Link
5. Health: Stroke
23/07/2014 - Grand Committee
1: conditions—most commonly, congenital heart disease and sickle cell disease. Other underlying causes are infectious - Speech Link
2: Her view was that if they knew the child had sickle cell disease, or had had a fall or an RTA, they certainly - Speech Link
3: awareness of the characteristics and consequences of sickle cell disease and teachers should try to identify the - Speech Link
Registered Contact:
Pat McFadden MP, House of Commons, London, SW1A 0AA. Tel: 020 7219 4036.
Email: mcfaddenp@parliament.uk
Public Enquiry Point:
Adam Lloyd, Sickle Cell Society, 54 Station Road, London NW10 4UA. Tel: 020 8961 7795
Email: adam.lloyd@sicklecellsociety.org
Secretariat:
Sickle Cell Society acts as the group's secretariat. http://www.sicklecellsociety.org/
Group's Website:
No direct financial benefits are on record for the Sickle Cell and Thalassaemia APPG