Sickle Cell and Thalassaemia APPG

First Registered: 28/09/2017 • Last updated on: 22/07/2022

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To reduce the inequalities faced by sickle cell and thalassaemia patients in the UK. To improve standards of care and address other critical issues, as recommended by the key stakeholders.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
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Current Members - Contact Details - Benefits in Kind - Financial Benefits - Former Members
Reticulating Splines
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6 Current APPG Officers
Janet Daby Portrait
Janet Daby
Chair & Registered Contact
Labour - Lewisham East
Joined: 31st July 2019
4 APPG Memberships
Christianity in the Holy Land , Magnitsky Sanctions , Parkrun , Safeguarding in Faith Communities
Greg Clark Portrait
Greg Clark
Vice Chair
Conservative - Tunbridge Wells
Joined: 17th November 2021
3 APPG Memberships
Chemical Industry , Colombia , Motor
Pat McFadden Portrait
Pat McFadden
Vice Chair
Labour - Wolverhampton South East
Joined: 20th May 2020
3 APPG Memberships
Black Country Economy , British Sikhs , Markets
Bambos Charalambous Portrait
Bambos Charalambous
Vice Chair
Labour - Enfield, Southgate
Joined: 2nd January 2019
11 APPG Memberships
Alevis , Breast Cancer , Cyprus , Equipment for Disabled Children , Future Generations , Green Deal Misselling , Investment Fraud , Missing Children and Adults , Social Media , Tackling Loneliness and Connected Communities , Thalassaemia
Bell Ribeiro-Addy Portrait
Bell Ribeiro-Addy
Vice Chair
Labour - Streatham
Joined: 20th May 2020
15 APPG Memberships
Afrikan Reparations , Bereavement Support , Black Maternal Health , British Overseas Territories , Child Criminal Exploitation and Knife Crime , Communities of Inquiry across the Generations , Crypto and Digital Assets , Dementia , Domestic Violence and Abuse , Global Lesbian, Gay, Bisexual, and Transgender (LGBT+) Rights , Healthcare Infrastructure , Immigration Detention , India (Trade and Investment) , Malaria and Neglected Tropical Diseases , Race and Community
Florence Eshalomi Portrait
Florence Eshalomi
Vice Chair
Labour (Co-op) - Vauxhall
Joined: 20th May 2020
11 APPG Memberships
Black Maternal Health , Child Criminal Exploitation and Knife Crime , Eye Health and Visual Impairment , Financial Resilience , Genocide and Crimes Against Humanity , HIV and AIDS , Homelessness , London , London as a Global City , Nigeria , School Food
Contact Details

Registered Contact:

Janet Daby MP, House of Commons, London, SW1A 0AA.

Email: janet.daby.mp@parliament.uk

Public Enquiry Point:

Seyi Afolabi, Sickle Cell Society, 54 Station Road, London NW10 4UA. Tel: 020 8961 7795

Email: seyi.afolabi@sicklecellsociety.org

Secretariat:

Sickle Cell Society acts as the group's secretariat. http://www.sicklecellsociety.org/

Group's Website:

https://www.sicklecellsociety.org/sctappg/

Benefits in Kind
Date
26 Feb 2022
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis, Vertex and Global Blood Therapeutics to act as the group's secretariat   From : 26/02/2022 To : 25/02/2023
Value
£37,501
Date
26 Feb 2021
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat   From : 26/02/2021 To : 25/02/2022
Value
£33,001
Date
26 Feb 2020
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat   From : 26/02/2020 To : 25/02/2021
Value
£24,001
Date
7 Sep 2018
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat   From : 07/09/2018 To : 06/09/2019
Value
£13,501
Date
7 Sep 2018
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat   From : 07/09/2018 To : 06/09/2019
Value
£13,501
Date
7 Sep 2018
Source
UK Thalassaemia Society
Description
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat   From : 07/09/2018 To : 06/09/2019
Value
£13,501
Date
7 Sep 2017
Source
Novartis
Description
Secretariat   From : 07/09/2017 To : 30/11/2017
Value
£1,501
Date
7 Sep 2017
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat   From : 07/09/2017 To : 06/09/2018
Value
£13,501
Date
7 Sep 2017
Source
UK Thalassaemia Society
Description
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat   From : 07/09/2017 To : 06/09/2018
Value
£13,501

No direct financial benefits are on record for the Sickle Cell and Thalassaemia APPG

Former APPG Officers
Baroness Benjamin Portrait
Baroness Benjamin
Officer
Liberal Democrat - Life peer
Joined: 28th September 2017
Departed: 15th June 2022
8 APPG Memberships
Caribbean , Children's Media and the Arts , Creative Diversity , Ethnic Minority Business Owners , Fit and Healthy Childhood , Montserrat , Turks and Caicos Islands , Writers
Jess Phillips Portrait
Jess Phillips
Officer
Labour - Birmingham, Yardley
Joined: 20th May 2020
Departed: 15th June 2022
9 APPG Memberships
Blood Cancer , Child Contact Centres and Services , Domestic Violence and Abuse , Muslim Women , Thalidomide , Twelve Steps Recovery Programme from Addiction , United Nations Women , Women and Work , Women's Health
David Amess Portrait
David Amess
Officer
Conservative - Former Member for Southend West
Joined: 28th September 2017
Departed: 6th October 2021
No other APPG Memberships
Dawn Butler Portrait
Dawn Butler
Officer
Labour - Brent Central
Joined: 28th September 2017
Departed: 2nd June 2021
4 APPG Memberships
Afrikan Reparations , Art, Craft and Design in Education , Caribbean , Democracy and the Constitution
Kate Osamor Portrait
Kate Osamor
Officer
Labour (Co-op) - Edmonton
Joined: 20th May 2020
Departed: 2nd June 2021
13 APPG Memberships
Africa , Alevis , Black Maternal Health , Eye Health and Visual Impairment , Immigration Detention , Kurdistan in Turkey and Syria , Libya , Nigeria , No Recourse to Public Funds , Organisation for Economic Co-operation and Development , Thalassaemia , Turks and Caicos Islands , Yoga in Society
Helen Grant Portrait
Helen Grant
Officer
Conservative - Maidstone and The Weald
Joined: 20th May 2020
Departed: 2nd June 2021
3 APPG Memberships
Channel 4 , Creative Diversity , Tennis
Pat McFadden Portrait
Pat McFadden
Chair & Registered Contact
Labour - Wolverhampton South East
Joined: 28th September 2017
Departed: 5th November 2019
3 APPG Memberships
Black Country Economy , British Sikhs , Markets
Diane Abbott Portrait
Diane Abbott
Chair & Registered Contact
Labour - Hackney North and Stoke Newington
Joined: 28th September 2017
Departed: 19th June 2019
1 APPG Membership
Race Equality in Education