Sickle Cell and Thalassaemia APPG

First Registered: 28/09/2017 • Last updated on: 13/05/2024

To reduce the inequalities faced by sickle cell and thalassaemia patients in the UK. To improve standards of care and address other critical issues, as recommended by the key stakeholders.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
View Official Register Entry


Reticulating Splines
APPG Supplied Content

APPGs can register with Parallel Parliament and submit files and articles to be placed here.

Parallel Parliament offers the facility for APPGs to submit written content and files, which are made available through this page.

Submitters can draft and edit publications, and either release them on demand, or schedule release for a future date.

Both text content and attached files submitted through this facility is indexed by our website, and made available through both the search function and relevant e-mail alerts. Any of our users registered for an alert which matches your content, will receive a link making them aware of its publication.

If you wish to register as an authorised representative of the Sickle Cell and Thalassaemia APPG and use this facility, click below

4 Current APPG Officers
Janet Daby Portrait
Janet Daby
Chair & Registered Contact
Labour - Lewisham East
Joined: 31st July 2019
Greg Clark Portrait
Greg Clark
Officer
Conservative - Tunbridge Wells
Joined: 17th November 2021
4 APPG Memberships
Chemical Industry , Japan , Mexico , Motor
Dawn Butler Portrait
Dawn Butler
Officer
Labour - Brent Central
Joined: 28th September 2017
Contact Details

Registered Contact:

Janet Daby MP, House of Commons, London, SW1A 0AA.

Email: janet.daby.mp@parliament.uk

Public Enquiry Point:

Seyi Afolabi, Sickle Cell Society, 54 Station Road, London NW10 4UA. Tel: 020 8961 7795

Email: seyi.afolabi@sicklecellsociety.org

Secretariat:

Sickle Cell Society acts as the group's secretariat. http://www.sicklecellsociety.org/

Group's Website:

https://www.sicklecellsociety.org/sctappg/

Date
3 Jul 2023
Source
NHS England (London)
Description
Event
Value
£1,501
Date
26 Feb 2023
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Vertex and GBT to act as the group's secretariat   From : 26/02/2023 To : 25/02/2024
Value
£27,001
Date
26 Feb 2022
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis, Vertex and Global Blood Therapeutics to act as the group's secretariat   From : 26/02/2022 To : 25/02/2023
Value
£37,501
Date
26 Feb 2021
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat   From : 26/02/2021 To : 25/02/2022
Value
£33,001
Date
26 Feb 2020
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat   From : 26/02/2020 To : 25/02/2021
Value
£24,001
Date
7 Sep 2018
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat   From : 07/09/2018 To : 06/09/2019
Value
£13,501
Date
7 Sep 2018
Source
UK Thalassaemia Society
Description
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat   From : 07/09/2018 To : 06/09/2019
Value
£13,501
Date
7 Sep 2018
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat   From : 07/09/2018 To : 06/09/2019
Value
£13,501
Date
7 Sep 2017
Source
Novartis
Description
Secretariat   From : 07/09/2017 To : 30/11/2017
Value
£1,501
Date
7 Sep 2017
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat   From : 07/09/2017 To : 06/09/2018
Value
£13,501
Date
7 Sep 2017
Source
UK Thalassaemia Society
Description
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat   From : 07/09/2017 To : 06/09/2018
Value
£13,501

No direct financial benefits are on record for the Sickle Cell and Thalassaemia APPG

Former APPG Officers
Pat McFadden Portrait
Pat McFadden
Officer
Labour - Wolverhampton South East
Joined: 20th May 2020
Departed: 6th March 2024
No other APPG Memberships
Florence Eshalomi Portrait
Florence Eshalomi
Officer
Labour (Co-op) - Vauxhall
Joined: 20th May 2020
Departed: 6th March 2024
2 APPG Memberships
HIV, AIDS and Sexual Health , London
Baroness Thornton Portrait
Baroness Thornton
Officer
Labour - Life peer
Joined: 11th January 2023
Departed: 6th March 2024
Paulette Hamilton Portrait
Paulette Hamilton
Officer
Labour - Birmingham, Erdington
Joined: 11th January 2023
Departed: 17th May 2023
Baroness Ludford Portrait
Baroness Ludford
Officer
Liberal Democrat - Life peer
Joined: 11th January 2023
Departed: 17th May 2023
Bambos Charalambous Portrait
Bambos Charalambous
Vice Chair
Labour - Enfield, Southgate
Joined: 2nd January 2019
Departed: 17th May 2023
2 APPG Memberships
Modernising Employment , Thalassaemia
Baroness Benjamin Portrait
Baroness Benjamin
Officer
Liberal Democrat - Life peer
Joined: 28th September 2017
Departed: 15th June 2022
1 APPG Membership
Children's Media and the Arts
Jess Phillips Portrait
Jess Phillips
Officer
Labour - Birmingham, Yardley
Joined: 20th May 2020
Departed: 15th June 2022
2 APPG Memberships
Blood Cancer , Women and Work
David Amess Portrait
David Amess
Officer
Conservative - Former Member for Southend West
Joined: 28th September 2017
Departed: 6th October 2021
No other APPG Memberships
Kate Osamor Portrait
Kate Osamor
Officer
Labour (Co-op) - Edmonton
Joined: 20th May 2020
Departed: 2nd June 2021
4 APPG Memberships
Africa , Dominica , Libya , Restorative Justice
Helen Grant Portrait
Helen Grant
Officer
Conservative - Maidstone and The Weald
Joined: 20th May 2020
Departed: 2nd June 2021
No other APPG Memberships
Pat McFadden Portrait
Pat McFadden
Chair & Registered Contact
Labour - Wolverhampton South East
Joined: 28th September 2017
Departed: 5th November 2019
No other APPG Memberships
Diane Abbott Portrait
Diane Abbott
Chair & Registered Contact
Independent - Hackney North and Stoke Newington
Joined: 28th September 2017
Departed: 19th June 2019
1 APPG Membership
Race Equality in Education