Sickle Cell and Thalassaemia APPG

First Registered: 28/09/2017 • Last updated on: 22/07/2022

To reduce the inequalities faced by sickle cell and thalassaemia patients in the UK. To improve standards of care and address other critical issues, as recommended by the key stakeholders.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
View Official Register Entry


Reticulating Splines
APPG Supplied Content

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If you wish to register as an authorised representative of the Sickle Cell and Thalassaemia APPG and use this facility, click below

6 Current APPG Officers
Janet Daby Portrait
Janet Daby
Chair & Registered Contact
Labour - Lewisham East
Joined: 31st July 2019
Greg Clark Portrait
Greg Clark
Vice Chair
Conservative - Tunbridge Wells
Joined: 17th November 2021
3 APPG Memberships
Chemical Industry , Colombia , Motor
Pat McFadden Portrait
Pat McFadden
Vice Chair
Labour - Wolverhampton South East
Joined: 20th May 2020
Contact Details

Registered Contact:

Janet Daby MP, House of Commons, London, SW1A 0AA.

Email: janet.daby.mp@parliament.uk

Public Enquiry Point:

Seyi Afolabi, Sickle Cell Society, 54 Station Road, London NW10 4UA. Tel: 020 8961 7795

Email: seyi.afolabi@sicklecellsociety.org

Secretariat:

Sickle Cell Society acts as the group's secretariat. http://www.sicklecellsociety.org/

Group's Website:

https://www.sicklecellsociety.org/sctappg/

Date
26 Feb 2022
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis, Vertex and Global Blood Therapeutics to act as the group's secretariat   From : 26/02/2022 To : 25/02/2023
Value
£37,501
Date
26 Feb 2021
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat   From : 26/02/2021 To : 25/02/2022
Value
£33,001
Date
26 Feb 2020
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat   From : 26/02/2020 To : 25/02/2021
Value
£24,001
Date
7 Sep 2018
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat   From : 07/09/2018 To : 06/09/2019
Value
£13,501
Date
7 Sep 2018
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat   From : 07/09/2018 To : 06/09/2019
Value
£13,501
Date
7 Sep 2018
Source
UK Thalassaemia Society
Description
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat   From : 07/09/2018 To : 06/09/2019
Value
£13,501
Date
7 Sep 2017
Source
Novartis
Description
Secretariat   From : 07/09/2017 To : 30/11/2017
Value
£1,501
Date
7 Sep 2017
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat   From : 07/09/2017 To : 06/09/2018
Value
£13,501
Date
7 Sep 2017
Source
UK Thalassaemia Society
Description
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat   From : 07/09/2017 To : 06/09/2018
Value
£13,501

No direct financial benefits are on record for the Sickle Cell and Thalassaemia APPG

Former APPG Officers
Baroness Benjamin Portrait
Baroness Benjamin
Officer
Liberal Democrat - Life peer
Joined: 28th September 2017
Departed: 15th June 2022
David Amess Portrait
David Amess
Officer
Conservative - Former Member for Southend West
Joined: 28th September 2017
Departed: 6th October 2021
No other APPG Memberships
Dawn Butler Portrait
Dawn Butler
Officer
Labour - Brent Central
Joined: 28th September 2017
Departed: 2nd June 2021
Helen Grant Portrait
Helen Grant
Officer
Conservative - Maidstone and The Weald
Joined: 20th May 2020
Departed: 2nd June 2021
3 APPG Memberships
Channel 4 , Creative Diversity , Tennis
Pat McFadden Portrait
Pat McFadden
Chair & Registered Contact
Labour - Wolverhampton South East
Joined: 28th September 2017
Departed: 5th November 2019
Diane Abbott Portrait
Diane Abbott
Chair & Registered Contact
Labour - Hackney North and Stoke Newington
Joined: 28th September 2017
Departed: 19th June 2019
1 APPG Membership
Race Equality in Education