To reduce the inequalities faced by sickle cell and thalassaemia patients in the UK. To improve standards of care and address other critical issues, as recommended by the key stakeholders.
Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
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Reticulating Splines
4 Current APPG Officers
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2 APPG Officer Positions
Black Health , Czechia
7 APPG Memberships
Adult Social Care , Autism , Beyond Pills , Fairtrade , Maternity , Social Science and Policy , Waterways
Black Health , Czechia
7 APPG Memberships
Adult Social Care , Autism , Beyond Pills , Fairtrade , Maternity , Social Science and Policy , Waterways
7 APPG Officer Positions
Beyond Pills , Commonwealth , Creative Health , Dyslexia , Hajj and Umrah , School Food , Tackling Loneliness and Connected Communities
10 APPG Memberships
Aid Match , Antimicrobial Resistance , Blockchain Technologies , ClimateTech , Emerging Drugs and Online Behavioural Trends , Heritage Rail , India , Less Survivable Cancers , Sepsis , Switzerland and Liechtenstein
Beyond Pills , Commonwealth , Creative Health , Dyslexia , Hajj and Umrah , School Food , Tackling Loneliness and Connected Communities
10 APPG Memberships
Aid Match , Antimicrobial Resistance , Blockchain Technologies , ClimateTech , Emerging Drugs and Online Behavioural Trends , Heritage Rail , India , Less Survivable Cancers , Sepsis , Switzerland and Liechtenstein
2 APPG Officer Positions
Parks and Green Spaces , Social, Cooperative, and Community Economy
19 APPG Memberships
Autism , Babies (Pregnancy to Age 2) , British Jews , Dentistry and Oral Health , Diversity and Inclusion in Science, Technology, Engineering and Mathematics , Early Education and Childcare , Get Refusal , Healthy Places , Humanist , Internet, Communications and Technology , Maternity , Media , Mutuals , Myalgic Encephalomyelitis (ME) , Ocean , Refugees , Respiratory Health , Stem Cell Transplantation and Advanced Cellular Therapies , Tidy Britain
Parks and Green Spaces , Social, Cooperative, and Community Economy
19 APPG Memberships
Autism , Babies (Pregnancy to Age 2) , British Jews , Dentistry and Oral Health , Diversity and Inclusion in Science, Technology, Engineering and Mathematics , Early Education and Childcare , Get Refusal , Healthy Places , Humanist , Internet, Communications and Technology , Maternity , Media , Mutuals , Myalgic Encephalomyelitis (ME) , Ocean , Refugees , Respiratory Health , Stem Cell Transplantation and Advanced Cellular Therapies , Tidy Britain
Contact Details
Show/HideRegistered Contact:
Janet Daby MP, House of Commons, London, SW1A 0AA.
Email: [email protected]
Public Enquiry Point:
Aidan Rylatt, Sickle Cell Society
Email: [email protected]
Secretariat:
Sickle Cell Society acts as the group's secretariat. https://www.sicklecellsociety.org/
Group's Website:
Benefits in Kind
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Date
13 Jul 2026
13 Jul 2026
Source
Sickle Cell Society
Sickle Cell Society
Description
Secretariat From: 13/07/2026 To: 12/07/2027
Secretariat From: 13/07/2026 To: 12/07/2027
Value
£25,501
£25,501
Date
3 Jul 2023
3 Jul 2023
Source
NHS England (London)
NHS England (London)
Description
Event
Event
Value
£1,501
£1,501
Date
26 Feb 2023
26 Feb 2023
Source
Sickle Cell Society
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Vertex and GBT to act as the group's secretariat From : 26/02/2023 To : 25/02/2024
Sickle Cell Society is part-funded by Vertex and GBT to act as the group's secretariat From : 26/02/2023 To : 25/02/2024
Value
£27,001
£27,001
Date
26 Feb 2022
26 Feb 2022
Source
Sickle Cell Society
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis, Vertex and Global Blood Therapeutics to act as the group's secretariat From : 26/02/2022 To : 25/02/2023
Sickle Cell Society is part-funded by Novartis, Vertex and Global Blood Therapeutics to act as the group's secretariat From : 26/02/2022 To : 25/02/2023
Value
£37,501
£37,501
Date
26 Feb 2021
26 Feb 2021
Source
Sickle Cell Society
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat From : 26/02/2021 To : 25/02/2022
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat From : 26/02/2021 To : 25/02/2022
Value
£33,001
£33,001
Date
26 Feb 2020
26 Feb 2020
Source
Sickle Cell Society
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat From : 26/02/2020 To : 25/02/2021
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat From : 26/02/2020 To : 25/02/2021
Value
£24,001
£24,001
Date
7 Sep 2018
7 Sep 2018
Source
Sickle Cell Society
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat From : 07/09/2018 To : 06/09/2019
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat From : 07/09/2018 To : 06/09/2019
Value
£13,501
£13,501
Date
7 Sep 2018
7 Sep 2018
Source
UK Thalassaemia Society
UK Thalassaemia Society
Description
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat From : 07/09/2018 To : 06/09/2019
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat From : 07/09/2018 To : 06/09/2019
Value
£13,501
£13,501
Date
7 Sep 2018
7 Sep 2018
Source
Sickle Cell Society
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat From : 07/09/2018 To : 06/09/2019
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat From : 07/09/2018 To : 06/09/2019
Value
£13,501
£13,501
Date
7 Sep 2017
7 Sep 2017
Source
Novartis
Novartis
Description
Secretariat From : 07/09/2017 To : 30/11/2017
Secretariat From : 07/09/2017 To : 30/11/2017
Value
£1,501
£1,501
Date
7 Sep 2017
7 Sep 2017
Source
Sickle Cell Society
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat From : 07/09/2017 To : 06/09/2018
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat From : 07/09/2017 To : 06/09/2018
Value
£13,501
£13,501
Date
7 Sep 2017
7 Sep 2017
Source
UK Thalassaemia Society
UK Thalassaemia Society
Description
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat From : 07/09/2017 To : 06/09/2018
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat From : 07/09/2017 To : 06/09/2018
Value
£13,501
£13,501
No direct financial benefits are on record for the Sickle Cell and Thalassaemia APPG
Former APPG Officers
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Bell Ribeiro-Addy
Officer
Labour - Clapham and Brixton Hill
Joined: 20th May 2020Departed: 30th May 2024
6 APPG Officer Positions
Afrikan Reparations , Bangladesh , Black Maternal Health , Ethnicity Transplantation and Transfusion , Ghana , Immigration Detention
Afrikan Reparations , Bangladesh , Black Maternal Health , Ethnicity Transplantation and Transfusion , Ghana , Immigration Detention
No other APPG Memberships
Greg Clark
Officer
Conservative - Former Member for Tunbridge Wells
Joined: 17th November 2021Departed: 30th May 2024
No other APPG Officer Positions
No other APPG Memberships
5 APPG Officer Positions
Artificial Intelligence , Governance and Inclusive Leadership , Jamaica , Race and Community , Women in Parliament
Artificial Intelligence , Governance and Inclusive Leadership , Jamaica , Race and Community , Women in Parliament
No other APPG Memberships
6 APPG Officer Positions
Christians in Parliament , Disability , Eye Health and Visual Impairment , Football , Jamaica , Tennis
Christians in Parliament , Disability , Eye Health and Visual Impairment , Football , Jamaica , Tennis
No other APPG Memberships
Pat McFadden
Officer
Labour - Wolverhampton South East
Joined: 20th May 2020Departed: 6th March 2024
No other APPG Officer Positions
No other APPG Memberships
Florence Eshalomi
Officer
Labour (Co-op) - Vauxhall and Camberwell Green
Joined: 20th May 2020Departed: 6th March 2024
3 APPG Officer Positions
Eye Health and Visual Impairment , HIV, AIDS and Sexual Health , Nigeria
Eye Health and Visual Impairment , HIV, AIDS and Sexual Health , Nigeria
No other APPG Memberships
Paulette Hamilton
Officer
Labour - Birmingham Erdington
Joined: 11th January 2023Departed: 17th May 2023
4 APPG Officer Positions
Black Health , Cyprus , Less Survivable Cancers , Local Government
Black Health , Cyprus , Less Survivable Cancers , Local Government
No other APPG Memberships
Baroness Ludford
Officer
Liberal Democrat - Life peer
Joined: 11th January 2023Departed: 17th May 2023
2 APPG Officer Positions
Chagos (British Indian Ocean Territory) , Women's Rights
Chagos (British Indian Ocean Territory) , Women's Rights
No other APPG Memberships
Bambos Charalambous
Vice Chair
Labour - Southgate and Wood Green
Joined: 2nd January 2019Departed: 17th May 2023
6 APPG Officer Positions
Cyprus , Future Generations , Global Education , Kurds , Music Education , Opera
Cyprus , Future Generations , Global Education , Kurds , Music Education , Opera
No other APPG Memberships
Baroness Benjamin
Officer
Liberal Democrat - Life peer
Joined: 28th September 2017Departed: 15th June 2022
No other APPG Officer Positions
No other APPG Memberships
David Amess
Officer
Conservative - Former Member for Southend West
Joined: 28th September 2017Departed: 6th October 2021
No other APPG Officer Positions
No other APPG Memberships
Kate Osamor
Officer
Labour (Co-op) - Edmonton and Winchmore Hill
Joined: 20th May 2020Departed: 2nd June 2021
4 APPG Officer Positions
Africa , Haiti , Nigeria , Women affected by the Criminal Justice System
Africa , Haiti , Nigeria , Women affected by the Criminal Justice System
No other APPG Memberships
Helen Grant
Officer
Conservative - Maidstone and Malling
Joined: 20th May 2020Departed: 2nd June 2021
Pat McFadden
Chair & Registered Contact
Labour - Wolverhampton South East
Joined: 28th September 2017Departed: 5th November 2019
No other APPG Officer Positions
No other APPG Memberships
Diane Abbott
Chair & Registered Contact
Labour - Hackney North and Stoke Newington
Joined: 28th September 2017Departed: 19th June 2019