Sickle Cell and Thalassaemia APPG

First Registered: 28/09/2017 • Last updated on: 30/05/2024

Note: This APPG was last registered on 30th May 2024. The APPG was not registered in the latest release of the 9th October 2024 and may be defunct.

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To reduce the inequalities faced by sickle cell and thalassaemia patients in the UK. To improve standards of care and address other critical issues, as recommended by the key stakeholders.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
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Former Members - Contact Details - Benefits in Kind - Financial Benefits
Reticulating Splines
Former APPG Members
Dawn Butler Portrait
Dawn Butler
Officer
Labour - Brent East
Joined: 28th September 2017
Departed: 30th May 2024
No other APPG Memberships
Greg Clark Portrait
Greg Clark
Officer
Conservative - Former Member for Tunbridge Wells
Joined: 17th November 2021
Departed: 30th May 2024
No other APPG Memberships
Bell Ribeiro-Addy Portrait
Bell Ribeiro-Addy
Officer
Labour - Clapham and Brixton Hill
Joined: 20th May 2020
Departed: 30th May 2024
1 APPG Membership
Afrikan Reparations
Janet Daby Portrait
Janet Daby
Chair & Registered Contact
Labour - Lewisham East
Joined: 31st July 2019
Departed: 30th May 2024
No other APPG Memberships
Baroness Thornton Portrait
Baroness Thornton
Officer
Labour - Life peer
Joined: 11th January 2023
Departed: 6th March 2024
1 APPG Membership
Media
Florence Eshalomi Portrait
Florence Eshalomi
Officer
Labour (Co-op) - Vauxhall and Camberwell Green
Joined: 20th May 2020
Departed: 6th March 2024
1 APPG Membership
London
Pat McFadden Portrait
Pat McFadden
Officer
Labour - Wolverhampton South East
Joined: 20th May 2020
Departed: 6th March 2024
No other APPG Memberships
Marsha De Cordova Portrait
Marsha De Cordova
Officer
Labour - Battersea
Joined: 11th January 2023
Departed: 6th March 2024
3 APPG Memberships
Christians in Parliament , Eye Health and Visual Impairment , Football
Bambos Charalambous Portrait
Bambos Charalambous
Vice Chair
Labour - Southgate and Wood Green
Joined: 2nd January 2019
Departed: 17th May 2023
2 APPG Memberships
Modernising Employment , Opera
Baroness Ludford Portrait
Baroness Ludford
Officer
Liberal Democrat - Life peer
Joined: 11th January 2023
Departed: 17th May 2023
1 APPG Membership
Chagos (British Indian Ocean Territory)
Paulette Hamilton Portrait
Paulette Hamilton
Officer
Labour - Birmingham Erdington
Joined: 11th January 2023
Departed: 17th May 2023
No other APPG Memberships
Jess Phillips Portrait
Jess Phillips
Officer
Labour - Birmingham Yardley
Joined: 20th May 2020
Departed: 15th June 2022
No other APPG Memberships
Baroness Benjamin Portrait
Baroness Benjamin
Officer
Liberal Democrat - Life peer
Joined: 28th September 2017
Departed: 15th June 2022
No other APPG Memberships
David Amess Portrait
David Amess
Officer
Conservative - Former Member for Southend West
Joined: 28th September 2017
Departed: 6th October 2021
No other APPG Memberships
Helen Grant Portrait
Helen Grant
Officer
Conservative - Maidstone and Malling
Joined: 20th May 2020
Departed: 2nd June 2021
1 APPG Membership
Tennis
Kate Osamor Portrait
Kate Osamor
Officer
Labour (Co-op) - Edmonton and Winchmore Hill
Joined: 20th May 2020
Departed: 2nd June 2021
2 APPG Memberships
Africa , Libya
Pat McFadden Portrait
Pat McFadden
Chair & Registered Contact
Labour - Wolverhampton South East
Joined: 28th September 2017
Departed: 5th November 2019
No other APPG Memberships
Diane Abbott Portrait
Diane Abbott
Chair & Registered Contact
Labour - Hackney North and Stoke Newington
Joined: 28th September 2017
Departed: 19th June 2019
1 APPG Membership
Afrikan Reparations
Contact Details

Registered Contact:

Janet Daby MP,

Email: No email supplied

Public Enquiry Point:

Seyi Afolabi, Sickle Cell Society, 54 Station Road, London NW10 4UA. Tel: 020 8961 7795

Email: seyi.afolabi@sicklecellsociety.org

Secretariat:

Sickle Cell Society acts as the group's secretariat. http://www.sicklecellsociety.org/

Group's Website:

https://www.sicklecellsociety.org/sctappg/

Benefits in Kind
Date
3 Jul 2023
Source
NHS England (London)
Description
Event
Value
£1,501
Date
26 Feb 2023
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Vertex and GBT to act as the group's secretariat   From : 26/02/2023 To : 25/02/2024
Value
£27,001
Date
26 Feb 2022
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis, Vertex and Global Blood Therapeutics to act as the group's secretariat   From : 26/02/2022 To : 25/02/2023
Value
£37,501
Date
26 Feb 2021
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat   From : 26/02/2021 To : 25/02/2022
Value
£33,001
Date
26 Feb 2020
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat   From : 26/02/2020 To : 25/02/2021
Value
£24,001
Date
7 Sep 2018
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat   From : 07/09/2018 To : 06/09/2019
Value
£13,501
Date
7 Sep 2018
Source
UK Thalassaemia Society
Description
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat   From : 07/09/2018 To : 06/09/2019
Value
£13,501
Date
7 Sep 2018
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's secretariat   From : 07/09/2018 To : 06/09/2019
Value
£13,501
Date
7 Sep 2017
Source
Novartis
Description
Secretariat   From : 07/09/2017 To : 30/11/2017
Value
£1,501
Date
7 Sep 2017
Source
Sickle Cell Society
Description
Sickle Cell Society is part-funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat   From : 07/09/2017 To : 06/09/2018
Value
£13,501
Date
7 Sep 2017
Source
UK Thalassaemia Society
Description
UK Thalassaemia Society is funded by Novartis and Bluebird Bio to act as the group's (joint) secretariat   From : 07/09/2017 To : 06/09/2018
Value
£13,501

No direct financial benefits are on record for the Sickle Cell and Thalassaemia APPG