Increase funding for urgent research into devastating motor neurone disease

We ask Government to significantly increase targeted research funding for motor neurone disease (MND). A new investment of £50m over 5 years could kickstart a pioneering MND Research Institute. This would lead to better, faster and more definitive research outcomes and hope for those with MND.

103,991 Signatures

Status: Open
Opened: 6 Jan 2021, 12:05 p.m.
Last 24 hours signatures : 96
Estimated Final Signatures: 173,875

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Latest Documents
Recent Speeches related to Increase funding for urgent research into devastating motor neurone disease

1. UK Rare Diseases Framework
24/03/2021 - Westminster Hall

1: opportunity for the rare diseases community. There is hope that the framework will enable people living with - Speech Link

2. Motor Neurone Disease/Gordon Aikman
20/02/2017 - Commons Chamber

1: want to talk about the dreadful disease that is motor neurone disease and to pay tribute to the life of - Speech Link
2: House. Will he join me in paying tribute to local MND associations across the United Kingdom for the invaluable - Speech Link
3: intervene to emphasise the good work that MND associations, including MND Scotland, do across the country. I - Speech Link

3. Health: Neurological Services
31/01/2017 - Lords Chamber

1: services are also vital to people with motor neurone disease, epilepsy, migraine, multiple sclerosis - Speech Link

4. Oral Answers to Questions
24/03/2021 - Commons Chamber

1: commissioning groups, taking account of National Institute for Health and Care Excellence guidelines, which - Speech Link
2: in our plan for jobs, such as our £2 billion kickstart scheme and the restart programme, which launches - Speech Link
3: men’s, the fall in women’s employment has been better through the covid pandemic. As the UK Government - Speech Link

5. Terminally Ill People: Access to Benefits
22/02/2021 - Commons Chamber

1: campaigning by charities Marie Curie, the Motor Neurone Disease Association and others. I pay tribute to - Speech Link

Latest Speeches
Recent Questions related to Increase funding for urgent research into devastating motor neurone disease
1. Motor Neurone Disease: Research
asked by: Jessica Morden
14/01/2021
... if he will name the projects that received funding in 2019-20 from the (a) Medical Research Council and (b) National Institute for Health Research.

2. Motor Neurone Disease: Research
asked by: Jessica Morden
11/01/2021
... which Motor Neurone Disease-related projects were funded by the (a) Medical Research Council and (b) National Institute for Health Research in (i) 2018-19 and (ii) 2019-20.

3. Motor Neurone Disease: Research
asked by: Jessica Morden
14/12/2020
... what steps his Department is taking to support research on motor neurone disease.

4. Motor Neurone Disease: Research
asked by: Steve Baker
23/03/2021
... if he will implement the recommendation of that report to fund £50 million over five years in a new MND Research Institute.

5. Motor Neurone Disease: Research
asked by: Steve Baker
23/03/2021
... published by the My Name'5 Doddie Foundation.

Latest Questions

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The lifetime risk of contracting motor neurone disease (MND) is 1 in 300.

This means over 200,000 of today’s UK population will be affected by this devastating condition which kills a third of people within a year and over half within two. There are no effective treatments and no cure.

However, world leading scientists in the UK are closer than ever to finding treatments for MND. Now they need the right financial support.

For more information see www.mndassociation.org/unitedtoendMND


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Government Response

The Government recognises the immense challenges faced by people with motor neuron disease and is currently working on ways to significantly boost further research into the disease.


The Government recognises the immense challenges faced by people with motor neuron disease (MND) and is committed to supporting MND research. Over the past five years, the Government has spent £54m on MND research, through the National Institute for Health Research (NIHR) and UK Research and Innovation (UKRI) via the Medical Research Council. This includes research which aims to increase our understanding of the causes and genetic mechanisms of MND.

The Government remains strongly committed to supporting research into dementia and neurodegeneration, including MND. The 2020 Challenge on Dementia pledged to spend £300m over five years on research into neurodegenerative conditions, and this commitment was delivered a year early with £344m spent by 2019. The 2019 Conservative Manifesto committed to doubling funding for dementia research (including MND research) and the Government is putting plans in place now to deliver this commitment.

The Government has been working to establish a rich ecosystem for neurodegeneration research in the UK. Significant elements are the UK Dementia Research Institute, Dementias Platform UK, NIHR Dementia Translational Research Collaboration, and Join Dementia Research. The UK Dementia Research Institute has significant investment in MND research, with a particular focus on the mechanisms that cause the disease. Specific work on MND is also currently ongoing at Sheffield Biomedical Research Centre, part of the Dementia Translational Research Collaboration, and within the NIHR Clinical Research Network, which has a speciality in dementia and neurodegenerative diseases.

Government funding for MND research comes via the National Institute for Health Research and UK Research and Innovation. It is not usual practice to ring-fence funding for particular topics or conditions. The NIHR and UKRI welcome funding applications for research into any aspect of human health, including MND. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality.

Department of Health and Social Care