Motor Neurone Disease (Research)

John Lamont Excerpts

Monday 12th July 2021 Westminster Hall

[John Lamont (Berwickshire, Roxburgh and Selkirk) (Con)]

It is a pleasure, Ms Cummins, to serve with you in the Chair this afternoon.

I am pleased to take part in the debate on this petition, which has attracted so much support from my own constituents in the Scottish borders, with my constituency of Berwickshire, Roxburgh and Selkirk ranking second in the United Kingdom for the number of signatories in a constituency. I imagine that part of the reason for this is that Doddie Weir, founder of the My Name’5 Doddie Foundation, lives in the Scottish Borders. However, Doddie Weir’s impact extends far beyond the Scottish Borders. In fact, the reason we are all here today for this debate is because the petition was launched by Doddie and his foundation.

Doddie is someone I know well, and I can understand why he has persuaded so many people to support his campaign and petition. He has faced his fair share of challenges on the rugby pitch and has a remarkable list of achievements to his name: 61 caps for Scotland; representing the British and Irish Lions; and playing locally for Melrose as well. However, Doddie has said on numerous occasions that the greatest challenge he has faced is off the pitch—battling motor neurone disease.

In June 2017, Doddie revealed that he was suffering from MND, and within months he and his trustees launched a registered charity—My Name’5 Doddie Foundation. The way in which Doddie is driven to champion fellow sufferers and research into this devastating and currently incurable disease is both admirable and inspiring. His selfless work has been vital in raising awareness and generating millions of pounds for such an important cause. Doddie and the foundation have generated huge momentum among individuals, sports clubs and other organisations to raise awareness and vital funding for MND research and support. I was honoured to raise money for the cause by running the London marathon in 2018.

Many other borderers have completed challenges for My Name’5 Doddie Foundation. There are too many to mention in this short contribution, but challenges such as Lions Trek for Doddie and the Coast to Coast in 24 hours come to mind. The Prime Minister also threw his support behind Doddie’s Active Inter-District challenge, which raised more than £1 million.

At the crux of this debate is a devastating disease—a rapidly progressing neurological condition that leaves individuals unable to walk, talk, eat and, ultimately, breathe. One in 300 people develop it in their lifetime, and a third die within a year of receiving their diagnosis. My Name’5 Doddie Foundation provides practical help through grants, and funds research into this terrible disease. It gives considerable sums to the MND Association and MND Scotland to provide support for individuals and their families living with motor neurone disease. Overall, it has raised more than £8 million since 2017. It has granted more than £3 million to medical research projects, and more than £1 million has been given through grants to help sufferers of MND.

In March, when I asked the Prime Minister about funding for MND research in Prime Minister’s questions, I was reassured to hear that the Government have spent £54 million on research over the past five years through the National Institute for Health Research and UK Research and Innovation. I am also glad that the Government are putting in place plans to deliver their 2019 manifesto commitment to double funding for dementia research, which includes MND research. However, it is crucial that we redouble our efforts to consolidate the work that has been done. It is vital that Governments across the UK, the research community and charities work together in the hope that, one day, we can find a cure.

I pay tribute to Doddie, My Name’5 Doddie Foundation, MND Scotland and the MND Association. Those organisations are dedicated to supporting sufferers of MND and their families, and are striving relentlessly to find a cure for this horrible disease.