(1 day, 19 hours ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
It is again a pleasure to serve under your chairship, Mr Betts—it has been a long afternoon for you and for me. We have been here together all this time.
I thank the hon. Gentleman for Aberdeenshire North and Moray East (Seamus Logan) for leading the debate. Debates in Westminster Hall give us a chance to recollect things that we sometimes forget about. The hon. Gentleman bringing this issue forward has, all of a sudden, flooded our minds with examples from the last year of our constituents’ needs.
I hope the Minister will know that I will give a Northern Ireland perspective of where we are, to add flavour to the debate and highlight some of the problems that we have. Provision of disability equipment is of paramount importance to many disabled people across the United Kingdom. When equipment works well, it can significantly improve independence and quality of life. The Northern Ireland Statistics and Research Agency has concluded that, according to the 2021 census data, 24.3% of the population of Northern Ireland—almost quarter, or some 463,000 people—had a long-term health condition or disability that limited day-to-day activities. I regularly see those people in my office back home. The hon. Gentleman for Aberdeenshire North and Moray East reminded me of the particular problems that we have.
A significant majority of people will require adaptations and equipment to help support them. It is crucial that they have access to the support that they need. The hon. Member for West Dorset (Edward Morello) mentioned equipment that is unused because someone passes away or they have to go into a home. That includes disabled beds, commodes, walking frames, crutches and sometimes even stairlifts. Stairlifts are there for people to get up to their bed and they might still be workable. If they are compatible and useable, they should be collected. It is not just a problem in the hon. Gentleman’s constituency, but a problem in mine as well.
I want to make a wee plea for wheelchairs. Many of the people who come into my office have acute, complex and severe disabilities. They need a modern wheelchair. I am not being critical—it is never my form to be so—but the ordinary wheelchair was probably okay years ago when it was just a matter of getting about. Today, for people to have a decent life, they need to have a wheelchair that is compatible, workable and gives them freedom.
I know the Government cannot fund it all, but many people have crowdfunded or have done charity drives to acquire those wheelchairs. I am going to age myself with this example, but when I was younger my first pair of glasses were what they called the Milky Bar Kid glasses; they were the round ones, and I can well remember them. We progressed on from that and, to be fair to the Government, they will keep that progress going. People deserve to have a quality of glasses that they are happy with and can relax with, and the same applies for wheelchairs.
My office is contacted weekly, or even daily now, by constituents who are awaiting occupational therapist assessments to adapt their homes to their needs. Most recently, people have been waiting for up to a year for assessments, and for further years for works to be carried out. I am sure that it is the same on the mainland, including in Scotland.
We dealt with a recent case where a constituent’s occupational therapist had done the assessment and said that her bathroom was in no way suitable for her needs. To make it accessible, they needed to take the bath out, put a shower in, put a stool in the shower and make the doors wide enough—I am not smarter than anybody else, but I am involved with these cases regularly, so I understand fairly quickly what people need.
The lady is in pain daily and is struggling to do the bare minimum, from showering to using the toilet. After two years, she heard from her contractors last Friday—this is a fresh story—who agreed the plans, got things measured up and said that they would see her the next week. They were due back at 8 am yesterday to commence the work, but they never showed up. I understand that making adaptations for disabilities is not always a profitable job for contractors, but if they commit to something, they should turn up and do it, for goodness’ sake. I am not one to blame anyone, as issues arise and priorities shift, but there must be a level of accountability for the completion of works.
Furthermore, we must take the extra step to ensure that in businesses and work places, adaptations for those who are disabled are prioritised. For example, businesses across the United Kingdom have automatic doors for people who are disabled and in wheelchairs. They are not just a convenience but a vital accessibility feature that ensures that all customers, including those with disabilities, can enter and navigate premises safely and independently. That is just a small point, but it is one that I have noticed, as have Members across this Chamber, I am sure. Automatic doors support people using wheelchairs or mobility aids, as well as parents with pushchairs, and they create a more inclusive environment that meets both legal accessibility standards and modern expectations of equal access.
These are all things we should talk about, but it is all well and good for us to talk about it. I understand the issues; we are here not to criticise the Minister or the Government, but to try to find a constructive and helpful way forward. More often than not, funding is the critical issue. I would gently suggest that the Government need to ensure that physical support can be accessed, and the reasons for the delays must be tackled at their root cause. I believe that the UK Government, and the Minister, will collaborate closely with the Northern Ireland Executive to tackle backlogs for assessments for disability equipment by co-ordinating funding, and by streamlining procurement, which is also important—if the Government buy 10,000 disability beds to distribute across all the United Kingdom, there must be a better way of doing that procurement. Again, I am trying to be helpful with that. I am sure that they will also share best practices.
I thank you again, Mr Betts, for your patience and for your chairship—you have done incredibly well.
We now move on to the Front Benchers. The Liberal Democrat and Opposition spokespeople will have five minutes, and the Minister will have 10. There is a bit of flexibility on that time, so we can be a little more generous if required.
(2 days, 19 hours ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
I congratulate the hon. Gentleman for securing this debate, and I thank him for sharing his personal story. That personal knowledge adds to the debate.
Studies by Queen’s University Belfast indicates that adults with cerebral palsy often struggle to navigate adult health and rehabilitation services after moving on from paediatric services. That can limit their access to physiotherapy, occupational therapy, speech and language therapy, orthopaedics and neurology. Does he agree that the best way to navigate this issue is to establish a clear, co-ordinated transition pathway from paediatric to adult services, with dedicated case management so that nobody is left behind when it comes to their care?
Daniel Francis
I absolutely agree. Between the APPG’s 2022 recommendations and the example the hon. Member gave of the analysis in Northern Ireland, it is clear that the evidence is there, and hopefully we will hear from the Minister about how we can continue to progress some of those matters.
I would welcome a commitment from ICBs across the country to implement the framework as a blueprint for adult cerebral palsy commissioning and provision, as the hon. Member outlined.
The 2022 report’s second recommendation highlighted the need to support GPs in identifying adults with cerebral palsy by extending the UK-wide quality and outcomes framework to incorporate the creation of general practice-level cerebral palsy registers along the lines of the expansion of the QOF to learning disabilities. That would make a profound difference in the health outcomes of children with cerebral palsy when they transition into adulthood care pathways. Would the Minister look to extend the quality and outcomes framework to incorporate the creation of general practice-level cerebral palsy registers, similar to the expansion of the quality and outcomes framework to learning disabilities?
The third recommendation aims to ease the transition into adult care pathways through a national service specification for adults with cerebral palsy in the NHS, which must include training covering adults with cerebral palsy for those working in general medicine, general practice and nursing from entry level. For many adults with cerebral palsy, their primary co-ordinator of care is their GP, who, despite their best efforts, often does not have the specialist knowledge or training to support their patients.
Written evidence submitted to the APPG as part of the report highlighted that medical undergraduate students do not receive training about cerebral palsy in adults. One way to support GPs in identifying adults with cerebral palsy is to extend the UK-wide quality and outcomes framework to incorporate the creation of general practice-level cerebral palsy registers along the lines of the expansion of the quality and outcomes framework to learning disabilities. That would make a profound difference in the health outcomes of children with cerebral palsy when they transition into adulthood care pathways. Would the Minister outline how the current NHS staffing guidelines could be amended to include the incorporation of training for those in general medicine, general practice and nursing from an entry level to cover adults with cerebral palsy?
The report’s fourth recommendation outlined that each ICB should be required to undertake a gap analysis of existing cerebral palsy services for adults against NICE guidance and use the results to inform and guide their local commissioning decisions. This must include investment in services to support and address associated conditions. The results should then be used to establish regional multidisciplinary cerebral palsy clinics for adults, providing access to a range of psychological, physical and complementary therapies. The recommendation highlights that disability access co-ordinators appointed in both acute and primary centres would be able to provide referrals to the clinics and ensure that reasonable adjustments are made.
The report also highlighted that the provision of a neurologist during the transition from childhood to adulthood is an essential component of adult cerebral palsy care to ensure that, when a patient is discharged from their paediatrician, they do not face that cliff edge in support. Will the Minister agree to investigate how ICBs can undertake a gap analysis of existing cerebral palsy services for adults against current NICE guidance, and how they can include adults with cerebral palsy in their integrated needs assessments?
The report’s fifth recommendation suggests that, to ensure the provision of specialist services, the Department of Health and Social Care should provide ringfenced funding to ICBs to enable them to develop the much-needed specialist services at a local level. Will the Minister agree to look at ringfencing funding for the 42 ICBs so that they can develop specialist cerebral palsy services?
Finally, I want to demonstrate why national service specification is so needed. Emma Livingstone, the co-founder and chief executive officer of UP, The Adult Cerebral Palsy Movement, is in the Public Gallery, and her lived experience perfectly encapsulates why national service specification for adults with cerebral palsy is needed. Emma was diagnosed with cerebral palsy at two years old. At 16, she was discharged from medical services after being told that she was the best that she would ever be.
Unfortunately, without any integrated care during Emma’s adulthood, she experienced a significant decline in mobility in her late 30s. That led to Emma having multiple surgeries, and unfortunately having to give up her work as a speech and language therapist. In Emma’s own words,
“In my late thirties, my mobility declined rapidly. I needed hip surgery, then more surgeries, and eventually had to give up work. What shocked me wasn’t the physical deterioration—it was the silence. The coordinated care I’d received as a child simply vanished when I turned 18.”
Emma is sadly not alone in experiencing that. The APPG report found that
“the transition into adolescence and adulthood is often accompanied by a decline in physical function,”
with up to 50%
“of people with Cerebral Palsy experiencing deterioration in walking function between 20 and 40 years of age.”
That statistic alone is reason enough to show why national service specification for adult cerebral palsy in the NHS is so greatly needed.
I would welcome the Minister’s response to the five recommendations from the APPG report that I have highlighted today.
(3 days, 19 hours ago)
Commons ChamberI am afraid that it will be a rather morbid debate this evening. We spend remarkably little time in our lives thinking about the practicalities of death, and it is probably part of human nature that we do not dwell too much on the inevitable future fate that awaits us. That means we put far too much implicit trust in those who take responsibility for our bodies, and in those of our loved ones when we die. We all assume that in death we will be treated with respect and care by professionals, but his evening I am afraid I will share some hard truths about the gruesome reality of death. I warn anyone watching that what I have to say will be graphic and distressing—there in no way around that.
Last year, Gosport residents and funeral directors Richard Elkin and Hayley Bell were found to have kept 46 bodies entrusted to their care in a completely inappropriate environment with an unregulated temperature. Describing entering the place to see his mother, one of my constituents said,
“the awful smell is something that will never leave me”.
Concerns about what was going on behind the doors of Elkin and Bell funeral directors were first raised by local residents, and then by the senior coroner at Queen Alexandra Hospital in Portsmouth. A body had been sent for a post-mortem that was
“laying in pools of bodily fluids”
and infested with maggots. The post-mortem also found that the deceased individual had suffered a spinal fracture after death.
After a Gosport borough council environmental health investigation raised concerns but took no further action, a few months later, simply because bills had not been paid, bailiffs attended the property, where two bodies were discovered, putrefying, in a room with bloodstained floors, water dripping from the ceiling, and broken windows. One of them was an elderly gentleman who had been left for 36 days. His body was found in a badly decomposed condition. It is too much of a cliché to compare this to a horror movie, because this is real life, or real death. When the family of one of the deceased was contacted, they were surprised, because they were under the impression that their loved one had already been cremated. The company had certainly taken payment for it.
As the Minister will know, it was completely legal for Elkin and Bell to keep dead bodies in a room like that. Elkin and Bell could only be brought to justice by some incredibly diligent work by Hampshire police, the Crown Prosecution Service, and John Price KC, using a variety of different offences including fraud, forgery and a piece of common law that dates back to Victorian times. The crime of preventing lawful and decent burial was dusted off from the days when it was used to convict grave robbers. That is instead of what should have been possible, which was sentencing the pair because they had wilfully neglected bodies in their care, and treated people’s loved ones as nothing more than money spinners.
The case highlighted that the funeral sector is nothing better than a wild west. When this was first brought to my attention, I was incredulous and horrified to learn that there is no regulation of any kind governing the sector. In fact, the only law that governs the funeral industry is around the financial transparency of funeral plans, and that was put in place after a Competitions and Markets Authority investigation in 2021. There are simply no mandatory qualifications, no accreditation, no licensing, no designated working practices or formal inspection and, crucially, no law to fall back on when things go wrong.
I commend the hon. Member for Gosport (Dame Caroline Dinenage) for securing the debate. She is right to raise this issue. In Northern Ireland, we are fortunate to have a number of funeral directors of long standing who have impeccable reputations and integrity. However, funeral directors in Northern Ireland as a whole are not regulated either. Trade bodies such as the National Association of Funeral Directors and the National Society of Allied and Independent Funeral Directors require members to follow codes of practice, but many operate without that oversight, although those who provide prepaid funeral plans are regulated by the Financial Conduct Authority. Does the hon. Lady agree that more must be done to protect the general public and instil confidence in a regulated system? That is the way forward.
The hon. Gentleman is absolutely right; better regulation is exactly what we are pushing for. In fact, everything needs to be better when it comes to the services governed by those organisations. As he says, the vast majority of funeral directors up and down this country work with incredible professionalism, great pride and integrity. They care deeply about what they do, and about the families and the individuals who they look after. One funeral technician told me that she does not see her work as a job—she sees it as a privilege. Such businesses and individuals have been silent pillars of our communities for centuries.
(1 week, 1 day ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
It is a real pleasure to serve under your chairship, Mr Western. I thank the hon. Member for Carshalton and Wallington (Bobby Dean) for setting the scene incredibly well. Of course, I want to give a Northern Ireland perspective, but I want to put forward two areas where possible savings could be made, and I wonder whether the Minister has had a chance to look at that, collectively or individually.
The hon. Member for Carshalton and Wallington, who set the scene, had 1,000 petition signatures for this debate—well done to him for garnering that interest. Our hospitals are so important and their services are lifesaving, so in terms of our finances they are priority No. 1. It is absolutely no secret that NHS capital spending has a direct impact on patient flow, waiting times and staff morale, and also on the quality of care.
Each year, my colleagues and I listen to the Budget and assess how our block grant can benefit the people of Northern Ireland through our healthcare system. It is clear that we must invest heavily in our facilities as well as our day-to-day spending. In her spring Budget yesterday, I think the Chancellor said that an extra £380 million was coming to Northern Ireland in the block grant. That should hopefully go some way to helping balance the books.
Around two years ago in my constituency of Strangford, our minor injuries unit closed following the opening of an urgent care unit in Ulster hospital. It was one of the most modern acute hospital sites following more than £235 million in capital investment, including in the new emergency facilities, patient accommodation and surgical and research infrastructure. Rather than planning a completely new hospital, the Department of Health has focused on transforming the Ulster into the regional acute hub. That is the right strategy, aligned with wider NHS reconfiguration plans for Northern Ireland.
Furthermore, there are plans for a new maternity hospital at the Royal Victoria hospital in Belfast. That is one of Northern Ireland’s largest capital projects, with more than £100 million already invested. Further investment is also planned for the surgical hubs, elective facilities and rapid diagnostic centres. I am pleased that hospitals in Northern Ireland have witnessed increased capital investment but, in comparison to St Helier hospital, as the hon. Member for Carshalton and Wallington described, it is clear that some hospitals are still struggling drastically, and he underlined that point incredibly well. More needs to be done to ensure that they are fit for purpose.
I have two points on savings, which I put to the Health Minister back home, Mike Nesbitt. A level of middle management has been created, which is not always necessary. I am not saying that people should lose their jobs; I am just looking at how it can be done in a good way to ensure value for money. The second point is about agency staff. Back home—and I understand it is the same over here—agency staff are sometimes employed rather than full-time nurses. That is never cost-effective, because it is better to pay a nurse a good wage than it is to employ agency staff. Those are two thoughts that might be helpful.
NHS capital spending is not a luxury; it is a necessity. It is the foundation of safe buildings, modern equipment, efficient services and dignified patient care. Without sustained investment, we will continue to see rising waiting lists, staff burnout and crumbling infrastructure. The Minister is always very responsive, and we are glad to have her in her place. The hon. Member for Carshalton and Wallington is asking for the Government to commit to sustained strategic capital investment that will secure the future of our NHS and deliver the standard of care that patients and staff both deserve. Those two ideas to save money are worth looking at as well.
I call Josh Taylor—sorry, I got that wrong; I call Luke Taylor.
(1 week, 1 day ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
It is a real pleasure to serve under your chairship, Dr Huq. I want to give a special thank you to the hon. Member for Mid Bedfordshire (Blake Stephenson) for securing today’s debate on this matter. It is important that I am here, as a representative of a vastly rural constituency, to highlight the situation faced by my constituents.
I have been fortunate to live in the country all my life; I have now lived on a farm for some 47 years, just outside a small village in my constituency of Strangford on the Ards peninsula. Healthcare is a nationwide issue that impacts every individual, and we want to get it right. Rural populations often live far from hospitals or specialist clinics, making timely care more difficult. The limited public transport and long travel distances can cause delays, especially in emergencies, for the likes of ambulances and so on.
Around one in 10 patients live more than 5 miles from a practice, showing the extensive travel required for a 10-minute GP appointment, in which only one issue can ever be addressed. There are those in my constituency who find it almost impossible to get appointments, and GPs now state that they can take appointments only in the case of emergencies, when we all know that is the purpose of A&Es. GPs are for general issues that may impact someone’s day-to-day life, and there are not enough of them to go round. Everybody has mentioned development, and there is massive development on the Ards peninsula. Every village has grown, and demand is greater than ever it was before.
I shall quickly mention dentists in Northern Ireland. Some 114 dentists in Northern Ireland have handed back their NHS contracts to the Department of Health and Social Care, with many moving to private practice. Those patients then move on to a £25 a month retainer. As a result of these contract returns, more than 53,000 NHS patients were removed from dental practice lists over that period. For a rural constituency, that means there is no choice but to pay in the private sector.
There are continuing issues regarding GP provision and dental care across Northern Ireland, especially in my constituency. The issue is heightened in rural areas, and I will continue to raise these issues for those who have trouble. I understand that health is devolved, but the issue across the board remains the same. I hope we can strive to do better for my constituents and all our constituents, as well as for rural constituencies in general. Location should never dictate the provision of healthcare, be it someone’s GP or dentist, both of which every citizen of this nation has a right to.
(1 week, 2 days ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
I beg to move,
That this House has considered the experience of cancer patients with accident and emergency services at North Middlesex Hospital.
It is a pleasure to serve under your chairship, Dr Murrison. I thank you and the House for granting me the opportunity to speak about the urgent care pathway for cancer patients at North Middlesex university hospital, and to discuss the potential for dedicated funding for an oncology assessment unit.
In Edmonton and Winchmore Hill, as in many constituencies across the country, too many people with cancer are being let down. In the UK, cancer mortality rates are significantly higher than in comparable countries, and the survival rate is lower. I am glad that the Government have recognised the issue and are taking steps to address it, most significantly through the national cancer plan. I welcome the plan’s ambition to diagnose more cancers early, to ensure that treatment starts more quickly and to improve survival.
I commend the hon. Lady on securing the debate. She is right to illustrate this important issue at her local hospital, which is replicated wherever we might be the United Kingdom. Indeed, people back home are waiting 12 hours for admission or discharge. Those who attend A&E should be treated within four hours, but that is not happening. Does the hon. Lady agree that strengthening community-based cancer services is essential to protect patients, ease pressure on emergency departments and ensure that people with cancer get the right care in the right place at the right time?
I thank the hon. Member for his intervention; later in my speech I will discuss the work the community is doing.
Faster diagnosis and quicker treatment are vital to improving outcomes for cancer patients. However, I am concerned that the Government are placing less emphasis on other critical aspects of the care that cancer patients receive. The case of North Middlesex hospital in my Edmonton and Winchmore Hill constituency, which I am very proud to represent, is evidence of that. On the one hand, since 2023, North Middlesex hospital has received two new radiotherapy machines, which should help to ensure that cancer patients receive treatment more quickly and limit the number of hospital visits they need to make. But on the other hand, the hospital is under-resourced in other important areas, which is having a negative impact on patients’ experiences.
I have particular concerns about the experience of cancer patients in the accident and emergency department. From talking to my constituents and their families, I know that oncology patients who are admitted to the hospital are often assessed in the emergency department, but it does not have the physical space or isolation capacity required to safely manage immunocompromised individuals. Despite an acute oncology service that works extremely hard to prioritise those patients, the North Middlesex hospital emergency department often struggles to provide appropriate private triage areas or guarantee a rapid review for vulnerable cancer patients, because of high patient volumes and infection-control pressures. Over recent years, this has caused a number of my constituents to be put in an environment that is unsuitable for their condition, and caused a great deal of upset and discomfort.
I have been in correspondence with one of my constituents, Mrs Mary Thorn, regarding the experience of her late husband, Mr Jack Thorn, at North Middlesex hospital, and Mrs Thorn has given me permission to discuss the experience of her late husband at the hospital. Mr Thorn was diagnosed with cancer in July 2022, and in January 2023 he began chemotherapy treatment. Following the conclusion of the first type of chemotherapy treatment, Mr Thorn was told multiple times that he needed to be admitted back into hospital. However, upon arriving at hospital, rather than being admitted straight into the cancer ward, he was made to sit in the A&E waiting room to be triaged. On one occasion, he was made to wait for 15 hours. Because of the immunosuppressive treatment that many cancer patients undergo, they are at a heightened risk of infection, meaning that staying in A&E wards for extended periods risks worsening their condition.
Since my correspondence with Mrs Thorn, I have heard from several other constituents who have suffered similar ordeals. One of my constituents, who has now sadly passed away, went to the North Middlesex emergency department following a concerning reaction to the immunotherapy treatment she was receiving for her cancer. She arrived at the hospital on a Saturday and was not moved into a side room until the Monday, meaning that she was forced to sleep in a chair for two days while very unwell. During this time she could not shower, had no privacy and was unable to return home to collect any belongings or change clothing.
Since hearing of Mr Thorn’s experience, I have engaged closely with the North Middlesex hospital and the Royal Free London NHS foundation trust, which now manages the hospital. The trust has been taking steps to improve the experience of oncology patients at North Middlesex hospital through efforts to reduce waiting times and speed up the pathway for them. Those steps include the creation of the same-day emergency care hub and the emergency ambulatory care unit, which provide a safer and more appropriate environment for patients, away from the emergency department.
Despite those measures, North Middlesex hospital has not been provided with the necessary resources for the triage of patients who require isolation. The trust proposes an initiative to establish an oncology assessment unit for patients who require minimal intervention, to bypass the emergency department, but this has been prevented from progressing further, after some promising initial steps. This was due to there being no available funds in existing budgets and the lack of external funding to hire the additional specialist staff required to establish the oncology assessment unit.
The situation highlights the urgent need for targeted investment. Without dedicated support, the trust will not be able to guarantee the safer, specialist-led pathway for cancer patients that clinicians have repeatedly recommended. The experiences of Mr Thorn and my other constituents demonstrate the human impact of the gap in provision, and the response of the trust makes it clear that local efforts alone cannot solve the issue. If the Government are serious about putting cancer patients “front and centre”, as the Secretary of State for Health and Social Care has previously stated, they must do more to support stretched and under-resourced hospitals such as the North Middlesex, as well as its dedicated and hard-working staff—not only to protect the dignity and wellbeing of cancer patients, but to improve outcomes and survival rates.
I have three requests that I would like the Minister to consider. First, will the Department consider taking steps to ensure that North Middlesex hospital is granted the funding it needs to establish an oncology assessment unit, so that patients who experience treatment-related complications can be assessed properly in an appropriate environment, avoiding the risks associated with overcrowded emergency departments? Secondly, will the Minister consider carrying out a wider assessment of the safety and suitability of the settings in which immunocompromised oncology patients are placed when they are admitted to hospitals across the country, and how that may affect outcomes for cancer patients? Lastly, how will the proposals in the 10-year health plan for England on shifting from hospital to community care affect the experience of those suffering from cancer, to prevent them from having to attend A&E in the first place?
I pay tribute to Mrs Thorn for her tireless advocacy on this matter, with me and my office, with the North Middlesex hospital and with the wider Royal Free London foundation trust, to push for improvements in oncology care following the death of her husband Mr Jack Thorn. Her constant advocacy in the face of such devastating loss is truly commendable.
(2 weeks ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
It is, as always, a special pleasure to serve under your chairship, Ms Vaz. You always seem to do the Thursday afternoon debates and, by and large, I seem to be here too—but that is by the way. Some might say, “Well, where else would you find him?” But there we are.
It is a real pleasure to follow the hon. Member for Bath (Wera Hobhouse). In the time the hon. Lady has been here, she has been very much a hard advocate on this issue. Every one of us recognises her commitment and leadership on this matter. I put on the record my thanks to her for what she has done, what she continues to do and, indeed, if God spares her, what she will do in the future as well. It is really important.
Order. Can I ask the hon. Gentleman to speak up a little? I think people in the Public Gallery cannot really hear.
Of course. I do not think I need to do the introduction again; I will leave it at that.
I want to tell a story—the hon. Member for Bath already knows it—about one of my constituents. I was elected in 2010, and in 2012 two of my constituents, a mum and a dad, came to see me about their daughter. They were both police officers and I knew them extremely well; I knew them through a friendship we had outside the police, but also because they were officers I would contact as an elected representative. Their daughter— I am not going to mention her name, nor theirs—had severe bulimia. She was a lovely looking young girl, by the way, and very bright, but she had a real problem.
This is the true story of that family’s journey. They came to me worried sick about what was going to happen with their daughter, what they could do and what could be done. Along with them, I approached the Health Minister in Northern Ireland at that time—Edwin Poots, my party colleague—and told him the story. We did not have anything in Northern Ireland to address issues relating to eating disorders, so we had to come here to do that. I remember meeting the parents in Central Lobby in 2012, and them telling me that the Minister in Northern Ireland, Edwin Poots, had been able to transfer that young lady to St Thomas’ hospital—just across the river—to get the help that that young lady needed.
It is a transformational story, because by doing that, they saved that young girl’s life—and they did not just save her life. I know her well. One day, I was canvassing down in Millisle at the edge of my constituency. I knocked on the door and there she was, with two young children. That intervention by the Health Minister in Northern Ireland helped to save her life and to give her a life for the future. It is an example of what can be done if everyone works together to ensure that things go the right way. I will also say unashamedly that, while it was down to the NHS intervention, the prayers of God’s people undoubtedly saved that young girl’s life as well.
I want to discuss the situation in Northern Ireland. I gave that example because it shows how we worked in Northern Ireland and with the health service here to give that young lady the support to start her life, which ultimately led to her husband and then her children. Official figures show that people referred for eating disorder support in some areas face significant waiting times, with people experiencing delays as part of broader pressures on mental health services.
The hon. Member for Bath referred in her speech to mental health issues; those are some of the things we have to try to overcome collectively. In addition, mental health waiting times have been deemed unacceptable, and there has been a failure to publish comprehensive waiting-time data. I do not think there are many debates where the issue of data is as important as it is in health. The data tells us the direction we need to go in and gives us the evidence to put together a programme of response, and to find a better way of doing things. There has been a failure to publish waiting time data for child and adolescent mental health services, which is critical in supporting young people—more often than not, it is young people who suffer.
I also want to raise the impact of social media on people who suffer with eating disorders. In the last year we have seen a drastic rise in advertising related to weight-loss jabs. It is fair to say that they are easy to get and use, they are somewhat affordable, and they offer a quick fix or change. Although the premise of weight-loss injections is good, and the intention is to get people to a healthy weight, for those with eating disorders they have the potential to undermine awareness of healthy nutrition, exercise and mental health support. It is important that they are not seen as another way to try to get that perfect body, if I can use that terminology.
Social media can be toxic enough, and I worry very much about the young girl who is struggling with the likes of anorexia or bulimia, who idolises the “perfect body” achieved through weight jabs and so on, and who almost dies trying to get there. Is there any control over who can access weight-loss jobs? Can we get a better idea of their intentions, or of some of their problems? Many advertisements do not adequately convey the medical risks, the contradictions or the need for supervision, leaving vulnerable users to try treatments unsafely. Those with eating disorders may misinterpret ads as offering a safe method to lose weight quite quickly, thereby increasing the risk of physical and mental health complications.
Eating Disorders Awareness Week, which the hon. Member for Bath has kindly given us the chance to participate in with this debate, reminds us that behind every statistic is a person. I gave the example of the young person I knew, and their success story; there are many other successes, but sometimes, with sadness, we recall those people who do not make it. In Northern Ireland, long waiting times, limited specialist services and rising demand mean that too many people are not getting help when they need it most. At the same time, toxic social media content and the relentless pressure to conform to unrealistic body ideals are fuelling anxiety, low self-esteem and harmful behaviours, particularly among young people.
Throughout the time I have got to know him, the Minister has always been very responsive to our requests in these debates. There is a lot of pressure across all of the United Kingdom in respect of anorexia and bulimia. Has the Minister had a chance, in the short time he has been in post, to have a discussion with the Health Minister back in Northern Ireland, Mike Nesbitt, about how we can better work together to try to address these issues? I am conscious that most of the treatment probably happens here; some of it can be done in Northern Ireland, but services there cannot catch and keep up with the level of problems. I look forward to hearing the Minister’s commitment to ensuring that those who are struggling can access the support they need, both here and further afield in my own Northern Ireland.
(1 month ago)
Commons Chamber
Dr Ahmed
I can reassure the hon. Member that my hon. Friend the Minister for Care is looking at funding and primary care provision in the round in coastal and poorer communities, and I would be delighted to take back his representations about Pharmacy First in rural settings.
I thank the Minister for his answers. I want to give a helpful suggestion from a Northern Ireland perspective. He will agree that a rural pharmacy will find it more difficult to meet the ever increasing threshold, and that the point of these payments is to take pressure off GPs, not to provide a back-door way of underpaying earned compensation. In Northern Ireland, we have a slightly different system that involves payment per consultation, which I ask the Minister to consider. Perhaps that would be more appropriate, and would give pharmacies, GPs and their patients what they are looking for.
Dr Ahmed
I am always grateful for the hon. Gentleman’s wise counsel. He will know that I have regular meetings with my counterparts in the devolved nations. I am well aware of some of the remuneration schemes in Northern Ireland, and I am following them with interest.
(1 month ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
The hon. Lady raises a very relevant point, and I agree wholeheartedly. People in lots of areas in my constituency cannot get to a GP and are bereft of a GP surgery.
Until now, we have had a measure of rurality, but this Government have instructed the National Institute for Health and Care Research to review the funding model and examine how working-class areas could benefit under a new model based on deprivation rather than workload.
I congratulate the right hon. Lady on bringing this subject to Westminster Hall. I am always glad to come along and support her, because she leads great and very pertinent debates. I am a resident of a rural area, and the pressure that my local GPs are under has to be seen to be believed: only three practices cover the whole Ards peninsula, which has a growing population. Does the right hon. Lady agree that funding must be available to give surgeries the potential to have physio rooms, nutrition advice and perhaps even pharmacies that provide first-stop medical advice? The cost of such facilities needs to be met by Government, because there will be savings in the long term.
It is always good to have my hon. Friend—and I do call him my hon. Friend—intervene on me. He makes very good points. It is also important that a local GP chooses, and can see what their local constituents require and what is best for their health outcomes.
The move to a new model based on deprivation rather than workload is, at best, an act of ignorance that fails to acknowledge the significant challenges of running GP practices in rural areas; at worst, it represents yet another example of Labour’s assault on rural life. Measuring pressures on GPs solely through the lens of deprivation would ignore the complex, distinct demands faced by rural practices. Rural communities have older populations. In 2019, the House of Lords Rural Economy Select Committee found that the average age in rural areas was almost six years higher than in urban areas, and a quarter of the rural population were over the age of 65.
(1 month ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
It is a real pleasure to serve under your chairship, Dr Allin-Khan. I thank the hon. Member for Chesham and Amersham (Sarah Green) for giving us the opportunity to contribute, and allowing me to mention Northern Ireland and what is happening there. It is a pleasure to see the Minister in her place, and I thank her for all she does.
The Hughes report was for England only, but the ripple effect is UK-wide. As of February 2026, Northern Ireland victims remain in limbo. The Northern Ireland Department of Health has stated that its approach will be informed by the final position of the UK Government—right here—but their final position has not been determined. Because nothing has been done here, nothing happens in Northern Ireland, so we are being affected. I know that the Minister will be responsive, but I ask her to give us some indication of the timescale.
Patients continue to contact me and Members of the Legislative Assembly in an attempt to see the adoption of the report’s recommendation, and the phrasing is that families feel abandoned by the lack of progress and financial compensation. I can understand that the Department of Health (NI) needs guidance from Westminster; the UK as a whole is waiting to see what implementation and redress will look like. While financial payments are stalled, some progress has been made on the non-financial report, with the continued operation of specialist mesh centres and improved clinical guidelines for prescribing valproates. That is welcome but—to put it simply—it is not enough.
Women have been left in lifelong pain; children have been born with preventable disabilities; families have endured financial and emotional stress; many women have lost their jobs, their homes and even their marriages. Does my hon. Friend agree that, although financial and non-financial support are important, to prevent such issues in the future it is also important that the dots are joined up early and that early warning signs are not buried in bureaucracy?
I thank my hon. Friend for her intervention. A specially accredited unit operates at Belfast city hospital, featuring a multidisciplinary team to treat mesh-related problems. If complex removal surgery is required, there is also the option to perform it locally, so we are doing our best in Northern Ireland to address the issue. Even so, advocacy groups such as Sling the Mesh Northern Ireland have expressed concerns over the conflict of interest in requiring the original implanting surgeon to sign off on referrals for outside treatment. All those factors must be taken into consideration, which was the very point my hon. Friend made.
Between 1998 and 2018, some 11,000 vaginal mesh implants were performed in Northern Ireland. Other Department of Health figures indicate that nearly 7,000 procedures occurred between 2005 and 2015 alone. With conservative estimates suggesting that between 5% and 10% of those patients experienced significant problems, the scale of the issue is clear.
For children affected, while the UK-wide estimate is roughly 20,000, specific Northern Ireland figures often have to be extrapolated. Reports for the Republic of Ireland, for instance, estimate that there are some 1,250 children affected there; those significant numbers down south are separate from Northern Ireland figures, but based on similar prescribing patterns. As of 2023, the Patient Safety Commissioner noted that even now, across the UK, an average of three babies a month are born having been exposed to the drug.
I will not take an extra minute for the intervention, Dr Allin-Khan, because I recognise that others need time to speak.
All those people, including the 600 members of Sling the Mesh NI, are awaiting action. On this, the second anniversary of the report, the stagnation of action is not acceptable. I take this opportunity to speak on their behalf, as well as on behalf of my and my hon. Friend’s constituents in Northern Ireland: I ask that we stop waiting and start moving on the compensation, providing help for those who are suffering this very minute, even as this debate takes place.
My request for the Minister is that we hurry the process, so that we in Northern Ireland can fall in behind what happens here in Westminster. Let us not see a third anniversary without fulfilment of the recommendations and of our word in this place.