Mentions:
1: Baroness Coffey (Con - Life peer) One of the issues here is whether a disease is terminal without treatment. - Speech Link
2: Baroness Gerada (XB - Life peer) I was not aware of that research. - Speech Link
3: Lord Markham (Con - Life peer) There could be three patients: one with a do not resuscitate order, another with motor neurone disease - Speech Link
Mentions:
1: Karin Smyth (Lab - Bristol South) That includes renewing the women’s health strategy, investing in research that addresses health inequalities - Speech Link
2: Ian Byrne (Lab - Liverpool West Derby) When she was told that she has a very rare form of the disease that can be treated with a groundbreaking - Speech Link
Mentions:
1: Lord Birt (XB - Life peer) Nicholas had fallen victim to motor neurone disease. - Speech Link
2: Baroness Coffey (Con - Life peer) I am conscious that he has come at this with an approach of a lot of research, as he set out. - Speech Link
3: Lord Empey (UUP - Life peer) The Government have to tell us whether they have done any meaningful research. - Speech Link
4: Lord Empey (UUP - Life peer) How can it be if the research has not been done? - Speech Link
5: Baroness Finlay of Llandaff (XB - Life peer) The difficulty is that the research that needs to be done has not been done. - Speech Link
Mentions:
1: Liz Kendall (Lab - Leicester West) intelligence and technology have huge potential to create jobs and growth, to diagnose and treat disease - Speech Link
2: Liz Kendall (Lab - Leicester West) Lady asked whether we had published the research by Professor Orben. - Speech Link
3: Chi Onwurah (Lab - Newcastle upon Tyne Central and West) neurone skills, but there is little concrete evidence beyond the individual terrible stories and, of - Speech Link
4: Marsha De Cordova (Lab - Battersea) We also know that excessive screen time is linked to myopia and dry eye disease. - Speech Link
5: Sonia Kumar (Lab - Dudley) and motor development, in order to shape policy not just now but in 10 years’ time? - Speech Link
Mentions:
1: Baroness Hollins (XB - Life peer) The amendment clarifies that a terminal illness must be“an inevitably progressive disease which cannot - Speech Link
2: None One of the very few answers that the Government have given to my questions in trying to research this - Speech Link
3: Baroness Levitt (Lab - Life peer) It might be difficult to prove that a disease could not be halted for a short time, even in cases in - Speech Link
4: Baroness Brown of Silvertown (Lab - Life peer) For conditions that are specialist care cases, such as motor neurone disease, most doctors will have - Speech Link
Mentions:
1: Baroness Berridge (Con - Life peer) I thank the President of the Family Division for ensuring that there is research available on this group - Speech Link
2: Baroness Grey-Thompson (XB - Life peer) Peter Vogt, a prisoner with kidney and heart disease in Switzerland, applied for euthanasia in 2023 due - Speech Link
3: Lord Farmer (Con - Life peer) I know that adversity can develop a deep seam of resilience in a young person or adult, but research - Speech Link
4: Baroness Butler-Sloss (XB - Life peer) Clearly, it is unjust because it does not deal with people with motor neurone disease and so on. - Speech Link
5: Lord Winston (Lab - Life peer) Choriocarcinoma, for example, is a fatal disease; it is rapidly metastatic, can cause issues all over - Speech Link
Mentions:
1: Baroness Butler-Sloss (XB - Life peer) For example, it seems to me bitterly unfair that those with locked-in syndromes such as motor neurone - Speech Link
2: Baroness Hollins (XB - Life peer) My husband was dying with motor neurone disease last year. - Speech Link
3: Baroness Grey-Thompson (XB - Life peer) The Australian Care Alliance research shows that the training for voluntariness and assessing absence - Speech Link
4: Lord Mawson (XB - Life peer) Research we did some years ago discovered that virtually every nation on earth is represented in the - Speech Link
Mentions:
1: Tessa Munt (LD - Wells and Mendip Hills) , given the small UK research community and very few funded research projects. - Speech Link
2: Alison Hume (Lab - Scarborough and Whitby) The desperate experiences of so many people highlight a lack of research into the disease. - Speech Link
Mentions:
1: Lord Wolfson of Tredegar (Con - Life peer) For the purposes of this Act, a person is terminally ill if they have an advanced and progressive disease - Speech Link
2: None They do not have to be a specialist in the disease or condition that you have. - Speech Link
3: Lord Markham (Con - Life peer) such as “do not resuscitate” orders, people deciding not to eat or drink any more, and people with motor - Speech Link
4: Lord Falconer of Thoroton (Lab - Life peer) neurone disease, that will almost certainly lead to your death, is without a shimmer of a shadow of - Speech Link
Mentions:
1: Baroness Butler-Sloss (XB - Life peer) Six months may also be very unfair to those with motor neurone disease or other similar diseases, who - Speech Link
2: Baroness Berridge (Con - Life peer) If you join a Facebook networking group, say, for fellow sufferers of the same disease, the algorithms - Speech Link
3: Baroness Hollins (XB - Life peer) neurone disease earlier this year.I nursed him with the help of fast-track NHS continuing healthcare - Speech Link