Baroness Hollins

The Government is committed to improving outcomes for people with Down syndrome.

Through implementation of the Down Syndrome Act 2022, we will improve the lives of people with Down syndrome by improving their access to services, including health and care services. NHS England has published statutory guidance requiring every integrated care board (ICB) to identify a member of its board to lead on supporting the ICB to perform its functions effectively in the interest of people with Down syndrome.

Under the Down Syndrome Act, my Rt Hon. Friend, the Secretary of State for Health and Social Care is required to give guidance to the relevant authorities in health, social care, education, and housing services on what they should be doing to meet the needs of people with Down syndrome.

The guidance will raise awareness of the specific needs of people with Down syndrome and bring together in one place everything that the relevant authorities should already be doing to support people with Down syndrome. A working draft of the Down syndrome statutory guidance was shared with sector partners in December 2024. Officials have been working through the feedback received and have engaged all relevant Government departments to produce a second draft of the guidance. The Minister of State for Care wrote to sector partners with an update in March 2025. We intend to publish the draft guidance for consultation by the summer, including easy read versions.

Beyond the Down syndrome guidance, under the Equality Act 2010 health and social care organisations must make reasonable adjustments to ensure that disabled people are not disadvantaged. Since 2016, all National Health Service organisations and publicly funded social care providers are expected to meet the Accessible Information Standard, which details the recommended approach to supporting the information and communication support needs of patients and carers with a disability.

The Down Syndrome Act 2022 was published with explanatory notes to assist the reader in understanding the act. Under the Down Syndrome Act, My Rt Hon. Friend, the Secretary of State for Health and Social Care is required to give guidance to the relevant authorities in health, social care, education, and housing services on what they should be doing to meet the needs of people with Down syndrome.

A call for evidence on the guidance under the Down Syndrome Act was launched on 19 July 2022 and ran for 16 weeks. An easy read version of the call for evidence was published which included an overview of the Down Syndrome Act, and which is available on the GOV.UK website. The Department has engaged with stakeholders on the call for evidence, including sharing an easy read version of a draft summary of the results.

We intend to issue the draft guidance for public consultation by the summer, including easy read versions.

A range of evidence-based interventions and services are provided for women in prison. Referrals for all services are encouraged from across the female estate, to support women to access the services they need. These services include the Women’s Offender Personality Disorder Pathway, as well as the Women’s Estate Psychology Service team, which provides forensic psychologists within all 12 women’s prisons to deliver therapeutic services.

HMPPS is piloting an enhanced approach to supporting women in their first weeks in custody, which is often the time when they are most vulnerable. This pilot is fully operational at five women’s prisons. It includes one-to-one psychological support and psychology-based group work.

The Women Offenders Repeat Self-Harm Intervention Pragmatic Trial piloted the delivery of face-to-face therapy. The provider subsequently proposed to move to a digital model. HMPPS was concerned that this could carry significant risks, given the vulnerability of the women. It was not clear how the wellbeing of the women would be safeguarded.

HMPPS would be glad to consider a new proposal to deliver the programme in women’s prisons, on condition that delivery was on a face-to-face basis to support the vulnerability of the women engaging in the therapy, and with provision of after-care.

A range of evidence-based interventions and services are provided for women in prison. Referrals for all services are encouraged from across the female estate, to support women to access the services they need. These services include the Women’s Offender Personality Disorder Pathway, as well as the Women’s Estate Psychology Service team, which provides forensic psychologists within all 12 women’s prisons to deliver therapeutic services.

HMPPS is piloting an enhanced approach to supporting women in their first weeks in custody, which is often the time when they are most vulnerable. This pilot is fully operational at five women’s prisons. It includes one-to-one psychological support and psychology-based group work.

The Women Offenders Repeat Self-Harm Intervention Pragmatic Trial piloted the delivery of face-to-face therapy. The provider subsequently proposed to move to a digital model. HMPPS was concerned that this could carry significant risks, given the vulnerability of the women. It was not clear how the wellbeing of the women would be safeguarded.

HMPPS would be glad to consider a new proposal to deliver the programme in women’s prisons, on condition that delivery was on a face-to-face basis to support the vulnerability of the women engaging in the therapy, and with provision of after-care.