First Registered: 16/03/2016 • Last updated on: 24/01/2024
Note: This APPG was last registered on 24th January 2024. The APPG was not registered in the latest release of the 8th April 2024 and may be defunct.
To increase awareness in Parliament of rare, genetic and undiagnosed conditions and help to ensure that patients and families affected by those conditions have access to appropriate care and support.
Registered Contact:
Liz Twist MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 2221.
Email: liz.twist.mp@parliament.uk
Public Enquiry Point:
Rachel Clayton, Genetic Alliance UK. Tel: 0300 124 0441
Email: appg@geneticalliance.org.uk
Secretariat:
Genetic Alliance UK acts as the group's secretariat. https://www.geneticalliance.org.uk/
Group's Website:
No direct financial benefits are on record for the Rare, Genetic and Undiagnosed Conditions APPG