First Registered: 16/03/2016 • Last updated on: 04/05/2022
To increase awareness in Parliament of rare, genetic and undiagnosed conditions and help to ensure that patients and families affected by those conditions have access to appropriate care and support.
APPGs can register with Parallel Parliament and submit files and articles to be placed here.
Parallel Parliament offers the facility for APPGs to submit written content and files, which are made available through this page.
Submitters can draft and edit publications, and either release them on demand, or schedule release for a future date.
Both text content and attached files submitted through this facility is indexed by our website, and made available through both the search function and relevant e-mail alerts. Any of our users registered for an alert which matches your content, will receive a link making them aware of its publication.
If you wish to register as an authorised representative of the Rare, Genetic and Undiagnosed Conditions APPG and use this facility, click below
Liz Twist MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 2221.
Public Enquiry Point:
Farhana Ali, Genetic Alliance UK. Tel: 0300 124 0441
Genetic Alliance UK acts as the group's secretariat. https://www.geneticalliance.org.uk/
No direct financial benefits are on record for the Rare, Genetic and Undiagnosed Conditions APPG