To inform policy which secures the best quality of life and death for the growing number of babies, children and young people with life-limiting or life-threatening conditions. To improve awareness of their needs and to make sure they are understood by those who can help, including government and parliament.
Found: England’s decision to recognise children’s palliative care as an “important priority” in the Long-term
2. Support for children with life-limiting and life-threatening conditions and their families
28/01/2019 - Parliamentary Research
Found: Number CDP-0010, 28 January 2019 Support for children with life-limiting and life-threatening conditions
Found: children’s palliative care. We are here to support and empower families caring for seriously ill children, and
4. HL Bil 31 (as introduced) (PDF)
24/10/2019 - Bill Documents
Found: HL Bill 31
57/2Access to Palliative Care and
Treatment of Children Bill [HL]
5. HL Bill 13 (as introduced)
09/01/2020 - Bill Documents
Found: HL Bill 1358/1
Access to Palliative Care and
Treatment of Children Bill [HL]
1. Health and Care Bill
18/01/2022 - Lords Chamber
1: line 38, at end insert— “(ea) specialist palliative care services,”Member’s explanatory statement This - Speech Link
2: some level of palliative care need. I declare my interest as a specialist in palliative medicine over - Speech Link
2. Access to Palliative Care and Treatment of Children Bill [HL]
07/02/2020 - Lords Chamber
1: variable access to hospice and specialist palliative care, with even less available out-of-hours. The - Speech Link
3. Access to Palliative Care Bill [HL]
14/06/2019 - Lords Chamber
1: NHS obstetric care in the event of a complication, so why do we leave end-of-life care in some areas - Speech Link
4. Children’s Palliative Care
01/07/2019 - Commons Chamber
1: paediatrician, I have looked after quite a number of these children over the years. I have been the person who has - Speech Link
2: spend each year to meet the needs of seriously ill children and their families has grown to an average of - Speech Link
3: return to the care that is provided during the palliative care process, finally, the care will indeed be - Speech Link
5. Children with Life-limiting Conditions
29/01/2019 - Westminster Hall
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If you wish to register as an authorised representative of the Children who need Palliative Care APPG and use this facility, click below
Dr Caroline Johnson MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 5381.
Public Enquiry Point:
James Cooper, Together for Short Lives, Suite 1b, Whitefriars, Lewins Mead, Bristol BS1 2NT. Tel: 0117 989 7820
Together for Short Lives acts as the group's secretariat. http://www.togetherforshortlives.org.uk/
No direct financial benefits are on record for the Children who need Palliative Care APPG