Children who need Palliative Care APPG

First Registered: 29/03/2017 • Last updated on: 02/06/2021

Official Page

To inform policy which secures the best quality of life and death for the growing number of babies, children and young people with life-limiting or life-threatening conditions. To improve awareness of their needs and to make sure they are understood by those who can help, including government and parliament.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.


This content was generated for your convenience by Parallel Parliament and does not form part of the official record.
Recent Documents related to Children who need Palliative Care

1. Together for Short Lives - written evidence
09/09/2019 - Inquiry: Budget and NHS long-term plan - Health and Social Care Committee
- View source

Found: England’s decision to recognise children’s palliative care as an “important priority” in the Long-term

2. Support for children with life-limiting and life-threatening conditions and their families
28/01/2019 - Parliamentary Research

Found: Number CDP-0010, 28 January 2019 Support for children with life-limiting and life-threatening conditions

3. Together for Short Lives - written evidence
21/01/2019 - Inquiry: Funding of local authorities’ children’s services - Housing, Communities and Local Government Committee
- View source

Found: children’s palliative care. We are here to support and empower families caring for seriously ill children, and

4. Together for Short Lives - written evidence
09/10/2018 - Inquiry: First 1000 days of life - Health and Social Care Committee
- View source

Found: Summary We are the UK’s leading charity for the 49,000 children living with life-limiting conditions, and their

5. HL Bil 31 (as introduced) (PDF)
24/10/2019 - Bill Documents

Found: HL Bill 31 57/2Access to Palliative Care and Treatment of Children Bill [HL] 1ABILLTOMake provision

Latest Documents
Recent Speeches related to Children who need Palliative Care

1. Access to Palliative Care Bill [HL]
14/06/2019 - Lords Chamber

1: NHS obstetric care in the event of a complication, so why do we leave end-of-life care in some areas - Speech Link

2. Access to Palliative Care and Treatment of Children Bill [HL]
07/02/2020 - Lords Chamber

1: variable access to hospice and specialist palliative care, with even less available out-of-hours. The - Speech Link

3. Children with Life-limiting Conditions
29/01/2019 - Westminster Hall

1: That this House has considered support for children with life-limiting and life-threatening conditions - Speech Link
2: That this House has considered support for children with life-limiting and life-threatening conditions - Speech Link
3: debate along with me and I thank them also. Hospice care is important and I thank the hon. Gentleman for - Speech Link

4. Children’s Palliative Care
01/07/2019 - Commons Chamber

1: This evening, I am going to talk about the 49,000 children throughout the UK who have life-limiting conditions - Speech Link
2: spend each year to meet the needs of seriously ill children and their families has grown to an average of - Speech Link
3: return to the care that is provided during the palliative care process, finally, the care will indeed be - Speech Link

5. Assisted Dying Law
23/01/2020 - Westminster Hall

1: public servants such as doctors, health and social care professionals, police and coroners. They are all - Speech Link
2: pressure to end their lives, perhaps from their children, who might want to inherit their assets and to - Speech Link
3: That is not in any way to criticise the standard of care in our hospitals or hospices in this country. Both - Speech Link

Latest Speeches
Recent Questions related to Children who need Palliative Care
1. Palliative Care: Children
asked by: Stephen Timms
16/06/2020
... what assessment he has made of the adequacy of the resourcing of NHS England to enable it to publish timely standard operating procedures during the covid-19 outbreak.

2. Palliative Care: Children
asked by: Stephen Timms
03/06/2020
... what plans he has for (a) NHS England and (b) NHS Improvement to publish its standard operating procedure for children’s palliative care in (i) children’s hospices and i(ii) the community during the covid-19 pandemic; and if he will make a statement.

3. Palliative Care: Children
asked by: Catherine McKinnell
09/09/2019
... (b) 2017-18 and (c) 2018-19.

4. Palliative Care: Children
asked by: Jim Shannon
09/09/2019
... which provider organisations NHS England is commissioning to provide specialised paediatric palliative care as defined by E03/S/H 2013/14 NHS Standard Contract For Paediatric Medicine: Palliative Care in 2019-20; and how much NHS England pays for those services.

5. Palliative Care: Children
asked by: Siobhain McDonagh
09/09/2019
... how much money NHS England has budgeted in the 2019-20 financial year for specialised paediatric palliative care as defined by E03/S/H 2013/14 NHS Standard Contract For Paediatric Medicine: Palliative Care.

Latest Questions
6 Current APPG Officers
Caroline Johnson Portrait
Caroline Johnson
Chair & Registered Contact
Conservative - Sleaford and North Hykeham
Joined: 28th September 2017
1 APPG Membership
Rural Health and Social Care
None Portrait
Neil Gray
Officer
Joined: 21st April 2021
Jonathan Lord Portrait
Jonathan Lord
Officer
Conservative - Woking
Joined: 27th January 2021
Contact Details

Registered Contact:

Dr Caroline Johnson MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 5381.

Email: caroline.johnson.mp@parliament.uk

Public Enquiry Point:

James Cooper, Together for Short Lives, New Bond House, Bond Street, Bristol BS2 9AG. Tel: 0117 989 7863

Email: james.cooper@togetherforshortlives.org.uk

Secretariat:

Together for Short Lives acts as the group's secretariat. http://www.togetherforshortlives.org.uk/

Group's Website:

https://www.togetherforshortlives.org.uk/changing-lives/speaking-up-for-children/policy-advocacy/all-party-parliamentary-group-for-children-who-need-palliative-care/

Benefits in Kind
Date
9 Dec 2020
Source
Together for Short Lives
Description
Secretariat   From : 09/12/2020 To : 08/12/2021
Value
£28,501
Date
18 Jul 2019
Source
Together for Short Lives
Description
Secretariat   From : 18/07/2019 To : 17/07/2020
Value
£25,501
Date
18 Jul 2018
Source
Together for Short Lives
Description
Secretariat   From : 18/07/2018 To : 17/07/2019
Value
£21,001
Date
18 Jul 2017
Source
Together for Short Lives
Description
Secretariat   From : 18/07/2017 To : 17/07/2018
Value
£21,001
Date
7 Feb 2017
Source
Together for Short Lives
Description
Secretariat   From : 07/02/2017 To : 06/02/2018
Value
£21,001

No direct financial benefits are on record for the Children who need Palliative Care APPG

Former APPG Officers
David Simpson Portrait
David Simpson
Vice Chair
Democratic Unionist Party - Former Member for Upper Bann
Joined: 5th November 2019
Departed: 5th November 2019
No other APPG Memberships
Liz McInnes Portrait
Liz McInnes
Vice Chair
Labour - Former Member for Heywood and Middleton
Joined: 5th November 2019
Departed: 5th November 2019
No other APPG Memberships
Stuart Andrew Portrait
Stuart Andrew
Chair & Registered Contact
Conservative - Pudsey
Joined: 29th March 2017
Departed: 2nd May 2017
No other APPG Memberships
Lord Carlile of Berriew Portrait
Lord Carlile of Berriew
Vice Chair
Crossbench - Life peer
Joined: 29th March 2017
Departed: 2nd May 2017
1 APPG Membership
Brain Tumours