Eating Disorders: Prevention of Deaths

Richard Quigley Excerpts

Tuesday 2nd September 2025 Westminster Hall

[Mr Richard Quigley (Isle of Wight West) (Lab)]

I beg to move,

That this House has considered the matter of the prevention of deaths from eating disorders.

It is a great pleasure to serve under your chairship, Sir Desmond. I thank all hon. Members for attending this debate on a topic extremely close to my heart. As hon. Members may know by now, I am the very proud Member for Isle of Wight West and do my utmost to champion the island in this place, but I have brought forward this debate not only as an MP, but as a father who for some years was genuinely fearful as to whether I would see my child reach their 18th birthday.

From the moment someone becomes a parent, their instinct is to protect and nurture their children—often, admittedly, much easier said than done—yet nothing can truly prepare anyone for the overwhelming sense of powerlessness that comes when their child develops an eating disorder. Eating disorders, in all their destructive forms, are one of the few types of illness where the person affected does not want to recover and they actively work against you. Watching your child struggle not only with the illness but with the very treatments meant to help them is truly something I would not wish on any parent, yet it is the reality faced by thousands of parents, families and friends up and down the country.

We all know by now that the pandemic has taken a wrecking ball to children and young people’s mental health, but we cannot pretend that these issues do not predate 2020. Since the mid-1990s, eating disorders have been found to carry the highest mortality rate of any psychiatric illness. However, in the UK, we are unable even to quantify the true havoc that eating disorders cause, because of the lack of a national register for eating disorder deaths. The most recent year with confirmed data from the Office for National Statistics is 2019, when 36 deaths were recorded. However, a US study suggests that the real figure in the UK could be closer to 1,860 deaths, which I am sure people in this room would more than agree with.

[Richard Foord (Honiton and Sidmouth) (LD)]

A constituent got in touch with me because sadly his daughter did not see her 30th birthday owing to an eating disorder. The point that my constituent made was that that was in part because of a lack of adequate services for those affected by these life-threatening conditions. Does the hon. Member agree?

[Mr Quigley]

I agree entirely. We are fully aware of the political situation and the condition that the NHS was left in under the previous Government, but the point of today’s debate is not to make cheap political attacks; it is to focus on the matter in hand, which is eating disorders, so I thank the hon. Member for his intervention.

With widespread under-reporting, misclassification and inconsistencies across the country, many of these deaths are wrongly recorded as organ failure, masking the true role of eating disorders and preventing us from fully grasping the scale of the crisis, especially among otherwise healthy young people.

[Liam Conlon (Beckenham and Penge) (Lab)]

Does my hon. Friend agree that, further to masking the scale of the crisis, excluding eating disorders as a contributing factor on death certificates also cruelly extends the pain that families feel, insinuating that otherwise healthy young people have died from organ failure?

[Mr Quigley]

I thank my hon. Friend for that important point—it does. The loss of a loved one is harrowing enough without the true cause not being recorded. That is why we are calling for a confidential inquiry into eating disorder deaths.

Given the concerns about under-reporting and inconsistencies in the data, it is even more alarming to read the findings from the Health Service Journal that revealed that between 2018 and 2023, 19 deaths related to eating disorders could have been entirely avoided. These tragic outcomes are attributed to severe failures in care, including missed or poorly managed safety risks, a lack of specialist knowledge among healthcare professionals and unacceptable delays in accessing appropriate treatment. If I were to ask for a show of hands in this room, I am sure many would be raised on that point.

[Peter Prinsley (Bury St Edmunds and Stowmarket) (Lab)]

As the MP for Bury St Edmunds and Stowmarket, I take a great interest in the progress of the Norfolk and Suffolk NHS foundation trust under the leadership of Caroline Donovan and Zoë Billingham, who I met recently in Parliament. Does my hon. Friend agree that early intervention is no more expensive and in many cases cheaper than delayed intervention, but is much more effective and saves lives?

[Mr Quigley]

I thank my hon. Friend for his extremely pertinent point. Early intervention saves not only lives but a huge amount in costs to the NHS.

I know the vast majority of NHS staff go above and beyond to support patients, often under immense pressure, and many of us here would like to put on record our thanks to them. However, these failures point to a systemic issue.

[Ms Julie Minns (Carlisle) (Lab)]

One of the issues in geographically remote areas like Carlisle and Cumbria is that, sadly, the in-patient treatment for young people with eating disorders is delivered by an out-of-area NHS trust. Tragically, the inquest into the death of a young woman from my constituency earlier this year found that there had been a failure in collaboration between the two trusts, resulting, sadly, in her death. Does my hon. Friend agree that it is not just a question of resource, and that we also need a culture of collaboration and patient-centred care across all our trusts if we are going to prevent deaths?

[Mr Quigley]

It is true that a lack of understanding among professionals about the severity of the problem contributes to the situation. To have it put down to a lack of collaboration would be infuriating for that parent, as well as truly tragic.

We know well by now that early intervention is crucial for identifying and supporting recovery in patients with eating disorders. However, as a parent of someone affected, I must say that has not been my experience on the ground. Hospital admissions for eating disorders have surged, exceeding 30,000 for the first time in 2023-24, which is a 60% increase compared with pre-pandemic levels. While the NHS struggles to meet this growing demand, private equity firms are profiting from the crisis by owning many of the in-patient units the NHS depends on.

[John Whitby (Derbyshire Dales) (Lab)]

Does my hon. Friend agree that his point highlights the urgent need for the Department to examine the influence of private equity in NHS in-patient mental health services? It is vital that private sector involvement complements the NHS’s mission to deliver high-quality patient-centred care and does not serve as a vehicle for profit-making at the expense of vulnerable patients.

[Mr Quigley]

My hon. Friend is entirely correct. Our experience of private equity is that it is selective in terms of the patients accepted. It profits from misery. We were put in the awful position of having to choose to send our youngest child to a hospital that had just seen the tragic death of Ruth Szymankiewicz—I take this opportunity to pay tribute to Ruth’s parents. Our second trip to a private equity-run hospital led to them forgetting to feed my daughter 11 times. My hon. Friend’s point is, unfortunately, well made.

More concerning still is that I do not believe that our approach to treatment is changing year on year to confront the heightened demand. If these admission increases were associated with a disease such as cancer, the treatment would quite rightly adapt. Our approach to mental health treatment, especially eating disorders, remains stagnant, outdated and alarmingly resistant to progress.

Another deeply concerning issue is how we respond when patients with severe anorexia refuse treatment and are subsequently diagnosed as terminally anorexic, a classification that holds precedent in UK Court of Protection rulings. In such cases, treatment may be withdrawn entirely, resulting in preventable deaths, such as that of a young patient known as BG who tragically died aged 19 in 2022. For those who may argue that treatment will be withdrawn only when a patient is terminally ill, I point to the case of Patricia, previously deemed untreatable by the Court of Protection, only to have the judgment overturned last month—August 2025. That reversal highlights not only the fallibility of such decisions but the danger in labelling eating disorder patients as beyond help.

We cannot ignore the fact that eating disorder deaths are most likely to occur due to suicide. Following an evidence session of the eating disorders all-party parliamentary group, one expert stated that their research found that anorexia sufferers are 18 times more likely and bulimia sufferers seven times more likely to die from suicide than the average patient, due to a combination of pre-existing and untreated mental health conditions, early discharge and the physical effects of eating disorder recovery triggering suicidal ideation. I do not wish to pre-empt the response from the Minister, who I know is keen to make improvements in this area, but I believe that eating disorders must be included in the suicide prevention strategy if we are to meaningfully tackle this worrying trend and stop patients from falling between the gaps in the already patchy world of child and adolescent mental health service provision.

The eating disorders APPG and campaigners from Dump the Scales are urgently calling for a confidential inquiry into avoidable deaths of eating disorder patients. Eating disorders are treatable illnesses. They are dangerous and life-threatening when untreated, under-treated or poorly treated. The risk to life is entirely preventable; deaths from eating disorders are not inevitable. With integrated, well-resourced and evidence-based treatment, recovery is possible, even in the most severe cases and after many years of suffering. Despite that, coroners, families and communities continue to see too many lives needlessly lost. That should not happen, and it does not need to be that way.

Although the facts I have set out today are difficult and harrowing, they must be heard. I also believe, however, that there are reasons to remain hopeful. I know at first hand that the Department, right up to the Secretary of State, is committed to improving outcomes and getting this right. As a Back Bencher, and more importantly as a father, I see it as my responsibility to push for this change to go further and faster.

[Jade Botterill (Ossett and Denby Dale) (Lab)]

I congratulate my hon. Friend on securing such an important debate. I recently met a constituent who has been living with an eating disorder for years and who raised a number of important issues. She is fortunate to have a loving, supportive family but they often feel the system is impossible to navigate. Would my hon. Friend join me in encouraging the Minister to look at how the Government can support the families and loved ones of those living with an eating disorder, and to consider how care could be better structured to effectively treat the combined mental and physical effects of eating disorders in healthcare settings?

[Mr Quigley]

I thank my hon. Friend for her excellent intervention. I agree that this is a family-wide illness. We must reach the point where no one in the UK dies from an eating disorder, where every individual—man, woman, girl, boy—regardless of age, location or clinical classification has access to the support they need when they need it.

I want to finish with the story of a young woman called Zara. She was diagnosed with anorexia nervosa in May 2013 and was admitted to an eating disorder unit almost immediately. Instead of being good news for her recovery, that was when the nightmare began. From May 2013 to June 2021, Zara endured 13 in-patient admissions across seven different units, including three years as a continuous in-patient, nearly two of which she spent without leaving one of the units or going outside. With each admission, her eating disorder and mental health deteriorated further.

During that time Zara was restrained daily, often by a minimum of six people holding her down. She received very little therapy; instead there was a culture of patient blaming and shaming. In the last two years of her life, Zara was crying out for help but no one would listen. The eating disorder unit eventually discharged her completely, handing her over to the community mental health team. Her mum, who is with us today, spent nearly every day taking ligatures off her neck, lifting her down from a wardrobe when she was nearly unconscious, and performing CPR when she was found unresponsive in the shower.

Zara’s mum states there was little to no support from the community psychiatrist; her family were left to cope alone. No matter how much they pleaded for help, it was a constant battle and they never received the support Zara so desperately needed. Zara should never have died of this illness. There was a whole world out there for her and she had so much to give, but ultimately she felt everyone had given up on her. She was only 24 when she died, but she was exhausted and did not know any other way to keep going without support.

Unfortunately, Zara’s story is just one of many, and it is a story unfolding for countless others across the country. Behind these tragedies are systemic failures, often overlooked and hidden behind a lack of national data, questionable legal decision making and cost-saving agendas. In many parts of the UK, the treatments available to patients are not supported by evidence and can even be harmful, rather than providing integrated and evidence-based care. Underfunded services and poorly trained staff often leave high-risk patients institutionalised or without any meaningful or appropriate support. The system currently fails to listen to those who matter most—the patients, their families and supporters. Too often, it fosters a harmful culture of patient blaming rather than delivering compassionate, personalised care that supports recovery. We now know that eating disorders do not discriminate, and neither should our services.

[Several hon. Members rose—]

--- Later in debate ---

[Mr Quigley]

I thank the Minister for his response and all hon. Members for their thoughtful contributions. It has been truly heartening. This is the main message I hope to leave today: one death from any eating disorder is one too many. These deaths are not inevitable; they are preventable, yet far too many lives have already been lost, and far too many people continue to suffer needlessly.

I am pleased that the Minister and the Department have committed forcefully to improving the area, and to working with members of the APPG and me. We look forward to launching our report, at the end of October, on preventing eating disorder deaths. I hope to see many of my colleagues there when we do.

Lastly, I pay tribute to Zara’s mum, to Debs and cousin Tricia, and to all the parents fighting for the wellbeing of their children.

Question put and agreed to.

Resolved,

That this House has considered the matter of the prevention of deaths from eating disorders.

Oral Answers to Questions

Richard Quigley Excerpts

Tuesday 22nd July 2025 Commons Chamber

[Mr Speaker]

Order. That is not linked to the question. That is why I was really bothered when I called the hon. Gentleman.

[Mr Richard Quigley (Isle of Wight West) (Lab)]

5. What recent estimate his Department has made of the proportion of mental health research funding allocated to eating disorders.

[The Minister for Care (Stephen Kinnock)]

Through the National Institute for Health and Care Research, the Department is committed to finding new ways of tackling eating disorders through research. We are supporting research projects, including the eating disorders genetics initiative—one of the largest studies of its kind—and have a £4.25 million collaboration with other UK research funders to build new partnerships in eating disorder research. We are also strengthening support for people with eating disorders by recruiting more mental health workers, expanding mental health support in schools and embedding it in young futures hubs.

[Mr Quigley]

Eating disorders cost the UK an estimated £9 billion each year, yet research into these serious conditions receives just 1% of all mental health research funding. That is despite eating disorders affecting around 9% of people with mental health conditions, the consequences of which are delayed diagnosis and treatment and often lengthy hospital admissions. Will the Minister agree to meet me and the eating disorder charity Beat to discuss how the Government can break this cycle and ensure that eating disorder research receives the attention and investment that it urgently needs?

[Stephen Kinnock]

I know that this subject is close to my hon. Friend’s heart, and I pay tribute to him for his work on it. We recognise the devastating impact that an eating disorder can have, and the earlier the treatment is provided, the greater the chance of recovery. The Department continues to work closely with NHS England, which is now refreshing guidance on children and young people’s eating disorders. I commend the work of Beat, and I would be happy to discuss this further with my hon. Friend.

--- Later in debate ---

[Ashley Dalton]

We are looking very carefully at the arguments for national screening. The hon. Member will be aware that there are concerns. We have to look at this very carefully to ensure that screening programmes do not cause unnecessary harm, but targeted and widespread screening for prostate cancer is something that the Department is looking at and will report on in due course.

[Mr Richard Quigley (Isle of Wight West) (Lab)]

T8. Thank you, Mr Speaker. I am so delighted to have two questions on health this week that I am not even going to mention ferries!As my hon. Friend will know, the process for securing an education, health and care plan is complex and can lead to delays in accessing vital support. That can have a serious impact on the health and wellbeing of young people and children. What steps is the Minister taking to improve the health element of EHCPs for families navigating the process, including those in my constituency?

[Stephen Kinnock]

We have inherited a system that is utterly failing to meet the needs of children with special educational needs. This Government are reforming the SEND system, ensuring that there is joined-up support across education and healthcare. We are also supporting inclusive environments and earlier intervention for children through the early language support for every child programme, or ELSEC, and the partnership for inclusion of neurodiversity in schools programme, or PINS.

Oral Answers to Questions

Richard Quigley Excerpts

Tuesday 17th June 2025 Commons Chamber

[Wes Streeting]

I was in the Chamber to hear the hon. Member’s question. Obviously we are led by clinical advice when it comes to decisions on screening programmes, but I understand the case she makes. I would be delighted to ensure that she gets a meeting with the relevant Minister.

[Mr Richard Quigley (Isle of Wight West) (Lab)]

T8. Earl Mountbatten hospice in my constituency delivers outstanding care across the community. Despite that, Hampshire and Isle of Wight integrated care board plans to cut its funding by £1.4 million, while other hospices in the region have their funding increased. I am deeply concerned that the cut will affect our local health services. Will the Minister meet me to discuss how we can restore that essential funding and protect hospice care for my constituents?

NHS and Care Volunteer Responders Service

Richard Quigley Excerpts

Monday 19th May 2025 Commons Chamber

[Karin Smyth]

I am afraid that I have to disagree with the hon. Gentleman—it is not muddled. The analysis undertaken by NHS England indicates that the current system is not providing good value for money, and we are making sure that we produce something better for the future. This Government will continue to act in the best interests of volunteers, patients and taxpayers in setting up the NHS of the future.

[Mr Richard Quigley (Isle of Wight West) (Lab)]

I congratulate all the volunteers in my constituency, who do a great job. Does the Minister agree that the huge increase in volunteers over the past few years is because the Conservatives ran down the NHS? Now they are in opposition, they can no longer run down the NHS, so they talk it down instead.

[Karin Smyth]

Well, we could—[Interruption.] Sorry, the hon. Member for Farnham and Bordon (Gregory Stafford) is chuntering from a sedentary position. I partly agree with my hon. Friend. Yes, the Conservatives did run down the NHS and we inherited a broken system, but volunteering has always been a really important part of the NHS and the care system, so I pay tribute to those people who come forward. It is both good for the system and the people they help, and for many individuals. We talked earlier about people feeling disconnected, perhaps as receivers of volunteering, but we know how valuable it is for individuals themselves to be giving and volunteering, and we want to see more of that.

Oral Answers to Questions

Richard Quigley Excerpts

Tuesday 6th May 2025 Commons Chamber

[Wes Streeting]

I will tell the hon. Lady what we are not going to do: we are not going to see £1.7 billion wasted on strikes by resident doctors or 1.5 million cancelled operations and appointments, which is exactly what happened on the Conservatives’ watch. Within three weeks, we ended the strike by resident doctors and we have cut waiting lists by 200,000 as a result. As I have said to resident doctors, their pay offer will be fair and neither staff nor patients want to go back to the bad old days of strikes under the Tories. They had an unwilling and incalcitrant Government under the Conservatives, who were unwilling to work with resident doctors, but we want to work with them to deliver better care for patients.

[Mr Richard Quigley (Isle of Wight West) (Lab)]

T3. I pay tribute to my 17-year-old constituent, Arlo Lambie, who tragically died on 13 April following the diagnosis of a grade 4 brain tumour. I knew Arlo—he was a fun and bright lad who will be sadly missed. While Arlo’s parents, Ellie and Alex, wish to put on record their thanks for the “incredible and compassionate care” Arlo received at St Mary’s hospital on the Isle of Wight, they want to know what steps the Secretary of State is taking to improve NHS access to breakthrough treatments to ensure that the commercial interests of pharmaceutical companies do not take precedence, so that children with brain cancer, like Arlo, are given the best possible chance to survive for longer.

[The Parliamentary Under-Secretary of State for Health and Social Care (Ashley Dalton)]

I add my heartfelt condolences to Arlo’s family. In September, we launched a new series of funding opportunities designed to improve brain cancer research for both adults and children. We are committed to furthering our investment and support for high-quality brain tumour research, ensuring that funding is used in the most meaningful and impactful way. Hon. Members will note that there is a debate on Thursday on brain tumours, and I will be attending the all-party parliamentary group on brain tumours next week.

Health and Social Care: Winter Update

Richard Quigley Excerpts

Wednesday 15th January 2025 Commons Chamber

[Wes Streeting]

I am really grateful to the hon. Member for raising that question and for the example she gave of the Whittington advertisement for staff specifically to deliver corridor care. I make no criticism of the trust itself in trying to make sure it has the right staff in place to deliver the best care possible in the present circumstances. It is not the fault of the Whittington that there is corridor care; it is a legacy of 14 years of Conservative failure. I would also say that my reaction to seeing that advertisement was the same as hers: it was proof that corridor care has been normalised. I want to reassure her, the House and patients across the country that this Government will not accept corridor care as normal care. We will not tolerate it as being acceptable care. We will do everything we can as fast as we can to consign corridor care to the history books and I reassure the staff working in the NHS in these intolerable conditions that we will work with them to deliver the investment and the reform needed to get the NHS back on its feet and make it fit for the future.

[Mr Richard Quigley (Isle of Wight West) (Lab)]

Despite the Conservative party’s best efforts to ruin our NHS, will the Secretary of State join me in paying tribute to the hard-working NHS and social care staff in my constituency who, despite enormous winter pressure, are doing their best to go above and beyond to provide exceptional care and keep the NHS on its feet?

[Wes Streeting]

I thank staff on the Isle of Wight for everything they are doing to support communities across the island against a challenging backdrop. Since my hon. Friend arrived in the House he has been an extremely strong, loud and effective voice for the people of his constituency and across the Isle of Wight, and I look forward to working with him and health and care leaders on the Isle of Wight to make sure that they see their health and care services improving as a result of their decision to send a Labour Member of Parliament and a Labour Government here to serve our NHS and his communities.

Oral Answers to Questions

Richard Quigley Excerpts

Tuesday 7th January 2025 Commons Chamber

[Mr Richard Quigley (Isle of Wight West) (Lab)]

T10. The Isle of Wight does not just have a problem with its ferries, as the House would expect; we also have a huge problem with dentistry. We are a true dental desert. However, the size of our community means that we are an ideal place to try new approaches to dentistry, especially for children. Will the Minister meet me to discuss those approaches and improve dentistry on the island?

[Stephen Kinnock]

My hon. Friend is absolutely right to describe the Isle of Wight as a dental desert. That is perhaps one of the reasons why the good people of that island elected a Labour Member for the first time in history. Our ambition is to make sure that everyone who needs a dentist can get one. Sadly, 28% of adults in England—13 million people—have an unmet need for NHS dentistry. I would be glad to meet my hon. Friend to learn more about how the experience of the Isle of Wight can improve services nationally.