Eating Disorders: Prevention of Deaths

Jade Botterill Excerpts

Tuesday 2nd September 2025 Westminster Hall

[Mr Quigley]

My hon. Friend is entirely correct. Our experience of private equity is that it is selective in terms of the patients accepted. It profits from misery. We were put in the awful position of having to choose to send our youngest child to a hospital that had just seen the tragic death of Ruth Szymankiewicz—I take this opportunity to pay tribute to Ruth’s parents. Our second trip to a private equity-run hospital led to them forgetting to feed my daughter 11 times. My hon. Friend’s point is, unfortunately, well made.

More concerning still is that I do not believe that our approach to treatment is changing year on year to confront the heightened demand. If these admission increases were associated with a disease such as cancer, the treatment would quite rightly adapt. Our approach to mental health treatment, especially eating disorders, remains stagnant, outdated and alarmingly resistant to progress.

Another deeply concerning issue is how we respond when patients with severe anorexia refuse treatment and are subsequently diagnosed as terminally anorexic, a classification that holds precedent in UK Court of Protection rulings. In such cases, treatment may be withdrawn entirely, resulting in preventable deaths, such as that of a young patient known as BG who tragically died aged 19 in 2022. For those who may argue that treatment will be withdrawn only when a patient is terminally ill, I point to the case of Patricia, previously deemed untreatable by the Court of Protection, only to have the judgment overturned last month—August 2025. That reversal highlights not only the fallibility of such decisions but the danger in labelling eating disorder patients as beyond help.

We cannot ignore the fact that eating disorder deaths are most likely to occur due to suicide. Following an evidence session of the eating disorders all-party parliamentary group, one expert stated that their research found that anorexia sufferers are 18 times more likely and bulimia sufferers seven times more likely to die from suicide than the average patient, due to a combination of pre-existing and untreated mental health conditions, early discharge and the physical effects of eating disorder recovery triggering suicidal ideation. I do not wish to pre-empt the response from the Minister, who I know is keen to make improvements in this area, but I believe that eating disorders must be included in the suicide prevention strategy if we are to meaningfully tackle this worrying trend and stop patients from falling between the gaps in the already patchy world of child and adolescent mental health service provision.

The eating disorders APPG and campaigners from Dump the Scales are urgently calling for a confidential inquiry into avoidable deaths of eating disorder patients. Eating disorders are treatable illnesses. They are dangerous and life-threatening when untreated, under-treated or poorly treated. The risk to life is entirely preventable; deaths from eating disorders are not inevitable. With integrated, well-resourced and evidence-based treatment, recovery is possible, even in the most severe cases and after many years of suffering. Despite that, coroners, families and communities continue to see too many lives needlessly lost. That should not happen, and it does not need to be that way.

Although the facts I have set out today are difficult and harrowing, they must be heard. I also believe, however, that there are reasons to remain hopeful. I know at first hand that the Department, right up to the Secretary of State, is committed to improving outcomes and getting this right. As a Back Bencher, and more importantly as a father, I see it as my responsibility to push for this change to go further and faster.

[Jade Botterill (Ossett and Denby Dale) (Lab)]

I congratulate my hon. Friend on securing such an important debate. I recently met a constituent who has been living with an eating disorder for years and who raised a number of important issues. She is fortunate to have a loving, supportive family but they often feel the system is impossible to navigate. Would my hon. Friend join me in encouraging the Minister to look at how the Government can support the families and loved ones of those living with an eating disorder, and to consider how care could be better structured to effectively treat the combined mental and physical effects of eating disorders in healthcare settings?

[Mr Quigley]

I thank my hon. Friend for her excellent intervention. I agree that this is a family-wide illness. We must reach the point where no one in the UK dies from an eating disorder, where every individual—man, woman, girl, boy—regardless of age, location or clinical classification has access to the support they need when they need it.

I want to finish with the story of a young woman called Zara. She was diagnosed with anorexia nervosa in May 2013 and was admitted to an eating disorder unit almost immediately. Instead of being good news for her recovery, that was when the nightmare began. From May 2013 to June 2021, Zara endured 13 in-patient admissions across seven different units, including three years as a continuous in-patient, nearly two of which she spent without leaving one of the units or going outside. With each admission, her eating disorder and mental health deteriorated further.

During that time Zara was restrained daily, often by a minimum of six people holding her down. She received very little therapy; instead there was a culture of patient blaming and shaming. In the last two years of her life, Zara was crying out for help but no one would listen. The eating disorder unit eventually discharged her completely, handing her over to the community mental health team. Her mum, who is with us today, spent nearly every day taking ligatures off her neck, lifting her down from a wardrobe when she was nearly unconscious, and performing CPR when she was found unresponsive in the shower.

Zara’s mum states there was little to no support from the community psychiatrist; her family were left to cope alone. No matter how much they pleaded for help, it was a constant battle and they never received the support Zara so desperately needed. Zara should never have died of this illness. There was a whole world out there for her and she had so much to give, but ultimately she felt everyone had given up on her. She was only 24 when she died, but she was exhausted and did not know any other way to keep going without support.

Unfortunately, Zara’s story is just one of many, and it is a story unfolding for countless others across the country. Behind these tragedies are systemic failures, often overlooked and hidden behind a lack of national data, questionable legal decision making and cost-saving agendas. In many parts of the UK, the treatments available to patients are not supported by evidence and can even be harmful, rather than providing integrated and evidence-based care. Underfunded services and poorly trained staff often leave high-risk patients institutionalised or without any meaningful or appropriate support. The system currently fails to listen to those who matter most—the patients, their families and supporters. Too often, it fosters a harmful culture of patient blaming rather than delivering compassionate, personalised care that supports recovery. We now know that eating disorders do not discriminate, and neither should our services.