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Closed Petition closed 6th July 2021

Increase funding for urgent research into devastating motor neurone disease - Final Signatures: 110,700

We ask Government to significantly increase targeted research funding for motor neurone disease (MND).

A new investment of £50m over 5 years could kickstart a pioneering MND Research Institute.

This would lead to better, faster and more definitive research outcomes and hope for those with MND.

Debate: This petition was debated in Westminster Hall on 12th July 2021

The Government responsed to this petition on 7th April 2021 (View Full Response)
The Government recognises the immense challenges faced by people with motor neurone disease and is currently working on ways to significantly boost further research into the disease.
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Found: The lifetime risk of contracting motor neurone disease (MND) is 1 in 300.

Grand Committee
Social Care Funding (EAC Report) - Thu 28 Jan 2021
Department of Health and Social Care

Mentions:
1: Lord Forsyth of Drumlean (CON - Life peer) Why should support be free for cancer patients but not those suffering from motor neurone disease, for - Speech Link
2: Lord Bishop of Carlisle (Bishops - Bishops) If that is ignored, any increase in funding will run the risk of being wasted.We are all well aware of - Speech Link
3: Lord Truscott (Non-affiliated - Life peer) Her Majesty’s Government should increase funding by at least £10 billion to restore the 2009-11 levels - Speech Link
4: Baroness Wheeler (LAB - Life peer) pushing for this debate.Noble Lords have stressed the devastating impact of Covid-19 on social care. - Speech Link

Departmental Publication (Policy and Engagement)
Department of Health and Social Care

Jan. 29 2021

Source Page: Social care funding and workforce report: government response
Document: Social care funding and workforce report: government response (PDF)

Found: Social care funding and workforce report: government response

Commons Chamber
Covid-19 - Tue 12 Jan 2021
Department of Health and Social Care

Mentions:
1: Liz Kendall (LAB - Leicester West) All but the most urgent operations are being cancelled in many parts of the country, including for cancer - Speech Link
2: Peter Bottomley (CON - Worthing West) I feel strongly about another small group, those with motor neurone disease, because of friends of mine - Speech Link
3: Richard Burgon (LAB - Leeds East) It means urgent help for the millions of self-employed people who have never had any support, and for - Speech Link
4: Colleen Fletcher (LAB - Coventry North East) We need urgent action on health inequalities now. - Speech Link
5: Ruth Cadbury (LAB - Brentford and Isleworth) many, the impact has been devastating. - Speech Link

Scottish Government Publication (Independent report)

Feb. 03 2021

Source Page: Adult social care: independent review
Document: Evidence Submissions: Volume 3 (PDF)

Found: Palliative Care in Scotland: Research into Practice (2017) – A report from a seminar hosted by Marie

Commons Chamber
Oral Answers to Questions - Tue 15 Dec 2020
Department for Business, Energy and Industrial Strategy

Mentions:
1: James Daly (CON - Bury North) If we do not act now, these important community assets will be lost forever, with the devastating loss - Speech Link
2: Debbie Abrahams (LAB - Oldham East and Saddleworth) the Motor Neurone Disease Association, and will he commit to properly invest in research that could - Speech Link
3: Alok Sharma (CON - Reading West) Gentleman that, on support for businesses, what we have done is to look at the requirements and increase - Speech Link
4: Jamie Wallis (CON - Bridgend) Friend had with ministerial colleagues about getting NHS non-urgent, non-critical procedures back up - Speech Link
5: David Johnston (CON - Wantage) Friend the Member for Derby North (Amanda Solloway), the Minister for science, research and innovation - Speech Link

Departmental Publication (Transparency)
Home Office

Dec. 15 2020

Source Page: Non-technical summaries granted in 2020
Document: Non-technical summaries granted in 2020 (PDF)

Found: In a small number of cases, where we are looking at models of motor neurone disease, animals may

Select Committee
Fourth report: Unequal impact? Coronavirus, disability and access to services: full Report

Inquiry Publications Dec. 22 2020

Inquiry: Unequal impact? Coronavirus, disability and access to services
Inquiry Status: Closed
Committee: Women and Equalities Committee

Found: We agree with the Health and Social Care Committee that an increase in funding for social care, worth

Select Committee
Social care: funding and workforce

Inquiry Publications Oct. 22 2020

Inquiry: Social care: funding and workforce
Inquiry Status: Closed
Committee: Health and Social Care Committee (Department: Department of Health and Social Care)

Found: Social care: funding and workforce HC 206 Report

Select Committee
1st Report - Unequal impact? Coronavirus, disability and access to services: interim Report on temporary provisions in the Coronavirus Act

Inquiry Publications Sep. 25 2020

Inquiry: Unequal impact? Coronavirus, disability and access to services
Inquiry Status: Closed
Committee: Women and Equalities Committee

Found: sustainable funding solution for social carefl since its annual State of Care report in 2016.