Data (Use and Access) Bill [HL]

Viscount Camrose Excerpts

Committee stage
Tuesday 10th December 2024 Grand Committee

That shows that it is possible to do this in the right way and to bring the public with us. I totally understand that we do not want people completely scraping the data and using it purely for commercial purposes, but there is a fear that if we swing the pendulum too far the other way, there will be a chilling effect on some of this research work, which will happen only if there is also a commercial benefit at the end of the road. Trying to find that balance is the key thing we need to find in this Bill.

[Viscount Camrose (Con)]

I start by thanking all noble Lords who spoke for their comments and fascinating contributions. We on these Benches share the concern of many noble Lords about the Bill allowing the use of data for research purposes, especially scientific research purposes.

Amendment 59 has, to my mind, the entirely right and important intention of preventing misuse of the scientific research exemption for data reuse by ensuring that the only purpose for which the reuse is permissible is scientific research. Clearly, there is merit in this idea, and I look forward to hearing the Minister give it due consideration.

However, there are two problems with the concept and definition of scientific research in the Bill overall, and, again, I very much look forward to hearing the Government’s view. First, I echo the important points raised by my noble friend Lord Markham. Almost nothing in research or, frankly, life more broadly, is done with only one intention. Even the most high-minded, curiosity-driven researcher will have at the back of their mind the possibility of commercialisation. Alongside protecting ourselves from the cynical misuse of science as a cover story for commercial pursuit, we have to be equally wary of creating law that pushes for the complete absence of the profit motive in research, because to the extent that we succeed in doing that, we will see less research. Secondly—the noble Viscount, Lord Colville, and the noble Lord, Lord Clement-Jones, made this point very powerfully—I am concerned that the broad definition of scientific research in the Bill might muddy the waters further. I worry that, if the terminology itself is not tightened, restricting the exemption might serve little purpose.

On Amendment 62, to which I have put my name, the same arguments very much apply. I accept that it is very challenging to find a form of words that both encourages research and innovation and does not do so at the expense of data protection. Again, I look forward to hearing the Government’s view. I am also pleased to have signed Amendment 63, which seeks to ensure that personal data can be reused only if doing so is in the public interest. Having listened carefully to some of the arguments, I feel that the public interest test may be more fertile ground than a kind of research motivation purity test to achieve that very difficult balance.

On Amendment 64, I share the curiosity to hear how the Minister defines research and statistical processes —again, not easy but I look forward to her response.

Amendment 65 aims to ensure that research seeking to use the scientific research exemption to obtaining consent meets the minimum levels of scientific rigour. The aim of the amendment is, needless to say, excellent. We should seek to avoid creating opportunities which would allow companies—especially but not uniquely AI labs—to cloak their commercial research as scientific, thus reducing the hoops they must jump through to reuse data in their research without explicit consent. However, Amendment 66, tabled in my name, which inserts the words:

“Research considered scientific research that is carried out as a commercial activity must be subject to the approval of an independent ethics committee”,


may be a more adaptive solution.

Many of these amendments show that we are all quite aligned in what we want but that it is really challenging to codify that in writing. Therefore, the use of an ethics committee to conduct these judgments may be the more agile, adaptive solution.

I confess that I am not sure I have fully understood the mechanism behind Amendments 68 and 69, but I of course look forward to the Minister’s response. I understand that they would essentially mean consent by failing to opt out. If so, I am not sure I could get behind that.

Amendment 130 would prevent the processing of personal data for research, archiving and statistical purposes if it permits the identification of a living individual. This is a sensible precaution. It would prevent the sharing of unnecessary or irrelevant information and protect people’s privacy in the event of a data breach.

Amendment 132 appears to uphold existing patient consent for the use of their data for research, archiving and statistical purposes. I just wonder whether this is necessary. Is that not already the case?

Finally, I turn to the Clause 85 stand part notice. I listened carefully to the noble Lord, Lord Clement-Jones, but I am not, I am afraid, at a point where I can support this. There need to be safeguards on the use of data for this purpose; I feel that Clause 85 is our way of having them.

[The Parliamentary Under-Secretary of State, Department for Business and Trade and Department for Science, Information and Technology (Baroness Jones of Whitchurch) (Lab)]

My Lords, it is a great pleasure to be here this afternoon. I look forward to what I am sure will be some excellent debates.

We have a number of debates on scientific research; it is just the way the groupings have fallen. This is just one of several groupings that will, in different ways and from different directions, probe some of these issues. I look forward to drilling down into all the implications of scientific research in the round. I should say at the beginning—the noble Lord, Lord Markham, is absolutely right about this—that we have a fantastic history of and reputation for doing R&D and scientific research in this country. We are hugely respected throughout the world. We must be careful that we do not somehow begin to demonise some of those people by casting aspersions on a lot of the very good research that is taking place.

A number of noble Lords said that they are struggling to know what the definition of “scientific research” is. A lot of scientific research is curiosity driven; it does not necessarily have an obvious outcome. People start a piece of research, either in a university or on a commercial basis, and they do not quite know where it will lead them. Then—it may be 10 or 20 years later—we begin to realise that the outcome of their research has more applications than we had ever considered in the past. That is the wonderful thing about human knowledge: as we build and we learn, we find new applications for it. So I hope that whatever we decide and agree on in this Bill does not put a dampener on that great aspect of human knowledge and the drive for further exploration, which we have seen in the UK in life sciences in particular but also in other areas such as space exploration and quantum. Noble Lords could probably identify many more areas where we are increasingly getting a reputation for being at the global forefront of this thinking. We have to take the public with us, of course, and get the balance right, but I hope we do not lose sight of the prize we could have if we get the regulations and legislation right.

Let me turn to the specifics that have been raised today. Amendments 59 and 62 to 65 relate to scientific provisions, and the noble Lord, Lord Clement-Jones, the noble Viscount, Lord Colville, and others have commented on them. I should make it clear that this Bill is not expanding the meaning of “scientific research”. If anything, it is restricting it, because the reasonableness test that has been added to the legislation—along with clarification of the requirement for research to have a lawful basis—will constrain the misuse of the existing definition. The definition is tighter, and we have attempted to do that in order to make sure that some of the new developments and technologies coming on stream will fall clearly within the constraints we are putting forward in the Bill today.

Amendments 59 and 62 seek to prevent misuse of the exceptions for data reuse. I assure the noble Viscount, Lord Colville, that the existing provisions for research purposes already prevent the controller taking advantage of them for any other purpose they may have in mind. That is controlled.

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[Baroness Kidron (CB)]

My Lords, I have to admit that I am slightly confused by the groupings at this point. It is very easy to have this debate in the medical space, to talk about the future of disease, fixing diseases and longevity, but my rather mundane questions have now gone unanswered twice. Perhaps the Minister will write to me about where the Government see scientific research on product development in some of these other spaces.

We will come back to the question of scraping and intellectual copyright, but I want to add my support to my noble friend Lord Freyberg’s amendment. I also want to add my voice to the question of the AI Bill that is coming. Data is fundamental to the AI infra- structure; data is infrastructure. I do not understand how we can have a data Bill that does not have one eye on AI, looking towards it, or how we are supposed to understand the intersection between the AI Bill and the data Bill if the Government are not more forthcoming about their intentions. At the moment, we are seeing a reduction in data protection that looks as though it is anticipating, or creating a runway for, certain sorts of companies.

Finally, I am sorry that the noble Lord is no longer in his place, but later amendments look at creating sovereign data assets around the NHS and so on, and I do not think that those of us who are arguing to make sure that it is not a free-for-all are unwilling to create, or are not interested in creating, ways in which the huge investment in the NHS and other datasets can be realised for UK plc. I do not want that to appear to be where we are starting just because we are unhappy about the roadway that Clause 67 appears to create.

[Viscount Camrose (Con)]

Many thanks to the noble Lords who have spoken in this debate and to the noble Lord, Lord Freyberg, for his Amendment 60. Before I start, let me endorse and add my name to the request for something of a briefing about the AI Bill. I am concerned that we will put a lot of weight of expectation on that Bill. When it comes, if I understand this right, it will focus on the very largest AI labs and may not necessarily get to all the risks that we are talking about here.

Amendment 60 seeks to ensure that the Bill does not allow privately funded or commercial activities to be considered scientific research in order

“to avert the possibility that such ventures might benefit from exemptions in copyright law relating to data mining”.

This is a sensible, proportionate measure to achieve an important end, but I have some concerns about the underlying assumption, as it strikes me. There is a filtering criterion of whether or not the research is taxpayer funded; that feels like a slightly crude means of predicting the propensity to infringe copyright. I do not know where to take that so I shall leave it there for the moment.

Amendment 61 in my name would ensure that data companies cannot justify data scraping for AI training as scientific research. As many of us said in our debate on the previous group, as well as in our debate on this group, the definition of “scientific research” in the Bill is extremely broad. I very much take on board the Minister’s helpful response on that but, I must say, I continue to have some concerns about the breadth of the definition. The development of AI programs, funded privately and as part of a commercial enterprise, could be considered scientific, so I believe that this definition is far too broad, given that Article 8A(3), to be inserted by Clause 71(5), states:

“Processing of personal data for a new purpose is to be treated as processing in a manner compatible with the original purpose where … the processing is carried out … for the purposes of scientific research”.


By tightening up the definition of “scientific research” to exclude activities that are primarily commercial, it prevents companies from creating a scientific pretence for research that is wholly driven by commercial gain rather than furthering our collective knowledge. I would argue that, if we wish to allow these companies to build and train AI—we must, or others will—we must put in proper safeguards for people’s data. Data subjects should have the right to consent to their data being used in such a manner.

Amendment 65A in the name of my noble friend Lord Holmes would also take steps to remedy this concern. I believe that this amendment would work well in tangent with Amendment 61. It makes it absolutely clear that we expect AI developers to obtain consent from data subjects before they use or reuse their data for training purposes. For now, though, I shall not press my amendment.

[Lord Clement-Jones (LD)]

My Lords, I share the confusion of the noble Baroness, Lady Kidron, about the groupings. If we are not careful, we are going to keep returning to this issue again and again over four or five groups.

With the possible exception of the noble Lord, Lord Lucas, I think that we are all very much on the same page here. On the suggestion from the noble Viscount, Lord Colville, that we meet to discuss the precise issue of the definition of “scientific research”, this would be extremely helpful; the noble Baroness and I do not need to repeat the concerns.

I should declare an interest in two respects: first, my interests as regards AI, which are set out on the register; and, secondly—I very much took account of what the noble Viscount, Lord Camrose, and the noble Lord, Lord Markham, had to say—I chair the council of a university that has a strong health faculty. It does a great deal of health research and a lot of that research relies on NHS datasets.

This is not some sort of Luddism we are displaying here. This is caution about the expansion of the definition of scientific research, so that it does not turn into something else: that it does not deprive copyright holders of compensation, and that it does not allow personal data to be scraped off the internet without consent. There are very legitimate issues being addressed here, despite the fact that many of us believe that this valuable data should of course be used for the public benefit.



One of the key themes—this is perhaps where we come back on to the same page as the noble Lord, Lord Lucas—may be public benefit, which we need to reintroduce so that we really understand that scientific research for public benefit is the purpose we want this data used for.

I do not think I need to say much more: this issue is already permeating our discussions. It is interesting that we did not get on to it in a major way during the DPDI Bill, yet this time we have focused much more heavily on it. Clearly, in opposition, the noble Viscount has seen the light. What is not to like about that? Further discussion, not least of the amendment of the noble Baroness, Lady Kidron, further down the track will be extremely useful.

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Moved by

[Viscount Camrose]

66: Clause 67, page 75, line 21, at end insert—
“3A. Research considered scientific research that is carried out as a commercial activity must be subject to the approval of an independent ethics committee.”Member's explanatory statement
This amendment ensures personal data is not used for commercial purposes, which is subject to fewer ethical safeguards; preventing data being used in a matter data subjects may not consider an appropriate, such as training Large Language Models.

[Viscount Camrose (Con)]

My Lords, Amendments 66, 67 and 80 in this group are all tabled in my name. Amendment 66 requires scientific research carried out for commercial purposes to

“be subject to the approval of an independent ethics committee”.

Commercial research is, perhaps counterintuitively, generally subjected to fewer ethical safeguards than research carried out purely for scientific endeavour by educational institutions. Given the current broad definition of scientific research in the Bill—I am sorry to repeat this—which includes research for commercial purposes, and the lower bar for obtaining consent for data reuse should the research be considered scientific, I think it would be fair to require more substantial ethical safeguards on such activities.

We do not want to create a scenario where unscrupulous tech developers use the Bill to harvest significant quantities of personal data under the guise of scientific endeavour to develop their products, without having to obtain consent from data subjects or even without them knowing. An independent ethics committee would be an excellent way to monitor scientific research that would be part of commercial activities, without capping data access for scientific research, which aims more purely to expand the horizon of our knowledge and benefit society. Let us be clear: commercial research makes a huge and critically important contribution to scientific research, but it is also surely fair to subject it to the same safeguards and scrutiny required of non-commercial scientific research.

Amendment 67 would ensure that data controllers cannot gain consent for research purposes that cannot be defined at the time of data collection. As the Bill stands, consent will be considered obtained for the purposes of scientific research if, at the time consent is sought, it is not possible to identify fully the purposes for which the personal data is to be processed. I fully understand that there needs to be some scope to take advantage of research opportunities that are not always foreseeable at the start of studies, particularly multi-year longitudinal studies, but which emerge as such studies continue. I am concerned, however, that the current provisions are a little too broad. In other words: is consent not actually being given at the start of the process for, effectively, any future purpose?

Amendment 80 would prevent the data reuse test being automatically passed if the reuse is for scientific purposes. Again, I have tabled this amendment due to my concerns that research which is part of commercial activities could be artificially classed as scientific, and that other clauses in the Bill would therefore allow too broad a scope for data harvesting. I beg to move.

[Viscount Colville of Culross (CB)]

My Lords, it seems very strange indeed that Amendment 66 is in a different group from group 1, which we have already discussed. Of course, I support Amendment 66 from the noble Viscount, Lord Camrose, but in response to my suggestion for a similar ethical threshold, the Minister said she was concerned that scientific research would find this to be too bureaucratic a hurdle. She and many of us here sat through debates on the Online Safety Bill, now an Act. I was also on the Communications Committee when it looked at digital regulations and came forward with one of the original reports on this. The dynamic and impetus which drove us to worry about this was the lack of ethics within the tech companies and social media. Why on earth would we want to unleash some of the most powerful companies in the world on reusing people’s data for scientific purposes if we were not going to have an ethical threshold involved in such an Act? It is important that we consider that extremely seriously.

[Baroness Jones of Whitchurch (Lab)]

I am not quite sure about the groupings, either, but let us go with what we have. I thank noble Lords who have spoken, and the noble Viscount, Lord Camrose, for his amendments. I hope I am able to provide some reassurance for him on the points he raised.

As I said when considering the previous group, the Bill does not expand the definition of scientific research. The reasonableness test, along with clarifying the requirement for researchers to have a lawful basis, will significantly reduce the misuse of the existing definition. The amendment seeks to reduce the potential for misuse of the definition of scientific research by commercial companies using AI by requiring scientific researchers for a commercial company to submit their research to an ethics committee. As I said on the previous group, making it a mandatory requirement for all research may impede studies in areas that might have their own bespoke ethical procedures. This may well be the case in a whole range of different research areas, particularly in the university sector, and in sectors more widely. Some of this research may be very small to begin with but might grow in size. The idea that a small piece of start-up research has to be cleared for ethical research at an early stage is expecting too much and will put off a lot of the new innovations that might otherwise come forward.

Amendment 80 relates to Clause 71 and the reuse of personal data. This would put at risk valuable research that relies on data originally generated from diverse contexts, since the difference between the purposes may not always be compatible.

Turning to Amendment 67, I can reassure noble Lords that the concept of broad consent is not new. Clause 68 reproduces the text from the current UK GDPR recitals because the precise definition of scientific research may become clear only during later analysis of the data. Obtaining broad consent for an area of research from the outset allows scientists to focus on potentially life-saving research. Clause 68 has important limitations. It cannot be used if the researcher already knows the specific purpose—an important safeguard that should not be removed. It also includes a requirement to give the data subject the choice to consent to only part of the research processing, if possible. Most importantly, the data subject can revoke their consent at any point. I hope this reassures the noble Viscount, Lord Camrose, and he feels content to withdraw his amendment on this basis.

[Viscount Camrose (Con)]

I thank the noble Viscount, Lord Colville, and the noble Lord, Lord Clement-Jones, for their remarks and support, and the Minister for her helpful response. Just over 70% of scientific research in the UK is privately funded, 28% is taxpayer funded and around 1% comes through the charity sector. Perhaps the two most consequential scientific breakthroughs of the last five years, Covid vaccines and large language models, have come principally from private funding.

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[Lord Holmes of Richmond (Con)]

My Lords, I support these amendments in the names of the noble Lords, Lord Stevenson and Lord Clement-Jones. It is a pleasure to follow the second ex-Health Minister this afternoon. In many ways, the arguments are just the same for health data as they are for all data. It is just that, understandably, it is at the sharpest end of this debate. Probably the most important point for everybody to realise, although it is espoused so often, is that there is no such thing as NHS data. It is a collection of the data of every citizen in this country, and it matters. Public trust matters significantly for all data but for health data in particular, because it goes so close to our identity—our very being.

Yet we know how to do public trust in this country. We know how to engage and have had significant success in public engagement decades ago. What we could do now with human-led technology-supported public engagement could be on such a positive and transformational scale. But, so far, there has been so little on this front. Let us not talk of NHS data; let us always come back to the fundamental principle encapsulated in this group of amendments and across so many of our discussions on the Bill. Does the Minister agree that it is about not NHS data but our data—our decisions—and, through that, if we get it right, our human-led digital futures?

[Viscount Camrose (Con)]

Many thanks to all noble Lords who have proposed and supported these amendments. I will speak to just a few of them.

Amendment 70 looks to mitigate the lowering of the consent threshold for scientific research. As I have set out on previous groups, I too have concerns about that consent threshold. However, for me the issue is more with the definition of scientific research than with the consent threshold, so I am not yet confident that the amendment is the right way to achieve those desirable aims.

Amendment 71 would require that no NHS personal data can be made available for scientific research without the explicit consent of the patient. I thank the noble Lords, Lord Stevenson of Balmacara and Lord Clement-Jones, for raising this because it is such an important matter. While we will discuss this under other levels, as the noble Baroness, Lady Kidron, points out, it is such an important thing and we need to get it right.

I regret to advise my noble friend Lord Holmes that I was going to start my next sentence with the words “Our NHS data”, but I will not. The data previously referred to is a very significant and globally unique national asset, comprising many decades of population-wide, cradle-to-grave medical data. No equivalent at anything like the same scale or richness exists anywhere, which makes it incredibly valuable. I thank my noble friend Lord Kamall for stressing this point with, as ever, the help of Jimi Hendrix.

However, that data is valuable only to the extent that it can be safely exploited for research and development purposes. The data can collectively help us develop new medicines or improve the administration and productivity of the NHS, but we need to allow it to do so properly. I am concerned that this amendment, if enacted, would create too high an operational and administrative barrier to the safe exploitation of this data. I have no interest in compromising on the safety, but we have to find a more efficient and effective way of doing it.

Amendments 79, 81 and 131 all look to clarify that the definition of consent to be used is in line with the definition in Article 4.11 of the UK GDPR:

“‘consent’ of the data subject means any freely given, specific, informed and unambiguous indication of the data subject’s wishes by which he or she, by a statement or by a clear affirmative action, signifies agreement to the processing of personal data relating to him or her”.

This amendment would continue the use of a definition that is well understood. However, paragraph 3(a) of new Article 8A appears sufficient, in that the purpose for which a data subject consents is “specified, explicit and legitimate”.

Finally, with respect to Clause 77 stand part, I take the point and believe that we will be spending a lot of time on these matters going forward. But, on balance and for the time being, I feel that this clause needs to remain, as there must be clear rules on what information should be provided to data subjects. We should leave it in for now, although we will no doubt be looking to polish it considerably.

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[Lord Cameron of Lochiel (Con)]

My Lords, I want to ask the Minister and the noble Lord, Lord Clement-Jones, in very general terms for their views on retrospectivity. Do they believe that the changes to data protection law in the Bill are intended to be applied to data already held at this time or will the new regime apply only to personal data collected going forwards from this point? I ask that specifically of data pertaining to children, from whom sensitive data has already been collected. Will the forthcoming changes to data protection law apply to such data that controllers and processors already hold, or will it apply only to data held going forward?

[Viscount Camrose (Con)]

I thank in particular the noble Lord, Lord Clement-Jones, who has clearly had his Weetabix this morning. I will comment on some of the many amendments tabled.

On Amendments 73, 75, 76, 77, 83 and 90, I agree it is concerning that the Secretary of State can amend such important legislation via secondary legislation. However, these amendments are subject to the affirmative procedure and, therefore, to parliamentary scrutiny. Since the DPDI Bill proposed the same, I have not changed my views; I remain content that this is the right level of oversight and that these changes do not need to be made via primary legislation.

As for Amendment 74, preventing personal health data from being considered a legitimate interest seems wise. It is best to err on the side of caution when it comes to sharing personal health data.

Amendment 77 poses an interesting suggestion, allowing businesses affiliated by contract to be treated in the same way as large businesses that handle data from multiple companies in a group. This would certainly be beneficial for SMEs collaborating on a larger project. However, each such business may have different data protection structures and terms of use. Therefore, while this idea certainly has merit, I am a little concerned that it may benefit from some refining to ensure that the data flows between businesses in a way to which the data subject has consented.

On Amendment 78A and Schedule 4 standing part, there are many good, legitimate interest reasons why data must be quickly shared and processed, many of which are set out in Schedule 4: for example, national security, emergencies, crimes and safeguarding. This schedule should therefore be included in the Bill to set out the details on these important areas of legitimate interest processing. Amendment 84 feels rather like the central theme of all our deliberations thus far today, so I will listen with great interest, as ever, to the Minister’s response.

I have some concerns about Amendment 85, especially the use of the word “publicly”. The information that may be processed for the purposes of safeguarding vulnerable individuals is likely to be deeply sensitive and should not be publicly available. Following on from this point, I am curious to hear the Minister’s response to Amendment 86. It certainly seems logical that provisions should be in place so that individuals can regain control of their personal data should the reason for their vulnerability be resolved. As for the remaining stand part notices in this group, I do not feel that these schedules should be removed because they set out important detail on which we will come to rely.

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[Lord Stevenson of Balmacara (Lab)]

My Lords, I think we sometimes forget, because the results are often so spectacular, the hard work that has had to happen over the years to get us to where we are, particularly in relation to the Online Safety Act. It is well exemplified by the previous speaker. He put his finger on the right spot in saying that we all owe considerable respect for the work of the noble Baroness, Lady Kidron, and others. I helped a little along the way. It is extraordinary to feel that so much of this could be washed away if the Bill goes forward in its present form. I give notice that I intend to work with my colleagues on this issue because this Bill is in serious need of revision. These amendments are part of that and may need to be amplified in later stages.

I managed to sign only two of the amendments in this group. I am sorry that I did not sign the others, because they are also important. I apologise to the noble Lord, Lord Clement-Jones, for not spotting them early enough to be able to do so. I will speak to the ones I have signed, Amendments 88 and 135. I hope that the Minister will give us some hope that we will be able to see some movement on this.

The noble Lord, Lord Russell, mentioned the way in which the wording on page 113 seems not only to miss the point but to devalue the possibility of seeing protections for children well placed in the legislation. New Clause 120B(e), which talks of

“the fact that children may be less aware of the risks and consequences associated with processing of personal data and of their rights in relation to such processing”,

almost says it all for me. I do not understand how that could possibly have got through the process by which this came forward, but it seems to speak to a lack of communication between parts of government that I hoped this new Government, with their energy, would have been able to overcome. It speaks to the fact that we need to keep an eye on both sides of the equation: what is happening in the online safety world and how data that is under the control of others, not necessarily those same companies, will be processed in support or otherwise of those who might wish to behave in an improper or illegal way towards children.

At the very least, what is in these amendments needs to be brought into the Bill. In fact, other additions may need to be made. I shall certainly keep my eye on it.

[Viscount Camrose (Con)]

My Lords, I thank the noble Lord, Lord Clement-Jones, and the noble Baroness, Lady Kidron, for bringing forward amendments in what is a profoundly important group. For all that data is a cornerstone of innovation and development, as we have often argued in this Committee, we cannot lose sight of our responsibility to safeguard the rights and welfare of our children.

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of which they speak. I hope that they are willing to tackle the asymmetric and disempowering status quo for data subjects and will instead find a way to support these amendments, however drafted, to help communities make social and economic goods from their data.

[Viscount Camrose (Con)]

I start by speaking to two amendments tabled in my name.

Amendment 91 seeks to change

“the definition of request by data subjects to data controllers”

that can be declined or

“for which a fee can be charged from ‘manifestly unfounded or excessive’ to ‘vexatious or excessive’”.

I am sure that many of us will remember, without a great deal of fondness, our debates on these terms in the DPDI Bill. When we debated this issue at that time, it was, rather to my regret, often presented as a way to reduce protections and make it easier to decline or charge a fee for a subject access request. In fact, the purpose was to try to filter out cynical or time-wasting requests, such as attempts to bypass legal due process or to bombard organisations with vast quantities of essentially meaningless access requests. Such requests are not unfounded but they are harmful; by reducing them, we would give organisations more time and capacity to respond to well-founded requests. I realise that I am probably on a loser on this one but let me encourage noble Lords one last time to reconsider their objections and take a walk on the vexatious side.

Amendment 97 would ensure that

“AI companies who process data not directly obtained from data subjects are required to provide information to data subjects where possible. Without this amendment, data subjects may not know their data is being held”.

If a subject does not even know that their data is being held, they cannot enforce their data rights.

Amendment 99 follows on from that point, seeking to ensure that AI companies using large datasets cannot avoid providing information to data subjects on the basis that their datasets are too large. Again, if a subject does not know that their data is being held, they cannot enforce their rights. Therefore, it is really important that companies cannot avoid telling individuals about their personal data and the way in which it is being used because of sheer weight of information. These organisations are specialists in such processing of huge volumes of data, of course, so I struggle to accept that this would be too technically demanding for them.

Let me make just a few comments on other amendments tabled by noble Lords. Under Amendment 107, the Secretary of State would have

“to publish guidance within six months of the Act’s passing to clarify what constitutes ‘reasonable and proportionate’ in protection of personal data”.

I feel that this information should be published at the same time as this Bill comes into effect. It serves no purpose to have six months of uncertainty.

I do not believe that Amendment 125 is necessary. The degree to which the Government wish to align—or not—with the EU is surely a matter for the Government and their priorities.

Finally, I was struck by the interesting point that the noble and learned Lord, Lord Thomas, made when he deplored the Bill’s incomprehensibility. I have extremely high levels of personal sympathy with that view. To me, the Bill is the source code. There is a challenge in making it comprehensible and communicating it in a much more accessible way once it goes live. Perhaps the Minister can give some thought to how that implementation phase could include strong elements of communication. While that does not make the Bill any easier to understand for us, it might help the public at large.

[Lord Clement-Jones (LD)]

My Lords, the problem is that I have a 10-minute speech and there are five minutes left before Hansard leaves us, so is it sensible to draw stumps at this point? I have not counted how many amendments I have, but I also wish to speak to the amendment by the noble and learned Lord, Lord Thomas. I would have thought it sensible to break at this point.