Data (Use and Access) Bill [HL]

Lord Cameron of Lochiel Excerpts

Committee stage
Tuesday 10th December 2024 Grand Committee

[Lord Kamall (Con)]

My Lords, I support Amendment 74 from the noble Lords, Lord Scriven and Lord Clement-Jones, on excluding personal health data from being a recognised legitimate interest. I also support Amendment 78 on having a statement by the Secretary of State to recognise that legitimate interest and Amendments 83 and 90, which would remove powers from the Secretary of State to override primary legislation to modify data protection via an SI. There is not much to add to what I said on the previous group, so I will not repeat all the arguments made then. In simple terms, I repeat the necessity for trust—in health, particularly for patient trust. You do not gain trust simply by defining personal health data as a legitimate interest or by overriding primary legislation on the say-so of a Secretary of State, even if it is laid as a statutory instrument.

[Lord Cameron of Lochiel (Con)]

My Lords, I want to ask the Minister and the noble Lord, Lord Clement-Jones, in very general terms for their views on retrospectivity. Do they believe that the changes to data protection law in the Bill are intended to be applied to data already held at this time or will the new regime apply only to personal data collected going forwards from this point? I ask that specifically of data pertaining to children, from whom sensitive data has already been collected. Will the forthcoming changes to data protection law apply to such data that controllers and processors already hold, or will it apply only to data held going forward?

[Viscount Camrose (Con)]

I thank in particular the noble Lord, Lord Clement-Jones, who has clearly had his Weetabix this morning. I will comment on some of the many amendments tabled.

On Amendments 73, 75, 76, 77, 83 and 90, I agree it is concerning that the Secretary of State can amend such important legislation via secondary legislation. However, these amendments are subject to the affirmative procedure and, therefore, to parliamentary scrutiny. Since the DPDI Bill proposed the same, I have not changed my views; I remain content that this is the right level of oversight and that these changes do not need to be made via primary legislation.

As for Amendment 74, preventing personal health data from being considered a legitimate interest seems wise. It is best to err on the side of caution when it comes to sharing personal health data.

Amendment 77 poses an interesting suggestion, allowing businesses affiliated by contract to be treated in the same way as large businesses that handle data from multiple companies in a group. This would certainly be beneficial for SMEs collaborating on a larger project. However, each such business may have different data protection structures and terms of use. Therefore, while this idea certainly has merit, I am a little concerned that it may benefit from some refining to ensure that the data flows between businesses in a way to which the data subject has consented.

On Amendment 78A and Schedule 4 standing part, there are many good, legitimate interest reasons why data must be quickly shared and processed, many of which are set out in Schedule 4: for example, national security, emergencies, crimes and safeguarding. This schedule should therefore be included in the Bill to set out the details on these important areas of legitimate interest processing. Amendment 84 feels rather like the central theme of all our deliberations thus far today, so I will listen with great interest, as ever, to the Minister’s response.

I have some concerns about Amendment 85, especially the use of the word “publicly”. The information that may be processed for the purposes of safeguarding vulnerable individuals is likely to be deeply sensitive and should not be publicly available. Following on from this point, I am curious to hear the Minister’s response to Amendment 86. It certainly seems logical that provisions should be in place so that individuals can regain control of their personal data should the reason for their vulnerability be resolved. As for the remaining stand part notices in this group, I do not feel that these schedules should be removed because they set out important detail on which we will come to rely.