(2 years, 5 months ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
It is an honour to serve under your chairmanship, Sir Gary. I thank my hon. Friend the Member for Bootle (Peter Dowd) for securing this important debate. He gave a detailed opening speech, so I will aim not to repeat the points that he has made.
I thank all pharmacists, pharmacy technicians and assistants for their hard work and dedication, and for their contribution to delivering first-class patient care in the community. As right hon. and hon. Members have said, community pharmacists are not just an integral part of our healthcare system; they are at the heart of our communities. After all, 1.6 million people visit around 11,400 pharmacies in England every day.
I would like to take the time to make two brief points on the future of community pharmacists. Before being elected as the Member of Parliament for Coventry North West, I worked in the NHS as a full-time cancer pharmacist, and I still regularly volunteer locally at University Hospitals Coventry and Warwickshire as a pharmacist in cancer care. In my role, I have seen and experienced at first hand the vital role that pharmacists play in their communities.
Community pharmacists can dispense medication, deliver vaccinations, write prescriptions and consult on medication, to name just a few responsibilities. Above all, they are dependable and dedicated individuals who are excellent at providing medical knowledge and support for the communities that they work in. It is therefore deeply frustrating to hear about the steady erosion in the availability of community pharmacies.
Data from the Pharmaceutical Services Negotiating Committee, which will be providing constituency-based information at a drop-in event in Parliament on Tuesday 5 July, paints a very grim picture. Since 2016, 639 pharmacies have closed across England, and nine of them were lost in my city of Coventry. All the while, communities have needed quick medical support more than ever. We have heard in today’s Opposition day debate, and time and again from our constituents, about the crippling difficulties facing GP services.
The Government claim that they are doing all they can about the rising crisis in accessing GP appointments. However, that cannot be the case, as they have been ignoring the roles that community pharmacists can play in combatting this escalating crisis. Those were evident throughout the covid-19 pandemic, when pharmacists played a substantial role in the vaccine roll-out and in providing advice and support to patients during the three lockdowns. The pharmacy sector boasts a highly trained and clinically skilled workforce, who, according to the PSNC, could free up up to 40 million GP appointments each year. The Government need to make full use of that potential. Ministers should take another look at the role that pharmacists can play in supporting our GP services, rather than simply allowing pharmacies across the country to close for good. Smarter thinking here has the potential to make a massive difference; it could help to reduce waiting times, clear backlogs in the NHS and improve the availability of GPs. It would certainly make a big difference in my constituency of Coventry North West.
My second point, which has been raised briefly, is that we must put in place stronger protections for pharmacists in the workplace. Community pharmacists have reported that they do not feel safe in their workplace because of increasing levels of violence and abuse. A survey conducted by the Pharmacists’ Defence Association demonstrated the scale of the problem, with only two in 10 pharmacists reporting that they feel safe all the time at work. A follow-up survey in April showed that 44% of responding pharmacists have experienced physical or violent abuse in the past month, and that 85% have experienced verbal or racial abuse in the past month. That is disgraceful. Nobody should face that level of abuse in their place of work. Pharmacists and pharmacy teams need to feel safe. The Government must do all they can to ensure that adequate risk assessments and preventative safety measures are put in place, as well as taking a zero-tolerance approach when incidents occur.
I hope that the Minister takes into consideration the points I have raised today. The maintenance of community pharmacies and the wellbeing of pharmacists and their staff must be top priorities for this Government. Pharmacists play a crucial role in keeping their communities healthy, and the Government must do everything they can to ensure that they are protected and supported. I therefore hope that the Minister will look at how to better utilise community pharmacists to address the wider problems facing the NHS, and take immediate steps to protect pharmacists who are facing unacceptable abuse in the workplace.
(2 years, 5 months ago)
Commons ChamberIt goes without saying that GP surgeries play an essential role in our communities and in our NHS. They are often the first port of call for anyone in need of medical help, and it is the hard work of GPs that ensures we can all obtain advice, medicine and referral to other services. However, like much of the NHS, GP surgeries are overstretched, under-resourced and understaffed, due to more than a decade of Tory mismanagement.
Frustratingly, my constituents in Coventry North West are suffering the consequences of that. Constituents contact me every week, telling me about the difficulties they face in trying to access their GP. Like so many of the GP surgeries discussed today, surgeries in my constituency are made up of dedicated health and administrative staff who have been stretched often to breaking point and simply do not have the capacity, resources or staff they need to serve their patients.
I will focus on one example—a constituent who reached out to me about their 2-year-old daughter. Their daughter is non-verbal, has recently been having nosebleeds and is exhibiting symptoms of head trauma. Each day, my constituent wakes up and joins a queue to try to access a GP appointment. Even though they are often on the phone for hours, they are still not able to book an appointment. In fact, they have not been able to speak to anybody at all at the surgery. My constituent is understandably concerned for their child’s health and, like many others, is desperate to see their GP.
The difficulties facing our GP services are having a knock-on impact on the rest of the NHS. Patients unable to see their GP are more likely to request an ambulance or visit A&E. In the west midlands, we have seen ambulance waiting times skyrocket to more than 8 hours for some people. Another constituent raised a case where the patient had to wait more than two hours for an ambulance to arrive, even though they were experiencing a heart attack. If the Government do not get to grips with the scale of this problem, the entire NHS will have to pay the price.
Before being elected as the Member of Parliament, I worked in the NHS as a full-time cancer pharmacist, and I still regularly volunteer as a pharmacist at my local hospital, Coventry University Hospital in Warwickshire. That has provided me with first-hand experience of the dedication and hard work of everyone who works in our fantastic NHS.
It is important that the Government finally deliver a plan that lives up to the dedication of NHS staff, providing GPs and others with the resources they need to do their job. That is what our GPs deserve and it is what my constituents in Coventry are desperately asking for.
(2 years, 7 months ago)
Commons ChamberThank you, Mr Deputy Speaker. I would like to start by thanking the hon. Member for Gosport (Dame Caroline Dinenage) and the Backbench Business Committee for bringing forward this important debate. I am so grateful to contribute following so many powerful and moving speeches today.
As a trained cancer pharmacist, I am only too aware of the issues associated with childhood cancer, which is why I want to use my time here to raise awareness concerning a key issue that specifically affects childhood cancer outcomes. Outside infancy, cancer remains the most common cause of death in children and the most common disease-related cause of death in teenagers, yet less than 4% of all cancer research funding is spent on cancer that primarily affects children. Childhood cancer research has been underfunded and neglected for decades in comparison with investment in researching cancers that affect adults. That unacceptable inequality of resources has fatal consequences for children in the United Kingdom.
This was the case for Ben Crowther, a seven-year-old boy from my constituency of Coventry North West, who tragically died in 2019 due to the aggressive form of childhood cancer called rhabdomyosarcoma. Though RMS can occur at any age, it most often affects children, as we have heard from many Members in the House, and therein lies the crucial distinction. Ben’s type of cancer most often affects children, yet research into that type of cancer has largely plateaued in recent years. Ben was treated with the best medicine available to him at the time. However, much of the treatment was decades old, and Ben’s doctor could not recommend that he join any clinical trials to give him a better chance of survival because there were simply no ongoing clinical trials for that form of cancer that he could join.
My hon. Friend is making an extremely powerful speech in memory of her constituent Ben. One of my constituents died at the age of only five years old from a brain tumour, and tragically he is far from alone. While 80% of children survive childhood cancer as a whole—still far too low—80% of children with brain tumours die within five years of diagnosis. It is the biggest cancer killer of those under the age of 40, yet brain tumours receive less than 1% of the national spend on cancer research. Does she agree that funding must be increased in order to improve outcomes for children and adults with brain tumours?
I agree. My hon. Friend makes an important point. We need more funding for cancer research across all cancers.
His medical team did everything they could to save Ben but, in the end, decades of circumstantial neglect of RMS patients failed him. With Ben in mind, I just wish to make two brief points today. The first is that this Government must do better to encourage research into cancers that primarily affect children, not just adults. Parent-led charities and special named funds such as Pass the Smile are fundraising at grassroots level, but it is not right that the burden of raising funds should fall on the shoulders of bereaved parents. Secondly, we must treat the issue of childhood cancer outcomes with more urgency. We regularly call childhood cancers “rare”, but we must not lose sight of the fact that cancer is the disease that most commonly kills children.
Finally, I wish to thank Ben’s parents, Sarah and Scott, for allowing me to share Ben’s story, for their bravery and, above all, for their desire to ensure that no other family goes through what they have been through. I hope that the Government will listen to the stories that Members have shared today, and take the necessary steps to encourage greater awareness and improve research into cancers affecting children.
Thank you. There is now a three-minute time limit.
(2 years, 7 months ago)
Commons ChamberI thank my right hon. Friend for the way in which he has worked with the Department and with my predecessor in representing his constituents throughout this investigation. He referred to “so-called normal birth” in his question, and he was right to do so: the only normal birth is a safe birth, which is what the NHS should be working towards, but that did not happen in this trust. The report has made that absolutely clear. Just as important are its recommendations, including some for my right hon. Friend’s local NHS trust. I can reassure him—partly as a result of my conversation earlier today with the current chief executive—that all the recommendations in the interim report have been implemented by his local trust, and all those in this report have been accepted.
Let me start by paying tribute to all the families affected, and thanking Donna Ockenden and her team for their recommendations.
More midwives are leaving the profession than are joining it. We cannot run equally safe services in all NHS trusts without appropriate staffing levels. I therefore hope that the Secretary of State will be able to give further details of what the Government are doing to ensure that there are safe staffing levels in all trusts to provide care for pregnant women.
The hon. Lady is right to talk about the importance of having the right workforce, and certainly more midwives. I can tell her than last year there were 30,185 acceptances for nursing and midwifery courses, the highest number in a decade. Recruitment is being supported by some of the extra funding that I have talked about today. The Government have established grants enabling students to take courses, and, where appropriate, are also focusing on international recruitment.
(2 years, 10 months ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
It is a pleasure to serve under your chairmanship, Mr Twigg. I congratulate my hon. Friend the Member for Bootle (Peter Dowd) on his excellent speech and on securing this important debate. As we know, the Office for Health Improvement and Disparities was officially launched in October as part of a wider Government restructuring of public health bodies in England. Back in September, the Health Secretary announced his vision for what the OHID would prioritise. He listed three goals: preventing poor mental and physical health; addressing health inequalities and improving access to health services; and working with partners within and outside of Government to respond to wider health determinates.
It is welcome that the Government have set out to alleviate health inequality. However, in order to truly tackle the disparities in health outcomes, the Government must change course and more closely consider the health outcomes for illnesses associated with stigma, misunderstanding or insufficient public awareness. I am speaking specifically about those living with HIV in this country. Despite accounting for less than 2% of the British population, people of black African heritage accounted for 13% of new HIV diagnoses among heterosexuals in 2020, and 64% of these diagnoses were of women. People of black African heritage are also significantly impacted by late HIV diagnosis, which is particularly frustrating, considering that those who are diagnosed late are much more likely to die from the disease.
I am increasingly concerned by the state of HIV testing in this country, given that the proportion of people who are eligible for a test but are not offered one more than doubled in 2020. That is completely unacceptable, and it is a systemic problem that falls under the remit of the OHID. I want to use this debate to urge the OHID to monitor the provision of commissioned services for people who are disproportionately likely to be diagnosed with HIV, and to consider how they could be improved. In particular, I want it to look closely at the availability of testing, both at home and in A&E departments, especially in areas of high HIV prevalence, and to consider the extent to which that might be acting as a barrier to achieving its aim of ending HIV transmission by 2030.
If the Government truly want the OHID to tackle health inequalities, then its work needs to have a laser-like focus on improving health outcomes for those living with stigmatised illnesses, such as HIV. It goes without saying that the Government cannot fulfil their pledge to end HIV transmission by 2030 without taking the measures that I have outlined today.
(2 years, 10 months ago)
Commons ChamberThank you, Mr Deputy Speaker; I will be very brief. I thank the hon. Member for Stroud (Siobhan Baillie) for securing this important debate and wish her well with her pregnancy.
We in Parliament have been talking about the issues that midwives face and their working conditions for quite a while now, and they were discussed just last year in a Health and Social Care Committee report on maternity health. As a member of that Committee, I have two simple points to make.
The first is about NHS staff shortages, which have affected many midwives in this country and which our Committee has been looking at for a while. Our report last year clearly shows the severe staff and resource shortages that have affected the NHS and midwives specifically. According to the Royal College of Midwives, just 4,773 midwives have joined the register since 2019. The number of midwives working for the NHS in England has actually reduced: the full-time equivalent numbers have gone down by 125. The demand for midwives has not decreased, and nor has the supply of registered midwives, but the number of midwives in the NHS has done so. As many hon. Members have said, it is important that the Government do more to ensure that fully certified midwives get the much-needed jobs and fill up the spaces in the NHS.
I will move on to my second point, because I am aware of time. As a result of the lack of resources and staff, midwives are suffering under terrible working conditions. Midwives across the country have stated that they are not getting loo breaks, that they do not have time to eat lunch and that they are working on minimal sleep. That is really concerning, particularly because it can affect patient care. It is common sense that mothers and their babies in my constituency of Coventry North West will suffer if midwives are being overworked and under-resourced. It is vital that the Government do as much as possible to ensure that midwives are not placed in that situation or in impossible working conditions. It is time that we fixed these burdensome circumstances and that the Government provided resources for midwives.
Finally, I thank all the wonderful, hard-working midwives at Coventry and Warwickshire Partnership NHS Trust for all the work that they do despite the current working conditions.
(2 years, 10 months ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
That is of course correct. Phone calls are important in triaging and assessing the extent to which a face-to-face meeting with a doctor is appropriate, but it is essential that those who need face-to-face appointments are given them.
We are seeing some progress, and this has been delivered at the same time as millions of booster jabs. I give credit to GPs, NHS England and Ministers for that recovery in general practice, but it remains the case that many of us will have heard from constituents about problems in getting in to see their GP. I thank the 19,302 people who signed the online petition on Parliament’s website expressing concern about this.
The right hon. Lady makes a really important point about constituents trying to get in contact with GP surgeries. I have the same issue with one of my constituents who tried to get in contact with her surgery and had to call every day for three weeks in order to get an appointment. By the time she did get an appointment, she experienced delays in accessing the treatment she needed. Does the right hon. Lady agree that further action is desperately needed to ensure that we have a plan in place to address staff shortages and resource shortages across our NHS and across our GP surgeries so that our GPs can continue to provide the healthcare that is needed?
I agree that we need more general practice capacity and I will come on to explain how we could do that.
There can be no doubt that GP surgeries are under immense pressure. The Royal College of General Practitioners says that the workload has never been greater. A GP in my constituency told me that as well as colleagues leaving the profession, it has become increasingly difficult to recruit new doctors. He said:
“Those of us left behind feel that we are holding up a broken system.”
In GP surgeries, as is the case across the NHS, demand has spiralled partly because, as we grow older as a population, we have greater healthcare need, partly because of pent-up demand from people who felt reluctant to seek help during the pandemic, but also partly because the decision by NHS leaders to push a range of treatments out from secondary to primary care has left GPs dealing with more serious and complex cases than in the past. As a result, one High Barnet GP told me that primary care was in a precarious position even before the pandemic. Of course, delays in accessing GP appointments have been an issue for some years in many areas, including my Chipping Barnet constituency. My concern has been intensified by the predatory demands of developers seeking to build blocks of flats in multiple locations in my constituency. The Mayor of London wants to see over 23,500 new homes built in Barnet over 10 years. That is a massive increase in population, yet GPs are struggling to serve the population we already have.
We have seen the number of doctors in hospitals increase to record levels—and that is a great achievement—but the same cannot yet be said of GPs. I have been campaigning to expand GP capacity in Barnet as part of the Government’s wider commitment to boost primary care. I very much welcome the £250 million announced in October to tackle immediate pressures on the system. This promised new cloud-based phone systems, a reduction in routine paperwork such as sick notes and Driver and Vehicle Licensing Agency checks, and additional staff to support GPs. Well, I think we probably all know that better phone systems are urgently needed in many practices, but the need to reduce unnecessary bureaucracy is also pretty obvious.
(3 years ago)
Commons ChamberI rise to speak in support of new clause 12, which stands in my name and those of many hon. Members across this House, on the protection of the title of “nurse”. The Government’s response to Alison Leary’s petition implies that we are on the same page on the issue of protecting the title. As the Minister said, this is not a party political thing; it is about the safety and protection of patients and the public. I hope that the Government will vote in favour of new clause 12 today, as it is long overdue and brings nurses into line with paramedics and physiotherapists in terms of the protection of titles.
It is shocking that anybody can call themselves a nurse, whether or not they have any qualifications or a first aid certificate—they may have no qualifications at all and they can call themselves a nurse. As we know, when someone calls themselves a nurse, that gives them a certain standing in society and people automatically think they know what they are doing. The nursing profession has some harrowing stories of parents taking advice from somebody who called themselves a nurse but was not one, and the tragic and devastating consequences. It is really important that we have the opportunity to put this right today—in fact it would be dangerous not to do so. Throughout the pandemic, people have been struck off as nurses, yet they are still using the title of “nurse” as they publicly deliver misleading and dangerous information about the pandemic. The public and patients have the right to know that the treatment and advice they receive is from a registered healthcare professional.
Many other countries protect the title of “nurse”. The protection of the title is supported by more than 70 nursing organisations, including the Queen’s Nursing Institute, the Institute of Health Visiting, charities, those representing the public using health and social care, Unison Health, Unite and the Royal College of Nursing and its Professional Nursing Committee.
I would like to put on record my support for nurses, particularly on Nursing Support Workers’ Day. Does my hon. Friend agree that the priority that nurses are asking for and that NHS staff are looking for is not restructuring, but investment in resources, a plan to address the staff shortages and retention struggles that the NHS has, and a clear strategy to address the winter waiting times and demands on services such as operations and GP services?
My hon. Friend makes a valid and valuable point. One way we can show our appreciation for nurses’ work is to protect their title, but we should not do that instead of addressing any of the issues she mentioned, along with ensuring that they receive a pay rise.
I thank the people who have petitioned for the change in my new clause for a number of years, including the former Secretary of State, the right hon. Member for South West Surrey (Jeremy Hunt), who is no longer in his place but supports my new clause; the Labour Front-Bench team; Ann Keen; the chief nursing officer for England, Ruth May; Professor Mark Radford, the chief nurse at Health Education England; the previous chief nursing officer for Northern Ireland, Charlotte McArdle; Andrea Sutcliffe, Matthew McClelland and the Nursing and Midwifery Council; Mr Paul Trevatt; Professor June Girvin; Dr Crystal Oldman; Ms Shamim Donatta Ayiecho; Ms Leanne Patrick; Mr Gerry Bolger; Ms Catherine Eden; and the Florence Nightingale Foundation leadership scholars. The Government know that there is a lot of support for new clause 12 and I hope it passes today.
(3 years ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
I beg to move,
That this House has considered e-petition 328570, relating to research into endometriosis and polycystic ovary syndrome.
It is a pleasure to serve under your chairmanship, Mr Mundell. Before I begin, I would like to take a moment to remember and pay tribute to our friend and colleague, Sir David Amess. Among the many worthy campaigns he fought for, Sir David was a vocal champion of women suffering from endometriosis. He launched the all-party parliamentary group on endometriosis in 2018, and he chaired it with the intention of raising awareness of the condition and the need to investigate how those who suffer from endometriosis can get support. I am certain that Sir David, ever the advocate, would have spoken in this debate. By continuing to speak out on this issue, we honour his memory.
For convenience, I will read the petition into Hansard:
“Endometriosis and PCOS are two gynaecological conditions which both affect 10% of women worldwide, but both are, in terms of research and funding, incredibly under prioritised. This petition is calling for more funding, to enable for new, extensive and thorough research into female health issues.”
The petition was open for six months and gained over 100,000 signatures, 200 of which were from my own wonderful constituency of Coventry North West. This is not the first time we have had a debate on endometriosis, nor is it the first time that polycystic ovary syndrome, or PCOS, has been brought up in Parliament. The Government’s lack of action in response to previous debates has compelled over 100,000 people to bring the lack of funding for research into these diseases to our attention.
The opening speaker in a debate does not have to speak in favour of or in opposition to a petition. They can choose to outline arguments dispassionately and open up the debate. I will not be doing that. I want to throw my full support behind this important issue. As a healthcare professional in the NHS myself, who has worked with endometriosis and PCOS patients, it is heartbreaking that we still need to plead for research money for two diseases that affect one in 10 women in the United Kingdom. That is over 3 million women.
To advocate for the petition, I will first try to clear up some crucial misconceptions about both diseases. I will also outline the specific actions that the Government must take to support women who suffer from them. Before I do that, I want to briefly explain what endometriosis and PCOS are. PCOS is the most common endocrine disorder in women, affecting one in 10, although it disproportionately impacts black and south Asian women. It is characterised by abnormal hormone production in the ovaries and can, in many but not all cases, cause women to develop cysts. Endometriosis is a condition where cells similar to those in the lining of the uterus are found elsewhere in the body. It affects one in 10 women, although, again, it disproportionately impacts black and south Asian women. Medical jargon aside, both diseases can affect women’s reproductive organs and can, if severe enough, cause fertility issues as one of many side effects.
However, after spending the last few weeks speaking with women suffering from one or both diseases, it has become clear that one of the greatest misconceptions surrounding endometriosis and PCOS is that they are often considered only to be fertility diseases. Thinking of the diseases primarily as barriers to pregnancy or simply as making women’s periods more painful is a gross oversimplification and is, in many cases, totally inaccurate. Both diseases vary widely in severity and in the way they manifest. For example, 12% of endometriosis cases target women’s lungs. Both conditions cause symptoms other than chronic pain. PCOS can cause obesity, excess facial hair and chronic acne—deeply stigmatising symptoms that can shatter a young woman’s confidence and have a debilitating effect on her mental health.
Does the hon. Lady agree that this medical gaslighting is arguably the biggest issue? Patients go to their GP—the medical practitioner they trust the most—and are told it is just a bad period. That is what we really need to change. Funding is a separate argument. That is the main problem we need to overcome before we can truly tackle the issues.
I thank the hon. Gentleman for making an important point, but I think what that highlights is the need to ensure that endometriosis and PCOS are included on the medical curriculum for GPs and healthcare professionals. That is why funding is so important: to make that difference.
I rise to support the petition as well. My constituents have also written heartfelt letters about their experiences; it took one constituent 11 years to receive a diagnosis. Is not the crux of the issue that we need a diagnostic framework to get on top of the conditions quickly so that they do not reach the severity that many women experience?
I thank my hon. Friend for making that important point. I agree, and I will come on to that issue in my speech.
To add insult to injury, funding for symptoms such as excess facial hair and chronic acne has decreased over the years. Endometriosis can cause chronic bowel and bladder-related symptoms and depression, yet I have heard from countless women that, after finally being diagnosed with endometriosis or PCOS, they are told by their GP to come back when they want to get pregnant and are then sent on their way, without targeted treatments.
It is extraordinary to think that there are the same number of women in the UK who have endometriosis as there are people diagnosed with type 2 diabetes. Nobody would suggest that a person suffering from diabetes come back when they decide to get married, so that they can manage swelling in their fingers before buying a wedding ring—that would be absurd. One in 10 people in the UK suffers from asthma, yet it would be completely unthinkable to tell someone with asthma to come back when they decide they want to run a marathon. Endometriosis and PCOS are about so much more than having difficulty conceiving.
Both endometriosis and PCOS can have a massive impact on mental health for a variety of reasons, whether related to pain or fertility. Mental health services have been chronically underfunded for years. Does the hon. Lady agree that the psychological symptoms of the conditions should be prioritised as much as the physical ones?
I thank the hon. Lady for raising an important point. We absolutely need funding for holistic care for both endometriosis and PCOS, especially for mental health support.
The hon. Lady is articulating the case extremely well. Does she share my opinion that one reason the conditions are looked at only from the perspective of their impact on fertility is that the medical establishment too often views women’s biology purely from the perspective of incubating babies, and does not think enough about the impact on general wellbeing?
I thank the hon. Member for raising such an important point, which I will come to later. I know from speaking to many healthcare professionals that some are passionate about endometriosis and PCOS but would like more funding and support, so that their colleagues and all within the medical profession get the necessary medical education in their curriculum.
Endometriosis and PCOS are about so much more than having difficulty conceiving, but funding decisions made by Whitehall treat them as though they are not. That is why it is so upsetting, but unsurprising, that the Government response to the petition discussed funding for fertility treatments. In fact, when most young women start to see symptoms at puberty, pregnancy is the furthest thing from their mind.
With that in mind, I will talk about a constituent of mine, a 14-year-old girl who was ostracised and relentlessly bullied by her peers for her excessive facial hair and acne and for weight-related reasons. She experienced such debilitating pain in her lungs and lower abdomen that she was hospitalised during a GCSE exam. After five years of calling hospitals, three painful exploratory surgeries, countless GP appointments and several specialist referrals, she was finally diagnosed with endometriosis and PCOS. The only treatment her GP could offer her was generic birth control pills, which no evidence-based studies confirm as definitive treatment for either disease.
The hon. Lady makes an excellent point. I have experience of young women being given contraceptive pills to deal with what the GP regards as period pain, only to then suffer mental health impacts because of the contraceptive pill. They then find themselves in the difficult position of having to choose between what the GP thinks is a treatment for period pain and the impact of the contraceptive pill on their mental health. Does she agree that that is simply unacceptable?
I thank the hon. Member for raising that important point. I agree that it is simply unacceptable.
Before my constituent left, the GP told her to come back when she wanted to get pregnant, leaving her to figure out how to cope on her own in the meantime. Her story of feeling shamed by her peers and gaslit when trying to get a diagnosis is not unique, as many Members have raised. On average, it takes eight years to diagnose a woman with endometriosis, and years to diagnose PCOS, which brings me to my next point.
The Government need to increase funding to study both conditions. We still do not know what causes endometriosis, effective ways of preventing it from spreading to other organs or effective non-surgical ways of managing symptoms. Some 58% of women with endometriosis had to visit a GP more than 10 times to get a diagnosis, while 21% had 10 or more hospital appointments and 53% went to A&E, with 27% going more than three times, before diagnosis. That is deeply distressing for the patient and a terrible use of NHS resources.
The hon. Lady makes an excellent case and I absolutely support everything she says. I was horrified to hear from a constituent, a qualified nurse, whom it took six years diagnose to diagnose. After two and a half years of daily bleeding and pain, she was finally offered laparoscopic surgery, but was then told by healthcare professionals that the only cure for her was to actually conceive and have a baby, while at the same time being told that she could have fertility problems. Does that not highlight that there needs to be a lot more awareness and education among GPs and healthcare professionals, and adherence to National Institute for Health and Care Excellence guidelines?
I thank the hon. Member for raising that important point, which absolutely highlights that need.
The Government urgently need to invest in research projects and create more streamlined diagnostic practice. That must start with better GP training, as hon. Members have highlighted, so that GPs no longer inadvertently gaslight or misdiagnose anyone with endometriosis or PCOS. It must extend to more accurate and less invasive screening technology to confirm the diagnosis. Once women are finally diagnosed, there is currently no targeted treatment for endometriosis—none at all. Similarly, there is no drug or treatment on the UK market that has evidence-based approval to treat PCOS. We need funding for this research, as well as facilities to carry it out.
There is only one dedicated PCOS clinic in the whole of the UK, and I am proud to say that the clinic is in my own city of Coventry. I visited the clinic recently and spoke with the head researcher, Professor Harpal Randeva, and their specialist nurse, Danielle Bate. They stressed the importance of treating PCOS as a disease in need of its own funding body. Currently, the limited funding for PCOS and endometriosis alike is attached to funding bundles for several other diseases, as is clear from the Government’s response to the petition. We should not be attaching research funding for these conditions as addendums to general funds for fertility diseases or other endocrine diseases. Endometriosis and PCOS impact millions of women in the UK. They are not afterthoughts, and we cannot continue to treat them as such in funding discourse. We should encourage funding charities to set up independent boards for PCOS and endometriosis.
Earlier this year, a Department of Health and Social Care consultation acknowledged the importance of improving research into women’s health. The strategy for that improvement is, according to the Government, now in development, and it would be great to hear from the Minister what progress is being made. I also ask the Minister whether the strategy will commit to establishing independent well-supported funding bodies for research into both endometriosis and PCOS, which are so desperately and deservingly needed.
I will end my remarks by thanking all the brave women suffering from endometriosis or PCOS who continue to fight for increased resources. Without their remarkable self-advocacy and will to advocate for each other, I am certain that we would not be here today. I hope the debate will provide an opportunity for the Government to listen and act.
As a lot of Members want to speak, I ask Members to stick to about three and a half minutes so that everybody who wants to speak gets the opportunity to do so. I call Emma Hardy, and then Jackie Doyle-Price.
I thank all hon. Members who have spoken so passionately in this important debate. I look forward to hearing from the Government about their strategy to make funding for endometriosis and PCOS more readily available, and about how their strategy to improve research on women’s health will establish well-supported and dedicated funding bodies for both endometriosis and PCOS research.
I will highlight some of the many important remarks made during the debate. My hon. Friend the Member for Kingston upon Hull West and Hessle (Emma Hardy) underlined the fact that we do not know what causes endometriosis and that we need dedicated funding to determine the cause of the condition. I completely agree with the hon. Member for Thurrock (Jackie Doyle-Price) on the crucial point about the need to destigmatise and demystify many of the symptoms associated with endometriosis and PCOS.
Finally, I thank my hon. Friends the Members for Streatham (Bell Ribeiro-Addy) and for Worsley and Eccles South (Barbara Keeley), as well as the hon. Member for East Renfrewshire (Kirsten Oswald), for their powerful stories, which illustrated better than statistics or figures ever could the need to support women who suffer from these conditions. Simply put, we need more funding for research into endometriosis and PCOS so that we can combat both. I thank every Member who participated in the debate.
Although I am sure that Mr Norris was correct in saying that Sir David would have been pleased with the terms of the debate, as the Minister said, I am sure that Sir David would also have been holding her feet to the fire afterwards.
Question put and agreed to.
Resolved,
That this House has considered e-petition 328570, relating to research into endometriosis and polycystic ovary syndrome.
(3 years, 4 months ago)
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It is a pleasure to serve under your chairmanship, Mr Pritchard, and to follow the hon. Member for Rutherglen and Hamilton West (Margaret Ferrier), who spoke with great passion about this crucial issue. Cervical cancer is something that all women fear. It is not only a deadly disease but one, like breast cancer, that strikes at the heart of how we view ourselves as women.
The petition that we are discussing on Fiona’s law received more than 146,000 signatures, with many from my constituents. That figure represents a groundswell of people who are concerned that not enough is being done to ensure detection of cervical cancer for women in the UK. We cannot ignore them. To detect cervical cancer early, we have developed highly accurate screening tests that enable women to know whether they have pre-cancerous cells, and if so, to receive the proper treatment. In fact, women will be tested for HPV before they get cervical screening, because 99.7% of all cervical cancers are caused by HPV. Simply put, thanks to our researchers and all the medical professionals across our NHS, tests for cervical cancer are more accurate than ever before.
There is much debate in this country about how early and how frequently women should be screened for cervical cancer, but women are only able to have their cancer detected if the screenings are successfully performed. Research on how often women access existing appointments should give us real cause for concern. We all know that the pandemic has had devastating effects on women’s ability to access life-saving cervical cancer screening. Jo’s Cervical Cancer Trust estimates that around 600,000 tests failed to go ahead in the UK in April and May 2020, and figures show that cancer screening for women in the 25-to-64 age group—the most vulnerable age group—decreased by nearly 7% from the previous year. These figures are completely unacceptable and show that the recent physical barriers to screening have a strong negative impact on women’s access to preventive services.
However, figures also show an equally strong mental impact. Unfortunately, this life-saving smear test remains a source of great anxiety to many. Earlier this year, it emerged that around one in four women eligible for smear tests do not take up the invitation. New research has found that, among those who do not go for their cervical cancer screening, 75% are scared at the thought of going and 81% are embarrassed to go.
The Government must do more to create public awareness about the test. They must normalise it, so that women do not feel embarrassed to seek this vital service, and bust other myths that induce anxiety about it. Perhaps most worryingly, Jo’s Cervical Cancer Trust has published a study that reveals that women from black, Asian and minority ethnic backgrounds are twice as likely to be strongly worried about contracting a virus at their cervical cancer screening as their white counterparts, and a third more likely to feel unsafe visiting a doctors’ surgery than white women.
It is vital that the Government look more closely into the cultural and mental barriers preventing black, Asian and minority ethnic women from accessing life-saving screening in much higher proportions. They must dedicate more resources to learning why women, especially those from minority backgrounds, are not taking up their testing appointments. That is crucial to achieving a reproductive health programme that is not only thriving but equal. I look forward to hearing from the Minister on the work that she is doing.