NHS Dentistry: South-west

Sarah Dyke Excerpts

Tuesday 12th November 2024 Westminster Hall

[Richard Foord (Honiton and Sidmouth) (LD)]

I beg to move,

That this House has considered NHS dentistry in the South West.

It is a pleasure to serve under your chairship, Mr Vickers. I am grateful to the Chairman of Ways and Means to have been granted a debate on NHS dentistry in the south-west of England, which has particular problems.

I know that the new Minister will have encountered enough problems with NHS dentistry as it is, but the south-west is a special case. To illustrate: if we were to go back to 2015, 51% of adults in the south-west could see a dentist. That was also the case across England at the time, with 51% of patients who wished to see an NHS dentist having access to one. By 2024, however, that figure has declined sharply. Now, the current average across England is 40%, and in the south-west it is just 34%.

[Sarah Dyke (Glastonbury and Somerton) (LD)]

I thank my hon. Friend for securing this important debate. In Somerset, the percentage of adults who have seen a dentist has dropped by 20% over the past decade. Does my hon. Friend agree with me that we should guarantee access to an NHS dentist for everyone needing urgent and emergency care?

[Richard Foord]

That is exactly what is needed for urgent and emergency care. My hon. Friend draws attention to Somerset; the situation is bleak in Devon too. In Devon in 2015, 55% of adults were able to see a dentist, but that has since dropped to just 37% today.

I have had so much correspondence from my constituents on this subject, and the decline, as I see it, is a direct result of 14 years of Conservative neglect of our health services and of NHS dentistry in particular. I find it really troubling that the situation is affecting people in some of the most vulnerable categories, such as older people and children,

Children in Devon are missing out on crucial dental check-ups. Once upon a time, they used to have check-ups twice a year; now, it is not possible for children to be registered for NHS dentistry in many dental practices. It is therefore no surprise that tooth decay is now the leading cause of hospital admissions for five to nine-year-olds in the country. I talked to one primary school and was told that pupils are going to hospital in Bristol to have their teeth removed—often between four and 10 teeth at a time. The number of NHS dentists in Devon has dropped from 549 to 497, so the reality is that NHS dentistry is simply no longer available for all.

NHS Dentistry: Rural Areas

Sarah Dyke Excerpts

Tuesday 5th November 2024 Commons Chamber

[Sarah Gibson]

I agree that dentistry has been failed over the past 14 years.

According to the House of Commons Library, 51,000 children have not seen a dentist in Wiltshire in the past year.

[Sarah Dyke (Glastonbury and Somerton) (LD)]

My constituent in Ilton is now in debt because they had to take their son, who is eligible for free NHS dentistry, to a private dentist, as they could not find an NHS dentist in the whole of Somerset. Sadly, that comes as no surprise, given that four in 10 children in Somerset have not been able to see a dentist this past year. Does my hon. Friend agree that dentists need to be encouraged back into the NHS by reforming the broken NHS dental contract?

[Sarah Gibson]

I do agree with my hon. Friend, and I will mention that point later in my speech. It is no surprise to me that children in her constituency are having similar problems to children in my constituency.

According to NHS England, only 33% of adults under the NHS Bath and North East Somerset, Swindon and Wiltshire integrated care board have seen a dentist in the past two years. According to a freedom of information request by the British Dental Association, my local ICB’s projected dentistry underspend equates to £4.6 million.

When Hathaway closed its door to NHS patients last Friday, this was a major blow to my constituents.

World Stroke Day

Sarah Dyke Excerpts

Tuesday 29th October 2024 Commons Chamber

[Sarah Dyke (Glastonbury and Somerton) (LD)]

I am grateful to have this opportunity to address the House on World Stroke Day. Stroke is the UK’s fourth biggest killer and the single largest cause of complex disability in the UK. On our current trajectory, the number of stroke survivors will increase by 60% over the next decade, which will swallow up nearly half the current NHS budget. By that time, one in three people in Glastonbury and Somerton will be 65 or older, so we will disproportionately feel the impact of the increase in strokes over the next decade.

[Jim Shannon (Strangford) (DUP)]

I congratulate the hon. Lady on securing this debate. She mentioned the age of 65, which is really important; in Northern Ireland, there are some 2,800 new strokes every year. While the majority of strokes affect people who are over the age of 65, they can strike at any age. Some 25% of people who have strokes are under the age of 65, so does the hon. Lady agree that we must get away from the notion that stroke awareness is only for older people, and that we must be very aware of the FAST signs—face, arms, speech and time—that can make the difference between death and recovery? It can happen to young people as well.

[Sarah Dyke]

The hon. Member makes a really important point. Although we often assume that it is older people who suffer with strokes, so many young people suffer in the same way.

Unless there are major improvements, Somerset’s poor ambulance response times and poor life-after-stroke care will mean that a disproportionate number of the 42,000 people who will die from stroke in 2035 will be from my constituency.

[Christine Jardine (Edinburgh West) (LD)]

Further to the point that the hon. Member for Strangford (Jim Shannon) made, although I fully accept that we have to do more in terms of stroke care, does my hon. Friend agree that the population of this country is generally unaware of the early warning signs of stroke to look for? When it actually happens, we recognise the symptoms, but we have no awareness of the long-term warning signs. We need to invest in teaching people what to look for and how to care for themselves to avoid a stroke.

[Sarah Dyke]

I thank my hon. Friend for making such an important point. I think we have progressed in our understanding of stroke awareness, but there is so much more yet to do.

Neither strokes nor the grim predictions I have made are inevitable. Stroke is preventable, it is treatable, and it is recoverable.

[Alan Gemmell (Central Ayrshire) (Lab)]

Will the hon. Lady allow me to place on record my thanks to the innovative team at the stroke unit in Crosshouse hospital, whose new treatment, thrombolysis, means that—as the hon. Lady said—there is a way for many people to recover following strokes? I would like to thank charge nurse Elizabeth, consultants Martin and Sundeep, and Julie and Debbie in the hospital management team for saving my former teacher, Christine Stewart, when she self-diagnosed with FAST.

[Sarah Dyke]

The hon. Member makes a very good point, and I also celebrate those people, who do such hard work within their communities.

The UK knows how to deliver world-class stroke care, and some parts of England are doing that as I speak. Stroke is one of the few conditions that takes patients through the entirety of the health and social care system, from emergency services and acute care to social care, specialist rehabilitation support and end-of-life care.

[Rachael Maskell (York Central) (Lab/Co-op)]

I am really grateful to the hon. Member for securing this debate. Time is everything with regards to a stroke, particularly around diagnosis, but also if treatment such as thrombectomy is needed. Does she agree that we should be looking at ambulance response times in particular, and perhaps at recategorising stroke as a category 1 call-out?

[Sarah Dyke]

I thank the hon. Member for her intervention and for all the work she has done in this area. I will come to the issue of ambulance response times a little later in my speech.

Delays in urgent care are currently leading to high mortality rates, and post-stroke services that provide crucial emotional, practical and social support are often treated as optional, rather than essential.

[Andrew Cooper (Mid Cheshire) (Lab)]

I thank the hon. Lady for securing this important debate. She rightly talks about the need for stroke patients to receive urgent medical treatment. Last month, I attended a thrombectomy awareness event at which my constituent, Mark Paterson, was speaking as a stroke survivor. Mark’s remarkable recovery was thanks to the emergency thrombectomy procedure he received. Sadly, many others are not so lucky, with too many people dying or suffering disability due to the previous Government’s postcode lottery in care. About this time last year, the Stroke Association said that about 9.8% of patients receive that treatment in London, compared with 0.4% in the east of England. Does the hon. Lady agree that we need to see an increase in the proportion of patients receiving thrombectomies across the country?

[Sarah Dyke]

I thank the hon. Member for the intervention. He makes a strong point.

Our health and social care services are likely failing the 14,159 registered stroke survivors in Somerset at some stage in the system, but there is reason to be optimistic. If the Government put stroke at the heart of our health and social care system, each and every part of the system will be stronger and deliver better outcomes for everyone—not just stroke survivors.

Leaving aside the human cost, there is also an economic cost, as strokes lead to an avoidable £1.6 billion annual loss of productivity. I recently spoke to Garry, who works in Somerset and had a stroke in his 30s. He told me that he could have been back to work after nine months if he had had access to life-after-stroke care. Instead, he spent five years recovering, during which time he had to rely on the benefits system. At the start of the debate, I said that stroke is preventable, treatable and recoverable. If that is true—I know that it is—why are people like Garry forced to waste years in the prime of their life learning how to recover from strokes themselves?

[Chris Bloore (Redditch) (Lab)]

The hon. Lady is making an important point. Our clinical profession does an incredible job of saving many people who suffer from a stroke, but the rehabilitation work that follows surviving a stroke—the ability to get back into work, build emotional confidence and rebuild relationships—is so important. As she was detailing, too many people who survive strokes have to wait for years to get on with their lives, including their work, friendships and relationships.

[Sarah Dyke]

I wholeheartedly agree, and that is exactly the point that I was making.

Research from the Stroke Association shows that the NHS faces £1,300 of additional pressure for each person like Garry who does not receive life-after-stroke care, due to avoidable secondary strokes and other health complications. It is an injustice for stroke survivors who are suffering longer than they need to, for the taxpayer who could be paying less, and for the friends and families who often have no choice but to become unpaid carers to support stroke survivors, as my mum did for my dad after he suffered a stroke.

Unpaid carers currently bear 62% of the cost of prevalent strokes, with the NHS and social care bearing only a distant 9% and 22% respectively. Unpaid carers do a remarkable, important and often invisible job, and the Government must ensure they have access to the support that they need, including paid carer’s leave and a statutory guarantee of regular respite breaks.

There are not many easy answers when it comes to stroke. Constituents across Glastonbury and Somerton have written to me almost every month since my re-election because they are concerned about the closure of Yeovil district hospital hyper-acute services. It is right that steps are being taken to address the fact that 60% of people who arrive at hospitals do not get into a stroke unit quickly enough, so services are being reconfigured to provide patients with cutting-edge care in Dorchester or Taunton.

By concentrating hyper-acute services, wards can process patients more quickly, which is so important when caring for patients suffering from a stroke. After critical care has been provided, patients will be moved back to services closer to their home, such as Yeovil, so that family and friends will be able to visit their loved ones there rather than in critical care further away. I can understand why people are scared of potentially having to travel further in an emergency when response times are so poor. In fact, with an average response time of 42 minutes and 50 seconds, people in Somerset wait longer for an ambulance than anywhere else in England. For every minute a stroke is left untreated, nearly 2 million brain cells die, so fast ambulance response times are necessary for getting stroke patients lifesaving, disability-reducing treatments in time.

This is especially important for those living in rural locations, such as Glastonbury and Somerton, who may need to travel further for treatment. Liberal Democrat analysis has revealed that waits for life-threatening calls are 45% longer in rural areas than in urban ones. The average handover time for a category 2 ambulance call in Somerset has risen to over an hour, despite the ongoing 18-minute target, which results in ambulance crew being able to see only two or three patients per shift. The Government could lower these ambulance response times by increasing the number of staffed hospital beds, and ensuring our social care system is resourced well enough to allow people to recover outside hospital. We know that a matter of minutes can make all the difference in emergencies, so it is heartbreaking that ambulance delays are worsening and stroke victims are being left for hours for help to arrive.

I am inspired by the stroke quality improvement for rehabilitation project, which has helped over half the stroke survivors who were previously being failed by services in Somerset. The pilot has ensured that survivors have access to personalised and face-to-face support to help them with behavioural changes and re-entering work. Despite its success in preventing secondary strokes, and thus saving the health and social care system a great deal of money, the pilot is unlikely to receive funding from April next year, and 250 patients in Somerset face the prospect of losing access to good-quality life-after-stroke support.

I am particularly worried about stroke survivors in Glastonbury and Somerton, and elsewhere in Somerset, who will instead have to rely on Yeovil district hospital if this happens, as Yeovil district hospital provides only the minimum level of occupational therapy, physiotherapy, and speech and language therapy a week to less than half as many patients as the national average. There is a future where we no longer need to have a World Stroke Day, and that is what I am looking for—a future without a World Stroke Day.

Innovations such as the use of artificial intelligence in diagnosis could revolutionise recovery prospects for stroke patients, and preventive programmes could limit the impact stroke has on working-age people. We saw stroke mortality halved in just 10 years when stroke was prioritised in 2000, so progress can be made. If we are to reach that future, though, we must start by ringfencing budgets to enable the NHS to adopt innovative digital tools, invest in new technologies and develop a digital strategy.

This Government have already begun to make some progress with the Darzi report, which showed that the NHS is on its knees after years of mismanagement by the Conservatives, but we must ensure that stroke remains a top priority in their health mission.

[Uma Kumaran (Stratford and Bow) (Lab)]

I would just like to share my experience. On my first day here in the Commons, my husband suffered a stroke. This is a timely debate, so I thank the hon. Member for securing it. I am pleased to say that my husband is doing much better now, and he is here in the Gallery of the Chamber, as are those from the Stroke Association, who have been absolutely invaluable to our family and many stroke survivors across the country.

I would like to pick up a point that the hon. Member made about stroke. One in four strokes happens to people of working age, and one in three in this group will have to give up their jobs. It is very clear that, although the NHS has given excellent care to my husband and to families such as mine, there is much more to be done. The Darzi report revealed the scale of the challenges that our health service faces, especially with stroke services, and the severe impact of the underfunding of the last Conservative Government.

[Sarah Dyke]

I thank the hon. Lady, and it is so good to hear that her husband is making such a full and quick recovery.

World Stroke Day is a pertinent reminder that stroke must be well represented in the new 10-year health plan and that the Government must engage with patients, carers, and health and social care professionals, so that their lived experiences can help inform policy decisions.

Access to Primary Healthcare

Sarah Dyke Excerpts

Wednesday 16th October 2024 Commons Chamber

[Sarah Dyke (Glastonbury and Somerton) (LD)]

We know that primary care has been struggling—struggling to meet targets, keep up with demand and help the population remain healthy. Those difficulties are particularly acute in rural areas such as Glastonbury and Somerton, where primary care faces specific issues such as recruitment, retention, and access to services. GPs serve a crucial and multifaceted role in healthcare, but they are all too often inaccessible in rural areas. Last year in Somerset, 21% of GP appointments took more than two weeks from booking to appointment—higher than the average wait in England —and 7% of appointments took well over a month.

GPs play a crucial role in serving people’s mental health, as well as their physical health. The Environment, Food and Rural Affairs Select Committee’s report on rural mental health concluded that NHS mental health services are not fairly accessible for rural communities. A one-size-fits-all approach does not fit everyone; appropriate services should be developed to serve rural communities. To help mend the mess left by the Conservatives, the Lib Dems want to give everyone the right to see a GP within seven days, or within 24 hours if urgent, with 8,000 more GPs to deliver on that commitment. Rural communities also suffer from poor access to public transport, which makes it more difficult to access services, and poor rural broadband, which makes it hard to access online services. It is clear that cross-departmental work is needed to address the challenges rural people face in accessing mental health support. Those hurdles must be factored into the national strategies that are focused on addressing mental health.

We must look at how pharmacists can ease the pressure on GP services, but they too need urgent support. Between April 2015 and June 2024, there was a net loss of 1,200 community pharmacies—1,402 closures and only 179 openings. The rate of pharmacy closures in Glastonbury and Somerton is, shockingly, near double the national average. Community pharmacies provide an essential high-street service in rural market towns, but many have now simply gone.

The Liberal Democrats believe that we need a clearer, more sustainable long-term funding model for pharmacies, and we must build on the Pharmacy First approach to give patients more accessible routine services and ease the pressure on our GPs.

The new Government have spoken out about our crumbling public services, but now is the time to act. My constituents cannot wait.

Oral Answers to Questions

Sarah Dyke Excerpts

Tuesday 23rd July 2024 Commons Chamber

[Stephen Kinnock]

I thank the right hon. Gentleman for his question, but he appears to be living in a parallel universe. We are in the midst of a mental health crisis as a result of 14 years of Tory chaos, neglect and failure. We have a plan, with 8,500 more mental health workers, young futures walk-in hubs, specialist mental health support for young people and mental health specialists dealing with talking therapies. Of course, we will also introduce legislation following the Gracious Speech to deal with helping people who have more severe conditions. That is a plan of action with which I hope we can once again make our country proud of how we deal with this extremely serious issue.

[Sarah Dyke (Glastonbury and Somerton) (LD)]

Mental health pressures in the farming community are rising, with the Farm Safety Foundation survey finding that 95% of farmers under 40 agree that poor mental health is the biggest hidden problem facing the industry. Will the Minister work with colleagues in the Department for Environment, Food and Rural Affairs to improve access to NHS mental health services in rural areas and support the continued roll-out of rural health hubs?

[Stephen Kinnock]

I thank the hon. Lady for raising that extremely important question. We are indeed looking at that issue through our 10-year plan for the future vision of our health service. Issues around isolation and the huge pressure on what are often family businesses are creating tremendous strains for that community. We take that seriously and will of course work with our colleagues in DEFRA to address it.

Health Services: Rural Areas

Sarah Dyke Excerpts

Wednesday 17th July 2024 Commons Chamber

[Jamie Stone]

The hon. Member makes his point with his customary charm. It is no wonder that he is so well liked in this place, because he always speaks for his constituents.

I have talked about the delays in vaccinations, which also applies to the lifesaving vaccinations that babies must have. The Scottish Government take a one-size-fits-all approach that, frankly, does not work in remote rural areas such as mine. The retention and recruitment of GPs and other healthcare workers is crucial, but poor wages and terms and conditions, and a lack of proper travel reimbursement, all lead to a general impression that the game is simply not worth the candle. That is why we are missing key workers and doctors, and why we are paying through the nose for locum and temporary staff. Madam Deputy Speaker, can you believe that NHS Highland has spent £21 million on locum staffing in the past year? That is almost 3% of its entire budget—an eye-watering sum. Could that money not have been spent much better, for example on care homes, hospitals or pain clinics that have been forced to close?

[Sarah Dyke (Glastonbury and Somerton) (LD)]

I apologise for coming a bit late to this debate. Primary care is asked to do more in rural areas than in urban settings, piling pressure on GPs, pharmacists and dentists, yet they struggle to recruit staff, as my hon. Friend said. A dental practice in Street, in my constituency, has been without an NHS dentist on its books for 18 months, despite its best efforts. Does my hon. Friend agree that we must explore ways in which we can incentivise healthcare professionals to practise in rural areas?

[Jamie Stone]

I absolutely endorse that. I am glad that I said in my opening remarks that my experience in a very remote part of Scotland applies to other parts of the United Kingdom. What we have just heard proves that this is the case.

NHS Scotland has halted all new builds and repairs to health centres across the entire country, which is another problem for healthcare. I have said already how big my constituency is. Just by commuting or doing house visits, healthcare staff will rack up 3,500 miles easily, because the distances are so great. At that point, their reimbursement per mile is more than halved, which does not encourage people to get involved. It is, in fact, discrimination against healthcare professionals who live in rural communities. Training is overwhelmingly based in urban areas, and there is very little incentive to get people to come and work in rural areas. Other factors, such as a lack of housing and job opportunities, feed into this problem.

There is another issue I want to raise: the lack of women’s health provision, which is pretty severe. In my maiden speech in 2017 I spoke about the need to restore maternity services to Caithness. Seven years later, that is more important than ever. Caithness general hospital used to have a consultant-led maternity service, which meant that expectant mothers could have their babies locally in the far north of Scotland. It was downgraded when I was my constituency’s Member of the Scottish Parliament. At that time, I had more influence and I got it restored. Since then, however, the maternity services have been downgraded again, and there appears to be no movement from the Scottish Government to reverse that. I wish that some Members from the party of the Scottish Government were present today.

Let me give an example of what this situation means: pregnant mothers have to make a 200-mile round trip in the car to deliver their babies. Imagine a trip like that in the middle of winter, and on rickety-rackety roads in the highlands. In 2019, a pair of twins were born—one was born in Golspie, and the other was born 50 miles away, in Inverness. It is a miracle that those children survived, and that neither a mother nor a child has perished. I have been calling for a safety audit all along, but there has never been one. We know perfectly well what the result would be: the arrangements would be deemed unsafe, if not a breach of human rights.

It is not just about maternity services; women’s health has been removed from the far north. A routine trip to see a gynaecologist and get a diagnosis for a life-threatening ovarian cyst, or for endometriosis, means travelling the same huge distance—if a woman is lucky enough to get an appointment before her condition has progressed too far for her safety. I wonder what we can do to encourage healthcare professionals to relocate to remote areas, because the health and wellbeing of their wives and daughters must surely be a factor when they consider moving.

For children growing up in the far north, it is no better. The waiting list for child and adolescent mental health assessments is three years. For neurodevelopmental screenings—for the diagnosis of dyslexia, autism, attention deficit hyperactivity disorder and so on—it is four years. That is the majority of their time at school. One family I spoke to during the election had waited 13 years for a diagnosis. That is a disaster. Dentistry has already been mentioned, and we know that intervention is crucial for long-term dental health

Healthy Start

Sarah Dyke Excerpts

Wednesday 22nd May 2024 Westminster Hall

[Sarah Dyke (Somerton and Frome) (LD)]

It is an honour to serve under your chairship, Mr Dowd. I thank the hon. Member for South Shields (Mrs Lewell-Buck) for securing this important debate. By the time children start school, one in five is living with obesity. Recent research has shown that children who are severely obese by the age of four have their life expectancy cut by nearly half if they do not lose weight. Type 2 diabetes is being diagnosed in children, while a national NHS survey found that nearly 30% of children under the age of five are experiencing enamel and dental decay.

All the while, one in four UK households with children under four experiences food insecurity. That is defined as when households reduce the quality, variety and desirability in their diets. It is concerning that demand for emergency food parcels distributed by the Trussell Trust food bank network has nearly doubled over the past 12 months, and 65% of that support went to families with children. In Somerset, 18,000 food parcels have been distributed in the past year. When the household support fund closes in September, we could see pressures increase even further. In addition, Food Foundation polling from January 2024 found that food-insecure households were more likely to cut back on purchasing healthy foods such as fruit, veg, fish, dairy and eggs by up to 60%.

The Healthy Start scheme provides pregnant women or pre-school-age children from low-income households with a weekly payment to be spent on healthy food. That is welcome, but the Government have failed to roll out the scheme effectively or give it the attention that it deserves. The Government set an uptake target of 75% by March 2023, yet the latest figures for April 2024 show that only 62% have taken it up and we do not know the uptake data between July 2023 and February 2024, due to a major data error. That just amplifies how neglected the scheme is.

The scheme needs to move faster to reach more people and must not be left to stagnate against the backdrop of considerable food price rises. The scheme does not give people enough money to afford healthy foods in the light of inflation and the increased cost of food. The poorest 10% of UK households would need to spend between 34% and 52% of one person’s weekly food budget to afford one week’s worth of a five-a-day diet.

If the scheme is to be used as a tool to fight food insecurity, it must not be used in isolation. However, I do not believe that the Government are willing to take the necessary measures to change our food system for the better. They should accept the national food strategy’s recommendations by extending the scheme’s eligibility criteria and committing to a properly funded promotional campaign. The Government must also focus on the lack of access to healthy, nutritious food by incorporating household food security, including people’s ability to access healthy food, into a yearly assessment of UK food security.

At last week’s Farm to Fork summit, the Prime Minister had the chance to focus on primary food producers being squeezed by tight retailer-supplier contracts, but he did not, leaving potentially more farmers on the brink of closing their farm gates for the final time because of the associated financial pressures and anxiety. The Government have failed to grasp that we have a broken food system, which leaves farmers on a cliff edge and families reliant on unhealthy, ultra-processed foods and unable to afford the food necessary for their children’s healthy development. It should be a national embarrassment that so many children under five are beginning their lives with serious health issues because of poor nutrition, but the neglect that the Healthy Start scheme has experienced from this Government is symptomatic of the neglect that they have paid to our food system.

I do not believe it is too late. The Government should urgently revisit the national food strategy recommendations set out by Henry Dimbleby and act on them. The Liberal Democrats would fight to ensure that our children’s health is treated as a priority by guaranteeing free school meals for all primary-aged children and all those whose families are in receipt of universal credit. We would also boost the farming budget by £1 billion to help our farmers thrive, and to help them produce more home-grown, healthy food to improve the health of the nation’s children.

Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders

Sarah Dyke Excerpts

Wednesday 22nd May 2024 Westminster Hall

[Andrew Selous]

I am grateful to my hon. Friend, because it is these individual stories that really make the case. My hon. Friend’s constituents had to wait 30 years: that is a very long time indeed.

[Sarah Dyke (Somerton and Frome) (LD)]

A constituent of mine suffers from EDS. They make frequent trips to hospital, but every time they go they see a different consultant, who quite often treats the immediate medical emergency rather than taking a holistic approach and view of their condition. Does the hon. Member agree that people with EDS should be given a single point of contact—somebody who can review their condition as a whole, rather than just treating the individual symptom when it occurs?

[Andrew Selous]

The hon. Lady makes a sensible point. The four requests that Ehlers-Danlos Support UK wants me to put to the Minister are as follows. The first is a pathway for NHS diagnosis and care for hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders in England. Secondly, it wants National Institute for Health and Care Excellence guidelines for Ehlers-Danlos syndrome and hypermobility spectrum disorders. Thirdly, it wants a properly co-ordinated, multidisciplinary approach to diagnosis and care for people with these conditions and their associated comorbidities. Fourthly, it wants support and training for healthcare professionals to deliver this. Those are all reasonable and sensible demands.

To give more background about the condition and the work being done to bring about change, I will say a bit more about the symptoms, as many people are not aware of EDS. Whatever knowledge people have, it is undeniable that there is a widespread lack of awareness, and that is part of the challenge that people living with EDS face in accessing care and in dealing with their condition. Twelve types of EDS are rare and can be genetically tested, but—this is a really important point—there is no test for the most common type of EDS. That has led to multiple reports of people being disbelieved by healthcare professionals and by assessors for personal independence payments. In fact, recent research suggests that those with the condition can wait for up to 20 years for a diagnosis. My hon. Friend the Member for Mid Derbyshire (Mrs Latham) has just told us of her constituent who waited 30 years.

I am grateful to Danielle Humphreys, who researches in this area. She told me that quite a common response from doctors can be “Let me just check Google about this, as I’m not aware of the illness you are talking to me about,” or “Can you spell that?” I have some sympathy for doctors. Two of my children are junior doctors. They have a lot to learn in five or six years in medical school. They cannot know everything, but this is just not good enough. For each of us, the condition affects 500 or more of our constituents, so things need to change. I am pleased to put that on the record.

Oral Answers to Questions

Sarah Dyke Excerpts

Tuesday 23rd April 2024 Commons Chamber

[Dame Andrea Leadsom]

Of course I would be delighted to meet my right hon. Friend to discuss that issue, which several colleagues across the House have raised with me. She will appreciate that the District Valuer Services is crucial in ensuring value for taxpayer’s money from the rents that are charged for GP practices. Nevertheless, the Department is working hard to support better primary care facilities. I understand the point and would be happy to meet her.

[Sarah Dyke (Somerton and Frome) (LD)]

There are 56 fewer fully qualified GPs in Somerset now than there were in December 2016, so it is no surprise that my constituents in Wincanton feel that they can never access one. How will the Minister support general practice to enable it to continue to provide the vital services that our communities deserve?

[Dame Andrea Leadsom]

It is fantastic that hard-working GPs have delivered 60 million more appointments a year than in 2019. That is a credit to their efforts. The Government have undertaken a wide range of approaches to try to reduce the administrative burden. We are focused on trying to deal with some of the issues that GPs have raised with me about the primary and secondary care interface so that they do not have to write all the fit notes and liaise with consultants. We have also spent more than £200 million on digital telephony. Importantly, the additional roles reimbursement scheme has added more than 36,000 more professional staff, from physios to pharmacists to those in GP practices, to try to support patient access.

Oral Answers to Questions

Sarah Dyke Excerpts

Tuesday 5th March 2024 Commons Chamber

[Andrew Stephenson]

My hon. Friend will be aware that there have been delays with approvals by the MHRA and NICE. We are keen to ensure that those delays are reduced, and I am delighted to tell the House that significant progress has been made in both organisations. I am happy to work with my hon. Friend and both organisations to ensure that progress continues to be made.

[Sarah Dyke (Somerton and Frome) (LD)]

Figures obtained by the British Dental Association project that £8 million of the NHS budget in Somerset is going unspent. Will the Minister explain to my constituent, who is suffering in dental agony, why that is happening?

[Dame Andrea Leadsom]

I encourage the hon. Lady to hold her integrated care board to account. We invest more than £3 billion a year in dentistry, and our dental recovery plan means that significant money is available for NHS dentistry. It is for the integrated care board to commission those units of dental activity, which now offer more money—a minimum of £28 per UDA. I am happy to meet the hon. Lady if she finds she is not getting anywhere with her ICB.