Respiratory Health

Michelle Welsh Excerpts

Thursday 14th November 2024 Westminster Hall

[Michelle Welsh (Sherwood Forest) (Lab)]

I thank the hon. Member for Strangford (Jim Shannon) for bringing forward this important issue. Lung diseases are sadly prevalent in my constituency of Sherwood Forest. Diagnosis is often slow and prognosis is often devastating. Health inequalities in my constituency are stark, with people in the south of Nottinghamshire living an average seven and a half years longer than those living in the north of my constituency. Significant work across Nottinghamshire is being done regarding the diagnosis of lung cancer, and rightly so, but there are serious gaps in pathways for those suffering from lung diseases such as pulmonary fibrosis.

Pulmonary fibrosis is a devastating disease, and its impact is felt acutely by those affected. I know at first hand that this relentless and often rapidly progressing condition drastically changes the lives of the people affected and their loved ones. They face a daily struggle of breathlessness, constant fatigue and the immense mental toll of facing a terminal illness with very limited treatment options. Simple tasks such as walking across a room become an enormous challenge.

Yet pulmonary fibrosis lacks a focus that it desperately needs. Many people receive their diagnosis far too late, partly because the symptoms are often mistaken for less severe respiratory issues, and long waits for access to specialist care and life-extending treatment are very common. The disparities in access to these life-enhancing resources are unacceptable and must be addressed. Health inequalities play a significant role in accessing pulmonary fibrosis care, with those coming from a socially deprived background and living further from one of the few specialist centres likely to die sooner. I welcome the Secretary of State’s call for more specialist care to be available closer to home, as the current situation is particularly problematic for pulmonary fibrosis.

I welcome the work of the national charity Action for Pulmonary Fibrosis in bringing together the community to implement a new pathway to improve many of the issues, and I hope the NHS will continue to focus on the implementation of that work. We have the opportunity to redesign services in a way that better aligns with local population needs and therefore enhances patient outcomes. I place on the record my thanks to those in the Nottingham University Hospitals NHS trust who work in respiratory care, particularly the lung nursing team, the healthcare assistants and Dr Saini, who are working endlessly to improve both diagnosis and prognosis. I know that at first hand, as sadly my father suffers from this cruel disease, and I have subsequently met many other sufferers and their carers.

People with idiopathic pulmonary fibrosis are often misunderstood, as it has no known identified cause. They often feel lost and always feel ignored. The work to improve healthcare systems for pulmonary fibrosis requires collective effort, and I hope that today’s debate will pave the way for significant strides forward in how we address this heartbreaking disease so that those suffering are heard and understood.