World AIDS Day

Michelle Welsh Excerpts

Wednesday 27th November 2024 Westminster Hall

[Michelle Welsh (Sherwood Forest) (Lab)]

I thank my hon. Friend the Member for Uxbridge and South Ruislip (Danny Beales) for securing this important debate. All the words we have heard today have been poignant and impactful.

I want to speak about the impact of AIDS on women. In the UK, women make up a third of people living with HIV and just over a third of new HIV diagnoses. It is crucial that any strategy for AIDS does not forget women and their unique experiences of this disease. Often, women with HIV are some of the most disadvantaged members of society. The Terrence Higgins Trust estimates that almost half of women living with HIV in the UK live below the poverty line. It also estimates that over half of women living with HIV have experienced violence because of their HIV status. I spoke earlier today in a debate on tackling violence against women and girls, and this is yet another opportunity to highlight the actions we need to be taking to ensure that women in the UK do not have to live in fear.

I also want to raise the importance of women getting tested for HIV, as it can often feel like there are too many barriers in place. We have made great strides in the treatment of the disease; it is vital that women can also access those treatments.

It is also important to raise the fact that often, black, Asian and ethnic minority women face worse outcomes and experiences in our healthcare services than white women. That will no doubt also be seen in how those women access HIV care.

I will finish by saying that we must strive so that all those living with HIV are able to do so with freedom from HIV secrecy, knowing that they are accepted and that HIV is not a label, and are free to pursue their dreams, faith and relationships free from stigma and discrimination.

[Sir Mark Hendrick (in the Chair)]

I thank hon. Members for their brief contributions and for giving time for the Front Bench speakers.

Respiratory Health

Michelle Welsh Excerpts

Thursday 14th November 2024 Westminster Hall

[Michelle Welsh (Sherwood Forest) (Lab)]

I thank the hon. Member for Strangford (Jim Shannon) for bringing forward this important issue. Lung diseases are sadly prevalent in my constituency of Sherwood Forest. Diagnosis is often slow and prognosis is often devastating. Health inequalities in my constituency are stark, with people in the south of Nottinghamshire living an average seven and a half years longer than those living in the north of my constituency. Significant work across Nottinghamshire is being done regarding the diagnosis of lung cancer, and rightly so, but there are serious gaps in pathways for those suffering from lung diseases such as pulmonary fibrosis.

Pulmonary fibrosis is a devastating disease, and its impact is felt acutely by those affected. I know at first hand that this relentless and often rapidly progressing condition drastically changes the lives of the people affected and their loved ones. They face a daily struggle of breathlessness, constant fatigue and the immense mental toll of facing a terminal illness with very limited treatment options. Simple tasks such as walking across a room become an enormous challenge.

Yet pulmonary fibrosis lacks a focus that it desperately needs. Many people receive their diagnosis far too late, partly because the symptoms are often mistaken for less severe respiratory issues, and long waits for access to specialist care and life-extending treatment are very common. The disparities in access to these life-enhancing resources are unacceptable and must be addressed. Health inequalities play a significant role in accessing pulmonary fibrosis care, with those coming from a socially deprived background and living further from one of the few specialist centres likely to die sooner. I welcome the Secretary of State’s call for more specialist care to be available closer to home, as the current situation is particularly problematic for pulmonary fibrosis.

I welcome the work of the national charity Action for Pulmonary Fibrosis in bringing together the community to implement a new pathway to improve many of the issues, and I hope the NHS will continue to focus on the implementation of that work. We have the opportunity to redesign services in a way that better aligns with local population needs and therefore enhances patient outcomes. I place on the record my thanks to those in the Nottingham University Hospitals NHS trust who work in respiratory care, particularly the lung nursing team, the healthcare assistants and Dr Saini, who are working endlessly to improve both diagnosis and prognosis. I know that at first hand, as sadly my father suffers from this cruel disease, and I have subsequently met many other sufferers and their carers.

People with idiopathic pulmonary fibrosis are often misunderstood, as it has no known identified cause. They often feel lost and always feel ignored. The work to improve healthcare systems for pulmonary fibrosis requires collective effort, and I hope that today’s debate will pave the way for significant strides forward in how we address this heartbreaking disease so that those suffering are heard and understood.