73 Helen Hayes debates involving the Department of Health and Social Care

Lobular Breast Cancer

Helen Hayes Excerpts
Tuesday 10th December 2024

(1 week, 5 days ago)

Westminster Hall
Read Full debate Read Hansard Text Read Debate Ministerial Extracts

Westminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.

Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.

This information is provided by Parallel Parliament and does not comprise part of the offical record

Helen Hayes Portrait Helen Hayes (Dulwich and West Norwood) (Lab)
- Hansard - -

I beg to move,

That this House has considered the treatment of lobular breast cancer.

It is a pleasure to see you in the Chair, Ms Vaz. I secured this debate in memory of my constituent, who was also my close friend, Heather Cripps. I welcome Heather’s husband David and her sister Jenny to the Public Gallery. I will come to Heather’s story shortly, but I also want to welcome to the Public Gallery my mother-in-law Cressida, who survived lobular breast cancer 22 years ago, as well as several others whose lives have been touched by lobular breast cancer. Many of them have provided me with briefings in preparation for the debate, for which I am grateful.

I met Heather in 2016 when, as someone who had pretty much never run for a bus before, I was roped into a free 5 km parkrun at 9 am on Saturday mornings in Dulwich park. Heather was a serious runner, and running was a huge part of her life. She took pity on me and decided that her inexperienced local MP needed a friend to run with, and she became that friend. We worked out that we lived close to each other, and it was not long before I was picking her up to go to the parkrun, and we would run together most weeks.

Heather was a dedicated public servant, spending her whole life working in the Home Office. It is a testament to her professionalism that she never spoke with me about the content of her work. What she did speak about as we ran was her family, her husband David and two precious daughters. Heather was an amazing mum. She spent so much of her time thinking about what her girls would enjoy, planning birthday parties and holidays and, earlier this year, plotting a trip to Wales to culminate in the surprise collection of a new puppy.

In 2020, at the height of the covid-19 pandemic, Heather started to get terrible back pain. For several months this was treated as a musculoskeletal issue. She was given pain medication, but it got worse and worse. Eventually, she was diagnosed with stage 4 invasive lobular breast cancer. The back pain was the result of the cancer having spread to her spine. For three years, chemotherapy held the cancer at bay but, when Heather came to Parliament almost exactly a year ago to campaign on lobular breast cancer, she mentioned to me that she once again had back pain, which she thought could be the cancer recurring.

Jim Shannon Portrait Jim Shannon (Strangford) (DUP)
- Hansard - - - Excerpts

The hon. Lady brings forward a very personal story. In this House, we know that personal stories are always the hardest to tell, but the ones that have more impact. I commend the hon. Lady for what she is doing today. We would all say that, but we mean it.

Helen Hayes Portrait Helen Hayes
- Hansard - -

I thank the hon. Gentleman—who is my hon. Friend—very much indeed for that intervention.

Heather died in St Christopher’s hospice near her home on 30 August. She was 48 years old. Shortly before she died, Heather’s daughter, who was due to start secondary school in September, visited her mummy in the hospice, so that she could see her in her school uniform. In that unbearable heartbreaking detail is why we must do better on lobular breast cancer: better on awareness of symptoms and better at research into treatments.

The heartbreak of Heather’s story and the impact on her family and friends is sadly replicated for too many women and their loved ones throughout the UK. Lobular breast cancer is the second most common type of breast cancer, accounting for 15% of all breast cancers, and 22 women a day are diagnosed with lobular breast cancer in the UK. It behaves differently from other forms of the disease, mostly strikingly because it does not cause lumps, and it is often completely invisible on a mammogram.

Melanie Ward Portrait Melanie Ward (Cowdenbeath and Kirkcaldy) (Lab)
- Hansard - - - Excerpts

I thank my hon. Friend for securing this debate on such an important topic, and for so movingly sharing the story of her friend Heather. I want to raise the case of my constituent from Dalgety Bay. Just days before her surgery for lobular breast cancer, a mammogram was still unable to pick it up, exactly as my hon. Friend describes. It could not pick up the existence of her cancer at all. Does my hon. Friend agree that this is a perfect example of why we so badly need more research and better diagnosis and treatment of lobular breast cancer for women across the UK?

Helen Hayes Portrait Helen Hayes
- Hansard - -

I thank my hon. Friend for bringing the story of her constituent to this debate. This is exactly the reason why we need to find better means of diagnosis and treatment for lobular breast cancer. I will come talk about some of those means shortly.

Currently, there are no treatments specific to lobular breast cancer. This must change. The issues have been well documented by Dr Susan Michaelis, founder of the Lobular Moon Shot Project. Susan was 50 when she noticed a small, pale, 1 mm mark on her left breast in 2012. She had no lump and both a mammogram and an ultrasound were reassuring. Six months later, the small mark had become redder and Susan had a biopsy that confirmed she had invasive lobular breast cancer. Susan’s cancer had spread to her neck, the back of her head, the eye area and her ribs. She is now on her sixth line of treatment.

Dr Michaelis is a qualified air accident investigator. She focuses on how accidents can be prevented by learning from past mistakes, and has used these skills to look at how treatments have failed her. In doing so, she has identified the need for a new approach.

Helen Grant Portrait Helen Grant (Maidstone and Malling) (Con)
- Hansard - - - Excerpts

I congratulate the hon. Lady on securing this really important debate. Does she agree that specific forms of cancer like lobular breast cancer require specific funding, research and treatment, and that a one-size-fits-all approach is going to fail millions of women? I declare an interest in asking this question in that last year I was diagnosed with lobular breast cancer. I am cancer-free now, thank God, as a result of the help of the Royal Marsden hospital. Tragically, that is not the case for many, many women in this country.

Helen Hayes Portrait Helen Hayes
- Hansard - -

I thank the hon. Lady very much for that intervention and for sharing her personal story.

I pay tribute to Dr Michaelis for her research and campaigning on lobular cancer. I hope that all Members have received their Dr Susan Michaelis rose this week, named in her honour, and will plant it as a reminder of the urgency of her work.

There are so many other stories. Katie Swinburne was 47 when she was diagnosed with invasive lobular cancer in her left breast, leading to a double mastectomy, radiotherapy and 10 years of targeted chemotherapy. She writes:

“It is very hard to accept that none of my treatment is specific to lobular breast cancer and no one can tell me if it is working or has been effective…I find myself living in fear of recurrence. I deserved to have an early diagnosis. I did not get this. I deserve a specific treatment; I do not have this. I have three young children; they deserve to have a mum. I deserve effective follow up; I do not get this. I need you to change this for me, my husband, my family, all the women with a lobular diagnosis and all the women who will be diagnosed in the future.”

Emma Hunwick writes:

“I was a happy, healthy and relatively fit 49-year-old professional woman when I noticed a tiny pull in my right nipple. No lump, no other obvious external changes. An annual medical and referral just 12 days later resulted in a clear mammogram and a clear second 3D mammogram. An ultrasound then reported an area of 2 cm of concern. I rapidly went from ‘caught early’ to borderline stage 2 breast cancer. After my mastectomy I was informed that I was in fact stage 3c invasive lobular breast cancer…I am now at high risk with predicted survival outcomes at 10 and 15 years of approximately 45% and 30% respectively...I need to know that the vital scientific research into lobular breast cancer is being done now. Not next year or in 10 years but starting now, so that I might survive longer and continue to work with less worry about whether the standard monitoring tests that missed my first cancer, will miss a recurrence.”

Kirstin Spencer’s story is also typical. Diagnosed in 2018, she and had a double mastectomy, but was warned that, especially in the first two years afterwards, the disease could recur in areas such as the scar tissue, chest wall and surrounding skin. She was told that vigilance and well-managed medical follow-up were everything. Within a year of her diagnosis, she developed red-flag symptoms that were repeatedly dismissed by her breast specialist. She was refused follow-up treatment and sent for psychological counselling. By the time that a new GP listened to her concerns, substantial recurrence was confirmed, with extensive metastatic disease.

My mother-in-law Cressida’s story is very different from Heather’s, and we are all so grateful to the doctors who treated her and for the subsequent 22 years of health that she has had and continues to enjoy. Cressida did not have any grandchildren when she was diagnosed, but a prompt diagnosis meant that she has been able to be closely involved in the lives of eight subsequent grandchildren, as a much-loved granny. But Cressida’s outcome was about luck rather than design, so much so that it was only very recently, when reviewing her medical notes, that she found out that the type of cancer she had was lobular.

Breast cancer survival rates are directly impacted by the stage of diagnosis. Late diagnosis, which is all too common for lobular breast cancer, leads to far worse outcomes. To improve this situation, we need much better awareness of the full range of breast cancer symptoms, including the very small skin changes that are typical of lobular cancer. Not all cancers cause lumps. A clear mammogram does not provide absolute reassurance, because lobular cancer typically does not show on a mammogram. We need lobular-specific research and treatments.

Staff at Manchester Breast Centre have stated that they are able to do the research to understand the complete pathology of lobular breast cancer—research that has never been done—to pave the way for bespoke treatments to be developed. This will take five years and cost £20 million—moonshot funding that will be recouped many times over in the tax revenue paid by women like Heather, who would be able to continue working, and in the NHS costs that will be saved.

Hundreds of MPs in the last Parliament and this one have listened to the stories of constituents affected by lobular breast cancer and pledged their support for the Lobular Moon Shot Project. Lobular cancer is the sixth most common cancer in women. It is more common than ovarian, brain, central nervous system, non-Hodgkin lymphoma, pancreatic and kidney cancers. I know that the Minister cares deeply about women’s health equality and I put it to her that lobular cancer is a women’s health equality issue.

Mary Kelly Foy Portrait Mary Kelly Foy (City of Durham) (Lab)
- Hansard - - - Excerpts

I thank my hon. Friend for raising this very important issue. I was diagnosed with, treated for and cured of breast cancer this year, in a very timely way. I was very grateful to be told that it was one of the best cancers to have, because there is so much research into it and treatment for it. It is unimaginable that someone could be treated for a different type of breast cancer for which the research and treatment are not available. I am sure my hon. Friend will agree that this situation needs to be addressed immediately, because we cannot have these inequalities. Lobular cancer should be on a par with other breast cancers in terms of treatment.

Helen Hayes Portrait Helen Hayes
- Hansard - -

I thank my hon. Friend for that intervention. She makes the point extremely well. How can it be that there are so few targeted programmes to improve the diagnosis and treatment of a cancer that affects 15% of breast cancer patients? How can it be that such poor information is provided to women that does not empower them to seek help when the symptoms of lobular cancer recur? How can it be that women are lured into a false sense of security when they receive a clear mammogram, or are fobbed off when they raise concerns?

We need to do better for women affected by lobular breast cancer, in memory of Heather and many more women like her who will not live to see their children grow up. We need to do better for women like Dr Susan Michaelis, who are living today with their lobular cancer being held just about at bay by generic breast cancer treatments, but who live with the constant anxiety that one day the treatment will stop working. We need to do better for the 22 women today and the 22 women tomorrow—the 22 women every single day—who are diagnosed with lobular cancer.

I have a number of asks to make of the Minister. Will she commit to investigate why there are so few targeted programmes to improve diagnosis, research and treatment of a cancer that affects 15% of breast cancer patients? Will she confirm that lobular cancer will remain a priority in the Government’s women’s health strategy? Will she take steps to address the lack of information given to women about mammograms, so that every woman is reminded to remain vigilant for non-lump changes in their breasts, including very small changes? Will she take steps to improve the education of primary care doctors on the symptoms of lobular breast cancer, so that women are not provided with false reassurance, but promptly referred for diagnostic tests?

For patients treated for ductal breast cancer, the first five years are critical, but for lobular breast cancer the risk will remain for 10 years and sometimes beyond, yet lobular patients are typically released from surveillance care after only five years. Will the Minister take steps to ensure that there is a specific follow-up pathway for lobular breast cancer? Will she support Manchester Breast Centre’s call for Lobular Moon Shot funding—£20 million over five years—to enable the basic pathology of lobular cancer to be fully understood as the foundation for developing bespoke treatments? Will she look at the fairness of the distribution of research funding to ensure that this funding can be identified without further delay?

I know the heartbreak that Heather's death has caused for all who knew and loved her, and most especially for her family. We can act to ensure that, in future, women like Heather who are diagnosed with lobular cancer can live to see their children grow up, and it is imperative that we do so.

--- Later in debate ---
Helen Hayes Portrait Helen Hayes
- Hansard - -

I thank all hon. Members who have contributed. They have brought their constituents’ stories and their own personal experiences to the debate. We have many issues to work on in this House, but there is a particular responsibility when an issue presents itself in a personal way through a devastating story, whether that is through a constituent, somebody we know or our own personal experience. When we see an opportunity for things to be done, it is imperative for us all to bring that to this place. I am grateful to hon. Members for the spirit in which the debate has been conducted, the high level of consensus and the high level of commitment to see change for patients with lobular cancer.

I am grateful to the Minister for her engagement with the debate. I know she is committed to this area. In closing, I ask that she looks in further detail at two issues. The first is the proportional allocation of the funding available through the NIHR for research into breast cancer. We have heard again and again today that lobular cancer accounts for 15% of all breast cancers, yet currently attracts only a tiny fraction of dedicated research. We know that the improvements we have seen in treatments and outcomes for different types of cancer diagnosis always hinge on the investment put into research to find the cures. There is a disproportionality there that can and must be changed.

The second area I ask the Minister to look at in a little more detail is the advice and guidance given to clinicians in primary care, to make sure that there is a consistent understanding of the symptoms of lobular cancer and its distinctiveness as a disease compared with ductal cancer, and to make sure that every woman presenting to her GP is able to access accurate advice and swift onward referral. It is important across the whole range of women’s health conditions that women are trusted and listened to when they present with symptoms to their GP, and this is an area where I believe primary care can do better, be more consistent and deliver better outcomes as a consequence.

I pay tribute once again to Dr Susan Michaelis and all those who campaign on this issue on the basis of their deeply difficult personal experiences. I give my commitment that for as long as I have a voice in this place, I will continue to work on this issue until we see the changes that are needed.

Valerie Vaz Portrait Valerie Vaz (in the Chair)
- Hansard - - - Excerpts

I thank everyone who took part in and attended this debate.

Question put and agreed to.

Resolved,

That this House has considered the treatment of lobular breast cancer.

NHS

Helen Hayes Excerpts
Thursday 23rd May 2024

(6 months, 4 weeks ago)

Commons Chamber
Read Full debate Read Hansard Text Watch Debate Read Debate Ministerial Extracts
Victoria Atkins Portrait Victoria Atkins
- View Speech - Hansard - - - Excerpts

I very much share my hon. Friend’s concerns. I will take away what he has said, but I want to look into this issue, because I understand the points that he and our right hon. and learned Friend the Member for Kenilworth and Southam (Sir Jeremy Wright) have made.

Helen Hayes Portrait Helen Hayes (Dulwich and West Norwood) (Lab)
- View Speech - Hansard - -

The Secretary of State comes to the House, at the end of a Parliament, to paint her Government’s record on the NHS in the most positive light possible. I have to say to her that the picture she paints will not be recognised by staff working in the NHS or patients anywhere in my constituency. I will give her an example: it is impossible for my constituents to get an appointment at some GP practices in a timely manner. At the same time, our local hospital, which is under severe financial pressure, is reporting a record number of patients attending its urgent care centre because they cannot get an appointment in primary care. Will the Secretary of State acknowledge her Government’s failure to tackle primary care, which is placing unbearable pressure on doctors working in our hospitals to do the best for their patients?

Victoria Atkins Portrait Victoria Atkins
- View Speech - Hansard - - - Excerpts

Again, I pay tribute to our general practitioners and all the staff who work with them in practices, because we know that they have delivered some 60 million more appointments than in 2019. That was an election promise made and kept. On the hon. Lady’s wider question about primary care, that is precisely why we have rolled out Pharmacy First to free up GP appointments. It is precisely why we have a focus on prevention, because we know that if we can help people through the NHS app, it will take the burden off GPs. It is also why we are looking at fit notes in an imaginative and thoughtful way, because I have listened to GPs, who say that if we can reduce these sorts of responsibilities on GPs, it will leave them with more time for patients.

Oral Answers to Questions

Helen Hayes Excerpts
Tuesday 23rd April 2024

(7 months, 4 weeks ago)

Commons Chamber
Read Full debate Read Hansard Text Watch Debate Read Debate Ministerial Extracts
Andrew Stephenson Portrait The Minister for Health and Secondary Care (Andrew Stephenson)
- View Speech - Hansard - - - Excerpts

That is an important point. We know how vital it is to support everyone who is working so hard in our NHS to support patients. NHS England is reviewing mental health services for all staff who need them, to ensure that they can access the support they need. It is working collaboratively with regions and integrated care systems to agree the best approach to doing that.

Helen Hayes Portrait Helen Hayes (Dulwich and West Norwood) (Lab)
- View Speech - Hansard - -

T4. There is an increasing incidence of bowel cancer among younger patients, such as my constituent Emily, who received a late diagnosis after many months of attending her GP with iron deficiency anaemia. Younger patients often report that bowel cancer was dismissed as a possibility by their GP because of their age, and that symptoms such as iron deficiency anaemia are not taken seriously enough and are not included currently on the list of commons symptoms on the NHS website. What is the Secretary of State doing to ensure that NHS guidelines and practice are fit for purpose for younger patients, who far too often receive a late diagnosis of bowel cancer?

Andrew Stephenson Portrait Andrew Stephenson
- View Speech - Hansard - - - Excerpts

The hon. Lady makes an important point. As part of the NHS long-term plan, we have an ambition to diagnose 75% of all stageable cancers at stage 1 or 2 by 2028. That means that we need to make significant improvements on the harder-to-detect cancers such as bowel cancer. We are working across systems to deliver those improvements, not only with better screening programmes, but by improving patient pathways. However, I am more than happy to meet her if she wants to have a further conversation specifically about bowel cancer.

Tobacco and Vapes Bill

Helen Hayes Excerpts
Helen Hayes Portrait Helen Hayes (Dulwich and West Norwood) (Lab)
- View Speech - Hansard - -

I rise to speak in support of this important Bill. Smoking is entirely harmful and there are no benefits. Cancer Research UK is clear that tobacco remains the single biggest cause of cancer in the UK, causing an estimated 125,000 deaths per year—one person every five minutes. On average, smokers lose 10 years of their life expectancy and face lifelong health complications.

Despite the protestations of tobacco companies, smoking also has a detrimental effect on our economy. Action on Smoking and Health estimates that the overall cost of productivity losses and health and care needs caused by smoking costs the UK a staggering £17.3 billion every year.

We have come a long way in recent decades in reducing smoking rates. The last Labour Government led the way on smoking harms, raising the legal smoking age to 18, banning cigarette advertising in shops and introducing the transformative ban on smoking in enclosed public spaces and workplaces. It is now hard to recall just how society ever thought that smoke-filled restaurants, pubs and tube carriages were remotely acceptable.

Brendan Clarke-Smith Portrait Brendan Clarke-Smith (Bassetlaw) (Con)
- Hansard - - - Excerpts

Will the hon. Lady give way?

Helen Hayes Portrait Helen Hayes
- Hansard - -

I will not give way at this stage, I am afraid.

It is still the case that more than one in 10 adults—around 6.4 million people—are smokers. I wish to pay tribute to my constituent, Gower Tan. Gower began to smoke at the age of 13. His father was also a lifelong smoker and died early at the age of just 66 from lung cancer. This was devastating for Gower and his family and led him to give up smoking at the age of 40. Gower has since become a tireless campaigner for Cancer Research UK—first as an ambassador and more recently as part of the staff team. Gower and his family know as well as anyone the pain and heartache that smoking can cause and the deep sorrow that comes from knowing that the death of a loved one was preventable.

Like my hon. Friend, the shadow Secretary of State, I fully support the Bill’s measures to ban smoking for anyone born after 2009, freeing future generations from the health impacts of tobacco. I also welcome the Bill’s urgently needed measures to regulate advertising and restrict the availability of vapes to children and teenagers. We on the Labour Benches have been calling for action on this for a long time. Last year, I introduced a ten-minute rule Bill on the advertising of vapes to children. One in five 11 to 15-year-olds in England used vapes in 2021, and under-age vaping has dramatically increased by 50% in the past three years. Five years ago, vaping was not a significant concern, but now it is raised with me in every school that I visit. Teachers are routinely having to manage the disruption in the classroom that addiction causes.

Vaping has a really important role in smoking cessation and that role should not be undermined by this legislation, but although vaping is far less harmful than smoking, it is not a harmless activity. Last year, 40 children were admitted to hospital with vaping-related issues. There is evidence of respiratory harm and impacts on mental health and concentration levels.

We can see the strategy of the vaping companies. They are seeking to secure future demand for their products by getting children addicted today. It is frankly absurd for e-cigarette manufacturers to claim that they are not targeting children. In displays across the country, brightly coloured advertising for vapes mimic popular brands and characters. Flavours such as gummy bears, skittles, tutti-frutti and cherry cola are clearly designed to appeal to children and vapes are being openly promoted to children on social media.

Although I support the Bill today, it would be remiss of me not to ask what has taken the Government so long. They have had repeated opportunities to introduce new regulations on the marketing of vapes. My hon. Friend the Member for City of Durham (Mary Kelly Foy) put forward an amendment in November 2021 to the Health and Care Bill to ban the branding of vapes that appeal to children, while the Electronic Cigarettes (Branding, Promotion and Advertising) Bill introduced last year would have banned e-cigarettes and vaping products from being advertised to appeal directly to children. These delays will have led to more children experimenting with e-cigarettes and becoming addicted to recreational vaping.

Today, we have a genuine opportunity to stops the harm of nicotine addiction and free future generations from the health impacts of smoking. We on the Labour Benches are clear that we will put the health of children and young people first. A Government who cannot command the support of their own MPs for a flagship piece of legislation should surely step aside, call a general election and allow someone else to do the job.

Young Adults with Spinal Injuries

Helen Hayes Excerpts
Thursday 29th February 2024

(9 months, 3 weeks ago)

Commons Chamber
Read Full debate Read Hansard Text Watch Debate Read Debate Ministerial Extracts
Helen Hayes Portrait Helen Hayes (Dulwich and West Norwood) (Lab)
- View Speech - Hansard - -

I am grateful for the opportunity to open this debate, which I sought on behalf of my late constituent Tom Lazarides and his family, some of whom are present in the Public Gallery. Tom was a 20-year-old student at Durham University when, on 13 June 2020, he dived into a swimming pool and suffered a catastrophic spinal cord injury that left him paralysed.

In preparation for the debate, I reread an interview that Tom’s mother Bridget gave to a newspaper in October 2020. In that interview, Bridget spoke about her talented, sporty son, about how loved he was by all who knew him, and about the overwhelming outpouring of support for him from across the country. Bridget’s interview was also full of determination—Tom’s determination and hers—and hope that, despite the devastating nature of his injuries and the many challenges that he faced, with the love and support of his family and friends and good treatment and care, somehow Tom would be okay. I am sorry to report to the House that Tom Lazarides sadly passed away in November 2023.

Tom and his family were devastated by his injury. Instead of helping them to come to terms with what had happened, and enabling Tom to live as well as possible with his injury, the systems that should have been there to support him failed utterly to deliver the care that he needed. Tom’s spinal cord was permanently injured in two places. He was tetraplegic as a consequence, and had many health complications. He had a potentially fatal condition called autonomic dysreflexia, which causes unpredictable and dangerously high spikes in blood pressure. His skin was very fragile, leading to grade 4 bedsores. He had a tracheostomy, leading to communication difficulties. He was unable to cough, leading to repeated inhalation of food particles, which caused pneumonia and pulmonary oedema, and he suffered from muscular complications.

Tom had spent 18 months in hospital, including a year of rehabilitation at Stoke Mandeville. His injuries were permanent and unequivocal. They were well understood by his doctors, and were fully and properly documented. The injuries gave rise to a need for ongoing clinical care from qualified nurses, which could not possibly have been delivered by local authority social care. Tom was discharged from Stoke Mandeville in the autumn of 2021. Under the policy of discharge to assess, he was referred for consideration for NHS Continuing Healthcare funding.

According to the NHS, eligibility for Continuing Healthcare funding is determined on the basis of a person’s needs, rather than a particular diagnosis. There should be no limits on the setting where it can be provided or the type of support, and it is determined according to an assessment by the local NHS integrated care board. The assessment comprises two parts: the NHS continuing care checklist, which can be completed by a nurse, doctor, other healthcare professional or social worker, followed by a full assessment undertaken by a multidisciplinary team.

Tom’s assessment was completed in January 2022. His family raised concerns with me that the assessment process appeared to start with a blank sheet of paper and did not take into account anything that was already known about Tom’s injuries and their impact on his health. For example, he was asked by an assessor whether he got around the house on a Zimmer frame, and to show that he could not use his hands when he was clearly tetraplegic. His family were left with the constant impression that no one involved in the assessment, or in reviewing the decision later in the process, had ever properly read Tom’s medical records.

In May 2022, a decision was reached that Tom was not eligible for Continuing Healthcare funding. For Tom and everyone who knew him, the decision was as astonishing as it was devastating. Tom’s level of clinical need was crystal clear. As Tom’s mother has said to me on a number of occasions, all that needed to happen was for Tom’s very clear medical notes to be read. Tom’s family appealed the decision. The process was beset by difficulties, including changes of personnel at the case manager level, records being lost and constant delays. Tom found the visits to his home intrusive, and they had a detrimental impact on his already fragile mental health.

There was no prescribed timescale for the assessments and appeals, and no clear point of contact for Tom and his family to liaise with during the process. Tom and his family felt that there was constant pressure for him to move to a care home, despite the study published by Professor Brett Smith 12 years ago, which documented the very poor outcomes for young adults with spinal cord injuries who live in care homes, arising from their lack of agency in the decision to move to the care home, the shortage of properly skilled and qualified staff who can meet the needs of residents with spinal cord injuries, the lack of independence, and isolation. Tom was a bright young person with so much to contribute. What he wanted and needed was care and support at home, so that he could live well with the consequences of his spinal cord injury. In the last few months of his life, Tom repeatedly expressed a wish to end it. He simply could not see a positive future, when the struggle to access the care and support he needed was so difficult.

Tom Lazarides’ family have asked me to raise a number of issues that arise from his experience, which indicate the ways in which the healthcare system is simply not working for young adults with spinal cord injuries. The first is the discharge to assess policy. Discharge to assess is not designed for people with a catastrophic injury. What may be appropriate for a frail, elderly person who has had an emergency hospital admission, giving rise to concerns about their care needs at home, or for someone with a progressive condition that may be reaching the point at which more care is needed, is simply not appropriate for someone with a catastrophic permanent injury. It gives rise to a lack of continuity from hospital to home, and requires the person to be assessed by people who do not have the same detailed or specialist knowledge of their needs as the hospital clinicians who have been caring for them as an in-patient.

The second concern is that the patient has no involvement in decisions about their care. Tom was clear and consistent that he did not want to live in a care home. He was a bright and articulate young man whose paralysis should not have resulted in the removal of all agency in his own life, yet the completed decision support tool, the first stage in the assessment process, was submitted without being checked by Tom or his family. Panel meetings took place in a context of secrecy—about their membership, the dates and times of meetings, and the content of discussions. A system is not delivering patient-centred care when the patient is completely shut out of the decision- making process.

The third concern is the lack of any certainty or transparency about the timelines for decision making. The processes relating to Tom’s care took years, and the lack of continuing healthcare support had a profound impact on his day-to-day life during that time. Tom and his family simply had no idea when they would have any news about the next steps.

Everyone, the Lazarides family included, is acutely aware of the pressures on our health and social care system and the need to ensure value for money for the public purse, as well as ensuring safe, appropriate and high-quality care for individuals who need it. Tom’s case, however, was not a matter of resources. In the end, following the appeal, the ICB decided that he was eligible for continuing healthcare funding. The tragedy is that his family were only informed of this after he had died.

It is devastating for any young person to suffer a spinal cord injury that has life-changing consequences but, with the right care and support, it is possible to live a good life with independence and dignity. Depression is not inevitable, but poor mental health is sadly all too common. Tom Lazarides and his family encountered a system that seemed incapable of delivering the safe, appropriate, high-quality care and support that he needed and was entitled to. As a consequence, they spent the two years from Tom’s discharge from Stoke Mandeville Hospital in the autumn of 2021 to his untimely death in the autumn of 2023 constantly fighting a system that ultimately failed them.

What attention is the Minister paying to the experiences of young adults with spinal cord injury and the quality of care that they are able to access? What action is she taking to ensure that the quality and availability of care for young adults with spinal cord injury is consistent across the country? Will she look at the policy of discharge to assess and its appropriateness for patients with a sudden and permanent life-changing injury? Will she look at the assessment process for continuing health- care funding and take steps to ensure that a patient’s existing healthcare records always play an integral part? Finally, will she take steps to ensure that the assessment process for continuing healthcare funding has increased transparency and accountability, and increased certainty on the timescales and decision-making processes?

No one who reads the facts of Tom Lazarides’s injury and subsequent health needs could be in any doubt that he needed long-term nursing care to be safe and to live well with the consequences of his injury, yet the tragedy of his injury was compounded by the failure of our healthcare system to deliver the care that he needed, or indeed to treat him and his family with respect and dignity.

Tom’s family have asked me to raise his case, in order to press for accountability and for improvements for others. I look forward to the Minister’s response.

Oral Answers to Questions

Helen Hayes Excerpts
Tuesday 5th December 2023

(1 year ago)

Commons Chamber
Read Full debate Read Hansard Text Watch Debate Read Debate Ministerial Extracts
Helen Whately Portrait Helen Whately
- View Speech - Hansard - - - Excerpts

I am really sorry, but the hon. Member’s memory appears to be very short. I was working in healthcare when there was a Labour Government and I remember very well problems for the NHS during winter. She does not even need to look back into the past; she can look at the Labour-run NHS in Wales, where they are having so much difficulty with A&E performance that they even fudged the figures and hid a whole load of patients so people would not notice what was going on.

Helen Hayes Portrait Helen Hayes (Dulwich and West Norwood) (Lab)
- Hansard - -

5. What steps she is taking to help reduce vaping by young people.

Andrea Leadsom Portrait The Parliamentary Under-Secretary of State for Health and Social Care (Dame Andrea Leadsom)
- View Speech - Hansard - - - Excerpts

The hon. Lady raises such an important question on a subject that is dear to both our hearts. We all know it is an offence to sell vapes to children under 18, yet one in five children tried a vape in 2023 alone and the number trying vapes has tripled in the last three years. We know the industry is targeting children, quite cynically. That is unacceptable. Our tobacco and vapes Bill will restrict the appeal and availability of vapes to children, and we are consulting on that right now.

Helen Hayes Portrait Helen Hayes
- View Speech - Hansard - -

As the Minister rightly said, under-age vaping has increased by 50% in just the past three years. Ministers had the chance to stop this trend two years ago, during the passage of the Health and Care Act 2022, when Labour tabled an amendment to prohibit branding that appeals to children, but Ministers would not support it and Conservative Members voted it down. Does the Minister regret the fact that the Government did not act sooner? When will the planned new legislation be brought to the House? The consultation is welcome, but there is consensus on the issue and action is urgently needed.

Andrea Leadsom Portrait Dame Andrea Leadsom
- View Speech - Hansard - - - Excerpts

The hon. Lady knows full well that making decisions that change legislation requires consultation. That is both the convention and the requirement. The Government have brought forward the consultation as soon as possible. It will close tomorrow and we will introduce legislation as soon as possible in the new year. I think the hon. Lady will find that that legislation really will tackle the problem of the cynical targeting of children.

LGBT+ People and Spouses: Social Care

Helen Hayes Excerpts
Tuesday 12th September 2023

(1 year, 3 months ago)

Westminster Hall
Read Full debate Read Hansard Text Read Debate Ministerial Extracts

Westminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.

Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.

This information is provided by Parallel Parliament and does not comprise part of the offical record

Helen Hayes Portrait Helen Hayes (Dulwich and West Norwood) (Lab)
- Hansard - -

I beg to move,

That this House has considered the treatment of LGBT+ people and their spouses in social care settings.

It is a pleasure to serve under your chairmanship, Sir Robert. I sought this debate because of the horrific experience of my constituent Ted Brown and his late partner, Noel Glynn. Ted is present in the Public Gallery this afternoon. Ted and Noel were together for almost 50 years. They met at the first Gay Pride event in 1972, which Ted helped to organise. They were civil partners; they were devoted to each other. Sadly, Noel developed dementia in older age and, in 2018, he was placed in Albany Lodge care home in Croydon after Lambeth Council was unable to find a place in a care home any closer to Ted in Brixton.

One day, Ted noticed that Noel had suffered bruising and a cigarette burn to the back of his hand, and two whistleblowers at Albany Lodge confirmed that Noel was being subjected to homophobic abuse from some of the staff. The whistleblowers recounted two staff members asking him, “Are you a gay man? Do you like gay men?” before dragging him to his room, where other residents heard a disturbance going on and Noel’s voice. In January 2019, Noel told a social worker, “I don’t like it here—they beat me up”. The social worker recommended moving Noel to another care home, but he remained at Albany Lodge for nine more months. Throughout that time, Ted was paying £1,400 a month to Albany Lodge for Noel’s care. Ted told me that staff at the care home refused to recognise his relationship with Noel, and that he was warned by two other LGBT residents in the home not to tell staff that they were a couple, because, “It won’t be good for either of you”.

Noel was a vulnerable man with dementia. He should have been safe in Albany Lodge. The abuse he suffered was horrific and inexcusable, and it was a clear breach of his human rights. That was recognised in a court judgment against Lambeth Council, which placed Noel in Albany Lodge, that awarded the couple £30,000 in compensation. Sadly, Noel died in 2021 before the compensation was paid.

Ted told me that when Noel was first placed in Albany Lodge, there was a delay in undertaking a necessary medical assessment. He contacted the care home to chase this on Noel’s behalf and received an email notifying him that an assessment would be done that day on his father. He was not invited to attend this appointment, which would usually be supported by a spouse or close family member since the aim of the assessment was to gather information about the person’s health history, including matters such as allergies and eating habits. Noel, by then, had dementia.

Ted went to the home anyway and was initially not allowed into the room with Noel, despite bringing documents demonstrating their civil partnership, his power of attorney for Noel and evidence that they had been partners for 49 years. As Ted waited outside the room, he could hear Noel calling out for him. This utterly distressing situation speaks to a total lack of dignity for LGBT+ couples in the care system that urgently needs to be addressed. Prior to being admitted to Albany Lodge, Noel initially received care at home. Ted believes that Noel was also subjected to homophobic abuse by one of the carers, who he observed treating him roughly. In an indication that these experiences are not at all uncommon, Ted also told me that prior to the carers coming in, he had been warned by a friend to remove all traces of his relationship with Noel as a couple from their home.

In a report titled “Stripped of all Pride”, Compassion in Care documented 486 reports of homophobic abuse in care settings and of LGBT+ staff who were afraid to disclose their sexuality. I strongly encourage the Minister to read the report, if he has not already done so; the testimonies are shocking and devastating. One whistleblower wrote:

“There was one gay resident in the home, staff were so cruel to them, some staff treated this poor man as if he had something catching. I saw one staff member spit on this man whilst telling him to repent as he was a filthy pervert. Another staff member slapped this man around the back of his head, really hard. I reported it, I was horrified. The staff started shouting at me are you a pervert lover? Are you gay? Nothing was done, I went to the authorities and left”.

That is hate crime, happening behind closed doors and being perpetrated against some of the most vulnerable people. There are many similarly shocking testimonies in the Compassion in Care report.

Tulip Siddiq Portrait Tulip Siddiq (Hampstead and Kilburn) (Lab)
- Hansard - - - Excerpts

My hon. Friend is giving a powerful and emotional account of her constituents. I welcome Ted to the Chamber; I wish it was under happier circumstances. I want to raise something that happened in my constituency a few years ago. A gay couple were taunted with offensive and degrading questions about their sexuality on a bus in West Hampstead. They were then brutally attacked. It was in the news, so my hon. Friend might have heard about it. This year, Rainbow Europe announced that the UK has fallen to 17th place in terms of safety for LGBTQ people. Nine years ago, it was in first place. Does my hon. Friend agree that crimes that are targeted at someone’s LGBTQ identity should have tougher sentences?

Helen Hayes Portrait Helen Hayes
- Hansard - -

I thank my hon. Friend for her intervention and for raising that shocking case, which I remember from media reports at the time. We cannot ever take progress on equality for granted, and it is vital that we take seriously that drop in protections for LGBTQ+ people and that the current increase in hate crime is met with the toughest possible sanctions that can be delivered.

Perhaps even more shocking than the testimonies in the Compassion in Care report is the fact that, of the 486 services involved in the testimonies, 481 were still rated as good by the Care Quality Commission. A 2016 CQC-commissioned report found that older people were hiding their sexual orientation and gender identity because of fears of discrimination. The abuse that Noel suffered and the abuse documented by Compassion in Care are utterly abhorrent, and there should be no place for them anywhere, still less in settings that are trusted to look after our most vulnerable loved ones—older people who are physically frail or suffering the disorientation of dementia.

For the current generation of older LGBTQ+ people, such abuse can also be a re-traumatisation. Those aged 75 and older were adults before homosexuality was decriminalised in 1967. They lived through the long years of section 28, have experienced life in a deeply homophobic society, are very likely to have spent a significant period of time concealing their sexuality, and have lived through the trauma of the HIV/AIDS epidemic—suffering the loss of much-loved partners, friends and community members while society stigmatised them. Older people who are LGBTQ+ are also disproportionately likely to have become estranged from family members and may lack people around them to advocate on their behalf in the care system.

I am particularly concerned about the poor response to Noel’s case. Once the horrific abuse he suffered was identified, it should have been the job of the care home, the local authority, the CQC and the Government to ensure that it could never happen again, but the reality was far from that. When Noel’s abuse was reported, staff were suspended, but Ted understands that they were allowed to return to work on a different floor of the same home. Following inspections in 2019 and again this year, the CQC continued to rate Albany Lodge as good. The fact that one local authority placed Noel in a care home in a different local authority has also presented problems in ensuring accountability.

No one should have to fear that they or a loved one will be abused in a place that has a responsibility to care for them. No one should have to fear that their sexuality or gender identity might result in such abuse. In 2016, the CQC recommended that commissioners, providers, and health and care staff should

“consider the needs of LGBT people in planning and delivering end of life care services”,

that health and care staff should

“communicate openly and sensitively about sexual orientation and gender identity as a routine part of their delivering good quality, personalised end of life care”

and that commissioners and providers should

“collect data on sexual orientation and gender identity as part of an equalities approach to monitoring end of life care outcomes.”

The Government also mentioned the need for improved monitoring in their 2018 LGBT action plan, but there is little evidence of progress. There are examples of good practice, both in the delivery of LGBT affirmative retirement housing, such as Tonic Housing in Lambeth, and in the Pride in Care quality standard championed by Care England, but it is unacceptable that monitoring the experiences of LGBT+ residents is not a mainstream part of CQC assessments. Albany Lodge should not have continued to be rated “good” while an LGBT resident was being abused under its roof, and it certainly should not have continued to be rated “good” after that abuse had come to light.

What progress does the Minister believe has been made following the publication of the Government’s LGBT action plan five years ago in 2018? What action is he taking to protect the rights of LGBTQ+ residents in adult social care? Will the Government ensure that gathering the experiences of LGBTQ+ residents and their spouses forms part of the CQC inspection framework for care homes? Will he take steps to ensure that no care home or care agency found to have allowed homophobic, biphobic or transphobic abuse can continue to be rated “good” by the CQC? Will he consider further support to roll out the Pride in Care quality standard to more care homes across the country?

When Ted spoke with me about Noel’s experience, he told me about the guilt he feels about being unable to protect the man he loved from abuse. I am sure all of us can understand that guilt, even though it is entirely misplaced. Ted should have been able to trust Albany Lodge to care for Noel and that trust was fundamentally broken. We cannot undo what happened to Noel, but we can work to ensure that it does not happen to anyone else. I hope that the Minister will set out the meaningful action that he will take to this end.

--- Later in debate ---
Helen Hayes Portrait Helen Hayes
- Hansard - -

Let me put on record a matter that I should have done at the beginning of my opening speech: I co-chair the all-party parliamentary group on adult social care—apologies for not mentioning that earlier.

I thank my hon. Friend the Member for York Central (Rachael Maskell) for her moving and powerful speech, particularly for the poem with which she finished; sometimes prose is not quite enough to convey the depth of emotion on such issues, but that poem did so very well. I thank my hon. Friend the Member for Denton and Reddish (Andrew Gwynne), who was right to locate this issue within the wider pressures facing social care and to discuss the esteem within which the sector is held. There are many good people working extremely hard every single day to deliver high-quality care, but the pressures of social care, the difficulty local authorities have finding placements and the difficulty of recruitment and retention faced by many organisations certainly do not help with the issues of scrutiny and accountability that we are concerned with today.

Finally, I thank the Minister for the tone of his remarks and his commitment to address the issue. I urge him to look more at an issue that he did not mention in his response: the Pride in Care standard, which shows already what good can look like for LGBTQ+ people in care settings, and can give assurance to relatives looking for care placements for their loved ones that the setting understands and takes seriously the very specific personalisation needed, and the need to ensure absolutely that homophobia, transphobia, discrimination and abuse are eradicated from such settings.

Question put and agreed to.

Resolved,

That this House has considered the treatment of LGBT+ people and their spouses in social care settings.

Under-age Vaping

Helen Hayes Excerpts
Wednesday 12th July 2023

(1 year, 5 months ago)

Commons Chamber
Read Full debate Read Hansard Text Watch Debate Read Debate Ministerial Extracts
Helen Hayes Portrait Helen Hayes (Dulwich and West Norwood) (Lab)
- View Speech - Hansard - -

I am grateful to all right hon. and hon. Members who have taken part in what has been a largely consensual debate. We have heard from colleagues across the House about the growth in the number of children who are vaping, concerns about physical and mental health impacts, the disruption to education and the drain on staff time in schools.

The Chair of the Health and Social Care Committee, the hon. Member for Winchester (Steve Brine), spoke of the evidence that the Committee has heard on the impact of vaping on the education of students, including interruptions to exams. My hon. Friend the Member for Ealing, Southall (Mr Sharma) highlighted the ongoing prevalence of smoking and the need for further work to tackle illegal tobacco sales as well as work to tackle vaping. The right hon. Member for Romsey and Southampton North (Caroline Nokes) spoke about the important role of vapes in smoking cessation. There is no disagreement from the Opposition on that. I am not so grateful to her for taking me back to the revolting smoke-filled environment of the toilets in my secondary school in the 1980s, which is a memory that I had long since sought to banish.

My hon. Friend the Member for North Tyneside (Mary Glindon) spoke about the need for better enforcement of the existing age verification regulations regarding vapes. The hon. Member for Erewash (Maggie Throup) highlighted the sophistication of the packaging, design and presentation of vaping products in retail outlets and how attractive that makes them. My hon. Friend the Member for City of Durham (Mary Kelly Foy), who has a long track record of work on this issue, highlighted the extent of the evidence on vaping that is already available to the Government. The hon. Member for Darlington (Peter Gibson) highlighted the impact of disposable vapes on the environment and the increase in plastic pollution. My hon. Friend the Member for Birmingham, Erdington (Mrs Hamilton) spoke from her experience as a former nurse and highlighted the serious problem of vaping equipment being used to distribute more dangerous substances by young people.

The hon. Member for Sleaford and North Hykeham (Dr Johnson), who spoke from her extensive work on this subject, highlighted concerns about the accuracy of data on the safety of vaping. The hon. Member for Tiverton and Honiton (Richard Foord) spoke about work in his constituency that shows it is possible for retailers to take a different approach to vapes. My hon. Friend the Member for Stockton North (Alex Cunningham) highlighted the Government’s failure to act on advertising. My hon. Friend the Member for York Central (Rachael Maskell) spoke about the lessons that can be learned from the anti-smoking measures that have been so successful as well as the need to recognise this issue as one of addiction and to locate it in the wider landscape of the addiction economy.

Vaping has shifted from a smoking cessation tool to a recreational activity in its own right, driven by the rapacious desire of tobacco companies—which fund many of the largest vape suppliers—to keep making a profit from the highly addictive substance of nicotine. The growth in the use of vapes by 11 to 15-year-olds has been rapid, increasing by 50% in the past three years. One in five 11 to 15-year-olds in England used vapes in 2021. The figure will be higher now.

The important role of vaping in smoking cessation has led to a widespread perception that it is a harmless activity, rather than a less harmful activity than smoking. Last year, 40 children were admitted to hospital for suspected vaping-related disorders. Young people using e-cigarettes are twice as likely to suffer from a chronic cough than non-users. There are reports that nicotine dependency contributes to cognitive and attention deficit conditions, and worsened mood disorders.

Caroline Johnson Portrait Dr Caroline Johnson
- Hansard - - - Excerpts

The brain develops gradually over time, and is thought to continue developing in people until they are 25. Some countries have different age limits for different things. Does the hon. Member think that 18 is the right age limit for vaping?

Helen Hayes Portrait Helen Hayes
- Hansard - -

The hon. Member speaks from her experience on this issue. We have set out a motion containing some immediate actions that the Government can take, which are well-evidenced, particularly from the approach taken to combat smoking. I agree that the Government should look urgently at other aspects of the regulatory framework on vaping, some of which we have heard about today.

Vaping products are marketed directly to children, named after sweets such as gummy bears, Skittles and tutti frutti, in brightly coloured packaging decorated with cartoon characters. There is also evidence, including from research undertaken by one of my constituents who I met during evidence week last week, of the burgeoning growth in vaping among 18 to 25-year-olds, almost entirely unrelated to smoking cessation. A new generation of vaping products has been designed to be desirable objects in their own right. If action is not taken to tackle the accessibility of vaping to children, we can only expect vaping among young adults to continue to grow.

Maggie Throup Portrait Maggie Throup
- Hansard - - - Excerpts

The hon. Member talks about children and 18 to 25-year-olds. What age does she think is appropriate to ban vaping—16, 18 or 25?

Helen Hayes Portrait Helen Hayes
- Hansard - -

The current law prohibits the sale of vapes to under-18-year-olds. We are not proposing a change in the law on the prohibition of sale. I was simply highlighting that young people grow, and those who become addicted to vaping under the age of 18 are much more likely to carry that addiction into young adulthood. That was the point that I was seeking to make. We can expect a pipeline of young people becoming addicted to vaping, which may stay with some of them for the rest of their lives.

This Government have been asleep at the wheel on children and vaping. They had the opportunity to vote for measures to protect children from vaping last year but failed to do so. The measures that the Minister has announced most recently are better late than never, but are simply inadequate to the task. ASH is clear that while educating young people on the risks of vaping through a new resource pack for schools is welcome, the evidence suggests that education alone will not stop children from vaping.

There is substantial evidence on what worked in reducing smoking rates among children. In 1982, when England first started monitoring smoking rates among children, just one in five children was a current smoker. Eighteen years later in 2000, the proportion was exactly the same—not because children were not educated about the dangers, but because adolescents are risk takers. Between 2000 and 2021, smoking rates among children fell from 19% to just 3%—not because of better education or enforcement but because the regulatory framework during that time ratcheted up year by year. Under the last Labour Government, all point of sale advertising and display of tobacco was prohibited. A comprehensive anti-smuggling strategy was implemented by HMRC and the UK Border Force, which dramatically reduced sales of illicit tobacco, and cigarettes were put in standardised packaging, with all the brightly coloured glamourised packaging removed.

What is true for the strategy to tackle smoking is true for the challenge of vaping. Without much tougher regulation, we will not succeed in driving down vaping among children and young people. Regulations on packaging, advertising and labelling are essential. Labour is calling on the Government to ban vapes from being branded and advertised to appeal to children, and to work with local councils—

Peter Gibson Portrait Peter Gibson
- Hansard - - - Excerpts

I am very grateful to the hon. Lady for giving way. She has taken a number of interventions from colleagues. The motion refers to children. The shadow Minister commented that there is no proposal, under a Labour Government, to change the age of 18 for purchasing tobacco. By process of elimination, does the word “children” in the motion refer to anyone under the age of 18? Will she clarify that point?

Helen Hayes Portrait Helen Hayes
- Hansard - -

I am sure Members across the House do not need much help from me to identify the definition of a child in law as being a person under the age of 18. I will simply move on from there.

What I will say about the motion is that it sets out measures over which I think there can be no disagreement. There can be no disagreement about advertising targeted at children. Measures to deal with packaging that appeals to children could be introduced right now and would have a direct impact on the very alarming numbers of children and young people who are vaping. This has been a very consensual debate, which has acknowledged and set out some of the complexities around the issue, as well as some areas where the Government should be looking at additional regulations and the wider regulatory framework around vaping. I do not think there is disagreement on that either. What we are setting out today is immediate action that is long, long overdue. Frankly, we struggle to see why the Government have been dragging their heels, refusing to act and not accepting these measures.

As I said, Labour is calling on the Government to ban vapes from being branded and advertised to appeal to children, and to work with local councils and the NHS to help ensure that e-cigarettes are used as an aid to stop smoking, rather than as a new form of smoking and addiction. It is inexplicable that the Government are resistant to those entirely proportionate and evidence-based proposals. If they will not act to protect children and young people, the next Labour Government certainly will.

Government PPE Contracts

Helen Hayes Excerpts
Tuesday 6th December 2022

(2 years ago)

Commons Chamber
Read Full debate Read Hansard Text Read Debate Ministerial Extracts
Angela Rayner Portrait Angela Rayner
- Hansard - - - Excerpts

My hon. Friend is absolutely right. He made two points, which I will come to in greater detail in my speech, but one was the lack of PPE for those on the frontline, as well as the total disrespect in the way that contracts were handed out through the VIP lane, at the expense of businesses up and down the UK that had experience and could have helped during the pandemic, but which were not party to WhatsApps or whatever else got them to Ministers and access to the VIP lane.

Take the mystery of a PPE company with links to a Tory politician. While it is for the authorities to decide whether any law is broken, and I will not comment on the ongoing investigations, we do know that PPE Medpro was referred to the VIP lane by a sitting member of the Cabinet after lobbying from another Tory politician five days before it was even legally registered as a company. The House may recall that that particular company was subsequently awarded two contracts worth £203 million to supply PPE, with £81 million to supply 210 million face masks awarded in May 2020 and a £122 million contract to supply 25 million surgical gowns awarded in June 2020. The face masks were bought by the Government from PPE Medpro for more than twice the price of identical items from other suppliers, and the surgical gowns were rejected for use in the NHS after a technical inspection. All of them were never even used. It points to a total failure of due diligence and the rotten stench of cronyism.

Helen Hayes Portrait Helen Hayes (Dulwich and West Norwood) (Lab)
- Hansard - -

During the early months of the pandemic, I was contacted by PPE suppliers known to the NHS—they were long-term suppliers—who told me that their offers of help were being rejected. One wrote to me and said that before April 2020

“there was a degree of total incompetence about government handling of PPE purchases. However, by the way they scrutinised our own offers, thereafter, we believe they knew, at least specification-wise, exactly what they were doing and that senior managers were taking steps to use ‘preferred suppliers’, even though they were aware these suppliers had neither the track record nor the level of competence to produce compliant goods”.

What does my right hon. Friend think about that?

Angela Rayner Portrait Angela Rayner
- Hansard - - - Excerpts

I think it absolutely stinks, and my hon. Friend is absolutely right, in that the public can see through it, as can those businesses, who are pretty angry. They knew that Britain faced a situation with a global pandemic that it had not faced before and they wanted to do the right thing by doing their bit. The frustration—my hon. Friend is right to quote her business—is that there is no question that the specifications should have been known. Therefore, why was all this PPE bought knowing full well it could not be used?

NHS Workforce

Helen Hayes Excerpts
Tuesday 6th December 2022

(2 years ago)

Commons Chamber
Read Full debate Read Hansard Text Read Debate Ministerial Extracts
Wes Streeting Portrait Wes Streeting
- Hansard - - - Excerpts

I am grateful for that intervention. We are in the worst of all worlds on immigration and the NHS. The Government try to have it both ways. They talk tough on rhetoric, so we end up with a very bureaucratic, ineffective and costly system, but because they fail to invest in our own homegrown talent, they are over-reliant on immigration from other countries, including those who desperately need their own doctors and nurses. I do not think it is good enough, after 12 years of Conservative Government, that we are turning away bright potential doctors, nurses and allied health professionals because the Government cannot be bothered to pull their finger out and train our own homegrown talent. We need to see improvement, so we that can draw the best international talent and make the system smooth, efficient and effective, but it is also crucial that we train our own homegrown talent.

Turning to more of the Conservatives’ excuses—we have heard the excuses of the pandemic—let us now look at the excuse they are planning to deploy this winter. There is no denying that this winter could be the most challenging the NHS has ever faced. The Royal College of Nursing, for the first time in its more than 100-year history, is planning to undertake strike action. Just this lunchtime we got strike dates from Unison, the GMB union and Unite the Union. That raises the question: why are the Government not even trying to stop the strikes in the NHS from going ahead? Surely, when the NHS already lacks the staff it needs to treat patients on time, the Government ought to be pulling out all the stops, getting around the table and negotiating to stop industrial action? So why aren’t they?

The Secretary of State said in Health questions earlier that his door is open—as if we can just sort of wander in off the street into the Department of Health and Social Care, where there will be a cup of tea and a biscuit waiting, and he will be just waiting for the negotiations. That is not how this works. Everyone knows that is not how it works. He had a nice little meeting with unions after the summer, after Labour complained that we had not seen a meeting between a Secretary of State and the unions since the right hon. Member for Bromsgrove (Sajid Javid). Goodness me, we have had three Secretaries of State since then—and two of them are the Secretary of State on the Front Bench today. Why on earth are they not sitting around the table and conducting serious negotiations? I will tell you why, Mr Deputy Speaker: they know that patients are going to suffer this winter and they do not have a plan to fix it, so instead of acting to improve care for patients and accept responsibility, they want to use nurses as a scapegoat in the hope that they avoid the blame. We can see it coming a mile off. It is a disgusting plan, it is dangerous and it will not work.

If I am wrong, perhaps Conservative Members could explain why the Government are not trying to prevent the strikes from going ahead. Perhaps they could explain why the Secretary of State ignored all requests from the health unions for meetings and conversations this summer while the ballot was under way. Perhaps they could explain what the Government’s plan for the NHS is this winter. Perhaps they could explain why a Government source told The Times newspaper that

“Ministers plan to wait for public sentiment to turn against striking nurses as the toll of disruption mounts”.

They said the quiet bit out loud and they gave the game away.

What else would explain the unedifying and embarrassing spectacle of the chair of the Conservative party going on national television to accuse nurses of doing the bidding of Vladimir Putin? I should not have to make this point, but nurses are not traitors to this country. They bust a gut day in, day out to look after all of us. We clapped them during the pandemic and now the nurses are clapped out. They are overworked, overstretched and undervalued by this Government. Let me say to the chairman of the Conservative party that he would speak with greater authority on what is in Britain’s national interests if he did his patriotic duty in his own tax affairs.

When it comes to sending a message to Vladimir Putin, why does the burden consistently fall on the working people in Britain? Why is it that NHS staff must make huge sacrifices because of the invasion of Ukraine, yet people who live in Britain but do not pay their fair share of taxes here do not have to lift a finger? When it comes to paying the bills, the first and last resort of this Conservative Government is always to pick the pockets of working people, yet the enormous wealth of tens of thousands of non-doms is left untouched. They may blame covid, they may blame health professionals, they may even blame the weather, but it is 12 years of Conservative mismanagement and under-investment that has left the NHS without the doctors, nurses and staff it needs, and patients are paying the price.

I am sure every Member of this House, indeed everyone in the country, knows someone who has been let down when they needed healthcare in recent months. They all say the same thing: the NHS staff were brilliant, but there simply are not enough of them. There is no NHS without the people to run it, yet today there are more vacancies in the NHS than ever before: 9,000 empty doctor posts, 47,000 empty nursing posts, and midwives leaving faster than they can be recruited. There are 4,600 fewer GPs than there were a decade ago, and the right hon. Member for Bromsgrove admitted last year that the Government are set to break their manifesto promise to recruit them back.

Helen Hayes Portrait Helen Hayes (Dulwich and West Norwood) (Lab)
- Hansard - -

I was looking at a message from a constituent this morning who told that he went to A&E having waited four weeks for a GP appointment. Does that not speak to a lack of investment in the NHS workforce over 12 years and a lack of adequate planning? I know how hard GPs work in my constituency, but the lack of GP availability to staff surgeries and provide those appointments is placing unneeded pressure on A&E. That is on this Government’s watch.

Wes Streeting Portrait Wes Streeting
- Hansard - - - Excerpts

I wholeheartedly agree with my hon. Friend. As we see so often with this Government, they make promises but break them. They try to fool the public into thinking they are delivering more GPs—or indeed more police officers—when it was the Conservative party that cut them. They try to give with one hand, but they take with the other, and after 12 years people have had enough.

Of course, it is not only the promise to recruit more GPs that the Conservatives are breaking. We had the promise of 40 new hospitals, which the Secretary of State repeated today, yet in response to the question posed by the right hon. Member for Uxbridge and South Ruislip (Boris Johnson), the Secretary of State said that of those 40 new hospital schemes

“five hospital schemes are in construction, two are now completed and we aim to announce the next eight by the end of this year.”

So, where are the other 25? Where are these 40 new hospitals? As far as I can tell, they exist only in the imagination of the former Prime Minister. Yet the script has not changed—Ministers are still here claiming 40 new hospitals.

When I visited Leeds with the shadow Chancellor, my right hon. Friend the Member for Leeds West (Rachel Reeves), I saw a vast pile of dirt where a new building was due to go up. We heard today that the Government cannot even negotiate an agreement with the hospital to get the site working and get the new facilities built. With every minute, every month and every year of delay construction costs are going up, so taxpayers are left in the worst of all worlds: broken promises, no 40 new hospitals, and paying through the nose for the ones that are being built because of Government incompetence.

We see the tragic consequences of the shortages and broken promises in the NHS. My hon. Friend the Member for Rotherham (Sarah Champion) raised the tragic case today at Health questions of a five-year-old boy who had what his doctor described as the worst case of tonsilitis he had ever seen. He was turned away from hospital, with his parents told there were no beds and not enough doctors. His infection worsened and five-year-old Yusuf later passed away. His death certificate recorded the primary cause of his death as pneumonia and the secondary cause as tonsilitis. What kind of country are we living in when a five-year-old boy can die of tonsilitis? This is criminal.

I met Yusuf’s uncle, Zaheer Ahmed, last week, and I did not know what to say to that poor man and his grieving family, who lost that little boy in the most unimaginable circumstances. I invite the Secretary of State to meet Yusuf’s family to hear how that little boy was failed and to hear at first hand about some of their interactions with the NHS, which I thought were completely unacceptable and intolerable. On that note, I welcome the independent inquiry that has been committed to. That is really important for the family who have been failed in this heartbreaking case. We do not want to see more cases like that.

At the heart of the crisis in the NHS—as with so many of the problems facing our country—is a failure to plan. The NHS has not had a workforce plan since 2003. That would be unacceptable in a multinational company one one-hundredth the size of the NHS. The failure to plan means that short-term fixes are always favoured over what is in patients’ long-term interests. That is why the Government cut the nursing bursary and why, this summer, in the middle of the biggest crisis in the history of the NHS, they took the infuriating decision to cut a third of medical school places.