Sudden Cardiac Death in Young People

Amanda Hack Excerpts
Monday 15th December 2025

(2 days, 18 hours ago)

Commons Chamber
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Amanda Hack Portrait Amanda Hack (North West Leicestershire) (Lab)
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I thank my hon. Friend the Member for Harlow (Chris Vince) for securing this important debate and for speaking so passionately about the issue at hand. As a reminder, 12 young, fit, healthy young people a week die of an unknown heart condition. That means that by the time we get to Christmas, 20 young people will have lost their lives. By this time next year, it will be 600 people. All of those deaths could have been prevented.

I first became aware of the scale of this tragedy when I bumped into an old school friend for his 40th birthday. He was fundraising for the brilliant Cardiac Risk in the Young, or CRY. Unbeknown to me, he had lost his brother to a sudden cardiac arrest when we were just in our teens. The second time I came across CRY, it was much closer to home. My niece’s boyfriend sadly passed away in his sleep three years ago. He was fit and healthy, having gone on a run earlier that day. His mother Lesley and my niece Izzy have been steadfast in their campaigning for CRY ever since.

What is CRY all about? It does vital work in raising awareness, supporting bereaved families and, most importantly, screening young people. CRY offers electrocardiogram screenings to all young people between the ages of 14 and 35. To date, it has screened more than 340,000 young people since its formation 30 years ago. I was lucky enough to see one of its screening days first hand at Cambridge University sports centre, organised by Hilary Nicholls, who has already been mentioned this evening, in memory of her daughter Clarissa, who passed away aged just 20 while hiking in France.

CRY is calling for the National Screening Committee urgently to review and reconsider evidence supporting the roll-out of a national screening programme, and for a national screening strategy for the prevention of young sudden cardiac death. I would welcome the Minister’s comments on that. When a similar programme was introduced in Italy in the 1980s, it saw a reduction in young people dying of 85%.

Over the past year, I have been speaking to national sporting bodies alongside my hon. Friend the Member for Beckenham and Penge (Liam Conlon) to identify which were already screening their players and how they do it, as well as meeting organisations that represent sports facilities. Just the other week, we heard the excellent news that cardiac screening is being introduced across the netball super league here in England as a requirement from next season, and every player will be screened before the season starts. I also understand that it will be working with CRY to provide screenings for clubs and players where there is nothing already in place. This comes after Kaitlin Lawrence collapsed while warming up for a netball match and hospital scans showed that she had an irregular heartbeat. Lawrence was asymptomatic, young, fit and an elite netball player, and her experience shows just how crucial it is to screen young people playing sport.

I should, however, make it clear that many people can still play sport after receiving a diagnosis. Wonderful tools are available, along with fantastic cardiologists across the country, to facilitate that. We need only observe how successful Christian Eriksen has been since his collapse on the pitch during an international game. This need not be a deterrent; it is information. It is simply not good enough to say that screening young people will put them off sport and should therefore not be widely carried out. Crucially, however, the necessary level of screening is not being undertaken, which means that we must ensure that we have access to defibs and understand how to carry out CPR, which is just as important.

My hon. Friend the Member for Beckenham and Penge (Liam Conlon) and I met Arsenal’s team doctor, Zaf Iqbal, at the club’s training ground earlier this month. Zaf is passionate about cardiac health, and has been using his position at Arsenal—and at his previous clubs—to champion greater awareness of CPR and defibs among school-age children. I also want to draw attention to the incredible work that Brentford FC is doing with its Heart of West London campaign, opening up its ground to offer cardiac screening to the surrounding community; it carries out about 1,000 screenings a year. That kind of engagement is exactly what we need to get the message embedded in our communities of how important it is to be ready in the event of an emergency.

The fact is, however, that our defib network is nowhere near fit for purpose. I recently held a “defib dash” in my constituency, which effectively worked like a small-scale community audit of our defib network. The results were deeply concerning. Most of the constituents who took part had to dash for eight minutes or longer just to get to their nearest defib. Let me remind Members that every minute CPR or a defib is not used on someone suffering from a cardiac arrest, that person’s life expectancy falls by 10%.

Mark Sewards Portrait Mark Sewards (Leeds South West and Morley) (Lab)
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My hon. Friend is making a powerful speech, as my hon. Friend the Member for Harlow (Chris Vince) did earlier. May I pursue the question asked earlier by my hon. Friend the Member for Bolton West (Phil Brickell)? Defibrillators can be incredibly useful when they are rolled out to communities, for all the reasons given by my hon. Friend the Member for North West Leicestershire (Amanda Hack). It is hard to find an area in my constituency without a defibrillator that has been fundraised for and installed by volunteers, but I must admit that I do not know how to use one. Following this debate, I will go away and make sure that I do know how to use one, but how can we roll out defibrillator training nationally to ensure that as many people as possible know how to use them in an emergency?

Amanda Hack Portrait Amanda Hack
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I thank my hon. Friend for that important intervention. Defibs talk to you; there is no need to be mystified by their use. They are clever bits of kit, and a 999 emergency responder will talk people through the process. I ask everyone please to go and be trained, because this is really important stuff.

Jim Shannon Portrait Jim Shannon
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I thank the hon. Lady for making that point, and I thank the hon. Member for Leeds South West and Morley (Mark Sewards) for his intervention. Throughout my constituency and indeed Northern Ireland, defibrillators have been supplied to every school and community centre. The communities in Ards, Ballynahinch and the Ards peninsula have defibrillators in their city and village centres. We have an organisation called Ards Peninsula First Responders, which provides speedy training every month for those who want to learn how to use a defibrillator. On our defibrillators in Newtownards and elsewhere is a small diagram—an ABC for how to use them. I have not had to do this, but I have been told by First Responders, “If you follow these three directions, you will be able to use a defibrillator as well as anyone else.” Does the hon. Lady have the same opinion?

--- Later in debate ---
Amanda Hack Portrait Amanda Hack
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The key thing that we have been trying to do in my constituency—and I would encourage other Members to do the same—is to demystify defibrillators. There are some very easy tools online that can show people how to use them, and they are such clever bits of kit that no one should be afraid of looking into it.

John Slinger Portrait John Slinger
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Does my hon. Friend agree that the activities of charities such as the Our Jay Foundation in my Rugby constituency are critically important? Naomi Rees-Issitt created the Our Jay Foundation in memory of her son Jamie. Not only has it installed hundreds of defibrillators in Rugby and the surrounding area, including bleed control kits, but—to her point—it holds training sessions in the community given by qualified paramedics and nurses. I have attended one of them, and they are lifesavers just as much as the defibs that go into our communities. All of this helps to reduce the number of sudden cardiac deaths in young people.

Amanda Hack Portrait Amanda Hack
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I thank my hon. Friend for that intervention. I think the conversation on defibs has been a really interesting one, but that is obviously just part of the solution to cardiac risk in young people. The main point I was trying to make is that, until we can roll out an effective programme of screening, we need to make sure we have the CPR and defibs tools in our toolkit to make sure we can support a person if they are going into cardiac arrest.

Finally, CPR training and knowing where the nearest defib is are important parts of the solution, but when we are looking at cardiac risk in young people, it is about how we make sure that asymptomatic individuals are screened and made aware of information about how they may react if they have an undiagnosed cardiac condition.

I want to put on record my thanks to CRY, the British Heart Foundation, Resuscitation Council UK, Brentford FC, Arsenal FC, the East Midlands ambulance service, Kerrie from Vitalise Health and First Aid Training, and all the bodies that have supported me in my questions on health screening, as well as fantastic campaigners such as Hilary. The truth is that we could be doing far more to tackle sudden cardiac death in young people, so why are we not doing so? I would really love to hear from the Minister.

Terminal Illness: Mental Health Support

Amanda Hack Excerpts
Wednesday 3rd December 2025

(2 weeks ago)

Westminster Hall
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Connor Rand Portrait Mr Rand
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I am sure that there is recognition on both sides of the House of the incredibly important work that hospices do to support patients in our communities. I am sure that the hospices that the hon. Member mentioned will be grateful for the recognition of their important work. Of course we need to ensure sustainable funding. As he will be aware, this Government have already invested a significant amount in hospice care, but I appreciate the pressures that many hospices still find themselves under.

I would be grateful if the Minister would meet Mike and me to discuss Mike’s policy recommendations in more detail and to see if they could form part of the Government’s welcome review of palliative care services and the framework that has been announced. It feels particularly pressing at this juncture, as the Terminally Ill Adults (End of Life) Bill progresses through Parliament. Although I support that legislation, I worry about the prospects of those with a terminal diagnosis. I am sure that the Minister will want to reflect on that in his response.

Amanda Hack Portrait Amanda Hack (North West Leicestershire) (Lab)
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I thank my hon. Friend for sharing the story of Sarah and Mike—he did it justice. It is really important to think about the whole care of people going through a terminal diagnosis—both the patient and their loved ones. We should make sure that the mental health of those people who are supporting the person going through a terminal illness is also considered in this conversation.

Connor Rand Portrait Mr Rand
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I could not agree more that throughout treatment we need a whole-person approach. It is the stated aim of the Government to develop that offer in our communities and in our national health service. The extraordinary toll it takes on friends and families is something that our health system should think more about, and we should give more consideration to.

The issue is so important that if we do not get it right, as I think Members across the House would reflect, the consequences may be tragic for people going through their most difficult times and experiences. For Sarah and Mike and the countless other people touched by cancer, I urge the Minister to work with me and Mike on improving mental health support for those with a terminal diagnosis.

Budget Resolutions

Amanda Hack Excerpts
Tuesday 2nd December 2025

(2 weeks, 1 day ago)

Commons Chamber
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Amanda Hack Portrait Amanda Hack (North West Leicestershire) (Lab)
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The Budget delivers on the main priorities of protecting and investing in the NHS, tackling the cost of living and maintaining economic stability. It also delivers a key ask from my constituents: to support them, their industrial heritage and the unique challenge that brings. Just a week before the Budget, the Secretary of State for Health and Social Care announced additional support for ex-mining and industrial communities with the launch of the respiratory pathways transformation fund—investment to address the inequalities that our communities so often face after a life working down the pits.

The Budget also releases the investment reserved for the BCSSS pensioners, righting that historic wrong. For North West Leicestershire, the decision means that more than 750 BCSSS members will now receive an average of an additional £100 a week. We owe great gratitude to the mineworkers and their families who helped power our nation for so long; this is their just deserts.

North West Leicestershire is a semi-rural constituency. The changes to allow the transfer of inheritance tax allowances to a surviving partner are welcome, but I know the worries of farmers in my constituency, so I ask Ministers to keep the IHT thresholds for farmers under review and to consider them in the light of Baroness Batters’s report on farming profitability that is due to be published.

This Budget, delivered by a Labour Chancellor and a Labour Government, invests in our people by supporting them. I welcome the Chancellor’s commitment towards dealing with the cost of living. With energy support worth £150 a year, the warm homes plan, frozen prescription charges and the extension of reduced bus fares, alongside the increase in the minimum wage and through the pension triple lock, we are investing in the prevention of health crises that arrive from cold homes, missed medication and social isolation. It is that kind of renewal that our systems need: targeted support that promotes wellbeing and reduces demand on our NHS.

Let me turn to investment in our young people, and to inequality. The Labour Government are feeding kids through breakfast clubs, expanding free school meals and now lifting the two-child limit. That action alone will see 450,000 children lifted out of poverty, including more than 1,700 children in my constituency. With children more likely to be in poverty than people of any other age group across the UK, lifting kids out of poverty expands their opportunity and, crucially, eases the strain on our public services, which are already grappling with avoidable health and social care pressures.

Young people growing up in poverty are twice as likely to be NEET—not in education, employment or training. We have to get hold of that. The support that the Government are providing for children and families on the lowest incomes is an investment in our future. I also note that the removal of the two-child cap removes the vile rape clause from our statute book. It should never have been okay to put women through more trauma in order for them to get financial support.

There is so much more to do. I will continue to fight for my constituents of North West Leicestershire.

Baby Loss

Amanda Hack Excerpts
Monday 13th October 2025

(2 months ago)

Commons Chamber
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Amanda Hack Portrait Amanda Hack (North West Leicestershire) (Lab)
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I thank my hon. Friends the Members for Rossendale and Darwen (Andy MacNae) and for Sherwood Forest (Michelle Welsh) and the right hon. Member for Godalming and Ash (Sir Jeremy Hunt) for securing this important debate during Baby Loss Awareness Week to give those who have experienced pregnancy and baby loss that voice and the feeling that they are not alone. When I had my son 18 years ago, I was lucky to have the support of five other mums during those first tricky years with our babies. However, sadly for three of those mums, they had also suffered the heartbreak of a miscarriage. For them, they had support from each of us. It was not a silent subject; they could talk and share about their loss. However, at the time, I remember thinking about how their partners were coping with that loss without having that same support network. It is so important that both parents have the support they need after such devastating bereavement, such as from organisations like Ashby Sands United in my constituency. Ashby Sands is a football team for men who have suffered the devastating loss of a child or a miscarriage. One of their members told me at a recent event,

“Sometimes I don’t need to say anything, the lads know how I feel. The football isn’t always good, but the friendship and the support I get from them is what I cherish.”

In this debate, it is experience that matters, and my constituent Sarah has asked me to share these words:

“Losing a baby is an incredibly difficult and isolating time, to then learn that our baby’s death was preventable is just soul destroying. Feelings of guilt and regret—and whether it could have been prevented. Mistakes were made in my pregnancy, incorrect measurements were recorded, follow up scans were not arranged, our care was mismanaged. The hospital admitted if these scans had happened and measurements were recorded accurately; we would have had a different outcome. At one of our most exciting and vulnerable times of our lives, we put our trust and care into the hands of strangers. Trusting that we will be treated with the dignity and respect that we each deserve.”

Sarah stressed the need to drive changes in teaching and learning to make maternity and childbirth safer for all. She welcomes the rapid review and its potential to bring about much-needed changes to maternity care across the UK, but she stresses the need for a trauma-informed approach to the consultation. Those who have experienced that trauma will need support to engage. Will the Secretary of State say more about how trauma will be considered in the review?

I also welcome the rapid review. My constituents can have their babies in Nottingham, Leicester or Derby. As a former Leicestershire county councillor, I sat on the health overview and scrutiny committee. The saddest report that I requested was about maternity healthcare and baby loss. As Nottinghamshire was a neighbouring trust, I wanted to understand the situation in Leicestershire. We received a report on babies who died in childbirth. In a six-year period, seven babies had died and seven families had dealt with that devastating loss. In line with the statistics on late-term loss, six of the mothers were black or Asian. Data indicates that neonatal mortality rates for black and Asian babies are over 50% higher than for white babies. Will the Secretary of State set out how he will work towards eliminating those stark inequalities in maternity and neonatal outcomes based on ethnicity and deprivation?

I have considered a number of reports on maternity and have a few reflections. Maternity healthcare needs to be considered as healthcare. I have heard phrases such as “pregnancy isn’t an illness” and “giving birth is natural”, but I have also heard from mothers who felt that they were not listened to and felt powerless. Every stillbirth, neonatal death or infant death is a tragedy. We must make efforts to prevent them from happening. I know that, together, we will fight for justice for those who deserved just a little bit more time.

Suicide Prevention

Amanda Hack Excerpts
Thursday 11th September 2025

(3 months ago)

Commons Chamber
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Amanda Hack Portrait Amanda Hack (North West Leicestershire) (Lab)
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I thank the Backbench Business Committee for granting this debate and my hon. Friend the Member for Doncaster East and the Isle of Axholme (Lee Pitcher) for securing it and for making his opening remarks in such an amazing way. We heard the devastating numbers and the personal experience of the impact that suicide has had on our communities and on ourselves. These people were important to us and, I hope, by discussing this difficult subject not only can we offer comfort and support, but provide the hope that we can put in place improvements to prevent someone else from taking their own life.

I want to speak about two friends: my childhood friend who lost her dad to suicide when we were just in our teens; and one who made the decision to take his own life just a couple of months ago. It was not until my friend’s funeral in July that I reflected that while those suicides were more than three decades apart, the similarities between the two men who made that decision were stark. They were both men in their early 50s, successful and running their own businesses. They were amazing family men who were well respected in their work and in their social circles. Yet they still both made that ultimate decision to take their own lives, leaving those left behind to unpack their grief and sorrow with the overriding question: “Why?”

In the face of such loss, we often search for answers—something to help us make sense of the silence and the unanswered questions. While no single explanation can ever truly account for an individual’s decision, patterns begin to emerge when we look more closely at the broader picture. We can look at age and gender, and the risk of suicide is highest among men aged between 45 and 54. It is three times more common among men than women—a gap that only continues to grow. We can look regionally too. Between 2021 and 2023, the east midlands had a suicide rate of 11.3 deaths per 100,000 people, placing us above the national average and making us the fifth highest of the English regions. We also need to look nationally, and we have to create some hope.

Local authorities develop strategies to prevent suicide, but the funding for voluntary services has, sadly, gone awry in recent years. We need the much more important national debate. We can look at the limits of existing mental health support and the reality that nearly a third of people who die by suicide are in contact with mental health services in the 12 months leading up to their death.

Those are of course important insights, but they are just insights, just statistics. We have to search for answers to this difficult question. Although we might never know why someone decides to take their own life, what matters is what we do with the information that we do know. We know that we have to build resilience for young people in schools, teaching our young people how to promote good mental health and wellbeing in themselves. We need to equip people with the language to talk about how they feel, the confidence to ask for help, and the tools to support themselves and each other through the inevitable challenges in their life. We can also look to our local organisations, such as the Leg Up Project in my constituency. Its core philosophy is about building resilience, and tackling loneliness and isolation.

The Government’s commitment to transform mental health service with 24/7 neighbourhood mental health centres is a fantastic start, but it will mean nothing if we are not giving people the tools that they need to communicate to get themselves there in the first place. Prevention of deaths by suicide will come from continued conversations, a growing understanding of the mental health landscape and hearing the voices of those whom we have lost and those of us struggling now—those voices are the ones that truly matter.

Nusrat Ghani Portrait Madam Deputy Speaker (Ms Nusrat Ghani)
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We now come to the Front Benchers, and I call the Liberal Democrat spokesperson, Dr Danny Chambers. We have three doctors on the Front Benches.

Non-surgical Aesthetic and Cosmetic Treatments

Amanda Hack Excerpts
Thursday 11th September 2025

(3 months ago)

Westminster Hall
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Amanda Hack Portrait Amanda Hack (North West Leicestershire) (Lab)
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It is a pleasure to serve with you in the Chair, Sir Desmond. I thank the hon. Member for Bromsgrove (Bradley Thomas) for securing this important debate.

With every cosmetic or surgical procedure, there are always risks, so we need our practitioners to be fully trained and experienced in the work that they do. When we think of cosmetics, we think of products that we might find on the high street, which are well tested, and sold or marketed by well-known and trusted brands. When somebody takes the next step of getting a cosmetic procedure, they need to be able to trust their practitioners in the same way that they trust those brands.

The risk of complications increases significantly, however, when the individual carrying out the procedure is not sufficiently knowledgeable or trained, and is not using regulated products or carrying out the procedure in suitable premises. That appears straightforward, but we have been waiting for some time for regulation. We also need to consider how we provide appropriate information to people who wish to receive the procedures. Normally, a licensed practitioner gives effective and clear advice.

The desire and pursuit for a perfect result is also growing, so it is perhaps no surprise that complications are increasing. Over six weeks in the summer, 38 cases of botulism were recorded in the east, east midlands and north-east. According to the UK Health Security Agency, the evidence so far suggests that all the clinics involved in those cases had used unlicensed, botox-like products. It is incredibly important to remember that such situations are not just about “botched” botox, where the results are not as expected due to an error in placement; they can cause serious medical complications. People are essentially being poisoned.

Simon Opher Portrait Dr Simon Opher (Stroud) (Lab)
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As well as botox, I would also like to talk about the dangers of fillers. A patient in my constituency, Alice Webb, lost her life due to a procedure called a Brazilian butt lift. We owe it to her, as a Government and as a Parliament, to prevent that happening again and to protect people in this country.

Amanda Hack Portrait Amanda Hack
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The case that my hon. Friend mentions is the reason that we are all here. The pursuit of beauty enhancement should not risk somebody’s life, so regulation is very important.

The most recent cases recorded in the east midlands involve reports of patients experiencing difficulty in swallowing, slurred speech and breathing difficulties requiring respiratory support. Given there have been 38 incidents in just a few weeks, we can imagine the countless cases across the country over the last few years. That is why regulation is crucial. I am pleased that our Government are beginning to act and have confirmed the introduction of a licensing scheme, and that, according to Ministers, that is just the beginning. I am sure that the Minister will talk more about the regulation.

I wonder whether we need to break away from the term “cosmetic”. Having a cosmetic procedure is so much more than using a favourite moisturiser or serum; it is a serious procedure that should be carried out by a qualified individual. When I speak to salons in my constituency that provide these procedures, they want to see regulation in place because they are proud of the work that they do for people and of their clients’ results. They want to make sure that people have good experiences rather than the negative ones that my hon. Friend the Member for Stroud (Dr Opher) mentioned.

Licensing will be important to ensure the consistency of standards and to protect individuals from the potentially harmful physical, emotional and psychological impacts of poorly performed non-surgical cosmetic procedures. I would like to hear from the Minister how the regulation and enforcement will happen. Will support be given to the local authorities asked to undertake that work?

I also look forward to the report by the Women and Equalities Committee on its current inquiry into the health impacts of breast implants and other cosmetic procedures. After the regulations are passed, I will write to each salon in my constituency to update them of the changes and hopefully reassure them that their skills and professional qualifications are not being pushed aside by unlicensed practitioners who take advantage of vulnerable people.

Defibrillators

Amanda Hack Excerpts
Tuesday 2nd September 2025

(3 months, 2 weeks ago)

Westminster Hall
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Amanda Hack Portrait Amanda Hack (North West Leicestershire) (Lab)
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It is a pleasure to serve under your chairship, Mr Stringer. I thank the hon. Member for Bishop Auckland (Sam Rushworth) for bringing forward this important debate. I declare my membership of the all-party parliamentary group for defibrillators.

As has already been said, every minute that someone is in cardiac arrest without receiving CPR and defibrillation, their chance of survival decreases by 10%. I recently hosted CPR and defib training in my constituency, with an outstanding East Midlands Ambulance volunteer trainer, supported by Resuscitation Council UK. It was made clear that every single moment counts when starting CPR. If it needs to be performed, get help. Every minute can feel like a long time when carrying out chest compressions, but it is vital to continue until professional help and a defib become available. I also encourage everyone to complete free training online, and, if possible, attend an in-person course.

In my constituency, almost 50% of postcodes are not within easy reach of a defibrillator. On average, my constituents have a five-minute run, not including the time it takes to locate and unlock the defib. The stark reality of how far a new local business, CoalWorks, was from the nearest defib inspired it to take action. It successfully fundraised to install one at its gym on the business park. With its efforts, it was able to purchase an additional unit, and thanks to the partnership with Hinckley and Rugby building society, a second defib will soon be available in the centre of Coalville, benefiting the wider community. The cabinet outside the building has already been installed.

Having publicly accessible defibs is so vital. Let us imagine it is a Sunday and the only defib nearby is locked inside a closed shop: with so many sports clubs active on Sundays, and with exercise known to exacerbate underlying cardiac conditions, it is vital that these defibs are 24/7, yet too many remain tucked away. It is no surprise that Resuscitation Council UK estimates that the survival rate for out-of-hospital cardiac arrests in North West Leicestershire is just 1.6%. But small changes can make a huge impact.

Tom Hayes Portrait Tom Hayes (Bournemouth East) (Lab)
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Will my hon. Friend join me in congratulating the work of Bournemouth Heart Club, which promotes good heart health, and also Regency Living, HENRA—Hengistbury Residents’ Association—and St Nicholas Church, which funded a defibrillator at St Nicholas Church that, just seven weeks after installation, saved a life at Hengistbury Head? Some 41% of postcodes in Bournemouth East are outside of direct reach of a defibrillator. Does she agree that we need to end this postcode lottery now?

Amanda Hack Portrait Amanda Hack
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Of course, I agree; heart health is really important, but access is key, too. We can all do our own bit. We can check if the defib nearest to us is registered and encourage a community audit. If it is not registered, someone in an emergency might not know it is there. Every school in North West Leicestershire has received a defib from the Department for Education, but it appears that only 28% have registered theirs—not even half. I will be writing to every school in my constituency to urge them to get their devices out of the box and on to the register.

We can also petition our local stores, supermarkets, schools and GP practices to mount their defibs on the outside of their buildings, where they are always accessible, and we can fundraise to secure new defibs in the most impactful locations. One resident contacted me after a fundraiser at the Kings Arms in Coleorton, expressing frustration that VAT is charged on lifesaving equipment purchased with charitable donations. I ask the Minister to consider that in her response.

There is so much more to say: I feel deeply passionate about the urgent need for more defibs, greater knowledge about CPR and defib use, better awareness of heart health and a wider screening programme to detect risk—in young people in particular.

That was it: around three minutes. Had resuscitation not been started while I was speaking, the chances of surviving a cardiac arrest would have dropped by 30%.

Amanda Hack Portrait Amanda Hack (North West Leicestershire) (Lab)
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I thank my hon. Friend the Member for Edinburgh South West (Dr Arthur) for his tireless work on the Bill. If anyone gets the opportunity to listen to the podcast he did a few weeks ago, it is well worth listening to—really insightful. He offers the opportunity to address the deep inequalities faced by people diagnosed with rare and less common cancers. In fact, this is the second debate on rare cancers that I have attended this week. The hon. Member for Esher and Walton (Monica Harding) mentioned the previous debate; I had the pleasure of sitting alongside my hon. Friend the Member for Truro and Falmouth (Jayne Kirkham) in that debate on myeloma—a rare blood cancer that affects just a few thousand people a year in the UK. However, there is a concern of the link between the condition and people flying helicopters in the military.

As we have heard, around 180,000 people are diagnosed with a rare or less common cancer every year. Last year, one of those was my constituent Isaac Wilton, and his story will be the basis of my speech. I had the pleasure of meeting Isaac last year. He was diagnosed with a grade 4 glioblastoma brain tumour at just 21—he had a seizure during a workout at the gym. His sister Harriet set up a fundraiser to pay for immunotherapy, and within the first six days they raised £144,000. Isaac and his family have organised various events to support the cause, including charity football matches and community events. Last October, family and friends joined Isaac to walk from Leicester City football club to Coalville clock tower, covering 13 miles—an extraordinary feat. The campaign is now at an incredible £193,000, just shy of its £200,000 goal to pay for Isaac’s treatment. His fundraising not only helps him access life-altering treatment, but raises vital awareness about the urgent need for more brain tumour research, which receives around just 1% of national cancer research funding.

Isaac’s voice matters much more than mine in this debate, and I would like to share something he has written with the House:

“The disease I’m fighting, that gives every single person diagnosed such a poor prognosis, only allows for a little hope. Living a life day to day almost waiting for the bad news. I’m one of the lucky ones. One of the lucky ones who was able to see a community of over 15,000 people come together. Some of which I knew and some from overseas…to raise enough money for me to at least explore other options that I cannot be given through the NHS. Options that might just give me a second chance. But me and others in this fight should be given a fair chance to win this battle because the chances right now are heartbreaking.”

This Bill will give hope to Isaac and others in his position. As we have heard, we are not talking about a minority. In the UK, 47% of cancer diagnoses and 55% of all cancer deaths are from rare and less common cancers. A system that leaves nearly half of cancer patients behind is not a fair system—not for Isaac, not for the father-in-law of my hon. Friend the Member for Edinburgh South West, and not for many others we have heard about today. I will support the Bill today, and I thank my hon. Friend for his incredibly dedicated hard work in bringing forward this change.

Spending Review: Health and Social Care

Amanda Hack Excerpts
Thursday 12th June 2025

(6 months ago)

Commons Chamber
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Karin Smyth Portrait Karin Smyth
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We are committed to ensuring that those RAAC hospitals are sorted and fit for purpose, and I was able to visit Airedale myself recently. We are asking people on the ground to do a really difficult job, keeping hospitals going and serving patients while remedying the problem of RAAC. I do not have in front of me the exact timescale for the hon. Gentleman’s hospital, but I encourage it to work very closely with the team at the Department of Health, which I think is working really well. As long as a clear timetable has been put forward, I will ensure that the hon. Gentleman gets a response to his question.

Amanda Hack Portrait Amanda Hack (North West Leicestershire) (Lab)
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I thank the Minister for her statement. The NHS is the No. 1 issue for my constituents, and I know that they will welcome the investment in the spending review. My constituency is a rural area, and one thing people often raise with me is ambulance waiting times, which I am pleased to report have improved in every category over the past year. Can the Minister explain how the spending review will ensure continued improvements in ambulance waiting times, supporting my constituents to get emergency care when they need it?

Karin Smyth Portrait Karin Smyth
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My hon. Friend is right to raise the issue of ambulances. We ensured that they were a key part of our urgent and emergency care plan, which was issued the week before last, I think—I cannot remember the exact date. We recognise how crucial that issue is, and how much more can be done by ambulances by the roadside. I was privileged to go out with the South Western ambulance service recently; it is so impressive to spend time on the frontline with people who are dealing with whatever comes at them. We know that they can do more, including remotely. We are very keen to ensure that ambulances do not spend time outside hospitals; that is why we have introduced a 45-minute turnaround time through the release to rescue scheme, which has worked very successfully in many parts of the country. We are keen to see that scheme rolled out across the country, so that we do not have ambulances queuing outside of hospitals with people, but put them back on the road where they need to be.

NHS England Update

Amanda Hack Excerpts
Thursday 13th March 2025

(9 months ago)

Commons Chamber
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Caroline Nokes Portrait Madam Deputy Speaker (Caroline Nokes)
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Order. I gently ask right hon. and hon. Members, and indeed the Secretary of State, to keep their questions and answers short so that I can get everyone in.

Amanda Hack Portrait Amanda Hack (North West Leicestershire) (Lab)
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Two GP practices have told me that they are waiting for section 106 money to be released so that they can improve their facilities, but that it has been stuck between decision-makers. Will the Secretary of State outline how the changes will help to release those kinds of delays and finally allow North West Leicestershire residents to get the facilities that they deserve?

Wes Streeting Portrait Wes Streeting
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I am grateful to my hon. Friend for raising that example. She is welcome to contact my office to see if we can expedite that kind of decision-making. In fact, Members will have seen the work that the Deputy Prime Minister is doing to speed up decision-making in local government, which has an impact and a bearing on the NHS. We will work together to speed that up, so that where resources are available, we get them out and deliver change as quickly as possible.