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Written Question
Energy: Medical Equipment
Monday 20th November 2023

Asked by: Damien Moore (Conservative - Southport)

Question to the Department for Energy Security & Net Zero:

To ask the Secretary of State for Energy Security and Net Zero, what steps her Department is taking to support people with motor neurone disease with the cost of energy for medical equipment.

Answered by Amanda Solloway - Government Whip, Lord Commissioner of HM Treasury

Ministers have recently met with the Motor Neurone Disease Association to discuss this matter. Government is continually reviewing the financial support it provides for the differing energy needs within its communities and prioritising support for the most vulnerable. The Help for Households campaign includes numerous cost-of-living support schemes in 2023/2024, such as the Winter Fuel Payment, Warm Home Discount, Disability Cost of Living Payment and the Cost-of-Living Payment for those on means tested benefits which has increased from up to £650 in 2022/2023 to £900 in 2023/2024.

Additionally, the Ofgem energy price cap and Energy Price Guarantee (EPG) will continue to work together to protect consumers as the EPG will remain in place as a safety net until March 2024 should wholesale prices increase significantly during this period.


Written Question
Motor Neurone Disease: Carers
Monday 20th November 2023

Asked by: Damien Moore (Conservative - Southport)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what assessment she has made of the implications for her policies of the report on Understanding the experiences of unpaid carers of people living with Motor Neurone Disease, published by the Motor Neurone Disease Association in November 2022.

Answered by Helen Whately - Minister of State (Department of Health and Social Care)

No assessment has been made on the policy implications following the publication of the report.

Under the Care Act 2014, local authorities are required to undertake a Carer’s Assessment for any unpaid carer who appears to have a need for support and to meet their eligible needs on request from the carer.

In 2023/24, £327 million of Better Care funding has been earmarked to provide short breaks and respite services for carers. This also funds additional advice and support to carers and a small number of additional local authority duties.


Scottish Parliament Debate - Main Chamber
Dying in the Margins Project - Thu 16 Nov 2023

Mentions:
1: Stevenson, Collette (SNP - East Kilbride) research shows that, on average, a person’s energy bill will almost double following a diagnosis of motor - Speech Link
2: Doris, Bob (SNP - Glasgow Maryhill and Springburn) regarding the constructive work that we were trying to do on securing such adaptations for people with motor - Speech Link


Commons Chamber
Oral Answers to Questions - Mon 13 Nov 2023
Department for Work and Pensions

Mentions:
1: Justin Tomlinson (Con - North Swindon) conditions criteria should allow us to look at those who sadly have degenerative conditions such as MS and motor - Speech Link
2: Alan Brown (SNP - Kilmarnock and Loudoun) work capability assessments on the (a) financial and (b) mental wellbeing of people with Parkinson’s disease - Speech Link
3: Hannah Bardell (SNP - Livingston) For those who suffer from endometriosis, Crohn’s disease and colitis, incontinence is a daily challenge - Speech Link


Written Question
Energy: Medical Equipment
Monday 13th November 2023

Asked by: Ian Byrne (Labour - Liverpool, West Derby)

Question to the Department for Energy Security & Net Zero:

To ask the Secretary of State for Energy Security and Net Zero, what steps his Department are taking to provide financial support for energy costs to people with (a) motor neurone disease and (b) other conditions who run assistive medical equipment in their homes.

Answered by Amanda Solloway - Government Whip, Lord Commissioner of HM Treasury

The Government keeps under continual review the financial support it provides for the differing energy needs within different communities and prioritises support for the most vulnerable.

Last winter the government paid around half of the typical household's energy Bill. And going into this winter, The Government has in place multiple schemes to support households with energy costs. These include the Winter Fuel Payment, Warm Home Discount, Disability Cost of Living Payment and the Cost-of-Living Payment for those on means tested benefits which has increased from up to £650 in 2022/2023 to £900 in 2023/2024.

Additionally, the default tariff price cap and Energy Price Guarantee will continue work together to protect consumers as the EPG will remain in place as a safety net until March 2024 should wholesale prices increase significantly during this period.


Lords Chamber
King’s Speech - Thu 09 Nov 2023
Department of Health and Social Care

Mentions:
1: Baroness Browning (Con - Life peer) With old age comes frailty, disease and loneliness. - Speech Link
2: Lord Thurlow (XB - Excepted Hereditary) resolve the NHS exclusion for those struggling with this and other neurological conditions—we know of motor - Speech Link
3: Baroness Pinnock (LD - Life peer) We are going to welcome it because we believe in cutting disease and early death. - Speech Link


Scottish Parliament Debate - Committee
Scottish Employment Injuries Advisory Council Bill: Stage 1 - Thu 09 Nov 2023

Mentions:
1: None We started with amyotrophic lateral sclerosis, which is a form of motor neurone disease. - Speech Link
2: None We started with amyotrophic lateral sclerosis, which is a form of motor neurone disease. - Speech Link


Select Committee
Session 2022-23 Formal Minutes

Formal Minutes Oct. 26 2023

Committee: Backbench Business Committee

Found: made oral representations: • Andrew Lewer [R] and Mr Steve Baker [R]: Investing in the future of Motor


Deposited Papers
Department for Work and Pensions

Sep. 19 2023

Source Page: I. Industrial Injuries Advisory Council (IIAC) annual report 2022/23. Incl. appendices. 27p. II. Letter dated 14/09/2022 from Tom Pursglove MP to the Deposited Papers Clerk regarding a document for deposit in the House libraries. 1p.
Document: IIAC_Aannual_Report_2022-23.pdf (PDF)

Found: Both occupationally related malignant and non- malignant disease in women is expected to be a focus


Commons Chamber
Football and Dementia - Thu 14 Sep 2023
Department for Business and Trade

Mentions:
1: Ian Blackford (SNP - Ross, Skye and Lochaber) House asks the Government to investigate the links between football and sport-related neurodegenerative disease - Speech Link
2: Ian Blackford (SNP - Ross, Skye and Lochaber) House asks the Government to investigate the links between football and sport-related neurodegenerative disease - Speech Link
3: Grahame Morris (LAB - Easington) , motor neurone disease and Parkinson’s disease. - Speech Link
4: Grahame Morris (LAB - Easington) as an industrial disease. - Speech Link
5: Stuart Andrew (CON - Pudsey) as an industrial disease. - Speech Link
6: Jim Shannon (DUP - Strangford) neurodegenerative disease, and for outfield players but not goalkeepers. - Speech Link