Human Genomic Data: Safeguarding
Preet Kaur Gill Excerpts(1 day, 7 hours ago)
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The Parliamentary Under-Secretary of State for Health and Social Care (Preet Kaur Gill)
This is a joint statement made with the Department for Science, Innovation and Technology.
Human genomic data drives medical and scientific breakthroughs that benefit people by helping to identify some of the underlying factors in who will develop diseases and how they progress, leading to the development of new treatments. It also contributes significantly to global scientific benefit and economic growth. The UK is a global leader in human genomic data, due to the scale, richness and diversity of its datasets.
However, we also know that human genomic data, if shared without due care, has the potential to present national, economic and biological security risks to the UK. The UK Government are committed to keeping human genomic data safe. Keeping human genomic data secure is also important in maintaining the trust of the public in how their health data is used, even more so when people have voluntarily shared their genomic data for research studies. While there are clear legislative requirements and regulatory frameworks that help protect people’s health data, there is no clear statement of the Government’s expectations regarding how human genomic data should be made available for research.
Therefore, over the last 12 months, we have been considering how to protect people’s privacy and security, while continuing to make human genomic data available for legitimate research. Today we are publishing new guidance for UK Government funded major holders of human genomic data that make data available to external users. This applies to Genomics England, Our Future Health, UK Biobank and NIHR BioResource. It sets out recommendations on how these bodies can make data available in a way that manages the benefits of global access and use of human genomic data, while managing security risks.
The guidance is in three parts:
The first part uses the Office for National Statistics’ “Five Safes” framework, which is widely regarded as best practice in protecting data when making it available to users.
The second part sets out a framework to support major holders of human genomic data when considering whether to make data available to users outside of the UK.
The third part sets out the expectations on protective security and the measures that holders should have in place to manage insider risk and protect their physical environment.
The guidance makes clear recommendations for how major holders of human genomic data should make data available using the Five Safes framework: safe settings, safe data, safe people, safe projects and safe outputs. It recommends that:
Human genomic data should be made available through one or more secure data environments, which have an appropriately robust “airlock” in place—the airlock places controls on the data and tools that are allowed into or out of an SDE.
Holders of human genomic data should have robust policies and processes in place to assess individuals who are potential users, and the organisation sponsoring the project to check access is justified before it is granted.
Careful consideration should be given where a user or their sponsoring organisation have a history of data breaches or misuse: the expectation is that a history means approval will not normally be given.
Access should be granted only for projects that are intended to benefit human health or deliver wider public benefit.
Access to data by users located outside the UK is considered an international data transfer. The guidance makes it clear that where a holder of human genomic data is considering access by a user located outside the UK, in a country or territory that is not covered by UK adequacy regulations, a transfer risk assessment must be completed before access is allowed. Adequate countries and territories are those that the UK Government have assessed as having a level of data protection that is “not materially lower” than that provided for by UK law. This allows personal data to be sent to those countries without the need for additional transfer mechanisms and safeguards.
As the guidance notes, the Information Commissioner Office’s TRA tool can help holders complete their transfer risk assessment. Given the potential significant personal impacts that could be associated with HGD, it is likely to be considered a “high harm risk” category of data transfer. GDPR requires supplementary measures to be put in place if, after risk assessment, relevant tests are not likely to be met. The guidance sets out some criteria that holders of human genomic data can use when assessing whether the data protection test is met.
The way in which human genomic data can be made available safely and securely for a range of research and other uses is rapidly developing as technology advances. We will, therefore, keep this guidance under review and will update it when required.
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Department of Health and Social Care
Preet Kaur Gill Excerpts(3 days, 7 hours ago)
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The Parliamentary Under-Secretary of State for Health and Social Care (Preet Kaur Gill)
I will try to answer all the questions that have been put to me in the short time I have. First, I am grateful for the contributions made by hon. Members, and I thank the Chair of the Health and Social Care Committee, the hon. Member for Oxford West and Abingdon (Layla Moran), for securing this debate.
The UK-US pharmaceuticals arrangement is an important step forward for patient access to innovation and the future of our life sciences sector. This arrangement is fundamentally about patients by ensuring that they can benefit from life-changing medicines as they are developed, rather than see the UK being left behind. We have already seen the benefit from those changes, with NICE approving life-changing treatments such as vorasidenib, a brain cancer drug for patients as young as 12.
The UK’s life sciences sector is one of our greatest national strengths. It saves lives, supports jobs and underpins innovation across our economy. I am proud that thanks to this arrangement, the United Kingdom will be the only country in the world to have secured a commitment to tariff-free access for pharmaceutical exports into the United States.
The Chair of the Committee raised NICE and VPAG changes and rebates. My right hon. Friend the Member for Hayes and Harlington (John McDonnell) also raised a number of issues, as did my hon. Friend the Member for York Central (Rachael Maskell). I will address them now.
The joint Government and industry taskforce has been discussing the options for continuing to evolve our system to ensure that we maximise benefits to patients and the economy. It will make recommendations on pilot programmes as per the UK-US arrangement commitment, and I look forward to providing an update to the Committee on that in due course.
I know there has been concern that these changes undermine NICE’s independence, but that is not the case—let me just be clear about that. NICE will continue to make its recommendations based on evidence, clinical effectiveness and value for money, free from political interference. The change will allow Ministers to set the overall threshold within which NICE operates, not to determine individual decisions. This will preserve NICE’s core role as an independent evaluator, while ensuring that the framework that it uses reflects how we value innovation and patient benefit.
Concerns were also raised about the fact that the UK commitments are larger than the US commitments, but I do not agree. The UK has made policy changes to improve access for patients, while the US has committed to tariff protection for UK exports, which is significant given the scale of that market. The commitments deliver improved patient access in the UK and protection for UK exports.
Preet Kaur Gill
I am trying to get through all these questions as quickly as I can. I will give way to the hon. Gentleman shortly.
On the VPAG changes and rebates, alongside changes to NICE recommendations, the arrangement affects how pricing and repayment mechanisms operate through the voluntary scheme for branded medicines pricing, access and growth. To ensure predictability for the industry going forwards, given the unexpectedly high payment percentage for newer medicines for 2025, the Government have committed to ensuring that future VPAG rates do not exceed 15%. This will support life sciences investment and patient access to medicines while ensuring that the scheme can continue to work for both industry and the NHS, keeping the medicines budget sustainable. I look forward to engaging with the sector on the future of the voluntary scheme, with negotiations due to begin next year informed by the outcomes or interim findings from pilot programmes that were launched as early as this September.
Preet Kaur Gill
With respect, I am going to answer the questions that have been put to me by many hon. Members, and I am coming to the impact assessment.
We have been clear that the estimated short-term impact is around £1 billion in England over the spending review period. Costs will increase over time as NICE approves more medicines, but precise long-term costs cannot be modelled as a single figure; they depend on future medicines, NICE approvals, uptake and wider commercial developments.
Members mentioned a number of figures. I do not recognise the £9 billion and £14 billion figures for costs. Spending on innovative medicines increases year on year as new treatments become available, so underlining growth would be expected to continue regardless of this arrangement, and often the figures cited publicly do not take that into account. We are committed to increasing spending on medicines as a proportion of NHS spend, ending the recent decline in the proportion of health spend dedicated to medicines and increasing spending on innovative medicines to 0.6% of GDP.
The Chair of the Science, Innovation and Technology Committee, my hon. Friend the Member for Newcastle upon Tyne Central and West (Dame Chi Onwurah), and my hon. Friend the Member for North West Cambridgeshire (Sam Carling) raised a really important point. Life sciences is one of our most productive sectors. It underpins research and development, clinical trials and high-value manufacturing, and it supports jobs across the country. Over £1 billion in industry investment has already been secured since the announcement of this arrangement in December last year. That includes AstraZeneca’s recent announcement of a £300 million investment into R&D sites at Cambridge and Macclesfield. That demonstrates the confidence that this key sector has in the UK. Maintaining a strong commercial environment helps ensure continued investment and the development of new treatments. This is not separate from patient benefit. It enables the pipeline of the new medicines that NHS patients ultimately rely on.
Layla Moran
I am frustrated, because everything the Minister is saying is in the press release. Can she please answer the question? Will the Government release the impact assessment? If they will not, will they at least allow a Select Committee to see it confidentially?
Madam Deputy Speaker (Ms Nusrat Ghani)
Order. We are running out of time. Minister, please respond as briefly as you can.
Preet Kaur Gill
I recognise the Committee’s request for the impact assessment, but the analysis is scenario-based, contains commercially sensitive assumptions and remains linked to live policy development. Officials should be able to produce confidential advice for Ministers to inform trade and other negotiations, and we will not apologise for maintaining such confidentially where doing so is in the national interest.
Madam Deputy Speaker
I call Layla Moran to wind up the debate briefly, in under a minute.
Diethylstilbestrol: Intergenerational Impact
Preet Kaur Gill Excerpts(4 days, 7 hours ago)
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The Parliamentary Under-Secretary of State for Health and Social Care (Preet Kaur Gill)
I am grateful for the opportunity to respond to this important debate on the intergenerational impact of diethylstilbestrol on women. I begin by applauding the perseverance of my hon. Friend the Member for Bournemouth West (Jessica Toale) and the courage of those affected by the impact of DES, including the campaigners, many of them women, and their families, who have worked for many years to ensure that their experiences are heard and understood. I was honoured to meet some of them earlier today, and I thank them for being here in the Gallery tonight—mothers and daughters, on behalf of their children and grandchildren.
On 5 November 2025, my right hon. Friend the Member for Ilford North (Wes Streeting), the then Secretary of State for Health and Social Care, issued a formal apology on behalf of the Government to all those who have been affected by DES. I wish to reiterate that apology today. At this stage, the Government’s focus is on carefully considering the available evidence and determining the most appropriate next steps, rather than simply establishing a public inquiry. Our current work includes ensuring that appropriate clinical pathways, professional awareness and sources of support are in place for those who may have been affected by DES exposure.
We have taken action to raise awareness of DES among health professionals. On 12 December 2025, Professor Peter Johnson, the national clinical director for cancer, sent a letter to all cancer alliance leaders highlighting the effects of DES and asking them to cascade guidance through their clinical networks to help to reach appropriate health professionals, including GPs. We have also taken steps to improve our knowledge of the impacts of DES. The Department has formally commissioned the University of Exeter, through the National Institute for Health and Care Research, to undertake a systematic evidence review of those impacts, because, as my hon. Friend pointed out, the current research, while useful, does not yet paint a coherent picture. For instance, existing systematic reviews of the physical impacts across first, second and third generations are relatively dated, and have reached differing conclusions. There are also primary research studies that have not yet been incorporated in those reviews, and existing reviews have not fully considered psychosocial impacts. The newly commissioned review is intended to address those gaps.
My hon. Friend asked about screening. The research ensures that any future policy on local treatment pathways, clinical guidance and potential screening arrangements is informed by the latest available evidence. It will also be important in guiding decisions on whether a lifelong screening protocol should be developed for people affected by DES. The women affected by it should, of course, be involved in this work, which is why we ensured that the university will engage with members of DES Justice UK so that it can learn from women—and some men—with lived experience of the effects.
I recognise the importance of trying to understand the scale of DES exposure and the number of people who may have been affected. The Medicines and Healthcare products Regulatory Agency has taken a number of steps to establish what regulatory action was taken by its predecessor in relation to the risk associated with DES. They include searches of agency archives, both digital and hard-copy, for documentation relating to regulatory activity associated with the use of DES; visits to the National Archives to attempt to locate records from the 1970s, including discussions of DES by the Committee on Safety of Medicines, a predecessor of the Commission on Human Medicines; and locating previous editions of the “British National Formulary” and Association of the British Pharmaceutical Industry datasheets that may detail information on the use of DES. The MHRA also contacted the General Medical Council to establish whether any direct communications on DES had been sent by the GMC to healthcare professionals directly, but the GMC could find no records of communications. Finally, there have been searches of the Yellow Card database for any reports of the use of DES, although given the time that has passed, I am sure that the House will appreciate the significant challenges in relation to locating and retrieving records between the 1940s and the 1970s. In addition, my officials are working to explore what can be done through NHS digital processes in relation to missing or destroyed medical records.
Let me again thank Members for raising this important issue, and pay tribute to all those affected by DES who have continued to campaign for recognition, support and answers.
Lisa Smart (Hazel Grove) (LD)
I am here because my constituent Helen, from Romiley, came to see me at my advice surgery on Saturday. I was waiting to raise this point until the Minister was close to ending her speech, because I want to understand what is being done and what more the Government can do to give information to people who think they may be DES daughters. Helen’s mum certainly took something during her pregnancy, but it is difficult to interpret the GP’s handwriting on the records that Helen has received. What can the Minister tell Helen and people like her who think their health conditions suggest that they are DES daughters, but who do not yet have the evidence to show that they are?
Preet Kaur Gill
I thank the hon. Member for her question, and pay tribute to Helen. My hon. Friend mentioned this important issue. While there may be 600 women out there, there are many, many more who just do not know—and, I am sure, grandchildren too. Not only should information be widely available on NHS websites, but women should be able to go to their GPs, and their GPs should be able to direct them to a screening service, while also taking seriously the issues that they raise. More needs to be more done in this regard, and I look forward to working with campaigners and with my hon. Friend to establish what more we can do when we identify gaps.
I pay tribute to the women I met earlier today, who are sitting in the Gallery. Hearing directly from them their powerful testimonies puts a lot of this into context for me. It is not just about reading people’s stories; it is about the lived experience of what that trauma has been like for many women, their grandchildren and so forth. I pay tribute to Clare Fletcher; Marion and Juliette; Heather and her two daughters; Liam, Charly, Anne-Marie and her daughter; and Julia. My apologies if I have missed someone’s name. Thank you so much for sharing your exposure to DES and the fact that the healthcare system did not adequately address the recognised and multigenerational adverse effects of the drug.
We have to continue to listen carefully to those affected, learn from their experiences and take every appropriate step to safeguard people, now and in the future. As someone said, this is not simply a historical medical issue; it is about women whose voices were dismissed, whose experiences were doubted and whose families continue to live with the consequences. It is just a reminder that when women say that something is wrong, we must listen. We cannot change the past, but we can ensure that their voices shape how we respond.
Question put and agreed to.
Mental Health: Parity of Esteem
Preet Kaur Gill Excerpts(2 weeks, 2 days ago)
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The Parliamentary Under-Secretary of State for Health and Social Care (Preet Kaur Gill)
It is a pleasure to serve under your chairship, Mrs Hobhouse. I am grateful to my hon. Friend the Member for Blaydon and Consett (Liz Twist) for securing this important debate, for her long-standing commitment to improving mental health services, and for her phenomenal work in her role as chair of the APPG on suicide and self-harm prevention. I am also grateful to all hon. Members who have contributed to the debate and shared experiences from their constituencies. I am sorry to hear of John’s death. Men’s suicide is a huge concern; many of us, myself included, can share personal stories. We need to do much more in that space.
This debate speaks to the heart of what a modern health and care system should be. For too long, mental health has not been given the same attention, priority or esteem as physical health. That has had profound consequences for individuals, families and communities across the country. It also has significant economic impacts, as we heard from my hon. Friend, with an estimated 1.26 million 16 to 64-year-olds economically inactive due to mental health issues in 2024-25. The National Health Service Act 2006 states that health includes mental health. This Government are committed to giving mental health the same attention and focus as physical health, and ensuring that people can access timely, high-quality support, regardless of whether they are experiencing a mental or a physical health condition.
As my hon. Friend said, parity of esteem means recognising that mental and physical health are inseparable. Far too often, services have treated them as distinct issues, when in reality they are connected. Of course, many people experience mental and physical health conditions at the same time, with a cause and effect relationship that goes both ways. We know that poor mental health can increase the risk of developing physical health problems, while living with a long-term physical condition can have a significant impact on a person’s mental wellbeing. People living with severe mental illness experience some of the poorest physical health outcomes in our society, and on average die 15 to 20 years earlier than the general population. That is why we are committed to improving the ways that services respond to people with co-occurring mental and physical health needs.
Care must be co-ordinated around the individual rather than around organisational boundaries, ensuring that people receive holistic support that addresses all aspects of their health and wellbeing. NHS England has developed the mental health personalised care framework, which sets out how services should assess and manage people’s care in partnership with them and in collaboration with all relevant teams. That framework places particular emphasis on joined-up care, safety and risk management. It has been tested in local systems and will be published shortly. I know that will answer some of the questions from my hon. Friend the Member for Blaydon and Consett, but not all of them, so I shall try to address those points in my speech.
Dr Danny Chambers (Winchester) (LD)
On wraparound care, we have a fantastic initiative in Winchester where Citizens Advice spends time with patients at Melbury Lodge, the in-patient unit, to help them deal with all their life admin, such as debt issues and money issues. It has been shown that those who receive that service have a shorter stay in hospital, are significantly less likely to be readmitted and are more likely to engage with social services once they have been discharged. Is the Minister willing to meet me and the team to discuss that initiative? For every £1 spent on it, £14.08 is saved in cost avoidance for the NHS.
Preet Kaur Gill
I thank the hon. Gentleman for mentioning the wraparound care in Winchester citizens advice bureau. We need the local health ecosystem to partner with initiatives in the voluntary or charity sector such as that one, and acknowledge their impact, fund and support them. Some may think that things such as debt are basic, but their impact on mental health cannot be overestimated. I am sure that officials will want to meet the hon. Gentleman and others to look at the landscape across the country, because there are some fantastic initiatives that we need to recognise, partner with and support.
The Government are taking action to elevate the status of mental health. For 2026-27, NHS mental health spending is forecast to increase to a record £16.1 billion, representing a real-terms increase of around £140 million compared with the previous year. Alongside that, the mental health investment standard remains in place. Integrated care boards are required to protect mental health spending in real terms over the next three years, ensuring that mental health continues to receive the investment needed to improve services and outcomes.
Investment alone is not enough. We must transform how care is delivered. That is why the 10-year health plan sets out our vision for a neighbourhood health service, which my hon. Friend the Member for Blaydon and Consett mentioned. That is about bringing care closer to people’s homes, communities creating genuinely patient-centred services, and moving away from a fragmented system that often leaves people navigating multiple services without the support they need. I hope the ICBs are engaging hon. Members in all parts of the House to feed into the design of the neighbourhood health centre model and asking about the unmet needs and service gaps in their constituencies and regions.
Danny Beales
The Minister is being kind with her time, as always. As part of our inquiry into mental health services, the Health and Social Care Committee visited the 24/7 neighbourhood mental health centre pilots and Trieste, where the model originated. They have clearly been hugely successful already. The Minister mentioned the broader neighbourhood healthcare changes; can she assure us that the learnings from those hubs will be spread across the country? Will there be a clear road map for rolling out these services to every area?
Preet Kaur Gill
My hon. Friend is absolutely right; this is a great pilot, and there are some real, huge successes. The Government must learn from the impact that the hubs will have, and of course we want to roll them out. That is why we are piloting six community-based health centres across England in Tower Hamlets, Lewisham, Whitehaven, York, Sheffield and Birmingham. Those centres provide round-the-clock open access treatment and support for adults with severe mental health needs and work closely with primary care and community services to provide joined-up care.
All hon. Members across the House will recognise that it is not appropriate for someone who is facing crisis or poor mental health to be sat in A&E; that just exacerbates their condition and situation. The community-based health centre pilots show that a different model can work. In May, my noble Friend Baroness Merron visited the community-based mental health centre in east Birmingham, where she met staff and service users to hear directly about the service’s impact. The visit demonstrated the important role that community-based mental health support has in providing earlier intervention, improving experiences of care and helping people to access support before reaching crisis point.
I know that my hon. Friend the Member for Blaydon and Consett is particularly interested in how the reforms will benefit her constituents. Although her constituency is not home to one of the six core or the 16 associated community-based mental health pilot sites, a range of community-based support is already available locally. Gateshead Connects hubs provide accessible community drop-in spaces that offer mental health and wellbeing support alongside practical advice on issues such as housing and finances. Residents can access NHS talking therapies through services based at Blaydon primary care centre, and community mental health support networks operating across County Durham provide peer-led groups and safe spaces for people living in and around Consett. Those local services reflect the wider direction of travel in our 10-year health plan, which will bring support closer to people’s homes, strengthen community-based provision and ensure that people can access help earlier, before their needs escalate into crisis.
Significant progress has also been made in building a stronger crisis care pathway. That pathway includes the NHS 111 mental health option; the expansion of crisis cafés, about which we hear from so many hon. Members, as well as sanctuaries and crisis houses; and the roll-out of crisis tech services across England. We have completed delivery of the mental health response vehicle programme, with 88 vehicles now operating across local systems. There is now full national coverage of 24/7 mental health liaison teams in acute hospitals, and we are investing up to £120 million to increase the number of sites with mental health emergency departments to 85.
The Government have also delivered on our commitment to modernise the legal framework that underpins mental health care. The Mental Health Act 2025 brings mental health legislation into the 21st century and ensures that people receiving treatment have greater choice, autonomy and involvement in decisions about their care.
My hon. Friend says that parity of esteem must extend to children and young people, and she and many other hon. Members spoke about cases of children facing crisis. The children and young people’s modern service framework is being developed and remains on track for publication in autumn 2026. The framework will support a more integrated approach to physical and mental health.
Hon. Members rightly spoke about access to services and waiting times. It is unacceptable that some people are waiting far too long to receive the mental health care that they need, particularly children and young people and those experiencing a mental health crisis. ICBs must do more. No child should be left waiting. The Government have delivered three years ahead of schedule our commitment to recruit an additional 8,500 mental health workers across the NHS, in the hope of easing pressures on services and improving access to care. We are also expanding NHS talking therapies and continuing the roll-out of mental health support teams in schools and colleges to achieve full national coverage by 2029. We know that we need to go further.
Adam Dance
Some residents in rural Somerset have said to me that they are waiting 18 months to receive talking therapies. That is just not good enough.
Preet Kaur Gill
I absolutely agree. That is the responsibility of the ICBs, which have been informed that they must make sure that waiting lists come down.
We know that we need to go further. We are developing a new cross-Government mental health strategy for England covering all ages, which will be published later this year. The Department is keen to hear the views of hon. Members from across the House and I am happy to share with any hon. Member details of how they can feed into that work. The strategy seeks to transform mental health support by setting out a plan to respond earlier, reducing waiting times and helping people to remain active. Importantly, it will look beyond the NHS and recognise the critical role of schools, employers, local government and the voluntary and community sector, because achieving parity of esteem is not solely the responsibility of the NHS.
This debate has highlighted both the progress made and the challenges that remain. We are under no illusion about the scale of the task, but this Government are committed to building a health and care system where mental health is treated with the same seriousness, urgency and ambition as physical health. Parity of esteem is not an aspiration; it is a necessity. Through sustained investment, service reform and a renewed focus on prevention, particularly early prevention, we are determined to make it a reality. I once again thank my hon. Friend the Member for Blaydon and Consett; I have a huge amount of respect and regard for her, not only because she secured this debate but because of all the work she continues to do. I know that she will continue to hold us to account. I thank all hon. Members for their thoughtful contributions.
Question put and agreed to.
Isle of Wight Dementia Patients: Discharge to Mainland Care Homes
Preet Kaur Gill Excerpts(2 weeks, 3 days ago)
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The Parliamentary Under-Secretary of State for Health and Social Care (Preet Kaur Gill)
I am grateful to my hon. Friend the Member for Isle of Wight West (Richard Quigley) for raising this very important issue, and I recognise the deeply concerning experiences that he has highlighted of families on the Isle of Wight, including the story of Maggie Bennett and the café that she runs.
For people living with dementia or complex disabilities, being moved away from their homes and loved ones can be profoundly distressing. Familiar surroundings, routines and relationships are often central to their wellbeing, and it is entirely understandable that families feel anxious when those links are disrupted. The Government are clear that people should be discharged from hospital safely, promptly and with appropriate care and support in place. This is essential not only for patient outcomes but to ensure that hospitals can continue to treat those in greatest need.
Local authorities have a statutory duty under the Care Act 2014 to shape their local care markets, ensuring that there is a sufficient range of high-quality, person-centred services available to meet local needs. Decisions about care placements are made at a local level based on clinical need, the suitability of available services and the individual’s circumstances. Where a person requires specialist or higher-intensity support, it is essential that the placement meets those needs in full.
However, I do recognise that local capacity pressures, particularly in geographically isolated areas such as the Isle of Wight, can mean that suitable placements are not always immediately available. My hon. Friend spoke about the impact of care home closures in his constituency and shared Phyllis’s story. While temporary placements further away are necessary to ensure that a person is discharged safely and without delay, those situations clearly have a huge impact on families.
On the Isle of Wight, local partners are working to improve access to more seamless pathways across health and social care so that people can move more easily between services and receive the support that they need. This includes strengthening co-ordination and expanding care in the community so that wherever possible people can be supported at home or close to home. As my hon. Friend said, because of the island’s size and physical isolation, that also requires close working with mainland partners to ensure that residents can access the full range of care that they need, including specialist provision where it is not available locally.
We will continue to explore and build on opportunities to deliver services for the benefit of the Isle of Wight community so that care can be delivered at the right place at the right time. We expect local systems to plan for demand and work with providers to strengthen capacity, including for people with dementia and complex conditions.
As we heard from my hon. Friend, it is vital that when a difficult decision is made to close a care home, the process is handled as sensitively as possible. Local authorities should have procedures in place to minimise disruption, with time allowed to support a safe transfer that supports the wellbeing of individuals, families and carers. Providers should ensure that proper arrangements are in place to support the transition of residents to their new position. Our expectation is that every effort should be made to provide care as close to home as possible and to take account of family connections and personal preferences wherever practicable. It is also essential that individuals and their families are involved in decisions about discharge and ongoing care. The guidance is clear that planning should begin early and that patients and carers should be supported to make fully informed decisions where appropriate.
We know that people who are discharged in a timely way with the right care and support in place experience better recovery and health outcomes. That is why we expect local systems to work together to ensure discharge processes are as effective as possible, particularly for people with dementia and other complex needs. The Government are therefore working with the NHS and local authorities to strengthen the local health and care system so that it can better meet those challenges.
Through the better care fund, more than £9 billion is being used to support integrated working between the NHS and local authorities, enabling more joined-up services and improving the planning of care outside of hospital. We will also reform the better care fund to support more effective joint planning and delivery between health and social care. That will be focused on improving how services are co-ordinated and supporting care that helps people regain their independence, reduces unnecessary hospital stays and enables people to receive care closer to home.
We also recognise the importance of improving care and support for people living with dementia. According to NHS data, NHS Hampshire and Isle of Wight integrated care board recorded that as of March more than 18,000 people had a diagnosed form of dementia. The Government want a society where individuals with dementia and frailty receive high-quality, compassionate care from diagnosis through to the end of life. That is why we will deliver the first ever modern service framework for frailty and dementia to deliver rapid and significant improvements in the quality of care and productivity. That will be informed by phase one of Baroness Casey’s independent commission into adult social care, which is under way and expected later this year.
We are committed to feeding into the NHS and local government planning cycles in September and aim to publish the full framework by the end the year, as recommended by Baroness Casey. We intend to engage with a range of partners over the coming months and will ensure that the voices of people with lived experience are at the centre of our work to develop the modern service framework.
I thank my hon. Friend for bringing his constituents’ voice to the House. I reiterate that we recognise the very real concerns raised by families on the Isle of Wight, particularly when people with dementia or complex needs have been moved away from their homes and communities. While there will be circumstances where temporary placements further from home are necessary, care should be provided as close to home as possible in a way that respects the individual’s needs, preferences and connections to their family and community.
Madam Deputy Speaker (Ms Nusrat Ghani)
I did not have time to congratulate the Minister, a fellow Brummie, on her promotion. It is good to see those from Birmingham here in the Chamber.
Question put and agreed to.
Oral Answers to Questions
Preet Kaur Gill Excerpts(3 weeks, 3 days ago)
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John Lamont (Berwickshire, Roxburgh and Selkirk) (Con)
The Parliamentary Under-Secretary of State for Health and Social Care (Preet Kaur Gill)
The Government are committed to ensuring patients can access timely, high-quality care wherever they live in the United Kingdom, while recognising ongoing challenges. We are working with the NHS and devolved Governments to improve digital interoperability, streamline cross-border billing and support more joined-up care.
David Chadwick
Powys has no general hospital, so my constituents are dependent on access to English hospitals for the treatment and operations they need. However, last July, Powys teaching health board made the decision to extend waiting times for Powys patients awaiting operations, with the result that many have now been waiting years, often in agonising pain. Will the Minister meet me, Powys teaching health board and the new Welsh Health Minister to ensure Powys patients get the funding and treatment they need?
Preet Kaur Gill
I would welcome a meeting with the hon. Member. As he knows, decisions about waiting list management in Wales are matters for the Welsh Government, but I agree that patients in border communities should be able to access care as quickly and conveniently as possible.
John Lamont
For my constituents in the Scottish Borders, accessing NHS treatment can sometimes be more complicated than it should be. Some residents in the Scottish Borders are registered with GP practices in Northumberland, but their medical records are not always shared properly between NHS services in England and Scotland. The SNP Government refuse to allow reciprocal care, so will the Minister urgently work with the Scottish Government to ensure my constituents can be properly treated as close to home as possible?
Preet Kaur Gill
I am aware of the concerns that the hon. Member raises. NHS organisations on both sides of the border are working together to improve access for patients. NHS England is working closely with NHS Scotland to improve the compatibility of patient records. I believe that they must do much more and I would be happy to meet him to discuss that further.
Dr Kieran Mullan (Bexhill and Battle) (Con)
Liz Twist (Blaydon and Consett) (Lab)
The Parliamentary Under-Secretary of State for Health and Social Care (Preet Kaur Gill)
This Government are committed to delivering the five-year, cross-Government suicide prevention strategy, and have published NHS England’s “Staying safe from suicide” guidance. Although progress has been made, we recognise that there is more to do and will continue to drive delivery of the strategy.
Liz Twist
The strategy said that it would
“reduce the suicide rate over the next 5 years—with initial reductions observed within half this time or sooner”.
However, we have now passed the halfway point, and sadly, those initial reductions have not been achieved. What is the Government’s plan to ensure that target is achieved by the end of the strategy?
Preet Kaur Gill
First, I commend my hon. Friend for her tireless campaigning to improve mental health and prevent suicides—I know this is personal for her. We have made progress on implementing the strategy, including launching the near to real-time suspected suicide surveillance system to detect trends earlier. We have also committed £3.6 million in support for middle-aged men for areas that need it, ensuring that it is co-produced with families and local partners so that it is accessible. We plan to update the strategy, which will consider the evidence, the progress so far, and where there are opportunities to go further, but I would welcome my hon. Friend’s input into this very important work.
Mr Joshua Reynolds (Maidenhead) (LD)
Early intervention saves lives, yet far too often support arrives only at the point of crisis, especially for young people in our education system. Will the Minister support the Liberal Democrats’ calls for a dedicated mental health professional in every primary and secondary school as well as mental health hubs in our communities, so that fewer young people reach that point of crisis?
Preet Kaur Gill
Yes. This Government have already recruited 8,500 mental health support workers, and more than 10,000 schools already have a mental health support worker. There is much more to do—we have to ensure young people are not left on a waiting list. We know that many face crisis before they can access care, and I would be keen to hear a bit more from the hon. Gentleman about the work he is doing locally on this issue.
Jessica Morden (Newport East) (Lab)
Further to the last question, my constituent Emma Webb’s 16-year-old daughter Brodie tragically took her own life in 2020. Since then, Emma has worked tirelessly to raise thousands of pounds for charity, raising awareness of suicide prevention and launching DoItForBrodie, a project that aims to break down barriers. Can I invite the Minister to pay tribute to the work that Emma is doing, and to say more about suicide prevention among young people and children?
Preet Kaur Gill
I thank my hon. Friend for raising that important question, and I pay tribute to Emma. In the renewed women’s health strategy, we have committed to improving mental health support for women and girls. We must help women and girls to access mental health support in ways that work for them. We are promoting collaboration to improve women’s knowledge and healthcare professionals’ understanding of many women’s relationships and the barriers they face. There is much more to do, and I would be keen to work with my hon. Friend and to hear from Emma about what more we can do in this space.
Caroline Voaden (South Devon) (LD)
In rural areas such as South Devon, agricultural workers and isolated young people often face distinct acute mental health crises, yet local mental health provision is stretched to breaking point. What specific targeted support is the Department providing to rural health boards to ensure that suicide intervention services reach isolated rural workers who cannot easily access standard workplace mental health schemes?
Preet Kaur Gill
The hon. Lady raises some important challenges, and the women’s mental health strategy will deal with some of them. Work is under way to develop a more comprehensive offer to address the critical issues that many young people transitioning to adult services face, including bespoke guidance in the revised Mental Health Act code of practice. The Government are also funding early support hubs, which provide free, open access to mental health support for young people up to the age of 25. Under the new developmental service specification, children and young people’s services will no longer be required to transfer or discharge a young person on their 18th birthday, where clinically appropriate.
Lloyd Hatton (South Dorset) (Lab)
Mrs Elsie Blundell (Heywood and Middleton North) (Lab)
The Parliamentary Under-Secretary of State for Health and Social Care (Preet Kaur Gill)
We know that men are less likely to seek mental health support and that suicide rates are higher in men, and we are taking action to address that. Through our men’s health strategy, we have launched a partnership with the Premier League to improve mental health literacy. The suicide prevention support pathfinders programme will invest up to £3.6 million in areas where middle-aged men face the greatest risk of suicide—the north-west being one area with some of the highest rates.
Mrs Blundell
I welcome the publication of the men’s health strategy, especially the measures in it designed to improve mental health outcomes. In a report that I recently sent to the ministerial team following an event I held with local charities and mental health service users, it became clear that the recommendations of the strategy need to be implemented quickly. What practical steps are being taken to implement those measures, especially in areas such as mine, where deprivation continues to affect the health of men and boys?
Preet Kaur Gill
I warmly welcome my hon. Friend’s report and thank her for all her work on behalf of her constituents. Locally, NHS and council partners are supporting delivery through services such as Thrive, Think Ahead and talking therapies, alongside community initiatives such as Male Health Survivors @ The Dale, and Andy’s Man Club Rochdale, supporting men’s mental health. We also have a mental health call for evidence, which is live until 12 July, seeking practical examples to tangibly improve outcomes and inform our mental health strategy. I would be keen to work with my hon. Friend on what more we can do.
Tim Farron (Westmorland and Lonsdale) (LD)
The suicide rate among men in Cumbria is twice the national average. There are a whole range of reasons why that is so, but one of them is clearly bound up in isolation and rurality. Would the Minister be willing to meet me and the Farmer Network as we seek to deliver mental health answers for people struggling? Some 25% of farmers are below the poverty line, often isolated and dealing with transition at times of enormous stress and anxiety with nowhere to turn. Would the Minister agree to meet so that we can address this particular cause of the appalling tragedy in our county?
Preet Kaur Gill
I thank the hon. Gentleman for raising that important issue. We of course must not overlook the needs of farmers. Our men’s health strategy has invested an extra £3.6 million in suicide prevention work in the most deprived parts of England, where men face the greatest risk of suicide. We are partnering with the Premier League’s Together Against Suicide initiative, to meet men where they are on their terms, so that they do not suffer in silence. I look forward to meeting the hon. Gentleman to hear more about the issue.
Lewis Cocking (Broxbourne) (Con)
Pathogen Access and Benefit Sharing Negotiations
Preet Kaur Gill Excerpts(1 month ago)
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The Parliamentary Under-Secretary of State for Health and Social Care (Preet Kaur Gill)
I would like to update the House regarding the ongoing negotiations at the World Health Organisation’s Intergovernmental Working Group to secure an annex to the pandemic agreement on a new Pathogen Access and Benefit Sharing system.
This Government’s last update to the House was on 2 February. Since then, the IGWG held three rounds of negotiations, including a resumed session, ahead of the deadline of the 79th World Health Assembly to report on the outcome of negotiations.
Some good progress was made at these IGWG meetings, including on issues such as key definitions and use of terms, and the governance of the PABS system. However divergence still remained on several key issues, including on how pathogen samples and genetic sequence information will be shared through laboratory networks and databases to ensure timely access, benefit-sharing provisions for manufacturers who choose to sign up to the system, and the links between PABS and other international access and benefit sharing frameworks.
Given the number of complex and highly technical issues to resolve, the IGWG decided that additional negotiating time is needed. Member states therefore submitted a recommendation for an extension to negotiations to the 79th WHA, seeking approval for an additional one year of negotiating time. On 22 May, the WHA approved this extension. The deadline for the IGWG to submit the final outcome of the negotiations has now been extended to the 80th WHA, to be held in May 2027, or, as may be necessary, earlier by a special session of the WHA in 2026. The next round of negotiations will be held in mid-July.
The UK remains fully committed to securing a PABS annex that serves both the UK and global public health, and we support this extension to provide more time for member states to reach consensus. It is crucial that we continue our essential work to conclude the PABS annex, so that the pandemic agreement can be opened for signature and ratification by member states, and the wider benefits for pandemic prevention and response can be realised.
This Government will only agree to a PABS annex that is in the national as well as global interest, and we will continue to engage constructively in the process to deliver an effective, implementable, and equitable PABS system.
[HCWS82]
Youth Mental Health Support
Preet Kaur Gill Excerpts(1 month ago)
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The Parliamentary Under-Secretary of State for Health and Social Care (Preet Kaur Gill)
It is a pleasure to serve under your chairship, Sir Roger. I am grateful to my hon. Friend the Member for Shipley (Anna Dixon) for securing this important debate. This is an issue I care deeply about, and I thank her for sharing such a personal story about her niece and the lost years that she faced.
I also thank hon. Members for their contributions, including the hon. Member for Yeovil (Adam Dance), who shared how his youth club saved him at a time of very clear mental health distress, my hon. Friend the Member for Amber Valley (Linsey Farnsworth), who talked about celebrating youth hubs in her area, my hon. Friend the Member for Swindon North (Will Stone), who talked about the powerful example of sports provision to support mental health, my hon. Friend the Member for Glasgow South (Gordon McKee), who talked about the issues with CAMHS in Scotland, my hon. Friend the Member for Plymouth Moor View (Fred Thomas), who talked about his concerns about the impact of social media, and my hon. Friend the Member for Doncaster East and the Isle of Axholme (Lee Pitcher), who talked about PANS/PANDAS.
My hon. Friend the Member for Shipley mentioned Joseph and the delays in the SEND assessment. I am keen to work with the Minister for School Standards on the Health response to SEND reforms. The ICB is responsible for ADHD assessment and treatment services, and I hope that the NHS’s medium-term planning framework is clear that a system should use existing and new guidance to reduce long waits and improve the quality of assessments.
The message I want to give today is clear: the country is right to expect a children and young people’s mental health system that is simple, faster and stronger at every stage, from early support in the community through to specialist CAMHS support where needs are most severe. We have to be honest about the pressure on that system, which includes long waits and uneven access, but equally clear in our determination, as my hon. Friend the Member for Shipley said, to improve it and build a system that delivers for every child and young person. For parents, as my hon. Friend shared, that means knowing where to turn when they are worried about their child. For young people, it means getting help through schools, their GP, community services—many Members mentioned them and the power they have to engage young people today—mental health support hubs or specialist NHS care, depending on the level of need. For families, it means a clear local offer, more joined-up care and fewer children becoming more unwell before help arrives.
To improve services, we have to be honest about how families experience them, and my hon. Friend shared some really powerful examples. Needs may first be identified at school, then raised with a GP and addressed through a community service, or they may come to attention only when there is a crisis, as my hon. Friend says. Support should become more intensive as need grows, but families too often do not experience a clear pathway and instead describe a search for help that is confusing, fragmented and exhausting.
The pressure points are well understood: confusing local offers, different referral thresholds and delays that allow problems to escalate until a child presents in crisis. More children and young people are starting treatment, but too many are still waiting. At the end of March 2026, nearly 40,000 children and young people had already been waiting more than 1,000 days for a first contact.
The pressures are visible nationally and matter locally too, including in Shipley. In Bradford district and Craven, young people can access support through schools and colleges, primary care, specialist CAMHS across Bradford and Keighley, and innovative community provision such as the Shipley Wellbeing Hub on Westgate, which offers walk-in support and links to wider services. Those are strong foundations, but we also know that in West Yorkshire ICB, where Shipley sits, almost 23,000 children and young people are still waiting for support, with median waiting times longer on average for England.
Let me be clear about CAMHS, because a number of Members have raised it. CAMHS is central to our current system of support and treatment. It is not one service, but a specialist pathway that covers community teams, crisis support and in-patient care. It is where children and young people are assessed and treated when needs are more serious and complex. However, CAMHS is under sustained pressure: referral volumes have risen, waiting times vary too much between areas and too many children are waiting too long for an assessment or treatment. Delay is not neutral; anxiety can become absence from school and, as my hon. Friend the Member for Shipley described, low mood can deepen into self-harm and eating difficulties can become much more entrenched.
At the earliest stage, support should be available where young people already are, through mental health support teams in schools and colleges, open-access hubs, GPs and primary care, and community and voluntary services. For emerging needs, that should mean advice, brief intervention and practical help before problems escalate. For more severe or complex needs, it should mean timely referral into specialist CAMHS. For those in acute distress, it should mean a responsive crisis pathway. What good looks like is clear: visible local entry points, no wrong front door, support while families are waiting, stronger links between schools, GPs and community services, and better outcomes for children.
Anna Dixon
I thank the Minister for describing what good looks like. Does she agree that we are very far from that in most parts of the country, and that it is now a matter of great urgency that the Government act to ensure that the good she describes is available to all children in all places?
Preet Kaur Gill
My hon. Friend is absolutely right. That is why I will now set out what the Government are going to do to address the fragmented system that we all find. We will strengthen the whole pathway, not just one part of it—I think that is really important, from listening to my hon. Friend today. I also want to thank her for raising the subject of the NEET population—those not in education, employment or training—because none of this can be done in isolation; we have to work across Government if we want to truly address the fragmented system.
First, we are expanding earlier intervention. We are accelerating access to NHS-funded mental health support teams in schools and colleges so that, by 2029, all pupils and learners will have access to that early support. Alongside that, the Government have provided more than £20 million of funding to early support hubs over the last three years. That will deliver more than 30,000 additional mental health interventions for children and young people. These hubs offer open-access, community-based help without requiring a clinical referral. I think that is very important.
This year, the Government have also launched young futures hubs. The first eight early adopter hubs are now operating in Birmingham, Brighton and Hove, Bristol, County Durham, Leeds, Manchester, Nottingham and Tower Hamlets, with a further 42 hubs to follow across England over the coming years. Together, they will help young people get to the right support sooner.
Secondly, we are improving consistency in navigation. A modern service framework for children and young people up to the age of 18—up to 25 for those with mental health and neurodevelopmental conditions—will set clear expectations about what services should provide and for whom, and how those services should work together across the pathway to improve outcomes.
Thirdly, we are increasing capacity in specialist services. We have already delivered on our commitment to recruit an additional 8,500 mental health workers for children and adults, three years ahead of schedule. Almost one in five are working directly in children and young people’s services, including within mental health support teams in schools and colleges—more than 10,000, actually—and in community CAMHS teams. Those staff are helping children and young people access support more quickly and closer to home.
Fourthly, we are acting on the drivers of the crisis as well as the consequences. Children’s mental health is shaped by what happens at home, in school, and—as my hon. Friend the Member for Shipley powerfully said—online and in their communities, which is why this cannot sit in the NHS alone. We are working across Government to tackle root causes, including taking action on social media and screen use, expanding perinatal mental health support and tackling inequalities and child poverty.
As my hon. Friend has already stated, my right hon. Friend the Secretary of State for Science, Innovation and Technology has undertaken a consultation on children’s online safety, which received more than 70,000 responses. That is a national conversation we need to have. Guidance has been issued for nought to five, and I think it is important that we have a statutory footing on phones in schools. The measures are all there to assist parents and professionals in navigating what I know, with the Online Safety Act, lots of young people are evidencing: the impact of online harms on mental health.
To bring this all together, we are developing a new cross-Government mental health strategy for England. The call for evidence is now live until 10 July. I urge hon. Members to please feed in and share that with their constituents, so that frontline services, experts and people with lived experience can help shape the next phase of reform. Alongside that, we have commissioned an independent review into mental health conditions, ADHD and autism to inform the longer-term changes needed for a more coherent and effective offer. Again, that report is due to be published at the end of July.
The message to the country is this: we understand where the system is under pressure; we are being honest about the challenge; and we are acting where it matters most, which is on earlier help, as my hon. Friend the Member for Shipley has raised, clearer routes into CAMHS, more capacity in specialist care, and better support in the community. Every child deserves the chance to be well, stay in school, build relationships and look to the future with confidence. That is what this Government want for children, young people and families in Shipley and across the country, and that is the system we are determined to build.
Question put and agreed to.
Mental Health Strategy for England
Preet Kaur Gill Excerpts(1 month, 2 weeks ago)
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The Parliamentary Under-Secretary of State for Health and Social Care (Preet Kaur Gill)
I am today informing the House of the Government’s plans to develop a new, once-in-a-generation, cross-Government strategy for mental health in England, which will be published later this year. The strategy will be informed by a call for evidence, alongside wider engagement, including through the ongoing independent review into prevalence and support for mental health conditions, ADHD and autism, and the modern service framework for severe mental illness. The call for evidence launched on Friday 15 May and will close on Friday 10 July.
Good mental health is central to our overall health, wellbeing and ability to participate fully in education, work and community life. Yet far too many people are experiencing mental health problems and distress, with over a quarter of young people now estimated to have a common mental health condition such as depression or anxiety.
The Government have already taken significant steps to improve mental health services. We have taken through landmark reform of the Mental Health Act 1983 and met our manifesto commitment to recruit an additional 8,500 additional mental health staff three years early, and we are expanding mental health support teams to reach every school and college by 2029. This is backed by a record £16.1 billion forecast to be spent on NHS mental health services this year.
However, we know that there is more to do, within and beyond the NHS. Demand for mental health support has risen rapidly, with long waits and too many people unable to access the right support when they need it. Despite sustained investment, systems remain too often reactive, fragmented and variable, with outcomes that fall short of what people and communities need.
It is time to go further and take a new approach. We want a mental health system and society that respond earlier and more proportionately to need, providing the right tools and intervening before distress escalates to crisis. We want a system organised around participation, not thresholds, where people can access timely, practical support that matches their needs and circumstances, and where support is joined up, with no wrong front door.
The 10-year health plan set out an ambitious vision for reform of the NHS, centred around three strategic shifts: hospital to community, analogue to digital, and sickness to prevention. The mental health strategy is the next stage of this Government’s programme of reform, and it will be informed by the independent review into prevalence and support for mental health conditions, ADHD and autism. This review, chaired by Professor Peter Fonagy and engaging with experts in the field, including people with lived experience, will make recommendations on how to shift from a system that responds late and is overly focused on diagnosis to one that responds earlier, more proportionately, and with improving participation in education and work in mind.
The Government have launched a call for evidence to build on the 10-year health plan engagement and collate practical implementation evidence with a focus on how we can turn our vision into action.
https://www.gov.uk/government/calls-for-evidence/informing-the-mental-health-strategy-for-england
We welcome examples of good practice, from across the UK and internationally, and from across sectors, including schools, workplaces and community settings. Input is encouraged from the mental health sector and beyond, clinicians, local leaders and parliamentarians.
The mental health needs of autistic people and people with ADHD will also be reflected within the mental health strategy. We know that autistic people and people with ADHD face a much higher risk of developing a mental health condition, and that there is a need for integrated and equitable access to mental health services and support that is responsive to their needs, including appropriate adjustments to how services are designed and delivered.
Separately, we will develop and publish a new cross-Government autism strategy, as required under the Autism Act 2009. This will be informed by all relevant evidence, reviews and reports, including the recommendations from the House of Lords Autism Act 2009 Inquiry Committee report and the ongoing independent review into prevalence and support for mental health conditions, ADHD and autism. As part of this work, we will consider and seek the views of stakeholders as to whether the new autism strategy should be extended to cover ADHD.
The strategy will be aligned with relevant modern service frameworks and the suicide prevention strategy for England.
Transforming the mental health system will take time, but we are committed to delivering a new approach that enables people to stay well, participate fully in society and access the right support at the right time.
[HCWS36]
Audiology Services: Doncaster
Preet Kaur Gill Excerpts(1 month, 2 weeks ago)
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The Parliamentary Under-Secretary of State for Health and Social Care (Preet Kaur Gill)
I thank my hon. Friend the Member for Doncaster Central (Sally Jameson) for securing the debate. I commend her advocacy on this issue, and thank her for all her tireless work on behalf of her constituents in bringing it to the House's attention. I also know that my hon. Friend the Member for Doncaster East and the Isle of Axholme (Lee Pitcher) asked a business question on the subject during the last parliamentary Session. It is clear that there is strong local concern across Doncaster, and I am immensely proud to respond directly today during my first debate as a Minister.
Let me begin by acknowledging what many constituents experience when audiology services are not working well. It is deeply frustrating when people need a hearing assessment, a follow-up appointment or a hearing aid repair and cannot get it within a reasonable time. For many, that is not just inconvenient; it can be isolating and can affect confidence, independence and wellbeing. Families and carers also feel the strain as they try to navigate appointments and periods without support. We will ensure that that changes. Like my hon. Friend, this Government will not stop until everyone has timely access to essential services such as audiology, as part of our mission to ensure that the NHS is fit for the future.
I want to start with Doncaster. I was shocked to learn from my hon. Friend that constituents have faced long waits, repeat appointments, and periods without working hearing aids. It is also concerning that some people have been asked to return because the right assessment or adjustment was not available on the first occasion. That situation is a lose-lose: it is distressing for patients, and it is an inefficient use of clinical time. Let me be absolutely clear: it is not acceptable, and it must improve. I will now set out briefly what has happened, what actions have been taken, and what further progress we need to see.
Doncaster’s audiology services have faced significant challenges, and I acknowledge that there were delays for hearing tests and follow-up appointments. I understand that one underlying issue has been insufficient numbers of staff who are fully trained to carry out all the specialist assessments. That created a backlog, with neighbouring services and external specialists supporting the most urgent cases. The NHS region has prioritised cases that involve safeguarding or developmental concerns. The trust has recognised those problems and has put in place a recovery plan, including upgraded facilities and improved booking and tracking. I am told that most adult hearing services have recovered. As for children’s audiology, the backlog is also shrinking, and outside specialists are helping until the local team complete their training. The hospital is also using new digital tools and regular review meetings to keep track of performance and risks. Further development on the recovery plan will mean an improvement in audiology services and patients returning to be seen on time.
The pressures that we have seen in Doncaster also reflect wider challenges across diagnostic and community services. When we talk about diagnostic audiology, we mean assessments to diagnose hearing and balance conditions. Audiology services are not only about diagnostics; for many people, this means long-term support providing rehabilitation, ongoing monitoring, treatment and support for a number of lifelong conditions, such as hearing therapy and hearing aid fitting and maintenance. That is why cutting waiting lists, including those for diagnostic tests, is a key priority for the Government.
We are backing that priority with investment to help services to recover performance and improve the experience for patients, including their experience of audiology. We are improving and transforming NHS audiology services, for instance through a national improvement collaborative to test changes that improve access and patient experience. Four NHS trusts took part in 2024-25, and a further eight have joined in the last financial year, including Somerset, Leicester, Oxford and Gateshead. We have learnt that when local teams have been empowered to drive change, that has led to improvements in services. Improvement depends on having the right kit and environment as well, which is why the Government have invested £13 million in audiology equipment and facilities across 66 capital schemes. We are also expanding access by delivering more diagnostics and assessment in the community.
Let me now turn to children’s audiology more broadly. As my hon. Friend said, it vital that children and young people can access timely, safe audiology services. The paediatric hearing services improvement programme was established in 2023 to address the risks to paediatric diagnostic audiology across England, and as part of the programme progress has been made in improving the paediatric audiology service in Doncaster. I welcome the 2025 review of children’s hearing services, undertaken by Dr Camilla Kingdon and with a response under consideration. NHS England is committed to reviewing the future direction for high-quality, sustainable children’s hearing services, with clearer end-to-end pathways and shared priorities. The workforce requirements for hearing services are also being considered as part of the 10-year workforce plan.
We know that clearer commissioning expectations help to drive consistency and equity across the country. NHS England is developing new commissioning guidance for integrated care boards and providers on safe, high-quality and equitable paediatric audiology, covering service configuration, workforce, estates, equipment, data and safeguarding. By taking action on multiple fronts, we will restore performance and ensure that improvement continues.
Finally, I turn to community audiology services, which are delivered in community settings and commissioned by integrated care boards, based on the needs of their local population. We know that community health services have the power to better align care with people’s day-to-day lives, but when it comes to community audiology, people are waiting far too long and there is local variation in services. That is why, for the first time, we have set a clear target to reduce long waits for community health services, including community audiology services. By 2028-29, at least 80% of activity across community health services should take place within 18 weeks. To support the shift to neighbourhood health, we have asked systems to increase the capacity of community health services and to work to standardise the provision of core community services.
I am most grateful to my hon. Friend the Member for Doncaster Central for bringing forward this debate and for speaking up for her constituents. She mentioned the Doncaster school for deaf children and the Carr Fenton Foundation, and just how imperative it is that we deliver in areas like hers, which have such needs. We are committed to improving access through local recovery, national improvement support and more provision through community services.
To return to Doncaster, I have heard the concerns about long waits for repeat appointments and the problems with hearing aid provision. The trust has made progress, particularly for adult services. The paediatric service is improving and the waiting list is reducing, with external support in place while workforce training is completed. We will continue to work with local leaders to deliver timely appointments and reliable support, and we will go further still by reforming community audiology to shift more care from hospitals to communities, ensuring that our NHS is fit for the future.
Question put and agreed to.