Sudden Unexpected Death in Epilepsy
Peter Swallow Excerpts(1 week, 2 days ago)
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Olly Glover (Didcot and Wantage) (LD)
In the United Kingdom, more than 600,000 people—one in a 100—live with epilepsy and every day around 80 people are diagnosed. Sudden unexpected death in epilepsy, abbreviated as SUDEP, is the term used when a person with epilepsy dies suddenly and unexpectedly. At least 21 people die every week in the UK from SUDEP, and even that is an underestimate, with epilepsy deaths believed to be under recorded. I will raise two key themes in this debate: first, the SUDEP and epilepsy risk communication and understanding gap, and secondly, the inherent systemic failure to prevent deaths following prevention of future deaths reports. I will conclude by outlining my key asks, which are needed for lasting and meaningful change.
The causes of epilepsy-related deaths range from prolonged seizures and accidents to drownings and suicide; however, SUDEP is a devastating worst outcome, accounting for half of all epilepsy fatalities. According to the charity SUDEP Action and the Epilepsy Research Institute UK, the highest rates of death are in areas of deprivation and among vulnerable groups, such as those with worsening mental health, people with learning disabilities or autism, pregnant women and children. SUDEP affects all ages, but we know that it disproportionately affects the young, with a peak in people’s 20s and 30s.
Peter Swallow (Bracknell) (Lab)
I am grateful to the hon. Gentleman for bringing this debate to the House tonight. I have been asked to come along on behalf of my constituent, James Nichols, who lost a dear friend in just that age group to SUDEP and has been a tireless campaigner on the issue ever since. He explained to me that the really tragic thing about SUDEP is that it can often come somewhat out of the blue through breakthrough seizures after an individual has not had seizures for many years, which can make it a particularly traumatic experience for loved ones and family members. Will the hon. Gentleman perhaps touch a bit more on what we can do to support family members?
Olly Glover
I thank the hon. Gentleman for his intervention and pay tribute to his constituent and their family. I am going to be talking quite a lot about what we can do to prevent such occurrences in the future.
Oral Answers to Questions
Peter Swallow Excerpts(2 weeks, 3 days ago)
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Stephen Kinnock
I am equally pleased about what is happening with the University of East Anglia. When we came into office in July 2024, I was shocked to discover that there had been no sustained increase in the number of dental places in our country since 2007, and I am very proud of the fact that this Government have turned that around.
With regard to the overseas registration examination, I had the General Dental Council in my office shortly after the general election to ask why the contract has been failing, and it is mainly due to the neglect and incompetence of the Conservative party. We have sorted that out. There is a new contractor in place, and we will be delivering thousands more out of the backlog of international dentists starting from 1 April this year.
Peter Swallow (Bracknell) (Lab)
The Minister for Care (Stephen Kinnock)
We promised to improve GP access, and we are delivering. There are 2,000 more GPs than in July 2024—double our manifesto commitment of 1,000. The previous Government planned to increase GP numbers. Between 2019 and 2024, the number of fully qualified full-time equivalent GPs actually fell by 900. We have delivered 8 million more appointments, and we have seen satisfaction go up from 61%, where it was languishing in July 2024, to 74% today.
Peter Swallow
I declare an interest: my brother is a GP. Many residents in Bracknell Forest find the best way to contact their GP is online or by phone, but others have told me that they want to be able to visit their local surgery and book an appointment in person. Can my hon. Friend confirm that the new GP contract guarantees that patients have the right to choose to contact their GP in the way that works best for them, whether by phone, online or in person?
Stephen Kinnock
My hon. Friend is a doughty champion for his constituents. I can absolutely give him that assurance. The GP contract is clear that patients must have the option of telephoning or visiting their practice in person, and online tools must be an addition to, rather than a replacement for, other contact methods. However, we have found that by expanding online access, we have significantly reduced pressure on phone lines, and we are ending the 8 am scramble.
Oral Answers to Questions
Peter Swallow Excerpts(2 months, 1 week ago)
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The Minister for Care (Stephen Kinnock)
On the subject of GP access, I am delighted that 75% of patients now say it is easy to contact their GP, which is a sizeable increase of 14 percentage points since July 2024—that is a really positive development that I am sure the hon. Lady welcomes. Turning to planning, it is very important that the integrated care board, the council and the developers are joined up together, and we need to ensure that happens. There is also the primary care utilisation and modernisation fund, which the hon. Lady’s constituents may be interested in.
Peter Swallow (Bracknell) (Lab)
Dr Ahmed
Mental health support teams provide innovative early support for children and young people in schools and colleges, and I am pleased that these are working well in Bracknell Forest, too. Up to 900,000 additional pupils will have access to that support by the spring, and we are accelerating the roll-out to reach full national coverage by 2029.
National Cancer Plan
Peter Swallow Excerpts(2 months, 3 weeks ago)
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Ashley Dalton
Yes, I can confirm that, but it is not always about throwing extra money at things. It is about using the resources that we have in a better, more targeted way to be more impactful. I have worked with Cancer Research UK from day one of developing this plan and it has run right the way through it. We continue to work with the organisation as we move forward to make the plan a reality.
Peter Swallow (Bracknell) (Lab)
This week marks 17 years since my mum died of lung cancer. She was just 58, and I was just 15. Last week, when I visited a local lung cancer screening service in Bracknell and heard how it is using AI to speed up diagnosis, it was personal. Can the Minister say a bit more about what we are doing to roll out schemes such as that to make sure that more families like mine do not have to suffer the loss of a loved one to this terrible disease?
Ashley Dalton
I thank my hon. Friend for his question. Lung cancer has impacted on my family as well. Yes, we will be rolling out lung cancer screening nationwide by 2030, because we know that it has a huge impact on outcomes. I have seen how amazing the AI tools are at identifying discrepancies in lung CT scans. I found out that I had an untapped talent, as I was quite good at identifying those discrepancies as well. AI means that we can catch lung cancers sooner. They are often not caught until they are at stage 3 or 4. Using AI means that we can get them at stage 1 or 2, we can treat people early and we can save lives.
Puberty Suppressants Trial
Peter Swallow Excerpts(4 months, 2 weeks ago)
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Wes Streeting
The right hon. Member is right that we need that data linkage study. That will happen, but it will not produce the same evidence base as a clinical trial, and that is the distinction between the two. It is frankly a disgrace that people have sought to withhold that kind of data and it is really important that we get this right.
I appreciate the right hon. Member’s sympathy. I have wrestled with this issue probably more than any other ethical decision that I have had to make in this office. I do not seek any pity or sympathy for doing so—it is the job that I signed up to and a job that I love doing. I have taken great care and sensitivity in this area because of the particular vulnerability of this group of children and young people.
Peter Swallow (Bracknell) (Lab)
It is fair to say that the recommendations of the Cass review were not welcomed by everyone—not least by all members of the LGBT+ community—but the Conservative party commissioned the review and accepted its findings, and the Labour party supported the review and supported its findings. Does the Secretary of State share my concern that there are those who would now seek to cherry pick which of the findings they agree with and which they do not? Is it not the case that an independent review with such serious and important findings should be accepted in its entirety?
Wes Streeting
When it was published—I was in the Chamber at the time—there was an overwhelming consensus in the House. There were some people who criticised and challenged the Cass review at the time, including some outside the House in the LGBT community. I have always supported the Cass review, which was led by one of our country’s best paediatricians. Because of that, I am proceeding in the way that I am, which is the way that Dr Cass—now Baroness Cass—recommended. I will continue to follow the evidence and implement the Cass review comprehensively.
Oral Answers to Questions
Peter Swallow Excerpts(5 months ago)
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Peter Swallow (Bracknell) (Lab)
Bracknell is a life sciences superpower, with Eli Lilly, Sandoz and Boehringer Ingelheim all having a footprint in our town. What can we do to speed up clinical trial set-up to help to deliver the next generation of treatments for our NHS?
Access to Healthcare: Bracknell Forest
Peter Swallow Excerpts(5 months, 1 week ago)
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Peter Swallow (Bracknell) (Lab)
I beg to move,
That this House has considered access to healthcare in Bracknell Forest.
It is an honour to serve under your chairship, Mr Mundell. I thank the Minister for Secondary Care, my hon. Friend the Member for Bristol South (Karin Smyth), for her engagement on this important issue.
As local MPs, we all hear on the doorstep and at our coffee mornings about the importance of the ability to access timely, good-quality and local healthcare, and the impact not just on individuals, but on our communities more broadly, when the standard is not met. What those who work in our health and social care system do day in, day out touches all our lives and families. I thank those in Bracknell Forest and across the country who work in our NHS and wider health and care system for everything they do. I must declare an interest: my brother and sister-in-law are both NHS doctors.
These are challenging times for the NHS. Chronic under-resourcing after 14 years of Conservative austerity has left too many unable to access the care they need and has prevented the system from evolving to reflect the needs of today’s Britain. But although the NHS may be down, it is not out. While other parties threaten the very principle of the NHS—that care should be available to everyone and free at the point of use—the Government are investing in the NHS and putting in place the reforms we need. We have already seen those efforts bearing fruit, with the first cuts to waiting lists in 15 years, the recruitment of 2,500 more GPs and the creation of 5 million extra appointments.
Jim Shannon (Strangford) (DUP)
I commend the hon. Gentleman for securing this debate. He is right to underline the issue of GPs. Does he agree that access to healthcare must begin with access to the local GP surgery, and that the Government must prioritise training and retraining GPs to ensure that people can access their GP and do not head straight to emergency care at the local hospital when it is not necessary? GPs first—then, everybody else can do better.
Peter Swallow
The hon. Member predicts where I am going with my speech. I am sure that the issues in Bracknell Forest are similar to those in Northern Ireland. As I will say, it is important that we have seen changes in the way GPs operate in England.
The 10-year health plan for England represents a once-in-a-generation chance to reform and rebuild the health system. It is underpinned by the three radical shifts of hospital to community, analogue to digital and sickness to prevention. In Bracknell Forest, we have already seen the Government’s commitment to moving healthcare to the community through the announcement of funding for the Frimley Park hospital rebuild, which was promised under the last Government but never funded, despite unsafe reinforced autoclaved aerated concrete making up about 65% of the current building. The funding will go directly to help to deliver a hospital that is safe, modern and equipped to deal with the demands facing our healthcare system today.
I thank the Minister for meeting me yesterday, and on many other occasions, to discuss the rebuild, and for all the work that has gone into progressing the project behind the scenes, but as she knows I remain concerned that Frimley Health NHS foundation trust is still not in a position to announce the location of the new hospital, despite several deadlines already having been set and missed. I urge the trust to make that announcement as soon as practically possible, so that constituents can have the visibility and transparency they need on the delivery of those plans.
Bracknell Forest residents are determined that the new hospital addresses the existing issues with access to Frimley Park hospital, including insufficient parking, and that it should be as close as possible to the current site. Better access by public transport also needs to be baked into the design. Constituents also have concerns about the ongoing need to rebuild the Royal Berkshire hospital. I take this opportunity to reassure them that I am as keen as they are to see that delivered as soon as possible, and I will continue to push for it in this place.
As the 10-year plan sets out, the future of our NHS cannot be delivered just through hospitals. Care needs to be embedded in our communities, so I am delighted that Skimped Hill health centre—or Bracknell Forest centre for health, as I believe it will officially be known—is now in the final build stages. Once completed, the centre will bring together in one place several services in the centre of Bracknell, including two GP practices, maternity services and children’s services, rooting healthcare in the community and breaking down the bureaucratic barriers to access both for patients and for service providers.
A key element of the shift from hospital to community is ensuring that all health spaces are used to their full potential. Brants Bridge in Bracknell spans both Frimley and Berkshire healthcare trusts and offers a range of services, including X-rays, urgent care, dialysis and chemotherapy. However, constituents regularly tell me that they struggle to access the space, or are turned away and directed to A&E for arbitrary reasons. The centre is a resource with huge potential, but I fear we are not utilising it to its fullest. I would therefore welcome a review of the services offered by Brants Bridge, as well as of its accessibility, to better support the Government’s ambitions for community care.
As we build the homes of the future, it is important that we match them with the health infrastructure needed to support them. It is fantastic to see that with the new Skimped Hill health centre and, although it is not in my constituency, I will also mention the new Binfield health and community centre. But Bracknell Forest has a shortage of GPs, with 1,874 patients for every GP, so it is important that we keep developing primary healthcare provision to serve our growing population. We also have a mismatch between pharmacy need and provision, with some areas with the greatest need, such as Bullbrook, relying on just one pharmacy.
I recently met with both Forest Health primary care network and Health Triangle PCN, which includes Ringmead, to discuss patient access, the 10-year plan and the implementation of the new GP contracts. I was pleased to hear thar Ringmead has implemented a new booking system and, although not all patients have felt the benefits of that yet, it has been great to hear from many constituents that it has gone a long way to make accessing their local GP much easier. I stress, however, that we still have a way to go when it comes to ensuring that patients can access the right choice of appointment for their needs. For many, online appointments offer flexibility and convenience, but others want the reassurance of seeing their GP face to face.
In a local authority like Bracknell Forest it is also important to match healthcare provision to where people live, so that people are not forced to travel long distances to access their appointments. I have heard many residents share their frustrations at getting an appointment in Bracknell when they live in Sandhurst, and vice versa. Although I appreciate that that is sometimes unavoidable or about ensuring that healthcare can be accessed as quickly as possible, I would like more local appointments to be prioritised.
The aim in the 10-year plan to end the 8 am appointment rush resonates with many constituents who have, too many times, faced the stress of scrambling for an appointment while unwell and in need of treatment. I am pleased to see the Government delivering on that key ambition, but I am aware that the shift has come with operational challenges for primary healthcare providers when managing patients who book close to closing time. I know that healthcare professionals would welcome the Minister’s thoughts on how the teething issues can be addressed, so that the system works as well as possible for both patients and providers.
The Government’s ambition is rightly to raise the healthiest generation of children ever, and early intervention and community-focused care will play a crucial role in delivering that. As many colleagues know, I often speak about special educational needs and disabilities issues in this House, and with my constituents. SEND is not just an educational issue. Among many other things, it is a social issue, an equalities issue and, of course, a health issue. Across the country, children and adults wait far too long to access attention deficit hyperactivity disorder and autism assessments. The number of children waiting for an autism assessment is acknowledged to be high across all six Berkshire local authorities. In June 2025, there were 682 children aged between five and 18 in Bracknell Forest waiting for an assessment, and a further 241 adults were also waiting.
Berkshire healthcare NHS foundation trust has been overhauling its system to improve waiting times and deliver a better performance, and has recently been recognised as one of the top performing trusts in the country, but it will take time for the efforts of those reforms to be felt on the ground. The long waits involved mean that many are turning to private diagnosis, which risks creating a two-tier system in which those who can afford it receive a diagnosis and the support that follows and those who cannot are left to struggle. I fundamentally believe that young people should not need a diagnosis to access essential support. When parent carers, classroom teachers and the young person themselves can all see that there is need for more support, it should be made available, and the diagnosis can be worried about later.
As the Government develop their reforms to our broken SEND system, I want to see a shift away from a system that too often feels diagnosis-led, and towards one that is genuinely needs-led. Prioritising early intervention will enable quicker support and treatment and will improve young people’s quality of life and outcomes.
I recently hosted a series of roundtables with parent carers and practitioners to hear directly from my constituents what they want to see in a reformed SEND system, and I produced a report on their local concerns and perspectives. Many of those who contributed highlighted a need for joined-up, holistic working across agencies and service providers. Nationally, there is a chronic shortage of trained speech and language therapists and occupational therapists in our schools. That has deep and long-lasting consequences, locking young people out of fully accessing their education and preventing them from reaching their full potential. I urge the Government to recognise the importance of increasing recruitment and retention in those critical roles.
I also heard that it too often felt like health services were walking off the pitch and leaving everything to schools and the local authority. Although I recognise the importance of an education-led approach to reforms, local health services, including integrated health boards, need to be held accountable for the parts of the system they are responsible for.
I was delighted to welcome the SEND Minister, my hon. Friend the Member for Queen’s Park and Maida Vale (Georgia Gould), to Bracknell last week to discuss these issues further and to share the voices of the parents, carers, professionals and young people whose experiences informed my report. Again, I thank those who contributed. I am pleased to have the chance to raise the issue in this health debate too.
I recently attended a dementia forum, hosted by Bracknell Forest council, which brought together dementia patients, their families and carers, healthcare professionals and social workers. It was fantastic to hear how a joined-up approach to offering health and social care was having a positive effect on outcomes for those living with dementia and their loved ones. I was also delighted recently to meet our local Admiral nurse, who works with patients experiencing early onset dementia and is supported by Dementia UK. I heard how important it is for the whole team of support around a person with early onset dementia to have access to their health record, enabling a more holistic approach to care. That is a fantastic example of best practice, and it has had a profound impact on patients and their families across Bracknell Forest.
Such community provision is essential if we are to meet our goal of developing a genuinely neighbourhood-led health service. There is much that the voluntary sector can contribute. For example, local mental health services are profoundly stretched, and young people face long waits for support through child and adolescent mental health services. In Bracknell, I am proud that we have excellent local organisations such as Youthline, which was just awarded a King’s award, and Create Hope, which works closely with schools to deliver counselling for young people. I would like them to be supported more by the health system, including through commissioning. Young people across the country face unprecedented challenges, and community organisations play a vital role in advancing a preventive approach to the development of longer-term mental health problems and providing the support on the ground that young people desperately need.
A healthcare system fit for the future must embrace the technological age we live in, and the Government’s ambition to shift the NHS from analogue to digital is commendable. The lack of reliable information-sharing across services is a familiar barrier for both patients and professionals in accessing and delivering the best healthcare, so I am strongly in favour of the Government’s work on the single patient record, which is currently in a test phase. It will play a key role in our 10-year health plan.
The single patient record will lower barriers to access by ensuring that healthcare professionals have a clear, unified view of patient health records, thereby enabling a safer, faster and more co-ordinated approach across services and ensuring that both patients and healthcare providers can access the information they need as seamlessly as possible. That is particularly important in an area like Bracknell, which benefits from services delivered by both the Frimley and the Royal Berkshire NHS trusts—we get the best of both systems.
When patients walk into a health centre, GP clinic or hospital, they do not want to have to think about which ICB or trust is providing the service and whether their data can be shared with the other parts of the health system that they access. They just want to be treated, and to know that every part of the system will understand the treatment they have received. Instead, I often hear residents in Bracknell Forest complaining that their blood test at the local hospital has not been shared with their local GP, or that the care provided by Bracknell Forest council does not speak to the care they access through the NHS. Will the Minister provide an update on the progress towards a single patient record, and set out what it will mean for my constituents in Bracknell who rely on overlapping health systems?
Building a health system fit for today’s needs is a challenge, but one that I know the Government are determined to embrace. I recognise and welcome the progress that has already been made, and I urge the Minister to continue in the spirit of innovation and ambition to drive forward critical changes. We must ensure that flexibility, early intervention and a community-first approach are placed at the heart of our reforms, and that barriers to access are considered carefully so that no community is left behind. I hope the Minister can take these concerns back to the Department to ensure that they are fed into the Government’s plans to rebuild our health system, and that Bracknell Forest’s voice is heard loudly as the ambitious work continues to build an NHS fit for the future.
Suicide Prevention
Peter Swallow Excerpts(7 months, 2 weeks ago)
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Peter Swallow (Bracknell) (Lab)
It is an honour to take part in the debate, which was so powerfully opened by my hon. Friend the Member for Doncaster East and the Isle of Axholme (Lee Pitcher). I am grateful to colleagues for ensuring that suicide prevention remains at the top of our agenda.
As others have mentioned, yesterday was World Suicide Prevention Day, so this debate is timely. Suicide is one of the biggest killers in this country. As other Members have touched on so well, behind every statistic is a friend, a mum, a cousin, a husband—each one loved by friends and family. Over the summer recess, I visited Bracknell Samaritans, where I saw for myself the extraordinary work that it does as part of a successful and growing national network. Its volunteers are there for people at their darkest moments, and we should never underestimate the number of lives that they save. I thank them for everything that they do in Bracknell and beyond.
Last year, I had the privilege of chairing a roundtable on autism and suicide prevention, organised by Autism Action. It shone a light on the disproportionate effect that suicide has on those with autism. According to the National Autistic Society, 66% of autistic adults have experienced suicidal thoughts—nine times higher than for the general population. The society also reports that as much as 11% of people who die by suicide have either an autism diagnosis or autism traits. Those figures are shocking and demand action. The insights and voices of autistic people and their families, which I heard at the roundtable and in further conversations, have been invaluable in shaping my understanding of the scale of the challenge and the need for action.
Recent research from Autism Action, the University of Cambridge and Bournemouth University—the largest study of autism and suicide to date—provides further insight. Almost 1,400 autistic people took part. The study identified loneliness, hopelessness and feelings of failure as key drivers of suicidal thoughts; many reported difficulties in getting the support they needed, long waiting times for diagnosis and a lack of post-diagnostic help. Our national strategies do recognise autistic people as a priority group, but there is more to do to ensure that recognition translates into practical action. An updated suicide prevention strategy should specifically address the needs of autistic people, and the next autism strategy should explicitly consider suicidality, with the two approaches working hand in hand, rather than separately.
While there is more to be done nationally to address mental health issues, I am proud that local organisations in Bracknell are already leading the way: Walks for Wellbeing and Sandhurst Health Walks; Youthline and Create Hope; Stepping Stones Recovery College; Sandhurst counselling service, which, I am very happy to say, is back up and running after a difficult year; Andy’s Man Club and the Crowthorne and Wokingham Without men’s shed; and, of course, Bracknell Samaritans. These groups are lifelines, and they deserve recognition and support for the critical services they provide. I am pleased to say I have met each of them and can personally vouch for the hard work they do in our community.
I want to end with a message to anyone watching or listening today who may be struggling: help is available. Whether by calling the Samaritans on 116 123, through local services in Bracknell Forest or through friends, family and community, there are people ready to listen and to help. Please reach out.
Oral Answers to Questions
Peter Swallow Excerpts(10 months, 2 weeks ago)
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Wes Streeting
That has been a running theme this morning, which will not be lost on Ministers. We will ensure, as we deliver neighbourhood health services, that people can receive care closer to home, wherever they live. We have heard that message loud and clear today, and I think the hon. Member will see that priority reflected in our 10-year plan for health.
Peter Swallow (Bracknell) (Lab)
I declare an interest, as my brother is a GP. When my residents are able to get a GP appointment, they are frustrated when they are sent halfway across the borough to a different surgery from the one they are registered with by their primary care network. Can we address that, and is it part of our proposals in the new GP contract?
Wes Streeting
We do want to put GPs at the heart of neighbourhood health services, and we want people to have care close to home. There are benefits to primary care working at scale, so I would not want to criticise them for doing that. The important thing is different courses for different horses. Some of us are much more mobile, more active and more online and would welcome that flexibility. For others, continuity of care that is close to home, or indeed in their home, is important. It is important that people get the right care, in the right place, at the right time, wherever they live, and that is what we will deliver.
Spending Review: Health and Social Care
Peter Swallow Excerpts(10 months, 2 weeks ago)
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Karin Smyth
The economics of the Green party are even more fantastical than the economics of the Conservatives and Reform; we all dread to think what things might be like under that party. We see that in the local council in my city of Bristol, and it is an absolute disaster. If the council could just get on with building council houses and social homes, it would help more people to live a better life, and would aid prevention. We are getting on with tackling social care. That was announced in the spending review, and that is what the Casey review will do.
Peter Swallow (Bracknell) (Lab)
I warmly welcome the largest-ever capital investment in our NHS in the spending review yesterday, building on the Chancellor’s announcement in last year’s Budget of the money to rebuild RAAC-infested hospitals such as Frimley Park hospital, which will benefit my constituents. That was committed to by the previous Conservative Government, but, shockingly, it was never paid for. With the Government standing four-square behind rebuilding Frimley Park hospital, does the Minister agree it is time for Frimley Health NHS trust to get on and announce the site for the new hospital?
Karin Smyth
I thank my hon. Friend for his support for the Chancellor’s statement and our commitment to the NHS. I know he has been working so hard on this issue on behalf of RAAC hospitals and Frimley Park hospital since he became a Member of Parliament last year, and we are four-square behind that work getting on. It is at the beginning of a very long queue in the new hospital programme. It is one of the things we inherited—we wish it was a better inheritance, but we are working with what we have. We have put the new hospital programme on a firm financial footing, and Frimley Park is at the beginning of that queue. We are very keen that people get on with it very quickly, because there are very many other people waiting behind them.