Independent Living Fund

Debate between Nic Dakin and Andy Slaughter

Wednesday 8th July 2015 Westminster Hall

[Nic Dakin]

My hon. Friend is absolutely right to put her finger on that area of serious concern. If we believe the people who are experiencing the transfer—and I have no reason not to—the smooth transfer that was promised clearly is not happening. The reality on the ground is that many ILF recipients, their families and the people they employ to deliver their care still do not know where they stand, which is clearly unacceptable.

[Andy Slaughter (Hammersmith) (Lab)]

A number of my constituents have benefited hugely from the ILF. I am very pleased to say that the Labour-controlled council in Hammersmith—a well run council—is ring-fencing the money and making sure that there is a smooth transition, but most authorities do not know how much money they are getting, and the Government are only giving them about half the funds. Is that not a disgraceful situation and a terrible way to treat people?

[Nic Dakin]

That is very much part of the issue at the moment, and I congratulate my hon. Friend’s council on being one of those that are making the right stand.

Disabled People Against Cuts, which organised the demonstration last week, has argued:

“At the very minimum the ILF funding should be ring-fenced for the continuing care and support of existing ILF recipients when funding is transferred to Local Authorities and devolved administrations”.

That is not being done and, in an age of austerity and deepening cuts to local authorities, the funds will get lost in the wider budget. That is the key and crucial fear.

DPAC sent freedom of information requests to 151 different local authorities, asking how many are ring- fencing the funding. The response showed that only 21.43% were doing what the council in my hon. Friend’s constituency is doing, whereas 50% said they were not doing that. At the time they were asked, 28.57% still had to decide what they were going to do.

What will further budget cuts bring? As of now, Ashley is allowed to keep his carers, but in a year’s time, will that change? Will his family have to deal with a succession of strangers who do not have time to get to know them and understand their needs?

Leonard Cheshire Disability published a report in 2013 stating that in England, 60% of councils use 15-minute visits, which are not long enough to provide adequate care, with disabled people having to choose whether to have a drink or go to the toilet. Hopefully, things have improved since then, but it is understandable that such reports fuel ILF recipients’ concerns. Those fears are backed up by Disability Rights UK, which made the following observations last week on the eve of the fund’s abolition:

“The monies being transferred from the ILF to local authorities will not, in most areas, be ring fenced meaning that the money can be spent according to local decision rather than necessarily on those in receipt of ILF funding.

There is currently no indication of whether funding for ILF recipients will continue to be transferred from national to local government beyond 2015/16.

The level of social care funding in real terms has, and is likely to continue to be, cut overall outweighing many times the additional funds being transferred from the ILF.

The consequences are that some disabled people in receipt of ILF funding will no longer receive any support at all; and others will find their support package reduced.

We want to see equity of support that achieves independent living across all impairments and age groups—closure of the ILF in current conditions will not achieve this.”

That summarises the strong concerns out there in the community. Scope, Leonard Cheshire Disability, the Spinal Injuries Association and various trade unions are among many other organisations that share those concerns.

Independent Living Fund Recipients

Debate between Nic Dakin and Andy Slaughter

Wednesday 18th June 2014 Westminster Hall

[Nic Dakin]

My hon. Friend is right. Interestingly, we have cases coming in from all parts of the United Kingdom, which illustrate that the issue is deep-seated in all our communities.

Not only are people in receipt of ILF worried, but their friends, carers and families are too. The cases of two of my constituents illustrate that well. Ashley Harrison, for example, is a Scunthorpe United fan, like me cheering on the Iron at Glanford Park. At 10 months old, he was diagnosed with cerebral palsy; he will turn 30 this year. Ashley has lived in his own bungalow since 2006. The ILF allows him to employ his own team of carers. Ashley is an inspirational man, a fighter, but he is worried about the control over his future being taken away from him. His mother says:

“The closure of the ILF would be nothing less than devastating for us as a family. Since Ashley was awarded his ILF allowance the whole family’s lives have changed for the better. ILF understands Ashley’s needs and always do everything they can to constantly improve Ashley’s life and enable him to live independently.

As a family naturally all we have ever wanted is the best for Ashley, which the ILF has helped us achieve. The ILF has always seemed to be the leading and positive force at meetings ensuring that social services match and meet Ashley’s needs. Without the ILF we all face a very uncertain future. The uncertainty that Ashley faced in his early years prior to receiving his ILF award have been daunting, frustrating and of course a constant battle with social services.

The alleged ‘smooth transfer’ over to social services is already proving to be nothing of the sort. Each and every meeting we hold (which are incredibly frequent) leave us having to justify Ashley’s needs as a disabled person. The assessments they ask us to complete are totally unsuitable for the severely disabled.

All of the disabled people living independently with the help of ILF are living their lives to the full. The fear is that if ILF closes these people will lose their human rights and dignity to live their lives as they should.

As a mother who has fought the last 30 years for Ashley to have the life he wants and of course deserves, I dread to think what the next generation of disabled people will have to endure without the positive support of the ILF.

I beg you to listen to myself as a mother of a disabled son and also listen to all those disabled voices who deserve to be heard.

Give each and every person the ability to live and achieve their dreams just as you and I can.

The Paralympics just proves how amazing disabled people can be!”

[Mr Andy Slaughter (Hammersmith) (Lab)]

I am sure everyone will be moved by that testimony. It is an irony that, in my constituency, some recipients of ILF are among the most active people in the community, whether they are working, doing sport in the community or promoting disability rights. Debbie Domb and Kevin Caulfield are two of the most active people in my constituency, and they do a lot of positive good. The removal of ILF will be bad not just for them, but for my community as a whole.

[Nic Dakin]

I absolutely agree.

Let me move on to my second constituent, Jon Clayton, who illustrates what my hon. Friend said. He also receives ILF. Like Ashley, he employs carers who understand his disability. His sister writes:

“My brother Jon is quadriplegic, having been involved in an accident which was not his fault at the age of 18. He is now 54.

He is one of life’s truly inspirational people; an accomplished mouth artist—a gift he only knew he had after his life changing accident—living independently in his own home. He freely gives his time mentoring other disabled persons, helping them come to terms with another life. A life without limbs. A life without walking.

He has always sought to live as normal a life as possible. Having gone through marriage, divorce, being a step father, losing a partner.

He is both ordinary and extraordinary.

He relies heavily on his full time carers. Carers who he personally has ensured are trained to an appropriate and exceptional level to look after a person with specific and defined needs. One false move and he could (and has) spent 18 months bed bound with a pressure sore at the expense of some ill trained nurse.

His carers are trusted to ensure and give a high level of care, entrusted with the most personal of tasks from catheter changing, toileting, dressing…This has been part of Jon’s life since his accident. Something he has taken on with humour and dignity.

If the ILF is removed Jon will be unable to live independently. Being able to engage in what you and I would consider a normal life. He will be unable to travel, have holidays, visit family, visit friends.

The ILF has enabled independence. Given life, where life seemed over.

I would therefore urge you to do all you can to prevent this life enabling function—the ILF—from being eroded.”

Independent Debt Advice

Debate between Nic Dakin and Andy Slaughter

Tuesday 8th February 2011 Westminster Hall

[Nic Dakin]

My hon. Friend is completely right. Early intervention in providing debt advice saves money, saves homes and saves lives. There is a real danger that the legal aid changes will exacerbate an already difficult problem. I hope that a new contract will be agreed in the Scunthorpe area, but when the contracts expire in 2014, no further debt advice of that sort will be provided locally.

[Mr Slaughter]

All welfare debt legal aid will be taken out of scope if the Green Paper’s proposals go ahead. The financial inclusion fund provided a complementary service and was of a highly technical nature. Advice was provided on consumer credit, insolvency, mortgage arrears and other matters of that kind. The double-whammy of these cuts and the local authority cuts will be absolutely fatal to advice centres across the country. The type of advice provided shows that it is ludicrous for Government Members to say that the matter can in some way be picked up by amateurs. We are talking about highly technical issues that are for professional people to advise on.

[Nic Dakin]

I thank my hon. Friend. I think all hon. Members agree that these are specialist advice services with specialist staff. One of the points my hon. Friend the Member for Newcastle upon Tyne North (Catherine McKinnell) made was about the danger of losing specialist expertise. That is another consequence I am sure nobody wants to see. In Scunthorpe, the part-time debt adviser at Crosby community association was withdrawn in December. The area is now losing the FIF debt advice, and the debt advice provided through legal aid is not in place. North Lincolnshire credit union does not provide debt advice, so the local situation is bleak.

As my hon. Friends have pointed out, there is a direct correlation between debt advice and ill health. My hon. Friend the Member for Makerfield mentioned the case study of John. Grant Thornton’s recent study, “Psychology of Debt,” demonstrated that one in two adults with debts have a mental health problem and one in four people with a mental health problem is also in debt. It is therefore clear that the time spent helping people to address their debt problems can help their overall health and well-being. Money spent by the Government on debt advice is likely to save money being spent on the health service. Research by Friends Provident found that the provision of free debt advice allowed creditors to recover in one year £1 billion more than they would otherwise have done.