Independent Living Fund Recipients

Andy Slaughter Excerpts

Wednesday 18th June 2014 Westminster Hall

[Nic Dakin]

My hon. Friend is right. Interestingly, we have cases coming in from all parts of the United Kingdom, which illustrate that the issue is deep-seated in all our communities.

Not only are people in receipt of ILF worried, but their friends, carers and families are too. The cases of two of my constituents illustrate that well. Ashley Harrison, for example, is a Scunthorpe United fan, like me cheering on the Iron at Glanford Park. At 10 months old, he was diagnosed with cerebral palsy; he will turn 30 this year. Ashley has lived in his own bungalow since 2006. The ILF allows him to employ his own team of carers. Ashley is an inspirational man, a fighter, but he is worried about the control over his future being taken away from him. His mother says:

“The closure of the ILF would be nothing less than devastating for us as a family. Since Ashley was awarded his ILF allowance the whole family’s lives have changed for the better. ILF understands Ashley’s needs and always do everything they can to constantly improve Ashley’s life and enable him to live independently.

As a family naturally all we have ever wanted is the best for Ashley, which the ILF has helped us achieve. The ILF has always seemed to be the leading and positive force at meetings ensuring that social services match and meet Ashley’s needs. Without the ILF we all face a very uncertain future. The uncertainty that Ashley faced in his early years prior to receiving his ILF award have been daunting, frustrating and of course a constant battle with social services.

The alleged ‘smooth transfer’ over to social services is already proving to be nothing of the sort. Each and every meeting we hold (which are incredibly frequent) leave us having to justify Ashley’s needs as a disabled person. The assessments they ask us to complete are totally unsuitable for the severely disabled.

All of the disabled people living independently with the help of ILF are living their lives to the full. The fear is that if ILF closes these people will lose their human rights and dignity to live their lives as they should.

As a mother who has fought the last 30 years for Ashley to have the life he wants and of course deserves, I dread to think what the next generation of disabled people will have to endure without the positive support of the ILF.

I beg you to listen to myself as a mother of a disabled son and also listen to all those disabled voices who deserve to be heard.

Give each and every person the ability to live and achieve their dreams just as you and I can.

The Paralympics just proves how amazing disabled people can be!”

[Mr Andy Slaughter (Hammersmith) (Lab)]

I am sure everyone will be moved by that testimony. It is an irony that, in my constituency, some recipients of ILF are among the most active people in the community, whether they are working, doing sport in the community or promoting disability rights. Debbie Domb and Kevin Caulfield are two of the most active people in my constituency, and they do a lot of positive good. The removal of ILF will be bad not just for them, but for my community as a whole.

[Nic Dakin]

I absolutely agree.

Let me move on to my second constituent, Jon Clayton, who illustrates what my hon. Friend said. He also receives ILF. Like Ashley, he employs carers who understand his disability. His sister writes:

“My brother Jon is quadriplegic, having been involved in an accident which was not his fault at the age of 18. He is now 54.

He is one of life’s truly inspirational people; an accomplished mouth artist—a gift he only knew he had after his life changing accident—living independently in his own home. He freely gives his time mentoring other disabled persons, helping them come to terms with another life. A life without limbs. A life without walking.

He has always sought to live as normal a life as possible. Having gone through marriage, divorce, being a step father, losing a partner.

He is both ordinary and extraordinary.

He relies heavily on his full time carers. Carers who he personally has ensured are trained to an appropriate and exceptional level to look after a person with specific and defined needs. One false move and he could (and has) spent 18 months bed bound with a pressure sore at the expense of some ill trained nurse.

His carers are trusted to ensure and give a high level of care, entrusted with the most personal of tasks from catheter changing, toileting, dressing…This has been part of Jon’s life since his accident. Something he has taken on with humour and dignity.

If the ILF is removed Jon will be unable to live independently. Being able to engage in what you and I would consider a normal life. He will be unable to travel, have holidays, visit family, visit friends.

The ILF has enabled independence. Given life, where life seemed over.

I would therefore urge you to do all you can to prevent this life enabling function—the ILF—from being eroded.”