Defibrillators
Jonathan Gullis Excerpts(8 months, 1 week ago)
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Jonathan Gullis (Stoke-on-Trent North) (Con)
I beg to move,
That this House has considered public access to defibrillators.
It is a pleasure to serve with you in the Chair, Dame Maria.
Every year, 160,000 deaths—nearly a quarter of all deaths in the United Kingdom—occur as a result of heart and circulatory diseases. Of that figure, an estimated 100,000 people die each year from sudden cardiac arrest. Shockingly, the survival rate for out-of-hospital cardiac arrest has been persistently low, at around 8.5%. There is an urgent need for parliamentarians and the Government to improve the survival rate and radically change the way we approach cardiac arrest.
As chair of the all-party parliamentary group on defibrillators, I have heard some deeply moving stories that have led me to conclude that public access to defibrillators should be one of the Government’s foremost priorities. The APPG has undertaken a detailed inquiry into public access to defibrillators, which was published today. Its primary aim is to understand the impact of out-of-hospital sudden cardiac arrest and the need for improved public access to defibrillators. The plain reality is brutal: without defibrillation or cardiopulmonary resuscitation, someone’s chances of surviving cardiac arrest drop by 10% every minute. If a sudden cardiac arrest victim does not receive CPR or defibrillation within 10 minutes, they are unlikely to survive.
The quicker a defibrillator can be accessed, the more likely someone is to survive cardiac arrest. However, the APPG found that there are considerable regional disparities in access to defibrillators. The National Institute for Health and Care Research found that deprived areas had far more limited access: while 45% of the most affluent areas had at least one device, the figure was only 27% for the most deprived areas. Further, according to the journal Heart, people in England and Scotland’s most deprived areas are between 99 metres and 317 metres further away from their nearest 24/7 defibrillator than those in more affluent areas. Rural areas are also at a significant disadvantage: while 64% of urban areas have at least one device, the same can be said for only 36% of rural areas. Ambulance response times in rural areas are also considerably slower than in urban areas, heightening the risk of death by cardiac arrest. That should make access to defibrillators an imperative in those areas, but, much though I would like it to be, that is not currently the case.
Given the sad truth that socioeconomic factors, education, diet and stress can increase or decrease someone’s chances of cardiac arrest, that all goes to show that we need to improve public access to defibrillators significantly, especially in disadvantaged communities.
Sir Gavin Williamson (South Staffordshire) (Con)
I congratulate my hon. Friend on securing the debate. I know that he has done so much on this issue. In Stone in Staffordshire, we have the amazing charity AEDdonate, which does so much on installing defibrillators. One of the key points that it always hammers home is the importance of having defibrillators registered so the emergency services know where to direct people. Does my hon. Friend think that is critical to ensure that we get the best use out of them?
Jonathan Gullis
I could not agree more with my right hon. Friend about the need, which I will come to later, to ensure that devices are registered. Having visited AEDdonate myself, I can say that it is made up of fantastic custodians working incredibly hard, not just in rural Staffordshire and Stoke-on-Trent but across the country, to make sure there is access. I know that my right hon. Friend is a doughty champion for its cause, as well as for the community he serves in ensuring access to these lifesaving devices.
Jim Shannon (Strangford) (DUP)
I commend the hon. Member for Stoke-on-Trent North (Jonathan Gullis) for bringing this subject forward. Many in the House, and others, will be aware that I brought the Automated External Defibrillators (Public Access) Bill to the House in 2020. The Government at the time accepted the necessity of having defibrillators in schools, and that was a fantastic milestone in this campaign, which the hon. Gentleman has taken further. Does he agree that it is one thing to have defibrillators installed, but that more must be done to educate people in schools, such as teachers, and teachers’ associations, to use defibrillators properly and make the most out of them, thereby saving more lives?
Jonathan Gullis
I thank my hon. Friend for that intervention. He is a great champion for the people of Strangford and it was an honour to visit his local community with him and see the fantastic work that he is doing there. That Bill still has my full support. I will come to the importance of improving education, so that it is not just a one-off. It needs to be repeated year in and year out, so that children in particular are immune to seeing what will be a distressing scene but, most importantly, have the muscle memory and are able to put that lifesaving support into action. The Minister himself is regularly saving lives, not just in his constituency but across his wider region, with the work that he does, so I am sure that he will understand the importance of persistent and regular education and training.
In September last year, I was pleased to see the Department introduce the community automated external defibrillator fund. This £1 million investment will help to increase access to these lifesaving devices and put an extra 2,000 defibrillators on the streets. That is an important step forward by the Department, but I urge the Minister to do far more to address the clear imbalances that I outlined.
The APPG on defibrillators and I have concluded that there is no co-ordinated national strategy to ensure that defibrillators are placed in areas with the highest need. With previous research illustrating that cardiac arrest is more likely in deprived areas, the Government must ensure that those areas have better or at least equal access to lifesaving equipment to more affluent areas. At this moment in time, that is simply not the case.
With over 30,000 out-of-hospital cardiac arrests in the UK each year and a survival rate of just one in 10, it is crucial that bystanders and emergency responders can locate and access the closest defibrillator immediately. The British Heart Foundation, NHS England, St John Ambulance and Resuscitation Council UK provide the NHS with vital information about the location of defibrillators. The Circuit is a nationwide, data-led map of defibrillators in the United Kingdom. Currently, over 86,000 have been registered, but it is estimated that tens of thousands are still unaccounted for.
Alan Mak (Havant) (Con)
I thank my hon. Friend for securing the debate and for giving such an excellent speech. Hayling Island Community Responders is a voluntary emergency response group in the Havant constituency. The responders carry defibrillators and train volunteers to use them. They are often the first people on the scene in a medical emergency. Will my hon. Friend and my right hon. Friend the Minister join me in supporting community responders, encouraging more defibrillator training and encouraging more volunteers to join community medical response groups across the country?
Jonathan Gullis
I thank my hon. Friend for the undoubted effort that he puts in regularly in his constituency to raise the profile of that fantastic community group of dedicated volunteers. That relates to the point made earlier by my right hon. Friend the Member for South Staffordshire (Sir Gavin Williamson). These groups, who go in day and day out, do not expect much money at all, but try to do everything that they can at cost, in their own time, to literally save lives. I wholeheartedly congratulate the organisation that my hon. Friend the Member for Havant (Alan Mak) referred to, and I congratulate him on using this opportunity to mention its name and ensure that it is in Hansard for all the right reasons. Ultimately, those people are lifesavers, quite literally, and without them our community would be poorer. I am grateful to him for giving me an opportunity to praise them.
It is vital that “defibrillator guardians” register their device on The Circuit, so that ambulance services can access their data. The national view provided by The Circuit means that if 999 is called in the west midlands but the call handlers of the West Midlands Ambulance Service are all busy, the call can be diverted to call handlers elsewhere, who can locate the nearest defibrillator if it has been registered.
By creating a comprehensive AED map, The Circuit provides data identifying where defibrillators are needed. The “Complete The Circuit” campaign by the Express led to a further 16,000 defibrillators being registered, but we need to ensure that every lifesaving device is registered. I hope the Minister will be able to clarify whether the Government will pursue that.
Since becoming the chair of the APPG in January 2023, I have made a conscious effort to monitor public access to defibrillators in my constituency of Stoke-on-Trent North, Kidsgrove and Talke. I have visited several local organisations and groups over the past year to see what access they have to a defibrillator. For example, in October 2023, I was delighted to visit Linley and Kidsgrove rugby club, which had written to me earlier last year about getting a defibrillator on site. It was an honour and a privilege to present the club with a CellAED, which will ensure the wellbeing and safety of players, spectators and the wider community. The device is portable, meaning that it can be taken to away games, too, which could prove vital.
It was also fantastic to visit the Jolly Carter pub in Middleport, which installed a defibrillator late last year after a charity drive to raise funding for one. When I met the landlady, Nicola Fisher, I was surprised to hear that the defibrillator had already saved the life of a man involved in a car crash. The Ford Green pub, which I visited in May, also got its own defibrillator last year, thanks to the hard fundraising efforts of Jayne Bushell and her team. The pub is at the heart of a very busy local community, and the defibrillator could help save lives. And a defibrillator that I personally donated towards—thanks to Mr Rob Matthews bringing the campaign for it to my attention—is now located on Chell Heath Road in the Bradeley and Chell Heath ward. Slowly but surely, public access to defibrillators is improving, but it is essential that we do everything we can to rapidly speed up the process to better protect the public.
The APPG’s report suggested mandating that every emergency vehicle must have a defibrillator. At an APPG session in May last year we heard the tragic story of Naomi Issitt, who tragically lost her 18-year-old son Jamie because a defibrillator was not available when he collapsed at two in the morning. Shamefully, ambulances did not arrive within the required response time, and the police car was not equipped with a defibrillator despite the force believing it had one. The sad reality is simple: had the police car been equipped with a defibrillator, Jamie might still be with us today.
The APPG also found that only one in 11 police cars have access to a defibrillator. We sent freedom of information requests to all the police forces in the UK, and we found that many forces have defibrillators in less than 1.5% of vehicles. We met a representative of Lancashire police who told us that the majority of specialist police vehicles—roads and armed-response vehicles—already carry defibrillators, but most standard police vehicles do not.
Putting a defibrillator in every emergency vehicle and ensuring that all emergency workers know how to use them could help save lives. If only ambulances and specialist police vehicles have these lifesaving devices then there is a high possibility that a police officer could get to the scene of a cardiac arrest and be unable to help in the way that they would wish. Jamie’s death should be a wake-up call. I urge the Minister to consider urging emergency services to better protect the public and ensure that all vehicles are equipped with these lifesaving devices.
Alongside improving access to defibrillators, we need to ensure that people know how to use them. As a former teacher, I know just how important education is in developing people’s understanding of key issues like this. The APPG made it clear that integrating comprehensive first aid training with a strong focus on CPR and defibrillator use can play a pivotal role in equipping younger generations with lifesaving skills. I am pleased that every state school is now mandated to have a defibrillator through the Government’s Defibs4Schools programme. That is an important step forward in widening access to defibrillators, and saving lives as a result.
However, there is a concern that legislation fails to mandate that schools must store their defibrillators on the outside of buildings. I sadly need to revisit the tragic story of Naomi Issitt. She told me in an evidence session that, as well as the issues surrounding the emergency services’ lacklustre critical response time, Jamie had collapsed near a school that had a defibrillator equipped, but because the defibrillator was located inside the school premises, it was inaccessible. The APPG and I agree that it is essential that defibrillators in schools and other public places are accessible 24/7 to heighten the chances of survival through quick access to a defibrillator.
Alongside having physical access to a defibrillator, it is vital that the public are aware how to use them. The fact that the survival rate is depressingly low is due in part to the lack of skills and confidence in performing lifesaving CPR among the UK population. With survival dependent on rapid support, it is the responsibility of policymakers and politicians to campaign to ensure that as many people as possible have those lifesaving skills.
According to a survey of over 4,000 adults conducted by YouGov, over a third have never learned CPR. Nearly half cited a lack of awareness about where to learn, and a quarter of respondents said they lacked the confidence to learn. Those figures are striking. We need to find radical solutions to better equip the public with the skills needed to save lives.
The APPG and I heard from Dr Thomas Keeble, a consultant cardiologist and associate professor at Anglia Ruskin University, who revealed that defibrillators are used in only one in 10 cardiac arrests where lifesaving defibrillators are available. His research revealed that not only are people inadequately equipped with lifesaving CPR skills, but they lack the confidence to use a defibrillator when it is available.
The APPG and I have met some incredibly inspiring individuals and groups over the past 12 months, including Mark King from the Oliver King Foundation. The foundation was established in 2012 following the tragic death of 12-year-old Oliver at a school in Liverpool. Oliver died from sudden arrhythmic death syndrome, a hidden heart condition that kills 12 young people every week. The foundation, set up by Oliver’s father, Mark, provides training in defibrillator awareness and first aid, and has placed 5,900 lifesaving devices in schools and organisations across the United Kingdom. At an APPG session, the foundation emphasised the importance of education, telling me that confidence is key when using a defibrillator, and that removing the fear factor is vital when teaching children how to use it.
The Defibs4Schools programme is a welcome step, but I urge the Minister to consider rolling out CPR training in primary schools. In addition, it is essential that we extend the regulations to ensure that defibrillators should be part of first aid sessions too. These are simple yet effective ways to bridge the gap and empower individuals to become first responders from a young age.
Alongside bettering young people’s understanding and confidence with defibrillators in schools, the APPG has heard that many European countries require people to undertake first aid training to complete a driving test. That is another way in which we can help to develop public awareness and, ultimately, save lives. In Switzerland, applicants must demonstrate that they have undertaken 10 hours of first aid instruction from a Government-approved company to complete their theory test. Germany also requires seven hours of first aid training—nine lessons of 45 minutes each—for all categories of driving licence. Similar models are used in the Czech Republic, Austria, Slovenia, Hungary and the Baltic states. In the UK, around two thirds of young people aged between 21 and 29 have a driving licence. That presents us with a remarkable opportunity to empower a significant portion of the population with life-saving capabilities.
Let me turn to VAT on defibrillators. Defibrillators vary in cost, but the average unit is around £1,250. That is a considerable expense for many groups, charities and sports clubs, especially considering that a sizeable portion of that is the 20% VAT. On average, small businesses, community groups, charities and private users must pay added tax on top of all defibrillator purchases, bringing costs up by £200 to £500 per defibrillator.
I know that my hon. Friend the Member for Colchester (Will Quince) regularly raised this when he was a Minister in the Department. Sadly, he could not make it to this debate, but he wanted to reiterate his support for the Government to re-evaluate this. Some charities are exempt from paying VAT on defibrillators: not-for-profit hospitals; charitable institutions that provide care or medical or surgical treatment for disabled people; and rescue or first aid services. However, most sports clubs and community groups do not qualify.
Last summer, I visited AED Donate, as my right hon. Friend the Member for South Staffordshire has mentioned. It obviously supports the placement and use of automated external defibrillators in local communities. It told me that the removal of VAT would have allowed them to install another 223 additional defibrillators in communities in 2023—they could not do that because of VAT. I look forward to hearing the Minister’s response to that.
Improving survival rates for sudden cardiac arrest rests on increasing public access to defibrillators. It is of paramount importance that we tackle the clear barriers that are preventing lives from being saved by improving public access in disadvantaged areas and through better education. I hope that this debate, which I thank all my hon. and right hon. Friends for engaging with, will raise awareness and that the Minister will take some of my suggestions on board.
Oral Answers to Questions
Jonathan Gullis Excerpts(11 months, 3 weeks ago)
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Andrew Stephenson
As the hon. Member knows, cancer will be part of the Government’s long-term strategy for diseases. Improving cancer treatment wait times is a top priority for the Government, with a key focus on the elective care recovery plan backed by an additional £8 billion in revenue funding across the spending review period.
Jonathan Gullis (Stoke-on-Trent North) (Con)
In response to a written question that I submitted, I was told that the Department of Health and Social Care holds no central data for diagnosis and treatment of those with eating disorders and has no idea how many mental health nurse appointments are available in GP surgeries, despite all the funding. Do Ministers agree that that is a disgrace?
Maria Caulfield
NHS England holds some of that data. Central data is one of the things that we are introducing right now to improve our access to data. It makes it difficult to plan services when we do not have that dataset, but we are working to resolve that as quickly as we can.
Oral Answers to Questions
Jonathan Gullis Excerpts(1 year, 1 month ago)
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Steve Barclay
The hon. Member raises an interesting point about asbestos, because much of the NHS estate dates from a time when asbestos was widely used. Of course, asbestos is considered safe if it is undisturbed. It is a similar issue with RAAC.
On RAAC, we are following the guidance from the Institution of Structural Engineers and monitoring it. The advice is not that all RAAC needs to be replaced; the point is that it needs to be monitored. Where there is deterioration, we have a fund of just under £700 million to tackle that. The asbestos is being monitored, as is the RAAC. We have been monitoring this since 2019 and have a four-year national programme backed up with £700 million to address issues as and when they arise.
Jonathan Gullis (Stoke-on-Trent North) (Con)
The residents of Stoke-on-Trent North, Kidsgrove and Talke would like me to place their thanks on the record to the Secretary of State for having ensured that the Haywood walk-in centre, which has RAAC present, has just received £26.5 million for a new build out-patient building, which will do a lot to improve the care of residents locally. As spades are already in the ground, will the Secretary of State commit to coming to visit so that we can show off this fantastic progress?
Steve Barclay
It is always a pleasure to visit my hon. Friend’s constituency. He highlights a good illustration of how the national programme is working, backed with that £700 million of funding. We are closely monitoring the estate and, where RAAC mitigation is required, that work is taking place. He brings a good example of that to the House’s attention.
NHS Winter Pressures
Jonathan Gullis Excerpts(1 year, 10 months ago)
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Steve Barclay
Looking at the media coverage, the hon. Lady raises a very fair challenge. To give her a sense of what underscores our approach, 15 trusts are responsible for 56% of ambulance handover delays, so the targeting of additional capacity—particularly how we target what we have announced on the areas where delays are most acute—is obviously one of the central things that we are doing at pace, and there is a significant concentration of that.
There are also opportunities to look at the variation in performance and what is working effectively in other trusts. That combination of control centres and better upstream demand management is absolutely core, particularly for cohorts such as dementia patients. There are significant opportunities to target interventions better—NHS England has been doing a lot of work on that as part of its 100-day sprint exercise—but we can do more and the funding announced today speaks to that.
Jonathan Gullis (Stoke-on-Trent North) (Con)
I put on the record my thanks to the incredible staff at the Royal Stoke University Hospital and the Haywood walk-in centre, who have faced unprecedented pressures. Tracy Bullock and Neil Carr deserve our full respect.
We have two problems in Staffordshire. One is that community first responders do not have blue-light ability, which was taken away by the West Midlands Ambulance Service. When will it be reinstated? The second is that community pharmacies can do more—I am delighted that we will see them do more—but their core funding needs to be increased, which it has not been since 2014. How will that be rectified?
Steve Barclay
On the blue-light ability, I am very happy to take that away and look at it. As is often the case, these things are slightly more nuanced, as I discovered when we were looking at Ministry of Defence ambulance drivers and their interaction with blue lights. I am very happy to look at that.
The Under-Secretary of State for Health and Social Care, my hon. Friend the Member for Harborough (Neil O’Brien), is looking at community pharmacy and, in particular, how we better enable patients to get the right treatment in the right place. Given that community pharmacies are accessible and sometimes get higher numbers in more deprived communities, there are significant opportunities for us to do more with them, and I know that that is something the ministerial team is working on.
Oral Answers to Questions
Jonathan Gullis Excerpts(2 years ago)
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Steve Barclay
As I said, I am meeting the Chancellor later today.
Jonathan Gullis (Stoke-on-Trent North) (Con)
Forty per cent. of GP appointments are now related to mental health. That is why James Starkie and I launched the cross-party “No Time to Wait” campaign, which had the support of the Prime Minister when he was Chancellor. We have a fully costed plan with the Royal College of Nursing to pilot such a scheme. Is the Secretary of State willing to meet James and me?
The Parliamentary Under-Secretary of State for Health and Social Care (Maria Caulfield)
I thank my hon. Friend for his suggestion. We are committed to boosting the mental health workforce, and I am happy to meet him to discuss his suggestions.
Draft Mental Health Bill
Jonathan Gullis Excerpts(2 years, 5 months ago)
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Sajid Javid
I hope the hon. Gentleman agrees with me—as I think he does, given the way in which he framed his question—that the Bill is a huge step forward, especially in respect of the important issue of dealing with some of the inequalities in provision which we all know have existed, and which he mentioned at the beginning of his question. The way in which we change things will be not just through the Bill but through continued investment, and by ensuring that, when trusts are failing, those failures are addressed. As the hon. Gentleman said, I will be meeting him, but the Minister for Care and Mental Health will be happy to meet the constituents he mentioned.
Jonathan Gullis (Stoke-on-Trent North) (Con)
I commend the statement, and I commend my right hon. Friend’s bravery in sharing that story. After speaking to friends, I decided to share my own story: twice I attempted to take my own life. Thankfully I did not succeed, but when I needed help, I was lucky enough to be able to get that help. Sadly, that is not the case for too many people throughout our United Kingdom, at a time when 40% of GP appointments are related specifically to mental health.
As my right hon. Friend will know, I am supporting the No Time to Wait campaign, led by my good friend James Starkie, who is trying to ensure that there is a mental health nurse in every GP surgery in the country to help with the early intervention that we know is so critical. There is a great example in Norfolk and Suffolk NHS Foundation Trust, led by Lisa Dymond. Will my right hon. Friend, in the course of his work on this draft legislation, engage with that trust to see the work that it is doing to ensure that we can provide the access that people so desperately need?
Sajid Javid
May I first commend my hon. Friend for sharing his story and for being so open about it? There is no doubt that that will help a great many other people. I am sure he will welcome the Government’s plans for a new 10-year suicide prevention plan. I agree with him about the need to continue to work on improving provision, and I believe I will be having a meeting with him and Mr Starkie to discuss his campaign further.
Oral Answers to Questions
Jonathan Gullis Excerpts(2 years, 5 months ago)
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Edward Argar
I am grateful to the hon. Gentleman for his important question. As he highlights, we are investing more in more nurses, but there is also a large piece of work to do on health education and improving access to those services for people with diabetes. I urge him to look forward with eager anticipation to the health disparities White Paper.
Jonathan Gullis (Stoke-on-Trent North) (Con)
Mr Speaker, you will be aware that I am proud to support the “no time to wait” cross-party campaign to ensure that we have a mental health nurse in every GP surgery across the country. I am delighted to see the hon. Member for York Central (Rachael Maskell), who supports the campaign, in her place.
I was delighted to read that the Secretary of State has said that we will recruit 2,000 mental health nurses into GP practices. Can I have more detail on how that will work? Can we look at Norfolk, which is using primary care networks, and third sector organisations such as Mind to help with that recruitment?
Edward Argar
I am grateful to my hon. Friend for drawing attention to this important issue as well as for highlighting what is going on in Norfolk and the opportunities to learn from that. The Government have put record funding into mental health, and I understand that my right hon. Friend the Secretary of State is due to meet him and supporters of the campaign soon.
Oral Answers to Questions
Jonathan Gullis Excerpts(2 years, 7 months ago)
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Jonathan Gullis (Stoke-on-Trent North) (Con)
Mental health is a serious challenge of our time. It is totally unacceptable that waiting times, average number of sessions and minimum number of sessions differ according to which part of the country someone lives in. Sadly, recent statistics show that in Stoke-on-Trent people are taking their own lives at double the national average. That is why I am proud to support the cross-party “No Time to Wait” campaign, led by James Starkie with the backing of The Daily Telegraph and the Royal College of Nursing, for the provision of mental health nurses in GP surgeries, which could make a real difference to those who bravely come forward asking for help. Will my right hon. Friend meet me, hon. Members of this House who are supportive, and James to discuss how we can make that possible?
Sajid Javid
Yes, of course; I would be delighted to meet my hon. Friend and others to discuss the campaign. He speaks with passion and I know this is something he has long campaigned on. I have had time to look at some of the content of the campaign, but I would certainly be happy to discuss it further.
Down Syndrome Bill
Jonathan Gullis ExcerptsFriday 4th February 2022
(2 years, 9 months ago)
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Siobhan Baillie
That is a really important question. I think there have been improvements—my right hon. Friend the Member for North Somerset will attest to that—but there is still a lack of understanding and education. We have a real issue with people feeling that they need to have a termination when they are told about Down syndrome. There is a big campaign on not screening out children with Down syndrome, because they live very fulfilled lives and bring great joy to so many people. Education for all is really important.
Jonathan Gullis (Stoke-on-Trent North) (Con)
Let me quickly add my support for the Bill introduced by my right hon. Friend the Member for North Somerset (Dr Fox). On the point that my hon. Friend the Member for Stroud (Siobhan Baillie) made about education, we need education not just for expectant parents or young people but for employers too. One of the things that shocks me most is that there are plenty of people who have Down syndrome who could, if they wanted, be in our workforce playing a fulfilling role. We know that the benefits of work include increased life expectancy, as well as better physical and mental health. Warwickshire County Council had a great scheme supporting employers to understand how to support not just people with Down syndrome but those with other learning disabilities, and how to make them an important part of their workforce. That encouraged a lot more people to enter the world of work. Does my hon. Friend agree that those are the sorts of things that we need to see happening, so that employers understand the full potential of everyone across our United Kingdom?
Siobhan Baillie
I completely agree. Rhys earns £9 an hour—he is far richer than me, because he has no outgoings—but he enjoys his job and he feels fulfilled by it. Schools such as The Shrubberies in my patch do an awful lot of work to make sure that people go on to be work-ready, as do our colleges, such as SGS Stroud. Again, that is why the focus that the Bill will bring for the Government, local authorities, schools—everybody—is so important. We are thinking slightly differently, and I really welcome that.
I should be honest and say that I did not handle my sister’s being pregnant very well. I was still a teenager myself. I genuinely thought that, as a teenage mum, her life was completely over and she would not get to enjoy a lot of the things that I had enjoyed, but I could not have been more wrong. She definitely had a very different life from me in many respects, but I deeply regret my lack of understanding and some of the anger I felt on her behalf. It was unjustified and it was wrong, because Rhys was the best thing that happened to all of us in our family for so many reasons. But, boy, our learning curve has been so steep. I have seen my little sister battle for the understanding of people with Down syndrome.
Jonathan Gullis
I would like to associate myself with my hon. Friend’s comments regarding the fantastic organisations based in the great city of Stoke-on-Trent. I give a particular shout-out to Watermill School, based in the Stoke-on-Trent North, Kidsgrove and Talke area, which is being extended as part of a £7.5 million refurbishment to increase our SEND provision in the city, which is sorely lacking at present.
My hon. Friend specifically mentioned the education of teachers. As someone who spent eight and a half years in the teaching profession in state schools both in London and in Birmingham, I am sad to say that, at no stage, as a head of year or as a frontline teacher, was I ever given training about engaging with and looking after a child with Down syndrome. In fact, with some learning needs, the teacher would have that conversation only if they had a child in their class or year group with that learning need. It is simply not right, and nor is it fair on those young people, who deserve to have their full potential unlocked. Does she agree that, as part of the legislation that my right hon. Friend the Member for North Somerset (Dr Fox) is putting forward—this fantastic legislation—we need to have a serious conversation with the Department for Education, working with local authorities, not just about what type of training is done at the start of term or when a student enters a school, but about how the continuous training and development of teachers happens all year round?
Jo Gideon
I thank my hon. Friend. I absolutely agree. I think we need to look at the whole pathway from education to work, as we said earlier.
I would like to mention a very interesting and important project that I was involved with a few years ago in a very isolated community in the Brecon Beacons called Myddfai. The challenge was to create sustainable employment and regenerate a very isolated village. As part of the project, we created a trading company, and within that trading company we were able to employ a number of young people. I am glad to say that, eight years on, there are still young people employed there today, some of whom have Down syndrome. Members can see if they look on the website, myddfai.com, how happy they look in the photographs. It is really satisfying to see how the right employment can fulfil.
Stuart Anderson
I thank my hon. Friend for his intervention. I believe that I ran through his constituency on day 3. In Machynlleth, we encountered our first shops and we were able to get some lollies as we passed through; it is a beautiful area. Yes, that should be considered across the devolved Administrations as well. I would welcome that.
We need to think about the careful planning that allows people to continue to live a normal life, day in, day out. It is not straightforward or easy. A lot of consideration has to be brought in. It is right that the provision is planned according to the individual’s needs. I am glad that a commitment has been made to consult widely on proposed guidance as the Bill is taken forward, ensuring that the voices of those with Down syndrome and their families and carers are heard, and that the guidance is fit for purpose.
Jonathan Gullis
Education investment areas were announced in the “Levelling Up” White Paper. I suggest that the Bill, brought forward by my right hon. Friend the Member for North Somerset, has influenced Government policy in a wider spectrum. Education investment areas will see up to £30 million funding over the next three years for councils to offer up to 10,000 additional respite placements for children and young people with special educational needs, including young people who have Down syndrome. For local authorities seeking the money—the great city of Stoke-on-Trent is lucky enough to be one of the 55 announced to have secured an education investment area—this is a really good way to help with that education and with understanding the needs of parents and care givers.
Stuart Anderson
My hon. Friend raises a valid point. It is about understanding those needs. I am delighted that investment has been rolled out across the country in many areas that vitally need it. That is welcome. He mentions local authorities. I have a question of this Bill. I have worked closely with others on the armed forces covenant, being an armed forces champion prior to coming to the House and having sat on the Select Committee on the Armed Forces Bill. The covenant has due regard, as does the Bill, to health, housing and education. It would be good for the Minister to expand on how the Bill will link with those areas.
Alongside the Bill, I welcome the steps taken by the Government to consider ways to improve outcomes for children and young people through the SEND review. I am delighted that the Government have confirmed an extra £1 billion to help local authorities, schools and other providers to deliver better support for learners with complex needs. At this stage, it would be remiss of me not to mention the hard work that all education providers across the country have delivered, but particularly the SEND schools. My constituency has Penn Hall, Tettenhall Wood, Penn Fields special school, Broadmeadow and Wightwick Hall. I visited all but one during the lockdown and covid period, when we could, to work with them in what was the most complex and challenging time for anyone. They did outstandingly, and how they delivered that is a credit to the children, the parents, the teachers and the cultures in those schools. Funding for these schools has increased by 13% on last year, meaning high-needs funding stands at £9.1 billion in 2022-23. This will benefit learners from early ages up to the age of 25, as well as those in alternative provision due to exclusion, illness or other reasons.
Another issue that needs to be looked at is guidance on potential barriers to work. Fewer than two in 10 people with learning disabilities are in employment. My constituency has the highest youth unemployment in the country. I recently held a jobs fair in the constituency with more than 50 different providers and several hundred people looking for work. Every single one of those providers had a job vacancy, and we were putting people together. Wolverhampton has the lowest youth employment, and with two in 10 people with learning disabilities currently out of employment, that will significantly impact communities in Wolverhampton. We need to look at that.
Despite falling in most areas across the west midlands, the disability employment gap remains too high. We have to work on this across the country, because levelling up is for all areas. Everyone should have an equal opportunity to work, so I am pleased that the Government are committed to seeing 1 million more disabled people in work by 2027. That is exceptional, but I think we should do more to push it. They have made good progress already, but as I said, we can always do more. I welcome the Government’s commitment to double down on that work, particularly the £339 million of funding in each of the next three years, which will continue to establish disability employment schemes such as the work and health programme and access to work scheme, through which many disabled people can benefit from grants worth just over £62,000. That goes to covering the costs of specialist equipment to help them to do their job. There are many complex needs that we have to factor in and work with.
To return to Wolverhampton, I am delighted that a pilot scheme is running at the University of Wolverhampton, which is at the heart of our community and is spread across our city centre and many surrounding areas. It offers a passport to students who already receive extra support to capture information about the adjustments that they benefit from to avoid repetition and disclosures when they start work. Thousands more could benefit if the scheme was rolled out across the country.
As the work gets under way, I ask the Minister to ensure that disabled people, including those with Down syndrome, are front and centre of levelling up. This week, we heard the levelling up announcement, and Wolverhampton certainly did well through the towns fund, the future high streets fund and the levelling up priorities. We also have the National Brownfield Institute. If it is not working in communities, however, it is not working. We have to ensure that levelling up truly works for everyone, and the Bill is a great way to achieve that.
Lia Nici (Great Grimsby) (Con)
I congratulate my right hon. Friend the Member for North Somerset (Dr Fox). As a newbie and a Back Bencher I still cannot quite believe that I am in the same place as him. This is a truly landmark Bill, and it has been fantastic to learn from him how such a Bill can be formed to make a real difference in human beings’ lives.
I am chair of the apprenticeship diversity champions network, and one of our aims is to get more people with learning difficulties and disabilities into apprenticeships and long-term work. The Bill will help to get employers to understand that people with Down syndrome are very able to work in their workplaces. After this debate, in National Apprenticeship Week next week, I will write to the top 100 apprenticeship providers to say that they need to think about employing more people who have Down syndrome and who have learning difficulties and disabilities more widely.
I do hate the term “disabilities”. It should be “differences” or “diversities”, because everybody can do some things and not others. I have felt for a long time that the word “disability” does a disservice to our fellow human beings. I feel blessed that, as I was growing up, my mother retrained as a social worker. She went to university, while she was working full time as a catering manager, to become an assistant social worker and went on to become a fully qualified one.
My mother specialised in learning difficulties and disabilities, so in my teenage years I had lots of discussions with her and learned about the different types of disabilities. She was and still is passionate about people with difficulties and disabilities having as full and independent lives as possible, which I have taken to heart and always thought about. We all want to be independent and to have fruitful and enjoyable lives, including work lives. If employers are watching or listening to this, or reading about it afterwards, they should start to think about taking on people who have Down syndrome, because they can add a fantastic extra dimension.
Jonathan Gullis
My hon. Friend is a doughty champion not just for Great Grimsby but for skills and apprenticeships across our country. She worked in the further education sector before entering this place, which goes to show the breadth of talent and life experience that we now have on both sides of the Chamber. Does she agree that that makes this a much more representative, diverse and better House of Commons?
Lia Nici
I thank my hon. Friend for his support and for his passion about education. We have many conversations about it, although I was worried at one point that he was going to say that I was teaching in further education before he was born, which, worryingly, might actually be true. We will brush over that.
I urge employers to think about taking on people who have Down syndrome. As the Bill is so specifically about Down syndrome, it will allow the message to be communicated much more widely to employers.
There is another reason I feel that this is a landmark Bill. Let me use a metaphor. One of my first jobs when I was 18 was as a barmaid in a country pub not far from Grimsby called the King’s Head, in a little village called Keelby. In the 1980s, pubs were part of their communities. They still are now, although perhaps not as much, sadly. One resident of the village—I will not use his proper name, as I have not asked his family’s permission, but we will call him Bob—lived across the road from the pub. He came into the pub every night and was welcomed by everybody. He had his own special tankard hanging up. When Bob came in there was a particular orange juice that he liked to drink at a particular strength—I had to learn how he liked his drink—and he had a pint with everybody. How England is embracing people with Down syndrome with the Bill is very much like how Bob was embraced in the pub. He was greeted as an equal, and joined in conversations and played pub games. It was very much part of his life. He was working at the time. Is it not lovely to think about how the country and, we hope, the wider United Kingdom can embrace the Bill?
As my right hon. Friend the Member for North Somerset says, it is important to have a named person in the ICS and care sectors.
Covid-19 Update
Jonathan Gullis Excerpts(3 years, 4 months ago)
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Nadhim Zahawi
I am grateful to the hon. Member for his excellent question. It is incredibly important, because we pledged to deliver 100 million excess doses, beginning with 5 million immediately and 20 million by the end of the year, and then the balance next year, as well as the Oxford-AstraZeneca vaccine being delivered around the world at no profit to AstraZeneca or Oxford. To update him, we have sent out our first deliveries of the Oxford-AstraZeneca vaccine, as per the Prime Minister’s pledge, and speaking to the Serum Institute of India, they are now not producing 100 million doses a month of that vaccine but are up at 200 million doses a month. It really is an extraordinary achievement by Sarah Gilbert and her team and AstraZeneca in saving the world from this awful virus.
Jonathan Gullis (Stoke-on-Trent North) (Con)
We were very grateful to the Minister for helping us to secure the Tunstall mass vaccination centre, which has delivered over 50,000 jabs into the arms of people and is the city of Stoke-on-Trent’s mass vaccination centre. As part of the autumn roll-out, when we will be getting a third dose into the arms of many residents, will the Minister confirm that the Tunstall mass vaccination centre will stay in place over the autumn and winter this year?
Nadhim Zahawi
I thank my hon. Friend for his effort in getting 116,657 jabs into the arms of his constituents and offering them that protection. I will certainly have a look at the vaccination centre as part of our infrastructure. We have a very ambitious programme to deliver to about 15 million people in the first phase and, with the second phase, a cumulative 32 million people. So we will be doing that at scale as well as, of course, flu vaccination wherever possible.