Children with Autism (Education) Debate
Full Debate: Read Full DebateGordon Birtwistle
Main Page: Gordon Birtwistle (Liberal Democrat - Burnley)Department Debates - View all Gordon Birtwistle's debates with the Department for Education
(10 years, 4 months ago)
Commons ChamberI beg to move,
That this House has considered the provision of education for children with autism.
It is a privilege to introduce this debate on the provision of proper schooling for children with autism. I first considered securing such a debate when I was approached by a number of families in my constituency. I asked a question of the then Secretary of State for Education, who agreed that I could meet the Minister, which I did. Following that, I was approached by a number of my constituents who asked me to secure today’s debate. I am delighted to have achieved that and I thank the Backbench Business Committee for allowing it. I am pleased that there are a number of Members in the Chamber today who wish to debate this important subject.
This debate is important in identifying for the Minister the horrifying ongoing struggles, about which my constituents have certainly told me, that children with autism face in getting appropriate education. As a result of poor local provision and unofficial exclusions, thousands of children with autism do not access full-time education. If a young person’s needs are not understood or met, that has both short and long-term implications, which, as my constituents’ experience highlights, can be severe.
We are all aware that autism is a lifelong developmental disability that affects how a person communicates and makes sense of the world around them. It is a spectrum condition, meaning that it affects people in different ways, making awareness and diagnosis even more important. Some children have mild autism and some have severe autism and the idea that one education system fits all does not work. That is one of the major issues that I hope to put forward today for consideration, and I hope that the Minister will look into it in the future.
I congratulate the hon. Gentleman on securing this important debate. Will he join me in congratulating the many important local community groups that support children with autism, such as Autism Support Crawley and Autism Sussex, on the help that they give to parents in dealing with the education system, which, as he rightly points out, differs from local authority to local authority?
I am grateful to my hon. Friend, who makes a valid point. In my constituency, there are many people, such as church groups and voluntary groups, who do just that. However, we need the local education authorities to recognise the problems. Children with autism, like children without autism, should have an equal right to access good-quality full-time education.
Let me look directly at my own constituency, which is in Lancashire. Lancashire county council, in my view and in that of my constituents, has failed to ensure that appropriate education and support are provided for numerous autistic children. I will give three examples later in my speech. To put it simply, its oversight is causing too many children with autism to miss out on much of their valuable education. Despite local authorities holding the legal responsibility to ensure that all children with special educational needs in their area are identified and supported, it is evident that that is not being fulfilled. In Lancashire no one is accepting responsibility or taking the time to understand the needs of these children. That is happening across the country, so many of the 70,000 school-age children in England are not accessing the education they need to learn, achieve and, more importantly, thrive.
I draw the attention of the House to three of my constituents. One of the cases is especially moving. When I first heard about it, I was distressed, to say the least. It concerns a young lady named Chloe, who is 17 years old. She is now on suicide watch as a result of repeatedly being failed by Lancashire county council since the age of 11. The detrimental impact of Chloe’s lack of education and development as an individual is clear. She was threatened with exclusion from her mainstream school placements up to the age of 13, when she was finally diagnosed with attention deficit hyperactivity disorder and autism.
Children with statements of special educational needs are eight times more likely to be excluded than their peers, and children with no statement are 11 times more likely to be excluded. When Chloe was 14 her family was advised that she would receive a statutory assessment of her educational needs. Lancashire county council failed to undertake this, despite it being recommended by professionals and her parents’ insistence. It took years—not weeks or months, but years—for Lancashire county council educational psychologist Yakub Padia to assess Chloe. After a 20-minute consultation he disagreed with the findings of experienced psychologists who had spent prolonged periods with her, and it was recommended that she be placed in a pupil referral unit, rather than the specialist school recommended by the professionals. Lancashire county council disregarded this and even the advice of the head of the pupil referral unit, who thought it was not suitable for Chloe.
As a teenager Chloe was passed from pillar to post, with a total lack of accurate assessment. Lancashire county council let her down. Chloe felt worthless and rejected. That led her to self-harm and to suffer from depression. She has ended up in a specialist psychiatric unit on suicide watch. Her brothers have had to watch her attempt to hang herself in the family home. Chloe is now emotionally and mentally damaged. Without question, missing out on education leads to poor life outcomes for the child involved and for their families. Chloe’s mum is one of the 50% of parents of disabled children who say they have had to take up part-time work as a result of their child’s exclusion. Chloe is a very sad case.
I congratulate the hon. Member for Burnley (Gordon Birtwistle) on bringing this important issue to the attention of the House. I was hoping he would go on to paint a picture of how we as parliamentarians can help to destigmatise the condition and break down some of the barriers that people face in their everyday lives in respect of employment and perhaps even diagnosis of their condition. All we have heard up till now is an attack on Lancashire county council. I hope the hon. Gentleman will focus on what we as parliamentarians can do to assist people who have the condition.
I am grateful for the intervention. I am trying to explain that people with autism are born with autism. I am trying to find a reason why, in education, we cannot accept this—as a disease or an illness—and work with the families and the children who suffer from this appalling disease. I have met the head of a school not in my constituency, but close by, called Rossendale school. The head said that he could resolve the problem and he has proved that. He has a way of doing that. Unfortunately, Lancashire county council—the hon. Gentleman says that I should not be having a go at it—does not accept that and will not work with the school, which I find pretty hideous, because it needs to do things like that.
I remind the hon. Gentleman that Lancashire county council has 1,435 children and young people suffering from autism spectrum disorder and, as he will hear in my speech, does an excellent job. He omitted from his remarks the fact that Rossendale is a private school and that the council provides excellent state facilities, with specialist experts, and can make that provision available, but he—I am sure that he will expand on this later—is insisting on private education when public education is adequate.
I thank the hon. Gentleman for his remarks, but the families of the children I am talking about would totally disagree—they will no doubt be happy to meet him later to explain the serious problems they are having. I am not pushing for private education. Rossendale might well be a private school, and so too might one or two others. All I am saying is that if Rossendale can provide it, why can Lancashire county council not do the same through the state system? Why can the council not be just as good as Rossendale? I do not want to promote a private school; I want to promote extremely good education for my constituents.
The hon. Gentleman—it is difficult not to call him my hon. Friend—will know of my interest in this subject. I am sorry that I arrived a little late to this debate; I was chairing a committee at the other end of the building. I am delighted that he is making this speech. I want to make the point, having chaired the Education Committee when it conducted a major inquiry into special educational needs, that the lack of early diagnosis and early access to psychological and mental health therapy is a problem up and down the country, not just in Lancashire. The length of time it can take for a child suspected of having such a condition to be evaluated and then given the support they need is a national disgrace.
I thank the hon. Gentleman. I could not have put it better myself. That is the argument I am making. We are having this debate because I was approached by three families in my constituency. I had thought that this was a small issue. I did not anticipate the flood of e-mails and correspondence I received, and not only from Lancashire, but from all over the country. I agree with it 100%.
We can sit here all day long saying that this is happening all over the country, but what are we doing about it? We need to do something. Why are children with autism and ADHD being tret in that way? As the hon. Member for Preston (Mark Hendrick) has said, Lancashire county council provides education to more than 1,400 young people with autism spectrum disorder, but why are my constituents, who are up in the Gallery, being tret differently from anybody else? Why does the council not treat them in the same way? Why are their children totally different from somebody else’s? Why do they have to suffer? Why does Chloe’s mother have to suffer in that way while other parents do not?
If Lancashire county council delivers such a great service, as the hon. Gentleman says, why is it letting Chloe and her mother down? That is my issue today. I am happy for Lancashire county council to deliver the best service available in the country, but it has to be for everybody, not just the few. My purpose today is to raise the issue with the Minister and ask him to look into it and take it forward.
My hon. Friend is doing a great service to this cause just by raising it, so he should be proud of himself. Surely the answer to Labour Members’ interventions is that it is a question not of state or private but of looking at each case individually. If a private school happens to be more appropriate, there should not be bias against the fact that it is a private school. We should look at what is best for the child, should we not?
I absolutely agree with my hon. Friend. I will shortly come to a case where I got involved in talking about private or public provision and heard stories from the staff at the county council.
The next case is that of a young man called Jack Entwistle, a nine-year-old autistic boy who should currently be enjoying his school holidays but, unfortunately, has already been out of education for three months. He is at a critical age educationally and developmentally, but so far he has been failed by the county council. This is not just about Lancashire county council—it will be happening all over, but I have not met anybody from any other county council area with similar experiences.
It might be happening in the hon. Gentleman’s constituency; in fact, I am sure it is. I have been to Huddersfield, and it is a beautiful place that I would always be happy to visit, but I can talk only about the people I know.
May I tempt the hon. Gentleman, who is an old friend of mine, to be more forensic? We need to do better—all of us here in the Chamber today who care about this. He is right: we all see similar cases in our constituency advice services. The real problem, right across the country, is proper early diagnosis, whether in the private or the state sector—it does not matter. What the parents want is early diagnosis so that support and intervention can then take place and the child has a chance to develop their spark of potential in the very best way. We are talking about some very, very clever kids who need support really early on in their careers. If we can share, forensically, information about where the barriers are and why early diagnosis is not taking place, we can be much more effective. We have here a very good Minister who partly trained on my Select Committee at one stage. I know that he is good on this and cares about it, and we can make a compelling case to him.
I agree with everything that has been said. Why cannot these diagnoses be done quickly? Why cannot we solve these problems?
Jack received a statement of educational needs at the age of three due to his prematurity and his visual impairment, so his parents should have received adequate support and his needs should have been met as he wanted. Conversely, he has been subjected to humiliation in the school environment, with unfair treatment by a teaching assistant and his recent forced removal from the mainstream school that he had attended for four years. Jack was officially diagnosed with autism in 2012 when he was seven, but he had a problem when he was three. The school declared that it could no longer cope with Jack, who struggled with the transition from infants to juniors.
After several meetings with the county council education authority, Jack’s parents worked well with the school—a state school—to create a suitable environment with the input of a teaching assistant providing additional facilities. Jack thrived and his marks improved. However, the county council has taken away the special needs teacher and now he cannot manage at school. His parents have no trust in placing him in this environment and are currently appealing against his placement. It is wrong that the county council, instead of encouraging Jack’s development, has not considered all his needs. That is what it is all about—considering the child’s needs.
It is more than alarming that the parents had to face more battles to get the county council to amend Jack’s statement to include autism as part of its diagnosis. Why should the parents have to argue with the experts to get a proper diagnosis of the child’s illness? Why on earth do they have to do this? Is it not delivered automatically? Are we not paying the experts within the education authority to deliver this service to my constituents—the parents and the child? That is the big problem.
I want to go back a step or two and express my gratitude to the hon. Gentleman for raising this issue, but not necessarily for the manner in which he is doing so. He is, of course, absolutely right to illustrate the cases of his individual constituents, but an immediate member of my family who has autism went through a similar experience to the one he is describing when Liverpool had a Liberal Democrat council. I say that not because I want to make a party political point, but because this is widespread and happens all the time. We have to understand that this is a condition—it is not a disease—with a spectrum of different conditions within it. It is very complex. That is why early diagnosis and assessment followed by a support package based on the individual needs of the child is the most important thing we can do. I hope we will get to the point where we can work with the Government to see what we need to do better to enable people to get the best start possible in life.
I am grateful for that intervention. My only aim is that we all work with the Government and education authorities to come to a conclusion on how to address early diagnosis and to deliver for these young people—who in the main have amazing talents—educational facilities that will take them on, help them succeed and be superb members of the community, and enable them to live normal lives. My argument is that we are not doing that, and the hon. Gentleman obviously agrees with me.
The education system in Scotland is devolved, but, as has been said, this is a problem across the country, because the condition is prevalent across the country. Does he agree that this is not just about local authorities and that there should be proper training for the teaching profession? There is also a body of work to be done on teaching schoolchildren to treat those in their classes who have autism slightly differently and to be a more aware of their condition so that they can thrive in a mainstream environment.
Absolutely. I pretty much agree with everything that has been said and most people seem to agree with what I am saying. My argument is that, although the hon. Members for Liverpool, Walton (Steve Rotheram) and for Edinburgh South (Ian Murray) and my hon. Friend the Member for Gainsborough (Sir Edward Leigh) have all made amazing suggestions, we do not act on them. While we sit here and talk, why are thousands of young people and families across the country suffering? I have met some of those families and they are at the edge of life. It should not have to be like that. Proper facilities should be provided.
This is the first time I have risen to make an intervention in this House to say something positively nice about the Government: the Children and Families Act 2014, which was passed recently, met an aspiration that I had had for many years, namely that someone diagnosed with special educational needs will have a special relationship with evaluation until they are 25. That is wonderful and we should pay tribute to the Under-Secretary of State for Education, the hon. Member for Crewe and Nantwich (Mr Timpson) and the Government for it. The sensitive issue, however, is what has happened to services such as child and adolescent mental health services, which seem to be falling apart up and down the country, but the Government are not reacting to that.
I am grateful for that intervention and I will address the hon. Gentleman’s comments when I come to the end of my contribution.
Thirdly, I want to talk about a little girl called Honey, who is the daughter of a constituent of mine with a hairdressing salon near my office in Burnley. She is a lovely, lively little girl—she spends time in my office on occasion—who has very mild autism. She had to be moved six months into her final year in primary school due to trauma and threat of exclusion. Basically, she was classed as a naughty girl.
Honey’s new primary school quickly established the need for a statement of educational needs—why had it not been picked up earlier?—and had evidence from an independent educational psychologist to present to the panel. Once again, however, the Lancashire county council educational psychologist reassessed Honey and challenged the independent assessment.
No secondary school place has been arranged for Honey, despite her parents choosing Rossendale school. There may be other schools that are as good as that independent school, but Rossendale is one of the few providers catering for high-functioning ASD children in Lancashire. Honey’s parents’ preference for Rossendale was put to a panel, which rejected it. The panel suggested a special school for severely disabled children, which was named without the parents’ agreement.
Lancashire county council advised the family to look at other options, but every time the family went back to the panel, their wishes were rejected. Naturally, that has had an effect on Honey’s self-esteem, and her anxieties have increased by the rejection of her choice of school. The family therefore appealed to SENDIST––the special educational needs and disability tribunal—against the named school, and asked for Rossendale school to be named. Honey has been in front of a judge, to whom she outlined her future aspirations, of which she has many. However, the family has had no success in integrating her into the school she suggested.
Honey has anxieties and fears connected with the named school. She has now been out of school for more than 12 months, which is detrimental to her health and education. Despite her parents’ request for an annual review, that has been overlooked. Such requests should be considered natural: if somebody asks for a review, it should be accepted.
When I have attempted to speak to the county council about this matter, I have been told many stories. The lady in charge, Charlotte Finch, the SEND integrated assessment team manager, has given me confusing statements about whether Honey or any child for that matter can attend Rossendale independent school or another school of the same quality. She said that no child from Lancashire is to attend the school, but the head of the school has since told me that that is not true. Lancashire county council does send children to Rossendale school, but when I spoke to the council I was told that it did not. Such treatment has created hostility between the child’s family and the council.
Most education authorities, including Lancashire, fail to appreciate and understand the needs of autistic children that I, like countless others, have described. I must stress that those are the first three cases I was approached to help with that I have time to deal with in this debate, but they are by no means my only cases. I have been inundated—and, indeed, saddened—by cases of the many families across Lancashire and the whole country who are suffering the same plight.
Autism must be understood, as must the child in question. Information provided by Lancashire county council and other authorities suggests that they do not have data about the number of children with autism who are out of school. The way in which they store the data means that they cannot be broken down by disability, which is clearly a problem in itself.
Furthermore, there is evidently a problem with Lancashire county council’s approach to autism. According to information that I obtained from an individual involved in a professional capacity with the council, in March the head of inclusion and disability, Sally Riley, held an information and training morning for all school staff about the new SEN code, which has been mentioned today. During it, the number of tribunals was discussed, as was the council’s success in winning them. For me, that is the wrong way round: it is not for the council to win a tribunal against a child; the child should win the tribunal because otherwise they are put out of school. Why do tribunals not understand that children need help? I would be delighted if such a department head at the county council stood up and said, “I’m sorry. We’ve failed every tribunal, and every child has got the school they need.” Unfortunately, however, what is happening is the other way around. The figures highlighted that the council had won more than they had lost, which is disgraceful.
We are running short of time and many other Members wish to speak in this debate, so I will conclude. One big problem is that the family members of children in Burnley have rapidly lost confidence in the education department of Lancashire county council, just as, I am sure, families across the country lose confidence in their education authorities. We need to do something to resolve that situation. I hope that after this debate the Minister will take up the cudgel for children with autism, particularly those in my constituency. As the hon. Member for Huddersfield (Mr Sheerman) said, we need to find out what the problems are earlier and deliver the services sooner. I hope that the Minister will take that up.
I congratulate the hon. Member for Burnley (Gordon Birtwistle) on securing this important debate on an issue that is close to the hearts of many Members who are in the Chamber.
Although the hon. Gentleman might not have intended for his speech to be seen as an attack on Lancashire county council, he made many serious accusations against it. As the council is not here in any capacity to defend itself, I think it is important that I respond, as somebody who has spoken to people from the area and county councillors about some of the matters that he has raised.
In Lancashire, 1,435 children and young people have autism spectrum disorder, which is commonly referred to as ASD. Of those children, 1,129 have a statement and 306 are on School Action Plus. Some 698 of those children are placed in mainstream primary and secondary schools, 596 are placed in maintained special schools and 141 are placed in independent, non-maintained special schools. As one can tell from those figures, the three cases that the hon. Gentleman mentioned are very much in a minority and could not, through any statistical analysis, be considered to be indicative of the type of treatment that is going on across Lancashire county council.
Does the hon. Gentleman believe that the minority should just be left? Surely all children should receive the same. Is he saying that Lancashire county council has delivered for a lot of people, but not for a minority of people? Should that minority just be left on the scrap heap? Surely he is not suggesting that.
Of course I am not suggesting that. I am suggesting that everybody should have the best possible treatment. I want the three cases that the hon. Gentleman presented to be seen not as the norm, but as the exception. All children deserve the best that Lancashire county council can possibly give them. However, given that Lancashire county council has 1,435 children and young people with autism, I would not want three to be considered to be the norm.
I thank my hon. Friend for his comments. I will go on to speak about the work that Lancashire county council is doing in that area. I would be grateful to hear about his experiences in Liverpool if he makes a contribution later.
Lancashire county council also makes provision for short breaks for children with ASD. It has commissioned more than £182,000 of short breaks provision from local specialist autism services, to provide activities for children during evenings, weekends and school holidays, while also providing their parents and carers with breaks from caring. The most recent attainment data at the end of key stage 2 show that 73% of children with ASD made two levels of progress in English, compared with 94% of all pupils, and that 69% of children with ASD made two levels of progress in mathematics, compared with 93% of all pupils. Given those pupils’ conditions, that is a tremendous achievement. Of children who are statemented with ASD and took GCSEs in mainstream schools between 2011 and 2013, 75% gained five A to C grades, including English and maths, which is well above the national average of 60.8% for all children during the same period.
Lancashire schools have access to considerable expertise on autism provided by specialist advisory teachers and educational psychologists. That is supplemented by rapidly developing school-to-school support, where centres of expertise based at special schools provide an increasing range of guidance and support to their colleagues in primary and secondary schools.
For children and young people with more complex autism, Lancashire’s special schools have developed much greater expertise. All special schools for generic learning difficulties are funded to meet as wide a range of special educational needs as possible. They are all able to provide for pupils with autism, and several have chosen to specialise in autism by developing staff training programmes and allocating substantially increased resources to that specialism. In several cases that has been recognised by Ofsted inspectors.
The hon. Member for Burnley raised issues on behalf of three of his constituents where parents are seeking what is effectively private school education for their children who have autism. The council has identified provision in at least two of our maintained special schools, which are judged by Ofsted to be good and outstanding. In those cases, parents have appealed to the first and upper tier tribunals, which have found in favour of the council—he made that point—and directed that the children go to the maintained special schools. The outcome of a further appeal to the upper tribunal by one of the families is awaited.
All Lancashire’s special schools for learning difficulties —23 in total—are rated as good or better by Ofsted. I fully appreciate that parents, particularly of the three children involved, want to fight for what they see as the best opportunities and outcomes for their children—the hon. Gentleman would want that, as would I. However, the recent behaviour, language and actions of those involved—by that I am referring to the hon. Gentleman—has caused considerable anxiety for many families, while also conveying a partial view of the provision made by the council. For schools that are doing a great deal of good work in this area, the constant bombardment by him in the Lancashire press about those schools and the county council is causing considerable anxiety, not only among staff at those special schools, but among many of the parents of children who go to them. It is one thing to represent parents who are concerned about their children—he is entitled to do that—but that also has an effect, rightly or wrongly, on children and parents in other schools where the council is providing good teaching and provision.
On a number of occasions the hon. Gentleman also suggested that Lancashire county council officers have not been completely truthful about their approach to considering parents’ expressions of preference for special educational placements in independent non-maintained special schools, but the council refutes those allegations.
On the specific examples outlined by the hon. Gentleman, the case of Chloe Wold is a tragedy. Nobody looking at the record could say anything other than that. I concur completely with him about her situation. She has been in this condition for some time and is on suicide watch, and I sympathise totally with the parents in this case.
I am interested in what the hon. Gentleman is saying. He has obviously been well briefed by the county council and is answering the debate on its behalf. However, this debate is on autism in schools. I do not understand where he is coming from. I do not really want him to answer on behalf of the county council. I want to listen to his solutions to the problems that my constituents are suffering.
The hon. Gentleman made some fairly serious allegations against the county council and I have received information from the county council that refutes those allegations. If he does not want to listen to that, that is a matter for him. If he wishes to leave the Chamber that is up to him, but I have every right to make these points.
I thank those on the two Front Benches for their contributions to the debate. I also want to express some concern about the contribution made by the hon. Member for Preston (Mark Hendrick). In my speech, I never mentioned the surnames of any of the children and I did not name any of the schools that the hon. Gentleman has mentioned. A briefing containing private family issues has been given by the county council to the hon. Gentleman, and I find that very distressing and concerning.
No, I will not give way. I believe that the parents represented in this place today will express some concern about what is going on with the staff of Lancashire county council. I certainly have a right to say that because, as I said—
On a point of order, Mr Deputy Speaker. The Minister has just mentioned the fact that this is an adversarial system. Is it in order for the hon. Gentleman who has raised the debate today not to mention the fact that his daughter-in-law is the speech therapist in one of the cases that he has dealt with?
That is not a matter for the Chair. I am sure that we want to get to the end of the debate.
My daughter-in-law is a professional speech therapist and is doing a great job for these people. What concerns me is that the staff at the county council briefed the hon. Member for Preston before hearing anything I had to say, giving the names of the children mentioned in the debate when I did not do that for a certain reason, and giving the names of the schools involved when I did not do that. I only mentioned Rossendale school. I am very disappointed by that and I believe that the parents listening to the debate will be somewhat concerned that the county council is briefing as it is.
In conclusion, I thank the Minister for his comments. I thank the Opposition Front-Bench spokesman, the hon. Member for Birmingham, Selly Oak (Steve McCabe), for his comments and I hope that what has been suggested works for the children of today and certainly for the children of tomorrow. This disease will not end; it will continue. I believe that we should support the young children who suffer from this appalling condition.
Question put and agreed to.
Resolved,
That this House has considered the provision of education for children with autism.
Royal Assent
I have to notify the House, in accordance with the Royal Assent Act 1967, that the Queen has signified her Royal Assent to the following Acts:
Supply and Appropriation (Main Estimates) Act 2014
Finance Act 2014
Data Retention and Investigatory Powers Act 2014.