Children with Autism (Education)

Steve Rotheram Excerpts

Thursday 17th July 2014 Commons Chamber

[Gordon Birtwistle]

I am grateful to my hon. Friend, who makes a valid point. In my constituency, there are many people, such as church groups and voluntary groups, who do just that. However, we need the local education authorities to recognise the problems. Children with autism, like children without autism, should have an equal right to access good-quality full-time education.

Let me look directly at my own constituency, which is in Lancashire. Lancashire county council, in my view and in that of my constituents, has failed to ensure that appropriate education and support are provided for numerous autistic children. I will give three examples later in my speech. To put it simply, its oversight is causing too many children with autism to miss out on much of their valuable education. Despite local authorities holding the legal responsibility to ensure that all children with special educational needs in their area are identified and supported, it is evident that that is not being fulfilled. In Lancashire no one is accepting responsibility or taking the time to understand the needs of these children. That is happening across the country, so many of the 70,000 school-age children in England are not accessing the education they need to learn, achieve and, more importantly, thrive.

I draw the attention of the House to three of my constituents. One of the cases is especially moving. When I first heard about it, I was distressed, to say the least. It concerns a young lady named Chloe, who is 17 years old. She is now on suicide watch as a result of repeatedly being failed by Lancashire county council since the age of 11. The detrimental impact of Chloe’s lack of education and development as an individual is clear. She was threatened with exclusion from her mainstream school placements up to the age of 13, when she was finally diagnosed with attention deficit hyperactivity disorder and autism.

Children with statements of special educational needs are eight times more likely to be excluded than their peers, and children with no statement are 11 times more likely to be excluded. When Chloe was 14 her family was advised that she would receive a statutory assessment of her educational needs. Lancashire county council failed to undertake this, despite it being recommended by professionals and her parents’ insistence. It took years—not weeks or months, but years—for Lancashire county council educational psychologist Yakub Padia to assess Chloe. After a 20-minute consultation he disagreed with the findings of experienced psychologists who had spent prolonged periods with her, and it was recommended that she be placed in a pupil referral unit, rather than the specialist school recommended by the professionals. Lancashire county council disregarded this and even the advice of the head of the pupil referral unit, who thought it was not suitable for Chloe.

As a teenager Chloe was passed from pillar to post, with a total lack of accurate assessment. Lancashire county council let her down. Chloe felt worthless and rejected. That led her to self-harm and to suffer from depression. She has ended up in a specialist psychiatric unit on suicide watch. Her brothers have had to watch her attempt to hang herself in the family home. Chloe is now emotionally and mentally damaged. Without question, missing out on education leads to poor life outcomes for the child involved and for their families. Chloe’s mum is one of the 50% of parents of disabled children who say they have had to take up part-time work as a result of their child’s exclusion. Chloe is a very sad case.

[Steve Rotheram (Liverpool, Walton) (Lab)]

I congratulate the hon. Member for Burnley (Gordon Birtwistle) on bringing this important issue to the attention of the House. I was hoping he would go on to paint a picture of how we as parliamentarians can help to destigmatise the condition and break down some of the barriers that people face in their everyday lives in respect of employment and perhaps even diagnosis of their condition. All we have heard up till now is an attack on Lancashire county council. I hope the hon. Gentleman will focus on what we as parliamentarians can do to assist people who have the condition.

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[Gordon Birtwistle]

I agree with everything that has been said. Why cannot these diagnoses be done quickly? Why cannot we solve these problems?

Jack received a statement of educational needs at the age of three due to his prematurity and his visual impairment, so his parents should have received adequate support and his needs should have been met as he wanted. Conversely, he has been subjected to humiliation in the school environment, with unfair treatment by a teaching assistant and his recent forced removal from the mainstream school that he had attended for four years. Jack was officially diagnosed with autism in 2012 when he was seven, but he had a problem when he was three. The school declared that it could no longer cope with Jack, who struggled with the transition from infants to juniors.

After several meetings with the county council education authority, Jack’s parents worked well with the school—a state school—to create a suitable environment with the input of a teaching assistant providing additional facilities. Jack thrived and his marks improved. However, the county council has taken away the special needs teacher and now he cannot manage at school. His parents have no trust in placing him in this environment and are currently appealing against his placement. It is wrong that the county council, instead of encouraging Jack’s development, has not considered all his needs. That is what it is all about—considering the child’s needs.

It is more than alarming that the parents had to face more battles to get the county council to amend Jack’s statement to include autism as part of its diagnosis. Why should the parents have to argue with the experts to get a proper diagnosis of the child’s illness? Why on earth do they have to do this? Is it not delivered automatically? Are we not paying the experts within the education authority to deliver this service to my constituents—the parents and the child? That is the big problem.

[Steve Rotheram]

I want to go back a step or two and express my gratitude to the hon. Gentleman for raising this issue, but not necessarily for the manner in which he is doing so. He is, of course, absolutely right to illustrate the cases of his individual constituents, but an immediate member of my family who has autism went through a similar experience to the one he is describing when Liverpool had a Liberal Democrat council. I say that not because I want to make a party political point, but because this is widespread and happens all the time. We have to understand that this is a condition—it is not a disease—with a spectrum of different conditions within it. It is very complex. That is why early diagnosis and assessment followed by a support package based on the individual needs of the child is the most important thing we can do. I hope we will get to the point where we can work with the Government to see what we need to do better to enable people to get the best start possible in life.

[Gordon Birtwistle]

I am grateful for that intervention. My only aim is that we all work with the Government and education authorities to come to a conclusion on how to address early diagnosis and to deliver for these young people—who in the main have amazing talents—educational facilities that will take them on, help them succeed and be superb members of the community, and enable them to live normal lives. My argument is that we are not doing that, and the hon. Gentleman obviously agrees with me.

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[Steve Rotheram]

We must all agree, as parliamentarians, that the distressing picture that was painted of the cases of Chloe, Jack and Honey is worrying. We could all bring similar cases to the House. I hope that what we will achieve is to help the family members and carers of people on the autistic spectrum by highlighting programmes such as Autism Initiatives in Liverpool, which provides a signposting service so that family members can get support and access early intervention, assessment and diagnosis. That is essential because autism stays with people for their whole lives, not just when they are at school.

[Mark Hendrick]

I thank my hon. Friend for his comments. I will go on to speak about the work that Lancashire county council is doing in that area. I would be grateful to hear about his experiences in Liverpool if he makes a contribution later.

Lancashire county council also makes provision for short breaks for children with ASD. It has commissioned more than £182,000 of short breaks provision from local specialist autism services, to provide activities for children during evenings, weekends and school holidays, while also providing their parents and carers with breaks from caring. The most recent attainment data at the end of key stage 2 show that 73% of children with ASD made two levels of progress in English, compared with 94% of all pupils, and that 69% of children with ASD made two levels of progress in mathematics, compared with 93% of all pupils. Given those pupils’ conditions, that is a tremendous achievement. Of children who are statemented with ASD and took GCSEs in mainstream schools between 2011 and 2013, 75% gained five A to C grades, including English and maths, which is well above the national average of 60.8% for all children during the same period.

Lancashire schools have access to considerable expertise on autism provided by specialist advisory teachers and educational psychologists. That is supplemented by rapidly developing school-to-school support, where centres of expertise based at special schools provide an increasing range of guidance and support to their colleagues in primary and secondary schools.

For children and young people with more complex autism, Lancashire’s special schools have developed much greater expertise. All special schools for generic learning difficulties are funded to meet as wide a range of special educational needs as possible. They are all able to provide for pupils with autism, and several have chosen to specialise in autism by developing staff training programmes and allocating substantially increased resources to that specialism. In several cases that has been recognised by Ofsted inspectors.

The hon. Member for Burnley raised issues on behalf of three of his constituents where parents are seeking what is effectively private school education for their children who have autism. The council has identified provision in at least two of our maintained special schools, which are judged by Ofsted to be good and outstanding. In those cases, parents have appealed to the first and upper tier tribunals, which have found in favour of the council—he made that point—and directed that the children go to the maintained special schools. The outcome of a further appeal to the upper tribunal by one of the families is awaited.

All Lancashire’s special schools for learning difficulties —23 in total—are rated as good or better by Ofsted. I fully appreciate that parents, particularly of the three children involved, want to fight for what they see as the best opportunities and outcomes for their children—the hon. Gentleman would want that, as would I. However, the recent behaviour, language and actions of those involved—by that I am referring to the hon. Gentleman—has caused considerable anxiety for many families, while also conveying a partial view of the provision made by the council. For schools that are doing a great deal of good work in this area, the constant bombardment by him in the Lancashire press about those schools and the county council is causing considerable anxiety, not only among staff at those special schools, but among many of the parents of children who go to them. It is one thing to represent parents who are concerned about their children—he is entitled to do that—but that also has an effect, rightly or wrongly, on children and parents in other schools where the council is providing good teaching and provision.

On a number of occasions the hon. Gentleman also suggested that Lancashire county council officers have not been completely truthful about their approach to considering parents’ expressions of preference for special educational placements in independent non-maintained special schools, but the council refutes those allegations.

On the specific examples outlined by the hon. Gentleman, the case of Chloe Wold is a tragedy. Nobody looking at the record could say anything other than that. I concur completely with him about her situation. She has been in this condition for some time and is on suicide watch, and I sympathise totally with the parents in this case.

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[Steve Rotheram]

The 2014 Act does not kick in until later this year. Given that this debate has been widely welcomed outside this place, will the Minister commit to a future debate, so that we not only keep this in the public consciousness, but see the effects of the legislation once it starts to have an impact?

[Mr Timpson]

I am grateful to the hon. Gentleman for remaining stoic in his efforts to bring this issue to the fore, both in Parliament and in his constituency. It is important that we do not decide that the job has been done, and show no more interest in the consequences, just because an Act of Parliament has been passed. Things work the other way round: in some ways the easy bit has been achieved and the hardest bit is the implementation. That is why we are ensuring, in the run-up to September and beyond, that we have a clear understanding of how it feels for parents and families as the changes start to kick in. I would welcome any opportunity, be it Adjournment debates or other means by which hon. Members can bring these issues to the House, to continue taking a constructive approach to the legislation and the subsequent attempts to put it into place on the ground. We must be mindful that we are asking for a culture change to happen and take hold in many parts of our communities and our countries. The more Members of Parliament and other leaders in our communities show a direct, vocal and public interest in the life chances of children and young people with SEN, the greater prospect we have of getting the culture change we all want to see.