Organ Donation and Transplantation Strategy

Esther McVey Excerpts
Wednesday 23rd February 2022

(2 years, 10 months ago)

Westminster Hall
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Esther McVey Portrait Esther McVey (in the Chair)
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I will call Anthony Mangnall to move the motion. I will then call the Minister to respond. As is the convention for 30-minute debates, there will not be an opportunity for the Member in charge to wind up.

Anthony Mangnall Portrait Anthony Mangnall (Totnes) (Con)
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I beg to move,

That this House has considered the organ donation and transplantation strategy.

It is a pleasure to serve under your chairmanship, Ms McVey. I thank the Backbench Business Committee for granting the opportunity to debate the important topic of the organ donation and transplantation strategy. I also thank the Minister and her departmental team for their responses to my inquiries about organ donation on behalf of my constituents. Their answers have been detailed, helpful and reassuring.

In the time I have been in this place, I have learned that Westminster Hall debates are not always used to be helpful to the Government and are often used to point out their flaws and failings. I may be guilty of having done that once or twice myself, but I want to use this debate to do three things. First, I want to congratulate the Government on the steps they have taken thus far, most notably with the Organ Donation (Deemed Consent) Act 2019. Secondly, I want to encourage further education and awareness around organ donation. Thirdly, I want to explore future steps that the Government can take in relation to organ donation and transplantation strategy.

In May 2020, the law around organ donation in England was changed to allow more people to save more lives. The Organ Donation (Deemed Consent) Act, which many hon. Members present supported, changed the law to mean that an individual agrees to become an organ donor when they die if they are over 18, have not opted out and are not in an excluded group. The Government’s legislation brought us more into line with other countries but, more importantly, the number of available organ donors increased dramatically, while the number of people opting out of the opting-in initiative only slightly increased. Pre opt-out—before 5 May 2020—the UK had 26,037,200 registrations, whereas the total UK opt-in registration was 27,594,279 on 13 February 2020. By comparison, fewer than 1.5 million people opted out before 5 May 2020, with the total number now standing at 2.3 million. These numbers show that in less than two years, we have had a sizeable increase in the number of potential organ donors, while only a small percentage of the population have chosen to opt out of the initiative.

NHS Blood and Transplant launched a public awareness campaign in April 2019 to inform the public about the prospective law change and the choices available to them. An evaluation of that campaign found that over 75% of adults in England were aware of the new system of consent. The third year of the campaign, which I believe comes to an end in March 2022, looks to encourage people to talk to their families and loved ones about organ donation and their organ donation decisions. With consent rates currently at 68% across the UK and 78.8% in the south-west, it is particularly welcome to see the Government state their ambition to increase consent levels to 80%. A 12% increase is likely to result in approximately 700 more transplants per year and countless lives saved.

Children’s Mental Health

Esther McVey Excerpts
Tuesday 8th February 2022

(2 years, 10 months ago)

Commons Chamber
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Rosena Allin-Khan Portrait Dr Allin-Khan
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I thank my hon. Friend for her very powerful point. When it comes to mental ill health, no group is unaffected. It is really important that we acknowledge that, while some groups are disproportionately affected, mental ill health can affect anyone. Children can live in a £3 million house, and still feel they want to take their own life or want to self-harm. The pressure that puts on parents is extremely painful, and it causes many parents to give up their job to sit at home and care for their child, because they are so crippled and so worried about what may happen if they leave the house and go to work. That is why it is so important that we acknowledge the real difficulty we have with waiting times for CAMHS.

Esther McVey Portrait Esther McVey (Tatton) (Con)
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Given that the hon. Lady and her party, unlike me, were enthusiastic supporters of lockdown measures and closing schools, and were not prepared to stand up to the teaching unions, does she accept any responsibility at all for this mental health crisis among young people, because those lockdowns have had such a negative impact on our young people’s mental health?

Rosena Allin-Khan Portrait Dr Allin-Khan
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Do the right hon. Lady’s Government take any responsibility for the tens of thousands of children who are now bereaved as a result of losing their parents because of this Government’s shocking handling of the pandemic? We shall take no lectures from the right hon. Member and her party when it comes to protecting children’s mental health. I shall move on.

When children come to A&E—[Interruption.] Please feel free to intervene: I will take interventions.

Vaccination: Condition of Deployment

Esther McVey Excerpts
Monday 31st January 2022

(2 years, 11 months ago)

Commons Chamber
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Sajid Javid Portrait Sajid Javid
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The hon. Gentleman is right to draw the House’s attention to the importance of vaccination, as other Members have done. As was reflected in his remarks, it is the UK’s first line of defence against covid. Thankfully, the UK has put in place many other defences, such as the antivirals that are used across the UK and our testing and surveillance regime, but vaccines are the first line of defence. He is right to talk about encouraging as many people as we possibly can to take up the vaccine if they have so far not done so, whether they work in health and social care or otherwise. He is right that the best general approach is to educate and inform, and that is what we will continue to do.

Esther McVey Portrait Esther McVey (Tatton) (Con)
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What a disappointment this statement is. Having read the newspapers, I was hoping to be able to come here and congratulate the Secretary of State on the Government’s recent conversion to common sense in halting the mandatory vaccination of NHS workers. Instead, he is making a half-and-half decision today, knowing that the sword of Damocles hangs over those 100,000 NHS workers, because they have to have their first vaccination on Thursday. He will then be sending them on a pathway to unemployment, along with the thousands of care workers who have already lost their jobs. What I want to know is what he is now going to do to help those thousands of people get a job, and what compensation he will pay them.

Sajid Javid Portrait Sajid Javid
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I am happy to clarify the point raised by my right hon. Friend. The Government have made a decision on this matter, which I hope I was very clear about in my statement, but for statutory reasons there needs to be a consultation. There will be a two-week consultation and then a statutory instrument will be presented to the House and will be subject to the will of the House.

The Government have made their decision on this, and the Department will write today to all NHS trusts and contact care home providers and wider social care settings, such as domiciliary care, to make it clear that the deadline my right hon. Friend referred to is no longer applicable. I am very happy to make that clear. She has raised an important point. While the decision is subject to this House, there will be no further enforcement of the regulations, for the reasons I have set out today.

Covid-19 Update

Esther McVey Excerpts
Monday 13th December 2021

(3 years ago)

Commons Chamber
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Sajid Javid Portrait Sajid Javid
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I was referring to lateral flow tests earlier, but I think the hon. Lady asked me about PCR tests. I will look into what she said.

Esther McVey Portrait Esther McVey (Tatton) (Con)
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Last week’s Ofsted report was damning about the impact lockdown has had on our nation’s children and the immense harm students have suffered, with the Children’s Commissioner saying that schools should not close again. However, it seems that the Government have left the door open to school closures after the Christmas recess. What specific conditions would need to be met for schools not to open in the new year?

Sajid Javid Portrait Sajid Javid
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I welcome that question from my right hon. Friend. What I would say to her is that with the risk we see from omicron at this point in time—the rise in infections, the increased risk of hospitalisation and the information we have on vaccines—we think we have taken the appropriate response. It is a balanced and measured response. It is designed to protect so much of what we love in our country, especially the interests of our children. The most important thing to focus on now is the booster programme.

Covid-19 Update

Esther McVey Excerpts
Wednesday 8th December 2021

(3 years ago)

Commons Chamber
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Sajid Javid Portrait Sajid Javid
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I assure the hon. Lady that there are plenty of vaccines available. We have no issue with vaccine supply, including the booster shots. The lateral flow tests from the UKHSA will be freely available, and there are plenty of them.

Esther McVey Portrait Esther McVey (Tatton) (Con)
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The European Centre for Disease Prevention and Control reported on the omicron variant:

“All cases for which there is available information on severity were either asymptomatic or mild. No deaths have been reported among these cases so far.”

However we know that, by imposing plan B and bringing in restrictions, there will be an effect on mental health, physical health, jobs, the economy, livelihoods and children’s development. Will the Secretary of State release the data and analysis, upon which this decision was made, on the impact of the omicron variant on the public by, first, implementing plan B and, secondly, by not implementing plan B?

Menopause (Support and Services) Bill

Esther McVey Excerpts
Carolyn Harris Portrait Carolyn Harris
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I do agree and my mantra has become that we can all become menopause warriors because that means we acknowledge the issues and problems and are prepared to work towards ameliorating them.

We can look at the good practice out there to see what can be done. I recently spoke to practice nurse Sharon Hartmann from Tudor Lodge surgery in Weston-super-Mare. The surgery supported Sharon to develop a special interest in menopause care. She is now certified by the British Menopause Society and delivers evidence-based practice to her patients. She is able to monitor progress, control treatment plans and prescribe suitable medication for each individual. I would love to see this kind of service in surgeries or clusters all over the country, with doctors being able to identify the symptoms quickly and ensuring women are then passed down to someone with a wealth of knowledge and experience in menopause care. But it is not just the education of the medical profession that needs attention. We need to address education in our schools, so that the next generation of girls and boys is far more prepared than any of us were. I certainly did not talk about the menopause when I was at school. We did not even talk about periods when I was at school. We want the next generation to talk openly about it, understand what is to come and what they can do to help. We need young men to understand that their mothers, wives, sisters and partners may struggle at some point in their life, and that it is not that they do not love them any more, it is just that the menopause is denying them emotion.

Esther McVey Portrait Esther McVey (Tatton) (Con)
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I, too, congratulate the hon. Lady on bringing forward this issue and pursuing it in such a constructive, positive and enthusiastic way not just in the House but outside it too, and on the points she raises about the stigma attached to the menopause and the idea that women of a certain age are maybe past their prime. Absolutely not. People need to know that women’s lives actually might begin at 50. Thank you for what you have done and, I understand, for your constructive work with the Government. What you are doing today is a most important step forward—

Baroness Laing of Elderslie Portrait Madam Deputy Speaker (Dame Eleanor Laing)
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Order. I cannot let the right hon. Lady, who is a senior Member of the House, say “you” when she means “her”. Could she just say it again, just to please me?

Esther McVey Portrait Esther McVey
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I was carried away by the excitement of the moment, but you are quite right, Madam Deputy Speaker. The hon. Lady has done so much and will earn the gratitude of the whole country for what she is doing with this positive step forward today.

Carolyn Harris Portrait Carolyn Harris
- Hansard - - - Excerpts

I agree with everything the right hon. Lady says.

It has been a pleasure to work with some fantastic women in this place who understand how important this issue is and, like me, want to ensure it is at the top of the agenda. The Minister, her predecessor, our shadow Minister, and all my cross-party colleagues and friends have been absolutely fantastic. We are so lucky to have strong male voices, too, who have not only signed the Bill but are here to support it. I want to thank—good grief, the hon. Member for Strangford (Jim Shannon) is not in his place! That is a first. I thank the hon. Members for Strangford and for Hazel Grove (Mr Wragg), my hon. Friends the Members for Bootle (Peter Dowd) and for Blaenau Gwent (Nick Smith), and the hon. Member for East Worthing and Shoreham (Tim Loughton) to name just a few, men who are not afraid to embrace the menopause revolution and have shown themselves to be dedicated menopause warriors.

I am sure we would have heard the voice of our dearly missed colleague, the former Member for Southend West, today if it were not for tragic events. I remember him coming to a menopause event I hosted a couple of years ago. When I asked him if he supported the cause, he told me, “With a wife and four daughters at home, I don’t have any option.” [Laughter.] So today, I would like to add my voice to those who have already spoken in the Chamber and around the country, and send my thoughts and prayers to his wife, his four daughters and his son. David was a very special man and we all miss him greatly. [Hon. Members: “Hear, hear.”]

We need to go further on education. We need to educate ourselves now. A public health campaign would help enormously, as so many women just do not join the dots between their own health issues and the menopause. As I mentioned earlier, 11 years ago I had no idea what was happening to me. If my inbox is anything to go by, I am not alone. I know from conversations I have had with friends and colleagues in this place that they, too, were not sure of the situation they found themselves in because it has been a taboo subject. It has been a dirty little secret that women were ashamed of. My earliest recollection of “the change” was a comedy sketch by Les Dawson dressed as a woman having a conversation over a fake wall with Roy Barraclough, lifting his left breast and referring to his neighbour as “being on the change”. We have to move on from those days. It is not a joke when you live with it and it is not a joke when you experience it. We can do so much more to make sure we do the right thing.

Well, I am not ashamed. That is maybe because I am Welsh and I say what I think. Fortunately, there are a lot of other people out there who are not ashamed. It is fantastic that celebrities such as Davina McCall, Lisa Snowdon, Mariella Frostrup, Penny Lancaster, Nadia Sawalha and Gabby Logan are all sharing their menopause experiences. As the right hon. Member for Tatton (Esther McVey) said, it is sometimes very difficult for someone to talk about their menopause when they are in a profession, because the assumption is made that they are over the hill.

There are some great tools to help us, too, such as the Balance app and the Henpicked website, which provide a wealth of unbiased and factual information about the menopause and aid women in taking control of their health. But it is our responsibility in this place to look at what we can do to ensure that the right message gets to everyone who needs it.

Covid-19 Update

Esther McVey Excerpts
Tuesday 14th September 2021

(3 years, 3 months ago)

Commons Chamber
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Sajid Javid Portrait Sajid Javid
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I thank the hon. Gentleman for again raising the importance of vaccines. I agree wholeheartedly with what he said about that, and he is right to think about what more can be done to encourage people, and particularly older people—over 60s—throughout the UK to take up the offer. A number of things are being done both here in England and in Scotland to focus on that, including making greater use of family GPs and taking the time necessary to allay hesitant people’s concerns, allowing them to speak to the clinicians to whom they want access to give them that comfort. That work will continue, and we are constantly looking for new and perhaps even better ways to do that.

On universal credit, it was made clear when the Government announced the increase that it was temporary. As it is temporary, it has to come to an end at some point, and the time for that is now. As our economy has—thankfully—started to reopen, job availability is increasing and economic growth has come back, and this is the right time to do that. However, as I said earlier, we must continue to provide the necessary financial support such as that for those who are self-isolating.

Lastly, the hon. Gentleman asked about Valneva. I should be careful what I say as there is a commercial contract, but it might help him to know that I have been in touch with the Health Minister in Scotland, who is fully aware of the situation. We remain in dialogue.

Esther McVey Portrait Esther McVey (Tatton) (Con)
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Given that figures sent to me by the Secretary of State’s Department show that since the pandemic the number of hospital beds has fallen by more than 6,000, will he assure me that proper additional capacity will be built back into the NHS as part of his plan rather than resorting to hugely damaging lockdowns and restrictions?

Sajid Javid Portrait Sajid Javid
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My right hon. Friend is right to raise the importance of capacity in the NHS. She will know that the reason for the fall in capacity in the first place was to control the spread of the virus and ensure that those in hospital, who are naturally vulnerable in any case, are protected. Hospitals currently have what are referred to as green channels and red channels to try to segregate those who have the virus from those who do not. I assure her that the NHS keeps that under review and would like to get rid of the segregation as soon as possible. When it does, that will increase capacity.

Winterbourne View Hospital and the Transforming Care Programme

Esther McVey Excerpts
Thursday 10th June 2021

(3 years, 6 months ago)

Westminster Hall
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Westminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.

Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.

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Esther McVey Portrait Esther McVey (in the Chair)
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I remind hon. Members that there have been some changes to normal practice in order to support the new hybrid arrangements. Timings of debates have been amended to allow technical arrangements to be made for the next debate. There will also be suspensions between each debate.

I remind Members participating physically and virtually that they must arrive for the start of debates in Westminster Hall. Members are expected to remain for the entire debate. I must also remind Members participating virtually that they are visible at all times to each other and to us in the Boothroyd Room. If Members attending virtually have any technical problems, they should email the Westminster Hall Clerks’ email address, which is: westminsterhallclerks@parliament.uk. Members attending physically should clean their spaces before they use them and before they leave the room and please take the cleaning materials they have used with them and put them in the bin.

Baroness Keeley Portrait Barbara Keeley (Worsley and Eccles South) (Lab) [V]
- Hansard - - - Excerpts

I beg to move,

That this House has considered the 10th anniversary of the investigation into the Winterbourne View Hospital and the Transforming Care Programme.  

It is a pleasure to speak in this debate with you in the Chair, Ms McVey. I thank the Backbench Business Committee for allocating time for this important debate.

The debate is being held to mark the 10th anniversary of the BBC “Panorama” programme that revealed the scandalous treatment of autistic people and people with learning disabilities in Winterbourne View Hospital. One of the experts on the programme said that Winterbourne View was

“run by a group of bullies for their own entertainment.”

It should shame everyone involved in the healthcare system that it took a team of journalists to uncover those abuses, when complaints from whistleblower Terry Bryan were ignored by the management of Castlebeck, which ran the hospital, and by the regulator, the Care Quality Commission.

I recently re-watched the programme—a decade on, the abuse shown is still shocking. At the time, it was rightly described as “torture”. One resident was showered while fully clothed, and had mouthwash poured in her eyes. On the same day, she had jugs of cold water poured over her head and was kept outside in March until she was shivering. Another resident was asked by a member of staff whether they wanted the staff member to

“get a cheese grater and grate their face off”’.

Residents were slapped and held down under chairs. They had their hair pulled and were pinned down while medication was forced into their mouths. One resident was so distressed by that treatment that she tried to throw herself out of a second-floor window and was then mocked by staff.

That behaviour was the end result of a system that did not see residents as people. Rather than the person-centred support that we would rightly expect in any hospital, a closed culture developed where abuse became normalised. Such abuse should not have been left to be uncovered by a journalist and secret filming. A whistleblower, Terry Bryan, had taken his concerns to the management of Castlebeck, then to the local safeguarding board, then to the Royal College of Nursing and then to the Care Quality Commission on three separate occasions. It was only when all that led to no action that he approached the BBC.

Ultimately, 11 members of staff at Winterbourne View pleaded guilty to neglect or abuse, and six of them ended up spending time in jail. However, Winterbourne View was not just a failure of one hospital or a few staff—although it certainly was that. The people in that hospital were let down by the entire system: from a provider that did not pay enough to attract or retain dedicated or qualified staff and did not supervise or manage them, to a regulator that failed to listen to the concerns of a whistleblower and to commissioners who were happy to put people in that hospital and then fail to monitor the placement or follow up with discharge plans.

Since 2011, residents in other in-patient units have been subject to similar abuse. As recently as 2019, another BBC “Panorama” programme uncovered similar treatment at Whorlton Hall in County Durham. Staff there were filmed verbally and physically abusing residents.

If the residents of Winterbourne View were let down by a system that simply did not place enough value on them to intervene, everyone who has faced abuse in those units since 2011 has been let down by a string of Governments, who have failed to take the action necessary to stop the abuse happening.

The only way we can ensure that there is no abusive treatment in those units is to move autistic people and people with learning disabilities into the community, where they can be given appropriate support to live independently. In 2011, following those shocking revelations, the Government seemed to recognise that, and David Cameron pledged to close all inappropriate in-patient units by 2014—but that was only the first in a long line of broken promises. By 2014, there were still thousands of people detained in those inappropriate institutions.

In 2015, NHS England pledged to reduce the number of people in assessment and treatment units by between 35% and 50% by 2019, but that target was missed, with the number falling only 5%. NHS England then pushed the target back a year, but that was also missed. By April 2020, the number of people in in-patient units had fallen only 15% in five years.

The NHS long-term plan then committed to reducing the number in units by 50% of the 2015 level by 2024, but on the current trajectory that will be yet another target the Government do not get close to meeting. A decade after the abuse at Winterbourne View was uncovered, more than 2,000 people are still detained in inappropriate institutions. As today’s learning disability mortality review shows, people with learning disabilities who end up in mental health units are nearly five times more likely to die young than their peers. The mistreatment people experience in those units stays with them for life, even after they are discharged. On average, people in such units have been detained in some form of hospital placement for more than five years.

What progress we have seen has been painfully slow. We still see hundreds of people admitted to in-patient units every year, and the number of children detained has risen by a third since 2015. We normally talk of admission to hospital being for care or for treatment, but neither of those words is appropriate here, and far too many people admitted to such a unit will have stories of poor treatment and abuse by staff.

Dan was left scarred by poor treatment in in-patient units, which led to him trying to overdose on pills when he was discharged, and then being detained in hospital for another 18 months. Kayleigh was moved from Winterbourne View to another hospital. Within weeks, she had been pushed and hit, and had made more serious accusations against the staff. Ryan was first detained when he was 17. Over the years, he has been isolated and held in long-term segregation. He has been heavily medicated with drugs so powerful that their side effects meant he had to have 18 teeth removed.

Hospital reports show that Ryan has experienced broken bones, and other injuries that sometimes were treated only after a week had passed. Ryan was supposed to be discharged three years ago. He has had an independent case review, which flagged urgent issues with his care. Over the past year, his family have seen their visits restricted and there have been covid-19 outbreaks on his ward. Despite media attention and legal support, Ryan’s discharge plan stalled repeatedly. While things are now looking up for him, hundreds of other people have not been so lucky, and it should not need TV crews and lawyers to get people basic dignity and proper care and support.

People end up in these totally inappropriate units because the funding is not available to support them in the community. One Winterbourne View resident, Dan, had previously been supported at home by a small specialist provider. When it asked for funding for two more hours a day of support so it could manage the triggers that set off Dan’s challenging behaviour, it was turned down. Dan’s family were then told they had no choice but to allow him to be moved to an assessment and treatment unit. That removed him from his home and from his support network. In the unit, Dan was forcibly restrained and ultimately ended up in Winterbourne View. That abusive care cost the Government £3,500 a week—far more than the extra couple of support hours he needed to remain at home.

Clearly, that was not inevitable. After the BBC’s “Panorama” programme, Dan’s family were supported to move him back home. A suitable property was found in his home village and the care staff who had worked with him before he was admitted to Winterbourne View were rehired. Nearly a decade later, he is still living independently in his own home. Unfortunately, such success stories are far too rare.

A similar story is that of a young autistic woman, Bethany, which I have raised many times in the House. She ended up in in-patient units because her local authority said it needed

“a break from paying for her support”.

By sending her to an assessment and treatment unit, it could shift the burden of funding to the NHS. That is the root cause of the Government’s failure to address this scandal over the last decade. If people are moved out of an in-patient unit, they need to be moved somewhere they will be supported. Under our current system, that kind of community support is funded by local authorities, which have had £9 billion taken out of their social care budgets over the past 10 years. Supporting a person with learning disabilities who might have complex needs is not cheap when compared with many other social care packages, so it is not surprising that cash-strapped local authorities have tried to pass the buck on funding to the NHS.

In the 1980s and 1990s, when the long-term psychiatric hospitals were closed, there was a system of dowries whereby the funding moved with the person as they were discharged to a local authority. That discouraged the kind of siloed thinking that sees a person’s human rights denied because a local authority cannot afford to fund the care they need. The Government could have reinstated those dowries. They could have given local authorities far more funding to ensure that they can support autistic people and people with learning disabilities properly in the community. They could have matched the ambition of their rhetoric with the resources that are needed.

Instead, we currently have a £62 million funding pot spread over three years to support people to be discharged. High-quality community support for people moved out of those units can cost as much as £100,000 a year, but even that is much less expensive than placements in private hospitals, which can cost six times as much. That means that the Government’s funding settlement is probably only enough to discharge 200 of the 2,000 people currently trapped in in-patient units. Because the funding only runs for three years, there is a real risk that when the funding runs out, those people will be readmitted to an in-patient unit.

We are not talking about huge sums of money when compared with the expenditure the Government have taken on over the last year. In 2019, the Labour party proposed spending £355 million a year on dedicated and targeted support, which would have been sufficient to move everyone currently in an in-patient unit into their community.

At the same time as discharging the 2,000 people currently detained, we also need to ensure that nobody else is admitted to those units, and we may need legislative measures to ensure that that happens. Underpinning any changes must be the reform of our adult social care system. We are still awaiting the details of that long-promised reform, but perhaps the Minister can tell us more today. Perhaps she can tell us whether the Government’s reform will increase funding so that local authorities can afford to support everyone who needs help to live independently in their community, including autistic people and people with learning disabilities. If it will not, one of the largest issues in our social care system will be left unaddressed.

It is a decade since BBC “Panorama” revealed the appalling treatment of the residents of Winterbourne View. As a society, we could and should have taken that as a cue to say, “Never again,” and to ensure that all autistic people and people with learning disabilities were given the support they needed to live independently in their own communities. Instead, we have had a decade of broken promises and broken targets. Rather than putting in place an ambitious programme of change, the Government have repeatedly promised reform while simultaneously cutting the funding for the very local services that would deliver that reform.

Autistic people and people with learning disabilities trapped in those inappropriate institutions cannot afford to wait any longer. Rather than more empty promises, they need legal changes to end the use of detention. Alongside that, we must see a radical programme of investment in community social care services to support them to live independently in bespoke accommodation, with care packages designed around their needs. We need a new commissioner, independent of Government, to oversee the process of moving people out of those institutions and hold the Government to account if they fail to make the progress that is needed.

After a decade of failure, I hope today the Minister can give autistic people and people with learning disabilities and their families the reassurance that they need and deserve, because it is long past time that we fixed this problem. However slow the progress, there is no excuse for not making sure all the people detained in institutions are safe. That needs to happen now—today. The two most important changes are the proper oversight of community provision, which is centred round choice and personalisation. We need bespoke packages of accommodation and care, not institutions. People can live happily and independently with an environment and support made for them.

Esther McVey Portrait Esther McVey (in the Chair)
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I remind Members that we will be going to the Front Benchers no later than 4.25 pm, and we would also like to hear Barbara Keeley wind up within that time limit.

--- Later in debate ---
Huw Merriman Portrait Huw Merriman (Bexhill and Battle) (Con)
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It is a pleasure to speak under your chairmanship, Ms McVey. I join other hon. Members in this Westminster Hall debate by thanking the hon. Member for Worsley and Eccles South (Barbara Keeley) for leading it. The note that I passed to you, Ms McVey, was to apologise and to hope that you had received notification beforehand that I was running from the main Chamber to speak here. I very much hope that that was the case, but I apologise both to you and to the hon. Lady.

I begin by paying tribute to our former friend and colleague, the late Dame Cheryl Gillan, who chaired the all-party parliamentary group on autism and was a long-standing advocate for the 700,000 autistic adults and children and their 3 million family members and carers. I now chair that all-party parliamentary group, but I very much wish that I was sitting here, as I would tend to be in these debates, watching Dame Cheryl and listening to her advocate so finely for all of that community. She will be remembered for her passion, drive and kindness.

For more than a decade, Dame Cheryl worked tirelessly to ensure that Government and Parliament took more account of autistic people and the need to improve the support for them. She began her campaign for an autism Act in England in 2008 to tackle the lack of support for autistic people and to improve the understanding of autism. That landmark law—I think it is quite remarkable that she got it delivered—remains the only legislation aimed at supporting one particular group of disabled people. I am deeply saddened that Dame Cheryl passed away before getting to see the new autism strategy, which is set to be published shortly—I hope imminently. I hope that she would have been very proud of what gets delivered.

Following the passing of the Autism Act 2009, Dame Cheryl campaigned hard on so many of the crucial issues. Even during her illness, she fought hard to take on these issues, ranging from diagnosis to waiting times, teacher training, employment and, importantly, the subject that we are talking about today—health, mental health, and those who feel imprisoned by the system. It is a topic on which so much more needs to be done and, in Dame Cheryl’s memory, I very much hope that it will be.

As other hon. Members have said, it is 10 years since the appalling abuse and neglect of some of the residents of the Winterbourne View home were exposed. There were shocking levels of violence, degrading treatment and taunting. It was a scandal that led to widespread acknowledgement that a significant number of people with autism and with learning disabilities, or with both, were stuck inappropriately in in-patient settings. However, the latest monthly data show that 2,040 autistic people and people with learning disabilities are still in in-patient mental health hospitals, of whom 1,150 are autistic.

That means that since 2015, the number and proportion of identified autistic people in in-patient facilities has actually increased, from 38% to 56%. A lack of appropriate community support and issues with legislation have meant that a growing number of autistic people are ending up in mental health hospitals against their will and that of their families. Once a person has been admitted to an in-patient unit, they will stay there for an average of 5.6 years, and they will be on average over 60 miles from their home.

The National Autistic Society, which provides the secretariat for the all-party parliamentary group on autism, has continued to hear of alarming cases of over-medication, seclusion and unnecessary restraint. That is completely unacceptable in 2021. Autism is not a mental health condition, and hospital is not the right place for the vast majority of autistic people. Hospital wards can be noisy, bright and unpredictable. Without reasonable adjustments to the environment, and without the support of professionals who understand autism and how to adapt these people’s care, wards can be completely overwhelming for them.

For autistic people who are particularly sensitive to sound, light or touch, the experience of being in an in-patient setting can dramatically increase their level of distress and lead to further restrictions, making it even harder to be moved into the community. It becomes a perpetual cycle, unless something breaks that cycle. Even then, there is a challenge in finding the right type of mental health and social care services in the community for autistic people to move into. It is not right that thousands of autistic people are developing avoidable mental health conditions because they cannot access the support they need early on. To end the travesty, there must be commitment and significant investment in better social care and mental health services that work for autistic people.

I am the last Back-Bench speaker, so I will add my list, too, for the Minister for Care. I have worked with her over the years and know that she is absolutely dedicated to this cause. Without wishing to keep her at the ministerial level at which she is, we need consistency in ministerial position to follow this through. I understand that she is setting up a report group to ensure that all those responsible for delivering outcomes do act. I absolutely support the call from my right hon. Friend the Member for Forest of Dean (Mr Harper) that milestones need to be set. I had written that down before he said it, but I had not written down that they should be published. He is right. They should be published not just for us as Members of Parliament to hold the Government to account, but for the Government to hold to account those in the report group who have to deliver, so that there is no hiding place when it comes to what should be done by when. If there is a failure to meet individual timescales, more pressure and perhaps more resource can be added. The Minister will have all our support in holding their feet to the fire.

When will mental health legislation be amended? It will need to be amended. Indeed, it is not just an issue of moving the community from inappropriate settings into appropriate settings. Do we actually have those appropriate settings? Do those milestones include not just the transition but the provision that must be there? I will end there, because we want to hear from the shadow Minister and the Minister, but I very much support all the calls made by Dame Cheryl’s former colleagues that more must be done.

Esther McVey Portrait Esther McVey (in the Chair)
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I thank the hon. Member for Bexhill and Battle (Huw Merriman) for acknowledging Dame Cheryl Gillan and all the work she did in the world of autism. I know we all share that view.

I will now call the Front-Bench speakers, mindful that we do want to hear from Barbara Keeley at the end to close the debate.

Covid-19 Update

Esther McVey Excerpts
Monday 7th June 2021

(3 years, 6 months ago)

Commons Chamber
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Matt Hancock Portrait Matt Hancock
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I am terribly sorry: all the policy and all the guidance was, of course, set out in public around care homes. It was a very challenging policy, not least because—as the hon. Lady implied in what she quoted—the tests were not available to be able to do this, and the clinical advice was that asymptomatic transmission was highly unlikely. That was the basis on which these decisions were taken. The challenge in care homes was equally a challenge in Scotland and a challenge in Wales— a challenge all over Europe, in fact. The decision making in this area is a matter of record. A huge number of people were trying their very best to solve the problem as best they possibly could, based on the very best science and clinical advice.

Esther McVey Portrait Esther McVey (Tatton) (Con)
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The Secretary of State will recall telling us that the first lockdown was needed to give time to build capacity in the NHS. Can he therefore tell us how many more hospital beds are available in the NHS now than in March last year?

Matt Hancock Portrait Matt Hancock
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That is a good question, but the main capacity that we built was the Nightingales, a very successful project. The Nightingale project was one of the finest examples of rapid action in the NHS that has been seen. Thank goodness we had the Nightingale hospitals, because the people treated in them got treatment that was otherwise likely not to have been available. It meant that we could keep that promise all the way through—that nobody was denied treatment for covid. People got the treatment they needed because we managed to build that capacity so quickly.

Covid-19

Esther McVey Excerpts
Tuesday 25th May 2021

(3 years, 7 months ago)

Commons Chamber
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Urgent Questions are proposed each morning by backbench MPs, and up to two may be selected each day by the Speaker. Chosen Urgent Questions are announced 30 minutes before Parliament sits each day.

Each Urgent Question requires a Government Minister to give a response on the debate topic.

This information is provided by Parallel Parliament and does not comprise part of the offical record

Nadhim Zahawi Portrait Nadhim Zahawi
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I am happy to write to the hon. Lady with the answer to her question. Suffice it to say that this is an important amount of money to those people and I do not think we should be playing politics with it in a sort of “gotcha” moment.

Esther McVey Portrait Esther McVey (Tatton) (Con)
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The Minister will recall that we were told that the first lockdown was required to give time to build capacity in the NHS. Can he therefore tell us how many more hospital beds are available now than in March last year?

Nadhim Zahawi Portrait Nadhim Zahawi
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I will write to my right hon. Friend with that detail. Suffice it to say that we now have 908 people with covid, as I said in my statement—the lowest number since lockdown.