Autism and Learning Disability Training

Caroline Dinenage Excerpts

Tuesday 21st November 2023 Westminster Hall

[Dame Caroline Dinenage (Gosport) (Con)]

I beg to move,

That this House has considered autism and learning disability training for education staff.

It is a great pleasure to speak under your chairmanship, Mr Vickers. I am grateful to have been allocated parliamentary time to discuss the very important issue of autism and learning disability training for education staff. The debate arises in response to three e-petitions: petition 639050, which calls for education staff to be required to have trained in learning disability and autism and which has received over 69,000 signatories; petition 638530, which calls for mandatory training for teachers in attention deficit hyperactivity disorder and autism and which has 1,500 signatories; and petition 634354, which calls for training on neurodiversity for university staff and which has over 16,000 signatories.

I thank everyone who took time to sign the petitions, which clearly relate to issues that are of huge concern to people across the country. I also thank the nearly 3,000 people who contributed to the Commons engagement team survey and gave their views on more education staff training. Some of the stories which they have shared with us have been exceptionally troubling. I am grateful for the time and effort that has gone into communicating those stories, which in some cases involved sharing very painful experiences.

There are around 200,000 autistic pupils in England and nearly 75% of them are in mainstream schools. According to research by the National Autistic Society, only a tiny proportion—just 26%—of autistic pupils feel happy at school. Three in four parents or carers—74%—said that their child’s school place did not fully meet their needs, and more than one in four parents, or 26%, waited over three years to receive support for their child.

Autistic children often speak of feeling misunderstood and of school being a place where there is bullying and loneliness. Such experiences lead to issues with mental wellbeing, sometimes to self-harm, and to a lack of self-esteem and self-confidence. The responses to the engagement survey starkly support the claim that autistic children do not always have a positive experience at school. In fact, in cases in which things go badly wrong, autistic children not only miss out on their education, but have experiences that can haunt them throughout their lives—stealing their future prospects, leaving them struggling to get into or stay in the workplace, and driving very distressing health impacts. Those detrimental effects can continue well into adulthood.

Deborah, the mother of one autistic child, said:

“After nine years of experiencing the school system…she removed her son completely and started home education so that they could mend his mental health and school-caused trauma.”

One mother told us of the

“Huge emotional impact”

that had

“led to serious mental health issues and withdrawal from education and society as a whole.”

She stated that her child’s experience had

“led to isolation, complete withdrawal from any form of education and reluctance to interact across all levels of society.”

The National Autistic Society’s education rights helpline has seen a huge spike in calls related to college and university education.

[Jim Shannon (Strangford) (DUP)]

I commend the hon. Lady for bringing forward the debate. All of us have an interest in autism, and I know that others have a personal interest in it, but we are here to support the hon. Lady. Back in 2020, the former Education Minister in Northern Ireland—now Lord Weir in the other place—published an enhanced autism training programme. The hon. Lady referred to universities, and it is important to note that it is not only children who are affected by autism. Does she agree that the same considerations from that report must apply to colleges and universities across the UK, so that older students who suffer from autism have the same support as those in schools? I think the hon. Lady’s answer will be yes, but I am curious about her response.

[Dame Caroline Dinenage]

The hon. Gentleman anticipates correctly and, as ever, makes an important contribution to the debate. That is why we are discussing a petition, which over 16,000 people signed and which calls for university students to be included and for the education to go up as far as university lecturers and other university staff.

Before I go any further, I want to say that this is not a problem with teachers per se. This debate is not about attacking the teaching profession nor is it meant in any way to undermine or criticise teachers and other education professionals. We know that teachers up and down the country do a remarkable and very important job, in many cases in increasingly challenging circumstances. Teachers are passionate about supporting their pupils. They want to give them the very best possible educational experience and the best life chances, but they need the right support to do that. This debate is about ensuring that teachers are given the best tools and advice they need to give autistic and neurodivergent children, children with a learning disability and, in fact, all the students they care for the best possible support and the best possible chance to have a happy, healthy and safe learning environment.

[Sir Robert Buckland (South Swindon) (Con)]

I am grateful to my hon. Friend for bringing this debate to Westminster Hall and bringing together these petitions. Does she agree that we already have a precedent in the Health and Care Act 2022, which finally mandated training for health and social care professionals using the Oliver McGowan training programme? With the Autism Education Trust, we have a potential model that could be strategically rolled out to replicate the approach we are taking in health and social care in all fields of education.

[Dame Caroline Dinenage]

It is almost as if my right hon. and learned Friend read my mind. I will come on in a bit to talk about the Oliver McGowan training, which I am glad he endorses. As the chair of the all-party parliamentary group on autism, he speaks with enormous experience and passion on this subject, and I am grateful for his endorsement.

As we have heard, there is already training in this area, which I am sure the Minister will reiterate. However, a report by the National Autistic Society showed that just one in seven—14%—of schoolteachers have received any form of autism training. Rachel, a SEND learning support assistant, said, in her words, that she had

“not really received much training”,

and that when she started, she

“was thrown into the deep end.”

Everything Rachel knows is mainly based on her experience of working with SEN children, not her training, yet the survey responses show that where teaching and support are right, they can have a game-changing and enduring impact on the education and life chances of neurodivergent pupils, in some cases supporting them all the way through university and building them up for their adult lives and careers ahead.

What concerns me deeply, however, is the fact that further research from the National Autistic Society showed that while 87% of teachers surveyed said that they felt confident or very confident supporting autistic pupils in the classroom, findings from a 2021 report showed that seven in 10 autistic children and young people said that school would be better if more teachers understood autism, while 54% of autistic students said that having teachers who did not understand them was the worst thing about school. That is a problem. There is a clear and sizeable gap between how teachers think it is going and how autistic children and children with a learning disability actually feel. It is vital that we bridge that gap. It is simply not fair on either party if we do not. All children deserve to have the very best possible experience in the classroom and the best opportunities to learn and fulfil their potential.

[Tim Farron (Westmorland and Lonsdale) (LD)]

The hon. Lady is making excellent points to which I give my very strong support. Does she recognise the experience of many of my constituents, with young people waiting perhaps two years for an education, health and care plan and a diagnosis? Something that has become obvious to me only recently is that 50% of the young people on the books of child and adolescent mental health services in my part of Cumbria have autism and ADHD. It turns out that through the NHS, via the local integrated care board, there is literally zero funding for that service to support any of those young people, which delays their getting the care and support that they need in the classroom, but also affects all young people—some with neurological issues and some without—who need support for eating disorders, anxiety and so on. Is it not time that the NHS funded CAMHS sufficiently so that young people with neurological issues can get the treatment and diagnosis that they need?

[Dame Caroline Dinenage]

The hon. Gentleman makes an excellent point. There will not be a single Member of Parliament who has not had some issues with local CAMHS, sadly. Of course, early intervention and recognition is key to this and can stave off many problems that come further down the line. I would not be doing teachers or pupils justice if I did not refer to wider issues surrounding SEND provision and support for autistic children more broadly. We know that there are simply not enough specialist SEND school places or trained professionals to cope with the increased need.

Schools are required under the Equality Act 2010 to make adjustments, but there is only so much they can do with current provision. As we have heard, it takes an inordinate amount of time to secure an EHCP and then for the associated funding to filter through to the educational establishment concerned. Meanwhile, schools are left to pick up the tab and in many cases to pick up the pieces involved in offering incredibly intensive support to children with very complex needs.

[Carla Lockhart (Upper Bann) (DUP)]

I commend the hon. Lady on securing this debate, which is very fitting and certainly much needed in relation to our schools. Does she agree that this issue is not only important in primary and post-primary education but in nursery and playgroup settings, where it is absolutely vital, because ultimately children affected by these issues need support measures in place as soon as they reach primary school? Nursery and pre-school provision is where the core of this work needs to sit.

[Dame Caroline Dinenage]

The hon. Lady must be Mystic Meg. I say that because that issue is exactly what I will come on to next.

Early years settings are a crucial place to start this work; the hon. Lady has hit the nail on the head. Early diagnosis and putting in place the building blocks of support from the outset can have a lifelong impact on a child’s attitude to education settings, and on their interaction and support from those settings; in fact, it can have a lifelong impact on their wellbeing.

If all education and care staff, particularly in early years settings, successfully underwent the right training, children who require extra support and assistance would be identified sooner, which would prevent some of the issues that we have heard about from developing. We heard from a teacher called Helen, who said that during her time in teacher training, which took four years, half a day was spent covering special educational needs. Such training leaves teachers ill-equipped to support a growing percentage of pupils in their classes.

I am sure that the Minister will tell me about the training that is provided. I expect that he will also tell me that the Government have published their strategy on special educational needs and disabilities and alternative provision improvement—not that I am trying to interpret his speech for him—and about all the increased investment in SEND, which is over £10.5 billion by 2024-25, and the universal services programme, which will receive £12 million in funding, and that £1.4 million is available for the strategic priorities grant to support students at risk of discontinuing higher education studies. Those numbers have very little meaning to those caught in the cyclone of the system if they do not filter through to create meaningful improvements on the ground. I will therefore set out what I would like to know from the brilliant Minister.

What assessment has the Minister’s Department made of the full picture of both learning disability training and autism training for education professionals? What level of understanding does he have about training—not only the quantity of training, but the quality of training? What conversations has he had with some of the excellent charities in this space and with the teachers, parents and children who actually live these things and therefore are experts by experience? To what level can he confidently tell me that all education professionals have the confidence to teach neurodivergent children and children with learning disabilities, so that their needs are met and their potential is realised? To what extent is the experience of students and their carers taken into consideration?

Mr Vickers, you have already heard about what I am about to say next. During my time as Minister of State for care, in the Department of Health and Social Care, I started work on introducing the Oliver McGowan mandatory training for all health and social care staff. That became law in the Health and Care Act 2022, and it is now the Government’s preferred and recommended training for health and social care staff.

The training is named after Oliver McGowan. Oliver was a remarkable young man whose tragic and completely avoidable death, at the age of just 17, shone a light on the need for health and social care staff to have better skills, better knowledge and better understanding of the needs of autistic people. It came about because of a meeting I had with Paula McGowan, Oliver’s incredible mum, who courageously shared her family’s unimaginable experiences with me and who has been a relentless advocate for the change that needed to happen. It is an honour to have Paula here today after she travelled all the way from Australia just to attend this debate.

Since November 2022, when the initial roll-out of the Oliver McGowan training began, over 1 million people have completed the first part. The training has received significant international interest in Canada, Australia and the Republic of Ireland, and as a result it has been made available on an e-learning platform. The initial feedback is incredibly exciting and shows a significant increase in participants’ knowledge, confidence and skill, with 88% of participants saying that they felt confident they could communicate with people with a learning disability and with autistic people, and with 84% of participants saying they felt more confident in their work.

The most significant thing about the training is that it is co-delivered with trainers who are autistic or learning disabled, and they are paid for their time. They are experts by experience and are able to give health and care professionals first-hand insight into how to listen, how to act and how to get this right.

[Dr Lisa Cameron (East Kilbride, Strathaven and Lesmahagow) (Con)]

My hon. Friend is making an excellent speech, and I thank her for highlighting the wonderful training that is being rolled out. I wanted to bring to the attention of the House, through my role as chair of the all-party parliamentary group for disability, some work that we were doing with Caudwell Children and its national children’s centre, and to highlight their hope that they can augment some of the work that is being undertaken in the UK to provide timely diagnosis and holistic assessment for children with autistic spectrum disorder. I put on record our thanks to Trudi Beswick for leading that wonderful centre and taking that work forward.

[Dame Caroline Dinenage]

First of all, I am very pleased to see my hon. Friend on this side of the House. She does a brilliant job as the chair of the APPG for disability, and I am very grateful to her for taking the time to make that commendation.

I will conclude very quickly. Following the success of the Oliver McGowan mandatory training, Paula has started a petition for all staff in educational settings to have similar mandatory training on learning disabilities and autism. As I said, that training needs to start with professionals in early years settings and go all the way through to colleges and universities: teachers, lecturers and education staff must know how to adapt to their environment, how to listen to what young people are saying, how to understand, how to manage a sensory overload and crisis and how to adapt communication to meet individual needs. George, a teacher, said:

“Training is often focused on the symptoms rather than the sensory issues and the understanding behind it. Whilst dealing with symptomatic behaviour is important it can be difficult to understand some causes.”

[Julian Smith (Skipton and Ripon) (Con)]

On the point about sensory overload, demands and anxiety, does my hon. Friend agree that, with the discrepancy between what kids see and what teachers feel they are doing, part of the challenge is in fully understanding what an autistic child or adult actually sees and has to deal with? Does she agree that that is quite difficult and that it requires significant time to fully understand the major challenges that lots of these kids go through and often succeed in pushing through, despite the challenges they face?

[Dame Caroline Dinenage]

That is an excellent point. It is worth pointing out that sometimes the behaviours that autistic children in particular can demonstrate can be very different. Autistic boys in the classroom behave very differently from autistic girls who might just sit at the back very quietly, mirroring others’ behaviour, while struggling inside and not having the support that they need. That point is really important.

Finally, has the Minister’s Department considered the brilliant Oliver McGowan model of mandatory training? What assessments has the Minister made for how that would benefit education professionals? By making the training mandatory, as it is for health and care staff, no teacher will miss out, which means that every child has an equal opportunity to gain support.

I ask the Minister to reflect on the stories that I have shared today and on those that we heard from other Members. While his Department is no doubt bolstering financial support, I ask him to consider the positive impact that mandatory training will have on the education of professionals and students. The success in health and care has been immediate and game changing, and I know that it has similar potential for children and young people’s education.

[Several hon. Members rose—]

--- Later in debate ---

[Dame Caroline Dinenage]

It is very kind of you to call me to say a few words at the end, Mr Vickers. I am grateful to the Minister for his response. It is clear that he cares passionately about this. He set out a few details that will go some way to offering an element of reassurance.

This debate was not about knocking the Government or scoring any cheap party political points, and it certainly was not about undermining our education professionals. I know the Minister cares deeply about this and that education staff up and down the country care passionately about getting this right, but they need the right support, tools and knowledge to do that.

We do not need to reinvent the wheel to provide that. The Oliver McGowan training is already there and making a difference. It trains all health and care staff. We heard earlier of the importance of ensuring that it is not just those who are high up the academic food chain who receive the training. In health and care, it is based on how likely someone is to interact with patients, not their seniority. That is the same with children and young people. I draw the Minister’s attention to that disparity between how teachers think it is going and how children and their parents think it is going.

There is so much at stake for our young people: their education, wellbeing and futures. The Oliver McGowan training was one of the most important things I was involved in when I was a Minister. I encourage the Minister to meet Paula to talk about this further because it is an outstanding model.

Question put and agreed to.

Resolved,

That this House has considered autism and learning disability training for education staff.