Autism and Learning Disability Training

Julian Smith Excerpts

Tuesday 21st November 2023 Westminster Hall

[Dame Caroline Dinenage]

First of all, I am very pleased to see my hon. Friend on this side of the House. She does a brilliant job as the chair of the APPG for disability, and I am very grateful to her for taking the time to make that commendation.

I will conclude very quickly. Following the success of the Oliver McGowan mandatory training, Paula has started a petition for all staff in educational settings to have similar mandatory training on learning disabilities and autism. As I said, that training needs to start with professionals in early years settings and go all the way through to colleges and universities: teachers, lecturers and education staff must know how to adapt to their environment, how to listen to what young people are saying, how to understand, how to manage a sensory overload and crisis and how to adapt communication to meet individual needs. George, a teacher, said:

“Training is often focused on the symptoms rather than the sensory issues and the understanding behind it. Whilst dealing with symptomatic behaviour is important it can be difficult to understand some causes.”

[Julian Smith (Skipton and Ripon) (Con)]

On the point about sensory overload, demands and anxiety, does my hon. Friend agree that, with the discrepancy between what kids see and what teachers feel they are doing, part of the challenge is in fully understanding what an autistic child or adult actually sees and has to deal with? Does she agree that that is quite difficult and that it requires significant time to fully understand the major challenges that lots of these kids go through and often succeed in pushing through, despite the challenges they face?

[Dame Caroline Dinenage]

That is an excellent point. It is worth pointing out that sometimes the behaviours that autistic children in particular can demonstrate can be very different. Autistic boys in the classroom behave very differently from autistic girls who might just sit at the back very quietly, mirroring others’ behaviour, while struggling inside and not having the support that they need. That point is really important.

Finally, has the Minister’s Department considered the brilliant Oliver McGowan model of mandatory training? What assessments has the Minister made for how that would benefit education professionals? By making the training mandatory, as it is for health and care staff, no teacher will miss out, which means that every child has an equal opportunity to gain support.

I ask the Minister to reflect on the stories that I have shared today and on those that we heard from other Members. While his Department is no doubt bolstering financial support, I ask him to consider the positive impact that mandatory training will have on the education of professionals and students. The success in health and care has been immediate and game changing, and I know that it has similar potential for children and young people’s education.

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[Barbara Keeley (Worsley and Eccles South) (Lab)]

I am very pleased to speak in this important debate with you in the Chair, Mr Vickers. I congratulate the hon. Member for Gosport (Dame Caroline Dinenage) on securing the debate and on the way in which she opened it.

I would like to pay tribute to Paula McGowan for her persistence in campaigning for this debate, for all her work to get the original debate that we held on this issue in 2018 and for all the campaigning work she has done since then. Paula has campaigned to secure around 70,000 signatures on the petition, so it is very good that we can discuss the Oliver McGowan mandatory training programme again. Her work has been instrumental in raising awareness of how we treat autistic people and people with learning disabilities in our health and care services. I pay tribute to her for that work.

In the debate which Paula helped to secure five years ago, I called for the Government to treat the introduction of mandatory training as an urgent priority. The Oliver McGowan mandatory training on learning disability and autism programme has now been delivered to around 750,000 healthcare staff—I think the hon. Lady said it was more than that, but that is the figure I have—and 200 people with a learning disability or autism have been trained to deliver parts of the programme. As we have heard, that is a very important part of it. Those are significant steps forward, but there is much more still to do.

Oliver’s case illustrates the degree to which people with learning disabilities or autism do not get the healthcare treatment they should expect from a civilised, compassionate society. Oliver was a young man with a full life expectancy who had overcome many challenges to excel as a footballer, as an athlete and in his exams. He was let down repeatedly because clinicians simply did not understand the nature of his autism. With better awareness and care adjustments, his death could have been avoided.

The petition on mandatory training that we are discussing recognises the role of teachers and schools in offering support to children and young people with a learning disability or autism. The rolling out of training on learning disabilities and autism is likely to significantly benefit the raising of awareness of learning disabilities and autism in the education sector.

The Government’s response to the petition states that headteachers should

“use their professional judgement to identify any further training”

for teachers. But the roll out of further training for education staff is clearly needed. Research by the National Autistic Society showed that 86% of secondary school teachers had received just half a day’s training on autism, and that three in four parents or carers of autistic children feel that their child’s school does not meet their needs.

One of my constituents—the parent of a boy aged nearly five who is showing traits of autism—told me about the struggle to get him support. She was told that he is “too naughty”, and he is limited to two hours of school a day. She said that her child

“is treated so differently, and he is more aware of it now. This makes him want to act out, as he thinks it’s what is expected of him. He cries every day when he has to leave so many hours earlier than the other children. I think this is another reason he acts out, because every day he knows he will only get a couple of hours of play with everything. He is overstimulated, and his behaviour is a lot worse during that time. If he had time to settle down, and a proper routine at school, he would be calmer and his behaviour would be a lot better, as it is at home. I worry that if he doesn’t receive the support he needs now, school may be a lot more difficult for him in the long run.”

Mandatory training on learning disabilities and autism for education staff could help to improve the situation for children and young people, as it undoubtably has been doing for health and care staff since it was rolled out.

[Julian Smith]

One of the challenges for autistic kids seems to be that many people they interact with in the school system have not received the training that the hon. Lady has been talking about, and they are being treated in a behavioural context. Does she agree that we should persuade teachers, or people who interact with kids, that the reason why these children act in the way they do is nothing to do with behaviour?

[Barbara Keeley]

It is very much like the case I have just given: the parent of that five-year-old boy is told that he is “too naughty” to have more than two hours of school a day, and that is absolutely disgraceful. It is not a behavioural problem if it is autism.

Education, health and care plans are another important source of support. As we have heard, there are 200,000 school-age autistic pupils in England, but just 55% have an education, health and care plan. The Government’s investment plan for children with special educational needs and disabilities claims that this is a priority area, but the National Autistic Society said there is “little substance” in the Government’s plan for reducing waits for a child’s education, health and care plan.

Concerningly, there have also been reports that the Government have signed a deal with a consultancy aiming to reduce targets for education, health and care plans by 20% for 55 local authorities, as part of a delivering better value in SEND programme. The consultancy firm was tasked with reducing cost pressures on local authorities by targeting a 20% reduction in the number of new education, health and care plans issued. It is painfully ironic that the design of this so-called value-for-money programme seems to have to cost the Government nearly £20 million in consultancy fees to Newton Europe. It is also painful to understand that the Government see education, health and care plans as cost pressures to be managed down, and not as vital documents that set out the education provision that children with significant needs must receive by law.

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[Peter Gibson (Darlington) (Con)]

It is a pleasure to serve under your chairmanship, Mr Vickers. I congratulate my hon. Friend the Member for Gosport (Dame Caroline Dinenage) on leading this petitions debate. I put on the record my congratulations to the Minister, this being is my first opportunity to do so.

I thank the 171 members of the public from Darlington who signed the petition that led to today’s debate. Every single week in my surgery, it is almost guaranteed that at least one family will come to see me with concerns related to neurodiverse conditions. It could be that they are awaiting an assessment or there are difficulties with the relationship with the school, or it could be that there are challenges with accessing medications. Each and every one of those families is trying to do the best for their children, and seemingly having to battle for the best for their children.

The day after I was elected, I was stopped in the street by three mothers in Darlington town centre. One of them asked me what I was going to do to help their families with autistic children. I must confess to having known very little about autism at that time, so I resolved to find out more and do all I could to support them. That learning continues, and only last week I was pleased to attend the understanding autism training for parliamentarians organised by the National Autistic Society.

I established the Darlington autism forum for parents of autistic children, and have organised multiple roundtable meetings with our local mental health trust and parents. I have visited Daisy Chain, a local charity that provides help and support to families who face these challenges, as well as places such as the Mackenzie Thorpe Centre in Redcar, which is operated by the North East Autism Society, to see the amazing work that they do with children.

[Julian Smith]

I congratulate my hon. Friend on the work he is doing with families in his constituency. Does he agree that standing up for families who have autistic or neurodiverse kids—amazing kids they are supporting—can be really challenging? The parents are often judged by others on how they are handling very difficult situations, and they themselves need significant support.

[Peter Gibson]

My right hon. Friend makes an incredibly important point. We in this place are sent here to stand up for our constituents. In my view, there could be nobody more important than those families facing the battles of looking after an autistic child.

As a constituency MP, I have visited almost every school in Darlington; I have two left to go. My visits almost always involve a discussion about children with special educational needs and autism. It is clear that there are growing numbers in every single one of our schools, putting pressure on the staff, some of whom are not necessarily specialists in the conditions. I must single out Red Hall School in Darlington, which secured funding to expand and provide a social, emotional and mental health specialist centre called Strive. Red Hall and others are doing fantastic work in Darlington.

I was disappointed to learn through written parliamentary questions that the Department for Education holds no national records of the training that teachers undertake on the relevant conditions. I welcome the Government’s recent announcement of additional funding, particularly for the new 40-place school in Darlington, which will deliver special educational needs places. However, my primary concern is for the pupils who are already in our mainstream schools and the support that they need.

The assessment backlog is frankly a scandal, with families sometimes having to wait up to three years to be seen. I acknowledge that there is a range of help and support available while they are awaiting assessment, but getting children into the right school place, with the necessary specialists, is part of the solution. Staff need to be properly trained. The key has to be clearing the backlog of assessments. Today’s important debate provides an opportunity to put on the record my support for improved and expanded training on neurodiverse conditions for our hard-working teachers. I look forward to the Minister’s response.

[Marion Fellows (Motherwell and Wishaw) (SNP)]

It is a pleasure to serve under your chairmanship, Mr Vickers. I congratulate the hon. Member for Gosport (Dame Caroline Dinenage) on securing this important debate.

I have a personal interest in this subject. Many years ago, as a reasonably experienced further education lecturer, I was faced with a young man who was severely autistic, and I did not know what to do. Things have changed a bit since those days. Like the hon. Member for Darlington (Peter Gibson), I have undertaken autism training. It is important that we get an awareness of autism into the general public as well as schools. It was difficult to listen to some of the stories told by the hon. Member for Worsley and Eccles South (Barbara Keeley), because we all know that it happens, although none of us want it to happen anywhere.

In their recent programme for government, the Scottish Government have outlined their commitment to work with teachers to provide additional professional learning opportunities while seeking to build on the additional support for learning plan. I was a member of the Education Committee when I first came here, and I often think that it is easier to make big changes in a small country such as Scotland, with one main type of school—local authority schools—than it is to make them in England, which has many varieties of schools and a number of local authorities involved.

The Scottish Government are proud—as am I—of their investment in education. It is important that every pupil gets the best education possible for them. That is why in Scotland there is a national neurodevelopment specification for children and young people. It is based on the Scottish Government’s “Getting it right for every child”—GIRFEC—approach, which I have talked about in this place before. It is important that the same kind of education is given across the piece. The neurodevelopment specification makes it clear that support should be in place to meet the child or young person’s requirements when they need it, rather than depending on a formal diagnosis. That is particularly important. Parents often know what is best for their child, no matter which part of the United Kingdom they live in.

The Scottish Government’s additional support for learning legislation clearly places education authorities under duties to identify, provide for and review the support needs of their pupils. In 2021, the Scottish Government published the Autism in Schools action plan, and the majority of its actions are complete. Several of the actions, such as the funding of professional learning resources like the autism toolbox, are intended to be ongoing, to reflect best practice and current research in the area. The Scottish Government have outlined their commitment to work with teachers to provide additional professional learning opportunities while seeking to build on the additional support plan for learning.

It is really important that autistic pupils and those with other learning difficulties are treated equitably with others in their class. It is also important that not just teachers are involved in training when it comes to autism. In Scotland, a pupil support staff working group listens to pupil support workers in schools, who are often the staff who deal the most with autistic children. It is important that they have the training as well.

[Julian Smith]

Does the hon. Lady agree that it is about not just teaching support but dinner and food providers, janitors and other staff? Everybody who interacts with a child at a school should be able to deal with whatever part of the spectrum the child is on.

[Marion Fellows]

I absolutely agree with the right hon. Gentleman. Raising autism awareness is so important across the spectrum, but especially in a school, where there should be a nurturing and welcoming environment for all pupils. The teaching standards in Scotland are set by the General Teaching Council, which requires teachers to be able to identify and respond appropriately to pupils with difficulties in or barriers to learning. In 2021, professional standards included a specific recognition of additional support needs, which is really important. Teachers cannot now be registered without that.

I referred earlier to my experience, which was really difficult, because I was presented with a young autistic man who was accompanied by a care worker, and I had no idea what to do. Things have changed in the intervening years. One thing worth mentioning is that the other students in my class really benefited after a year of this young man being with them. They became much more aware and supportive of him. It is important that all autistic children are allowed in the mainstream, where appropriate. Mainstream pupils and students learn as much as the autistic person.

[Julian Smith]

On the point of different children in mainstream education and how to deal with autistic children, along with the challenges that many autistic children face, they also have a huge opportunity, through the many aspects of neurodiversity that provide them with the ability to excel. Does the hon. Lady agree that it is critical to stress the positives as well as the challenges they face?

[Marion Fellows]

Yes. I find it strange to be so much in agreement with a Member from the Government side, but in this instance I am absolutely in agreement. I was in a school on Friday talking to fifth and sixth-year pupils. At the very end, a young lady came up and said, “I am autistic and want to know what you are going to do about this. Do you know about this particular society?” I had never heard of it, but I took that on board. I felt real pride and pleasure in the fact that she was able to use her autism as a way to approach her MP and was very proud of the fact that she was autistic. She knew more about the subject than I did—[Interruption.] Mr Vickers, I acknowledge your hand signal; I am going to wind up my speech.

It is really important that money is spent in schools to good effect, which is why I am proud that Scotland spends more per pupil than anywhere else in the UK. The Government need to look at training for teachers in England—that is what this debate is about—and support workers. Perhaps they should look at what they can learn from the Scottish example.