Data (Use and Access) Bill [HL]

Earl of Erroll Excerpts

Report stage
Tuesday 21st January 2025 Lords Chamber

As for the approach of these Benches to the amendments tabled by the noble Lords, Lord Lucas and Lord Arbuthnot, I have some sympathy for the desire for accuracy in the records covered by digital identity services, and I hope the Government will be able to give assurances about that. However, we do not wish to turn this into a battle and a culture war opportunity, so we will not be supporting the noble Lords if they push them to a vote.

[The Earl of Erroll (CB)]

My Lords, I very much support the amendments from the noble Lords, Lord Lucas and Lord Arbuthnot, particularly Amendment 6, about accuracy. It has become apparent—and Committee stage was interesting—that there is a challenge with having gender and sex as interchangeable. The problem becomes physical, because you cannot avoid the fact that you will react differently medically to certain things according to the sex you were born and to your DNA.

That can be very dangerous in two cases. The first case is where drugs or cures are being administered by someone who thinks they are treating a patient of one sex but they are actually a different sex. That could kill someone, quite happily. The second case is if you are doing medical research and relying on something, but then find that half the research is invalid because a person is not actually that sex but have decided to choose another gender. Therefore, all the research on that person could be invalid. That could lead to cures being missed, other things being diagnosed as being all right, and a lot of dangers.

As a society, we have decided that it will be all right for people to change gender—let us say that, as I think it is probably the easiest way to describe it. I do not see any problem with that, but we need critical things to be kept on records that are clearly separate. Maybe we can make decisions in Parliament, or wherever, about what you are allowed to declare on identity documents such as a passport. We need to have two things: one is sex, which is immutable, and therefore can help with all the other things behind the scenes, including research and treatments; the other is gender, which can be what you wish to declare, and society accepts that you can declare yourself as being of another gender. I cannot see any way round that. I have had discussions with people about this, and as one who would have said that this is quite wrong and unnecessary, I was convinced by the end of those discussions that it was right. Keeping the two separate in our minds would solve a lot of problems. These two amendments are vital for that.

I agree in many ways with the points from the noble Lord, Lord Clement-Jones. Just allowing some of these changes to be made by the stroke of a pen—a bit like someone is doing across the Atlantic—without coming to Parliament, is perhaps unwise sometimes. The combined wisdom of Parliament, looking at things from a different point of view, and possibly with a more societal point of view than the people who are trying to make systems work on a governmental basis, can be sensible and would avoid other mistakes being made. I certainly support his amendments, but I disagree entirely with his last statement where he did not support the noble Lords, Lord Lucas and Lord Arbuthnot.

[Viscount Camrose (Con)]

I thank my noble friend Lord Lucas for introducing this group and for bringing these important and sometimes very difficult matters to the attention of the House. I will address the amendments slightly out of order, if I may.

For digital verification services to work, the information they have access to and use to verify documents must be accurate; this is, needless to say, critical to the success of the entire scheme. Therefore, it is highly sensible for Amendment 8 to require public authorities, when they disclose information via the information gateway, to ensure that it is accurate and reliable and that they can prove it. By the same measure, Amendment 6, which requires the Secretary of State to assess whether the public authorities listed are collecting accurate information, is equally sensible. These amendments as a pair will ensure the reliability of DVS services and encourage the industry to flourish.

I would like to consider the nature of accurate information, especially regarding an individual’s biological sex. It is possible for an individual to change their recorded sex on their driving licence or passport, for example, without going through the process of obtaining a gender recognition certificate. Indeed, a person can change the sex on their birth certificate if they obtain a GRC, but many would argue that changing some words on a document does not change the reality of a person’s genome, physical presentation and, in some cases, medical needs, meaning that the information recorded does not accurately relate to their sex. I urge the Minister to consider how best to navigate this situation, and to acknowledge that it is crucially important, as we have heard so persuasively from the noble Earl, Lord Errol, and my noble friends Lord Arbuthnot and Lord Lucas, that a person’s sex is recorded accurately to facilitate a fully functioning DVS system.

The DVS trust framework has the potential to rapidly transform the way identities and information are verified. It should standardise digital verification services, ensure reliability and build trust in the concept of a digital verification service. It could seriously improve existing, cumbersome methods of verifying information, saving companies, employers, employees, landlords and tenants time and money. Personally, I have high hopes of its potential to revolutionise the practices of recruitment. I certainly do not know many people who would say no to less admin. If noble Lords are minded to test the opinion of the House, we will certainly support them with respect to Amendments 6 and 8.

With the greatest respect to the noble Lord, Lord Clement-Jones, I think it is a mistake to regard this as part of some culture war struggle. As I understand it, this is about accuracy of data and the importance, for medical and other reasons, of maintaining accurate data.

All the benefits of DVS cannot be to the detriment of data privacy and data minimisation. Parliament is well-practised at balancing multiple competing concepts and doing so with due regard to public opinion. Therefore, Amendment 7 is indeed a sensible idea.

Finally, Amendment 9 would require the Secretary of State to review whether an offence of false use of identity documents created or verified by a DVS provider is needed. This is certainly worth consideration. I have no doubt that the Secretary of State will require DVS providers to take care that their services are not being used with criminal intent, and I am quite sure that DVS service providers do not want to facilitate crimes. However, the history of technology is surely one of high-minded purposes corrupted by cynical practices. Therefore, it seems prudent for the Secretary of State to conduct a review into whether creating this offence is necessary and, if it is, the best way that it can be laid out in law. I look forward to hearing the Minister’s comments on this and other matters.

--- Later in debate ---

[Lord Lucas (Con)]

My Lords, the regulator quite clearly needs a standard against which to judge. Public interest is the established one in FOI, medicine and elsewhere. It is the standard that is used when I apply for data under the national pupil database—and quite right too. It works well, it is flexible, it is well understood and it is a decent test to meet. We really ought to insist on it today.

[The Earl of Erroll (CB)]

My Lords, I want to add very quickly that we have got a problem here. If someone did take all this private data because we did not put this block on them, and they then had it, it would probably become their copyright and their stuff, which they could then sit on and block other people getting at. This amendment is fairly essential.

[Lord Markham (Con)]

Like the noble Lord, Lord Clement-Jones, I am not going to try to better the excellent speech made by the noble Viscount, Lord Colville.

We debated at much length in Committee the definition of the scientific interest, as it will dictate the breadth of the consent exemption for the data reused. If it is too broad, it could allow data companies—I am thinking specifically of AI programs—to justify data scraping without obtaining consent, should they successfully argue that it constitutes scientific research. However, should we create too narrow a definition, we could stifle commercial research and innovation. This would be disastrous for economic growth and the UK science and technology sector, which is one of our most dynamic sectors and has the potential to become one of the most profitable. We should be looking to support and grow, not hinder. Finding the happy medium here is no small feat, but the amendment tabled by the noble Viscount, Lord Colville of Culross, goes a long way towards achieving this by threading the needle.

By requiring the research to be in the public interest to qualify for the consent exemption for data reuse, we will prevent companies cloaking purely commercial activities for their own ends in the guise of scientific research, while allowing commercial research which will benefit the general public.

This particularly chimes with my time as Health Minister, when we tried to ensure that we could bring the public with us on the use of their health data. We did a lot of focus groups on all of this, and we found that we could have very widespread—70%-plus—public support if we could demonstrate that there really was a medical research benefit from all of this. This amendment is very much in keeping with that. As I say, it threads the needle. That is why we will be strongly supporting the amendment tabled by the noble Viscount, Lord Colville, and we hope he is minded to put the matter to a Division.