Carers

Mims Davies Excerpts

Thursday 9th June 2016 Commons Chamber

[Mims Davies (Eastleigh) (Con)]

I beg to move,

That this House has considered carers.

Imagine a day when 6.5 million people did not turn up to work as expected. They had a duvet day. They went to the beach. They subscribed to Netflix. They did some beauty therapy and some shopping therapy. They went drinking and they had fun—they might have taken a trip to the beach, or had a day at a theme park. What if those 6.5 million people made no arrangements for the care of their loved ones? What if those massive numbers of people simply took a holiday and did not arrange any cover? How many vulnerable people would go unbathed and unfed? How many would be unable to get out of bed to go to the loo? There would be no pills, no jabs, no dressings administered and no GP appointments attended. There would be nobody caring for the people who cannot do it for themselves. How frightening, gravely concerning and inhumane would that be? How many people would die? How many people’s conditions would deteriorate? How would our emergency services cope? Who would pick up the slack if those 6 million carers did not turn up for work one day?

In this country, 1.3 million provide more than 50 hours of unpaid care a week. The care they provide is worth £132 billion a year, which is what the NHS costs us. There are 150,000 doctors in the NHS and 87,000 soldiers in our Army. In Eastleigh, there are more than 10,000 carers, and the same number in Chippenham and Sedgefield. There are more than 8,000 in Stirling and more than 12,000 in North Antrim. An army of carers turns up every day—day in, day out.

[Mary Robinson (Cheadle) (Con)]

I congratulate my hon. Friend on securing this debate. She is right to highlight the financial value of carers. Does she agree that the personal value should also be considered? According to Carers UK, three out of four carers feel that their role is not understood in their community. Does she agree that community support is vital in helping to build carer-friendly communities?

[Mims Davies]

I absolutely agree with my hon. Friend, and I am delighted to have secured this debate today to highlight these issues. I know that she works tirelessly in her community to support carers and the people who need them. I agree that there is a human cost and an economic cost to caring.

I thank the Backbench Business Committee for being so supportive in ensuring that this important topic gets time in the Chamber. I hope that this will be a wide-ranging debate. I am also grateful to the Government and to the Minister for Community and Social Care, who has been very supportive of my application to hold the debate this week, which is carers week.

We know the value of carers, but do we really understand what is involved? How do you become a carer? A loved one might get older or become disabled. A child might be born with challenges. Someone might experience an unexpected change in their health. There might be a car accident or an incident at work. An operation could go wrong. A mental health challenge could arise, resulting in the need for care. All of a sudden, you become someone who needs to be a carer. How do you manage it?

As my hon. Friend the Member for Cheadle (Mary Robinson) has suggested, long-term caring can have a financial and emotional effect on families. It can have an impact on relationships. You lose friends. You lose leisure time. You also lose your freedom. Relationships between husbands and wives change. You become a carer rather than a lover or a friend. The impact of the need for mum or dad or a child to come first means a big change for families. You can develop a fear of the phone. You could be at work, out shopping, doing the chores or walking the dog when you get a phone call to say that something has happened on your caring watch. It is worrying for you as a carer when the phone rings. You are mindful of what damage could be done while you are not there.

Carers week represents an important collaboration by Carers UK, Age UK, the Carers Trust, Independent Age, Macmillan Cancer Support, the Motor Neurone Disease Association and the MS Society. The focus this year is on building carer-friendly communities, and that is why I have tried in my opening remarks to remind people that someone in their lives is taking on the extra responsibility of being a carer. How many hidden carers do Members have in their constituency? Who do we know who is taking on that role? This debate gives us a chance to highlight the need to ensure that all our communities are aware of the work that unpaid carers do. Local GPs should understand the restraints a carer might face—I am aware that GPs themselves face many pressures—and employers should be spearheading flexible working and educating their own organisations to support carers.

[Jeremy Lefroy (Stafford) (Con)]

I congratulate my hon. Friend on securing this vital debate. Does she agree that some of the hidden carers are young people aged 12, 13 or 14? I have met some of them from Staffordshire and they do the most amazing work. They need our support.

[Mims Davies]

I absolutely agree with my hon. Friend. I shall go on to discuss the importance of young carers in a moment. More than 700,000 of the 6 million carers in this country are young carers who are taking on at a tender age all the burdens that I have described. This has an impact on their education and their opportunities. Our schools should show understanding and foster an environment in which young people can be carers. They should forge an appreciation of caring in our ageing society. Three in every four carers do not feel that their caring role is understood or valued by their community. It is incredible that we have so much more progress to make before we can live in a truly carer-friendly Britain. I believe that we are now at the start.

As I have said, more than 6 million people in England provide unpaid care, with 1.3 million providing more than 50 hours a week. In my constituency, there are more than 10,000 unpaid carers. We have an army of carers quietly working away looking after their loved ones across this country, and they do it for humane reasons. We do not do enough to support and recognise them. Locally, the loss of respite has been a great cause for concern. Respite offers carers freedom and time to regroup, and a lack of it can be a great concern. Alternatively, the wrong type of respite might be offered or it might be poorly managed. I have heard about such experiences in my constituency surgery feedback.

I thank the volunteers in my constituency who support our carers. The One Community brings together many groups to support each other, including the Age Concern centre, Dementia Friends, the Alzheimer’s group and all the people who help carers by driving their loved ones to hospital or to the GP.

I also want to say thank you to everyone in my constituency who runs a lunch club or a social club, all of which provide important opportunities for social contact.

A recent Carers UK report highlighted the fact that many carers are struggling. Most of us will have to care for someone at some point in our lives, and we want to be able to do that. Three in every five people become a carer at some point. Members of this House and of the other place, and our staff, are carers too.

In leading this debate, I should declare an interest. I was a carer, although I did not realise it. I was a hidden carer. We are nothing if we do not bring our own experiences to bear in our work in the House. I was a “sandwich carer”—that is, someone with small children and older, ill parents. We became so friendly with the local ambulance service that we were on first name terms, and I thank them all for the kindness they showed me and my family. My dad was affected by an incident at work and was cared for by my mother for more than 25 years. That had a massive financial impact on me as I grew up and on our family. And when dad was gone, guess what, mum needed looking after too, because when you are looking after someone you often forget to look after yourself. People can go downhill quite quickly in those circumstances.

I found myself muddling along looking after small children, going to GP surgeries and getting mum up to London, where we struggled on the escalators and on the tube to get to vital hospital appointments. I did not realise that that was an ongoing role for me. I gave up my job and threw myself into it. I remember the phone calls. One came when I was about to go on air at a radio station just before 6 o’clock in the morning. Dad was unresponsive. There had been a problem with his insulin. Luckily, mum was awake because she was going to care for my children, covering for me while I was at work. She was caring for me, I was caring for her, and we were all caring for dad. When the phone rang, I had to drop everything and get there. For me, that was a snapshot of what people are doing day in, day out, and year in, year out. There is no break. If someone is lucky to get one, that is great, but it is still your watch even when they are not with you—are they in the right place?

A particular story that comes to mind was when my dad developed glaucoma as a result of the diabetes that was brought on by the head injury. He was given respite, but at that point he had not told people that he was losing his sight. He was in a respite centre and got lost going to the loo in the middle of the night. He got in the wrong lift and was wandering around a strange place. He was over 70, frightened and concerned though he was meant to be in a safe place. That story meant that no further respite was taken, meaning no further breaks.

I want to move on from my experiences, but please remember that all of us will be doing this. There are people in the House who do it already. I hope that we can recognise and understand the issue.

[Sir Peter Bottomley (Worthing West) (Con)]

Will my hon. Friend allow me to add that each of our offices has caseworkers to whom we should pay tribute for their dedication in trying to help carers and others? That is only one part of carers week, but it is one that should always be remembered. We are grateful to them.

[Mims Davies]

I absolutely agree with my hon. Friend. My caseworkers have been into the community, meeting constituents who are unable to come to surgeries or drop-ins. They have been to refuges to see women with difficult disability issues. They are prepared for anything and we would be nowhere without them.

Today’s debate will allow us to realise that caring will only increase in importance. With an ageing population and advances in medical science, we are seeing a steady increase in those who need care and those who are willing and able to provide it. Since 2001, the carer population has grown by a staggering 16.5%. There is a strong economic case for doing more for our carers. The economic value of the contribution made by 6 million carers is £132 billion a year, which is nearly equal to the UK’s total health spend.

As the number of young carers grows to over 700,000, perhaps we need a national day to recognise them and to highlight and support what they do. They look after family members who are physically ill, mentally ill, disabled or perhaps even misusing substances. These young children miss out on many normal childhood experiences that they should be taking part in. Young carers can sometimes be isolated and bullied owing to the pressures they face at home.

[Mark Tami (Alyn and Deeside) (Lab)]

Does the hon. Lady agree that many such carers are hidden and scared of coming forward to seek help? They are worried that they might end up in care themselves because their parents, or their parent, are unable to look after them.

[Mims Davies]

I thank the hon. Gentleman for that point. I absolutely agree. Pointing out that there are difficulties at home can be a frightening experience, and young carers may wonder what it will mean for them. It may feel better to say nothing, but that is a frightening place in which to be.

Young carers often miss school days. When they become young adults, they are more likely to drop out of college or be unable to head to university. That is not good enough after all they have put into their families and given the impact on their lives. They need support when helping their loved ones. They display real human decency at such a young age and suffer as a result. We should be nurturing, supporting and applauding our young carers.

The vast majority of carers are of working age. Many of them want to work, and 3 million people juggle full or part-time work with their caring duties. At the House of Commons carers event this week, I spoke to carers who are juggling their desire to do it all and who are not dropping the ball even though their health is often suffering. They are sometimes aware that they are able to care for their loved ones only for a limited time: they need to stay in the workplace for financial reasons. It is often not a choice; it is forced.

It is bad for companies if they lose our carers because the carers feel they have no choice but to walk out the door, which is what I did. If I was not in this place, I would now be without any caring responsibilities—apart from the two small children who do not seem to have been adopted yet, so I have to remember to look after them! I would be looking for a job and would have been out of the workplace for some time.

[Michelle Donelan (Chippenham) (Con)]

I commend my hon. Friend for securing this debate today. Does she agree that carers contribute a great wealth of experience and other skill sets to employers that non-carers perhaps cannot?

[Mims Davies]

Absolutely. Carers have a can-do attitude that they bring to the workplace. If I was rewriting my CV, I would hope to put that on there.

It is bad for carers to fall out of the workplace. When asked about their experiences, the results were astonishing. Over a third of carers felt that their employer simply did not understand their caring role, and a third said that their employer did not have policies in place to support them. Flexible working is a key support mechanism to help carers to do their valuable work. Some progress has been made in supporting flexible or agile working. A limited right to request flexible working was introduced in 2002, and I am pleased that the Children and Families Act 2014 extended that to all employees after 26 weeks. However, given the pressures that carers face, that is not long term enough. The Government need to look to do more. The new legal right also paves the way for a possible culture shift in flexible working, and I want employers to take up the mantle.

It is deeply worrying that there seems to be a strong gender bias, with caring falling mainly on women in their 40s, 50s and 60s. Let us make it acceptable for all to take the time to care. One in four women aged 50 to 64 has caring responsibilities for older or disabled loved ones compared with one in six men, but I have met men in my constituency who have given up their jobs to care. I would like to see that as a real possibility. If someone wants to be there and can be there, it does not matter who they are.

This debate is an excellent opportunity to pay tribute here in the House to the crucial work of carers. Some 20% of carers currently receive no support with their caring work, because they simply have not put their head above the parapet. They do not realise that they are carers, and I know how that feels. Half of carers expect their quality of life to get worse in the next year, which people made clear at the carers event in the House earlier this week. People are concerned that they are not looking after themselves and simply do not know how to facilitate that. The national carers strategy is currently being written, and I am delighted that the Minister has written to me as part of the process and that I am involved. He is allowing time to focus on the matter to ensure that we get it right. I hope that the debate will give hon. Members the chance to set out clearly to the Government and to the country that we are not doing enough for our carers and that they are struggling.

--- Later in debate ---

[Michelle Donelan (Chippenham) (Con)]

Many people think of carers as a small but dedicated group, yet as we have heard today, as many as three in five people will be carers at some point in their life. There are an estimated 50,000 carers in Wiltshire alone—roughly 10% of our county’s population—and 3,000 of those are under the age of 24. Mr Deputy Speaker, you or I could be a carer one day, but chances are that we would not realise our role. We would just think that we were caring for our loved ones. Some 70% of carers in Wiltshire continue to remain hidden, and it is believed that many of those people do not understand or recognise their caring status.

That is why this week and this debate are so important, and I applaud my hon. Friend the Member for Eastleigh (Mims Davies) for securing the debate. I also thank the Backbench Business Committee for granting it. We need to work together to raise the profile of these silent heroes, these astonishing individuals who give and give, time and again. Carers enable hundreds of my constituents to continue to live in their own home. Let us face it: without carers, our NHS would not cope, our care homes would be flooded, and the independence of thousands would be compromised. The care provided, unpaid, by the nation’s carers is worth an estimated £119 billion a year, but their role in our community and economy is invaluable.

I was delighted that the Government made an additional £400 million available to the NHS between 2011 and 2015 to provide carers with the breaks that they need from their caring responsibilities, and that we are developing a new national carers strategy to look at what more can be done for existing and future carers. That highlights an understanding and, importantly, appreciation of the role. Fundamentally, it shows the importance of caring for carers.

The charity sector plays a crucial role in enabling carers. An excellent example is the Independent Living Centre in Semington in my constituency, a charity that offers first-class impartial advice, and solutions for easier living. A support network is equally essential for carers. It can be an isolating role, and one about which non-carers often know little and have little understanding. In a study of more than 6,000 carers, half had let a health problem go untreated, or seen their mental health get worse, as a direct result of the time and effort that they had put into caring for their loved ones.

Fun4All is an impressive local charity in Chippenham. One of its aims is to improve the health and wellbeing of carers by providing social events and breaks, and crucially, it forges a network between carers. I attended one of its fish-and-chip lunches with entertainment, and I can assure the House that it is certainly fun for all.

Also based in my constituency is Carer Support Wiltshire, with whom I have volunteered. I saw at first hand its extremely high level of work and dedication, and its enormous impact on the lives of so many local people. Its role as a charity locally cannot be overstated. It helps carers to access support, services, education and training, as well as breaks from their caring role. This Sunday, it is organising an awareness and fundraising event called “Walk a mile in my shoes” in Chippenham. Last year it proved very successful. I look forward to participating once again, and wish it success.

A key hurdle for carers, as we have heard, is juggling their caring role with employment. Last year we made a massive leap forward when we extended to carers the right to request flexible working arrangements to help them balance work and care; but many problems remain, and it is still a huge challenge to balance the two. It is often about having the ability to cope, but also a level of understanding from the employer.

Carer Support Wiltshire has devised a scheme intended to raise awareness and understanding among employers. It has a strategic arm dedicated to that. I have worked with it on this, and although the strategy is in its early stages, it is a blueprint that could be replicated throughout the country. Employers need to understand the benefits that carers offer and not see them only as a strain on their business. It is important to stress that the issue of supporting carers needs to be targeted nationally and locally, and within the voluntary sector.

Nationally, the Care Act 2014 gave carers fundamental legal rights, and I hope that the national strategy will directly challenge the problems that carers face. Specifically, I hope that we will look at supporting more training opportunities locally to ensure that those in a caring capacity always have the confidence, abilities and skills to perform their role.

Wiltshire Council is finalising its local strategy on carers, which will bring many organisations together to support carers. A variety of services are already in action in my constituency, such as complementary therapies, outings, trips, counselling, befriending services, talk and support services, carers’ cafés—the list is endless, but still much more work is needed.

Fundamentally, there is a complete and utter lack of understanding of the role of carers and the support available. I have seen that time and again in my constituency surgeries. Very many constituents have come to me, complaining that they are struggling, stressed, worried. They do not know what benefits they are entitled to. If I had £1 for every time someone has come to me who is entitled to the carer’s allowance but does not realise it, I would have sent out a lot more leaflets by now. We need to address this head-on. We need to go even further, and I am confident that the national strategy will encompass strenuous efforts to address the awareness and entitlement issues.

Many of the constituents who come to me are pensioners, and they do not realise that if their state pension falls below the amount of the carer’s allowance, they are in effect entitled to a top-up. Alternatively, if they are not in that bracket, they have what is defined as an “underlying entitlement to carer’s allowance”, which means that when they are means-tested, that is reviewed. I mention these entitlements today because I am convinced that it is important to stress them, and to get the message out to any elderly carers who are watching.

[Mims Davies]

My hon. Friend hit the nail on the head when she talked about the importance of better communication—of communicating to carers who feel isolated and vulnerable about the support that is available and the opportunities to make things better. As a result of today’s debate and through the Minister, we could look at communicating better with that group of people.

[Michelle Donelan]

I thank my hon. Friend. I could not agree more with her comments today. Another thing that concerns me deeply is that it is very easy to stereotype a carer, yet the reality is very different from the stereotype. The 2011 census identified 166,363 young carers under the age of 18 caring for a family member or friend; more than 110,073 were under 16. The real figure, allowing for hidden carers, is very much greater. Yes, the Children and Families Act 2014 extended the right to an assessment of support needs to all young carers under the age of 18; and since 2010 the Government have created specific training guides for teachers and teaching staff, to enable them to identify and support young carers.

However, there is still a big problem, which we need to face up to. Around one in 20 young carers regularly miss school because of their caring role. Young carers often get lower grades; a recent survey showed their most common grade at GCSE to be D. Young carers are twice as likely as their peers not to be in education, employment or training. They are therefore more entitled than other groups to the support that we can offer. That is why it would be completely wrong for me not to stress that I completely and utterly support the campaign to allow the pupil premium to show its understanding of the stresses, strains and pressures on young people who are carers. Does not a young carer, like any other young person, deserve the best shot at life, the best chances, the best opportunities? It is extremely hard to be a carer at any age. Imagine combining that with struggling to cope with schoolwork, GCSEs or A-levels, while growing up. Imagine the impact of that—the emotional pressure it would create. In this country we have a pupil premium, which is designed to develop a level playing field. Surely it is time that young carers were allowed on the pitch too.

National Carers Week is all about highlighting the silent heroes, of all ages, in our community, whose dedicated love keeps people safe, secure and often living in their own home. Without them, the economy and the community that we all love in our constituencies would collapse. Today, I hope that we help raise awareness and understanding, show our support, and highlight the different ways that we can improve and develop our national strategy.

I would like to finish by thanking each and every carer in my constituency and in the country for all their hard work.

--- Later in debate ---

[Mims Davies]

Thank you for allowing me a few more moments to speak at the end of this important debate, Mr Deputy Speaker. I want to thank all Members for their thoughtful and helpful contributions today. I also want to thank the Minister for his characteristically compassionate and understanding comments on the carers strategy and for taking on board the comments that have been made across the Chamber. I am grateful for the wide-ranging comments from those on the Opposition Benches, who have also been most helpful.

Carer signposting is vital. Recognition by the Independent Parliamentary Standards Authority is also vital—a point that came up yesterday with the staff in my own office. I have also had women who were born in the 1950s coming to see me in my constituency about their roles as carers resulting in financial hardship. I also spoke about my own personal experiences of caring, which resulted in some challenging financial times and a drop in the quality of life. I therefore never underestimate the financial challenges that face carers and their tenacity in making ends meet. That is always astonishing.

I am grateful to my hon. Friend the Member for Chippenham (Michelle Donelan) for talking about the brilliant work being done in her constituency and for championing the “Walk a mile in my shoes” event. That is absolutely the right way to manage these things. The hon. Member for Ayr, Carrick and Cumnock (Corri Wilson) said that “carer” was just too small a word to describe such a big role. She also mentioned the variations in the different work that people do. The hon. Member for Paisley and Renfrewshire North (Gavin Newlands) talked about carers week being more than just a congratulatory event, and said that it was about identifying needs and opportunities for change. My hon. Friend the Member for Bexhill and Battle (Huw Merriman) highlighted the need to look after carers and to allow them to have breaks. His own family provided a fine example of that. The hon. Member for South Antrim (Danny Kinahan) spoke powerfully about the wonderful success of carers week in Northern Ireland and about the measures that should be adopted. I have scrawled something here about joined-up thinking. It is easy to say those three words. If only we could achieve it sometimes!

The hon. Member for Strangford (Jim Shannon) characteristically picked up on many of the points made by other Members around the Chamber, particularly those relating to hidden carers. I have been contacted by people on Twitter and Facebook who have been listening to or watching the debate today—some people have also been messaging me—to say that they now realise that they are hidden carers. Perhaps they are looking after someone with vascular dementia, for example, and this is having an impact on their lives, day in, day out. Others have spoken about the effect of looking after children and other family members.

I welcome this opportunity for Members to talk about end-of-life care, which is a really important time for carers. It can involve financial pressures, costs, poverty, stress, borrowing, and perhaps re-mortgaging or losing a cherished home as the impact of the situation bites. We have also talked about the issues affecting student carers and young carers, and I am reminded particularly of the issues that come in weekly to our caseworkers, who deal with them so well.

In my summing up, I was also feeling slightly philosophical, like the Minister. Theodore Roosevelt said that people do not care how much you know until they know how much you care. I thought of one of the last conversations I had with my dad before he died. I was in the hospital, helping him to bathe and go to the toilet, and he said to me, “Did you ever think that you would be looking after your old dad like this?” and I said to him, “I wouldn’t have it any other way.” Caring may be the most challenging, boring, difficult, monotonous or heart-breaking role, particularly at that end-of-life stage, but carers will never regret being there and doing it. Caring is a challenge, but carers look back and relish the fact that they made those last few moments and times better. Carers, we recognise and salute you today. You are special and a true carers army.

Question put and agreed to.

Resolved,

That this House has considered carers.