Down’s Syndrome

Debate between Karl Turner and Rachael Maskell

Wednesday 19th March 2025 Westminster Hall

[Rachael Maskell (York Central) (Lab/Co-op)]

It is a pleasure to see you in the chair, Mr Turner. I congratulate the right hon. Member for Beverley and Holderness (Graham Stuart) on securing this debate. The Down Syndrome Act is simple, but brilliant—but it is powerless without the guidance to accompany it. That is why this debate is timely.

I also call it timely because the elements of the Act determine the very structure that can support a child through to adulthood, from birth through to work. The Act depends on three main pillars, the first of which is healthcare. At this time, we are putting in place a 10-year NHS plan, putting together the NHS of the future, and looking at how we can keep ourselves well; we are putting in early intervention measures and ensuring that we have the workforce needed in the future. If this guidance is to have effect, we need the workforce and the structures to support individuals and their families. Now is the time to look at that and to put in the additional screening and support that a person with Down syndrome needs to optimise their health and keep well throughout their life.

The second pillar is that we are having a massive review of the education system at the moment. We are looking at curriculum change, recognising that the broadening of the curriculum will be much more inclusive. As we review SEND and the whole education system, it is timely to bring in this guidance. It cannot just be guidance around Down syndrome looking in; it must be looking out at other Departments. Again, the time is now. Look at the data: the figure of 80% of children with Down syndrome attending primary school drops to between 25% and 37% in secondary school. That deficit in itself indicates that we need significant change in our education system. We need a schools system that is nurturing, therapeutic and integrated, so that no child feels on the outside of the education they are rightly entitled to.

The third pillar is the place of work. We need to ensure that there are more opportunities for people with Down syndrome to engage in the labour market. Just yesterday, the Government published their plan “Pathways to Work”, which I see as a plan in two halves. The first half will enable more people to access the labour market, to follow the career of their dreams, and to have their skills and talents recognised. We need to ensure that everybody with Down syndrome has that opportunity where it can be afforded—if not in a formal workplace, by volunteering in the community or being able to have the most life-enhancing opportunities available to them. When I talk about the second half of the plan, I have deep concern for people with Down syndrome, looking at the proposed thresholds for personal independence payment in which people will have to score at least four points to meet the threshold to access vital funding to keep them independent —the key word in personal independence payments. We need to ensure that we feed into that debate.

When we get this right, it will be for the benefit of the whole of society. In York, I think of those people who work in West Offices, where the café is run by United Response and provides real work opportunities, and of the Once Seen theatre company, where I see such talent on display. We must get this guidance—

[Karl Turner (in the Chair)]

Order. I call Bobby Dean.

Future of Rail

Debate between Karl Turner and Rachael Maskell

Tuesday 26th April 2022 Westminster Hall

[Rachael Maskell]

I thank the right hon. Gentleman for his intervention. Where else can Great British Railways locate itself but in York if it is to level up the whole country? That really must be the argument we make.

The York Rail Innovation Community already oversees the intersection of rail businesses and innovations, enabling the northern rail economy to generate over £42 billion, according to the University of Leeds. It draws on the University of York’s Institute for Safe Autonomy, bringing new technologies and robotics together, and opening up a new conversation for the future of rail and the future of transportation, and modernising how we think about rail and transport. The institute’s £12 million programme leads global research to provide industry, regulators and researchers with guidance on assuring and regulating robotics and autonomous systems, including those on rail. York’s work is setting global standards and ensuring that such systems are safe.

Taking the search for answers into applied testbeds, such as the advanced rail test facilities, widens possibilities and the collaborations between York, Leeds, Sheffield, Huddersfield and Hull. This is not just a rail cluster, but a transport cluster. Interlink that with the new headquarters of Active Travel England, and we will have end-to-end connectivity and endless possibilities. Now that the Government are seeing such enthusiasm for BioYorkshire, Yorkshire’s green new deal and advancing a new generation of fuels, including links to the Teesside and Humber energy clusters, even more future technologies open up, with new innovations between transport and energy clusters.

The electric vehicle revolution is too slow, too expensive, with too little infrastructure and too few people engaged, and it is not sustainable enough. We need travelling by train to be competitive with travelling by road. Pricing matters. Rail advancement will be far more efficient, faster, cleaner and greener, if we are to decarbonise and claim the climate dividend to keep the target of 1.5 degrees alive. That must be our bicentenary challenge.

As a nation, there are significant challenges we need to address. Post pandemic, the trains need to see patronage restored and advanced, better timetabling and intermodal end-to-end connectivity, not least connectivity from main lines to improved branch lines, to consolidate opportunity. The very best industry expertise across the railways in York is ready to rise to the challenge. With fuel prices escalating, the Government must seize the moment to achieve a sustained and sustainable modal shift.

Although the integrated rail plan came as a bitter blow to us in Yorkshire, centring Great British Railways’ future on driving up patronage, accessibility, connectivity and reliability across the towns and cities of our region will address some of the Williams-Shapps plans. I know other colleagues will reinforce the point and urge the door not to be closed on our ambition.

[Karl Turner (Kingston upon Hull East) (Lab)]

I congratulate my hon. Friend on securing this important debate. Entire sections of the transport infrastructure, especially in the north, are just not up to the job. A good example is the Hull to Selby route. We have been begging and pleading for years for that rail line to be electrified. Does my hon. Friend agree that it is about time the Government got their finger out?

Oral Answers to Questions

Debate between Karl Turner and Rachael Maskell

Tuesday 6th October 2020 Commons Chamber

[Karl Turner (Kingston upon Hull East) (Lab)]

What recent assessment he has made of the effectiveness of the NHS Test and Trace service.

[Rachael Maskell (York Central) (Lab/Co-op)]

What recent assessment he has made of the effectiveness of the NHS Test and Trace service.