Advanced Brain Cancer: Tissue Freezing

Jim Shannon Excerpts

Wednesday 7th January 2026 Westminster Hall

[Jim Shannon (Strangford) (DUP)]

It is a pleasure to serve under your chairship, Mr Western. I thank the hon. Member for Caerphilly (Chris Evans) for setting the scene so incredibly well, and the hon. Member for Mitcham and Morden (Dame Siobhain McDonagh) for all that she does—I was impressed by her contribution yesterday, and she equalled it today.

I think we all know someone who has been touched by cancer. The youngest daughter of a close friend of mine was diagnosed with glioblastoma last Christmas, and she died a few weeks later. At that time, the diagnosis was bleak, and the lives of my friend and his wife were changed forever. Bleak does not even come close to the sense of loss.

[Mr Campbell]

I have personal experience of a very young constituent who lost her father for the exact same reason. The trauma affects not just the immediate family, but close friends too, and it lives with them for years. Hopefully, we can see some progress both today and in the next few weeks, whenever the cancer issue is addressed in the main Chamber.

[Jim Shannon]

I thank my hon. Friend. That story makes today’s debate that bit more impactful for me and for us all. My friend is a veteran. He served in the forces with great courage. He has shoulders as broad as a rugby player. He is a man who could take on anything. He laid his life on the line for the freedom of everyone here. Yet, he could do nothing but watch—

[Dame Siobhain McDonagh]

The hon. Gentleman has been very kind to me in all these debates and has called me soft-hearted. If I am soft-hearted, that perhaps applies to both of us.

--- Later in debate ---

[Jim Shannon]

We are both soft-hearted, as many other Members in this Chamber probably are.

This man was so strong. When his wee daughter died, life became very focused on that; it will be always focused on that. I can understand how Owain’s law has come about, because families are determined to ensure that their devastation is not replicated, if one single thing can be done to prevent it. I thank those in the Public Gallery for being here.

What can we do? Owain’s law is an indication of what we can do. Tissue freezing preserves DNA. Without this key, simple and cost-effective step, patients cannot access the latest cancer treatments, diagnostics and research. There is a way forward.

As the Minister knows, I am always pleased to see her in her place. We are all very fond of her, and she understands things better than most—we all know the circumstances. I am looking forward to her response to the ask from the hon. Member for Caerphilly and from everyone else. To help end this preventable postcode lottery, hon. Members should please consider entering the current ballot for Health and Social Care questions, which closes today. If they can get their question in before noon today, that would be good. Next week, they would then have an opportunity to ask it on the Floor of the House, to help prevent more brain cancer patients in our constituencies from missing out.

In the NHS, most brain cancer patient samples are stored in paraffin wax rather than being flash frozen in medical freezers. When this happens, patients lose access to potentially lifesaving newer treatments developed using these samples, to more precise diagnostic methods and to advanced research, including future testing to find out whether a patient’s condition is genetic and likely to be passed on to their children. That is important in the lives we lead. Some conditions are hereditary; they come from our mum or dad—maybe our grandparents—down to us, and may pass on to those who come after us.

I thank Ellie’s campaign for giving me their paper before the debate, as it really does help us to understand things just that wee bit better. I know that the Minister has seen it and the three questions to her, so I do not need to repeat them—she is probably very aware of what they are. Those are the campaign’s requests.

I have a couple of requests of my own, which will not come as a surprise to anyone in the Chamber, and certainly not to the Minister. New research from the Tessa Jowell Brain Cancer Mission shows that access to tissue freezing varies dramatically between trusts, meaning that eligibility for advanced treatments can depend entirely on where a patient lives. A postcode lottery is preventing my constituents in Strangford in Northern Ireland from benefiting from more precise whole genome sequencing, personalised immunotherapy and cutting-edge diagnostic options. My constituents are not the only ones affected—everyone is affected.

I have received information indicating that, for just £250,000 to £400,000, every brain cancer patient in the UK could have routine access to tissue freezing by default, unlocking the treatments the Government have committed to delivering. The three questions from the Owain’s law campaign are the important ones, but can the Minister look at this issue? When we think about what we are trying to achieve in this debate, it is important that we have some goals. I know that the Minister always replies helpfully and positively to us.

In Northern Ireland, funding for freezing brain tissue is primarily tied to research initiatives rather than standard patient care. A local charity called Brainwaves NI is currently funding a pilot scheme at the Belfast health and social care trust and Queen’s University Belfast, which uses rapid nanopore sequencing. I do not pretend to understand what all these things are—I am not a medical person, just an MP who tries to represent his constituents when he can. That process requires specialised tissue handling, often involving freezing, to reduce diagnosis times from weeks to hours.

It is clear from all the contributions to the debate, including from those who have personal knowledge, that we do not need pilots but more equitable access to tissue freezing throughout the United Kingdom. I support the calls the hon. Member for Caerphilly has made so well on behalf of his constituents and indeed all the United Kingdom. Glioblastoma is a death sentence, but tissue freezing could change that. It is right and proper that we do all we can to see that change in all of the United Kingdom.

My last request is that the Minister liaise with the regional Administrations in Scotland and Wales, and particularly with the Administration in Northern Ireland and with the Assembly. Brain cancer affects us all; it does not stop at the border of Scotland and England or in the Irish sea. It is all of us together, so we need to work together to find a way of funding a cure for advanced brain cancer. With that, I look forward very much to the Minister’s response.

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[Ashley Dalton]

I note my hon. Friend’s clarification, but with that in mind, we do know that it is important to diagnose all cancers as quickly as possible, and the diagnosis of brain cancers is equally important so as to start treatment as quickly as possible. To that end, the Chancellor announced further investment in diagnostics at the autumn statement as part of a £6 billion capital investment to deliver constitutional standards.

On genomics, I met the chief scientific officer for genomics yesterday to discuss how we ensure that the UK remains a world leader in genomics—which we are—and that we can apply genomics to improve cancer outcomes. We hope that our investment in diagnostics and pathology will mean that, in future, patients such as Owain will access a greater range of treatment options.

My hon. Friend the Member for Caerphilly and Ellie are entirely right to raise the importance of innovation, particularly for less survivable cancers such as brain cancer. The Government are proud to support the Rare Cancers Bill introduced by my hon. Friend the Member for Edinburgh South West (Dr Arthur). Next Friday, Baroness Elliott will move its Second Reading in the other place.

We will go even further to ensure that all patients with brain cancer have access to cutting edge clinical trials, innovation and lifesaving treatments. As part of our action, the National Institute for Health and Care Research announced the pioneering brain tumour research consortium to accelerate research into new brain tumour treatments across the UK. The NIHR is backing the consortium with an initial £13.7 million and more money to come this year. The world-leading consortium aims to transform outcomes for adults and children who are living with brain tumours and for their families, ultimately reducing the number of lives lost to cancer. As I confirmed yesterday, I will write to my hon. Friend the Member for Mitcham and Morden in detail regarding access to funding. I am happy to commit to seeking information and exploring how we can make access to funding much clearer and more transparent.

I am pleased to confirm that the national cancer plan for England will be published in just a few short weeks, in early February. It will focus on rarer cancers, including brain cancer, and will include further details on how we will improve outcomes and work with stakeholders such as the Tessa Jowell Brain Cancer Mission to do so. The plan will detail further action to speed up diagnosis and treatment in England, ensuring that patients have access to the latest treatments and technology and ultimately driving up survival rates.

[Jim Shannon]

I thank the Minister for her comprehensive reply to all our questions. In my contribution, I mentioned that Queen’s University Belfast and the Belfast health and social care trust are doing a pilot scheme, which I hope will benefit England, Scotland and Wales. Can the Minister ask her Department’s civil servants to take that on board?

[Ashley Dalton]

I am happy to confirm that I will ask officials to look into that, and to give me some advice on that pilot and on having a conversation with those running it about what we could learn from them. I thank the hon. Member for raising that question.

I will close by paying tribute to our late colleague and Member of the Senedd, Hefin David. Through tireless campaigning, he brought Owain’s story to the Senedd. My hon. Friend the Member for Caerphilly has now brought it to this place and I thank him for that. I look forward to working with him and other hon. Members to make 2026 the year that we shift the dial for patients with brain cancer.