Victims and Prisoners Bill

Baroness Campbell of Surbiton Excerpts

Committee stage
Monday 26th February 2024 Lords Chamber

[Baroness Featherstone (LD)]

My Lords, I apologise for not having been in the Chamber at Second Reading.

Thousands of people have died because of Governments’ and officials’ lies and obfuscation about the contaminated blood scandal. This Government, and every Government for the past 40 years, should be ashamed. Perhaps this Government should be more ashamed than all because, when we finally got the long campaigned for and long literally begged for public inquiry—I praise Theresa May for initiating that inquiry—the chair, Sir Brian, said in terms what the compensation should be and that it should be paid swiftly. Unbelievably, the Government are still prevaricating. I hope they are not hoping to limp on to the next election. We need to do better to stop obfuscation and delay, and make the amends that can be made, although nothing will ever make up for what has happened. My noble friend Lady Brinton’s speech was extraordinary and laid this out far better than I can. We can never bring back the 3,000 who have died and those who are dying every single day while this is delayed, nor undo the suffering experienced by this 40-year agonising wait for justice.

I declare an interest. My nephew Nicholas Hirsch, one of my sister’s twin boys, was a haemophiliac and contracted hepatitis C. He died aged 35, leaving a 10 month-old baby daughter. Every family that has lost a loved one is in the same position. Those who are still living need to live to see justice, and the families of those who have died need to see justice. The time being taken is obscene, inordinate and cruel. The rubbish being pumped out by the Government about waiting for the final bit of the inquiry is intolerable. Sir Brian, the brilliant chair of the inquiry, has made it crystal clear that there is no need and no time to wait. Quite frankly, we should not need a TV series and public outrage to be the motivation for the Government to do the right thing.

I have been trying over the years to get redress on the issue. I remember going with Lynne Kelly, head of Haemophilia Wales, to meet Chris Wormald, Permanent Secretary at the Department of Health, to show him the proof of obfuscation and lies. He lied to us there and then, and then he lied in writing—a lie for which he later apologised in writing, and which I submitted in evidence to the inquiry. It was shameful how many lies were told by officials to victims, as well as to the parents and families of those who were contaminated. The very least the Government can do is to act, right now, before any more victims die.

Before I sit down, I want to pay tribute to all the campaigners, fighters and families who have sought justice. In particular, I thank the Labour MP Dame Diana Johnson, who has been chair of the APPG and fought so hard on this, as well as Jason Evans from the campaign organisation Factor 8.

It is important to be clear beyond doubt and lay responsibility where it lies: at the Government’s door. These amendments make it clear that the Government are responsible for fully funding payments, that they should set up the body that will administrate this on their behalf, and that they must put on the record how and when this will happen, and stop prevaricating that they need to wait for the final report. For decency, for honour and for compassion, I ask the Government to please do the right thing and do it now.

[Baroness Campbell of Surbiton (CB)]

My Lords, before I begin, I too pay tribute to the late Lord Cormack. He was a consummate parliamentarian, but he was also my friend, and he taught me so much when I arrived in the House. Equally, he gave terrific support on disability issues; on every occasion, he was very supportive.

I support Amendment 134, in the name of the noble Baroness, Lady Brinton. I declare an interest, as my first husband, Graham, had haemophilia and received infected blood products. As a result, he contracted both hepatitis C and HIV. We learned of this only after we had become engaged. Graham died 30 years ago, on 19 December 1993, aged 32. We had been married for only six years.

I apologise that my health prevented me speaking at Second Reading. As I was directly affected by the infected blood scandal and gave evidence to the inquiry, I hope your Lordships will forgive this late intervention.

The noble Baroness, Lady Brinton, addresses a matter of profound importance to the thousands of us infected or affected by the shameful events that devastated the lives of so many. Your Lordships will remember that, in July 2017, Prime Minister Theresa May ordered a fully funded independent inquiry into how contaminated blood transfusions infected thousands of people with hepatitis C and HIV. She also allocated £75 million to be available for interim payments to victims still living and bereaved families. Yet only two months ago, some seven years on, the distinguished chair of the inquiry, Sir Brian Langstaff, expressed his frustration with delays in setting up a compensation scheme. He said:

“The Inquiry’s final recommendations on compensation were published in April 2023. My principal recommendation remains that a compensation scheme should be set up with urgency”.


The Government accept the “moral case for compensation”, but these words are meaningless if actioning the inquiry’s recommendations is further delayed.

It was in 1987 that Graham, then my fiancé, and his younger brother Anthony were first told that they had HIV from factor 8 clotting agents. Anthony was first to die, leaving a widow and a one year-old daughter. Graham endured five years of misery, a barrage of associated illnesses, including pneumocystis pneumonia, epilepsy and intermittent blindness. He died 18 months after his brother. It must have been unbearable for him to watch what he knew was in store for him, but his courage took my breath away.

I count myself lucky. I eventually found a way to move on, enough to lead a good, purposeful life after Graham died, but the memory and the flashbacks do not fade. Thousands of other affected families have not been as fortunate, with the personal cost of the past ever present and haunting. Many wives of infected men lost their childbearing years. Parents and countless partners gave up jobs to care for loved ones at a time when HIV/AIDS was stigmatising and isolating. There have been over 3,000 deaths to date, with an average of one more every four days.

The Government have rightly accepted more responsibility for their part in the tragedy, but they have procrastinated in establishing a compensation scheme. Not content with the guidance given by Sir Robert Francis, who was specifically appointed to make recommendations for compensation, the Cabinet Office has now appointed Sir Jonathan Montgomery to chair a group of experts to decide who gets what. Not surprisingly, the infected blood community is concerned, given Sir Jonathan’s past links with two bodies implicated in the scandal, and unhappy about yet a further delay.

According to the chair of the Haemophilia Society,

“it has caused huge anger and upset in the community. We certainly haven’t been consulted and neither have any other members of the community as far as I am aware. This is now the third knight to be asked for his opinion on it. First, Sir Robert Francis. Then Sir Brian made his recommendations in his interim report. They are now asking for a third time. It feels like they want to keep asking the same questions until they get an answer they like”.

I hope the Minister will tell us how this latest “body of experts” on compensation will involve members of the infected blood community, whose lived experience makes them experts too. The need for such involvement is a consistent theme of Sir Robert’s report if trust is to be restored. So, in the spirit of transparency, will the Minister let your Lordships have sight of the membership and terms of reference of this new expert group? Can he also give an approximate timeline of when compensation will be paid? As the Government insist on waiting for the final inquiry report to be published on 20 May, will the Minister at least assure this House then that a compensation scheme will be ready to go live afterwards?

Every year, on the anniversary of my late husband’s death, I visit St Botolph’s church in the City of London. It has a remembrance book with the names of hundreds of haemophiliacs who have died from infected blood products. Each year, I see pages of new entries. Surely this example alone should galvanise the Government into compensating those still living as soon as humanly possible. Each delay means countless more deaths without the comfort of knowing that justice has been served for the infected victims, and their affected partners and children.

[Baroness Meacher (CB)]

My Lords, I express my strongest possible support for all the amendments in this group. I congratulate the noble Baronesses, Lady Brinton and Lady Campbell, on their powerful speeches. As president of the Haemophilia Society for many years, I have met many of the victims infected in this appalling blood scandal. Many have died before any compensation was paid to them at all. Many others soldier on with the support of their families.

We have all been moved by the Post Office scandal, but in my view far too little has been heard of the very different but equally devastating suffering of the people given infected blood, many of whom were already suffering from a serious condition. As we know, their health-wise suffering was different from that of the Post Office staff. The great thing about these amendments is that they provide clear deadlines and clear government responsibilities.

Victims and Prisoners Bill

Baroness Campbell of Surbiton Excerpts

Report stage
Tuesday 30th April 2024 Lords Chamber

[The Deputy Speaker (Lord Faulkner of Worcester) (Lab)]

I call the noble Baroness, Lady Campbell of Surbiton, who is taking part remotely.

[Baroness Campbell of Surbiton (CB) [V]]

My Lords, I declare an interest as my first husband, Graham Ingleson, died from infected factor 8 in the early 1980s, aged 32. I welcome the Government’s amendments and am really grateful for the significant time the Minister has given me since Committee to understand the concerns of the infected blood community and to look at ways to address them in the Bill. The Government have shown signs that they are listening as we know from the proposals before us, including provision for interim payments. As we heard in the debate on the Government’s Statement last week, they acknowledge that the community must have a role in the infected blood compensation authority itself, including now, we hear, on the interview panel for the chair.

The Government’s amendments are a good start, but the infected blood community still has significant concerns. For example, the last-minute Amendment 157CA does not go far enough. Other concerns are reflected in the suite of amendments tabled by the noble Lord, Lord Ponsonby, and the noble Baronesses, Lady Meacher, Lady Brinton and Lady Featherstone. I have added my name to Amendments 119BA, 119CA, 119MA, 119T, 119PA, 119Y, 121B, 121G—now replaced by 121GA— and 121H, and support the intent of the others they have tabled. These amendments would ensure that time limits are introduced to speed up the process, that the chair of the IBCA is a High Court judge or equivalent and that support and assistance for applicants is mandatory.

Time limits are critical to ensure there are no further delays in compensation. There is nothing like a deadline to focus minds. Amendment 119CA requires the scheme to be set up within three months of the Bill becoming law and it is vital that interim payments are made well before that. With reportedly two deaths a week of those infected, they cannot come soon enough. I hear why the Minister wishes to widen the pool of applicants to chair the IBCA and am pleased to hear that some of the infected blood community will be on the interview panel. However, in my view and that of the community, the Government should accept Sir Brian Langstaff’s recommendation for a judge-led IBCA. With horror stories emerging of experiments on innocent schoolboys, rebuilding trust with the community is imperative and only a High Court judge would signal that commitment. Their impartiality and objectivity are unquestioned, with no risk of conflict of interest. It would powerfully reflect the status and credibility of the IBCA, underlining its independence. Amendments 121B and 121G provide for such an appointment.

The infected blood community must be assured they will have the support and assistance they need under the scheme. Amendment 119T amends the Government’s power to secure such support to a duty to do so.

Victims and Prisoners Bill

Baroness Campbell of Surbiton Excerpts

3rd reading
Thursday 23rd May 2024 Lords Chamber

[Baroness Brinton (LD)]

My Lords, I am very grateful for the opportunity to raise some issues that have arisen since the publication of the framework and tariffs for the new infected blood compensation scheme on Tuesday afternoon. I thank the noble Earl and John Glen for providing the details to make that possible, and the usual channels for ensuring that the work done so far is not lost but carried through.

However, over the last 24 hours, we have heard from a substantial number of members of the infected blood community who are distraught by the detail that has come out in the framework and tariffs, which seem to be at complete odds with the schemes that have gone before. I have a long shopping list of over 20 points; I will not detain the House with them, but I forwarded them to the Minister in advance of this debate. I will raise two or three as illustrations.

Under the new framework, there will be no distinction between chronic hepatitis B and C in calculating infection. There is no consistency about other diseases; for example, variant CJD has been left out of the new scheme but was included in the old one, as has Hodgkin lymphoma and possibly other cancers. Many people believe that the Government’s proposals still mean that the current schemes will be closed down, leaving them worse off, and that the Government have an incentive to wait longer to pay compensation. They need great reassurance and clarity that that will not be the case, because that is not evident in what was published on Tuesday afternoon.

Can the Government provide a breakdown of how the core route awards examples have been calculated? That would be helpful, even if only to say that there will be further information published online. There are concerns about the illustrative awards being worded as

“for a living infected person”

and not simply an “infected person”. Given that your Lordships’ House has debated a great deal of the wonderful news that estates will also be able to claim, does that mean that estates will be excluded from this part of the scheme?

Noble Lords can see that there is a lot of detail here. A community that thought, on Tuesday morning, that everything was going to be all right are now very concerned that there are a large number of anomalies that need to be corrected. I will not go on, except to say that I am really grateful for all the help that the Minister has given, and I hope that he can provide some reassurance.

[Baroness Campbell of Surbiton (CB)]

My Lords, I will be brief because I know that time is of the essence. I pay tribute to the noble Baroness, Lady Brinton, for her sterling work on this Bill. She has given great comfort and strength, as well as enormous amounts of information, to the infected blood community, so that they can keep up with what we have been doing in this House up until today. She is right that there is now confusion in the community.

At the end of a very long day on Monday, I had thought that I might just get a day off, but by Tuesday my phone was ringing off the hook, and I became a helpline to many in the infected blood community who have the concerns that the noble Baroness, Lady Brinton, just described. I urge the Minister to give a little more clarity, if he can today, so that we can go back and continue to give reassurances to a community that has been campaigning and working towards this week for probably 35 years. I thank the Minister for his open door, because we have been going in and out of it for weeks. I, for one, really appreciate his support and help.

[Lord Marks of Henley-on-Thames (LD)]

My Lords, I add the thanks of these Benches to the Ministers—the noble Earl, Lord Howe, and the noble and learned Lord, Lord Bellamy—and the Bill team as a whole for the way they have handled the Bill. It has been a real example of co-operation and cross-party help, leading to a number of amendments, not only on this particular issue but on all the issues that we have faced. We have not always reached agreement and there have been Divisions; nevertheless, I think everybody here agrees that the Bill will leave this House much improved.

I also very much wish to associate these Benches with everything that has been said by my noble friend Lady Brinton, speaking from these Benches, and the noble Baroness, Lady Campbell of Surbiton. I pay tribute to the noble Earl for the way he has handled the infected blood issue, particularly by meeting with the community and noble Lords in a way that has been utterly helpful and completely sympathetic. We all know that it has devoured an enormous amount of his time, and we all respect and admire the care he has given to handling this issue. I hope that he will be able to give the reassurance today—to my noble friend Lady Brinton, the noble Baroness, Lady Campbell, and the House—that is sought by the infected blood community; it would be a great relief to them.

Many of us had telephone calls yesterday in which extreme concern was expressed about what was happening in view of the calling of the general election, the fear that the Bill might be lost and that further improvements or reassurance on the scheme might not be possible. I add that it would have been a crying shame if this Bill had been lost and had not got through the wash-up. That seemed a real problem yesterday; there was concern that it would happen. It has got through, and for that we are extremely grateful.

It is also a great shame that the Arbitration Bill and the Litigation Funding Agreements (Enforceability) Bill look as if they are under threat. That is ridiculous. The Arbitration Bill is a Law Commission Bill. It has to start in the House of Lords, it went through a long Special Public Bill Committee procedure, ably chaired by the noble and learned Lord, Lord Thomas, and there is no opposition to it. Similarly, the Litigation Funding Agreements (Enforceability) Bill has no opposition. These are two Bills important to the British economy because of the contribution that the legal services sector makes to it as a whole. For the progress of those Bills to Royal Assent before Prorogation to be stymied by an absurd convention that, if it has not already been introduced in the other House, a Bill will necessarily fail, is wrong. In those circumstances, I profoundly hope that the Whips in the Commons can come to an agreement. As I understand it, there is all-round agreement in the Lords that these Bills should go through. They must be taken through, just as this Bill has been taken through.

We are very grateful that this Bill has gone through. However, if the other Bills that are non-controversial and agreed cannot get through, the procedure on the wash-up needs a radical shake-up.