Victims and Prisoners Bill

Baroness Brinton Excerpts

3rd reading
Thursday 23rd May 2024 Lords Chamber

[Lord Russell of Liverpool (CB)]

My Lords, I will speak very briefly. I pay tribute to the noble Baroness, Lady Morgan, for her persistence and skills in negotiating with her own party, which is possibly easier than doing it from outside the party.

I stress the absolute importance of giving crystal clear guidance. The occupation of data controller is not necessarily high on the list of most of us as a potential career. I suspect that it is not the most exciting part of many bureaucracies. I also suspect that it is an area where one follows the rulebook, or what one perceives to be the rulebook, particularly closely. I suspect that the ability of individuals to feel that they have the power to exercise their own judgment is somewhat limited and probably not encouraged. It is incredibly important that there is absolutely no doubt in the mind of even the least curious or the most obdurate data controller as to what is and is not acceptable in terms of erasure.

Other than that, I thank the Government for having thought about this carefully, and for having responded. I hope that as a result of this, the data controller in Waltham Forest who is making Stella Creasy’s life rather difficult will at least read this debate or be told of it and will rethink his or her decision to not erase the data.

[Baroness Brinton (LD)]

It is my privilege to follow both the noble Lord, Lord Russell, and the noble Baroness, Lady Morgan. I signed this amendment and continue to offer my support. I echo and agree with everything they said.

I have slight concerns that this is not just an issue about the data controller; it is also about social work practice. That really worries me, because there is a mindset that says that if anyone makes a complaint, we have to have it on the record just in case for the future. I hope that the government amendments are sufficient to provide an answer, but should we discover either that Stella Creasy’s case is not dealt with or that there are others, I put all future Governments on notice that there is a team in this House that will return to the subject.

[Lord Watts (Lab)]

I will make just one point to the Minister: will the direction and guidance given to the data controller say that the information being found to be vexatious will be an automatic reason to delete it? As soon as something is found not to be true, it should be deleted and the data controller should have the obligation to remove it straightaway.

--- Later in debate ---

[Earl Howe (Con)]

My Lords, certain noble Lords wish to speak to this Motion.

[Baroness Brinton (LD)]

My Lords, I am very grateful for the opportunity to raise some issues that have arisen since the publication of the framework and tariffs for the new infected blood compensation scheme on Tuesday afternoon. I thank the noble Earl and John Glen for providing the details to make that possible, and the usual channels for ensuring that the work done so far is not lost but carried through.

However, over the last 24 hours, we have heard from a substantial number of members of the infected blood community who are distraught by the detail that has come out in the framework and tariffs, which seem to be at complete odds with the schemes that have gone before. I have a long shopping list of over 20 points; I will not detain the House with them, but I forwarded them to the Minister in advance of this debate. I will raise two or three as illustrations.

Under the new framework, there will be no distinction between chronic hepatitis B and C in calculating infection. There is no consistency about other diseases; for example, variant CJD has been left out of the new scheme but was included in the old one, as has Hodgkin lymphoma and possibly other cancers. Many people believe that the Government’s proposals still mean that the current schemes will be closed down, leaving them worse off, and that the Government have an incentive to wait longer to pay compensation. They need great reassurance and clarity that that will not be the case, because that is not evident in what was published on Tuesday afternoon.

Can the Government provide a breakdown of how the core route awards examples have been calculated? That would be helpful, even if only to say that there will be further information published online. There are concerns about the illustrative awards being worded as

“for a living infected person”

and not simply an “infected person”. Given that your Lordships’ House has debated a great deal of the wonderful news that estates will also be able to claim, does that mean that estates will be excluded from this part of the scheme?

Noble Lords can see that there is a lot of detail here. A community that thought, on Tuesday morning, that everything was going to be all right are now very concerned that there are a large number of anomalies that need to be corrected. I will not go on, except to say that I am really grateful for all the help that the Minister has given, and I hope that he can provide some reassurance.

[Baroness Campbell of Surbiton (CB)]

My Lords, I will be brief because I know that time is of the essence. I pay tribute to the noble Baroness, Lady Brinton, for her sterling work on this Bill. She has given great comfort and strength, as well as enormous amounts of information, to the infected blood community, so that they can keep up with what we have been doing in this House up until today. She is right that there is now confusion in the community.

At the end of a very long day on Monday, I had thought that I might just get a day off, but by Tuesday my phone was ringing off the hook, and I became a helpline to many in the infected blood community who have the concerns that the noble Baroness, Lady Brinton, just described. I urge the Minister to give a little more clarity, if he can today, so that we can go back and continue to give reassurances to a community that has been campaigning and working towards this week for probably 35 years. I thank the Minister for his open door, because we have been going in and out of it for weeks. I, for one, really appreciate his support and help.