Women and Girls with Autism: Mental Health Support

Alison Bennett Excerpts
Tuesday 15th July 2025

(1 week, 2 days ago)

Westminster Hall
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Karin Smyth Portrait The Minister for Secondary Care (Karin Smyth)
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It is a pleasure to serve under your chairmanship, Sir Edward. I am grateful to my hon. Friend the Member for Bournemouth West (Jessica Toale) for securing this debate and raising this extremely important topic. We know that, sadly, autistic people are at the wrong end of statistics on a range of mental health conditions: 70% to 80% of autistic people will experience mental health problems during their lives, and tragically many are more likely to die by suicide.

We have heard the devastating impact that can have on individuals and families. I pass my heartfelt condolences to my hon. Friend’s constituent, Ms Bridges, on the loss of her daughter. My hon. Friend spoke of the campaign for Lolly’s law, and I commend her for her tireless work to ensure that autistic people get the mental health support and treatment they deserve. As my hon. Friend said, that is exhausting, and too many parents are forced into campaigning roles. As she rightly said, Lauren should still be here.

It is clear that the number of autistic people and those with a learning disability who are in mental health hospitals is unacceptable. There are still too many people being detained who could be supported to live well in their communities. We want to ensure that people get the support they need in the community, improving care and keeping people out of hospital. The Mental Health Bill, currently before Parliament, would limit the scope to detain autistic people and those with a learning disability, so that they can be detained under part 2 section 3 only if they have a co-occurring mental disorder that requires hospital treatment.

The Bill would also introduce a package of measures to improve community support for autistic people and those with a learning disability. It is also critical, however, that when autistic people do need to be admitted to mental health in-patient settings, due to a co-occurring mental health condition, they receive the right care and support.

Alison Bennett Portrait Alison Bennett (Mid Sussex) (LD)
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My constituent, Annabel, who is a teenager, has parallel experiences to Lolly, as set out by the hon. Member for Bournemouth West (Jessica Toale). She also had a terrible experience being detained in a secure unit, which her parents did not think was safe. Does the Minister agree that when teenagers—children—are detained in secure units, more needs to be done to ensure that they are safe and fit for purpose to protect those children’s welfare?

Karin Smyth Portrait Karin Smyth
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The hon. Lady raises another terrible case concerning a teenager on behalf of her constituent. We must of course be mindful of that provision for children and young people. My hon. Friend the Member for Bournemouth West spoke of her constituent’s campaign to retrain mental health staff, to improve understanding and acceptance of autistic women and girls. As we have heard, we know there can be differences in how autism presents in males and females, which can make autism harder to identify in girls.

Children’s Health

Alison Bennett Excerpts
Thursday 10th July 2025

(2 weeks ago)

Commons Chamber
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Alison Bennett Portrait Alison Bennett (Mid Sussex) (LD)
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I would like to begin by paying tribute to a wonderful charity based in Mid Sussex called Group B Strep Support. Ever since its founder, Jane, lost her own baby, Theo, 30 years ago, Jane and the team have been campaigning for better outcomes for pregnant women who contract group B strep, because the impact on their babies can be profound; it is the most common cause of life-threatening infection for newborn babies. I open by asking the Minister whether she will meet the team from Group B Strep Support so she can better understand the potential of better screening of pregnant mothers.

As a mother myself, I do not take for granted the health of my children. All of us who are parents know that the health of our children can turn on a sixpence. We also know that the system that surrounds children and families and keeps children healthy has been allowed to crumble. As hon. Members have said, we are in the middle of a children’s health crisis in this country. This week, the Children’s Commissioner produced a damning report on the health of children across the country. The review told us that children in England are facing “Dickensian levels” of poverty, and are going without basic needs like heating, a place to wash, somewhere to eat breakfast or safe transport to school. Hon. Members use the word “unacceptable” a lot in this place and it may be overused, but in this case it is very true. We should be ashamed that children are facing this reality in 2025.

Our young people, who should expect to grow up to be part of a prosperous, happy and successful nation in the coming years, are being let down. Under the Conservatives, things got worse and worse. On their watch, in the period from 2022 to 2024 alone, the number of children waiting for over 52 weeks for an appointment increased by 60% for elective paediatric services and by 94% for community health services. However, this situation is not inevitable. The UK has world-leading researchers, passionate healthcare workers and a proud tradition of protecting public health. Britain’s children should be among the healthiest in the world. We are a wealthy country with a welfare state and universal healthcare.

However, we lag behind our peers. One in 11 children lives with asthma, and our country has one of the highest emergency admission rates for school-age asthma in Europe; it is avoidable, yet it is still happening. The number of children living with life-limiting conditions has risen by 250% in less than two decades. Some 2.5 million children in England are living with obesity, as other hon. Members have mentioned this afternoon, and over 1 million of them already have health complications. Almost one in five children now struggle with their mental health, which is a 50% increase in just five years.

However, children are waiting longer than ever to be seen. Since 2020, paediatric waiting lists have grown by over 166,000 children, but the number of consultants has barely budged, with over 50,000 children now waiting for more than a year to be seen. The Conservatives let those problems pile up; now the Labour Government cannot afford inaction.

The Liberal Democrats believe that every child deserves the best start in life, no matter their background, postcode or parents’ income. We also think that it benefits us all to have happy and healthy children growing up across the country. We would start by fixing the NHS from top to bottom, which means ensuring that everyone can see a GP within seven days, or 24 hours if it is urgent. I welcome the announcement in the NHS 10-year plan that same-day appointments will become available where necessary. My colleagues and I will push the Government to ensure that that pledge becomes a reality.

Fixing the NHS also means ending the scandal of children turning up to hospital with a mouth full of rotting teeth because there is no dentistry nearby. It means rebuilding the primary care and community services that have been starved of funding for over a decade. I know from conversations with my constituents in Mid Sussex that those problems are very real, and with them happening in what is a relatively well-off part of the country, it is clear that they are systemic.

However, it is not just about treating illness; we have to be determined to prevent it. That is why we would reverse the Conservative cuts to public health and invest in programmes that get children moving, eating well and thriving. We would tackle the poverty that drives so many health issues by ending the cruel two-child limit and reversing the benefits cap. We would expand free school meals to all children in poverty and work towards universal free meals in primary schools. We were glad to see the Government listen to Liberal Democrat calls for an expansion of free school meals, and are campaigning for that to go even further, because no child should go hungry at school—ever.

When it comes to mental health, we would transform the system from the ground up. That means having mental health hubs for young people in every community, regular check-ups at key points in life, a dedicated mental health professional in every school and a proper cross-Government strategy to understand and tackle the root causes, from bereavement to bullying and social media pressure. Children’s mental health is not just a health issue; it is an education issue, a family issue and a justice issue. It needs more than one Department and more than one Minister.

My Liberal Democrat colleagues have led the fight for early intervention, for holistic support and for real accountability. We have championed ideas such as a register of bereaved children, because how can we help if we do not even know who needs support? I ask the Minister to therefore commit to implementing such a register.

We face a real challenge, but we have the ideas, the evidence and the plan. Now someone has to get on and deliver the change that children across the UK so desperately need, so I urge the Government to take action. Let us build a country where no child is left behind and where every child and parent has, at the very least, the opportunity to be healthy and to look to the future with confidence.

Resident Doctors: Industrial Action

Alison Bennett Excerpts
Thursday 10th July 2025

(2 weeks ago)

Commons Chamber
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Caroline Nokes Portrait Madam Deputy Speaker (Caroline Nokes)
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I call the Liberal Democrat spokesperson.

Alison Bennett Portrait Alison Bennett (Mid Sussex) (LD)
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People across the country, and NHS patients in particular, will be disappointed to hear of yet more strike action by resident doctors this July, especially after the immense disruption of recent years. I and my Liberal Democrat colleagues fully recognise that this dispute does not come out of nowhere. The previous conservative Government left our NHS under unbearable strain, with doctors working under intense pressure in crumbling hospitals and often without the resources they needed. My constituents, and people across the country, need and deserve a well-functioning NHS.

Over the past three years, doctors have received a 28.9% pay rise following earlier strikes. The BMA is now calling for a further 29% increase, but we have to be honest: after years of economic mismanagement by the Conservatives, the public finances are in a dire state. That kind of increase does not feel affordable or realistic right now. That said, we cannot ignore the reality of working conditions in our NHS. Doctors are expected to save lives in collapsing wards and to deliver care in corridors, rather than in safe clinical settings. It is degrading and dangerous for both staff and patients. We need constructive dialogue, not escalation, to resolve this dispute swiftly and fairly, and most importantly, we need urgent action to rebuild our NHS and restore working conditions that our doctors and patients can be proud of.

First, will the Secretary of State improve staff morale by committing to end the dangerous and dehumanising practice of corridor care? Secondly, does he not see that by dragging out social care reform, delayed discharges and corridor care are only going to worsen doctors’ experiences of working in the NHS, weakening morale and lowering care standards?

Wes Streeting Portrait Wes Streeting
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I am grateful to the Liberal Democrat spokesperson, and I think I can reassure her on a number of fronts. First, she is absolutely right to call out the disgrace that is corridor care. Despite the best efforts of staff, who suffer the moral injury of treating patients in that situation, in too many parts of the NHS we have patients being treated on trolleys in corridors. In this decade of the 21st century, I think that is unacceptable, as is the emerging nomenclature that has started to describe these as “temporary escalation spaces”, because we are in danger of normalising what should be considered unacceptable practice. That is why this Government will shortly begin transparently publishing corridor care data showing the number of patients being treated on trolleys in corridors. I am sure there will be moments when that might cause Ministers and NHS leaders to blush, but frankly, until corridor care is consigned to history, so we should. Sunlight is the best disinfectant, and by publishing the data we will hold ourselves to account, and I am sure this House will hold us to account to ensure that we deliver the conditions that staff and patients deserve.

I also reassure the hon. Member that, while the Casey commission is under way, work on social care goes on, whether that is the £4 billion increase in investment in social care through the decisions taken by my right hon. Friend the Chancellor, or other improvements such as to carer’s allowance, the disabled facilities grant and uplifts in funding for local authorities. However, I am also committed to ensuring that, as we improve the flow of patients through our hospitals and deal with the scourge of delayed discharges, we are a lot better at thinking about how we use the taxpayer pound to best effect to deliver the right care, in the right place and at the right time. That will often mean using NHS resources to commission social care to help tackle delayed discharges, and we will be keeping a close eye on that.

Finally, I thank the hon. Member for joining the voices of reason in this Chamber. I hope it is not lost on the BMA and resident doctors watching that this is not a case of an intransigent Government unwilling to work with and support them who are trying to face down, for political and ideological purposes, a trade union speaking up for its members. This Labour Government have delivered a 28.9% pay increase and we are willing to work further to improve conditions for resident doctors. That work can start now, and I am ready to meet the BMA immediately.

There are other voices of reason in this Chamber, including among the Liberal Democrats, who recognise the pressure on the public finances. They recognise that we are trying to do many things across the NHS that will also directly benefit resident doctors, such as making sure they have the right kit and are working in decent buildings. We are improving the conditions that they are working in and that patients are treated in so that, together, we are building in, working in and being treated in an improving NHS. That is the prize, and that prize is being thrown into jeopardy by the resident doctors’ actions. If they go down this path, with all of the consequences that will follow, I am afraid—for them, let alone for the NHS and for the country—things will get worse rather than better, and I urge them not to take that course of action.

Care Settings: Right to Maintain Contact

Alison Bennett Excerpts
Tuesday 24th June 2025

(1 month ago)

Westminster Hall
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Alison Bennett Portrait Alison Bennett (Mid Sussex) (LD)
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It is very much appreciated that you have come to chair this important debate, Ms Butler, and I thank the hon. Member for Liverpool Walton (Dan Carden) for securing it. As the hon. Member for Strangford (Jim Shannon) just said, the number of people in this debate is not a reflection of its importance. All hon. Members who have contributed have spoken with real moral authority and have reflected the gravity of what we are talking about: the rights of some of the most vulnerable people in our society—those living in care homes, hospitals and hospices—and their right to maintain contact with and see their loved ones.

Throughout the covid-19 pandemic, thousands of people living in care settings in my constituency and across the country were forbidden from seeing those closest to them. That was especially devastating for residents living with conditions such as dementia or severe memory loss, which affect approximately 70% of care home residents. For those individuals, familiar faces are more than just comforting; they are essential to their sense of identity and stability. Let us imagine being cut off from the people we know best, who can calm us in moments of confusion, and who understand our needs in ways that no staff member possibly can. This is not an abstract issue but a painful reality that caused immeasurable harm during the pandemic.

Even as the rest of the country began to reopen in 2022, care homes continued to impose harsh restrictions. Data shows that between April and September 2022, 10% of care homes permitted no visitors at all during covid outbreaks, 20% confined residents to their rooms for up to 28 days and nearly half maintained some form of visiting restrictions even without any outbreak present. The impact of those policies was brutal. Vulnerable people in Mid Sussex and across the country were left isolated and confused, their symptoms worsening without the emotional and practical support that only loved ones can provide.

I want to share a story that will be distressing to some. Last week, I was horrified to watch a report on BBC South East about a 92-year-old gentleman, Donald Burgess, from East Sussex. Donald was a wheelchair user, having had one leg amputated, and on 21 June 2022, he was reportedly brandishing a knife in his wheelchair, having become irritable and confused. Care home staff failed to resolve the situation and so the police were called. Donald was sprayed with pepper spray, hit with a baton and tasered by police, all while still in his wheelchair. Donald was taken to hospital as a result of those injuries, and he subsequently caught and died from covid-19 a couple of weeks later.

On the BBC South East news report last week, Donald’s family were interviewed. Those family members only lived 10 minutes away from his care home. They said that if they had been called, they would have been able to go there and, potentially, calm him and resolve the entire situation. It is beyond tragic that that happened, and that it is how Donald’s life ended. If hon. Members present who are not from the south-east region are interested, the video and reports of the attack on Donald are available to view online.

I commend the tireless work of advocacy organisations such as the Relatives and Residents Association, Rights for Residents, Care Rights UK and John’s Campaign. Their efforts have been instrumental in raising awareness and pushing for change. I also commend the way that the hon. Member for Liverpool Walton set out the case for the required change.

The Government’s recent introduction of regulation 9A by the Care Quality Commission—a new fundamental standard on visiting and accompanying—is a welcome step forward. But while that regulation aims to ensure that care providers do not discourage visits, and that people can attend medical appointments accompanied by a family member or advocate, it falls short of what is needed. Regulation 9A relies on enforcement by the CQC, an organisation that is well understood to be stretched thin and facing a number of challenges. The CQC cannot prosecute providers for breaches of the regulation, and often lacks the resources for swift and consistent enforcement. Most importantly, the regulation does not create an enforceable right held by the individual resident. That gap leaves residents and their families vulnerable.

Without clear legal protections and a statutory right to visitation, we risk repeating the mistakes of the past. That is why my Liberal Democrat colleagues and I are calling on the Government to implement Gloria’s law without delay. Gloria’s law would enshrine in primary legislation the right for every person in a care or health setting to have at least one essential care supporter present, regardless of circumstances. As Rights for Residents says,

“only Gloria’s Law will guarantee that none of us will be forcibly separated from our loved ones again”.

I urge the Minister to answer the following important questions. First, does she believe that regulation 9A alone is sufficient to prevent isolation and ensure that residents can be supported in times of crisis or future public health emergencies? Secondly, are the Government confident that the CQC and the Department of Health and Social Care have the capacity, resources and real-time data systems to monitor visiting arrangements and act swiftly if restrictions become harmful? Thirdly, will the Government commit to going further by passing Gloria’s law, guaranteeing a statutory right to unrestricted in-person support from at least one essential care supporter?

The lessons of the pandemic are clear. Families are not visitors but vital partners in supporting those we love through their most vulnerable moments, so let us act now and give vulnerable people the rights they need and deserve. In doing so, perhaps we will save lives like Donald’s.

Oral Answers to Questions

Alison Bennett Excerpts
Tuesday 17th June 2025

(1 month, 1 week ago)

Commons Chamber
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Karin Smyth Portrait Karin Smyth
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My hon. Friend is right to highlight that issue. I commend her great work not just on the APPG but on leading the Health and Social Care Committee on behalf of its Chair, the hon. Member for Oxford West and Abingdon (Layla Moran). She is right to highlight that it is a priority for the Government to diagnose cancers earlier and improve survival rates. That is particularly important for the group of people with rare cancers. The APPG’s report will inform the development of our national cancer plan, which will seek to include all aspects of care throughout the entirety of the cancer pathway.

Alison Bennett Portrait Alison Bennett (Mid Sussex) (LD)
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Part of a successful cancer journey is swift cancer treatment as well as swift diagnosis. My constituent Catherine was diagnosed last year with stage 3 breast cancer. She had a mastectomy and went through chemotherapy. She was then meant to begin a course of radiotherapy in December, but as of May that still had not begun. What can the Department do to ensure that those unacceptable delays do not happen and lives can be saved?

Karin Smyth Portrait Karin Smyth
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Many hon. Members across the House rightly highlight the actual experience of people throughout the entire pathway. We have heard about the investment we are making in machines and in staff to ensure, on exactly this point, that people get not just that faster diagnosis—that is so important, particularly if cancer is ruled out—but faster care across the entire pathway. The majority of people on waiting lists are on them for diagnostics, which is exactly why we are investing more in capital and investing in staff to ensure that the process is quicker and better for patients. If the hon. Member wants to write to me about any particular issues, I will obviously respond to her.

NHS Funding: South-west

Alison Bennett Excerpts
Wednesday 11th June 2025

(1 month, 1 week ago)

Westminster Hall
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Alison Bennett Portrait Alison Bennett (Mid Sussex) (LD)
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It is a pleasure to serve under your chairship, Dr Huq. I thank my hon. Friend the Member for Torbay (Steve Darling) for bringing forward this important debate.

We have been reminded by hon. Members that the Conservative legacy is pensioners left in agony, waiting for hours for an ambulance that may not come in time; women forced to give birth in unsafe, overstretched conditions; and people having to pull out their own teeth—in the 21st century—because they cannot find an NHS dentist. We have heard from hon. Members that the south-west has some of the longest ambulance waits in the country, some of the worst repair backlogs, and waiting times for GPs and dentists that are simply unacceptable. That is not just a strain on our health services but a daily struggle for families, carers and patients across our region.

The Liberal Democrats believe that people deserve better, and that they should be in control of their own lives and health. That means people getting the care that they need, when they need it and where they need it, without them having to fight every step of the way. Instead of lurching from one crisis to the next, as previous Governments have done, we have a plan. It starts with early investment in community health—in GPs, pharmacists and dentists—so that fewer people end up in hospital to begin with. We will finally fix the crisis in social care, so that people are not left stuck in hospital beds with nowhere to go.

If we expect to rely on our NHS in future, we simply must invest in it. We need not just big grand schemes but investment in the simplest yet most important things. For example, in my own patch in Mid Sussex, the Princess Royal hospital recently had only one of its four lifts working over a weekend.

Caroline Voaden Portrait Caroline Voaden (South Devon) (LD)
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Does my hon. Friend agree that it is much more expensive to provide services in rural areas than in urban areas? An example is the pharmacy funding model, which relies on footfall. On a recent visit to Modbury pharmacy, staff told me that they are really struggling to stay afloat because they do not have enough footfall, and they cannot reach the national payment threshold that would enable them to survive. Does she agree that we need to look at rural exceptions for critical services such as community pharmacies?

Alison Bennett Portrait Alison Bennett
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My hon. Friend makes an excellent point about rurality, which is obviously a big issue in the south-west. It is also a serious issue in Sussex where we have things in common with the south-west, such as having an older than average population and all the challenges that come with that, as hon. Members have mentioned.

Hospitals want to be able to sort those issues out, but they are left juggling priorities, barely scraping by with the current levels of funding. Things do not work if we do not look after them, and if we do not look after our health system, it will not be able to look after us or our loved ones. Although I am sure that the Minister will make the point about capital investment in the NHS, which is welcome, the future looks very uncertain and precarious for our ICBs, as a number of hon. Members have said.

Soon after ICBs were first created, they had to cut their budgets by 30%. They have now been asked to cut their budgets by 50% on average. Indeed, for Sussex, the cut is more than 50%—it is 53%. It is no surprise that Sussex and Surrey have formally proposed merging their ICBs, which, by running at the same time as local government reorganisation and the creation of a mayoralty, means we will end up with an ICB that does not have the same footprint as the new incoming mayor.

Richard Foord Portrait Richard Foord (Honiton and Sidmouth) (LD)
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What does my hon. Friend think about how ICB funding is weighted? I contend that the formula overemphasises the size of each ICB and the size of the registered population, but does not account sufficiently for age, given that older people require more funding spent on them.

Alison Bennett Portrait Alison Bennett
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My hon. Friend makes a really good point. It is vital that when we look at per head of population funding, we think about the different factors that actually drive up the true cost of delivering healthcare across the country, which obviously varies by region.

On ICBs, I will press the Minister on three points. First, on the timescale for cuts to be delivered by ICBs, they have to be completed by the end of 2025. The Sussex ICB had about three weeks to make that initial submission to the Department. Does the Minister think that those timescales are realistic and achievable? Secondly, what will the cost of the redundancies be for ICBs? Has that calculation been done? For Sussex, we are looking at more than half the workforce losing their jobs. Thirdly, what is the impact assessment for patients and the service that they will receive as a result of cuts to ICBs?

For too long, social care has been treated like the back door of our public services. It has been overlooked, underfunded and taken for granted. That must change. That is why we must once again ask for more urgency on social care reform. I believe that personal care should be free at the point of use, just like the NHS—

Rupa Huq Portrait Dr Rupa Huq (in the Chair)
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Order. I call the shadow Minister.

Parkinson’s Disease

Alison Bennett Excerpts
Wednesday 21st May 2025

(2 months ago)

Westminster Hall
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Alison Bennett Portrait Alison Bennett (Mid Sussex) (LD)
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It is a pleasure to serve under your chairmanship, Mr Stuart. I thank the hon. Member for Colne Valley (Paul Davies) for securing today’s debate. As hon. Members in the Chamber have noted, Parkinson’s does not just affect movement; it affects every part of life. It disrupts eating, swallowing, sleeping, mental wellbeing and independence. Although more than 40 symptoms are recognised, each person’s experience is different—as unique as their fingerprint.

I want to focus a little on one group today: the experience of women with Parkinson’s is often more complex, more misunderstood and more neglected. That was brought to my attention by a constituent of mine in Mid Sussex, whose mother was diagnosed six years ago; it took her mother five years to get an accurate diagnosis. Women are more likely to be misdiagnosed, and more likely to be underdiagnosed. They are more likely to experience delays in treatment and to have their symptoms dismissed or attributed to anxiety or the menopause. Some research even suggests that women’s Parkinson’s symptoms may fluctuate more dramatically due to hormonal cycles, but we do not yet fully understand that because, historically, as in so many other contexts, women have been under-represented in clinical trials. Women with Parkinson’s are also more likely to carry the invisible burdens of being carers themselves, all the while struggling with a progressive neurological disease.

We need gender-specific research, treatment strategies and clinical training. We need health professionals who understand that Parkinson’s in women is a critical gap in care that we must close. When I submitted a written parliamentary question about that recently, the response revealed that the National Institute for Health and Care Excellence has no specific guidelines for Parkinson’s that reflect those gender differences. We need, as a society, to realise how differently the disease can present in and affect women.

Across the board, people with Parkinson’s face long waits for specialist care, delays in diagnosis and difficulty in accessing essential treatments. I recently talked to Richard, a constituent of mine in Mid Sussex who has Parkinson’s. He spoke of the profound difference that such treatments can make; he told me that they make life-changing differences to him. Yet for too many they are inaccessible due to postcode lotteries, which hon. Members have mentioned, and a lack of trained staff. What is perhaps worse is that some patients in hospitals are not even receiving their medication on time. For people with Parkinson’s, that delay can mean the difference between mobility and being bedbound, between clarity and confusion, and between dignity and indignity. We have to do better.

We must also talk about mental health. Nearly half of all people with Parkinson’s experience anxiety and depression. As the disease progresses, up to 60% develop psychotic symptoms, and they are up to six times more likely to develop dementia. Those are staggering figures.

What needs to change? We Liberal Democrats are calling for urgent reform, starting with a full review of the medicine supply chain, to ensure that no person has to live in fear of running out of vital medication. We want a faster approval process for new treatments through an expansion of the Medicines and Healthcare products Regulatory Agency’s capacity—not slashing it, as the Government have done by cutting 40% of its workforce. Every person with Parkinson’s or other long-term conditions needs access to a named GP, because continuity of care should not be a luxury. We also need to restore the importance of mental health in NHS planning. The Government’s decision to let the share of NHS funding going to mental health to fall and to scrap targets for dementia and mental health was wrong and totally short-sighted.

We also know that family carers are at breaking point. I thank the hon. Members for Aberdeenshire North and Moray East (Seamus Logan) and for Strangford (Jim Shannon), as well as my hon. Friend the Member for Tewkesbury (Cameron Thomas), for raising the issue of the personal independence payment. According to the Government’s own assessment, 150,000 family carers are going to be impacted by 2029-30 as a result of the proposals on PIP, and that is on top of the 800,000 people losing PIP. Has the Minister pressed his colleagues in the Department for Work and Pensions on that point when it comes to conditions such as Parkinson’s?

People with Parkinson’s should be supported not only to live, but to live with independence and dignity. Parkinson’s is cruel: it steals movement, independence and, far too often, hope. But we can fight back with the right policies, the right funding and the right political will. We can make a difference. Let us listen to the voices of people living with Parkinson’s—including women, whose voices and needs have been overlooked for far too long.

Wes Streeting Portrait Wes Streeting
- Hansard - - - Excerpts

My hon. Friend is absolutely right. I am very glad that my Department is working closely with other Departments across a range of issues, in particular with my right hon. Friend the Secretary of State for Work and Pensions on the link between employment, welfare and health, and with my right hon. Friend the Secretary of State for Education on the reform of special educational needs and disabilities, and the interface between health and education services—I could go on. The point is that a wide range of factors have an impact on people’s health and wellbeing. Indeed, people’s health and wellbeing can have an impact on a wide range of aspects of their lives, which is why we have to work in a mission-driven cross-Government way.

Alison Bennett Portrait Alison Bennett (Mid Sussex) (LD)
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I thank the Secretary of State for giving way; he is very kind. I was interested, when he was talking about the impacts of mental health on society at large, whether he has given consideration to the Carers Trust proposal, which would amend the Bill so that when a parent has a mental health crisis, checks and safeguards are put in place to ensure that any young carers in that family are suitably cared for?

Wes Streeting Portrait Wes Streeting
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I am grateful to the hon. Member for that intervention and for raising the very serious issue—an issue of increasing prevalence—of the impact of parental mental ill health on children and young people. We are very happy to look at the Carers Trust proposal, and to take representations on that and other issues as the Bill progresses through its Commons stages. We want to ensure that we get not just the legal basis of mental health provision in the right place, but practical care. As we think about children and young people’s mental health and wellbeing, we also need to take into account their parents’ mental health and wellbeing through that lens, too.

Patients’ choices and needs will always be taken into account, thanks to the introduction of a new clinical checklist. It requires clinicians to involve patients and those close to them in decisions affecting their care, while retaining the power to treat individuals compulsorily where absolutely necessary.

Parkinson’s Awareness Month

Alison Bennett Excerpts
Thursday 1st May 2025

(2 months, 3 weeks ago)

Commons Chamber
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Alison Bennett Portrait Alison Bennett (Mid Sussex) (LD)
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I thank the hon. Member for Dunfermline and Dollar (Graeme Downie) for bringing forward this important debate, and I thank all Members who have contributed. Everyone has made excellent contributions that were thoughtful and moving.

Right now in the UK around 153,000 people are living with Parkinson’s, and that number is set to increase to 172,000 by 2030. Richard from Burgess Hill in my constituency is one of those many thousands. I count Richard as a friend; he is someone I greatly admire for his courage and tenacity. I was lucky enough to speak to him recently and get a brief insight into his life with Parkinson’s. He told me that something he has noticed since his diagnosis is increased anxiety. He says that he now gets anxious about everyday things in a way that he never used to. He also said that the part of experience he has found most depressing is knowing that it is, in his words, “a one-way street”, where his condition can only be managed by using ever-increasing levels of medication.

From even a short conversation with Richard, it is clear just how complex people’s experiences can be. It is also clear to me that we need to do better, as many hon. Members have said, and that we have solutions already but we just need to get on with it. Parkinson’s is the fastest-growing neurological condition in the world. It is progressive, it fluctuates, and it affects everything from movement, swallowing, sleep and speech through to mental health. There are over 40 symptoms, and each person’s experience is unique. Half of those living with the condition, like Richard, experience anxiety or depression, and up to 60% can develop psychosis. They are also six times more likely to develop dementia.

Parkinson’s UK has identified some of the major failings in care today. They include long waits for specialists, a lack of access to expert multidisciplinary teams, people not getting their medication on time in hospital, and limited mental health and dementia support. There is also a postcode lottery when it comes to advanced treatments such as Produodopa and deep-brain stimulation. Those failings have consequences: unplanned hospital stays, severe complications and worsening mental health. Parkinson’s costs the UK an incredible £3 billion a year. In England alone, unplanned hospital admissions cost £277 million. So this is not only a health crisis but one with significant economic impacts.

I and my Liberal Democrat colleagues believe that the system must change urgently and that the Government have to act. First, we have got to fix the basics. To do that, we need to review the medicines supply chain. People with Parkinson’s must get their meds on time. We also need to expand the MHRA’s capacity, reversing the 40% workforce cut, and reducing the time for treatments to reach patients.

Secondly, we need to put care and support front and centre. We can do that by giving people with Parkinson’s access to a named GP—someone who knows their story and their condition—and by making mental health a priority, not an afterthought. That means regular mental health check-ups, easier access to services through walk-in hubs and restoring the mental health and dementia care targets that the Government have abandoned.

Thirdly, the Government must step up and support carers. Behind every person with Parkinson’s, there is often someone else who cares for them; someone who is quietly exhausted. We must provide respite breaks and ensure that carers have access to paid leave. We need to fix the broken social care system once and for all. It is time for those cross-party talks—no more delays. As I have said in this place before, we will clear our diaries to get those talks happening. This issue is simply too important for diary clashes. I wonder whether the Minister can give us any clarity and a date on those vital talks.

Finally, we have got to help people live and work with dignity. I and my Liberal Democrat colleagues are campaigning for: a new right to flexible work; better accessibility standards for public spaces; a stronger blue badge framework; the incorporation of the UN convention on the rights of persons with disabilities into UK law; and the closing of the disability employment gap. We can do that if we implement a dedicated strategy for disabled workers, simplify the application process and introduce adjustment passports so that workplace support follows the person, even if their job changes.

This is a health issue, an economic issue and a social justice issue. As others have said, it is about human dignity. We owe it to people living with Parkinson’s that we must do better, not some day but now. Let us build a future where those with Parkinson’s like Richard get the proper help and support they deserve.

Oral Answers to Questions

Alison Bennett Excerpts
Tuesday 25th March 2025

(3 months, 4 weeks ago)

Commons Chamber
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Alison Bennett Portrait Alison Bennett (Mid Sussex) (LD)
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My constituent Ben has spent two decades working as a nurse. He tells me that his paramedic and midwife colleagues received automatic pay band increases post qualification while he and his nursing peers did not. Ben and his hard-working nursing colleagues have missed out on tens of thousands of pounds compared to colleagues in other disciplines. Does the Minister agree that something must be done urgently to make up for this inequity?

Karin Smyth Portrait Karin Smyth
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I am absolutely clear that we need to make sure that the job evaluation scheme looks at staff across the piece and that people are rewarded appropriately for the work they are asked to do. We will do that as part of our discussions with the NHS Staff Council, and we will be working consistently with staff as part of the 10-year plan to ensure that people are rewarded. We depend on these staff, and we want to encourage them to be part of the NHS workforce. That is the approach we intend to take.