Usher Syndrome APPG

First Registered: 29/12/2021 • Last updated on: 02/01/2025

To raise awareness of Usher Syndrome in Parliament and the broader public, campaign for better support for people and their families living with this condition, and help to develop a cure.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
View Official Register Entry

Current Members - Contact Details - Benefits in Kind - Financial Benefits - Former Members

Reticulating Splines
APPG Supplied Content

APPGs can register with Parallel Parliament and submit files and articles to be placed here.

Parallel Parliament offers the facility for APPGs to submit written content and files, which are made available through this page.

Submitters can draft and edit publications, and either release them on demand, or schedule release for a future date.

Both text content and attached files submitted through this facility is indexed by our website, and made available through both the search function and relevant e-mail alerts. Any of our users registered for an alert which matches your content, will receive a link making them aware of its publication.

If you wish to register as an authorised representative of the Usher Syndrome APPG and use this facility, click below

4 Current APPG Officers
Mark Ferguson Portrait
Mark Ferguson
Chair & Registered Contact
Labour - Gateshead Central and Whickham
Joined: 2nd January 2025
Baroness Nicholson of Winterbourne Portrait
Baroness Nicholson of Winterbourne
Officer
Conservative - Life peer
Joined: 2nd January 2025
2 APPG Memberships
Lebanon , Switzerland and Liechtenstein
Katrina Murray Portrait
Katrina Murray
Officer
Labour - Cumbernauld and Kirkintilloch
Joined: 2nd January 2025
1 APPG Membership
New Towns
Anna Gelderd Portrait
Anna Gelderd
Officer
Labour - South East Cornwall
Joined: 2nd January 2025
Contact Details

Registered Contact:

Mark Ferguson MP, House of Commons, London, SW1A 0AA.

Email: mark.ferguson.mp@parliament.uk

No benefits in kind are on record for the Usher Syndrome APPG

No direct financial benefits are on record for the Usher Syndrome APPG

Former APPG Officers
Alex Norris Portrait
Alex Norris
Chair & Registered Contact
Labour (Co-op) - Nottingham North and Kimberley
Joined: 29th December 2021
Departed: 24th January 2024
No other APPG Memberships
Liz Twist Portrait
Liz Twist
Vice Chair
Labour - Blaydon and Consett
Joined: 29th December 2021
Departed: 24th January 2024
Sharon Hodgson Portrait
Sharon Hodgson
Vice Chair
Labour - Washington and Gateshead South
Joined: 29th December 2021
Departed: 24th January 2024
Ben Bradley Portrait
Ben Bradley
Vice Chair
Conservative - Former Member for Mansfield
Joined: 29th December 2021
Departed: 24th January 2024
No other APPG Memberships
Marie Rimmer Portrait
Marie Rimmer
Vice Chair
Labour - St Helens South and Whiston
Joined: 29th December 2021
Departed: 24th January 2024