Usher Syndrome APPG

First Registered: 29/12/2021 • Last updated on: 24/01/2024

Note: This APPG was last registered on 24th January 2024. The APPG was not registered in the latest release of the 20th November 2024 and may be defunct. Perhaps you are looking for the Down Syndrome APPG?

Share

To raise issues relating to the challenges faced by those living with Usher Syndrome and their families and for connected purposes.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
View Official Register Entry
Former Members - Contact Details - Benefits in Kind - Financial Benefits
Reticulating Splines
Former APPG Members
Alex Norris Portrait
Alex Norris
Chair & Registered Contact
Labour (Co-op) - Nottingham North and Kimberley
Joined: 29th December 2021
Departed: 24th January 2024
No other APPG Memberships
Liz Twist Portrait
Liz Twist
Vice Chair
Labour - Blaydon and Consett
Joined: 29th December 2021
Departed: 24th January 2024
2 APPG Memberships
Respiratory Health , Suicide and Self-Harm Prevention
Sharon Hodgson Portrait
Sharon Hodgson
Vice Chair
Labour - Washington and Gateshead South
Joined: 29th December 2021
Departed: 24th January 2024
5 APPG Memberships
Art, Craft and Design in Education , First Do No Harm , Parents , School Food , Ticket Abuse
Ben Bradley Portrait
Ben Bradley
Vice Chair
Conservative - Former Member for Mansfield
Joined: 29th December 2021
Departed: 24th January 2024
No other APPG Memberships
Marie Rimmer Portrait
Marie Rimmer
Vice Chair
Labour - St Helens South and Whiston
Joined: 29th December 2021
Departed: 24th January 2024
1 APPG Membership
Magnitsky Sanctions and Reparation
Contact Details

Registered Contact:

Alex Norris MP, House of Commons, London, SW1A 0AA. Tel: 0207 219 3899.

Email: alex.norris.mp@parliament.uk

Public Enquiry Point:

Sylvia Wilson, CUREUsher, 36 Turbinia Gardens, Cochrane Park Estate, Newcastle upon Tyne NE7 7LP

Email: secretariat@cureusher.org

Secretariat:

CUREUsher acts as the group's secretariat. https://www.cureusher.org/

No benefits in kind are on record for the Usher Syndrome APPG

No direct financial benefits are on record for the Usher Syndrome APPG