To raise awareness of Usher Syndrome in Parliament and the broader public, campaign for better support for people and their families living with this condition, and help to develop a cure.
APPGs can register with Parallel Parliament and submit files and articles to be placed here.
Parallel Parliament offers the facility for APPGs to submit written content and files, which are made available through this page.
Submitters can draft and edit publications, and either release them on demand, or schedule release for a future date.
Both text content and attached files submitted through this facility is indexed by our website, and made available through both the search function and relevant e-mail alerts. Any of our users registered for an alert which matches your content, will receive a link making them aware of its publication.
If you wish to register as an authorised representative of the Usher Syndrome APPG and use this facility, click below
Registered Contact:
Mark Ferguson MP, House of Commons, London, SW1A 0AA.
No benefits in kind are on record for the Usher Syndrome APPG
No direct financial benefits are on record for the Usher Syndrome APPG